Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Discussions => Topic started by: stretched on January 15, 2023, 05:46:29 PM
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Hello,
To those who have underwent CLL, overall, are you satisfied with your choice to undergo this procedure and would you do it again? I am trying to collect a decent bit of numerical info from CLL patients so prospective patients have a better idea of what to expect if they decide to undergo this expensive and long surgery.
Feel free to elaborate.
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I could be wrong but my intuition is the majority of people who have already done this surgery (with good doctors) are satisfied with it and thus never really visit these forums or think about height again because they're busy with their lives now. Because of that, you could easily be getting a pretty skewed distribution for this poll
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I could be wrong but my intuition is the majority of people who have already done this surgery (with good doctors) are satisfied with it and thus never really visit these forums or think about height again because they're busy with their lives now. Because of that, you could easily be getting a pretty skewed distribution for this poll
Yeah good point, the majority of people who have done CLL are probably long gone from this forum. I talked to Cyborg4life and he said pretty much everyone who had no complications had no regrets & wish they did the surgery earlier, but It is hard to tell without numerical data from a large sample of CLL patients.
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going off the scientific studies and stats this forum is actually way over-concerned with the dangers and , seems like a very safe surgery. but also this is about 1st world countries. Turkey and India is a different story
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going off the scientific studies and stats this forum is actually way over-concerned with the dangers and , seems like a very safe surgery. but also this is about 1st world countries. Turkey and India is a different story
Yeah, I'm a firm believer that overthinking about LL could easily make someone go crazy. It's already bad enough that a lot of us have body image issues about height.
There's really only like 4 things to think about when going for this: - choose a good doctor
- keep a calm mind and prepare yourself financially/mentally
- be aware of the risks and optimize your health/nutrition to help prevent those risks
- take care of yourself as much as you can throughout distraction/consolidation via nutrition and stretching
I think a lot of people get stuck on the 2nd point, start over-thinking complications/proportions, and just ultimately never end up going through with the surgery.
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I could be wrong but my intuition is the majority of people who have already done this surgery (with good doctors) are satisfied with it and thus never really visit these forums or think about height again because they're busy with their lives now. Because of that, you could easily be getting a pretty skewed distribution for this poll
I think your intuition is correct.
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Yeah, I'm a firm believer that overthinking about LL could easily make someone go crazy. It's already bad enough that a lot of us have body image issues about height.
There's really only like 4 things to think about when going for this: - choose a good doctor
- keep a calm mind and prepare yourself financially/mentally
- be aware of the risks and optimize your health/nutrition to help prevent those risks
- take care of yourself as much as you can throughout distraction/consolidation via nutrition and stretching
I think a lot of people get stuck on the 2nd point, start over-thinking complications/proportions, and just ultimately never end up going through with the surgery.
ya thats true.
but if some one is forced to do surgery in india then its impossible to stay calm bcoz medical standard in india is lesser than usa. Like in usa there has been no hiv transmission through blood transfusion since 2008 but in india it happens every year.
So patient need to sit and worry abt stuffs like will the blood bank do NAT testing or not?
what u say is true if u can go to usa or developed country like that.
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Yeah, I'm a firm believer that overthinking about LL could easily make someone go crazy. It's already bad enough that a lot of us have body image issues about height.
There's really only like 4 things to think about when going for this: - choose a good doctor
- keep a calm mind and prepare yourself financially/mentally
- be aware of the risks and optimize your health/nutrition to help prevent those risks
- take care of yourself as much as you can throughout distraction/consolidation via nutrition and stretching
I think a lot of people get stuck on the 2nd point, start over-thinking complications/proportions, and just ultimately never end up going through with the surgery.
Yeah its easy to overthink and go crazy, there are a ton of things (finances, clinic, etc) that you really need to research. As long as you go with a good doctor / clinic with a reliable nail, 95% of the time things should go well with little complications, as this is a pretty common procedure.
For me, I already have an idea on what nail / doctor to go with & I know who to avoid, but honestly the biggest thing holding me back is the fear factor of the pain. Breaking both of your femurs sounds very painful and I am not sure If I would be willing to accept the pain to get taller.
Also added a few options to the poll about the surgeon/clinics.
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Tough to pick one because there are multiple facets to it.
- could not imagine living with my old height again. So best decision.
- heavily underestimated the time dedication and suffering it would take. Hence I would NOT recommend it to most people. Only those that suffer severally with height for many years similarly to me. People who just would like to be a few cm taller should try shoe insoles etc first.
- takes soooo long to regain normal functionality again so I am not sure if I ever do sports again well if I want to ruin everything over again > despite that I think if given the choice and financial and logistical (career wise) opportunity to take at least 6months off I will do tibia too. But can’t say for sure yet.
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Practical formula would be:
1. Be financially well before such decision. Don't spend what is not comfortable for you.
2. Do no do more than 1.5"-2" per segment, so 3" would be safe max for quadruple.
3. Do not do it in India, Turkey or similar 3rd world countries where overall medical standards could be compromised.
4. Be ready to pay with some comfort and commitment. The gain justifies that.
When done, share your sincere opinion.
Many people share their negativities and we do not know all picture.
It is very important to learn all about techniques, doctors and consequnces.
When you decide, just do it.
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How often do this surgery get botched?
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Practical formula would be:
1. Be financially well before such decision. Don't spend what is not comfortable for you.
2. Do no do more than 1.5"-2" per segment, so 3" would be safe max for quadruple.
3. Do not do it in India, Turkey or similar 3rd world countries where overall medical standards could be compromised.
4. Be ready to pay with some comfort and commitment. The gain justifies that.
When done, share your sincere opinion.
Many people share their negativities and we do not know all picture.
It is very important to learn all about techniques, doctors and consequnces.
When you decide, just do it.
100%
But perhaps 6.5-7cm on femurs is a reasonably safe and conservative goal though for alot of people, maybe not for everyone.
Ex: Youtube interview of Dr. Birkholtz saying complication rate goes up exponentially after about 6.5 cm. I think Dr. Giotikas said this for roughly 7 cm+ the complication rate goes up exponentially so they mostly agree.
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How often do this surgery get botched?
very infrequently with a doctor that is in a first world country
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bump