Limb Lengthening Forum

Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: involgograd on May 22, 2015, 08:42:37 AM

Title: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on May 22, 2015, 08:42:37 AM
I did external lengthening in volgograd this year.
it was a positive experience.

basic info:
external ilizarov
no intramedullary nail at start
starting length about 170cm
desired gain =10cm
price=12500 euros + about 200 euros for first consultation and bloodtest
clinic name=klinika da vinci, 7th floor
clinic address= ул. Социалистическая, 17 = sotsialisticheskaja street 17
hospital/surgery adress= autotransportnaya street 75 (still do not know the name of the hospital)
doctor name=alexander barinov
biggest problem=boredom, 2nd= few weeks insomnia,3rd bandage change.
smallest probem=the surgery, the frame


In the clinic complex/patient area there can be 8 patients in four rooms
other patients live in apartments.
food is delivered everyday.
breakfast at 10.
sun wakes you up at 4-5.
there is a washing machine right outside room. very noisy.
the common area is uncomfortably narrow. one person can comfortably move around on crutches at the time.
there is a physioroom but most machines are not safe for ilizarovpatients, like the rockclimbing simulator.
you do walking outside your room in the hall which is like 20 meters.
Title: first impression of volgograd
Post by: involgograd on May 22, 2015, 08:43:34 AM
first impression of volgograd:
brown, everything is brown, roads, ground, buildings etc.
not super clean, no trash really, just doesnt feel clean
the roads are not all asphalt
there are a lot of potholes
buildings are not maintaned that well, like tilecracking and paintcracking
grafitti
lot of mud around streets
messy
overcast a lot

it gets better towards summer when vegetation starts growing and the sun shines.
Title: the surgery
Post by: involgograd on May 22, 2015, 10:18:51 AM
You will be in the clinic a couple of days.
Day before surgery you are sent by taxi on your own, which was worrying, to the hospital.

day of surgery
11.00 walk to surgery room with nurse
i feel calm. it is kinda strange. feels like i should be more nervous
most scaring thing was spinal anaesthesia. but, needle barely felt like anything..
nobody tells you anything about the surgery during surgery or even before it.

you get covered in lightblue gauze everywhere outside the surgery room.
you walk in and lie down on the surgery table.
a curtain of gauze blocks your view of your legs
anestesiologist talks little english but he tries talking with you the whole surgery.
words like bol, nyet, da, khorosho, are enough.
you have only one hand free
left hand is tied to the bed with iv drip in forearm and heartmonitor clip on left indexfinger.
you can use right hand freely.

they use a lot of antiseptic alcohol everywhere on your legs.
smells very alcoholly in the room.
you are injected in the spine with marcaine.
you are told it lasts from 12 to 18.

your legs get numb quickly, after 15 minutes they are completely numb.
you feel that the legs are there, but you cannot get any nervesignals to them.
it is kinda weird, funny, you tell your legs to do something but the signals stop at your stomach.
they poke your legs a couple of times to test the anestesia during 15 minutes.

12.00
the surgery starts, they dont tell you this though.
you can feel pressure when they cut your skin and when they chiselbreak your bone.
but no pain at all.
you hear banging hammering, drilling, screws tightening
you see little blood, stains on gloves, but no blood really.
you can feel these very small tingles in your legs feet etc., like nerve cells being numb and confused and tingling but they dont send any painsignals.

they listen to radio while operating, us songs, dance, pop, volgograd fm.
it gets kinda cold and you start shivering.
it helps breathing in deeply.

16.00 surgery finished


////
16.10 can move toes...still a little numb but toes are mobile and you feel touch. no pain really yet, but you feel pain starting to come.
stomach muscles are stiff and there is weird discomfort
16.25. pill of  ketarol. 10mg
16.45 pain 1 of 100 under right knee in tibia

17:09 irina takes away drip...iv
17 12 pain right leg grows...7 of 100% under knee.
stomach feels softer now
can move legs side to side now
not able to bend leg
no nerve control
17.22 pain same place starts in left tibia. 3 /100% pain
17.30 right 10/100% left 5/100%
17.45 right leg 15% pain
18.00 ketarol 2x 10mg pills
18.44 30% pain
can feel legs, little numb
18.50 pain quickly escalating 35%
18.55 pain becomes like... heavier., like something hard pressing more and more on your skin, on your tibia. and whole leg feels heavier and heavier.
19.00 50% pain
19.05 ketorolac injection in right thigh. numbness spreads immediately
19.14 35% pain in right tibia. heavy pain. knee kinda feels painful.. numbish pain.
pain is kindof everywhere along the tibia...weirdish, like there is pain, mostly at the tibia cut, but the pain spreads up and down to bottom of knee and to ankle.
19.17 pain getting less heavy. at 22.00 the ketarol injection should be full effect....
19.30 little biting pain around pin insertion holes. 30% heavy pain on right tibia break site. 10% on left.
situation feels good.
19.40 cannot figure / plan how to move legs at all. still aneastestisized so... very awkward.
20.24 pain at 15-25 on right tibia. 5-10 on left.
20.35 pain at 30-35 both
20.40 ketarol 10mg pill
21.00 injection ketarol. numbness eats the area in seconds. no pain of injection, very quick injection,  left thigh this time.
sleep. weirdly super sleepy. no sleep medication, just sleepy

about the surgery-room:
room is clean
room is square, like 30-40 m2 big.
there are machines like heartmonitor, oxygen machine
modern LED lighttube bulbs are used.
curtains are made of metal strips, bent and bad. should change those.
there seems to be one bulb broken in each of the two large round surgery lamps.

about the personnel:
there are 3 surgeons all from the clinic
3 nurses
2 anestesiologists
and some random assistants

advice:
plan immediately after surgery how to get nurse´s attention to give you ketarol before pain starts coming back
pain becomes 30-40 percent of 100 very soon.
these are the first days where the trauma will hurt very much before your body produces numbing agents around the area and you need medicine while this is going on  during the first days.
take painmedicine in advance and immediately when pain grows.
Title: surgery day 2
Post by: involgograd on May 22, 2015, 10:27:49 AM
surgery day 2.
3.03 wake up. 6 hour sleep.
no pain in left leg. 5% pain in right.
3.30 ketarol pill 10mg
4.10 pain is like a sleepy tired pain in legs. not heavy like yesterday. like when you are sleepy normal life and you feel your legs wanting to sit down or lay down. little biting pain under right knee. like 2% of 100 pain. nothing.
4.30 10% pain in both tibia fractures.
4.44 ketarol pill 10mg
6.00 pain is achetype. 10-15% both legs.
6.40 pain is still achetype. 20-25% both legs.
6.40 ketarol pill 10mg
7.00 21.00 30mgish injection ketarol...weird feeling. numbness eats the area immediately

9.30. doctor tsarkov tells me to walk back and forth in room 10meters. verdict: unsureness, unsteady, legs feel tied by rope, stiffness in all areas when walking,  sometimes 5 of 100 pain, standing straight is ok no pain, walking 5cm steps with straight legs ok no pain. bending anything feels uncomfortable and 5% pain.
10.00 bandaging. wheelchair to bandage room. getting into wheelchair barely any problem. good. no pain. alcohol everywhere before bandage removal.

12.40 all ok. little numb heavy feeling in legs. 5 of 100 pain
13.00 workout. lift whole leg up down. heavy frames feel like 5 kg per leg.very stiff legs. stiff ankles. pins are blocking the calves. flexing calves is resisted by pins. much resistance when trying to bend feet. only max 90 degrees, but difficult to bend to 90.  looks more like 100 degrees.

14.30 walk. terrible. crutches. have to stand vertically straight otherwise weird small pain. little twist, little wobble immediately 10-15 pain, but weird pain, like your legs are bound inside and round stones push your nerves. very stiff to move around. have to slide feet 5-10cm per step=then no pain at all. turning around is awkward and little painful. lifting feet is heavy and very insecure. too many things to handle. crutches, turning, keep balance, stand straight, heavy legs... no no nonono. just slidestep. too much stress and twist on other leg when lifting one leg to walk like normal walk. that is just too difficult. have to keep both feet on the floor. no pain when standing still.
14.45 lying down. legs are swollen. feel warm. moving toes works well.
15.00 all feels good when lying down. food. meatsoup and bread.
19.00 pain 10%. putting on footholders aligners to 90 degrees.
19.15. pain 20 on left tibia. 30 on right, biting pain at upper pin site on both outer knees.
19.15 10mg ketanol pill
20.00 pain at 2 of 100. ketarol works. also loosened the footalligners. too tight, numbed my toes.
20.05 new all russian doctor came in.asked if i needed ketarol. i nodded.
20.25 waiting for ketarol injection...
20.50 nurse gives injection.
sleep
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Alittletooshort on May 22, 2015, 11:26:46 AM
Wow, I've never seen somebody do an amount this large on the tibias. Are you doing Latn or pure external?
Wish you all the best!
Title: forgot to mention #1
Post by: involgograd on May 22, 2015, 04:47:34 PM
first consultation=
1
the doctor takes pictures of you and simulates your legs at 3,6 and 9cm distraction.
gives you an image of what to expect.
6cm looks at the max end of normal
9cm looks alien
although the calves looked a litte weirdly thin so....

2
dont trust the exchange rate if paying by card...it may become extra expensive
pay per bank wire if you can=exact amount.


Title: External ilizarovin tibias. Day three
Post by: involgograd on May 23, 2015, 07:42:03 AM

day three
4.30 wake up. tingling weak stinging feeling in spine at injection site. hopefully nothing  other than temporary sensation from raised legs all night
5.00 physio. air cycling
5.30 ache both legs at 10. warm tingly heavy stiff legs. full sensation. dont think any problem is here.
5.45 400mg ibuprofen. feels like a headache in legs. 15%-20%
6.00 physio. lift leg up down. wow. sitting still for minutes makes your ankles numb.interesting.
6.30 400mg ibubrofen.
6.40 legache 5%. thanks ibu.
7 00 physio. air biking
8.00 physio air biking 5 minutes
8.50 ache at 5-10%
9.10 nurse alina and other comes in checks on me. say food is soon.
9.30 nurse kirill checks temp with remote, 36,8degrees. all ok.
9.35 nurse ...did i get her name,larisa, matronly. takes my plate. who knew food would be catered..but seriously, get food on crutches.... that would have never happened. this should have been in the info though.... you will be brought food.
10:30 headachy feeling...like headache without the ache. weird feeling.
11 physio
12 physio
12.50 bored
13.40 took footaligners off. been numb in the ankles since wearing them all day. did physio with ankles up down. felt ankle pins after  some minutes so i stopped.
14.00 left knee pin pain growing, 20-30% of 100 now.
14. ibuprofen 400mg. physio
14.35 pain 1 of 100.
15. headache without pain
15.30 less headache
17. physio. causes ache in knees, left. 19 of 100
18 physio. bending leg hurts in left knee pin.
19 physio
20 25% ache in knees.400mg ibup
21. 3% ache. nurse manager comes in, asks if i am ok, if i need pain relief, i say no thanks. physio.
22 physio
23 physio. legs have been swollen all day.
sleep


Title: day 4
Post by: involgograd on May 23, 2015, 07:44:23 AM
day four
2.30 wake.15 % ache. can feel outer ankle pins both legs, no pinpain
 though, pressuretype pain 10 of 100 in legs
4 sleep
5. wake up physio
6. ibuprofen. should have taken the ketarol shot earlier. ankles still numb.
8. physio. legs feel heavy. numb. walking still is a mess weirdpain. 0 pain overall when resting.
9. 40 nurse gets breakfast,
12. nurse inna checks up. iv? i say no. need t o lay down/  i ask for more plastic bags..
13. constricted blooedvessels in neck, headachyish
14. physio. all ok. headache at 10%
14.40 nurse galina provides 6 plastic bags.... brings food
15. spinal anestesia site still sore...normal?
16.physio. tired today. like very low energy. no problem though
16.35 energy level normal
17. lay down
18. kitchen lady brings in food. i elevate legs on bedhead.
18.40 ache around knees, at 20/30%, ibuprofen.
19. three male nurses rudely open the door. reg checkup.

...same old
Title: extra. hospital food
Post by: involgograd on May 23, 2015, 07:48:40 AM
hospital food
in general=tolerable.
bring salt, they barely salt most of the things.

porridge, rice, wheat, crushed wheat, spaghetti in milk (ew...a russian thing)
cooked rice
cooked chicken
beef soup
vegetable soup
sweet fruit soups
tea
kefir
bread
butter
fried cabbage and beef
risotto of  beef
cookies
potatosoup with stirred egg
potatomash
tuna-egg patties
salmon fillet


Title: pictures
Post by: involgograd on May 23, 2015, 08:01:58 AM
day of surgery
(http://s15.postimg.org/cryi6093r/day_of_surgery.jpg) (http://postimg.org/image/cryi6093r/)

drip
(http://s21.postimg.org/9pwevqlv7/.jpg) (http://postimg.org/image/9pwevqlv7/)

leg length start
(http://s15.postimg.org/tbw6s8ydz/leg_length_start.jpg) (http://postimg.org/image/tbw6s8ydz/)


bandage change
(http://s7.postimg.org/6pmihjnhj/bandage_change.jpg) (http://postimg.org/image/6pmihjnhj/)


Title: day 5
Post by: involgograd on May 24, 2015, 07:55:45 PM
day 5
1.00 wake. pain, pin, biting 20% right ankle. ibupro 400mg.
dogs distant barking all night
9. two male nurses check in. do nothing. say nothing. morning mandatory check-in. right knee pin 10% biting feeling
physio.
9.30 olga . brings porridge.
11 heavy head
12 physio
13 same, physio
16 physio
96 hours postop
16.15 headache w.out pain all day. stand or sit 1min=heavy head

same as yesterday
no problems
Title: extra
Post by: involgograd on May 24, 2015, 07:56:44 PM
Def. best to wait 60 hours+ after surgery before doing anything extensive standing or walking with the legs. feels much more healthy now. stable etc. not recent operation/busted/broken/cut up
Title: day 6
Post by: involgograd on May 24, 2015, 07:58:36 PM
day 6
5.30 wake up, discomfort, no problematic
7.18 tempcheck by nurse.
...heavy head.
physio
10.15 dr tsarkov checks in. says he will come back later...
10.45 walking feels almost smooth with crutches. good.
 dr tsarkov checks in.

same
Title: day 7
Post by: involgograd on May 24, 2015, 08:03:05 PM
day 7
...no sleep
6.45 nurse kirill comes in rudely.  getting a heavy head...soreish legs discomfort
14 food delivered by larisa, ask for salt, she says niet salt
very annoyed today.
14.15 waiting for dr tsarkov
15. disgustingly bright sun until now. massaging thighs really helps with discomfort.
17.40 bandage nurse...tatiana comes to check rudely opening door.
18. group of doctors roam around the rooms..sigh.
19...standing ...walking... massaging ...all feels ok, the tightness around the pin /resistance in right knee inside loosens up all the way 180 degrees.
20.10 check in with irene online...irene gets home from work... she is too tired to talk.
20.50 tired from notsleeping.
22 bed
0.39 no sleep, weird legs

walking a lot today. stiffness and pain developed around inner pin on right knee.


Title: day 8
Post by: involgograd on May 24, 2015, 08:03:36 PM
6.42 wake. yessssssssssss. got sleep.
8 physio. sitting makes the fluid collect immidiately in legs...verge on crampy pain is the feelng. disgusting.

same

Title: day 9
Post by: involgograd on May 24, 2015, 08:04:04 PM
day 9
day of turning
7 wake up. sweaty. dehydrated. at least i slept kinda good. right upper inner calf still sore.
8:30 turn education by dr tsakov., turn again at 12, 16, only 3 times today
tomorrow turn at 7 11 15 19
9  antonina cleans room
10 tatiana, bandage nurse calls me to bandage room. comes back. says no. come in two days. no come 2 as in 14.00.
10.30 calf still swollen and sore on top.yellow skin. inflammation or infection...?
12 turn. confusing, did i turn one screw twice? hmm....crowded around upper screw on right leg
14 new bandages. walk is ok, tight right muscle. tsarkov says  very tight sore muscle is normal
15. getting  colder... window open at 2cm
16. turn.
17 dr barinov and tsarkov visit, hands out foot aligners, says walk 3/8 hours every day, the muscle soreness is probably a hematoma, collection of blood,
17.30 ankle toe physio,
18. food
20 ketarol injection. hmm...comes from brown hourglass bottle
Title: day 10
Post by: involgograd on May 24, 2015, 08:06:00 PM
day 10
second day of turning
2 wake up. physio
3 dry eyes, no other problems though
sleep
6wake up second time. physio
7 turn.
crutchsupported calf stretch. yes.
8 stretch...
11turn
cleaning lady. messy floor
16 physio. i feel the pins bending now that there is space between bonepieces
19turning
20 stretching thighs while laying on bed
same


Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on May 24, 2015, 08:38:06 PM
when you say 'physio' are you dong it yourself or is the nurse doing it for you.

if i may ask do you think it would be possible to do the lengthening at home and hirgin a physiotherapist to come in each day.

it seems to me everything is going smoothly and I wonder if doing it at home would be a preferred option.
Title: clarifications
Post by: involgograd on May 24, 2015, 09:33:26 PM
- tibia externals
- no latn, no nail in beginning
- physio is selfdone. just rotating ankles, stretching by various methods so whole leg is straight. nothing difficult.
- doing this at home seems dangerous. pins break for most patients. you get new surprising pains regularly and get paranoid.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Wintersleep on May 24, 2015, 11:06:22 PM
Why did you decide not to go for LATN - it does reduce the time in frames significantly. Doesn't Dr. Barinov offer it?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on May 25, 2015, 12:58:59 AM
Okay, thanks for information, what about consolidation, do you plan to go home for that?

as far as painkillers go, do they give them to you, or do you take them yourself, is there not some painkillers that require a needle into the vein?

do they generally speak english when you ask questions?

how often does the doctor come to check up on you.
Title: Oops. Yes. This is LATN.
Post by: involgograd on May 25, 2015, 01:57:06 PM
Yes this is LATN. Mixed it up with LON.
So NO LON.
Title: Only intravenous painkiller, Ketarol
Post by: involgograd on May 25, 2015, 01:58:57 PM
Only intravenous painkiller, Ketarol, an NSAID, is given on request and regularly the first week every night, then semi-regularly.

Title: day11
Post by: involgograd on May 25, 2015, 02:01:28 PM
day11
6.30 wake up.dehydration.discomfort, annoyance
7 physio
7.30 turn.
11.turn
12.30 buy salt from cafeteria, 48 r, 1,5l water 40 r
13.30 all ok
15.30 walk. soreness afterwards... pulsating soreness.
16 turn
19.turn
same
Title: 12
Post by: involgograd on May 25, 2015, 02:02:21 PM
day12
6.30 wakeup second time,achy legs, 15/20% aching pain, annoyed, dry eyes mouth. internet connection bad
7 physio
7.30 physio
8 physio
8.30 physio
9 food is ....where....when....
9.30 physio
food
10 physio
10.30 physio
nurse comes
11 physio
11.30 physio
12 cleaning lady galina comes. cleans mirror.hum....why
12.30 physio
13 physio
13.30 resting legs, quads are tired.
14lunch

i don´t always mention it but i turn too
Title: 13
Post by: involgograd on May 25, 2015, 02:05:13 PM
day13
6.30 wakeup. feel alright. left tibia breakage feels painfullish when weight bearing
9.30 tsarkov comes in. ask tsarkov about discomforts popping up past days. tsarkov does not want to help at all with small discomforts....hum....i get a bit annoyed
12.30 physio. right calf not as tight anymore.
19 really tired, slightly sleepy, not able to go to bed yet, annoyed, exhausted....like all days previously.
20 knee ache, 10-15% of 100. massaging the muscles around knees help completely. but ache comes back 1-5% immediately when stopping.
20.30
idea...knees need constantrubbing...tried tying around them. got relief.
21 ibu . still need to take something for the discomfort
21.30 ibu
22 ibu total 1000mg
22.30 no pain

i do some walking regularly although i don´t mention it
Title: Pictures
Post by: involgograd on May 25, 2015, 02:15:31 PM
common_room
(http://s6.postimg.org/632whty4t/common_room.jpg) (http://postimg.org/image/632whty4t/)

hallway
(http://s6.postimg.org/yeogevi19/hallway.jpg) (http://postimg.org/image/yeogevi19/)

hallway
(http://s6.postimg.org/8loliijv1/hallway2.jpg) (http://postimg.org/image/8loliijv1/)

outside_hospital_x_ray_room
(http://s6.postimg.org/yv9o1b5sd/neighborhood_hospital_x_ray_room.jpg) (http://postimg.org/image/yv9o1b5sd/)

physioroom
(http://s6.postimg.org/jb2aarvnx/physioroom.jpg) (http://postimg.org/image/jb2aarvnx/)

physioroom
(http://s6.postimg.org/pd9x19k3x/physioroom2.jpg) (http://postimg.org/image/pd9x19k3x/)

physioroom
(http://s6.postimg.org/prb90v47h/physioroom3.jpg) (http://postimg.org/image/prb90v47h/)

physioroom
(http://s6.postimg.org/6aqjec93h/physioroom4.jpg) (http://postimg.org/image/6aqjec93h/)

physioroom
(http://s6.postimg.org/rlo3ilr7x/physioroom6.jpg) (http://postimg.org/image/rlo3ilr7x/)

toilet
(http://s6.postimg.org/i3sxwaux9/toilet.jpg) (http://postimg.org/image/i3sxwaux9/)

washing machine
(http://s6.postimg.org/scgtodtl9/washing_machine.jpg) (http://postimg.org/image/scgtodtl9/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on May 25, 2015, 02:16:45 PM
physioroom looks great, do you actually walk to it and use the walking machine, i was under the impression you were bed bound and has to stay in bed the whole time and just move your feet around.
Title: 14
Post by: involgograd on May 25, 2015, 06:48:05 PM
day14
(still in hospital which will last for about 30 days total)
6.30 woke up.. annoyed. dry eyes. same thing as previously.
7. knee ache, arthritisy, annoying. massage
7.30 turn
11 turn
15 turn
19.30turn.
wrapping knees helps with ache
21 restless  legs.

2.30 noooooooo sleep.............
Title: 15
Post by: involgograd on May 25, 2015, 06:50:38 PM
day15
6.00 no sleep. restless legs all night.
8 turn
restless legs stopped
8.30 physio
9 stretch
9.30 larisa/ foodlady comes
10 tatiana calls to bandaging
bandaging
11.30 turn
.........
18 life sucks. cannot get sleep for **
.....
.....
23 walk until tired
4 ...some sleep
Title: pictures were of clinic
Post by: involgograd on May 25, 2015, 06:58:28 PM
pictures were of clinic, not hospital, taken at arrival
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on May 25, 2015, 07:02:30 PM
can't you use sleeping pills to force you to sleep.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: needheight on May 26, 2015, 01:20:19 AM
Hello Involgograd, thank you for starting this diary.

Did you reach a 10 cm gain and when did you do your surgery?
Title: pictures, streets around clinic
Post by: involgograd on May 26, 2015, 02:43:08 PM
volgograd
streets around clinic
(http://s6.postimg.org/919230kjx/volgograd_shot0001.jpg) (http://postimg.org/image/919230kjx/)

(http://s6.postimg.org/mjfyfawp9/volgograd_shot0002.jpg) (http://postimg.org/image/mjfyfawp9/)

(http://s6.postimg.org/59zhgp6vh/volgograd_shot0003.jpg) (http://postimg.org/image/59zhgp6vh/)

(http://s6.postimg.org/hejcbf959/volgograd_shot0004.jpg) (http://postimg.org/image/hejcbf959/)

(http://s6.postimg.org/hncbnlwjx/volgograd_shot0005.jpg) (http://postimg.org/image/hncbnlwjx/)

(http://s6.postimg.org/6mh6il4b1/volgograd_shot0006.jpg) (http://postimg.org/image/6mh6il4b1/)

(http://s6.postimg.org/htum4fv2l/volgograd_shot0007.jpg) (http://postimg.org/image/htum4fv2l/)

(http://s6.postimg.org/wluqi1bm5/volgograd_shot0008.jpg) (http://postimg.org/image/wluqi1bm5/)

(http://s6.postimg.org/5kbldsavh/volgograd_shot0009.jpg) (http://postimg.org/image/5kbldsavh/)

(http://s6.postimg.org/d2uqmf28d/volgograd_shot0010.jpg) (http://postimg.org/image/d2uqmf28d/)

(http://s6.postimg.org/pp55j94p9/volgograd_shot0011.jpg) (http://postimg.org/image/pp55j94p9/)

(http://s6.postimg.org/rpvp430ul/volgograd_shot0012.jpg) (http://postimg.org/image/rpvp430ul/)

(http://s6.postimg.org/6b4bjkd8t/volgograd_shot0013.jpg) (http://postimg.org/image/6b4bjkd8t/)

(http://s6.postimg.org/t7h5fn5l9/volgograd_shot0014.jpg) (http://postimg.org/image/t7h5fn5l9/)

(http://s6.postimg.org/dojpiixal/volgograd_shot0015.jpg) (http://postimg.org/image/dojpiixal/)

(http://s6.postimg.org/6do76egwd/volgograd_shot0016.jpg) (http://postimg.org/image/6do76egwd/)
Title: 16
Post by: involgograd on May 26, 2015, 02:46:35 PM
day16
1.00 wakeup. suspicion that the knee pain might be medial ligament inflammation.  annoyed. uncomfortable.
2.00 i can flex my calves now. ankles still spazzy, tighty, weird soreish
8 turn
11 turn
15 turn
16 tried to sleep. no luck.
16.30 1 ibu 400g. countdown begins.
17 stretch
17.30 barely any knee joint pain
18 stretch
18.30 stretch
19 stretch. turn
19.30 ibu
......
24 no sleep
24.30  ibu
ibu

day17
same old same old routine
tried turning more today
2.30 weird pain. unturned. felt less painful after that. ew. big mistake to turn excessively...

yessss sleep
Title: 18
Post by: involgograd on May 26, 2015, 02:46:54 PM
day18
all ok
same old
walk every even hour stretch after that until other walk

Title: 19
Post by: involgograd on May 26, 2015, 02:49:17 PM
day19
6.00 wake up. dehydrated. annoyed. . legs feel exhausted.
7.30 nurse kirill comes in check temp my is 36 deg
galina comes for plates
12 x-ray. one tibia little misaligned
2.30 walk
bathroom (nr 2)
you use a urine jug for urination in the room which gets cleaned once a day
4.00 sleep.... two and half hours

same old
i turn even though i don´t mention it
Title: 20
Post by: involgograd on May 26, 2015, 02:49:40 PM
day20
6.30 wakeup. computer usage. physio.feel sickenedly tired.
7.30 left knee tighter than right.
11 bandage
21 sleep med injection.
sleep
Title: 21
Post by: involgograd on May 26, 2015, 02:50:20 PM
day21
13th day lengthening
1.30 wake up. feeling drowsy. right knee ligament feels better. almost no soreness at all.
20 doc takes med orders..
21 still waiting...no meds tonight...hmm. confused and annoyed

same
Title: 22
Post by: involgograd on May 26, 2015, 02:50:54 PM
day22
14th day of lengthening
normal level tiredness.
inner left ligament tight and sore

6.30 wakeup
7.30 physio etc all day
18 right knee ligament less sore


Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: upandaway on May 26, 2015, 04:23:46 PM
Hi,

Thanks for the updates! How long did the visa take? Where are you from bro?

Are you sharing with other people?

thanks,

Title: 23
Post by: involgograd on May 27, 2015, 11:41:30 AM
day23
15th day of lengthening
legs are less swollen. dont feel swollen stiff.

6.00 woke up. slept badly.



Title: 24
Post by: involgograd on May 27, 2015, 11:42:53 AM
day24
16th day of lengthening
problem update: left knee very tight on right side. prevents extension fully. not turning left leg today.
questions: is  left leg longer? later realized by x-ray it is not.
nurses did not give any injections yesterday...
probably nobody told me that regular injections only come for 1-2weeks.
Title: 25
Post by: involgograd on May 27, 2015, 11:44:09 AM
day25
17th day of lengthening!
left knee tightness little better
left knee tightness even little better with stretching
1.30 wakeup
sleep
4.30 wakeup
sleep
8.30 wakeup
9 stretching
9.30stretching
10stretching
10.30 stretching
11stretching
11.30stretching
12stretching
12.30stretching
13stretching
13.30stretching
14stretching
18.30 able to extend left knee 99% straightness. still stiff and sore though
19.30 1st attempt sleep
Title: 26
Post by: involgograd on May 27, 2015, 11:44:53 AM
day26
left knee still tight
walking is totally ok.
only problem is to slowly stand up and wait until left knee normalizes from tightness


no sleep
Title: 27
Post by: involgograd on May 27, 2015, 11:45:37 AM
day27
left knee tight like yesterday
19th day of turning
16.00 did 1000 steps. 40 minutes
19.00 did 1000 steps 30 min
Title: 28
Post by: involgograd on May 27, 2015, 11:47:03 AM
day28
slept 3,5 hours...
more training today

i´m walking even though i dont mention it.
the more the better.
docs want 8 hours.
realistically more like couple of hours.
Title: 29
Post by: involgograd on May 27, 2015, 11:47:54 AM
day29
slept from 2.30 ish to 5.30. well better than nothing.
i can feel the broken tibia in both legs
left knee arthritisy like yesterday. maybe little better.

21 nurse gives sleepmed/ supracin...or something
Title: 30
Post by: involgograd on May 27, 2015, 11:48:16 AM
day30
same old
knee less tight now
legs have become less swollen the latest 5 days.
able to extend legs straight

got moved to clinic.
Title: 31
Post by: involgograd on May 27, 2015, 11:50:46 AM
day31
slept through the whole night! woke up once 1.30 though.
tibia fracture hurts in left leg. not in right
Title: 32
Post by: involgograd on May 27, 2015, 11:51:19 AM
day32
tibia fracture hurts in left leg. not in right. pain at 10 -15%
slept until 7ish. restlessly. pain at times.
Title: 32
Post by: involgograd on May 27, 2015, 12:04:32 PM
day32
same old

day33
same
Title: 34
Post by: involgograd on May 27, 2015, 12:07:40 PM
day34
doctor replaced the short rods for the third time.....
..give me the planned lenghts the first time..because...
warning=
they also overtightened and lengthened so that it hurt to walk afterwards.
had to unturn multiple turns on all screws on the right leg afterwards.
that happened after i told them repeatedly beforehand to not overturn.
i could feel my bones moving as they were doing it.

other:
left tibia pulsates and hurts at 10%
right inner upper pin hurts like skin stretched too far. ...at 15%
left leg can extend to 99% feels tight
right leg can extend 100% feels tightish

day35
same
pin-skin pain

day36
same
pin pain

day 37
same
pin pain

day38
same

day39
same

realized that knee does not become straight although it locks and feels the same at max extension compared to pre surgery. who looks at how straight their legs are normally? were they ever straight?...yes they were
docs diagnose it knee contracture.
inner ligament soreness now in right knee.

day40
swollen legs i see as problem now. happened also yesterday. pain type pressure, warmth, discomfort, prickling. calves get really tight and hard. filled with fluid.
overall i feel exhausted. discomfort and tiredness.weird. like a minimal cramp but not really cramp.
Title: 41
Post by: involgograd on May 27, 2015, 12:11:22 PM
day41
same old no problems

day42
new bandages
saw wounds
outer right pin stretched wound 1cm ish purple area.
same with outer left pin.
no other areas stretched.

day43
tight
same old
idea=double socks on feet for swelling. hmm lets see about that.
realization uncomfortable with the socks on.
swelling edema is normal for 4,2months according to studies. average. can be longer.

day44
no turning today
because
no sleep for two nights
testing testing...no turning=sleep?

day45
test failed. no sleep. couple of nights in a row

problem:swollen legs, disturbs the degrees of movement. elevation produces weird pain... although, just need to get the swelling down once to show doc that my bendability is ok....
legs feel like always, which is good.

bad mood....
13 got myself some coffee.
14.30 tired
17 coffee made head feel normal. body still major , exhaustion.
17.30walk.
18 walking messed with my already exhausted exhaustion. coffee doesnt help.
deep breathing for 5 minutes afterwards helped
18.30
left leg . something aches/skinish, tibiaish, no, the calfmuscle aches. super stiff
wow. keeping normal head position exhausts me.
horizontal, no problem. well, a tinge of exhaustion.
19 toilet, third or fourth time today, like. what the .... coffeine related..
19.30
realized i overturned on left leg. unturned .25 mm. overturning led to calfmuscle pain which kinda feels like everyhting, bone, skin muscle, everything hurts. unturning removed pain immediately. ah, amazing.
22.30
changed sleeping position. have a good feeling about this. ouch. left calfmuscle starts aching again...when bending knee.
sit up.
pain is gone.
lets see if it comes back after stretching.
sleep
Title: 46
Post by: involgograd on May 27, 2015, 12:15:28 PM
day46
slept . for..once.
forgot to mention a couple of nights insomnia previously
same

day47
sleeping is ok
annoyed
got to figure the sleep thing out myself.
tried different positions constantly

48
fractures sites sensatory from walking.
annoyed

49
9 bandage change

11.00 x ray
waited for 2 hours forthem to develop the photos.
bone is regenerating
left inner pin-skin  weird making the whole area sore... only 10 of 100 but biting   annoying pain.
ankle pins are sensatory. werent two days ago...
reason...too much walking?
or just the consistent surprise every week? new weird pain jumping from one place to another?

 later realized yes. just the weekly surprise. goes away after a week though. all of them. probably like more than 10 surprises during the whole process.
Title: 50
Post by: involgograd on May 27, 2015, 12:17:44 PM
50
surprise new discomfort of the week
right ankle pins are making the skin around them sore...
why? because of stretching whole leg when tilting forward repeatedly...stretches the skin around pins

slept well
woke up drained of energy

lower calves have been sore for weeks.

right calf seems ok now.
legs still swell up hard

15.00 walking accumulation at 3 hours. left stabilizing pin area bites like crazy but only for 3 seconds, put pulsates/cycles every 5-7 seconds. ....

same
Title: 51
Post by: involgograd on May 27, 2015, 12:18:39 PM
51
same old

right leg stabilizor pin, the lowest one, biting today....
walked 8 hours
 washing machine really noisy

52
woke up 5.20
thirsty
right leg tight. from knee all the way down to ankle. feels like a tingle, tickle, tight, uncomfortable stiff something.

53
right tendonds tight.no problem though
same old

Title: 54
Post by: involgograd on May 28, 2015, 09:44:32 AM
54
right tendonds tight.no problem
same old

55
same old

56
same

57
same old
right ankle sore.
realized that my tibias are deviating outwards maybe 2cm

58
skin under right ankle sore and swollen.
because of agitation?swelling?what? realized later it was skin tear 1cm. bitin painful 25% in certain positions.
same old
boring

59
right ankle sore
swollen ankles cant move them

60
swollen ankles cant rotate them. can flip up down though.
right anklepin still sore
right fibulafracture feels weird
mornings feel really crapty like often. irregular sleeping pattern.
better at lunch

61
same problems as yesterday

62
sameold same small probs

63
swollen ankles still cant move them
right anklepin not sore
right fibulafracture feels weird
mornings feel less crapty
tired bored as hell

64
same

65
same

66
same

67
same

68
right leg feels less tight
4 days of stretching made no difference to knee extendability
tried rolling bottle under with my feet
ah
amazing
greatest feeling ever.
sigh...doesnt improve tightness or anything though

69
...

70
no more upper pin-skin pain.was a regular thing, guess skin stretched enough.
right ankle pin hurting a lot. 10- 30% in some positions.
 pin cutting skin. at least no infection.
Title: it costs 2000euros extra for nail insertion surgery
Post by: involgograd on May 28, 2015, 07:39:58 PM
forgot to mention.
it costs 2000euros extra for nail insertion surgery. so total 14500euros
Title: Re: it costs 2000euros extra for nail insertion surgery
Post by: heightangel on May 28, 2015, 09:25:30 PM
forgot to mention.
it costs 2000euros extra for nail insertion surgery. so total 14500euros

Is it worth it?
Title: 71
Post by: involgograd on May 29, 2015, 04:26:07 PM
71

72

73
same...

74
able to extend legs straight basically 178-180 degrees now.
just through standing up slowly and straightening the legs slowly for 5-30 minute sessions for 1-2hours daily

75...
76...
77...same
78...
foot edema stabilizing.
usually shifts between really swollen and what it is now.
still swollen though.
forgot to mention that everything under the knees swells up. the feet the worst.

beginning to correct 2-3cm?ish valgus deviation outwards of tibias. only turning the outer screws 4 times daily

79...

80
stretching too much or bending too quickly afterwards has made upper tibia segment in right leg sore in certain movements.
lasts one day.



Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Wintersleep on May 29, 2015, 06:10:56 PM
Just want to let you know I really appreciate your diary so much. I am very likely going to Dr. Barinov in the summer of 2016 and this diary is invaluable. Thanks so much for taking the time :)

Can I ask what rate did you lengthen?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on May 31, 2015, 09:13:19 PM
it's likely I will be doing surgery with barinov, sticking to 5cm only so i guess ilazarov would be prefered over LON or LATN?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on June 02, 2015, 03:03:48 AM
is ketarol taken orally or is it some special injection, and if it is pills can you not just have them ready to take by your bedside along with a glass of water.

I read Kamui's diary and it was said the pain was very bad on the first night, is that because he did not have access to ketarol?

I am also confused about this general anesthesia that you are offered during surgery, people were saying if you take this you wil get a bad headache for days later on, but then it was said it might be somethign elese that causes the headache, if you can give some advice that would help a lot.

are there any patients that have had their devices removed in their own country, and if so does barinov expect us to send the device back to him.

for going home for consolidation, how I will get through airport the device on, should i bring some very baggy joggers, maybe I should bring my own wheelchair to russia, better yet maybe i should go to russia in a wheelchair so i know how to access the planes as a disabled person.

can I check that during the consolodation phase you can go up about 15 stair steps by sitting down on the first step and dragging yourself up each stair, I kindof need to do this to get to the 2nd floor of my house.

also during consolodation, what would be my prefered stance, should i be sitting in wheelchair most of the time, or should i be lying in bed most of the time.

also about wifi, i understand the hospital has no wifi, but does the clinic have wifi, I will only use the internet to change my flight times towards the end of the lengthening phase.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on June 02, 2015, 06:48:38 AM
this forum wont let me edit my post, even before another person has posted, so sorry for the triple post.

Another important question, are you charged in EUR or in Russian Ruble, as it seems the exchange rate is better groing from 605,000 Russian Ruble to GBP, than going from the quoted 12,500 EUR to GBP

can I ask, on the first night of extreme pain, can the doctor not simply knock you out? why most you endure it?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Morgenst. on June 02, 2015, 09:00:21 AM
Is the rod inserted immidiately after lengthening is done? How soon after rod insertion can you walk? And is it walking unassisted or assisted recommended?
Title: Re: pictures
Post by: G-Man on June 03, 2015, 02:05:14 AM
day of surgery
(http://s15.postimg.org/cryi6093r/day_of_surgery.jpg) (http://postimg.org/image/cryi6093r/)

drip
(http://s21.postimg.org/9pwevqlv7/.jpg) (http://postimg.org/image/9pwevqlv7/)

leg length start
(http://s15.postimg.org/tbw6s8ydz/leg_length_start.jpg) (http://postimg.org/image/tbw6s8ydz/)


bandage change
(http://s7.postimg.org/6pmihjnhj/bandage_change.jpg) (http://postimg.org/image/6pmihjnhj/)

Hello and thanks for sharing your experience!

First time I see Barinov's work!  Can you ask him why he puts the rings so far apart and why he uses only 2?  Doesn't it affect the stability and strength?  Especially since they are connected with long rods that have a very short union at the centre?

I can see TSF using only 2 rings as they have diagonals rods like in construction, making them extremely sturdy and stable, even under lateral force but for Ilizarov I thought it was better to put 3 rings?
Title: day 81
Post by: involgograd on June 12, 2015, 04:26:14 PM
81
...

82
...

83
elevating feet at head level
noticing that valgus on left tibia is unnoticable. still noticable on right.
Title: some f.a.q.
Post by: involgograd on June 15, 2015, 05:02:57 PM
Can I ask what rate did you lengthen?1mm/day

it's likely I will be doing surgery with barinov, sticking to 5cm only so i guess ilazarov would be prefered over LON or LATN?
lon and latn are ilizarov.
all patients in 2014-2015 with ilizarov LON had major problems, contracture, nervepain, loose screws. avoid LON.

is ketarol taken orally? yes, if you buy yourself from the 1st floor pharmacy in hospital

or is it some special injection?yes, free injections every night or on pain is mentioned in diary.

I read Kamui's diary and it was said the pain was very bad on the first night, is that because he did not have access to ketarol? I do not know. take all the injections they give you the first weeks. don´t wake up in pain. it sucks.


I am also confused about this general anesthesia? you are given a choice, spinal anestesia, marcaine, and stay awake.
or general anestesia and sleep.
i wanted to be awake to make sure i got painkiller injections in time.
waking up in pain was not part of my acceptable risks.

people were saying if you take this you wil get a bad headache for days later on?
yes, i have heard that most patients get bad headache for days.
i did not. just a heavy head. no pain.


 but then it was said it might be somethign elese that causes the headache, if you can give some advice that would help a lot? keep head horizontal.

are there any patients that have had their devices removed in their own country, and if so does barinov expect us to send the device back to him? i dont know. seems risky and complicated.

for going home for consolidation, how I will get through airport the device on, should i bring some very baggy joggers?yes

 maybe I should bring my own wheelchair to russia? ...
 
can I check that during the consolodation phase you can go up about 15 stair steps by sitting down on the first step and dragging yourself up each stair, I kindof need to do this to get to the 2nd floor of my house.? sounds difficult. not impossible. more risk of breakig pins. stairs are very very cumbersome with frames.

also during consolodation, what would be my prefered stance, should i be sitting in wheelchair most of the time? no. you should walk mostly to consolidate bones. then lay down and elevate legs. minimal sitting in anything.

also about wifi, i understand the hospital has no wifi? no wifi
but does the clinic have wifi?yes 250kbit.just get own internet with usbdongle is cheap for one month 30gb and unlimited gb during nighttime costs 700 rubles.

Another important question, are you charged in EUR or in Russian Ruble, as it seems the exchange rate is better groing from 605,000 Russian Ruble to GBP, than going from the quoted 12,500 EUR to GBP? pay by bankwire for exact amount. otherwise they will calculate the exchange rate and usually it is not favorable.

can I ask, on the first night of extreme pain, can the doctor not simply knock you out? why most you endure it? i did not have extreme pain, it went to 5 of 10 for some minutes. nurse gave me ketarol injection. pain went away first nights like that and completely away in couple of weeks.

Is the rod inserted immidiately after lengthening is done? yes. doc expects good regeneration before surgery of nails so walk alot.
Title: day 84
Post by: involgograd on June 15, 2015, 05:14:39 PM
84
valgus is almost gone
going to correct for couple more days.
elevating feet at head level

85
elevating feet above head level

86
been elevating feet at head level about an hour each day in a couple sessions for a week.
feet have shrunk to almost normal level until i walk or sit. not as bad swelling though.

87

88

89
valgus getting visibly better

90

91

92
i am at 7,5cm+ according to x-ray.
kinda relieved.
otherwise same old
-------------
Title: day 93
Post by: involgograd on June 15, 2015, 05:20:34 PM
93

94

95

96
lymphorrhoea
active leak of lymph from left ankle
soaks bandages
drips sloooowly
theoretically risky and dangerous because
bacteria eats this fluid
stops when elevating
continues for about a week.
Title: faq
Post by: involgograd on June 15, 2015, 05:20:57 PM
 Can you ask him why he puts the rings so far apart and why he uses only 2? he has habit of maximising the distance with the same location of pins regardless of leg lengths. patients can probably request more comfortable location of rings for bendability of knees etc.

  Doesn't it affect the stability and strength? have not seen anybody with problems, although some patients have had bending of the ridged rod inside the enveloping rod. kindof major 3-6 degrees bending, but apparently no problems....
 
 Especially since they are connected with long rods that have a very short union at the centre? there are longer rods that can  be ordered. they change your rods.

I can see TSF using only 2 rings as they have diagonals rods like in construction, making them extremely sturdy and stable, even under lateral force but for Ilizarov I thought it was better to put 3 rings? don´t know
Title: day 97
Post by: involgograd on June 17, 2015, 04:39:42 PM
97
more lymphorrhea from left ankle

98
broke a pin on the left while walking.
right foot in front and extending left calf.
sproing!
no pain at all but some panic.
pin was creaking with that exact movement for 10 minutes beforehand and for a couple of days...
external breakage, luckily.
not inside the leg.

same situation on the right leg.
it is also creaking.
not broken yet.

had to wait 4 hours
saw the doc but he had a surgery at the hospital first so...wait.

fixing it was...painfulish, or well at most 20% of 100
because it was like a creepy pain.
never felt anything like it.
surprising really.
kind of like at dentist when they pull out a tooth.
but it is your legbone.
the pain is biting but also numbish and it reaches to your skeleton.
not nice.
not really painful.
but very unpleasant and creepy.

doctor pushes the longer end in. creepy pain.
then refixates the pin which bends the pin towards the circle.
more creepy pain.
not nice.
very quick, 5 minute procedure in total.
but not nice.
no more walking today

99...

100...

101
walking much more carefully
stretching more

102...
Title: pictures
Post by: involgograd on June 18, 2015, 01:29:41 PM
more bandage change
(http://s6.postimg.org/wweqvk4jx/image.jpg) (http://postimg.org/image/wweqvk4jx/)

foot after elevation, lymph-soaked bandage
(http://s6.postimg.org/efkc4qolp/image.jpg) (http://postimg.org/image/efkc4qolp/)

(http://s6.postimg.org/j06ijo8b1/image.jpg) (http://postimg.org/image/j06ijo8b1/)

pin broken
(http://s6.postimg.org/uhrgovdot/image.jpg) (http://postimg.org/image/uhrgovdot/)

(http://s6.postimg.org/seh1h7dvx/image.jpg) (http://postimg.org/image/seh1h7dvx/)

pin fixed
(http://s6.postimg.org/gzfyyuc5p/image.jpg) (http://postimg.org/image/gzfyyuc5p/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Morgenst. on June 19, 2015, 09:30:57 AM
I saw your desired length was 10cm how much did you achieve when you were done? Does Dr. Barinov offer standard Ilizarov without nail insertion? I only want to do up to 6cm at most and dont wish to do LON or LATN.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: badwolf on June 21, 2015, 01:15:36 PM
Hi,

Thanks a lot for your informative diary!

I've been talking to Irene and it seems that Volgograd only offers LON or LATN for foreign patients now (as opposed to external only) due to immigration services imposing restrictions. I asked about permanent knee pain from LON or LATN. She said that due to Dr. Barinov's regime no patients have experienced knee pain so far. As you stated to avoid LON due to all patients in 2014 to now experiencing major problems, I'm assuming this isn't true? Also, is this the case with LATN as well?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on June 22, 2015, 03:48:16 PM
 As you stated to avoid LON due to all patients in 2014 to now experiencing major problems,
 I'm assuming this isn't true?
----
i understand lon as having nail and frames at the same time. yes, all 2 patients had problems.

Also, is this the case with LATN as well?
---
no. i have not seen problems with this
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on June 22, 2015, 03:50:28 PM
Does Dr. Barinov offer standard Ilizarov without nail insertion?
---
yes

I only want to do up to 6cm at most and dont wish to do LON or LATN.
---
good.
schedule many months for consolidation.
Title: day 103
Post by: involgograd on June 22, 2015, 03:53:56 PM
103...
104...
105
lymph leak stopped
bandage dried up hard and yellow
relieved

106
bandage change
right pin, dont know which, is creaking slightly when stretching the calves, so i walk differently, with crutches behind legs, because it is always when bending forward with crutches in front that a creaky pin breaks from extending the calf.
the movement automatically maximises the stretching of your calves and if your calves are stiff, it strains the pins.

so if there is creaking, stop walking and stretch.

107...

108...

109
valgus appears to be visibly is gone.
pin creaking on left...

110
pin creaking on left...

111
xray
everything looks good
pin creaking on left...
Title: food
Post by: involgograd on June 22, 2015, 03:55:50 PM
syrniki
сырники
(http://s6.postimg.org/7euju03kd/food.jpg) (http://postimg.org/image/7euju03kd/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on June 23, 2015, 12:55:10 AM
can the device be removed at the end of the consolodation by yourself or does it need to be an operation of sorts and a return to russia assumiing you went home for consolodation.

I am just trying to compare mitkovic device with this device, i know with mitkovic device you can remove it on your own.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: badwolf on June 26, 2015, 06:00:42 AM
Hi involgograd,

Will you still be there in the middle of September? I'm planning on going there for surgery then.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: jfk on June 26, 2015, 03:47:43 PM
can the device be removed at the end of the consolodation by yourself or does it need to be an operation of sorts and a return to russia assumiing you went home for consolodation.

I am just trying to compare mitkovic device with this device, i know with mitkovic device you can remove it on your own.

Removing it on your own and risking to get a bone infection because the pinsites were not cleaned properly. Great idea!
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 03, 2015, 01:33:39 PM
112...
113...
114...
115...
116...

it hurts manipulating the pins. i dont think most people could handle removing the frame themselves.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 04, 2015, 01:51:55 PM
117...
118...
119...
120...
121...

basically nothing happening. just stretching and waiting for next surgery.
Title: international patients should contact tonya
Post by: involgograd on July 04, 2015, 02:00:49 PM
international patients should contact tonya

info5 at rucosm
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 05, 2015, 08:25:51 PM
122
123
124
...nothing
sleeping well
eating well
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: G-Man on July 06, 2015, 07:53:41 PM
This is the most captivating diary ever!  ;D
Are there still a lot of girls like when RGKEY was there?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: microman on July 06, 2015, 10:52:39 PM
im kindof glad im going with mitkovic as im sure the hotel facilities will be better and i get to remove the device at home.

but i still keep an eye on this diary as i would have gone here if mitkovic wasn't still in business.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 11, 2015, 09:33:47 AM
breakast
(http://s6.postimg.org/wtqbiio0d/food_bandage_001.jpg) (http://postimg.org/image/wtqbiio0d/)
(http://s6.postimg.org/3mcvjrjt9/food_bandage_006.jpg) (http://postimg.org/image/3mcvjrjt9/)
(http://s6.postimg.org/5mytquqkt/food_bandage_000.jpg) (http://postimg.org/image/5mytquqkt/)

mostly a lot of oil in the food, example from salad
(http://s6.postimg.org/5lovxfor1/food_bandage_002.jpg) (http://postimg.org/image/5lovxfor1/)

Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 11, 2015, 09:41:07 AM
bandage room
(http://s6.postimg.org/p680dyeq5/food_bandage_005.jpg) (http://postimg.org/image/p680dyeq5/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 11, 2015, 01:26:27 PM
volgograd in the summer
(http://s6.postimg.org/je7w6t4wd/building_legs_012.jpg) (http://postimg.org/image/je7w6t4wd/)

(http://s6.postimg.org/pdvnagpot/building_legs_013.jpg) (http://postimg.org/image/pdvnagpot/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 11, 2015, 01:28:02 PM
summer
in front of building, 7th floor is the clinic
(http://s6.postimg.org/bo141o2kt/building_legs_010.jpg) (http://postimg.org/image/bo141o2kt/)

(http://s6.postimg.org/zdqjqd0y5/building_legs_011.jpg) (http://postimg.org/image/zdqjqd0y5/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 12, 2015, 01:33:36 PM
old shower, difficult to use, i think they changed it. remember to ask them to address problems.

(http://s6.postimg.org/6abillrm5/old_shower.jpg) (http://postimg.org/image/6abillrm5/)
Title: valgus
Post by: involgograd on July 13, 2015, 06:39:50 AM
---no pictures of valgus when worst


day of surgery
(http://s6.postimg.org/o20x5ab65/valgus_0.jpg) (http://postimg.org/image/o20x5ab65/)

valgus almost gone, left is worse, right is straight
(http://s6.postimg.org/ivpru8wel/valg.jpg) (http://postimg.org/image/ivpru8wel/)

standing, left is worse, right is straight
(http://s6.postimg.org/yq4o44l59/valgus.jpg) (http://postimg.org/image/yq4o44l59/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 13, 2015, 06:42:12 AM
bare bed
(http://s6.postimg.org/8dv4kr66l/clinic_room_bed.jpg) (http://postimg.org/image/8dv4kr66l/)

good stretch
(http://s6.postimg.org/99w7dy58t/stretch.jpg) (http://postimg.org/image/99w7dy58t/)
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 13, 2015, 09:40:35 AM
125
...
130
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 13, 2015, 09:41:26 AM
131
...
135
still nothing
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on July 29, 2015, 08:58:51 AM
136...
137...
138
139
140

bring proteinpowder, dvitamin and  isolated elemental calcium.
i ate less than rec. 1000mg+ of calcium daily and got some osteoporosis because of the fraudulent  labelling of calcium
1000mg of calcium carbonate is 400mg calc and 600mg useless carbonate, citrate even worse.
read up on elemental calcium.
http://www.livestrong.com/article/450630-diet-after-bone-fracture-surgery/
Title: warning
Post by: involgograd on July 29, 2015, 07:16:55 PM
warning! prices have risen a lot. patients are advised to get new info from clinic.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on August 04, 2015, 04:29:26 AM
141
142 feet been noticably shrunken latest week.
143 ...
144
145

do ll during the summer, more d vitamin.
you do not get d vitamin through windows.

warning! prices have risen a lot: hospital stay price, nail price etc
one day in hospital now costso 3000rubles, 30 days first operation stay 90 000 rubles,
approximately 1800 euro.
that does not include prices for test consultations xray and more

nail prices have recently doubled from 70000 for 2 to 140000.
the explanation given by VEKTOR-salesman, then doctor, then oksana was that nails are
 bought from eu  country and that 1 euro was 40 rubles which resulted in 70000r
for nails, but now the euro is 70, somehow illogically doubling the price to 140000r.
if that is true, the nails should only go up less than 50%, like to 100000r,
because an increase from 40 to 70 is an increase less than 50%
so somebody is cheating the patients!
just beware
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on August 04, 2015, 04:34:06 AM
146
147
148
149
150 ....

buy a big fannypack for money and phone etc.
backpacks wont work
shoulder bags work bad
Title: WARNING. DO NOT GO TO VOLGOGRAD BEFORE YOU DISCUSS THESE PROBLEMS WITH CLINIC
Post by: involgograd on August 06, 2015, 05:23:33 AM
WARNING. DO NOT GO TO VOLGOGRAD BEFORE YOU DISCUSS THESE PROBLEMS WITH CLINIC

THE CLINIC ASSISTANT HAS TOLD CURRENT PATIENTS THAT THERE ARE MAJOR FINANCIAL PROBLEMS FOR PATIENTS IN THE CLINIC AND POTENTIAL PATIENTS.
PROBLEMS CAUSED ENTIRELY BY THE CLINIC´S MANAGEMENT AND DIRECTOR OKSANA.
BUDGETS HAVE BEEN EXCEEDED AND RUINED AND PATIENTS ARE EXTREMELY ANGRY WITH OKSANA.

THERE HAVE BEEN PRICE CHANGES WITH THE HOSPITAL AND WITH NAILS.
OKSANA KNEW ABOUT THESE CHANGES AND TOLD NOBODY ABOUT THEM.
SHE KNEW THE HOSPITAL HAD RAISED PRICES SINCE MARCH AND NOW IT IS AUGUST AND SHE TOLD NO PATIENT. SHE WITHHELD THE INFORMATION FIVE MONTHS!
SHE KNEW NAIL PRICES HAD RISEN IN MIDDLE OF JULY, AND TOLD NO PATIENT!

SHE DISREPECTFULLY AND DAMAGINGLY DELAYS UNTIL LITERALLY THE END, THE DAY BEFORE SURGERY BEFORE SHE TELLS A PATIENT.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: kpa on August 06, 2015, 05:58:47 PM
an increase from 40 to 70 is an increase of 75%
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: MRbones on August 06, 2015, 07:50:50 PM
I would never go to this clinic, what they did to fk the patients out of money is disgusting.

go to pariah in india. he trained under paley, and has the fabled Taylor spatial frame.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Arch on August 06, 2015, 08:56:12 PM
They are just way to expensive, I was thinking to go Volvograd early 2016 but after they rised their price by over 50% it just ruined my whole planning, I'll be heading to India ..
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on August 09, 2015, 04:35:13 PM
correction:
there was an error about doubting the change of the ruble value.
a mean and false comment was made without checking currency rates.
the reason was a strong negative reaction to the substantial impact on a budget.

the information the doctor and oksana provided is true.
the euro to ruble: it was 30+ then 40+ from 2010 to 2014 and then changed chaotically between 90 , 80, 50 , 60 and then now around 60-70.
http://www.ecb.europa.eu/stats/exchange/eurofxref/html/eurofxref-graph-rub.en.html

a sincere apology for the error.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on August 09, 2015, 04:43:00 PM
there needs to be a correction to this statement:
--SHE KNEW NAIL PRICES HAD RISEN IN MIDDLE OF JULY, AND TOLD NO PATIENT!--
correction: the patient assistant has informed that current patients were told at the same time, which was a number of days after that the nailcompany had been contacted and prices found out.
this revelation happened about a week before a planned surgery.

the misunderstanding is that every patient did not know if other patients got the information.
all patients are not living in the clinic.
the tone reflects the substantial impact on a predetermined budget.
a sincere apology for this error.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on August 09, 2015, 04:49:23 PM
the situation has been confusing and impacting on the budget.
please do not follow the prices mentioned here.

please get all the current price info from the clinic.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: involgograd on August 23, 2015, 09:50:29 AM
the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
are the problems critical: mostly no
are the problems dealbreakers: mostly no
can a person ultimately accept the problems: probably yes

should a person have to deal with these problems: no
are there problems with any ll clinic? probably yes

conclusion=
do ll in any clinic of your well informed choice.
do prepare for the standard pains, insomnia, and discomforts.
do demand a list of all info, services, costs, tests and ask every question about any of the places you choose before you order a planeticket.

please turn any questions to the person in charge of international patients of any clinic you are interested in.
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: Wintersleep on August 23, 2015, 11:55:08 AM
They are just way to expensive, I was thinking to go Volvograd early 2016 but after they rised their price by over 50% it just ruined my whole planning, I'll be heading to India ..

Why not Dr. Solomin?
Title: Re: Involgograd:s diary. External ilizarov in russia, volgograd - Dr Barinov
Post by: tx1111 on August 23, 2015, 02:00:52 PM
Hello

Great diary

I think I have missed it although I did recheck your diary briefly so I have these questions:

How much did you end up lengthening?

How long was your distraction phase?

Did any complications affect the length of distraction phase?

How long was your consolidation phase?


Did any complications affect the length of consolidation phase?

You say you are endidng diary because legs are healthy? Does the mean you are walking normal or just unaided?

Thanks