Limb Lengthening Forum
Limb Lengthening Surgery => Height & Proportions => Topic started by: concernedmom on January 12, 2015, 06:10:55 PM
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I just need some feedback from people's experiences about the growth. My son is 15.
A year ago he started his puberty and the bone age jumped to 17.I am trying to keep his growth plates open.He is on Lupron to slow down the puberty. I am giving him the aromatase inhibitors also. He is on Growth hormone since he is also deficient in that.He is 5.3''.I have done this since June. Have only seen 1/2 inch growth. I am so frustrated. Any experience from others? I just need to know my next step.I am already thinking about LLP.
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how tall are you. how tall is the father?
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I am 5.2 and 1/4. Father is 5.5"
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if he is 15 then there is a good chance he will grow with proper nutrition. research nutrition on you tube.
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I wouldn't do LL until 18-19, there is some hope for him to grow some cms
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He is on GHR capsules. I am also giving calcium d3.Vitamin B complex.
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If the growth plates are open, I would wait. Just very frustrating. He does not understand now, but I have always have suffered from being short. :(
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He is on GHR capsules. I am also giving calcium d3.Vitamin B complex.
Try this:
1. Propper Nutrition
2. 9+ hours of sleep
3. Hanging
4. Sprints
Sprints boost growth hormone, make sure he doesn't eat 3 hours before the exercise and 3 hours after to maximize the productions of growth hormone, and some stretches wouldn't hurt, if he does that from now it would be better, the longer you wait the worse the situation wil be
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What's like to be married? I see it as a end of everything
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Thank you. I would add the sprints.
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Maybe the beginning !!! :(
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Your sons height seems within normal range when considering both you and your husbands height.
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Give him an hipercaloric diet with a lot of protein . Carbohidrates. Vitamins. go to an endochrinologyst to give him growth hormone.
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He must laugh alot also.
Show him comedy stand up after soccer practise. It will help with school, girls stuff like that.
0%stress. If he is stressed about homework. He do it in the mornings. Not at noon becsuse the stress levels are high even 1-2 hours or more after hes done.
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We are already on the growth hormone.Also medication to suppress all the sex hormones. On top I am giving him aromatase inhibitors. We are doing blood test every 3 months. Growth plates on knees are open, hands are closings, falanges closed.
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How are your son's proportions? I had my last spurt at his age, and it was due to sections of limbs being longer than the other - teenagers grow from out to in.
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Can you increase growth hormone dosages?
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seriously this should be treated by a doctor not in a forum, follow your doctor advices and if he couldnt be taller with that maybe he will get to a more normal height with limb lengthening
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Even though I'm not a doctor, GH should only be taken before puberty.
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It seems proportionate. I will check the femurs and tibias.
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Doctor is on top. Don't worry. Growth hormone cannot be increased because of IGF-1 being high. It is dangerous.I am just frustrated him not growing further with all my efforts. But I will check the proportions. I think his trunk is longer than the legs.
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Doctor is on top. Don't worry. Growth hormone cannot be increased because of IGF-1 being high. It is dangerous.I am just frustrated him not growing further with all my efforts. But I will check the proportions. I think his trunk is longer than the legs.
He should be close to finished then if his tanner stage is passed the 4th stage- but just to be sure, he'll have to wait until puberty has been complete. Who knows? He might be able to grow some more.
While I do not know your son very well, would he see surgery as an opportunity?
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Has your son expressed concerns over his height? HGH might not do much more for him so it's important to let him know that there's nothing wrong with him for not being tall and that his mom and pop don't think any less of him for it. I wouldn't even suggest leg lengthening surgery to him because it would probably just make him feel bad. My mom started crying in front of everyone at the endocrinologist's office when they told her I was done growing at 5'5, and although she may have been crying because she knew things would be harder for me, it did make me feel some resentment toward her for acting like I was defective in some way.
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is the HGH injected or taken orally?
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don't make him feel bad. I get the impression that you're pounding on him for not growing taller.
if you want to really help him, do what you're doing now and save up for his LL but don't tell him anything.
If he has issues when he's older, break the news.
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http://www.womenshealthnetwork.com/osteoporosisandbonehealth/20keybonenutrients.aspx
your vitamin intake is not enough.
there are 20 nutrients you need for bone development.
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I am doing injections 1.2mg under the skin.
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He does not want anything. But deep inside I know it is going to be an issue later in his life.
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It is interesting that you mentioned your mom crying. When they did the bone age and told me about it(he would not grow more he was 5.2''), I was so depressed and could not get out of the bed for several days. You guys are not defective, it is just mother's wish to have all the best for the kids. My son is so shy,he is good looking though. I can imagine if he was tall, would be so good.take care.
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I don't say anything anymore. You are right. I don't want him to know.I am just frustrated that I got him to the endo late. I am just blaming myself. You guys, all of you are great.
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we are trying to stop the puberty. Lupron is the medication to slow him down. We will seem
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Around what height did you think he was going to be?
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Around what height did you think he was going to be?
I guess around father's, which he is, according to genetics he's fine
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1.2mg per day is a very small dosage????? 3.6iu a day is a tiny bit more than a normal healthy kid would produce in a day. Even for old men 3.6 iu a day doesn't do a lot when they produce less than 1iu a day naturally. To get hgh working you need big dosages. That is from a bodybuilding perspective. I do not understand your sons condition. Just trying to give you some information on what I know. Good luck
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I think so, but they check the IGF-1 which is high 661 which is beyond the limit. My intuition tells me it is too low. I have also read about 3.6 iu daily. With that amount I don't think we can get good outcome. Thank you.
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Hi,
What country are you in ??? Is insurance paying for this treatment??
I was 165 before leg lengthing and I am now 178cm. I have the same worries about my 2 boys being short when they are adults. I have a family member who is a surgeon and we have discussed this between us and he believes a child who is nearly fully grown naturally will need double the normal hgh dosage so approximately 6 -7 iu per day split into 4 jabs. He is not a specialist in this field though.
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Also, what brand of hgh are you using? Not all hgh is made the same way. Some brands are better than others for different things
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Using humatrope elly-Lilly. Had a hard time for the insurance to approve. Before we used nutropin Novonordisk?
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I am in US. Insurance is paying. I have to fight for everything. He is also on Lupron each shot is $6000. Crazy prices. I have read the growth hormone has to be 3mg to help for pubertal kids. I don't know anymore.
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I guess around father's, which he is, according to genetics he's fine
Exactly that's why I don't understand why she is stressing. Both parents are well below average height and son is in the middle. It was very unlikely he was going to be average height.
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What is there to be surprised. Mother is trying to do the best for her child to grow to the max.I know he did not grow to his fullest because of the growth hormone deficiency, and I was late catching when he was already 14. I blame myself all the time that did not take him to the endo early.I was working with the ND who told me to take him to see the endo. He also had many GI issues I was trying to correct, because I thought if he is not getting enough nutrition then he will not grow.Did not know about GH. I was trying to approach the issues holistically. This is a correct approach, but I don't have time.
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aromatase inhibitors and tamoxifen to keep the growth plates open for longer time... try it
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His predicted height is 5'6",with a 95% chance that he will be between 5'2" and 5'10. With growth hormone, the mean increase in adult height is about 2.5 inches, so he could end up anywhere between 5'4.5" and 6'0.5". However, I doubt he's going to reach the upper-end of that range unless he is really low on the tanner scale.
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Unlucky cases are like mine m'am, I am 16 years old and I had been 5'1" since I entered puberty. I am a great example of those who don't have a growth spurt (my growth spurt was only of one inch). My growth plates are fully closed already and I doubt I will grow more than 2 inches at this point of my life. My father is 5'7" and my mother is 4'10", that's all I got to say. Height is a dice, not everyone is as lucky as the other. As for the HGH, I doubt they will work. I was under HGH for 4 months when my plates were still open and all I grew was like 1 centimeter. If money is not an issue for you then go for 8-12 months for better results. + at this point don't expect your son to be 6'0" tall, as just as he hits 5'5" (his father's height) or taller then he should be more than fine, I didn't even reach that.
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Genetics remain a mystery among scientists and the common, but let time do the work and make decisions then.
Meanwhile, build yourself and who knows? You might not need cll.
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Insurance paying for the growth hormone. So he is on it for now. No change at all. We will see. Thanks for the response though. I am not sure where he is in puberty. But on the medication I have stopped or delayed where ever he is. Good luck to you.If he can reach his father's height I will be thankful.
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Yes. I will see. I am just trying to do everything to avoid LL.
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Yes. I will see. I am just trying to do everything to avoid LL.
Is he unhappy at his stature? Has respect played against his favor due to his height?
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He is very shy. Maybe yes. Kids don't look at you with respect :). He does not understand these things, but I know.
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He is very shy. Maybe yes. Kids don't look at you with respect :). He does not understand these things, but I know.
Does he have aspergers?
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No!!
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No!!
Lol why the exclamation marks? I know from experience that kids and adolescents with Aspergers simply don't notice social cues and subtleties like "normal" kids do. After all, I have Aspergers. :)
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Been wondering for some time now that my daughter might have some very mild form of aspergers.
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Been wondering for some time now that my daughter might have some very mild form of aspergers.
Btw are you Galaxystar from old forum ?
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Yes I am galaxystar. :)
My daughter just admitted the other day not being good at reading nonverbal body language.
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She is not shy that I am aware of and always told by teachers that she is a very likable kid, even popular with a very big heart and not a judgemental bone in her body and will say hello to any one of her peers who crosses her path in the school hallway, so definitely not shy as that is not something one who is shy would be able to do. She even once stated she could care less about height even if born a dwarf. She has however already seen the negativity towards short stature on social media. I will admit she inherited the big heart likeable charismatic personality from her dad and not from me, lol. Then with her just starting middle school just this year and knowing that middle school is so much more different than elementary school who know's what lies ahead for her.
But to stay on topic I have just made appointment to see if my daughter's growth plates have cclosed. After doing somer reading on the subject I 'm certain she has one more year of growth left or maybe has stopped completely, which means another inch or half inch of additional height at most. She began puberty three years earlier than myself and am disappointed and I blame all the extra large servings of dairy that was not organic dairy, not much exercise really and very bad sleep with issues of mouth breathing that have been affecting quality sleep and a worn out even aged appearance upon wakening in the morning which I did mention to the doctor. I also pointed out that tonsils appear large, much larger than my own, and that my own mother had tonsils removed but doctor preferred to wait but did finally give referral later to ENT (ears, nose, throat doc)twice and which I decided to cancel twice, since the mouth breathing appeared to be seasonal. It's looking more that she got the short genes from both my mother and her father's mother, the aunts are 5 to 5'3" on my moms side but her dads mother there are several aunts as short as 4'10" in fact I think they are all below 5 feet on dads mother side. My father and his father however, (my father in-law) is where the tall genes would come from with the woman/aunts closer to 5'5" to 5"6 in height.
The question I have is if there are cancer risk with growth hormones and if it is too late to begin the treatment for girls and if my insurance will pay for all this. I'll find this out soon.
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If she has growth plates open, HGH might help a bit. I have stopped my son's puberty with medication, but I cannot completely suppress those. Trying to do my best. I caught my daughter's early. They don't have good statistics about the GH dangers. My kids had deficiency, that is why I am comfortable to give them. I am not sure if it will work with kids with normal GH levels. Insurance will give you any reason not to pay.
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If she has growth plates open, HGH might help a bit. I have stopped my son's puberty with medication, but I cannot completely suppress those. Trying to do my best. I caught my daughter's early. They don't have good statistics about the GH dangers. My kids had deficiency, that is why I am comfortable to give them. I am not sure if it will work with kids with normal GH levels. Insurance will give you any reason not to pay.
Thanks for the info, this is all new territory for me and it all sounds very confusing already. But yes, I'll see that doctor checks the GH levels at the appointment when we have the growth plate x-ray done, and to make certain that I must be very persistent and pushy with the insurance on this.
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Yes. They also do the blood test for puberty. Checking LH,FSH, estrogen, testosterone. I have x-rayed my kids hands. But also for my son I asked specifically for the knees. The hips also can be checked. Good luck.
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Yes. They also do the blood test for puberty. Checking LH,FSH, estrogen, testosterone. I have x-rayed my kids hands. But also for my son I asked specifically for the knees. The hips also can be checked. Good luck.
I don't understand what height did you expect your son to be?
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The question I have is if there are cancer risk with growth hormones and if it is too late to begin the treatment for girls and if my insurance will pay for all this. I'll find this out soon.
Cancer risk is very low, studies exist, just google them up. If she's 13, that means she still has about 1 year of growth and her plates are in the process of closing. That means you need HIGH dosages of HGH. I've actually made a lot of research about all of this when I was 16 myself and I did abuse HGH (at 10 IU/day, no insurance, no prescription, our own money) at that point though it was too late. Keep in mind that rHG costs a lot that's why the dosages in the studies are so low, and thus the gain, government can't afford it to a point of actually making someone average, they usually adjust the dosage just for it to be enough to bring you to 'minimum normal height', like 150-160 cm. In your situation, the only real thing you can do is to abuse rGH, you need hardcore dosages to gain anything. You should've started GH therapy earlier, seeing that she's shorter than her peers.
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At least his dad's height. He is 5.3 only. I want 5.5 at least.
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I think my doctor told me also that it is too expensive for insurance companies to do this for everyone. Now question, they check IGF-1 for the limit.They raise the dosage according to IGF-1 levels. do you know the safest levels?
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I think my doctor told me also that it is too expensive for insurance companies to do this for everyone. Now question, they check IGF-1 for the limit.They raise the dosage according to IGF-1 levels. do you know the safest levels?
I haven't heard of limits, but check this out: http://www.ncbi.nlm.nih.gov/pubmed/11061518
High dose rhGH was well tolerated, with a similar safety profile as standard dose treatment and no difference in hemoglobin A1c or glucose concentrations between groups. In summary, compared to conventional treatment, high dose rhGH therapy in adolescents 1) increased near-adult height and height SD scores significantly, 2) did not increase the rate of skeletal maturation, and 3) appears to be well tolerated and safe. In conclusion, high dose rhGH therapy may have a beneficial effect in adolescent GH-deficient patients, particularly those who are most growth retarded at the start of puberty.
http://www.ncbi.nlm.nih.gov/pubmed/11202212
The importance of routinely monitoring serum levels of insulin-like growth factor-I (IGF-I) and IGF-binding protein-3 is an emerging paradigm. Firm roles have been established for this approach in the assurance of compliance and safety (particularly to avoid long-term theoretical risks).
In addition, serum IGF-I measurements are increasingly used as part of a rational monitoring strategy to ensure safety of GH dosing in light of cumulative data associating high IGF-I levels with potential malignancy risk, and low IGF-I levels with cardiovascular disease risk.
So if I understand it right, the only reason they limit the dosage is because of theoretical malignancy risks. Well, if your son stays 5'3", you will get no theoretical, but real risks of long-term depression and suicide. I wouldn't think twice and just double or even triple the dose, if it was my son, but... I was never very conservative in the first place, that's why I'm doing LL.
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Thank you. I will think what to do. I need to get it by myself since the insurance pays only for 1.2 mg. I read that the best outcome was 3.0mg.
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Cancer risk is very low, studies exist, just google them up. If she's 13, that means she still has about 1 year of growth and her plates are in the process of closing. That means you need HIGH dosages of HGH. I've actually made a lot of research about all of this when I was 16 myself and I did abuse HGH (at 10 IU/day, no insurance, no prescription, our own money) at that point though it was too late. Keep in mind that rHG costs a lot that's why the dosages in the studies are so low, and thus the gain, government can't afford it to a point of actually making someone average, they usually adjust the dosage just for it to be enough to bring you to 'minimum normal height', like 150-160 cm. In your situation, the only real thing you can do is to abuse rGH, you need hardcore dosages to gain anything. You should've started GH therapy earlier, seeing that she's shorter than her peers.
She recently turned 12, so not 13 yet. She attends a predominately hispanic school, 70 to 30 ratio. She blended in I suppose and was the same height as the friends in her close circle or so I thought. Believe it or not I always believed that growth for all girls generally continued until at least age 15 and because of this, I never had a reason to be overly concerned with her height. I always felt everything was right on track with her and that there is still plenty of time to grow for her. I had no clue it was based on puberty and on a girls first cycle. In her class every year there were say 12 girls, and she was more in the middle range for height. 4 girls were shorter than my daughter, 4 were the same height, and 4 were taller. I think I may have just been extremely relieved and content with the fact that she was not in the shorter group like I always had been in school.
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I know that she measured herself over the weekened at 4'11" but I think she looks closer to 5'0" imo. Realistically I never was expecting anything close to 5' 5" but thought surely at least 5' 2" at best . Her father is 5' 9" afterall and two grandfathers 5' 11" & 5' 10" on two sides. I think I will also have the doctor check her for any spinal curves, I do see an overexagerated curve in her lower lumbar area and for whatever reason she has bad posture and she won't stand absolutely tall and erect when I ask her to.
I'm just peeved that the girls who are drinking the carbonated sodas and eat crap for food and who were my daughters same height last school year are now taller than my daughter this school year by at least one whole inch, and will likely continue to grow even further, especially the ones who say have not even begun their cycles yet.
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She recently turned 12, so not 13 yet. She attends a predominately hispanic school, 70 to 30 ratio. She blended in I suppose and was the same height as the friends in her close circle or so I thought. Believe it or not I always believed that growth for all girls generally continued until at least age 15 and because of this, I never had a reason to be overly concerned with her height. I always felt everything was right on track with her and that there is still plenty of time to grow for her. I had no clue it was based on puberty and on a girls first cycle. In her class every year there were say 12 girls, and she was more in the middle range for height. 4 girls were shorter than my daughter, 4 were the same height, and 4 were taller. I think I may have just been extremely relieved and content with the fact that she was not in the shorter group like I always had been in school.
Same thing sorta happened to me. I remember being measured when I was 12 years old at 5'6. I was so excited; i was finally the height of my mother! I though to myself "wow, I can't wait until I am 6'0, or even 6'3"! But, I stopped growing. I didn't grow at all after that. I tried talking to my mother, but by the time she started caring, my growth plates were already closed. Now, here I am, at 5'6.5", with my growth stunted.
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I always thought that boys have time to grow until 17-18. That is why I took my son to endo at 14. I think I am at the border where the plates are closing.I keep struggling for a year to keep it open. It is a day to day struggle not seeing any results.
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Same thing sorta happened to me. I remember being measured when I was 12 years old at 5'6. I was so excited; i was finally the height of my mother! I though to myself "wow, I can't wait until I am 6'0, or even 6'3"! But, I stopped growing. I didn't grow at all after that. I tried talking to my mother, but by the time she started caring, my growth plates were already closed. Now, here I am, at 5'6.5", with my growth stunted.
That must be what she has also. Her development started at around 8 or 9. Was there a cause for your precocious puberty that could be determined?
Definition
By Mayo Clinic Staff
Precocious puberty is when a child's body begins changing into that of an adult (puberty) too soon. Puberty that begins before age 8 in girls and before age 9 in boys is considered precocious puberty.
Puberty includes rapid growth of bones and muscles, changes in body shape and size, and development of the body's ability to reproduce.
The cause of precocious puberty often can't be found. Rarely, certain conditions, such as infections, hormone disorders, tumors, brain abnormalities or injuries, may cause precocious puberty. Treatment for precocious puberty typically includes medication to delay further development
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I always thought that boys have time to grow until 17-18. That is why I took my son to endo at 14. I think I am at the border where the plates are closing.I keep struggling for a year to keep it open. It is a day to day struggle not seeing any results.
It's probably too late for anything that can be done for my daughter now. I will still take her to be checked and have all the tests done.
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I caught my daughter early. That is why I took my son also for a checkup. I am so glad I saved my daughter at least otherwise she would not even be 5.0 She is on Lupron and growth hormone
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I caught my daughter early. That is why I took my son also for a checkup. I am so glad I saved my daughter at least otherwise she would not even be 5.0 She is on Lupron and growth hormone
How long has your daughter been on these drugs and about what age did you begin them?
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One year on Lupron. She just started GH. She started at 10. She is turning 11 in couple of days.