Limb Lengthening Forum

Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: InFullStryde on March 24, 2019, 04:57:54 PM

Title: CLL Veterans - How did your body/legs feel as you proceed over 6cm+ ?
Post by: InFullStryde on March 24, 2019, 04:57:54 PM
CLL Veterans - How did your body/legs feel as you proceeded over 6cm+ ? 

I am looking for benchmarks to measure myself and my experience against. I am currently at 6.3cm and hope to reach 6.9cm.

Thank you,

IFS

P.S. Sorry this is in the wrong category.  Admin, please place it into discussion.  My fault.
Title: Re: CLL Veterans - How did your body/legs feel as you proceed over 6cm+ ?
Post by: California2 on March 24, 2019, 07:50:29 PM
It seems you have been doing well.  Nonetheless, please listen to your body and your MD.

One turn of the screw could lead to big problems.

After 6 cm, I was careful to listen to my body.  I slowed down to .75 mm per day as a goal.  Even then, if my calf or my ankle felt tight or painful, I did not do the next distraction until everything felt settled down.

Even then again, as soon as I completed a distraction session, I laid down for 15 minutes to wait for the spasms to pass.

6 cm is an acceptable lengthening amount; that is, you can stop and still feel good about what you did.  Of course, 6.9 is better; maybe 8 cm is best?  I humbly suggest you take your time and listen to your body to see if you can get there; but, be satisfied by whatever you get.  For me, after 6 cm, things were quarter millimeter by quarter millimeter.

Best of luck.
Title: Re: CLL Veterans - How did your body/legs feel as you proceed over 6cm+ ?
Post by: InFullStryde on March 24, 2019, 08:40:00 PM
It seems you have been doing well.  Nonetheless, please listen to your body and your MD.

One turn of the screw could lead to big problems.

After 6 cm, I was careful to listen to my body.  I slowed down to .75 mm per day as a goal.  Even then, if my calf or my ankle felt tight or painful, I did not do the next distraction until everything felt settled down.

Even then again, as soon as I completed a distraction session, I laid down for 15 minutes to wait for the spasms to pass.

6 cm is an acceptable lengthening amount; that is, you can stop and still feel good about what you did.  Of course, 6.9 is better; maybe 8 cm is best?  I humbly suggest you take your time and listen to your body to see if you can get there; but, be satisfied by whatever you get.  For me, after 6 cm, things were quarter millimeter by quarter millimeter.

Best of luck.

Thank you, California. Excellent advise.