Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Discussions => Topic started by: notatroll on June 21, 2018, 10:13:19 PM
-
LL deaths in the news
https://www.allkpop.com/buzz/2018/06/musical-actor-trainee-suddenly-dies-after-limb-lengthening-surgery
https://www.google.es/amp/s/bangaloremirror.indiatimes.com/bangalore/cover-story/he-became-a-6-footer-at-30-but-death-cut-short-his-tall-dream/amp_articleshow/21295618.cms
https://www.google.es/amp/s/www.vanguardngr.com/2016/01/they-let-my-daughter-die-as-i-watched-in-horror-mother-of-uniabuja-graduate/amp/
-
That's scary man.
-
I don't think that Second link is mainly about death caused by LL. The man who died had heart attack. He had unilateral lengthening and his death happened after consolidation period of his right /left leg
-
https://onlinelibrary.wiley.com/doi/abs/10.1111/1556-4029.13769
https://www.ncbi.nlm.nih.gov/pubmed/6705403/?ncbi_mmode=std
https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell%27Ospedale_di_Lecco
-
Fxck.... These surely could have been prevented, no?
-
What exactly is the cause of fat embolism/pulmonary embolism, their probability and their prevention/cure?
-
What exactly is the cause of fat embolism/pulmonary embolism, their probability and their prevention/cure?
I wonder if keeping cholesterol and blood pressure in check and in good health before getting the surgery will increase the chances of you coming out unscathed as far as FE and blood clots go
-
@tiger9898: second is actually a clear cut case of fat/pulmonary embolism.
-
I wonder if keeping cholesterol and blood pressure in check and in good health before getting the surgery will increase the chances of you coming out unscathed as far as FE and blood clots go
But dear you have to keep it like this for 6 months with no physical activity allowed... Isn't it difficult to maintain?
Also did rgkey really died of this sort of complication?
-
But dear you have to keep it like this for 6 months with no physical activity allowed... Isn't it difficult to maintain?
Also did rgkey really died of this sort of complication?
I suppose a proper diet could help. So this means it might be slightly more expensive when choosing your own foods but if it means no embolism or clot then i'm fine with it.
-
On pulmonary embolism (http://www.limblengtheningforum.com/index.php?topic=5485.msg86238#msg86238) and DVT.
Regarding fat emboli (http://www.limblengtheningforum.com/index.php?topic=8932.msg90543#msg90543), they will most likely get released into your system after an osteotomy. That doesn't automatically (https://en.wikipedia.org/wiki/Fat_embolism) mean you'll develop Fat Embolism Syndrome (FES).
However, I believe (I'm not a doctor disclaimer, as always) all medicine can do against FES is monitoring symptoms and enabling forms of ventilation. If you get acute/fuminant FES (the worst form), I think the only option is to get mechanical ventilation, then have the doctors do what's described here and pray for you (https://en.wikipedia.org/wiki/Fat_embolism#Supportive_treatment).
Another useful thread:
http://www.limblengtheningforum.com/index.php?topic=8960.0
FES diagnosis:
https://en.wikipedia.org/wiki/Fat_embolism#Diagnosis
-
On pulmonary embolism (http://www.limblengtheningforum.com/index.php?topic=5485.msg86238#msg86238) and DVT.
Regarding fat emboli (http://www.limblengtheningforum.com/index.php?topic=8932.msg90543#msg90543), they will most likely get released into your system after an osteotomy. That doesn't automatically (https://en.wikipedia.org/wiki/Fat_embolism) mean you'll develop Fat Embolism Syndrome (FES).
However, I believe (I'm not a doctor disclaimer, as always) all medicine can do against FES is monitoring symptoms and enabling forms of ventilation. If you get acute/fuminant FES (the worst form), I think the only option is to get mechanical ventilation, then have the doctors do what's described here and pray for you (https://en.wikipedia.org/wiki/Fat_embolism#Supportive_treatment).
Another useful thread:
http://www.limblengtheningforum.com/index.php?topic=8960.0
FES diagnosis:
https://en.wikipedia.org/wiki/Fat_embolism#Diagnosis
It's written above in one of the news link that fat emboli reached brain and lungs causing death...it means surgery carries very high risk of death, if it is certain that fat emboli gets released in large amount in case of large bones. It is just a matter of chance that they don't reach to the brain, if they reach to the brain/lungs then death is certain? This is true even post surgery days and could even happen during entire length of lengthening if not during consolidation?
-
It's written above in one of the news link that fat emboli reached brain and lungs causing death...it means surgery carries very high risk of death, if it is certain that fat emboli gets released in large amount in case of large bones. It is just a matter of chance that they don't reach to the brain, if they reach to the brain/lungs then death is certain? This is true even post surgery days and could even happen during entire length of lengthening if not during consolidation?
You should e-mail some of doctors listed here about that, and it'd be really nice if you shared their replies with us.
I had done a few of my own calculations on the risk of death through FES, but I'd rather not share what are estimations in a serious thread like this.
-
You should e-mail some of doctors listed here about that, and it'd be really nice if you shared their replies with us.
I had done a few of my own calculations on the risk of death through FES, but I'd rather not share what are estimations in a serious thread like this.
Good suggestion... But I think people who are undergoing the surgery or planning in very near future should take this up in person with their doctor to get better advice and also to make doctors take care of this thing especially during surgery. Please post the replies here.
-
i know 2 more guys who died after LL ,LiL Peep and Xtentation,Rip homies,that surgery is so ruthless...
-
i know 2 more guys who died after LL ,LiL Peep and Xtentation,Rip homies,that surgery is so ruthless...
This is a serious thread. It isn't funny.
-
should be noted that most FES happens with femurs, but pulmonary embolism could could happen with anyone.
The second case with vinay is very rare. he had unilateral tibias done and i don't think he died from FES, but rather pulmonary emboli that reached his heart leading to heart attack. The doctors most likely did not prescribe blood thinners to help prevent this, and the pt probably was not very healthy/active if he had a previous LL on his other leg prior to this.
you want to be in the best shape you possibly can be when it comes to stamina, strength, body fat %.
you want to get all blood work done to make sure you are very healthy.
you want to choose a very good surgeon who has a track record of success when it comes to CLL
you want to make sure your doctor will prescribe blood thinners post LL or else dont choose him as your surgeon,.
you want to make sure you are as active as possible post LL. You want to try to keep your legs moving even when you are laying on the bed. You do not want to get blood clots in your legs due to immobility post surgery. This is called DVT and the blood clot from the legs can go to the heart or brain (pulmonary embolism)
also it should be noted that there has not been a case of someone dying from CLL in the united states. Also hundreds of thousands of LL surgeries are done every year due to LL discrepancies and deformities
-
should be noted that most FES happens with femurs, but pulmonary embolism could could happen with anyone.
The second case with vinay is very rare. he had unilateral tibias done and i don't think he died from FES, but rather pulmonary emboli that reached his heart leading to heart attack. The doctors most likely did not prescribe blood thinners to help prevent this, and the pt probably was not very healthy/active if he had a previous LL on his other leg prior to this.
you want to be in the best shape you possibly can be when it comes to stamina, strength, body fat %.
you want to get all blood work done to make sure you are very healthy.
you want to choose a very good surgeon who has a track record of success when it comes to CLL
you want to make sure your doctor will prescribe blood thinners post LL or else dont choose him as your surgeon,.
you want to make sure you are as active as possible post LL. You want to try to keep your legs moving even when you are laying on the bed. You do not want to get blood clots in your legs due to immobility post surgery. This is called DVT and the blood clot from the legs can go to the heart or brain (pulmonary embolism)
also it should be noted that there has not been a case of someone dying from CLL in the united states. Also hundreeds of thousands of LL surgeries are done every year due to LL discrepancies and deformities
"hundreds of thousands of LL surgeries are done every year"
Seriously!?
-
"hundreds of thousands of LL surgeries are done every year"
Seriously!?
I don't know the exact # but I believe it should be around there. Dr paley himself does almost 1000 leg lengthening a year of which 40-50 are cosmetic.
There are a lot of orthopedic surgeons specialized in deformity correction but very few do cosmetic leg lengthening
-
What could be the cure for FES, if blood thinners are for pe?
-
How do you know? That's just speculation on your part and very naïve.
-
also it should be noted that there has not been a case of someone dying from CLL in the united states. Also hundreds of thousands of LL surgeries are done every year due to LL discrepancies and deformities
[quote author=MirinHeight link=topic=8978.msg91519#msg91519 d
also it should be noted that there has not been a case of someone dying from CLL in the united states.
How do you know? That's just speculation on your part and very naïve.
I think MasterHY died in the States. He had surgery with Betz, got complications and he died after corrective surgery in the States. I would like someone who met him to confirm.
-
How do you know it? What does it mean "you think"?
-
How do you know it? What does it mean "you think"?
There is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft. I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.”
There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.
-
How would a non-union in your leg kill you, especially while being under medical care in the United States?
-
How would a non-union in your leg kill you, especially while being under medical care in the United States?
You start as a cosmetic patient but then you become a medical case. It can be a very slow death, taking years and several surgeries.
-
any medical procedure has risks, please don't act as if this is a new news, we all know there are associated risks.
-
Oh well. Still getting LL
-
I think MasterHY died in the States. He had surgery with Betz, got complications and he died after corrective surgery in the States. I would like someone who met him to confirm.
I’ve read that people assume he killed himself, suicide,
not complications from reconstructive surgery
-
I’ve read that people assume he killed himself, suicide,
not complications from reconstructive surgery
MasterHy didn't kill himself. He had complications after reconstructive surgery and stopped replying. His friends think he died.
The guy who killed himself was a Monegal patient in Spain.
-
This is like 1 in 1000 case and ppl die of heartattacks even at 30's due to the fast food diet in modern age. i think this has more to do with the overall diet and health of the person. Also if bloodthinners were used, i dont think this should happen.
-
This is like 1 in 1000 case and ppl die of heartattacks even at 30's due to the fast food diet in modern age. i think this has more to do with the overall diet and health of the person. Also if bloodthinners were used, i dont think this should happen.
I agree bloodthinners are important. My exdoctor used to forget them. BUT MasterHy had an infection, his bone didn't consolidated, had useless corrective surgeries and suddenly disappeared. Blood thinners have nothing to do with his case. Blood thinners help to avoid Deep Vein Thrombosis. They don't help with infections or non union. There are more cases than you think.
-
i think the most dangerous or fatal is fat embolism and if that is big and travels to the upper regions(embolic stroke or pulmonary emboli) that is most likely a quick clean death.
now the real question is how to avoid this.
-
Its either do this surgery or live the rest of your life with this problem. If you can overcome it ok.
-
Its either do this surgery or live the rest of your life with this problem. If you can overcome it ok.
for most of us it has developed into more of a mental problem then it was a physical. so doing the surgery is a must to live sane life.
-
I already done 1 I just want to even out my femurs a little.
-
for most of us it has developed into more of a mental problem then it was a physical. so doing the surgery is a must to live sane life.
but sometimes you get complications and kill yourself after LL...
-
I didn't die
-
I didn't die
Not you. I mean other people. I had a classmate who killed himself.
-
Not you. I mean other people. I had a classmate who killed himself.
wat was his complication?
-
The guy wasn't happy with the results. He had random pains. He wasn't a member of the forums. He was discreet.
-
He killed himself because of pain after surgery ?
-
He killed himself because of pain after surgery ?
To be honest I don't know why he killed himself. He was unhappy with the surgery and complained about random pains but he'd probably more reasons to kill himself. He was a great person. RIP.
-
I have too much to live for personally I am married with a small child
-
I have too much to live for personally I am married with a small child
Congratulations man. If you have family be wary them to be supportive. Some families aren't. I met patients who lost their girlfriends after the complications caused by the surgery. Women are cruel, they call you cripple and cheat on you. Others complained about their sequels, they couldn't play with their children anymore. This surgery can change your live for the better but for most of my classmates it just brought chaos and pain. Maybe some guys here tell the truth and had a good experience. It's not my case nor my friends' cases.
-
What country are you from? I already done this surgery before remember I done over 6cm -6.5 , this time I'm only going 4cms I doubt I will be a cripple .
-
What country are you from?
I had surgery in Spain. I'm in xxxxx now.
-
What country are you from? I already done this surgery before remember I done over 6cm -6.5 , this time I'm only going 4cms I doubt I will be a cripple .
If you choose a good doctor and you have good luck… you won't be a cripple.
-
If you choose a good doctor and you have good luck… you won't be a cripple.
Tell me which doctors done the surgeries of your friends that were crippled ?
-
Tell me which doctors done the surgeries of your friends that were crippled ?
Monegal. Stay away from him. He has crippled many patients. For me he's the worst option in Europe.
I have talked to patients who have had bad results with Betz and Guichet as well.
-
I don't know what to say because I done surgery with Dr sarin in 2012-2013 and everyone says he's bad, but I had absolutely no problems other than Dr sarin telling me to stop at 6.5cms. I listened to him and stopped.
-
what has happened with notatroll?
-
Monegal. Stay away from him. He has crippled many patients. For me he's the worst option in Europe.
I have talked to patients who have had bad results with Betz and Guichet as well.
you know the problem with LL is that as far as I have seen, no doctor has good enough reputation. Which means in my opinion that either not enough people is doing it yearly, or, the procedure itself is way riskier than we think.
I am trying to find a doctor in Europe and EVERYONE has bad stories, everyone. Some success, some bad stories. Not good. Otherwise name a doctor in Europe that is very, very safe. I'm waiting.
-
Köhne
-
any diary about his patients? can't find any info