Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: Disobedient on October 26, 2013, 06:06:23 PM
-
Hello
so this is "clear" or " Alpen Rose" from old forum , I got banned but I don't know why?!!
I was really happy that I can share and get some info from LL patients
but hopefully I'll be able to do that here...
so lets start my diaries
Who am I?
Gender : Female
AGE: under 25
Height: 5 feet
Weight: 56-58kg
Country: UAE- Dubai
Why DO I want to do LL ?
obviously, because I'm short, I didn't face any problem with my height like it was hard to me to date or smth..
actually many men think that my short height is giving me extra bonus since they can feel more manly with my petite size
But I hate being short ..!
Where?
I was thinking to do this surgery in several places :-
Firstly, I thought of Germany since I was promise to be 2nd secretory in my Embassy over there, and in this way I can afford living in Germany and the surgery's cost too, also, I love European countries so living there for more than year is not consider an issue for me. BUT, getting this job will take time around (3-6months) , and I want to do the surgery RIGHT NOW,so I chose another country, since I cant afford living in Germany nor the cost of the surgery.
Secondly, China, it is a good choice, but my friend have been in china for more than 3 months and she told me that is so hard to communicate with ppl over there, cuz they are not speaking English.
Thirdly, Russia , Despite my tries to contact many hospitals but I got no replay
Fourthly, Thailand, I love this country, moreover, the hospital over there are very great and the doctors too. However, I found just one hospital that perform LL, so I changed my mind and I chose...
Finally, India, there are many hospitals that offer to do this pressure, and the cost of living in India is so low.. so I decided to go and find the hospital and the doctors by myself .. ( I'll write later about what I found in India about ppl/cost/etc)...
The journey to find hospital ...
I found over 15 hospitals that offer to do LL ( using different methods) across India, however I Just met with tow doctors in tow different hospital ..
The first hospital: Forti hospital
The name of the doctor : Dr. Vivek Mittal
The technique: Ilizarov
My impression about the doctor: he is very realistic, and he thinks more about patient's health than money
he was against doing this surgery for both my tibia and femur. Also, he was explained me and warning me about the pain that I may carry..
The cost: the surgery is 6000USD include the investigation tests and so on, staying in the hospital is cheap too (750INR/night) and I spent tow night over there and it is a good hospital..
Note: I found cheaper hospital in Mumbai,..but money it should not be the first priority when it comes to your life and health...
Second Hospital : Nova Hospital
The Dr name : Dr. Anil Raheja
I met Dr Rehaja and he explained for me about the external fixator which he will use and its called monorail fixator .. For me this fixator it looks more comfy than illizrov method ..
I told him my true tension to get lengthening both my femur and tibia and he advised me to do just my tibia...
but for me I think I can stand the pain (i guess) and technically lengthening both femur and tibia is possible and I shouldn't get trouble with lengthening both parts..
the cost of the surgery included (7days) in hospital and 2.5months physio therapy is 11000$
(I'll write about the accommodation later )
-
Hello and welcome to this forum. You won't bet banned for asking questions about bicycles here. :)
-
As someone that is struggling with an Ilizarov external fixator on their tibia right now, please god DO NOT do external femurs and external tibias at the same time.
Before this surgery I thought I was tough. I played rugby for a decade, I always thought I could push myself harder in the gym than anyone else, I've had serious illnesses causing me to spew my guts up etc for days and not be phased, called tough by siblings/friends, just a general arrogance thinking I'm special and LL won't be much of a challenge for me, similar vibe to what I read in your post. Boy was I WRONG. It is so hard! Crying has been a daily occurrence for me for the past few days. Today I had to get an x-ray so they had to carry me downstairs put me in a taxi and drive there, every bump was a sharp stab in my pins, especially one. On the way back I was assisted by people clearly inexperienced with LL and they just yanked my legs to get me in the taxi, I already had an existing knee ligament issue and the pain was unbearable, if not for only a few seconds though. I cried all the way back.
I cannot even fathom doing this with another fixator on my thigh ESPECIALLY SINCE EXTERNAL FEMURS ARE SUPPOSED TO BE SO MUCH MORE PAINFUL. I cringe so hard thinking you are even considering doing this, listen to the doctor and just do tibia. I would say if you are dead set on increasing your height a vast amount go for 8cm-12cm on tibia. Although I wouldn't recommend this at all it would undoubtedly be far better than having duel fixators.
Look, I don't know you, I could have read this post and just moved along. But I saw an opportunity to help you. I can almost guarantee (99.99%) you will regret doing this probably the day after your surgery, that soon. If you do this you will be in for an extended period of literal torture/hell. Please don't do this I am shuddering even thinking about having to deal with another worse fixator on my thigh. Please post back saying you have reconsidered. If you want I can ask the others in the guesthouse to post here as I am positive they will only backup what I have had to say, it sounds like even the doctor is extremely hesitant.
-
Medium Drink Of Water
so they banned me because of bicycle thing?
Russianblues
Actually I did it ... I just didn't got time to post about the details..
I'm on day 30 or 31
-
As someone that is struggling with an Ilizarov external fixator on their tibia right now, please god DO NOT do external femurs and external tibias at the same time.
I totally agree with this. Encourage the OP (original poster) to really give some serious consideration about this decision. You might take years to recover from this, not only physically but psychologically. There will be alot of pain and immobility, not to mention complications with recovery when you do both Femurs and Tibias at the same time.
The results of patients who have done it are not encouraging. Also suggest that you think seriously about NOT doing External on Femurs, as the pain level and complications level are quite high so it's quite a risk.
Going to unknown doctors is not advised, unless the doctor has legitimate specialized training in Limb Lengthening and patient's feedback that you know of.
Update: You posted that you have done the surgery, so the advise above would not apply to you anymore. Wish you well on your recovery and you will have the support of the community.
-
Russianblues
about the taxi.. I think I had the same experience few days ago when I went to hospital
but to be honest I didn't suffer a lot .. cuz I got some ppl who carried me ;D
however , I have to say moving out isn't easy too, so next time I think I let them to come and have the x-ray here in hotel with these portable devices, the quality of x-ray want be so good,, but it will do the job..
Diameon
about the doctors I'll say he is well known as a good orthopedic doctor "he did many knee replacement surgeries"
BUT for LL he "claimed" that he did 20 LL surgeries ...
thanks
-
DayZero ..
I was waiting to shift into my room about 3-4hours and when I shifted (at 8pm) I felt very comfy the room is big and nice, and nurses are so friendly (note in India they called nurse by sister )
They asked me to have shower , shave my private area, and wear the gown... after that I did several tests which include x-ray, blood test, and 2 or 3 other tests.. they asked me million questions too.. and then..
they put the cannula and told me to not eat any thing 10hours before the surgery .. Oh I forget to mention the surgery will be tmw at 12:00pm, 24th-Sep
was it a hard day?
I don't know !but it was cold I hope that those "warm inches" that I read about will break this feeling and make me warm sooner or later..
I really I had no idea what kind of thoughts were in mind or maybe I don't have any of them.. ... but I wanted the surgery to be done and these 8 months to pass quickly..
then? yeah I knew what will happen next not exactly but at least I'll be taller.. and that's what I want, that's what I always want to.. no need to google the height of actress to see if they are as same height as am I anymore.. and no need to wear high heel when I know that I can rest my feet now" after LL" by wearing flat... what else? I dunno..
how could I describe my feeling ? exciting ?sad ? afraid? what? I dunno again
but I know that I wasn't sad that I'm alone cuz I chose that, however there are few ppl or may be certain person you need him/her to be with you.. not to do any thing just to be with you and tell you that you'll gonna be fine and you're strong enough just to come to this place alone , he should say it via phone, email, or whatever !!!
I remembered in that day too that I was listening to ROAR it's a good song indeed...also I remembered that I received my new clothes that I made here in India ..so the night passed while I was trying my new clothes... I'm looking good with these clothes..but I'll be Goddess after LL..
-
I don't think I really understand all this. You are now doing both tibia and femur external at the same time - right now?
Kiss your former life godbuy and welcome a crippled one.
The nerves can't take that amount of lengthening.
Which famous doctor agreed to do this to you?
I'm sorry you destroyed your life, and for what? Guys already liked you.
-
yes I'm doing my tibia and femur with external fixator.."monorail fixator" in the pic below
(http://s18.postimg.org/4r7qt6atx/Image419.jpg) (http://postimg.org/image/4r7qt6atx/)
sorry for the low quality of the pic
and about the nerves issue I already spoke to the dr.Anil Raheja and he said, if anything happen to nerves we can compress the bone since the bone tissue is so soft
and he wasn't fully agreed to go for both tibia and femur at the same time but I told him that I can stand the pain so he did it..
I'm Engineer, and I have been deal with numbers mostly in my life and this surgery to me is like mathematical problems that deals with many numerical value..
For me I thought gaining 7cm in 6months by doing just tibia is not good as gaining the double amount at the same period of time...
I may take few months more so I may take 8 or9 months but it's not bad too
cuz I'll suffer just for one time, I do the surgery just for one time ,,,and then I'll be taller 15cm ..
it may the dumbest decision I ever made but any problem I would face it seems to be manageable :),,,
-
Sweden, whatever done is done. My opinion is that
- Nothing constructive can come out of criticizing her decision at this point in time. You may have valid points, but it's pointless now that the surgery is done. Plus remember that reasons for doing LL is very personal, it won't make sense to others.
- I don't agree with her decision to do double surgery with external techniques, and neither do you or RussianBlues. That's very clear and we have reasons for saying so.
- Despite all that, the best thing for now is to give support to Disobedient (be it emotional or technical information) so she gets through this. I would also like to know who's the Doctor for general awareness, but that's up to the patient's decision to disclose.
-
Hey Disobedient,
Thank you for posting your story here!
I hope all is well with you and you have a successful experience.
How much have you lengthened so far?
-
Hi Disobedient,
I remember you from old forum . I'm amazed that you went through with both segments at the same time. You've already seen the reaction from others so I don't need to tell you that you're in for a really rough ride. Good luck with everything. Hopefully you find this place to be a good support group. I'll be in India this December and may do my surgery with a doctor there.
-
So it was true. Geeeeez. Alright then, well go from here.
We're you the confused girl who traveled through India looking for a doctor to do LL with on old forum ?
About numbers:
This has been tried before but with disastrous results. Fine, you broke all of your bones in your legs but I hope we can convince you not to lengthen 15cm.
You will never in you life heal up more than just barely walking.
You have your reasons but what life do you expect to have when all of this is done and over?
You're doing it with the most terrible lengthening device and method there is. It is no where near weight bearing nor is it stable at all and can break/bend your femurs any time if you sit on a chair.
It's not my intention to scare you or anything but please understand that what you're doing right now is very dangerous. I strongly advice you to absolutely don't lengthen any mm more than 10cm of total.
I don't know to what higher force I should pray to but I am praying for you to make this as easy as possible.
I have seen and heard of a lot of patients that went with the monorail. NONE of them did it complication free. I really hope you don't get any of the serious kind when they hit you.
I'm thinking about your ballerina. You need to stand every day, but you can't with the monorail. There are so many things I can tell you that you need to do to be able to come back close to normal one day.
Remember, I stayed with Dr Sarins first cross lengthening guy and we became good friends and still are. He was an Indian guy and told me everything about the process. He did 7cm on tibias and 4cm on femurs(it got preconsolidation at 4cm, he aimed at 5). He is doing fine now but was one of the most lucky ones together with me at the guesthouse.
Please update us with more better pictures, tell us which doctor it is, keep posting about what you're doing. You're not alone, remember that.
Best of luck.
-
Disobedient,
So, of all the Drs you visited, they did external only? I mean, no Lengthening over nails? I would like to do 6.5cm on tibias but have double thoughts about doing externals only because of the time I will have to have the frames on.
-
this very interesting.
I also wanted to break 4 bones at once but apparently its very hard and very risky.
the truth is you can break as many bones as u want because they r separate bones. However, nerves run the whole length of ur leg so it will be very difficult to lengthen them so quickly.
Its been pointed out that lengthening the bones is the easiest part of LL. Muscles and nervous r your major obstacles.
Spend a lot of time reading Crazy+6's femur diary and make sure you do what ever u have to do to avoid the problems he had because of his monorail.
Good Luck.
-
You've made a very risky decision doing femurs and tibs. So I wish you all the best in the process and recovery. Majority of surgeons generally discourage people from doing femurs and tibs at the same time and there are obvious reasons for this. I don't think it's okay for a surgeon to allow this, but what's done is done. I remember reading that females have it better in a way, because their bones are more flexible, etc. So things might turn out fine.
I think you should know that it's not all about the costs and more so about your own body. When doing something like this (femurs and tibs), you should have chosen a well known and reputable doctor.
I recommend that you lengthen a short amount in both segments to prevent major problems from occurring.
Good luck.
-
Easier for females due to higher pain tolerance and higher natural estrogen levels which makes soft tissue/joints more flexible. Testosterone also contributes to muscle shortening.
http://www.netplaces.com/krav-maga-for-fitness/developing-flexibility/factors-affecting-flexibility.htm
http://health.ninemsn.com/whatsgoodforyou/factsheets/798263/women-have-a-higher-pain-threshold-than-men
I think men react to pain better though even though an equivalent pain would be felt more by a male. Will find a source later.
-
I admire your courage. I already said what I thought of it, but I guess now you've taken the leap there's nothing left to say but know pain is temporary height is forever!
I wish you all the best on your journey and I will be keeping a very keen eye on the progress. Fingers crossed it all goes to plan!
-
this very interesting.
I also wanted to break 4 bones at once but apparently its very hard and very risky.
*6 bones
-
Hi all
I know that "first" is with i not e, but I didn't notice that I wrote it with e!
can I change it :-X
Disclaimer
I said this to someone in the msg and I'll say it here again
Dr Raheja is a good doctor and Dr vivak too, and until now I didn't face any serious problem with the surgery, so do I recommend the Dr Raheja?
NO I'M NOT, cuz I still don't know if every things will gonna be fine till the end of my journey !
and how could I know if he is good or bad in this short time seriously !!!!
I know that the cost of surgery would attract the attention of some ppl since it's low, but please think about other staff don't make your decision based on my diary cuz I'm still in the very beginning of this journey, who knows what will happen next ! !! I may regret doing this surgery later !!!
Dameon
I mentioned my Dr name many times
Dr Anil Raheja
this one
http://www.novaspecialtysurgery.com/dr-anil-raheja
Blackhawk
thanks, I'm still not sure, but beyond 1 cm
Kilokahn
thanks .and good luck too in your LL journey
did you decide the method and with whom dr you gonna have LL ?
Sweden
yes I'm that girl except that I'm not confused girl ???
anyway, about the 15cm it is my target, but if I'll face any serious problem I'll stop, actually I'm lengthening 2mm/day right and so far no problem or unbearable pain..
about the method, I think you're right about the weight bearing, however I think I could mange this by special exercises with my PT doctors, but if you know anything else would help, please share it here... cuz I do need these kind of advices so badly
right now my major concern is about my knee since I still can't bend it 90 deg.. although I'm doing my best in exercising
about the pic, I don't have good cam I'm using my laptop's cam that why the quality will remain low until I'll buy smart phone or new cam :P
and thanks for supporting me
Leonardo2013
I just met with two doctors in two different hospitals, but I was contacting many, as far as I remember one of the hospital offer to do internal method with 8000USD, but I don't remember the name of hospital nor the doctor..
Adriano
Actually I think I have 8 fractions on my bones!
Body Builder did monorail too and I read his diary, but I have to read Crazy+6's diary too
thanks
NBW
it wasn't just about the cost, I mentioned that I found cheaper hospital in Mumbai
and right now, I'm lengthening 2mm/day following my doctor advice..
Russianblues
hi, how you doin?
I read about the pain tolerance thing before and there is big debate on that, But thanks God that I'm girl anyway ;)
Also the type gender is just one factor there are many other factors that affect the pain tolerance
But I like the conclusion in the first article "Men of the world, you have no idea. Leave it to the women. Forget the whole pain-threshold debate. We have nothing. Women win, men don't. The end. " :D
-
Jesus Christ girl!
You're brave. I wish you all the best.
Can you even weight-bear with both femur and tibia in a fixator?
I suspect you have a long road ahead of you my dear. Take it cautiously and go slow, one bump can really screw things up!
Wishing you all the best!
-
You sound very calm and independent. This is a unique and very interesting diary. I look forward to your updates.
-
Hi all
I have to jump to today since I need your advise
few days ago I had several mosquito bites all over my body, and today in the morning I had fever. sweats and chills "shaking" and muscle pains and after I took my regular medicine "one of them is pain killer and treated fever as will" the fever disappear and I was very fine ..
However, at 6pm I had the same symptoms again, ...
its important to mention that b4 the surgery my immunity was so strong (FX: I'll have fever or flue every three or four years), but after the surgery I had fever at least 5 times ! although it does not last for more than 12 h..
when my PT doctor came for the exercising he told me that I may have Malaria !
I don't know if he is exaggerated or not because for me I used to have all of these symptoms whenever I have a fever..
and I really wont to avoid going to hospital as much as I can..
Do you guys experienced the same symptoms after one month of the surgery?
any suggestions ?
-
Mosquitos + fevers = get a blood test asap
I got sick once and was told it's normal. I was actually being a complete idiot and touching my food with my hands after not washing them for days. When your in situations like this sometimes common sense goes out the window.
What daily medication are you taking? A painkiller everyday as routine?
-
maybe I should do that since it is india ! although I'm still thinking that I'm fine, my temp is 100.5 F but I'm feeling so good..
for the medicine I'm taking
PANTOCID " once ,prevent stomach pain since I'm taking 3 types of medicine"
vizylac "twice"
chymoral forte "for the inflammation and healing of wound" twice
aceclofenac and paracetamol "pain killer & treating fever" twice
and ULTRACET " I used it only when I have pain,
-
Y didn't u take the malaria vaccine if there is one?
-
hey
how are you, hope every thing is OK & get well soon, I am really worry about you :( . Waiting an update with a good news...
-
Hi all
I have to jump to today since I need your advise
few days ago I had several mosquito bites all over my body, and today in the morning I had fever. sweats and chills "shaking" and muscle pains and after I took my regular medicine "one of them is pain killer and treated fever as will" the fever disappear and I was very fine ..
However, at 6pm I had the same symptoms again, ...
its important to mention that b4 the surgery my immunity was so strong (FX: I'll have fever or flue every three or four years), but after the surgery I had fever at least 5 times ! although it does not last for more than 12 h..
when my PT doctor came for the exercising he told me that I may have Malaria !
I don't know if he is exaggerated or not because for me I used to have all of these symptoms whenever I have a fever..
and I really wont to avoid going to hospital as much as I can..
Do you guys experienced the same symptoms after one month of the surgery?
any suggestions ?
You should see a medical doctor at that hospital that can give you medicine right away. I hope you get through your symptoms and that it isn't something as serious as malaria.
That aside, for anyone planning to go to India here is some information you should know. If you're an expat in India you are just about guaranteed to get really sick while there, there's really no way around it outside of sheer luck. Often times you will get sick just from eating the food - not to say the food is bad, but rather your body just isn't used to it. I have family/friends who have lived/currently live in India and they all tell me that every foreigner gets very sick at least once, usually a few weeks after first arriving. One in particular told me that even though he grew up in New Delhi, after living in America for a decade and returning to India he got very sick because his body lost its natural resistance. It's best to be prepared for it with antibiotics and multivitamins.
-
Adriano
no, I didn't thought about these staff actually before I come to India
Shorty
I'll write it down
Kilokahn
today I went to hospital, but you're right about India..I'll ask the doctor about the vaccinations that I have to get
So what happened to me ?
Last night , was a very horrible night I started shaking I couldn't even say a word.. after few min I tried my best to reach the phone and call the room service to turn off the AC ..
I don't remember what happen next except that I was in a real pain ...when I wake up I found myself holding 2 tablet one for the fever and the other is the pain killer it seems that I was trying to take them when I was in this shaking thing.. , but I really didn't remember when did this happen
I measured my temp and it was 104.2 so I msg my doc if I can take the tablet again (I'm suppose to taking it just 2 times)..
the fever decreased gradually and in the morning my temp was 100.2 however I couldn't move my body not even for one inch
I had muscular pain and back pain actually I felt the pain all over my body..
at 3 pm I felt much better so I had shower, then immediately to the hospital, I got my x-ray and I was happy to know that I grow 1.2cm in my left tibia ;D, however this number is not fixed for the other parts
my right tibia is 9.2mm
my left femur 4.7mm
my right femur 4.2mm
however the bad news is that there is a beginning of a reunion in my right femur...Dr Rah wasn't there "since I was supposed to see him at 12" so I met with another Dr..
I asked him why these number is not fixed! and why did I got just 4mm in my femur while I'm suppose to gain 1cm...
He told me that these things is happen and no need to worry about, he also assumed that I'm not doing the turning in the right way" for me I'm 100% sure that I'm doing it in right way" ... but in general I'm happy that I'm almost 1.5 cm taller ;D
After that I told him about the fever so I got blood test , and they asked to have urine test, although that I drunk 1L of water but nothing came out.. so I told them I'll send the urine sample in the morning...
and that's what happened today.. I am 1.5cm taller
-
Hello Disobedient,
I'm concerned for you. I'd like to make some suggestions. The first one is that you need a full time private caretaker to take care of you and be your advocate. You're too sick sounding right now, to wait for care. I'm concerned that you may have Malaria or a bone infection starting. You need to have both checked immediately. Please INSIST. You need immediate medication for this and not to ignore it. There is someone on the other site that had infections and signs of Malaria and neither were treated immediately which makes no sense. If you do not have Malaria talk to the Doctor about immediately taking the medicine for prevention. You need to use something to prevent further Mesquito bites.
After these issues are checked out, delt with, you will need a very experienced, skilled Physical Therapist with LL. It's too difficult to manage this stuff in your condition. Do you have a family member that can come and take care of you around the clock? I'm sorry with all the suggestions but having done both Tibs and Femus's externally completely incapacitates you and you're now very sick with a temp that high. You need to be cared for and not be told everything is fine.
You have our support and care. Please take care of yourself and get a full time advocate to take care of you, someone who will care. You cannot ignore the temperature. It could be either an infection or Malaria or both. Insist on testing and treatment.
-
Try to eat garlic. It starts to fight infections within seconds.
Coconut oil also helps a lot.
Did I miss it? You do have regular physical therapy for at least 2 hours right?
Since you have monorails on you can't stand up and fight ballerina. It'll take you more than a year to be able to walk close to normal if you do 7cm on tibias without any standing.
The device on monorails for lengthening easily malfunctions so you have to pay attention when turning them. It's common to change the lengthening device on them both 2 and 3 times.
The femur bones consolidates very fast so you have to turn them 2mm/day up until 3-4cm but your doctor should decide this together with you.
Be very careful how you sit down regarding your thighs. If you put too much force at one point your femur will snap and heal misaligned. I've seen this before.
Are you going to have 4 intramedullary nails put in after your done lengthening or plates on femurs?
If they put nails inside your femurs your knees will most likely be permanently damaged.
The plate is better but not weight bearing and leaves ugly UGLY scars.
How does your daily food chedule look like? What and how often do you eat?
-
Try to eat garlic. It starts to fight infections within seconds.
Coconut oil also helps a lot.
Did I miss it? You do have regular physical therapy for at least 2 hours right?
Since you have monorails on you can't stand up and fight ballerina. It'll take you more than a year to be able to walk close to normal if you do 7cm on tibias without any standing.
The device on monorails for lengthening easily malfunctions so you have to pay attention when turning them. It's common to change the lengthening device on them both 2 and 3 times.
The femur bones consolidates very fast so you have to turn them 2mm/day up until 3-4cm but your doctor should decide this together with you.
Be very careful how you sit down regarding your thighs. If you put too much force at one point your femur will snap and heal misaligned. I've seen this before.
Are you going to have 4 intramedullary nails put in after your done lengthening or plates on femurs?
If they put nails inside your femurs your knees will most likely be permanently damaged.
The plate is better but not weight bearing and leaves ugly UGLY scars.
How does your daily food chedule look like? What and how often do you eat?
~Do you eat whole cloves of garlic? Does supplementation help?
-
Heaps of info on garlic and its antibacterial/antiviral effects on the net.
Allicin supplementation proves superior to eating raw garlic in all cases it seems. Even in studies reffering to garlic they aren't even using the garlic we would talk about:
"However, most of the research on garlic as an antibiotic has involved fresh garlic extracts or powdered garlic products rather than fresh garlic in whole food form. "
http://www.whfoods.com/genpage.php?tname=foodspice&dbid=60
Honestly science has come so far there are nearly always better alternatives to natural remedies and such. I really wouldn't fk around especially if you actually end up having malaria.
-
Heaps of info on garlic and its antibacterial/antiviral effects on the net.
Allicin supplementation proves superior to eating raw garlic in all cases it seems. Even in studies reffering to garlic they aren't even using the garlic we would talk about:
"However, most of the research on garlic as an antibiotic has involved fresh garlic extracts or powdered garlic products rather than fresh garlic in whole food form. "
http://www.whfoods.com/genpage.php?tname=foodspice&dbid=60
Honestly science has come so far there are nearly always better alternatives to natural remedies and such. I really wouldn't f around especially if you actually end up having malaria.
I am aware that garlic will do little to help combat a parasitic blood infection such as malaria, however I can say eating right does absolutely have a positive effect on the immune system, having not been ill myself in a long time since eating right and exercising.
One thing I have come across time again however is that supplementation is almost always inferior to actually eating whole foods. Hence my question. Also in regards to information on the net, there is 10 times the amount of misinformation as there is information. So I figure if people here are in the know I should ask.
Thanks for your thoughts Russianblue, do you recommend/use any brands of Allicin supplement?
-
I am aware that garlic will do little to help combat a parasitic blood infection such as malariaI never said that. Actually if you have nothing else garlic will be effective at "atleast effective the outcome of malaria". http://news.bbc.co.uk/1/hi/health/1653553.stm, however I can say eating right does absolutely have a positive effect on the immune system, having not been ill myself in a long time since eating right and exercising.
One thing I have come across time again however is that supplementation is almost always inferior to actually eating whole foods. I guess I should have phrased that better. I meant it in the sense that legitimate antivirals/antibiotics will outperform herbal remedies such as garlic. I am totally with you that eating a balanced diet is better than say eating a multivitamin. Hence my question. Also in regards to information on the net, there is 10 times the amount of misinformation as there is information.Yea I agree. But, honestly if you stick with reliable sources that reference their work with scientific studies/articles then I think you can be pretty confident in what you read. So I figure if people here are in the know I should ask.
Thanks for your thoughts Russianblue, do you recommend/use any brands of Allicin supplement?No sorry I have no idea. I'm taking nothing and I had no vaccinations. I have seen one mosquito since I got here and I squashed it asap. We have the anti mosquito things plugged in to the walls plus its getting colder and colder so I am not worried. If I was going to take preventative measures against malaria I wouldn't even use Allicin though. I'd go to my GP in Aus and tell him and get the hook up with some premium specialized anti malarial tabs.
-
Hey Disobedient,
Take it easy with the procedure. Don't push yourself too hard.
5'3" - 5'4" is a very good height for women.
Please put up as many pics as you can :)
-
Not to be rude, but I think Darwin called this "natural selection."
-
In what bizarro universe could that comment NOT be construed as rude?
-
Probably in the place where it's just considered mean and cruel.
-
Hey I said it, and I really meant it. I cannot believe someone, after COUNTLESS OBJECTIVE FORMS OF EVIDENCE, would go for double lengthening!!!!!
First of all, she is using monorails, which are less supportive than ilizarov frames which means you can't walk. (Although it may be more comfortable).
Also she is using EXTERNALS ON HER FEMURS?????? How many times did Crazy+6 (on the old forum) WARN people AGAINST the use of external frames on the femurs. The man might be crippled for the rest of his life! I think this was an extremely brave decision on part of this woman, but I think she should have done her femurs OR tibias, and then did the other after she recovered or got her intramedullary nail removed. I think that whoever is moderating this forum, warn others from doing this surgery.
To the woman who is doing this surgery, I apologize if my last comment offended you. I am just bewildered that you have decided to do this to yourself. I am not a bad person, and I do not mean to do harm to any one person, however, I think knowledge is the most important "tool" that can be utilized when going into this procedure. I wish you the very best, and please prove me wrong and recover fully. I am absolutely rooting for you, but you really stacked the cards against yourself. Once again, I hope you continue with your diary and update it with pictures.
-
Arche,
I don't think people should do LL on two segments at the same time either. It is risky. But it's been done and you shouldn't be rude and criticize her for doing it.
I hope she continues her diary and I hope the best for her. But I wouldn't want to continue writing a diary if I had to read the bullsh!t you're posting.
-
There are numerous success stories of people doing both at once, it's just requires excellent care. I believe you'll do just fine, but I suggest an around the clock person to stay with you and take care of issues.
Take care, you're going to look beautiful after you get through this, and we're all with you. I would only do 5cm in each section and stop. Make sure you follow your Doctors advice on how much to lengthen each section per day.
-
To the woman who is doing this surgery, I apologize if my last comment offended you. I am just bewildered that you have decided to do this to yourself. I am not a bad person, and I do not mean to do harm to any one person, however, I think knowledge is the most important "tool" that can be utilized when going into this procedure. I wish you the very best, and please prove me wrong and recover fully. I am absolutely rooting for you, but you really stacked the cards against yourself. Once again, I hope you continue with your diary and update it with pictures.
To the person who made the above comments, you are a real dbag. I apologize if my comment offended you. I am just bewildered that you have decided to berate someone in a vulnerable position (ie. many broken bones, foreign country) who came here to willingly/openly share her story and in return to receive emotional/practicable support for the challenging journey that she has already embarked on. You say you are not a bad person, and that you do not mean to do harm, however....blah blah blah.... (Arche, please be kind.)
Dear Disobedient,
Please try not to be discouraged. There are people here who are eager to hear your story and will do our best to offer support (and I think Arche will too henceforth). We are wishing the best for you!!! :)
I hope your fever/possible malaria is being resolved. Please keep us updated.
Livelife
-
Good Evening everyone ...
So today I received my blood test result and it stated that I'm not infected with malaria
but it shows that my hemoglobin levels was low "9" although I had blood test two weeks before the surgery and it was 12 !!!!
Anyway,the fever disappeared and I'm feeling much better today... :)
Thank you all for your support, I do really appreciate it..
An_Apple_A_Day
Yes I'm so brave.. :)
Can you even weight-bear with both femur and tibia in a fixator?
my dr. is not recommend that in the distraction period, but after the distraction I think I could do it.
and thanks for your wishes
LiveLife
Yes, I'm so independent :D
Thanks for your support, and I'll keep you update :)
orlandoflorida
I mentioned in the beginning of this post that I'm brave so ... So I can't say to you anything but I'm so brave 8)
thanks
Goodnews
Hello Goodnews,
right now I'm feeling well, and actually I do have PT who is coming everyday for about an hour and I have caretaker as well ,who is coming everyday "from 9to9",however I cant afford 24 hours caretaker..
Also, since I don't have fever right now so I don't think I have bone infection, but I'll go on your advise and I'll take the medicine for preventing malaria ..
You mentioned that your read some stories of people doing both and they succeed , do you have any link?? I really need to read such a thing ..
Thanks a lot for your support :)
Sweden
Hi Sweden
I read your post in old forum about the garlic and I tried some garlic with chicken soup, however after I read Russianblues's post I think I'll just take Allicin supplementation
You do have regular physical therapy for at least 2 hours right?
No, for one hour.. and he is concentrate in making mr do bending exercises more than any thing else right now,,
But how could I know if the device malfunctioned? I'm trying to pay attention in any change as much as I can, However I'm still don't know how could I determine whether the device is malfunctioned or not !
My doctor told me to do just one turn and he'll do x-ray after a week to check the bone again, but I'm doing 2 turns and I'll see after a week what will happen ..
about the intramedullary nails and the plates, I don't think I got it ! what should I do intramedullary nails AFTER I done lengthening!! my surgeon never mention such a thing before !
I think my eating habit is quite healthy
I drink 1-2 glass of skim milk daily, and 1-1.5 L of water
Morning ( I choose one of these )
* Muesli Cereal with milk
*whole grain toast with peanut butter/ cheese/ egg
* Few pcs of Digestive biscuit with milk
Lunch
* salad Chef (http://salad Chef) "similar to subway but with more healthy options like soup and salad"
*subway
and once a week I tried one of Indian dishes
Dinner "this is fixed ;D"
* yogurt with cucumber sometimes with soup
snack (one of these)
*apple
*banana
*Digestive biscuits
However, when I had the fever I didn't eat any things except one biscuit before the medicine, and even today when I ate slice of toast I felt so sick ... but I'll try from tmw to return to my old regime although I think it will take me few days to do this ...
short_and_depressed
hey you
hummm well I guess 5'5 is excellent..
about the pic I wanted to upload my x-ray but I don't have scanner and I tried to capture pic for my feet to show Sweden that I still don't suffer from ballerina, however the Q is low since I took it "my maid did that actually" with my laptop's cam
(http://i39.tinypic.com/2iadgr4.jpg)
Blackhawk
yeah don't worry I'll keep continue my my diary
-
Thank you for continuing your diary. Everyone that does something someone else doesn't understand will get shots thrown at. Don't mind those people.
I'm not supporting the choice you made but it's all up to you - and maybe your doctor.
The picture quality looks better now but that picture doesn't show us anything. Ask your maid to take 30-40 pictures of your legs at different angles and then you can choose the best looking ones. That's how you take pictures.
I think I have 2.000 pictures from my trip in India. You will want to have pictures of things you did in your life for later.
You have to find out if your getting a nail inside your bones after your finished lengthening. You will be permanently hurt if you need to wear the monorails for 10-12 months and not exercising as you should(but can't bc of monorails).
Ask you doctor how he(she?) will approach this.
It sounds as if you have no clue of what you're doing or understand the seriousness in this procedure.
You shouldn't have any ballerina for now but it'll strike you really bad later around ~5cm which is where I wish you'd stop lengthening.
I'm telling you this bc I don't want to see you get any life long conditions and feel miserable about yourself.
Your doctor should be able to tell you how the lengthening device acts when it malfunctions. EVERY monorail at Dr Sarin malfunctioned so stay alert.
Advice on the road: lengthen your femurs faster than your tibias. Try to move around for several hours and stretch as much as you can. Sleep with straight legs - NO PILLOW UNDER YOUR KNEES even if it's more comfortable. They will get stuck in that position.
Reach for your toes. Try to eat more and drink at least 2l of water/day. Don't sit on the edge of the bed with your thighs or else your femurs will bend badly.
Take care and don't forget the pictures.
-
... NO PILLOW UNDER YOUR KNEES even if it's more comfortable. They will get stuck in that position.
I wonder how many patients follow this advice compared to the ones that ignore it or are never even given that information. It's almost crazy how something as simple as pillow positioning can affect the outcome of the recovery process.
Dr. Parihar mentioned this exact problem. I think this information will be relevant to you Disobedient since you are doing both tibial and femur lengthening, even though you're using monorails instead of the classic frames.
"Proper limb positioning taught early on minimizes the chances of contractures developing later. The commonest cause of a flexion deformity is the tendency to keep a pillow lengthwise under a tibial frame. This causes flexion at the knee. This should be prevented by repeatedly correcting the tendency and keeping an pillow only under the distal most ring in the frame thus allowing the knee to remain fully extended at all times. The other point to be remembered is the necessity of passive dorsiflexion splints for the ankle. This can be easily done by using a strap or bandage around the plantar aspect to the forefoot which is attached to the frame and keeps the foot in a neutral position. In patients undergoing significant tibial lengthening, this splint is required all through the day, and especially in the night. To prevent hip flexion contractures, especially in patients with a femoral frame, the patient has to be taught to lie prone for a few hours a day, and to extend the hip by taking the leg off the edge of the bed."
http://www.limblengtheningforum.com/index.php?topic=22.0 (http://www.limblengtheningforum.com/index.php?topic=22.0)
-
it was nice to meet you :)
YOU are very strong and brave. I hope I will be like you after doing this surgery and I do it as u did for both tibia & femur but not exceed 5cm each.
wish all the best
-
I wonder how many patients follow this advice compared to the ones that ignore it or are never even given that information. It's almost crazy how something as simple as pillow positioning can affect the outcome of the recovery process.
Dr. Parihar mentioned this exact problem. I think this information will be relevant to you Disobedient since you are doing both tibial and femur lengthening, even though you're using monorails instead of the classic frames.
"Proper limb positioning taught early on minimizes the chances of contractures developing later. The commonest cause of a flexion deformity is the tendency to keep a pillow lengthwise under a tibial frame. This causes flexion at the knee. This should be prevented by repeatedly correcting the tendency and keeping an pillow only under the distal most ring in the frame thus allowing the knee to remain fully extended at all times. The other point to be remembered is the necessity of passive dorsiflexion splints for the ankle. This can be easily done by using a strap or bandage around the plantar aspect to the forefoot which is attached to the frame and keeps the foot in a neutral position. In patients undergoing significant tibial lengthening, this splint is required all through the day, and especially in the night. To prevent hip flexion contractures, especially in patients with a femoral frame, the patient has to be taught to lie prone for a few hours a day, and to extend the hip by taking the leg off the edge of the bed."
http://www.limblengtheningforum.com/index.php?topic=22.0 (http://www.limblengtheningforum.com/index.php?topic=22.0)
This guy seems super switched on. Was it you who was planning on going to him for LL? I remember a memeber early in this forums days discussing him.
EDIT: I see it was. I wonder if he would do external only? One of my biggest concerns with LL is the tendon damage to the knee when inserting and removing the nail for LON or LATN.
-
This guy seems super switched on. Was it you who was planning on going to him for LL? I remember a memeber early in this forums days discussing him.
EDIT: I see it was. I wonder if he would do external only? One of my biggest concerns with LL is the tendon damage to the knee when inserting and removing the nail for LON or LATN.
He does external only also. He's actually one of the people I may lengthen with this December. I haven't fully decided yet.
I'm unable to do external only simply due to the amount of time I'd have to be off work. Children have it easier when it comes to external only methods since they'll only need to be in frames about a month per centimeter lengthened, whereas for adults it's two months or more per centimeter. Psychologically I don't think I'd be able to deal with being in frames that long.
Disobedient, I hope you're not planning to do external only. Especially with both segments being lengthened, that's going to be much tougher than you've thought possible.
-
hey everyone, I'm new to the forum, come in to say I'm supporting Disobedient recovery from the surgery.
I plan to do LL in February/March and will have a diary on here when that happens.
-
Jerry, where are you planning on doing it. I am doing mine in late December but still unsure about the doctor.
-
Good Evening:)
there is no much to say, expect that I'm still doing 2 turns for my femur and 1 for my tibia which mean I'm suppose to gain 1.5 which make it in total 3 cm :D.. However what I learned recently that you really can't measure your gain by the number of turns ... so after 3 or 5 days I'll have x-ray and I'll see exactly how much did I length so far...
and I'm still have no appetite for eating, there is a part of me happy because I'll definitely shed sm kg :D,but it's not healthy ,I know..
Yesterday was depawali day.. there were too much firework and noises outside, I wanted to see them but I was afraid to be beaten by mosquito.. so I just stayed at my room "before getting sick I used to sit on balcony a lot to get vit D and to look out over the crowded street..
what else? humm yeah I met "shorty" 2days ago, and it seems that he made his mind to do the same surgery with the same dr although I told him to go and meet other drs.... hope everything will go well with him..
Sweden
I'll ask the doctor about the nail thingie although I'm sure that he is not determine to do such a thing... he explained to me the whole procedure that he'll do and never mention that.. but what if he said I don't need to do it? what should I reply!
I'll work in your advices, but about siting in the edge of bed my PT told me to do this as an exercise, he explained that it could help me in bending my knee , so I'm sitting in this position for 30min to 1h daily...
this position
(http://i41.tinypic.com/e7yq10.jpg)
(http://i44.tinypic.com/5zegyq.jpg)
(http://i40.tinypic.com/33z44qu.jpg)
shorty
thanks, and good luck in your surgery.. :)
Kilokahn
well I did it.. :)
jerry
thanks for your support jerry, and good luck in your LL surgery
-
Is it okey if I post your pictures on old forum and ask for more unbiased advice?
-
Is it okey if I post your pictures on old forum and ask for more unbiased advice?
yes sure ..
I have a question too, from day1 after surgery and I can't bend my knee, and "still", do you guys went through same problem ?
-
Put your heels on a pillow and try to straightening your legs. I'm not sure you should put any weight on your knees bc of the monorail which is very unstable.
Your knees are bent in the pictures so no problems there.
-
Put your heels on a pillow and try to straightening your legs. I'm not sure you should put any weight on your knees bc of the monorail which is very unstable.
ok I'll do that :) , one of my routine exercise is to press my knee down I think this will do the same job as putting weight in my knee.
Your knees are bent in the pictures so no problems there.
not for 90 deg not even close to that, and when I bend it I feel so much pain, what make me worry that I suffer from this bending issue from day1.. and from what I read ppl start to have this problem some months after the surgery that's why I asked..
-
I hope you make it through this ok.
-
If your doctor isn't planning to put in intramedullary nails later, I really think you should stop the femur lengthening.
Would it be possible to let your femurs consolidate and take the fixators off afterward while continuing with your femur lengthening? It's going to be difficult just lengthening one segment with the monorails, lengthening two by purely external methods is not only going to take a toll on you physically, but mentally as well, Disobedient.
-
I just copied below from Dr. Dror Paley website !!
Can I have lengthening of the femur and tibia together at the same time to save time and expense?
Although femur and tibia lengthening can be done at the same time we do not insert the femur and tibia rods in at the same time
due to the theoretical risk of fat embolism from reaming the medullary canal of more than two bones at a time. To insert 4 rods
at the same surgery would increase the chance of fat embolism.
We have considered how this could be done safely. It would require reaming with a special reamer aspiration system that sucks
out the marrow while reaming. This is called RIA (reamer-irrigation-aspiration). To date we have not done this in anyone at one
surgery. We have performed rod insertion of the femurs followed by a few weeks later the same procedure to the tibias so that
the lengthening time could overlap. The rehabilitation is much more difficult of course since we are lengthening the muscles on
both sides of the knee joints.
The main benefits are decreasing time to go through the procedures twice as well as decreasing costs by incurring only one
hospital admission and one anesthesia cost. At present we are not offering this alternative but it may become a reality in the
future.
As I understand it can be done but with external more safe than internal . isn't?
http://www.limblengtheningdoc.org/cosmetic_stature_lengthening_FAQ.html
-
If your doctor isn't planning to put in intramedullary nails later, I really think you should stop the femur lengthening.
Would it be possible to let your femurs consolidate and take the fixators off afterward while continuing with your femur lengthening? It's going to be difficult just lengthening one segment with the monorails, lengthening two by purely external methods is not only going to take a toll on you physically, but mentally as well, Disobedient.
Just saw my typo, I meant continuing your tibia lengthening.
-
we do not insert the femur and tibia rods in at the same time
due to the theoretical risk of fat embolism from reaming the medullary canal of more than two bones at a time
So if reaming the canal creates the risk of fat embolism I'm assuming it has something to do with the debris floating around in the canal, and since the debris is never removed...is there forever a risk of fat embolism?
-
Hey Dis :)
Would love to get an update from you.
My situation is much improved ;D. Tomorrow I begin sitting and standing again. If you told me two days ago the probability that I can stand in two days I would have given an unequivocal 0% chance. Always important to remember that we have good days and bad days, and a good day is usually right around the corner.
-
Disobedient,
I like your diary and your story because it's not too common to find info on cosmetic leg lengthening using the monorail frames, and much less doing simultaneous femurs & tibias at the same time. If I'm correct, you are just doing external frames and won't have any rods/nails inserted in your bones, right? This idea thrills me because this way there's no need to have a second surgery to insert the rods/nails or a third one to remove them later on.
I'm thinking that I would like to try double lengthening like you did and do 8cm (4cm on femurs & 4cm on tibias). How long do you think it will take and how long will I have to have the frames on before they remove them?
On a scale 1 to 10 (1 being little pain & 10 being unbearable pain), what is your pain like, and are you taking heavy narcotics or pain injections? BTW, how do you manage to use the toilet and move around?
Here are two links about a british girl named Emma Richards who appeared in the TV series Repley--Believe it or not! I saw the episode more than 10 years ago and it is very interesting because she lengthened her femurs using monorail frames. I wish I could find the video-- it is episode 4 from season 4. I googled it but couldn't find it.
http://www.telegraph.co.uk/news/uknews/1374808/Diary-of-stretched-girl-reveals-anguish-of-operation.html
http://news.bbc.co.uk/2/hi/health/1147874.stm
-
For those interested in what this Nova Special Surgery Hospital looks like, here's a link to a video:
http://www.youtube.com/watch?v=xnLERn6S_8M
or you can see their own youtube video collection:
http://www.youtube.com/user/novamedicalcenters/videos
-
Hey girl are u ok there? Im currently lengthening here in India. A couple of patient and i are interested to meet up with u if u don't mind as we're actually genuinely concern for u. We're not that far away from u, so please do send me a PM if u're all right with it.
-
Hey hand_sanitizer,
What Dr are you doing LL with?
I hope you are doing well Disobedient.
-
With Dr srinari, russianblue's housemate.
Disobedient, u havent been posted for a while. Are u allright?
-
Good Evening
I wanted to update you guys from 3days ago but I was little bit lazy to do that :P ..
so let's start with
My x-ray
I had an x-ray a week ago.. and the problem of the reunion is solved, also the x-ray shows that I lengthened 3.1 cm -1.5 in femur and 1.6 in tibia- (note this was 8days ago,so by now I'm 4.7cm :D )
I asked from them to save my last x-ray pictures, but I forget to save the new one , since I was totally shock that the X-ray will cost me this time 5000 INR !!! :o :o :o
I used to pay 2000 INR, I don't know what wrong with nova but I'll not gonna do the x-ray with them next time for sure ... any way these are my x-ray..
(http://imageshack.com/scaled/640x480/834/oh92.jpg)
(http://imageshack.com/scaled/640x480/856/cqci.jpg)
(http://imageshack.com/scaled/640x480/62/r2iq.jpg)
2mm
as I told you guys that I started to do 2mm in my femur side there were no side affect that I notice nor pain but when I told the Dr that I had been doing 2mm in my femur side during last week, he advised me to stop doing that RIGHT NOW.. so I did :)..
The Pain
well I know this surgery is not pain free, however I really should point out that the real pain will start in the distraction phase... with every millimeter I gained the pain increased too...
my tibia is the most part that heart me.. and the most part that I have problems with for example
1-pin site
2 days ago, I had bleeding in the upper pin site of my tibia (it's exactly in my left knee)..
the pain was horrible.and it doesn't happen suddenly..
I remember I mentioned about that to my Dr one week ago and he checked the pin site and said its okay and i don't have to worry about it since there is no discharge from the pin site., so there is no infection. but the pain remain same, no actually it started to increase by the days then, he send a nurse to change the dressing to me and told me to take antibiotic ...
2-skin burning sensations
this is one of the weird pain that I have, cuz there is no redness in the skin or any visible sign that you could see,just the feeling of that something burn your skin, the pain come all of a sudden and disappear suddenly too...! I did experience the same feeling few months ago when I applied chemical peeling solution on my skin for more than required time .. the pain is awful !
but why would I have a similar pain in one area ...
this really strange !!!
My femur part
my femur part is good, no it's more than good comparing to my tibia... I don't have any problem there, I can say there is almost no pain or very slight pain in my femur side ! I know this maybe a shock to some of you but this is what I feel
the only problem with doing LL to the femur part "so far" that you cant sleep in your side and this will cause pain to your back by the time ...
muscle cramps
this is another problem that I have, I think everyone experienced muscle cramps in his life but with LL, it although it last for few sec but it is a real nightmare cause every time it happen you'll feel that the pin just inserted in you skin :'(...
Doctor visit
yesterday Dr Rah sent a doctor to check the pin site to me "this doctor is one of the surgical team who operated the surgery to me " he said there is no infection on the pin site and this is because of stretching of the skin.. he said the burn sensation that I feel is caused by the nerves...
so he prescribed for me 5 medicine
ACE-PROXYVON
PAN-D
UBICAR - for muscle relaxation
LYRICA- for nerves relaxation
Nitrest - in case if i have sleeping problem
and finally calcium
SO TODAY I must say the the muscle cramping reduced by 60%, while the burn sensation is still exist no improvement yet..
-
MAC
thanks :)
Kilokahn
there will be no nails inside, and according to him there is no need to such a thing and I can walk normally without problems few months later ...
and so far I think I'm doing well, so I'll not stop lengthening my femur side
Shorty
it seems there is no major risk doing the both part, but he indicated too that the rehabilitation is much more difficult because of lengthening muscles on the both sides ....
great link , thanks
Russianblues
HI
That's Great News, congrat, I remember when I was able to stand for few sec "before the distraction" I was so happy too...
tell me how much did you lengthened so far?
thanks for your support :)
Leonardo2013
Hi Leo
well I can't give you the exact time that you will need cuz that is vary from person to another but here is the approximate calculation
day one -surgery ..
15 days before the distraction
40 days to get 8cm ( if you will length 1mm for femur and 1mm for tibia per a day)
6 weeks to 2 months for bone consolidation (you may take more time)
then they'll remove the frame
so you may take 3.5 to 4 months
you are just doing external frames and won't have any rods/nails inserted in your bones, right?
yes
On a scale 1 to 10 (1 being little pain & 10 being unbearable pain), what is your pain like?
in my femur there is very slight pain unlike my tibia ... before having problem with the pin site and the other problem that I listed above ,, I would say the pain is smth around 4..
with these problem it's maybe 5 or 6 "but good medication should decrease the pain "
when my PT trying to bend my knee to 90 deg the pain is 9 ;D, and this will last for few min
are you taking heavy narcotics or pain injections?
I'm taking Ultracet
how do you manage to use the toilet and move around?
with this and by the helping from my caretaker
(http://www.jsbhealthcare.co.in/media/catalog/product/cache/1/image/650x650/9df78eab33525d08d6e5fb8d27136e95/i/m/imported-wheelchair-with_-commode.jpg)
its a wheel chair with commode
about the British girl, Good for her, it is amazing that she did 5 inches in one part
I really I would love to see the ep too
hand_sanitizer
Hi, yes for sure I'll send you my address
but I would like to meet you after 1-2 weeks since friend of mine will go into same surgery and I expect that he will discharge after 10 days. since he'll be in the same hotel .so maybe you could meet him too
Blackhawk
I'm doing good
thanks
-
Kilokahn
there will be no nails inside, and according to him there is no need to such a thing and I can walk normally without problems few months later ...
and so far I think I'm doing well, so I'll not stop lengthening my femur side
How long is he telling you that you'll need to be wearing those fixators? Multiple orthopedic surgeons state that adults doing lengthening with purely external methods are required to wear the fixators 1 and 1/2 months to 2 months or longer per centimeter lengthened. If you're going for 7 centimeters on each segment you're looking at over a year until your bones will be strong enough to take on walking without the fixators. I'd suspect that since you did both segments at the same time it's going to take even longer than the usual expected recovery time.
-
Great to hear from you Dis, me and my roomy are relieved you are still in such good spirits :P.
Doing quad lengthening is so fast , You are already pretty much at my goal of 5cm! Awesome!
So far I have lengthened 2.5cm and am feeling the best since I started tonight. Actually a funny story ::). Because I was feeling good I thought I could go to the toilet by myself on the chair. I slowly made made my way successfully to the toilet but then was unable to get back. Nothing like having to shout out to your roommate to call the caretaker to help you because you stranded yourself on the toilet at 1am. Laughs all round though ;D. Look forward to future updates.
Hey have you asked your doc about the alignment of your fibula on your left leg? I'm 99% certain it's normal because a bit of misalignment is common, your leg seems to be rotated judging by the pins which can exacerbate things on an x-ray and also your doctor would have checked these x-rays and said if there was a problem. But, it's always worth asking if for nothing other than peace of mind.
Regards, Russian.
-
Good to hear from you.
You're having a friend over for the same procedure????????
Without any IMnails you need to wear the monorails until next October 2014. After that you will be close to crippled. At least for 4-5 years.
Craig49 broke his femur really nasty this way. Dr Mirzoyan did external only on his left femur and when he removed the Ilizarov device Craig's femur broke.
Take care.
-
Kilokahn
According to him after bone consolidation ( 2months) I'll remove the frame..
he is so confident that I can walk without problem... but your post make me confused who I believe!!
cuz I did read before about- 1month for every cm-
is there anything I could take to make the bone strong?? should I lose more weight?
Russianblues
It is good that you do have a roommate otherwise you would be in deep :D be careful next time
about my fibula I'll ask the Dr, but if there were any problem he would tell me since he checked the x-ray many times...
Sweden
this sound scary.. I do remember that I read smth like that happen to him with his Lebanese doctor..
maybe carig49 is just a case.. it is not compulsory that I'll go through the same thing...
but I think I have to discuss that with my dr again.......
about my friend ,I knew him actually from this forum he read my diary then decided to come and have the same surgery...
-
Just to clarify, your doctor told you they would take the frames off 2 months after finishing lengthening? Did he give a time frame for walking normally again?
I think this is very optimistic.
-
Dear please god this has to stop!!
Now there's a GUY coming to do the same???? He will be even more hurt than you. He may never walk again properly at all. He will end up like Crazy+6, limping around.
After two months you a DEFINITELY NOT consolidated. Try TWO YEARS!
I don't have enough words to describe all this.
You should stop lengthening now when you still have a chance to recover well. The Dr should loose his license and the new guy coming should go back home and do his reading in here or on old forum . My god I couldn't believe this was true if there wasn't any pictures.
Don't you get it that since you can't weight bear or exercise you will loose ALL OF YOUR LEG MUSCLES bc your doing quadrilateral lengthening. It will take YEARS to rebuild. Your tendons will be completely stuck in ballerina position and your hip will most likely be locked in a position your legs were in all the time. About the faster bone consolidation: you should know this before doing LL.
What will you do if you try to weight bear and ALL OF YOUR BONES BREAK AGAIN!???
I don't know if I should feel bad for you.
Take this post any how you want. It's so sad witnessing you destroying yourself. :-\
Take care!
-
Russianblues
he told me that the result vary from one person to another... but in general after the consolidation the frame will be removed and after few weeks (2-3) I should walk normally ...
Sweden
after reading your post there are two things to definitely do
1- I'll not stop lengthening
2- I'll tell my PT to start weight bearing
about the guy who'll do the surgery, I think I said before that I'm not recommend Dr Rah, and I'm here to write my experience
do I recommend the Dr Raheja?
NO I'M NOT, cuz I still don't know if every things will gonna be fine till the end of my journey !
and how could I know if he is good or bad in this short time seriously !!!!
I know that the cost of surgery would attract the attention of some ppl since it's low, but please think about other staff don't make your decision based on my diary cuz I'm still in the very beginning of this journey, who knows what will happen next ! !! I may regret doing this surgery later !!!
so don't make me feel that I'm responsible for his decision !
-
I don't want to pester you too much, but, I still don't understand. How long after finishing lengthening will your legs consolidate?
-
2 months
-
so don't make me feel that I'm responsible for his decision !
You're not.
You can't weight bear. The monorails are not constructed to hold your weight. If you try, my guess would be that one femur will snap first and then you will fall down.
PT's from India barely have any education. They just don't know what they are doing. If your PT tells you that you shall stand up.... Well. Be advised.
--------------
Your consolidation will take around TWO YEARS. Maybe one if you're Wonder Woman.
Why do you think Dr Salameh's patients wear the frames(that is weight bearing) for 10-16 MONTHS!!?
-
bodybuilder was standing in the distraction phase and he did monorails, how would you explain that?
but why would you think that I'll take two years for consolidation ! just few weeks ago I had problem with the reunion bone doesn't that shows that I do have fast bone consolidation ! also, I can take stem cell if I'll have problem with consolidation ...
about your question I don't know but every doctor have different method and opinion.
-
Human beings take 1-2 years to consolidate. That's fact and if you want to speed things up there are a couple of things one can do, even illegal supplements.
Bodybuilder didn't have 4 unstable monorails on his legs.
The monorail is not built to stand your weight.
Many patient experience bent femurs and lots of complications with monorail. They never come back even close to 90% of their former self.
If you have 6-7cm gap in your bone it WILL take you a full year to consolidate for you to be able to walk.
When you lengthen and the bone joins prematurely it does that in one small area, enough to be unable to continue lengthen but NOT to walk around with!!
-
I am really encouraged by your positivity, yet,
Bodybuilder spent 10 months+ in frames, he also only did tibias and was an athlete beforehand. He actually also says in his diary that "monorails are not weight bearable after 5cm", again only tibias.
I don't think its realistic that you will spend only 5-6 months in frames :-[.
Perhaps link a diary where someone did quad lengthening external only and spent 6 months in frames to put our minds at rest?
-
no, there is no prior experience or diary about someone who did both parts that i read
BUT as I said in the beginning I think technically this is possible...
so what I 'll do right now
1-conitunue lengthening
2-Doing more exercise as much as possible "yesterday I was able to rise my right leg without any help, and for me this a great achievement :)"
3- I'll take stem cell in the consolidation phase if it's not work after 2-3months I'll go to another Dr to insert nail inside my legs I think this is possible and it will keep me in the safe side, but so far I do trust my Dr and I'll do whatever he said ...
-
It took me a couple of weeks to be able to lift my legs.
I must know. How can you even believe consolidation only takes 2-3 months? Why do everyone have the nails inside for 2 years do you think? Some even longer.
With external Ilizarov ring device only you need to have them on for 10 months MINIMUM if you want 5cm of height gain. That is if everything work out fine all the way.
Nobody is here to fool you. I can speak for all of us when I say we all want you to end up as good as possible.
Taking stem cells is for non union. I have a hard time believing it will speed up recovery. Mostly steroids speed things up(even aging).
Even if it did work you will still need the monorails on your legs. It doesn't take a week or so to consolidate one bone after stem cell injection. It will still take months.
Continue your diary so we know your doing well. Tell the new guy to go home again.
-
Disobedient,
Sweden is right. Anyone or myself is not here to criticize you or judge you, but you had to do your homework before choosing to undergo leg lengthening. I'm in my 30's and I've been researching and lurking these kind of forums for more than 6 - 7 years. Unfortunately due to financial reason I haven't been able to have CLL yet. However, I read and found out so much that I know exactly what I'll be getting myself into. What Sweden is trying to tell you is that even though the monorail frame could seem more comfortable than the Ilizarov frame, it doesn't have the capability of maintaining your bones straight when lengthening large amounts, and could even make your bones snap when putting too much weight on it (do a google research). The Ilizarov is bulkier and more uncomfortable but it was designed to sustain weight and because of its shape it can realign bones if they start growing crooked. Many years ago I remember a girl who did quadrilateral lengthening (external only) in Ukraine with Dr Veklich who used his own version of Ilizarov that were half the circumference of the rings (very unstable). She kept updating in anold forum for the first couple of months and then when she started experiencing problems, she just vanished and to this day who knows what happened to her. Anyways, in your case what is done is done, but you should seriously reconsider not lengthening to the extreme, not only for the long time it will take you to recover but also because a lot of people once they pass 7-8cm of height start showing signs of disproportion. You're a female, so picture yourself with a lot of extra height plus wearing high heels -- you will look funny. So, give it a thought and whatever you decide I wish you the best and please keep updating us.
-
Disobedient,
Sweden is right. Anyone or myself is not here to criticize you or judge you, but you had to do your homework before choosing to undergo leg lengthening. I'm in my 30's and I've been researching and lurking these kind of forums for more than 6 - 7 years. Unfortunately due to financial reason I haven't been able to have CLL yet. However, I read and found out so much that I know exactly what I'll be getting myself into. What Sweden is trying to tell you is that even though the monorail frame could seem more comfortable than the Ilizarov frame, it doesn't have the capability of maintaining your bones straight when lengthening large amounts, and could even make your bones snap when putting too much weight on it (do a google research). The Ilizarov is bulkier and more uncomfortable but it was designed to sustain weight and because of its shape it can realign bones if they start growing crooked. Many years ago I remember a girl who did quadrilateral lengthening (external only) in Ukraine with Dr Veklich who used his own version of Ilizarov that were half the circumference of the rings (very unstable). She kept updating in anold forum for the first couple of months and then when she started experiencing problems, she just vanished and to this day who knows what happened to her. Anyways, in your case what is done is done, but you should seriously reconsider not lengthening to the extreme, not only for the long time it will take you to recover but also because a lot of people once they pass 7-8cm of height start showing signs of disproportion. You're a female, so picture yourself with a lot of extra height plus wearing high heels -- you will look funny. Look a picture of Hajnal Ban (she went to Kurgan and publish her book "God made me small, surgery made me tall") http://bellapetite.com/wp-content/uploads/2010/08/before-after-leg-lenghtening.jpg
She lengthened 8cm and look a her disproportion with high heels. So, give it a thought and whatever you decide I wish you the best and please keep updating us.
-
Disobedient, this is going to be a long journey ahead for you. We all want you to recover well, but please understand that if you had asked us before surgery, most people would not agree on your decision to do quadrilateral lengthening.
I cannot emphasis that enough for the sake of anyone reading this diary. My personal opinion is the risk level is high and the recovery would be very long for quadrilateral lengthening. We cannot force your friend's decision, but really he need to think very carefully about it and understand the amount of risks first.
Please consider the various advice of members here and keep us updated.
-
Thank u all for the advices
I am now in the hospital and tomorrow will be my surgery. (my target 3.7 tibia 3.7 femur).
I was in india since 1/11 witnessing Disobedient and I can tell she is doing well so far with no major complications but the nee bending issue and I hope she can overcome.
at present moment Just wish us all the best.
- Disobedient : u r the bravest person I ever met and I know u will success, but as agreed lets stop on 10cm 5cm/5cm ;)
just to tell I was reading old forum for about a year if someone want to know
-
just to tell I was reading old forum for about a year if someone want to know
Clearly you haven't understood it.
3,7cm is doable, but since you can't weight bear or hardly any exercises you will have a very long road ahead of you.
It will take around 2-3 years to walk without a strain.
You're not getting any nail inside so the monorails have be on your legs for 9-10 months.
Only after 3 months you have already destroyed your body by not moving around.
Imagine 9 months.......
-
Thank u all for the advices
I am now in the hospital and tomorrow will be my surgery. (my target 3.7 tibia 3.7 femur).
I was in india since 1/11 witnessing Disobedient and I can tell she is doing well so far with no major complications but the nee bending issue and I hope she can overcome.
at present moment Just wish us all the best.
- Disobedient : u r the bravest person I ever met and I know u will success, but as agreed lets stop on 10cm 5cm/5cm ;)
just to tell I was reading old forum for about a year if someone want to know
Can you walk me through your thought process for doing quad lengthening rather than just doing 7.5cm with LON on tibias? Every way I look at it 7.5cm LON is far superior. The ONLY benefit I can possibly see is that you will reach your goal height sooner, yet, those doing LON will walk like a year before you so that isn't really a benefit.
-
Your nerves can't lengthen that fast. They will be destroyed, probably permanently. Skin numbness, loss of temperature feeling for the body in that part, increased sweating and more.
There is always more to it than you can find in forums.
Doing quadrilateral lengthening, especially with monorails AND without any nails, is to destroy your life as you know it.
You will both be aware of this next summer. If you fall into a serious depression you could end up hurting yourself even more.
I hope you guys really are lucky with this. There is SOOOO MUCH that can go wrong with this approach.
-
isn't the idea that they will lengthen with monorails and then insert nails inside the bones so they can weight bear after lengthening.
I don't see why u cant lengthen 4 bones providing u don't break them all in one sitting. if the surgeries r done 20 days apart I DONT think 5cm on tibia and 5cm on femur is such a bad idea.
assuming u lengthen for 50 days and then insert wb nails u can expect to be trying to walk after initial surgery within 75 days or so.
I don't see why Sweden keeps saying ppl wont be able to walk for many years.
he has only done his surgery less than a year ago so how does he conclude that others will not walk for 3 years and possibly be ruined for life. some of the things he says r just his thoughts and not facts that have been proven. he is too conservative.
I dont think we should be critisizing others for taking risks and doing things that our outside the norm.
lets not forget that ones personal LL experience is one of the many possible outcomes of LL. Just because u take more than 6 months to recover from ballerina doesnt mean every one will.
I like the advice of LL vets but sometimes they talk like they have done LL and tried many possible scenarios. BUT no they haven't. so I don't like how some one who did LL less than a yr ago can conclude that some one who tries something different to what they did will result in total failure or permanent damage.
I don't agree with breaking 4 bones and using external LL. but if they r targerting small gains per bone I think they can pull it off.
The kind of criticizing that's been given to this girl is similar to that which is given to new LL doctors that r not popular.
well guys look at Dr Siringari and his patients. they r doing really well (providing everything is what it is and not polished like most thins over there at old forum )
When that dr came on the forum and it appeared new patients where going to do surgery with him, most ppl, especially vets, were all on the persimistic side of the fence.
so come on guys, lets be thankful for those who push things to the edge because it is the only way we can know what is really possible with LL.
I am surprised that this girl still posts on forums after the way she has been attacked. and what a loss it would be if she stopped updating because everyones is treating her like she is some kind of a lunatic.
-
You have no clue at all. I have.
I have seen what the monorail can and can't do. I know how long it takes for the general patient to recover. I have contact with lots of patients, discussing their progress and abilities.
I have read through old forum since the beginning of its existence.
I have spoken to several doctors about LL and everything that happens to the body when going thorough such a procedure.
I know of many patients that came back a couple of years after finishing LL to do a tendon release surgery bc they've been fighting the stiffness for 5 years without any progress.
There is so much we never get to know through old forum or in here that you might get chocked when you finally have your own LL and understand what it's all about.
Why do you think EVERY SINGLE PATIENT EVERYWHERE stop writing in their diary? They are permanently hurt and too proud or embarrassed to tell about it.
Some claim they are perfectly fine and then they show up next year for a tendon release surgery.....
There is so much you don't know what is happening to the body. You can never find it on LL-boards.
The girl didn't even know if she was getting a nail inside her bone, come on!!
I hope this diary continues - everyone wants to see her doing well.
-
Saying people stop their diaries because they're "too embarrassed to tell about it" is just an erroneous claim. People move on with their lives, and after a certain point, you have no need/desire to continue updating your diary. Your diary was created in the beginning with a purpose- to track your progress and receive advice from other LLers. Once you're done with LL, what other purpose do you have in continuing it? At that point, it's just a waste of time that can better be spent elsewhere.
You have read through old forum since its existence in 2006, have you also read about all the studies done on LL since the 50s? There are many people who have gotten LL for the past decades, and they have no need to share their story because they've made it through life fine. You're unhappy with your surgery and putting that unhappiness on everyone else, give it a break.
-
Saying people stop their diaries because they're "too embarrassed to tell about it" is just an erroneous claim. People move on with their lives, and after a certain point, you have no need/desire to continue updating your diary. Your diary was created in the beginning with a purpose- to track your progress and receive advice from other LLers. Once you're done with LL, what other purpose do you have in continuing it? At that point, it's just a waste of time that can better be spent elsewhere.
You have read through old forum since its existence in 2006, have you also read about all the studies done on LL since the 50s? There are many people who have gotten LL for the past decades, and they have no need to share their story because they've made it through life fine. You're unhappy with your surgery and putting that unhappiness on everyone else, give it a break.
Actually, check Andrew's diary on old forum , he just admitted to going silent for a very long time precisely because of sudden very stressful complications mixed with embarrassment and pride. While that doesn't have to be the case for everyone who stops updating, I don't think he's alone. He's just among the few that come back to admit to it in their diaries.
-
"I don't agree with breaking 4 bones and using external LL. but if they r targerting small gains per bone I think they can pull it off."
I agree with the statement above posted by Adriano -- Even Dr Paley somewhere in his website mentions that performing simultaneous lengthening for tibias & femurs saves time. However, I'm not saying that it is the best thing to do. I personally think that in all this controversy everyone who posted has a point. Sweden is right saying that this is extremely risky and MIGHT take a long time for one to recover, but let's remember that every individual is not created equal (pain tolerance, soft tissue laxatity, mental focusness, etc) and some respond differently than others. Of course if you have non-weight bearing frames and you don't move around for several months, then your muscles and other soft tissue are definitely going to get atrophied, and therefore your recovery might take a long time to happen. But I respect everyone's decision even if it goes against my own beliefs or point of view; and I think everyone is entitled to make their own choices and we should honor that. In my opinion if you just keep the lengthening target small to moderate, then your chances of success increase. For those who need more info on monorail here's an medical journal indicating the pros and cons of it:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2994627/
In Spain for instance they use monorail fixators to cosmetically lengthen bones and people do physical therapy and walk since day one. For those who understand Spanish here's a youtube link:
http://www.youtube.com/watch?v=wU2mIP7moW8
And remember Emma Richards (from Repley's believe it or not) from the UK did only external femurs with monorails and she did physiotherapy and walking and exercises and everthing. So, I know that is is possible to walk with it but better to keep your targets short.
-
I'm not unhappy with my surgery. You're a total fool for even claiming so.
The monorail device fails very easy, I've seen it.
Nothing good can come if you stay in bed for 6-8 months.
-
I'm a fool for thinking you were unhappy with your surgery when reading posts like these?
I went from 5'8 to 5'11 and I'm not really sure how that have impacted on my life yet.
Actually so far it's been mostly embarrassing and I had to hide it.
There is no really benefit that I know of. I noticed some girls were looking at me at the gym the other day but they've done that lots of times before too.
Maybe I should try dating to see if there's any difference ;D
And I'm the fool. ::) It's pretty clear from most of your posts that you're regretful of your surgery. Unless, you care to tell us otherwise?
-
Sweden bro, I think you should recover (even if it takes you a long time) and enjoy your new height and forget about any further lengthening. I don't know for sure but I suppose that you don't want to spend a good chunk of your life recovering from the first surgery and then from a second one and missing on the good things of life, do you? I'm only 5'2 and to be honest I would kill to be at least your starting height before you had CLL. People in this forum are all going to have different opinions and that's understood, but the true of the matter is that you've proven yourself and definitely are an inspiration to many. You have good intentions in advising and warning others but remember that anyone is entitled to do what they want with their lives (in this case their bodies). So, let them be and if there are consequences let them learn from them. Peace!!!
-
Sweden bro, I think you should recover (even if it takes you a long time) and enjoy your new height and forget about any further lengthening. I don't know for sure but I suppose that you don't want to spend a good chunk of your life recovering from the first surgery and then from a second one and missing on the good things of life, do you? I'm only 5'2 and to be honest I would kill to be at least your starting height before you had CLL. People in this forum are all going to have different opinions and that's understood, but the true of the matter is that you've proven yourself and definitely are an inspiration to many. You have good intentions in advising and warning others but remember that anyone is entitled to do what they want with their lives (in this case their bodies). So, let them be and if there are consequences let them learn from them. Peace!!!
If no one else has said this to you before, let me be the first to say it- it takes a lot of strength to be a 5' 2" male in today's society. I'm 5' 6" and I still struggle with adversity because of my height. Keep on keepin' on, I envy your strength!
-
I'm not regretful however anyone might interpret a post on a forum.
I still feel short in many situations. Depending on how I recover from my first surgery I might not do my femurs.
I think I'm already at the upper limit of what I can get away with since my height is equal to my wingspan now.
Adding 5cm could make me look very weird maybe.
-
Bilateral, you're right. It ain't eazy bein' short and it takes a lot of strength like you say. I'm of Hispanic ethnicity and maybe I'm not expected to be as tall as Caucasians but it is still hard to deal with it.
-
Bilateral, you're right. It ain't eazy bein' short and it takes a lot of strength like you say. I'm of Hispanic ethnicity and maybe I'm not expected to be as tall as Caucasians but it is still hard to deal with it.
Aren't there white Hispanics, too? They count as Caucasian.
-
5 cm
;D ;D ;D
they told me that I gained 5cm, I was so happy to hear that..
5cm without nerve issue " i feel very little numbness in my right foot though" it's a good thing that's mean I can go easily to 10 cm "hope so"
also,this mean I'm 158-157cm right now so I'll hit 160cm sooon :D and I'll be an average emirati women
it was 2 days ago.. I went to hospital to have my regular x-ray , to adjust the alignment of my femur and to do knee manipulation for the stiffness
they took blood test, then at 2 pm I was in operating room,
the doctor gave me a mask and told me to breath normally it just air, he said..
few seconds later I was in a deep sleep.. so I don't know what they did :) " although I remembered something happened in the OR but I'm not sure if it was reality or dream, I remembered that my phone started to ring in the middle of the operation when the doctors tried to find it to make it silent..after that doctors started laughing . maybe it was just a dream :P
I wake up after about an hour and they asked me if I'm fine and I replied by yes.. but I taste something horrible in my mouth... then few minutes later I started crying loudly there was pain in one of pin site they gave me injection and told me to relax, to be honest I don't know if the pain was too much and to be accurate I felt worse than this pain in the past without shed a tear but I think I just want to cry at that time , it's funny how physiology play a vital role in controlling pain ..
so they shifted me to room "i don't know what they call this room" and one of the Dr came and asked me if I'm good and he told me that they did knee manipulation and everything is good he told me to smile too :)
few minutes later they brought shorty ;D he did his surgery at the same day.. he looked good, better than me actually,.. ! I remember when I did my LL surgery I felt so cold and i was shaking i was barley could say few words, but not shorty I can hear him talk to the doctor and nurse so easily..
Dr rah came and told that everything went fine in the operation and he adjust the alignment then he asked me if I feel pain and I point to the pin site that it hurts he told me then that he didn't do anything with this pin site except clean it, cuz it had lot of dirt... it seems my daily cleaning and dressing is ineffective :).. he told me that they'll shift me to my room to watch tv in next 5min..
anyway so I spent about 36hours in hospital .. I felt so tired maybe because of the Anastasia or maybe because it's a hospital .. at 8pm the pt came to my room and told me bend my knee but I couldn't bent it for more than 40 deg .. before the surgery I was something like 10-15deg.. and it's important to mention that my bending getting worse with distraction that what I noticed..
I couldn't sleep at that night so nurse gave me a sleeping injection , but I couldn't sleep either for more than two hours...
in next day ,at the afternoon the pt came for the exercise and he let me set to edge of the bed then he hanged my legs I started to cry back then and shouting to him to put a chair under my feet ... it was really painful .. he kept telling me that he'll bring a chair after 3min, but after one min one of the pin site started bleeding so he stooped and bring the chair.. I felt much better at that time, anyway he told to set for 15min 3times a day ...
at 6 pm the Dr Rah came to assure that everything fine with me before discharge ... he told me too that if I notice any color changing in my skin "like if it turns to blue", or if I couldn't move my toes , I have to stop distraction and call him immediately..
Also, he advised me that I should stop at 10cm because he doesn't wants me to suffer from major complications, but if everything went fine till 10cm I could complete lengthening but he said we have to be more conscious and maybe we will change the rate of number of turn after 10cm..
I told him that I still cant bend my knee for 90 deg, and he said it's fine but I have to keep exercising, but no walking or standing till I'll finish the distraction phase ..
then I discharged and I went back to hotel... I felt much better in hotel, today there was almost no pain except in the one of the pin site ...
and tmw I'll continue the distraction again .. it's good to give your body break even if it was just 2 days
why this post is too long :o
-
this is my last x-ray... note this x-ray has been taken before the operation
(http://i.picresize.com/images/2013/11/22/vDH7M.jpg)
(http://i.picresize.com/images/2013/11/22/FUwJf.jpg)
(http://i.picresize.com/images/2013/11/22/4XycT.jpg)
-
Great x-rays, and thank you for updating us!! This diary is really interesting to read, so please update as often as you can. :)
-
Wow! You are already half way to your goal!
Thanks for keeping us updated and posting your X-rays.
-
Hey Dis, great to hear from you. Glad your doing well and in good spirits.
Was there an additional cost for the realignment of your femurs?
When you bend your knee is it just a painless block that you can't get past? Or does one part of your knee begin to hurt a lot?
Keep us updated :)
-
^ Shush convict. Get back in ur cell. 8)
We'll come see u around december "disobedient". Take care
-
Don't know what all this talk about pubic hair ice cream is but... Lol
My question to Disobedient, ( ironic name considering you are going against all the supposed LL rules haha) just how painful has this whole experience been from a scale of one to ten? A one being absolutely no pain, and a ten being "my entire body is being ripped to shreds in hell and my eyeballs are being stabbed with forks"?
Also, to the famous Dameon/Sweden ( weird reading all your posts for so long and now I'm asking for your advice) can you help me out? Anyone else is welcome to give me advice of course.
I am planning to go over to dr. sarin to get both my tibias and femurs lengthened. I want to add three inches to each segment. From there I want to add a little length to my arms just to even things out a bit.
I am willing to spend a year and a half over there. I will be taking online college for four semesters, so I can kill two birds with one stone. (Also, it won't be suspicious returning home super tall after A YEAR plus.) I am set out on being a dentist, they get paid good money and I will help people. Medical school is expensive, but I have heard many times the school debt is worth the salary. I'll be able to pay it off. This also applies to all the lengthening expenses. I'll pay it off in the long run.
I am 5'8. I want to be 6'2.
-
Oh yeah, and sorry to hijack your post Disobedient. I've been looking on how to make my own posts on here for two days now! I don't think I'm given the option for some reason? ???
If I'm missing a button or a feature or something to make my own posts, pls someone tell me! Haha
......that is all. :P
-
BilateralDamage & Blackhawk
thanks guys, and I'll keep you updated for sure
Russianblue
I paid 305USD ...
about the pain I think it is because of the pin cuz every time I tried to bend my knee I feel the pins pushing my knee in very hurting way...
sanitizer
ok c u
jamesizu
it's okey you can post your question here ,I give you permission
about your question to me I answered it somewhere here...
I am willing to spend a year and a half over there. I will be taking online college for four semesters, so I can kill two birds with one stone.
before doing the surgery I was planing to take an online English course + start learning dutch language
and it has been almost 2months since I did the surgery and I did none of these... seriously ! do you think you will be able to study in such a situation !
good luck any way ...
-
Moved a few posts from sanitizer and russianblues to another thread, to keep it on topic. Please reserve the posts here for questions and comments related to Disobedient.
jamesizu, you can find the "New Topic" button at the top right hand section at the index of the various forum sections. You can also start a new thread for your LL plans, it'll be easier to track the replies there.
-
LL ForumorLife,
I'm American. do you know how much do they charge for visa extensions?
And could you tell us how you brought the money to India and if you paid your doctor in advance or after the surgery. Thank you and good recovery.
-
Sorry. the previous post I copied and pasted from the old forum. The question is for Disobedient.
I'm American. do you know how much do they charge for visa extensions? I mean if I go with a tourist visa and then I want to extend my stay in India for a couple more months. And Desobidient could you tell us how you brought the money to India and if you paid your doctor in advance or after the surgery. Do you have to pay everything or a portion before surgery? Thank you.
-
morning Leo,
Your question should be, can they extend or change you tourist visa?
I found some ppl who have trouble regarding extending their visa " I may be in trouble too after two weeks when my visa will expire , so I'm not sure if you can extend it..
However, shorty started the process to extend his visa and they give him appointment after one month this allow him to stay for one month more even without extending his visa yet ..
he paid 200 INR for an office that print and fill the form for him ..you can have more details from shorty
but as I know if you are from US your tourist visa will be for 6 months and this is a long time, I don't you'll need to stay in India for more than 6 months ..
about the money I paid by my visa card, and I paid the full amount 1 day before the surgery...
-
Today the pain is 6 from a scale of 10..
although I'm still in the mid of day which mean I just did half turn .. but my legs hurting me , my tibia exactly ..
I started my day normally.. I mean with the usual normal pain,, but I decided to put these relief hot water bottle I thought it may help me to relax my muscle and so on .. will it did..
however 5min after I removed it I felt a lot of pain ! I don't know why..!! if I'll describe this situation it similar to when you have period and you use hot water bottle, it will kill the pain for few sec but the pain will come double after you removed it...
-
Disobedient,
I'm sorry to hear about your pain. Has the doctor prescribed any drugs for you??
-
yes Ultracet, but I don't think it's strong enough, however I'm concern if I'll use smth stronger to get liver failure
-
I had to create an account so I can post some of my 2 cents.
Girl! you are so brave to do 4 things at the same time. The creator of the Ilizarov only intended for lengthen just one limb at a time for discrepancy purpose.
Anyhow, how are you doing as of now. I would like to see you prove the critics wrong.
-
Assalamualaikum disobedient. How are u doing? Have u heard of exogen bone growth stimulator? I suggest u try that in conjunction with stem cell.
How is ur friend shorty doing? U've got guts, girl and i applaud u for that.
-
Assalamualaikum disobedient. How are u doing? Have u heard of exogen bone growth stimulator? I suggest u try that in conjunction with stem cell.
How is ur friend shorty doing? U've got guts, girl and i applaud u for that.
I would maybe argue that if anything she wants her bones to grow slowly at this stage. To allow her soft tissues to catch up which, at the moment, are being stretched in many directions.
Stay strong Disobedient. :)
-
Hello everyone
it's 5 am , and I still can't sleep,, there is no serious pain.. but I think I slept too much during the day..anyway so I told myself why don't i update you guys. ;D.
two days ago I went to meet dr rah because the ring stuck and i couldn't do the usual turns so he changed its place and he told me that everything gonna be fine ...
I did my x-ray too and I noticed two important things
firstly : the misalignment in my right femur has been fixed :)however there was still misalignment in left femur
Secondly: I didn't gain any extra millimeter .. ! it was a week after my last x-ray(I rested for 2 days ), so I have to be lengthened an extra 1 cm :'(
so I discuss that with Dr rah and he told me he will do operation for the left femur right away.. so I don't have to worry and he added I don't have to pay anything too :D
and about my second point he said that during the operation of fixing the alignment of the femur I may lost some millimeter...
anyway I did the operation " well it's a simple operation I didn't take the Anastasia but it wasn't so painful"... the good thing that I was able to see that the misalignment in my left femur has been adjusted :)
so by that I get back to distraction phase again and for doing 2mm/day.. I think I'll stop at the new year no matter what height I reached
BullSurfer
hi..I'm doing good and thanks
hand_sanitizer
I just google it.. and it seems it's effective..but I don't know if I could find clinic here in India that doing it also about the stem cell I asked dr rah again and he said NO i don't need it and he'll not gonna give it to me unless if I have a problem :-[ I don't know if I should be sad or happy because of that, but so far " I think" I'll follow his advice this time
shorty is doing well.. he can bend his knee 85 degree..he started to left his legs one day after the surgery..
An_Apple_A_Day
what will happen if I speed up the consolidation? I didn't see any problem associate with that
-
Nice to hear from you. :)
-
Disobedient, give us some pics, please!
-
This is absolutely not a good idea to do CLL . There are far more other advanced techniques to do CLL .
I dont know how you ended up doing monorail and on top of that quadrilateral.
I m not trying to make you feel bad or something. But so far from my experience i think you are ruining your life.
I saw people do monorail on femurs and it dosent look good , the scars and the pain they had to go through.
If there are any reverse mechanism to do then i think you should it straight away. Forget about lengthening .
Now is your chance , dont think you u came this far and now there is no turning back or something.
Be practical , you were kicked out from old forum cause they know this is dangerouse. Everyone around the world are doing external fixator cause its safe . If u can reverse this lengthning then i suggest you should do it right away.
This is my suggestion ... i will pray for you .
Shame on the doctor who is doing this surgery. Do your research on limb lengthening experts and try to consult other doctors over the phone or email. Do it now or you wil regret your whole life , this is not a joke .
I really feel concerned about you .
Your well wisher.
-
It is no use trying to talk sense to anyone. If you don't tell them what they want to hear they call you stupid and everything. They are not even ready to discuss your point of view.
A well, let them experience it the hard way....
There is so much more in life that you want to do than just being able to walk.
-
Sweden
She is already out of shape to begin with. I'd say she had 15kg over weight when she started
no I'm not... I'm 56kg what is over weight in this!!
and just to recall your thread in old forum is not to ask for more unbiased advice :)
Machine
oh good I was worry that I banned from old forum because I asked about bicycle exercise..
BTW I didn't mention on old forum that I'm gonna do the both parts.. so again what did you say they banned me for?
Leo
I don't think I'll post any pics of me anymore except my x-ray..
however shorty took many pics of himself while he's standing, bending his knee and walking
I really want to post his pictures just to proof that the result and complications of ll surgery is vary from one person to another
me and shorty did the same surgery with same doctor, however he was able to left his leg from the 2nd day, he is bending his knee 85, he can stand for 5min, and he came to my room today by walking on his legs !!!
I think he did better than a "regular" LL patient can do " when I said regular I mean who did one part" ...
anyway I'll see if he will let me post his pics ..
-
I just don't understand the naysayers. Diso is fine and so Shorty. Why are you guys so adamant that this technique is inferior or will cause harm. I believe most doctors know what they're doing, unless that doctor never went to medical school.
Keep up that smile Diso, you're almost there. Some pics would be nice, just the gears and legs. I don't think you're overweight, these guys are perfectionists.
-
An_Apple_A_Day
what will happen if I speed up the consolidation? I didn't see any problem associate with that
I'm no surgeon or doctor so it is only conjecture with which I say this; but, if your bones are regenerating fast and you need to turn quickly to avoid premature consolidation you are going to torture your soft tissues. Your bones don't need to stretch and be supply like everything else, the more and more one reads the more one learns LL is actually a case of looking after your muscles and nerves. There are lots of trick to get bone non union to sort it self out. Very little for nerve damage or torn muscle/tendon issues.
Just look after yourself. You are a long time living. You want it to be comfortable and happy, not messed up from rushing these few months of your life.
Take care.
-
The thread on old forum is out of track, I know.
There are several reasons why nobody should ever go with the monorails. If all LL-veterans say never to go with monorails there MUST be a reason behind it!
I cheer for you Disobedient, I really do.
It doesn't matter if you're a little overweight right now. Your body heals better that way.
We don't need to discuss your weight if you don't want to. For the future: Do a fat% measurement with a personal trainer and you'll see how you are doing.
It has nothing to do with being perfect.
Don't be shy to post pictures, this is the first out in the open quadrilateral LL-diary so far. What is the point of starting it if you're going to leave it like many others often do?
Didn't you wish there was such a diary before you left?
Ask shorty to start a diary too.
Regarding him standing. Ummm, well if his doctor tells him to...... I just know he really shouldn't do that but it's his decision.
I lived in India with a guy who did cross-lengthening. He could absolutely not stand up with the monorail on his femur.
Another guys femur totally shattered when he was carried up the stairs.
I really hope you will make this journey! And ask Shorty to at least say he is doing fine.
-
Please continue your diary. Everyone that does something that others don't understand or do not approve of will be criticized and get shots thrown at them. Don't mind those people. This diary is your chance to show everyone who doubted you that they were wrong in doing so. Please keep writing. I wish you lots of luck with your LL journey!
-
I just don't understand the naysayers. Diso is fine and so Shorty. Why are you guys so adamant that this technique is inferior or will cause harm. I believe most doctors know what they're doing, unless that doctor never went to medical school.
Keep up that smile Diso, you're almost there. Some pics would be nice, just the gears and legs. I don't think you're overweight, these guys are perfectionists.
I am actually starting to think that although monorail is not that good that Dr Sarin’s carelessness made it look worse than it really is.
Most of the guys who are very concerned are from Dr Sarin’s guest house or members who read stories about guys who did monorail with Dr Sarin.
DSB has already achived 5cm if I am right AND with 4 broken ones.
She is in much better hands in terms of care. She appears to be getting adjustment operations as soon as a potential issue is noticed.
Now it urns out there is a guy who is doing Exactly the thing as DSB and is also in good spirits with no major issues to date.
I am starting to think that Dr Sarin’s failures with monorails had more to do with his actions than the device itself.
LETS NOT FORGET THAT THE MOST COMMON OR FAMOUS STORY ABOUT MONORAILS ON FEMUR THAT TURNED OUT TO BE A HUGE FAILURE WAS OF A CARAZY+6.
CRAZY+6 TRIED TO GAIN 4 INCHES WITH MONORAILS BEFORE RECOVERYING FROM ANOTHER SURGERY WHERE HE GAINED SOMETHING LIKE 3+ INCHES.
We also saw pictures of a guy who had been butchered alife by Sarin …. Haha aha ha h haa
The question is…Are monorails really that bad or were they in Dr Sarin’s careless hands
How many ppl will never do externals because of Captain America’s bent illizarov fames?
Who was bad? … the frames or the doctor??..
-
Monorails is that bad. I know of several stories from china and other parts from India.
America's device got bent bc he had very muscular legs. If the device were stronger I'm not sure that would happen.
There is so much more around monorails than just pulling the bones apart.
-
I agree with Adriano, maybe Sarin ruined this method for everyone, also, no one in their right mind would do 4 inches, that's just too greedy. People who's greedy will always run into obstacles.
I compare LL doctors to artists, a good artist will make any canvas look good with his brushes. The bad artist will ruin the canvas by overdoing or under-doing.
To Sweden, I thought you had your LL in Sweden, am I wrong? When did you witness the Monorail derailed? Why don't you tell us a few stories about how bad the Monorail system really is.
-
There's nothing inherently wrong with monorail fixators. The Mitkovic fixator is a monorail design and I've known people who've had LL successfully with it. Jungle could stand with them. Bianca could walk with them.
-
A patients femur broke: (http://i.imgur.com/lHMWuXt.jpg)
Scars from another monorail patient: (http://i.imgur.com/JOZPJOe.jpg)
Another patient suddenly got osteoporosis and had to change the monorail to an Ilizarov.
The muscles in your thighs get seriously damaged. Some patient report very sensitive knees and they can never go for a run, only slightly jogging.
Another reports from totally loss of feeling in the lower leg. Nerve damage. Got only slightly better after 2 years.
There is much more. The device can fail in a couple of ways, higher risk of infection, extreme muscle atrophy, way longer recovery time due to not being able to move, extremely painful physical therapy(sometimes my roommate screamed so loud the entire building got the shivers)
But if you're satisfied of only being able to have a very quiet life where you only exist then take the chance.
I want to do more than just walking around.
-
Disobedient, they're right when they say that what's the point of starting a diary and then leaving it. You're a pioneer in a way 'cause you're the first quadrilateral diary that has ever been posted. The whole CLL community is interested in yours as well as shorty's story. I send you my best vibes!
-
Disobedient, they're right when they say that what's the point of starting a diary and then leaving it. You're a pioneer in a way 'cause you're the first quadrilateral diary that has ever been posted. The whole CLL community is interested in yours as well as shorty's story. I send you my best vibes!
Agreed 100%. Don't get discouraged, keep us all informed. We're interested in your LL experience!
-
I would like to see you continue this post too Diso.
Thanks Sweden for the Monorail pics.
-
Ignore the haters Diso!! Be proud and get through this, we're all rooting for you!
-
hello everyone
I do appreciate your continued support :)
anyway I just take permission from shorty to upload his photos
(https://imagizer.imageshack.us/v2/240x180q90/845/ng7x.jpg)
hospital room, he stayed here around 10days
(https://imagizer.imageshack.us/v2/240x180q90/42/h6h1.jpg)
(https://imagizer.imageshack.us/v2/240x180q90/27/vj1s.jpg)
this is him bending his knee in 2nd day after the operation
(https://imagizer.imageshack.us/v2/240x180q90/818/695l.jpg)
in the hotel after removing the dressing
(https://imagizer.imageshack.us/v2/240x180q90/203/22cl.jpg)
(https://imagizer.imageshack.us/v2/240x320q90/707/u2q3.jpg)
and watch him standing 2 days ago
-
Thanks for the update, Disobedient.
I consider myself a daredevil, but I know I couldn't ever do all four segments at once. It's taken me years just to consider doing my tibias. I hope it goes well for you guys. Remember to be very careful though and don't overdo it by trying to lengthen too fast or trying to walk all over the place.
-
Thanks Diso for the pics.
Btw, how many cm have you managed to distract in each section? Any pain, normally after 5 cm you would feel it.
Something to cheer you up, here's my pet rabbit, I nicknamed him "Tiny".
-
Disobedient,
I hope everything goes well, I will pray for you :)
-
diso,
You know if they also apply a male penis catheter after the operation? BTW, how hard/easy is to change clothes -- especially underwear -- with these frames on? Please, tell shorty to start a diary, too. I'm sure the moderator of this forum can start one for him if he wants.
-
diso,
You know if they also apply a male penis catheter after the operation? BTW, how hard/easy is to change clothes -- especially underwear -- with these frames on? Please, tell shorty to start a diary, too. I'm sure the moderator of this forum can start one for him if he wants.
Yes u will have catheter.
And easy for me to wear a short not underwear.
Anyway I will not do a diary and maybe I will do after the final result. if u have any questions I will be happy to reply.
- Today I just start distraction ;) and I still feel OK. :)
Finally, I would say every one's body different don't compare ur self to me.
many people they do the same surgery with same doctor but with different outcome.
-
Cheers Shorty!
Are you standing without a walker!? That's amazing! I can only tily stand with an Ilizarov on my tibias. Props bud!
;D
Shorty whats your time frame for things? Lengthening amount/frame removal/crutch walking/walking etc?
-
Cheers Shorty!
Are you standing without a walker!? That's amazing! I can only tily stand with an Ilizarov on my tibias. Props bud!
;D
Shorty whats your time frame for things? Lengthening amount/frame removal/crutch walking/walking etc?
Yes .. confirm with my friend Dis,,, I STAND & WALK for 5 minutes with no help and go to her room ... but after a while I feel tired I ask for help
I wont go past 8 Cm ,, but if things go ok I will do 10
I really have a good supervision
:)
-
Machineoh good I was worry that I banned from old forum because I asked about bicycle exercise..BTW I didn't mention on old forum that I'm gonna do the both parts.. so again what did you say they banned me for?
Diso you were banned because they dont want you to encourage ruining one's life .
I m really sorry for you . I dont want you to feel low , just trying to help.
If you made up your mind then you better be ready and strong in future miss.
-
Really impressive stuff Shorty! ;D
May I ask why you chose to go with the quad monorails over a more standard Ilizarov as 8cm is achievable with both?
-
I wont go past 8 Cm ,, but if things go ok I will do 10
I really have a good supervision
:)
Let me understand this, 8 or 10 cm for both femur and tibia or just one section?
-
Really impressive stuff Shorty! ;D
May I ask why you chose to go with the quad monorails over a more standard Ilizarov as 8cm is achievable with both?
I saw Dis & she is doing good so far, another thing I don't want any thing inside my bone and I want the same increase in my both part and do it once .and also fast ,,,just wait the result ;)
-
Let me understand this, 8 or 10 cm for both femur and tibia or just one section?
for both 4 or 5 each part total 8 or 10 ..
-
I hope you are doing fine Disobedient, please don't grow too much.
-
diso,
You know if they also apply a male penis catheter after the operation? BTW, how hard/easy is to change clothes -- especially underwear -- with these frames on? Please, tell shorty to start a diary, too. I'm sure the moderator of this forum can start one for him if he wants.
this pic for u with short
(http://imageshack.com/a/img513/5082/cjyy.jpg)
-
Shorty and 2 Guests are viewing this topic.
is it 2mm effect what make you happy and not sleeping in such a late time :D
Kilokahn
well I guess I'm the daredevil in this situation ..thanks for the advices but this is shorty who is walking,.. for me I just lay on the bed waiting to be taller ::)
BullSurfer
it is a very tiny rabbit , isn't it :)
I'm still 5cm and smth... to be honest I notice that after 5cm the pain decreased.. or maybe because I used to the pain ..
sadboy
thanks sadboy
Leo
if you were a girl I would defiantly recommend Thong or G-string underwear.. however I remember my male Greek teacher was wearing once "thong" underwear so I think you guys have the same types maybe with different name ...
Machine
No this not the reason behind banning me in old forum ,,, cuz I said that I didn't mention doing the 2 parts at the same time ..
I think the reason is because I brought a name of new Dr.. !
Claude
it depends in what do you mean by too much.. I'm planing for 10 or 12cm right now,,
-
is it 2mm effect what make you happy and not sleeping in such a late time :D
:D ;D maybe
-
Diso you should go for 13 cm that's roughly 5 inches.
Diso is it ok if I come and visit you? I'll be in Delhi soon.
-
Lots of Delhi travelers.
I'll be there at the end of this month if the USPS gets my passport back to me in time. lol
-
That’s very correct DSB !!
U got banned bcos u were introducing a new Dr to the forum. While that is on its own not enough to get any one banned, what sealed ur fate is that ur Dr was so much cheaper than what Dr Singari and Apo are charging patients.
Long Story short, u were too much of a risk for his business ventures …. Ha a ah ah aaha a
-
DSB
Can you find out from ur Dr if he can use Precice nails.
If not, ask him when he may be able to do so.
-
BullSurfer
yeah it's ok, are you originally from delhi? or you'll come for LL ?
Adriano
I'll ask him although I know his opinion toward internal method
-
Shorty, great pic with the shorts. How's your pain level so far? Is it worse on tibias or femurs? Are you taking injections or pain medication? How about for sleeping, anything? Good luck and please keep us informed. It'll be nice to get some pics of the facilities, so we can see what it looks like over there.
-
It is 4:50 Am
I still can't sleep..I have to find solution to sleeping issue ..
and I'm still doing my turn .. everything is normal
except that I started to have chest pain and fasten heartbeat but since this feeling is so rare so I don't think there is any thing serious about it..
the other pain that I have is in my toes this is one of the weirdest pain I ever had ! it is not so painful but it is annoying me a lot ,,,
it is funny how I start to list type of pain that I have.. this really make me feel like I'm getting older. .. !!..
-
Shorty, great pic with the shorts. How's your pain level so far? Is it worse on tibias or femurs? Are you taking injections or pain medication? How about for sleeping, anything? Good luck and please keep us informed. It'll be nice to get some pics of the facilities, so we can see what it looks like over there.
thanks
tibia more.. and femur most in pin site..
I just take only pain killer no injections and I feel OK :)
Sleeping is different from day to day sometime I have good sleep but some no .
I am in hotel now with Dis . So what facilities u ask about??
-
hey look at this
http://www.healthkart.com/sv/smart-care-aluminium-folding-walker-with-adj-height-%28915%29/SP-15167?navKey=VRNT-25674
I couldn't find the one that I told you about... it was in http://www.tradus.com
-
hey look at this
http://www.healthkart.com/sv/smart-care-aluminium-folding-walker-with-adj-height-%28915%29/SP-15167?navKey=VRNT-25674
I couldn't find the one that I told you about... it was in http://www.tradus.com
Ok what u think ,, its the same price should we get it online or call the guy ??
-
Hey Dis, I see you posting a lot about methods to increase your consolidation. You probably are but just to make sure if you want to maximize your bone growth you should be taking calcium and vitamin d3 ;D
-
shorty... I'll talk to you later regarding that..BTW lata didn't come today :'( :'( . but they sent to me another one
Hey Dis, I see you posting a lot about methods to increase your consolidation. You probably are but just to make sure if you want to maximize your bone growth you should be taking calcium and vitamin d3 ;D
loool yes I want to speed up my consolidation :D .,,when sweden said try two years to consolidate I started to worry about that a lot although that my Dr said I have good callus ..
I do take calcium and vitamin d3..
how about you, how u doing... ?
-
Diso, im in Delhi, how and and where I can come and visit u. I can do it today. Private message me. Thanks.
-
I'm perfect.
Although had a minor hiccup two days ago when one of my pins just snapped randomly so I had to go back to the hospital and get it replaced.
Fingers crossed for close to 5cm this next x-ray. ::)
-
Hi Bullsurfer
I'll send you msg
I'm perfect.
Although had a minor hiccup two days ago when one of my pins just snapped randomly so I had to go back to the hospital and get it replaced.
Fingers crossed for close to 5cm this next x-ray. ::)
ooh ! well these things can't happen with the monorail ;D..'
congrat in reaching your goal ;).. you will stop at 5cm ? or you will continue to 6cm since you don't suffer from any complication so far,,,
what is your height ?
-
I'm not sure if I will stop at 5cm or continue to 6. Will have to make a decision after the next x-ray.
My starting height is 174cm. 6 will make me an even 180 but I don't want to get hung up on arbitrary numbers especially when I am at risk of ankle issues on both feet and ballerina on my left foot.
-
Delhi is hectic, people and things crowding out the streets. Some ppl are overly helpful, some are out to get you (maybe because Im short, I blame many things on my shortness). One day since arriving in Delhi, hotel where im staying denies my reimbursement for prepaid taxi which was promised to me (ripoff). The taxi I hired for taking me places, took me to his commissioned restaurant, and tried to get me to buy garments which don't have needs for (I know all this from watching BBC scam cities). I didn't even tell you the first scam the moment I landed. Here it is, I was at the airport trying to get to a phone in order to call my hotel, I spotted these red phones lining up, so I thought to myself "yay!". I quickly went over and after queries of how such thing work. I was ready, 1 minute 6 rupees, cool. However, to my surprise the next guy came and ask how much per minute and I heard the word "panch" which means 5 in hindi. I then ask him how come, he gave some bs about differences between landline and mobile number. Ok, no problem, 6 rup ain't bad. I then showed him my hotel number, he dialed but not before turning his name tag to the back and b4 I even noticed his name. Cool, I don't need to know his name. Bring... phones is ringing, wrong number after 3 minutes of what where who how. I looked at him hoping hed forget the charge and redial the correct number to help me out. Nope, he didn't, instead "pay up!" I paid then walked away. I then asked a hot Indian girl fiddling with her ipho near luggage belt, only to realize shes has no local sim, Im an idiot. Anyway, beware of scams if you plan on coming to India or travelling outside your cool corner of the pond bc you can get burn, its not much compare to what we pay back home, but it's just annoying.
If anyone think Im being unfair, hit me up. Even after all the things I mentioned above, I still think Delhi is a good city to come to.
-
What's your height, BullSurfer?
-
RB
I'll repeat the same advice that u gave me once "listen to your body" :)
update us when you'll get your x-ray
Good luck
BTW 174 not short, but 180 cm is so damn good
BullSurfer
lool ;D , it is always funny to read the first impression of Delhi from the foreigner's point of view .. well I was almost in the same situation 3 months ago..
about the ppl yes some of them are extremely helpful .. I remember when I arrived the airport I was almost lost since this is very first time for me to travel alone and I don't know what the steps after I arrive at the airport, however this was an advantage for me too cuz the airport's employees helped me in everything so it turns out that the steps after you arrive at the airport are completely easy:
.
1-follow the passengers who were at your same flight till you feel that you lost
2- find a Customs officer to help you.. ;D I didn't have to wait in custom official " I felt that I'm so lucky to see other ppl standing in very long line while I got one of Customs officer to help me and finish in less that 10min "..
3-ask the same person from where you could purchase Indian sim card
4- buy the sim card and ask the seller from where you could book a cab " obviously he'll ask you about your hotel, and maybe he'll be kind enough to call your hotel and write the address on piece of paper for you..
5- book the cab , they will give you a receipt along with the number of the cab "like for example cab no 9"
6- take the cab give him the receipt and the piece of paper with an address of the your hotel on it..
Delhi is such big city and you'll see different type of things in the street from the ox , bicycle to car... to be honest I hated delhi in my first two weeks in India ! I thought there are multiple things have to be change over here ...
and I remember after I had my consultation in forti and nova... I decided to ride one of these green yellow motor thing to see new Delhi before leaving to Mumbai .. and so I did and in the street I saw a guy hitting small boy by the chair.. I decided then that this country is not for me ..! and I can't live here.. when I went back to hotel I had couple of drink then I decided again that I have to be brave and not wasting anytime so I called Jitendar from nova hospital and I told him that I made up my mind and I'll do LL in Monday after 2days.. :)
welcome to Delhi Bullsurfer
-
Diso,
Can you tell us how you handled accommodation after surgery? Do you have to find it on your own? I mean, your surgeon doesn't have a guess house like doctors from other diaries have? What are the pro's and cons of the hotel? How much is it per day and what's included and what's not? How do you handle your laundry and grocery shopping? Does it have Air Conditioning? And the most important thing -- do you have a caretaker/nurse? If so, how expensive it is. Thank you.
-
Hi leo
Can you tell us how you handled accommodation after surgery? Do you have to find it on your own? I mean, your surgeon doesn't have a guess house like doctors from other diaries have?
No they don't have.. but they search for a hotel according to my budget (1000 INR/day) however I wasn't satisfy with the hotels they showed to me except one of them " Sisley Hotel" but this one cost me around 1400 INR/day.. it was a good hotel though the room is so big, I have a balcony, very close to the hospital.. however I didn't find the staff friendly, the elevator is small so it doesn't fit my wheelchair
so I moved to another hotel called " Le Benz" it's new hotel , the cost is 27000/month , the staff is so friendly, the room is good in general however it is not close to hospital I think 5or8km from hospital,,check it here http://www.booking.com/hotel/in/le-benz.en.html
I have caretaker, and she is the one who is doing my laundry.. I pay her 600 INR/day , however you could find cheaper one I guess,,,
-
Wat diso said is quite right. People can be unfriendly and crappy hotels can be a hassle. Do not trust the pictures you see during booking. Its not just off but way way off. Be prepared.
Diso, youll be in D city for the long haul then? I wish I have a bank to back me up.
-
Hi,
I don’t understand why external device on femur causes knee ROM problems after 1cm?
Is the fixator going through any muscles, arteries, veins, hamstrings, knee joint and hip joint?
Are you able to bend your knee?
Did your Dr. discourage you from doing external femur lengthening?
Did your Dr. explain the risk for monorail on your femur and what exactly is it?
Would you ask this question to your Dr.
Someone who lengthen 4-5cm on the femurs how long is the consolidation altogether with the lengthening?
Drew
-
8cm (4.5cm in tibia- 3.5 femur)
I’m no longer under the average height 8) ! I’m 160-161cm !! I’m a normal emirate girl.. ;D ;D
Oh that’s feel so good.. it’s feel like if you became God and starting to design your body according your desire…
I don’t know how to describe my feeling.. but as soon as they told me it’s 8cm, I fall in love with Dr Rah , India, even these monorail fixator.. I felt that it worth all the pain ..
I’m so proud of myself and my body.. I think I did great job ,,
8cm with no complication no ballerina foot no nerves issue, it’s amazing.. I know that I have problem with knee bending.. But let’s hope that will be solved after removing the frame… My dr said he’ll find solution to my knee bending so I don’t have to worry, and I trust him I’m sure he’ll solve this problem..
I’ll let shorty to take pic of my x-ray then I’ll post it…
Hi drew
I dunno about your question but if you take a look to my x-ray you can tell that the fixator located few mm under the knee joint..
for bending the knee yes I cant bend my knee,,, I reached 45 however when I started the distraction the knee bending starting to be more harder.. right now I'm doing 20 deg..
but I think this is really vary from one person to another, cuz shorty did 90 or 85 deg ..
Did your Dr. discourage you from doing external femur lengthening?
humm he said this will cuz a discomfort
Did your Dr. explain the risk for monorail on your femur and what exactly is it?
on femur no..
Someone who lengthen 4-5cm on the femurs how long is the consolidation altogether with the lengthening?
for 5cm
15days b4 distraction
50 days "distraction phase"
6-8 weeks for consolidation
-
I ma really happy for u :D ;D :D ;D :D
-
Hey Disobedient, you proved me wrong, among others! Congrats on the achievement, and I hope you stay safe. Keep us updated!
-
Hey, you're as tall as me now. Congrats
-
Congratulations and keep on fighting!
-
Congrats Diso! Im still in Delhi btw.
Im conflicted whether I should do LON or Monorail. With monorail I don't know if they let me thru the airport, I don't have 6 months or money for that long.
Getting a phone in India is a pain, one nneeds passport, visa and 2x2 photos. Ridiculous! Good thing though there's a Craigslist equivalent for getting cheap used phones. After a few days of searching in such sites. I realized my S4 is unlocked.
Subway or metro is cheap, less than 50 cents, but once again security is strict. Baggage, purse, backpack check. Long-a**ed line. Since its cheap picture Tokyo metro, the amount of ppl. But im surprised its clean with cc camera in cabin.
Tuk tuk guys will always try to make more money off of you. The amount you see on the meter is not wat you pay, theyll pull out some chart that says this is the correct price. If u ask why, theyll say, "meter not update".
Im excited about becoming taller at the same time worrying how the process gonna turn out.
-
Diso, congratulations! How many days since operation it took you to achieve 8cm and what it's being your rate of distraction for tibias and for femurs?
-
Its nice, but please be careful, don't forget that the difficult part comes after you lengthen :)
And 8 cm is very nice.
-
Diso,
How are you doing?? ??? It's worrying not to hear from you for so long!
-
hey disobedient and shorty .... nice to meet u guys in person ...
well , now i m back home and i m doing fine ...
may be i will come to delhi soon and meet you guys again ... anyway take care and be safe
i m sorry i was little busy , i m sending you the doctor name in pm .
CU
-
Drew,
of course the fixator goes through muscles -- especially the lateral and antterior ones (gluteus medius and quadriceps) and this creates the muscle to assume a shorten position (remain contracted). The quads are the ones the make you straighten your knee, and if this muscle is involuntary activated, then you can't bend you knee. Obvioulsy with lots of physical therapy after frame removal you should be able to recover ROM. However, the longer the frames are on the longer the athrophy will persist. I read that Diso had Knee Manipulation under anesthesia and she woke up with greater pain. BTW, KM is when they knock you out and they forcefully bend and straighten your knee several times to break down the adhesions developed. It is a good technique but of course you're going to be pain (sored) when you wake up. Drew, if you are looking into having CLL I suggest you to read your anatomy, physiology and kinesiology. You can't just go have this procedure and not know what's happening to your body. This is some major s**t and no joke.
-
Manipulation under anesthesia is a terrible idea.
Many have wrecked their knees this way.
-
Drew, if you are looking into having CLL I suggest you to read your anatomy, physiology and kinesiology.
ok.
Drew,
of course the fixator goes through muscles -- especially the lateral and antterior ones (gluteus medius and quadriceps) and this creates the muscle to assume a shorten position (remain contracted). The quads are the ones the make you straighten your knee, and if this muscle is involuntary activated, then you can't bend you knee.
Leonardo2013,
this didn't help.Sorry
I talked to Doctor Yasser he stated that the monorail does not go through the muscles. Now, I realize that while Disobedient is using monorail, but this isn’t true in her case.
-
Drew, then how in the world are they going to get to the bone if they do not go though the muscle? The femur is surrounded by big -- huge -- muscles such as the quads (there's 4) and the Hamstrings (has two heads). Here's two articles you may want to take a look at:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2994627/
http://books.google.com/books?id=yNTED-6REewC&pg=PA680&lpg=PA680&dq=lengthening+femur+muscle+stiffness&source=bl&ots=vaGT_BNpOw&sig=LsZFcULZ-xd74gHdhYAsP5mDvP4&hl=en&sa=X&ei=paC4Up7mLKLmsASnwoC4Ag&ved=0CFgQ6AEwCDgK#v=onepage&q=lengthening%20femur%20muscle%20stiffness&f=false
-
Drew, then how in the world are they going to get to the bone if they do not go though the muscle? The femur is surrounded by big -- huge -- muscles such as the quads (there's 4) and the Hamstrings (has two heads). Here's two articles
Leonardo2013,
The issue is not with the muscles – obviously the monorail go through the muscles.
Except that I trust Doctors in general and Doctor Yasser said that the monorail didn’t go through the muscles.
-
Drew, just to give you my two cents. Be careful of Dr Yasser Elbatrawy from Egypt. I've followed him for years and at some point I considered him as one of my options but I read some bad reviews of him from former patients that state he painted everything wine and roses and wasn't like that after they had surgery. So, I suggest you to check out http://www.shortsupport.org/Health/Leg-Lengthening/hospitals.html for more info. There were diaries of Elbatrawys' patients in old forums but unfortunately they no longer exist. Anyways, good luck and inform yourself very well.
-
Hello girl,
How is everything with you? Have you stopped the distraction process? I finally did it, tomorrow the tugging begins. Pain is sometimes almost unbearable even with painkillers. Pains so bad I had thoughts of removing the frames and give up. Well, that passed but not without sleepless nights. Im bowing to anyone who does quad any day.
Monorail not going thru muscles in femur? Impossible. I studied anatomy for art, our femur is wrapped in layers of muscles.
-
I think a little bit of unwrapping goes on during the surgery so they can get a clean shot at the femur with the pins.
-
We haven't heard from you in awhile Disobedient.
How are you doing?
-
Is she dead?
-
Is she dead?
Possibly, or maybe so many complications she doesn't want to post about it anymore. I hope not, but this was risky and ill-advised surgery.
-
I didn’t die .. at least not yet..
I know it has been long time since my last post.. but I was so lazy and every day I find to myself excuse to delay posting ,like ,I’ll post when I’ll do my next x-ray and so on..
As a desert creature I really think the winter season is for nothing but sleeping.. and it’s bother me a lot that I can’t do that “sleeping” in a right way ! .. well you can’t sleep Very well when you got four monorail devices attached with your legs .. don't do LL in the winter! It sucks ..I really should have done it in May..!
Anyway so what is my latest news
Firstly: I reached 11cm (5.5cm in tibia, 5.3in femur), Dr. Rah told me to stop lengthening so I can improve my chance to recover very well in terms of improving the range of motion…
So I did.. I really wanted to stop at 13cm but 11cm is not too bad, and by that I became 163cm-164cm..
Now I’ll list the other bad news that I got
Firstly.. I have a misalignment again in my femur.. Dr rah said it’s just 10% so I don’t have to worry.. but I insist that I want it to be adjusted , so he said he’ll do that after few weeks “ till my bone consolidate little bit..”
Secondly, I have ballerina foot, it’s really funny that I was proud of myself that I don’t have it, but when machine visited me he stated that I do have ballerinafoot..! it was a shock to me …cause when I set my heels still touch the floor....
I was really devastated to know that.. Especially when I confirmed it with my dr “but according to him this problem will start to disappear after I’ll start standing”
Funny thing that I asked my PT if I have ballerinafoot and he said NO I don’t have.. Indian PT know nothing really.!!
I’m so annoyed that I’m not allowed to stand..! good thing that the frame will be remove after 6 weeks
What else …? I dunno.. seeing shorty doing better than me “in term of mobility and less complications that he has” makes me feel bad about myself…
It is almost 3 months since I did LL.. I really want to walk and stand again.. being in bed for 3 months is something you really don’t want to experience in your life..
But yeah I’m 164cm
-
Diso, I'm glad to hear you're ok. For a moment it crossed my mind that you had ditched us for good, but good thing you didn't. Now I can hardly wait to hear (read) how your consolidation phase is going to be. Congratulations on your achievemnt -- I think 11cm is more than a very good amount. You say you don't recommend to do CLL in the winter and rather in May. But my question is I thought the winter (Nov-Feb) in India was better 'cause it ain't that hot and there's less mosquitoes than in the Summer or Spring. What do you think? I mean, I'm still concerned about Malaria. Did you use any creams or repellents? Good luck from here on and please keep us posted and tell Shorty to stop by the forum and drop a line, too.
-
Hi Leo
yes there are less mosquitoes in winter ..but if you'll stay in your room for 24 hours, so I don't think you have to worry about mosquitoes
and when you go out u could use mosquito repellent spray ... that's what I do
-
That's great to hear that you are doing well Disobedient!
I think we all expected you to have some complications and if what you have now is the worst of it then I would say you have been pretty lucky.
11cm is an awesome gain! Can you post some pics when you have time?
Good luck on the rest of your recovery! :)
-
I don't take photos.. and there is nothing to show since I'm just laying in the bed almost whole the day...
this pic I took it with my laptop 10 days ago..
(http://oi39.tinypic.com/2e0jk1l.jpg)
the scar is kind of soo bad... but I'll got surgery to remove them after one year I have to save sm money first :D
-
posting this pic make feel that I'm still short :-\ :-X ! ...
Maybe if I lost sm kg and toned my muscle my legs will look long ..
-
this is my last x-ray... note this x-ray has been taken before the operation
(http://i.picresize.com/images/2013/11/22/vDH7M.jpg)
(http://i.picresize.com/images/2013/11/22/FUwJf.jpg)
(http://i.picresize.com/images/2013/11/22/4XycT.jpg)
It seems your fibula bones are not attached in any way to your tibiae. Has this caused you any problems while lengthening?
-
posting this pic make feel that I'm still short :-\ :-X ! ...
Maybe if I lost sm kg and toned my muscle my legs will look long ..
Maybe the colour of the picture looks a bit washed-out due to your laptop, but your legs look fine.
-
Glad to see you alive.
If your doctor remove everything without putting in 4 IMnails or metal plates you will break all of your bones again when trying to stand up.
Just saying.
If he doesn't do that you have to wear the rails for another 6-7 months. If you don't stand up or walk in this period you will be permanently crippled.
Congratulations to 11cm. Be ready for the hard part!
-
posting this pic make feel that I'm still short :-\ :-X ! ...
Maybe if I lost sm kg and toned my muscle my legs will look long ..
I think your legs look fine Disobedient, and you are not short anymore. :) In a few months when the monorails are off you will be able work out your legs and start putting LL behind you. Make sure you eat well so you can build strong bones.
-
Diso,
Don't pay much attention to some of the comments up here, most of them are drones for their dr., just focus on your recovery and home.
Best wishes from fellow LLer.
-
Diso, don't worry about your scars for the moment -- just think about your recovery. Take your time and take it easy in the beginning (do not bear too much weight yet). Good luck and keep updating, please.
-
can u give me the emil of ur doctor? how u got vissa for more than 1 month? do ur dr do ilizarov methode too ?
can u ask and answer me?
-
Glad to see you alive.
If your doctor remove everything without putting in 4 IMnails or metal plates you will break all of your bones again when trying to stand up.
Just saying.
If he doesn't do that you have to wear the rails for another 6-7 months. If you don't stand up or walk in this period you will be permanently crippled.
Congratulations to 11cm. Be ready for the hard part!
U're border line psycho. Just saying. :)
-
U're border line psycho. Just saying. :)
Says someone who doesn't know jack .
This girl is going to face serious problems.
-
Hello Disobedient,
i really do hope you are fine and keep up your positive attitude. Sweden is correct. You need to keep on the rails for at least 4 to 5 months before you have enough new bone to stand up. Unfortunately the bone grows very slowly if you are not moving. Therefore in order to stand up you should consider implanting IM nails into both your femur and tibia. What could help is a swimming pool with a lift. If you have this kind of swimming pool close to you you could start excercising in the water first. The water makes you lighter and you won't break your bones even if not fully consolidated.
Best regards
-
Says someone who doesn't know jack s**t.
This girl is going to face serious problems.
Look, we know u had LL done and i really appreciate u sharing ur experiences and advice.
BUT, recently, u've been nothing but a galore of contradictions. I've said this many many times, there are better ways of conveying a msg, u just happen to suck at it.
Lastly, I'm currently a LL patient. I may not know but i do know Jack.
-
Look, we know u had LL done and i really appreciate u sharing ur experiences and advice.
BUT, recently, u've been nothing but a galore of contradictions. I've said this many many times, there are better ways of conveying a msg, u just happen to suck at it.
Lastly, I'm currently a LL patient. I may not know s**t but i do know Jack.
Then you should know she will break all of her bones if the doctor removes the rails now.
I know how I wrote it......
-
Disobedient:
Hope you’re doing well
A man who wore a monorail for a total of six months to be 6cm taller, and finally after the removal his femurs snapped immediately… http://www.shortsupport.org/Health/Leg-Lengthening/armenia.html
I think this is unlikely to happen to you if you check your x-rays to be sure your bones are 100% consolidated.
-
can u give me the emil of ur doctor? how u got vissa for more than 1 month? do ur dr do ilizarov methode too ?
can u ask and answer me?
Here is the email address ( jitendar.pariyani@novaspecialtysurgery.com )
-
Diso,
Everyone's body is different and no one can predict how good/bad one's healing ability will be like. Just wait and see how your callus starts to form when you get your upcoming x-rays and definitely do not remove your rails until you're sure the density of your bones is thick enough to support your weight. Good luck!
-
Stay focus Diso -)
Be careful about your callus, you should post your Xrays so people who did LL can give you some feedbacks.
Hope you dont feel too much pain.
-
Hi
Im Ant from old forum . I was butchered in india, maybe you read my diary??
You will be totally fine in time. Do not have internal rods fitted as the trauma of the extra surgery is bad news. Keep the monorail fixators on until consolidation. I don't like the way Sweden keeps saying your going to be crippled. You will be totally fine in time. I can now walk near 100% perfect and Ive done 6 inches. Your muscles will get realy tight but just push through it. Once the frames are removed you will regain flexibility very fast. Ye it will take several months to walk decent but you will do for sure. Just keep the lengthening at a steady amount per day
-
she has already stopped lengthenning.
she did 11cm
-
Hi
Im Ant from old forum . . I can now walk near 100% perfect and Ive done 6 inches.
how did u kengthen ur femurs?
and how much did u lengthen them?
and who was ur Dr?
-
Hi
Im Ant from old forum . I was butchered in india, maybe you read my diary??
You will be totally fine in time. Do not have internal rods fitted as the trauma of the extra surgery is bad news. Keep the monorail fixators on until consolidation. I don't like the way Sweden keeps saying your going to be crippled. You will be totally fine in time. I can now walk near 100% perfect and Ive done 6 inches. Your muscles will get realy tight but just push through it. Once the frames are removed you will regain flexibility very fast. Ye it will take several months to walk decent but you will do for sure. Just keep the lengthening at a steady amount per day
Hey Ant,
Were you the body-builder who went to India for LL and went back home with the frame to do the extraction? Afterward, your doctor stopped replying?
I think I have read your diary while I was in India. You should copy and paste your diary here so people can understand about your experience.
I almost felt sorry for you. Are you fine now? Sprint, jump, and no pain, etc.? 6 inches is a great achievement. Congratulation.
-
Hey Ant,
Were you the body-builder who went to India for LL and went back home with the frame to do the extraction? Afterward, your doctor stopped replying?
I think I have read your diary while I was in India. You should copy and paste your diary here so people can understand about your experience.
I almost felt sorry for you. Are you fine now? Sprint, jump, and no pain, etc.? 6 inches is a great achievement. Congratulation.
yes that's me.
I can walk, no problem. Bending down is fine. Ankles are fine now. Only problem I have is I cant run because I still have broken metal in my legs. Once that's out I will be bale to run. I can jog a little on a treadmill
-
how did u kengthen ur femurs?
and how much did u lengthen them?
and who was ur Dr?
I lengthened femurs in Serbia by mitkovic
total length was something like 6 cm and it took around 6.5 months from the first surgery to fixator removal. walking became painless around 1 month post frame removal
-
Only problem I have is I cant run because I still have broken metal in my legs. Once that's out I will be bale to run. I can jog a little on a treadmill
Hi ant,
I’ve read you diary, about the Doctor adding a fixator on your tibia, for partial weight bearing after the lengthening phase.
Was there a specific reason the doctor inserted the nail?
I also wanted ask you about whether your preference is external or LON?
-
yes that's me.
I can walk, no problem. Bending down is fine. Ankles are fine now. Only problem I have is I cant run because I still have broken metal in my legs. Once that's out I will be bale to run. I can jog a little on a treadmill
Hey Ant. I'm very glad that you are fine. I assume that you are close to 5'10 now. It must be a great feeling after all the pain and suffering.
-
Yes its a great feeling. Starting to rebuild my life a little now as I was out of action for a long time. Yeah about 5ft 10.5 Measure around 5ft 10 late at night after a full day so not to much shrinking aswell. With shoes on im about 5ft 11 which feels amazing but god damn some people are still way taller than me,lol.
Would I do it again, without a doubt I would. 3-4 years of crap and now I can spend another 40 years hopefully enjoying it a little. I do know that with time though that you can heal to a reasonable degree no matter how many complication you have along the way.
Tried to convince the mrs to let me do another 2 " this summer but no chance will she let me. Ive now got a little boy through IVF treatment and she is pregnant again through Ivf. Its nice knowing I can be there for her a little now. For a long time I believed I was proper f**ked. I can remember a time I could even feel my legs and move them. I had a dr tell me I was going to be in a wheelchair for life. This is 2 fingers upto him and 2 fingers (both hands) upto the dckhead surgeon from India called Dr Bajaj
-
I think you have a good height now, and family is much more important than being really tall (i dont know if it even matters).
I followed your diary so im glad now everything is ok.
-
Diso,
I'm glad Ant stopped by to post his experience. You will definitely heal and live a normal life and enjoy your new height but like Ant says it might take you some time -- maybe more than what you estimate. Best vibes to you and please keep us updated.
-
Hey Diso,
Still doing ok? I never thought LL is so painful until im in such position, I sleep like 4 hrs a night, 5 if its a good night . I despise those with big money and easy gain but still admire the courage.
-
Hello All
there is nothing new except that the pain is less.. I think I'll have my next x-ray after 5-6days...
Tall
I don’t think there is anything wrong with my fibula, but I’ll ask my Dr about it
Smallguy
Do you think so!, thanks
Sweden
Yeah as I said before, there will be no nail inside, however, as Dr rah said between 6-10 weeks the new bone will be generated and it will be solid enough to make walk..
Blackhawk
Thanks , I’m trying hard to eat healthy.. and I’m taking sm supplement too..
BullSurfer
Hi, I’m doing fine.. The pain dropped significantly now it’s something around 3- 4/10
Don’t worry as soon as you’ll finish the distraction, you’ll feel much better..
So how many cm did you lengthen so far?
About the sleeping I did suffer from the same problem and it seems nothing could help ..
I was planning not take sleeping pills in the beginning.. but then I decided to take them hopefully it could help me.. will it does “just in the first few days” but then things becoming worse,,, since I “feel” that these pills make you feel so tired and so sleepy BUT u still can’t sleep …
But again don’t worry you’ll be fine as soon as you’ll stop distraction..
And it is funny how did you mention about those with “big money and easy gain” since I’m pretty sure you’re staying right now in a country where its people considering you one of those because you got CLL
Tikal
I had tourist visa for 3 months, and it expired.. I submitted request to change into medical and extended it, and I’ll get the answer in 25th /Jan
About the ilizrov, I don’t think so, but I’ll ask him ..
Mime
Good Idea about exercising in swimming pool, I’ll see how could I do that after removing the frame
I’m not supposed to standing right now anyway, even though I still have those rails…
Hi Drew
As far from what I knew carig46 started to walk right away after removing the rails,, so he didn’t wait till his bones heal “ I mean he should wait at least 2 weeks after removing the monorails, since there will be holes in the bone “
Leo
No I’m not worrying a lot about the scars, I know that I could get rid of them by surgery. What I’m really worry about right now is knee bending .. it really hard on all aspects losing the ability to bend your knee… sometimes I have some thoughts to have a surgery in my knee that make me able to bend my knee again,,, but I’m waiting for dr. and what he gonna do after removing the frame since he promised that he found/will find solution for that …
Thanks for keeping encourage me Leo, I really appreciate it..
Claude
There is pain… but not as much as it was in distraction phase… I’ll post the x-ray in next reply…
Hi Ant
Hope your wife, and baby Luca doing well
I really appreciate your comment. and I just read your diary yesterday , despite that I already read your comment here that you’re doing fine, but I was worry about your condition with every new update you were giving …
Dr. Mitkovic is a very experienced limb lengthening doctor.. and it makes me feel much better knowing that he used external method only “monorail” in your femurs without causing any serious complications ..but how about the knee bending ?
I remember that your wife wrote something about having problem in bending your knee, how did overcome this problem?
And in my opinion your height is just perfect you don’t need these two more inches …
-
This is my last x-ray ( I took it 3 weeks ago)
(http://s24.postimg.org/d4hvwmoed/image.gif)
(http://s28.postimg.org/9kj15622l/image.jpg)
(http://s30.postimg.org/dify5fklt/image.jpg)
(http://s13.postimg.org/h3gc90x87/image.gif)
-
Hi im glad you are ok -)
Mmm your tibias seem ok but your femurs seem not aligned, particularly the right one.
Sorry to tell you that but 6 weeks seems like total BS to me.
Do you have someone to help you where you are or in case you need something ?
Be careful (ah ah i must talk like if i was your mother :D)
Stay strong Diso
-
They'll heal curved, but as long as the mechanical and anatomical axes are okay I'm not sure how much that will matter.
The right leg's femur gap is 1cm larger than the left. Was this intentional because of uneven femurs at the start?
-
Oh dear lord in heaven!!
I'm thinking of becoming religious just to pray for you girl.
There is no chance in this universe that you can weight bear in 10 weeks.
Even some patients with rods inside their legs break the rod after a full year.
I really hope nothing bad happens to you and if it would, then please write about it in here so future patients can benefit from it.
I have to stop reading this. I'm having trouble sleeping bc of it..... :-X
I'm seeing pictures in front of me where you try to stand and one bone snap so you fall and hitting the ground makes the rest of your bones to break. I'm sorry but it's just so horrific!
I hope I don't get the chance to say: I told you so....
-
Hi Claude,
I mentioned about the misalignment in the previous post, and how Dr Rah said he'll fix it within few weeks ..
Is my callus so bad? I think my callus in tibia is pretty good, I'll do next x-ray in few days and I'll post it ,maybe in these 3 weeks I develop good consolidation ..
I have caretaker here who stay with me for 12h..
and yeah you sound just like if you was my mother ::)
BTW she doesn't know that I had LL 8) , but she keeps asking me to be careful and stay healthy , and funny thing last time I spoke to her via Skype she asked me to stand up to see my height :-X (I never mentioned to anyone that I'll do LL) but OMG mom is much better than god she can sense what I did even though I'm miles away from her.
Medium Drink Of Water
you're right about the left femur but it is actually 6mm longer, that's is why I stopped distraction for all parts except the left femur I did 1mm for 6 days...
about your first two sentences I'm not sure if I get it right , how did you assume that the mechanical and anatomical axes are okay?
if these are the mechanical and anatomical axes that you mentioned
(http://andreacollo.files.wordpress.com/2012/07/axis_knee.png)
then I guess mine is totally not okay
I was planning to post my x-ray in you thread to ask you ;D but since you're here what do you think about my callus, note I took this xray 3 weeks ago ?
Sweden
Did I look so tall in your dreams ;D
I don't think my callus is so bad ! and for sure I think I'll post any thing important will happen ..
But if my dr think that now is the right time to remove the frame I'll do it.. I wanna to get rid off these frames as soon as possible
the thing is that I think I spent enough time with the frame about 3months with 8weeks more this is approximately 5 months, many ppl removed their frame after 6 months.. Also I'm not planing to stand or walk a lot.. I'll do few steps using the walker and I'll stand for just few min using the walker again so I don't think I'll break my bones if i do so ..
-
Hey Diso,
Sometimes belief will trump everything. Just focus on positive aspect and be cautious, this will carry you through.
When I said big money and easy gain I meant 60k for Paley or 45k for internal nails. Those people are treated like kings and doctor's butt will turn for them to kick when they feel pain.
-
I wasn't saying the axes are fine, I was saying maybe they're fine. Just because the bone is curved doesn't mean the axes are bad. The whole femur needs to be seen to calculate them, and the top isn't in the x-rays.
-
disasters occur when every1 is optimistic and no one points out what is realisticly likely to happen.
First of all, Your Dr is telling you what you want to hear and not what you should hear.
1) there is no way you will be weight bearing in 10 weeks!!!
2) it is very obvious that the femur on the right hand side of your x-rays is out of line. yes bones (femurs) are naturally curved but yours is way out of the centre of gravity. The bone is going to snap/break under pressure when carrying weight.
Unless the newly formed bone thickens to about 150% of the thickness of the rest of the bone then it is all going to end one way my friend.
3) While you may be light weight and may get away with the bone snapping there is another obvious problem that's going to occur with the femur being at an extended angle to the tibia. Yes..u guess right my friend. You are going to have knee pain and or extremely early/ premature arthritis.
while time, money and height r an important part of you life right now it wont be long before you suffer from the decisions you have made about ur LL.
Is it just me who thinks her femurs where cut too the knee??
I think this is the reason why her femur is mis-alighned.
Didn't your Dr know that the femur consolidates faster when cut high up the thigh??
-
Ya mama she knows everything 8)
So when is he going to fix the misalignment ?
Yeah 6-10 weeks is BS, i think everyone agrees.
Being disobedient is ok sometimes but not always cutie ::)
I would advise you to be suspicious about your doc.
BE CAREFUL
-
disasters occur when every1 is optimistic and no one points out what is realisticly likely to happen.
First of all, Your Dr is telling you what you want to hear and not what you should hear.
1) there is no way you will be weight bearing in 10 weeks!!!
2) it is very obvious that the femur on the right hand side of your x-rays is out of line. yes bones (femurs) are naturally curved but yours is way out of the centre of gravity. The bone is going to snap/break under pressure when carrying weight.
Unless the newly formed bone thickens to about 150% of the thickness of the rest of the bone then it is all going to end one way my friend.
3) While you may be light weight and may get away with the bone snapping there is another obvious problem that's going to occur with the femur being at an extended angle to the tibia. Yes..u guess right my friend. You are going to have knee pain and or extremely early/ premature arthritis.
while time, money and height r an important part of you life right now it wont be long before you suffer from the decisions you have made about ur LL.
Is it just me who thinks her femurs where cut too the knee??
I think this is the reason why her femur is mis-alighned.
Didn't your Dr know that the femur consolidates faster when cut high up the thigh??
I must admit I was also surprised about the low cut of the femur bone...
-
Her knee has been floating in her legs. Scary :-X
It's been a year since I did my first surgery and I still can't straighten my legs fully as one should be able to.
It will take much longer time for Diso :-\
-
Diso,
I agree with Claude your tibias seem fine (you can even see some callus starting to form there) but your femurs seem slightly misaligned -- definitely talk to your doctor about it. As far as your knee ROM (range of motion), wait until you get your frames remove before you start to worry about it. The pins going through your thighs are the ones creating the tension/contracture of your knee extensors (quadriceps) but once the rails come off and you start physical therapy you will be normal again. I haven't had CLL yet, but I studied PT, so there's my two cents to you. Stay strong!
BTW, read this article about femoral lengthening and knee contracture:
http://www.ncbi.nlm.nih.gov/pubmed/8156696
-
A lot of decent advice in this thread. That's what this new forum needs to be about, cold heart truths and not a kind of fairy tale worls that old forum became. I knew people personally who were having complications and old forum was altering diaries to suit his money making schemes
-
Disobedient, if you are able to get in a wheelchair and have someone drive you somewhere, I think it would be prudent to look for other orthopedic surgeons in the area and get professional advice from an unbiased perspective. An orthopedic surgeon with no financial involvement in your legs will be more likely to give you the most honest advice. Most people here including myself think that your doctor is telling you what you want to hear as far as when he says you will be able to walk again. Because the advice of many on this board goes against what your doctor is telling you, getting that third party advice from an orthopedic professional will be to your benefit.
-
Great advice Kilokahn, please listen Diso, i am your Father 8)
You could avoid a year (at least) of complications.
Come on >:( (trying to look scary -)
-
Hi Disobedient
In the meantime, look at this video - this might help you out.
Limb lengthening Physical Therapy Exercises – Femur (Thigh bone)
http://www.youtube.com/watch?v=3MqGHcIMFfw
-
Hi
There is no thing wrong in getting a second doctor's opinion, as a matter of fact I'm working in that right now, but I'll do my next x-ray in Sat, then I'll email them with my x-ray, I'm considering email " Dr. Paley , mitkovic, Guichet, and some other doctors "..
For the misalignment thing, I'm not so worry about that, cuz I had it before and Dr rah fix it, so he can fix it this time too.
Leo, I checked the link, and I hope my ROM gonna be better, but there is smth in the study they mentioned that there is an improvement during consolidation phase which I'm not noticing in my case,.. but lets hope after removing the frame everything will be better...
drew,, wow the patients in video have good mobility and flexible..thanks drew it will absolutely help
-
Yeah get a second opinion. Please keep us informed.
And what about your living conditions there ?
Stay strong 8)
-
Yeah get a second opinion. Please keep us informed.
And what about your living conditions there ?
Stay strong 8)
I'm staying in hotel..no drama as it is in sarin guest house.. mmm I would say everything is good.. the weather is bit cold... I have care taker who helped me almost in everything ;D I start to be really lazy..the food is not bad but there is NO STEAK :P ..
however being in same room for three months is A REAL NIGHTMARE .. funny thing I was just telling shorty that everything all right and the time pass quickly so he can handle that too.. which shows that I seem start to have some mentality problem lol...
-
How much are you paying your caretaker if you don't mind me asking?
-
How much are you paying your caretaker if you don't mind me asking?
600 INR/day
you can find with 5000-10000 INR/month..
-
How much are you paying your caretaker if you don't mind me asking?
But if you will stay at hotel you could let the hotel staff help you , no need for caretaker
that what shorty do.. and obviously I cant do that since I need a woman caretaker..
-
ah ah STEAKS -)
Well you have to stay strong, maybe it would have been better if you were with another girl, have you tried finding a mate ?
What do you do ? Do you read maybe ?
Is is that cold or is it because it is warm in your country ?
Eating well is very important for your recovery.
Ah ah i really sound like if i was your mama mmm maybe i am your mama ?
Just kidding dont be scared :P
-
Good deal.
-
Always good to hear from you. Why is Shorty so quiet?
-
Diso,
Let's don't forget that your situation is different than others and so will be your recovery. You had quadrilateral lengthening and there's no study or previous patient to compare their results/progress with yours. Your knee ROM is affected primarily by the femoral frames but the tibial frames also play some role here since most of the key leg muscles affected have their atttachment at the knee. Your ROM will come back, just have patience and wait until frame removal. BTW, how your pain level now? Has it changed since you stopped lengthening? Are you taking any pain meds? How many cms is Shorty doing? Stay Strong!!!
-
Hey Disobedient,
We haven't heard from you in awhile and hope you are doing well. How is everything?
-
Hi all, it has been a while since my last post ..
I'm still waiting for my Dr to remove the fixator ...
I don't think I cant stand the rails any more..
so what happened in last 20 days?
I had food poisoning..
my back pain is fluctuated sometime it's unbearable, while in someday it totally disappear..
the pin site is still one of my biggest issue that I thought it would be solved after the distraction, but I was totally wrong I'm still suffering from the pain in pin site..
I think my body is getting weak day after day.. due setting in bed for 24h... Poor diet... :-\
my knee bending is around 15 deg
so today I went to have an x-ray.. but I didn't find Dr Rah ( I should have call him b4, but it is my mistake I didn't) anyway I met another orthopedic dr, who checked my x-ray and told me that the callus is good ..
I asked him when I'll remove the fixator ?
he said (((at least)))after 12 weeks !
12 weeks !!! I can’t stay in India for 12 weeks ! I can’t stand the fixator for another 3months! !!! I told him that dr rah said I need from 6-10 week after the distraction and it has been already 7weeks since I stooped the distraction.. so according to dr rah I just need 3 more weeks and he'll remove the fixator.. !
then Dr kumar explained to me the risk of removing the fixator now and whatsoever..
he also showed sm exercise for the knee bending ,AND thanks to him for that..
but spending another 3 months more here in India is not an option for me ! wearing these fixator for 3 months more is a real nightmare I'm not sure that I could stand it anymore,..
I'm physically and mentally exhausted!!
and Definitely I can’t go back home with these fixator..
I'll call Dr rah tmw, and I'll ask him to check my x-ray and to tell me his opinion, to be honest Dr Kumar seems to be very realistic in his expectation more than Dr Rah, but if Dr rah said it's the time to remove the fixator, I'll not wait for a sec to remove them
it seems that I fall in sleep while writing this post..,It was a long day,,,
I'll upload my xray soon and I'll post how did I convert my tourist visa to medical visa in next post ..
.. I need to take rest now.... c u
-
I wouldn't risk it Diso, I know you're itching to get them off but this is for the sake of your legs. If a doctor recommends another 12 weeks based on your x-rays, I wholeheartedly suggest following his advice!
Could you post your latest x-rays for us?
-
Happy to hear from you...3 months seems like a long time BUT think how insignificant 3 months will be to a whole lifetime, it's worth it. I doubt you'll listen since you haven't listened to anyone's advice as of now lol. Takes care. I wish you the best!
-
Hey Dis,
Does your doctor perform internal femur for 8cm? I wouldn't mind coming back to India. It was fun :D
If you want your bones to consolidate more quickly, the cheapest way I can think of is to pump yourself with calcium supplements in the day time after every meal and stronium supplement before you head to sleep. Also, make sure you do some exercising and put a little weight on your legs to bring the blood flow to your bone area.
Don't rush as you are already approaching near the end.
-
Hi all, it has been a while since my last post ..
I'm still waiting for my Dr to remove the fixator ...
I don't think I cant stand the rails any more..
so what happened in last 20 days?
I had food poisoning..
my back pain is fluctuated sometime it's unbearable, while in someday it totally disappear..
the pin site is still one of my biggest issue that I thought it would be solved after the distraction, but I was totally wrong I'm still suffering from the pain in pin site..
I think my body is getting weak day after day.. due setting in bed for 24h... Poor diet... :-\
my knee bending is around 15 deg
so today I went to have an x-ray.. but I didn't find Dr Rah ( I should have call him b4, but it is my mistake I didn't) anyway I met another orthopedic dr, who checked my x-ray and told me that the callus is good ..
I asked him when I'll remove the fixator ?
he said (((at least)))after 12 weeks !
12 weeks !!! I can’t stay in India for 12 weeks ! I can’t stand the fixator for another 3months! !!! I told him that dr rah said I need from 6-10 week after the distraction and it has been already 7weeks since I stooped the distraction.. so according to dr rah I just need 3 more weeks and he'll remove the fixator.. !
then Dr kumar explained to me the risk of removing the fixator now and whatsoever..
he also showed sm exercise for the knee bending ,AND thanks to him for that..
but spending another 3 months more here in India is not an option for me ! wearing these fixator for 3 months more is a real nightmare I'm not sure that I could stand it anymore,..
I'm physically and mentally exhausted!!
and Definitely I can’t go back home with these fixator..
I'll call Dr rah tmw, and I'll ask him to check my x-ray and to tell me his opinion, to be honest Dr Kumar seems to be very realistic in his expectation more than Dr Rah, but if Dr rah said it's the time to remove the fixator, I'll not wait for a sec to remove them
it seems that I fall in sleep while writing this post..,It was a long day,,,
I'll upload my xray soon and I'll post how did I convert my tourist visa to medical visa in next post ..
.. I need to take rest now.... c u
Hi Dis, that's no surprise. The rule of thumb is 1 to 2 months consolidation per centimeter lenghtened. Therefore if you have to wear the frames for 5 months after lenghtening you are at the low end of the expected consolidation t
time. Your expectation was unrealistic and your doctor didn't tell the truth. You should keep a positive attitude now and bite the bullet. Try to figure out what kind of workout you can do in bed. E.g. lie on your stomach and make swimming movements. Do this at least 1 hour per day. The more the better.
Best wishes
-
Diso,
Glad you're fine and thanks for updating us. Don't forget that you've definitely already gone through the worse part (distraction) and now just be strong and hang in there, but like someone previously said 3 months may seem like a long time but it is nothing compared to the rest of the years you will enjoy you're new height once all this ordeal is over. I have to agree with others that your Dr might have mislead you in regards to how long you will have the frames on. We don't know his reason -- maybe financial -- but the important thing is that you're heading in the right direction and are almost there. Diso, could you contact me at my e-mail capichon@hotmail.com. Thank you.
-
I wouldn't risk it. If you get the frames off now and break a bone, you'll have to be in a plaster 3+ months anyways. It's really not worth the risk. Go see more orthos if you can and get their opinions. Perhaps you could even ask Dr. Franz Birkholtz, who kindly answers patient questions on this forum.
-
It's good to hear from you Disobedient. We thought you may have died! ;) I agree with the comments about resting for a few months. The last thing you want to do is try to do something too early and end up hurting yourself and having to spend even more time in bed. You have to rebuild a lot of bone in 6 large bones. It takes time.
-
Diso. U can not stand without a rod inside. Doing so will prolong ur recovery time, I guaranty it. I honestly think U should move to sringari's care home. Pm me if u want the details. I'm suggesting this out of pure concern, no bad intentions here.
-
I just reread ur previous post. Ppl wear the frames up to 10 months doing 8cm and u expect to do this within 10-12 weeks? Sometimes I wonder if u really did adequate research on this procedure. Ur legs will snap and u will be crippled, I reluctantly agree with Sweden on this and u have no one to blame but ur own stupidity. Having courage and having no brain are 2 entirely different things, I hope u're not the latter.
God u're as stubborn and blind as my ex wife.
-
Diso, even if your doctor tells you to he will remove the fixator now, do not do it. If you do that and stand up, it's a certainty that you'll end up with snapped bones. You're worried about 3 months now, how long do you think you'll be unable to move with fixators on you after you've got snapped bones? Tough it out now for a better result in the long run.
-
Diso, are you ok? Did you get your X-rays? Please, give us a quick update.
-
Hi leo
there is no much things to say actually..
I msged Dr rah and he said to wait 6 weeks more ..the callus is good but not good enough to get the frame removed..
so basically I can't do anything now but waiting ..6,12 or 24weeks .. I have to wait , :-\
as I have been lying on my bed for last 5 months, so I developed a very good habit " being so lazy", I didn't contact any other dr yet, everyday I say tww I'll do that, but this tmw never come..
I do sometimes have thoughts of returning home, since I'll have emotional/financial support from my family, I think that is what family for!!
but this would be a big failure for me, returning home with wheel chair will make me looks like I'm not mature enough to make the right decisions .. so I want to save my ass from listening to such a thing.
I have the hard-copy of the x-ray but the soft copy still didn't get it, since the RT didn't know how to save it in my USB .
-
Just reading this thread gives me a realization how CLL is really fraught with physical and psychological challenges that every patient must overcome.
I'm not gonna give you an "I told you so" speech but instead hope that you come out well out of this.
-
Diso,
Hang in there. Wait the time that be necessary until you're sure your bones are dense enough to remove your frames. You definitely don't want to remove them and have a fracture and have to start consolidation all over again. BTW, how is Shorty doing? How many cms is he doing?
-
Diso,
Hang in there. Wait the time that be necessary until you're sure your bones are strong enough to remove your frames. You definitely don't want to remove them and have a fracture and have to start consolidation all over again. BTW, how is Shorty doing? How many cms is he doing?
-
mediocre
thanks for your kind wish
Leo
after the removing the frame I'm not allowed to stand too they will plastered my legs with portable plaster I don't remember its name , this would help me to keep the bones alignment till I got 100% consolidate, then I'll be able to walk and stand again , so I'm not really afraid to break my bones cuz that will not happen since I'm not gonna stand..
shorty achieved something like 5cm, and went back home
-
Diso,
You mean like 2.5cm tibias and 2.5 femurs? Was it the pain or being bed ridden that make him quit? If so, I have to tip my hat to you and tell you Diso that you are a strong woman -- both mentally and physically. Best wishes to you.
P.S. Excuse my expression but It is f@ck up that your Dr mislead you from the beginning making you believe that you would be out of the frames in short time. I guess some Drs do it for the money, don't you think?
-
Diso is strong but Zlatan > Diso, sorry. I hope Diso is not bored. Stay strong like Zlatan.
-
Diso is strong but Zlatan > Diso, sorry. I hope Diso is not bored. Stay strong like Zlatan.
zlatan? seriously what are you talking about?
you need help?
(http://www.jaynestars.com/wp-content/uploads/2010/12/Edison_Chen_mental_patient.jpg)
-
Leo
no, 3 in femur and 2cm in tibia
I don't think it was just because of the pain, he started to have some complications lately, he had misalignment in his left tibia and despite the dr corrected for him, but he wasn't happy with result ..
Also, he got infection in his femur, but I have to say that the dr took care of that, he came to the hotel to clean the pin site by himself, and he was sending the nurse regularly to change the dressing ..
and yeah I do agree with you, and I'm responsible for that too , cuz I believed what I only want to believe.
Claude
who is Zlatan? I never heard of him
-
He's the guy on his avatar, a famous football player.
Claude
who is Zlatan? I never heard of him
-
He's the guy on his avatar, a famous football player.
Wrong Zlatan is the avatar of Sweden :)
zlatan? seriously what are you talking about?
you need help?
Yes please help me dude send me 50KE and some orange juice.
DIso, i wonder how your family would react if you go back to your country, are you a little scared ?
Good luck, kisses.
-
He's the guy on his avatar, a famous football player.
yes but what the hell has Zlatan to do with this thread? Claude you mental case.
-
yes but what the hell has Zlatan to do with this thread? Claude you mental case.
Thanks i know 8), Diso dont disobey Zlatan or you will not have cookies :(
-
Does Dr. Ra do internal femur? And good luck with your recovery. You have almost made it!
-
You'll never recover past 50-60%. Just my wild guesses but that's the way it is when doing what you've done.
You have to struggle real hard in 3-4 years. Try to find a good physical therapist.
And read more about what you've done and about nutrition that can help you on your way.
I was right before regarding the nail and I'm right now. It's not that I'm throwing it in your face or anything so no need to get pissed off.
Really hope for the best outcome possible. Try to listen to your body.
-
Hi Dis,
Are you worried about your scars when your frames are taken out? I'm sure it's big deal for everyone but more so for women.
Best.
-
How is your final alignment Diso?
Make sure it is perfect because, once your bones have consolidated past a certain point, any misalignment will become permanent.
-
Claude
I don't know.
I'm not planing to tell them about LL,but if they'll notice my new height I will just say that I got HGH treatment ..
and to be honest if I have money, I wont bother myself by returning home now, maybe after 3or4 yrs, when everybody will be almost forgot me..
Smallguy
No, he is just doing external.
I'm sure the only reason that motivate you to do it with him is because of the cost of the operation
why don't you try to contact this hospital ?
http://www.bangalorepediatricortho.com/servicesmore.html
they're preform both Fit bone and ISKD, and since it's in India it has to be cheap.
Sweden
if I'll be able to walk decent after 3or 4 months , that would be enough for me right now ..
and I can give myself some months more till I can be able to run again, and when that will happen I'll consider that I recovered 90%.. it's not that I was athletic before LL
and I'm not regretting choosing just external cuz as I read the nail inside cuz a permanent knee damage, nor regretting doing quad lengthening cuz Paley is doing it right now ..
it just I thought it wouldn't take such long time to remove the frame...
you know that Indian PT are suck and know nothing, beside I want to give myself a rest till they remove the frame, so yeah after that I should find a good PT
medicore
after removing frame I'll start using silicone gel sheets till I save some money to have surgical scar removal. it's not so expensive in India though, but having multiple scars that would be costy..
Tall
humm I still have misalignment in my right femur, according to Dr rah he'll fix it later, cuz he don't want to disturb that callus right now.
and he told me that if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs
-
he told me that if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs
I don't think this is true. A bone can't be moved at all when it's fully consolidated. I can't change the shape my never-broken femurs at all now without breaking them. However, I'm not an expert so if someone else could chime in, it would be very helpful.
-
30% malalignment is huge!
-
Yeah , I didn't find this convincing too, and I'm kind of worried about it since I read carzy6 has knee pain because of the misalignment. To be honest I believe Dr Rah will not fix it, cuz he is keep saying that the misalignment is okay and not bad!
and just to be accurate
((Dr rah said this "he'll fix it later, cuz he doesn't want to disturb that callus right now.
and its okay if the misalignment was 10%
Dr Kumar said " if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs " ))
but that wont make any difference since both of them work at the same hospital
-
Crazy 6 has all sorts of pain... not just knee pain. And his opinion of doctors reflects who he is currently working for.
I just looked at your x-ray. I have seen worst, including myself. And it is already what it is. Your bone is consolidating so there is no chance of fixing anything now.
I don't think you'll have arthritis.. if you keep to a healthy nutrition that includes a lot of leafy green vegetables, anti-oxidant and omega 3. I haven't felt any pain since I came back home. And I think the indian diet is very bad.
Maybe you don't feel it now. But you are 5'4 now? That's a perfect height for a girl. Whatever pain and difficulty you have endured, when you stand up, it will be a world of difference. Just make sure you pop those calcium tablets and do some exercises like sit-ups in your bed. That way you'll recover more quickly.
12cm.. in 2 segments. That's a remarkable achievement. Just make sure you do everything as told by your doctor at this point on.
-
Diso,
Just to know your opinion since you've had both tibias and femurs lengthened and almost for the same amount 5.5cm. If you were to have lengthening again with monorail frames but just one segment, which one would you choose tibias or femurs. In other words, which one was easier for you and why? Thank you.
-
Small Guy
Maybe you're right about crazy6, and it is relieve to know that your x-ray was worse than mine, and yet you can walk,exercise normally without pain. but maybe the misalignment in the tibia is different than femur. Anyway.. I think I have to be less worry about that right now.
Leo
I'll list the advantages,and drawbacks for each part.
A- The disadvantages of Lengthening Tibia by the monorail
- During the distraction the pain in your tibia would be much worse than the in femur, like by ten times
- The pin sites are problem especially when they stretch because of either the lengthening or the exercising, but comparing to femur the pain in pin sites is less to be occurring
- You can feel that the monorail device is so heavy, since it's perpendicular to your tibia
B-The good points of lengthening tibia over the femur using the monorail
- much comfy in sleeping since you can sleep in your side
- the pain in pin sites is less to be occurs than the femur.
- Much easier and almost wont bother you at all in wearing clothes or even in siting on the chair
C-The drawbacks of lengthening femur over the tibia using the monorail
- You have to lay in your back while sleeping (no sleeping in your side), which was (still) very tiring for me
- It's hard to wear clothes, and very uncomfortable to be sit on the chair with rail in your femur
- The pain in pin site is much worse than tibia and more likely to be occur
- you'll lose your ROM in your knee gradually and this really hard, cuz this will limit your mobility
D-The good points of lengthening femur over the tibia using the monorail
- there is almost no pain during distraction phase or very slight pain comparing to the tibia
so if I was plan to do two surgeries like doing one with monorail and saving some money to do the other one just internal . then I would choose monorail for the tibia, and internal method for femur
However if I was plan to do just one surgery..and that by monorail . I would choose lengthening the femur, just to avoid looking disproportional, as I noticed even though I lengthened almost same amount in both part but my tibia kinda looks taller, and you can't really notice the different in appearance on femur part after lengthening .. :)
-
Diso,
What was your distraction rate per day? I heard that femurs consolidate faster than tibias, is it true? BTW, have you had any issues after they performed manual manipulation in your knees? I've heard this sometimes can be more bad than good. Thank you and please keep updating us.
-
Hi leo
- Dr Rah advised me to do 1mm/day for each part
- I think this is right since I had pre-consolidation in my femur in the beginning of distraction phase
- not really, rather than the pain that I felt after the surgery, there were no complications or side-affects that I could mention .
-
2 weeks left to remove the fixator, I couldn't be happier .. ;D
to be honest now at the end of my journey with these fixator I feel I can stand them one month more ;D ... even staying here in India, one month more wouldn't be exhausted to me at this point. ..
funny thing , I found out that I was expecting to stay here in India for 8-9 months. when I read my post i was really surprised lool, 9 months! WTF, when did I think of that ??
I'm Engineer, and I have been deal with numbers mostly in my life and this surgery to me is like mathematical problems that deals with many numerical value......
I may take few months more so I may take 8 or9 months but it's not bad too
cuz I'll suffer just for one time, I
anyway 2 weeks more, and I'll be fixator free, there should be a word describe the person after removing the fixator like sober with alcohol case
-
Congrats Diso!
What is the plan when the frames are removed? Will you be in a wheel chair for a while? When will you be able to walk with crutches?
-
Good news that you'll be free of frames soon. It sucks to be in bed all the time.
When you were distracting, what is the time interval for each .25 mm? 3hrs or 4?
Always admiring your courage. Im a dude, still enough is enough. Cant wait to go home.
-
Woohoo... It must be a great feeling to finally see a glimpse of light at the end of a dark tunnel. You are certainly more brave than I am. I wish I have lengthened as much as you did all in one go.
Bullsurfer... divide your waking hours by 4. Lengthen one in the morning, lunchtime, supper and before going to bed by .25
-
I hope everything is good.
You'll have that willy-wonka feeling after you removed them.
-
Are you going to wear a protective cast or anything for a while after fixator removal?
-
MORNING
12 days left.. :)
Blackhawk
thanks, I'm not advised to walk immediately.. perhaps after a month or so I'll start standing..
BullSurfer
You'll be home soon just focus to not have any further problem in your right femur...
what smallguy said is a right way to not disturb your sleeping, otherwise if you did a turn every 6hours you would have to wake up to just do a turn.. but since you're doing 1.25mm, do 1 turn every 5 hours..
to be honest for me most of time I did all the four turns at one time (morning after taking pain killer)..
Smallguy & mediocre
Yes indeed it is amazing feeling .. although I'm still with the frame, but just imagining that after 12days I wont see these frames again, make me feeling so high
Kilokahn
yes, I don't remember its name though, it is a portable things I can take it off whenever I want ..
-
something like this one
(http://www.polyvore.com/cgi/img-thing?.out=jpg&size=l&tid=41191902)
it looks uncomfortable , but sure better than frames
-
4 turns in one go, that's nut. I find most painkillers have no effect whatsoever except injection types.
Diso, may I suggest exoskeleton? No need to put in energy in order to walk. Maybe you can afford a pair, I think it's on the market now.
-
Diso,
Glad to hear that you're getting your frames off soon. I can imagine how excited you must be. Now you can start a serious routine of physical therapy to get your knee ROM back. I have some questions to ask you:
1) what's the maximum amount of cash that you're allowed to bring into India when you travel (airport)?
2) what's the most amount of cash you can withdraw from an ATM per day? Is it safe to withdraw cash in public without being robbed?
3) approximately how much extra cash should I bring with me if I'm planning of staying 6 -7 months in India (hotel, food, laundry, internet, maid/nurse?
Thank you.
Leo
-
Hello Disobedient!!))
im glad you are almost done, some journey you had!! how is that knee bending?? did you get any side X-ray?? maybe in a future ill do 5cms on my femurs with monorail. Now you will not only have the perfect height for a woman but also nice sexy long legs!! that must be super excited for you)) you will be breaking necks everywhere!))lol Big hug sister))) congrats!
Rgkey
-
BullSurfer
the only different between the injection and the pills, is that the pills take around 20min to has an effect in your body.. that's what the doctors claim..
for me yes I found these IM painkiller much better, I even told my doctor that I know how to give myself IM but he told me to stick into pills ..
anyway, how many cm left for you ? you have almost 2 weeks left for you..
about exoskeleton, I think the walker will do the same job..
Leo
Hi leo,
it seems that you're planing to do LL in India, did you consider to team up with another LL patients who interest in doing LL in India too?
you would save A LOT OF money if you'll do that, and it will be easier for you to stay in India with someone who undergone the same surgery..
think about it, find another 3 or 4 patients, then instead of staying at hotel, you could rent a small villa ( villa better than apartment since it hard to find building with elevator or apartment in first floor), and take full time (24 hours) maid (( you'll pay some thing like 6000 INR/ month and usually 9000 for the agency.. )) .. you could cut the cost by half or even more and you'll still have lot of advantages of being in you own villa than staying in hotel ex; your maid would be able to do your laundry, cook for you, you won't be stuck in one room, internet usually faster than hotel, You cant open the window in the most of hotel in India so staying in your own villa will guarantee you having good ventilation.. , and off course the space that you'll have
1- I don't remember, for me no one touch my handbag so even if i loaded it with money, or drugs! nobody would know, but I don't know if they do that with all passengers
but here is a thing if you want to bring some dollars with you, it would be so easy to find place in your suite-bag to hide them.. hmm ignore what I said just bring your visa card, don't take a risk..
2- this is depend in your bank.. it's nothing to do with ATM here, they do limit the each withdrawal by 10,000 INR but you can have multiple withdrawals at same time ..
Is it safe? well I never withdrew cash without being companion with my caretaker, also, the atm is beside my hotel... even if it wasn't... don't worry about that a lot, you can withdraw money each time you go to hospital to has an x-ray, and save it in you locker "most of hotel provide you with your own one"
3- it's really differ from one to another, but I used to spend around 1000-1200USD per month ..
RGKEY
hi there,..
well yeah my journey wasn't excited as yours, but good thing I'm at the end of it.. my knee bending is something like 15-20 deg.. I'm not pushing myself at all.. and I'm pretty sure my legs is far from being sexy right now with all these scars lool, but gonna have surgery to remove them when the time comes for that
Good luck , and the good news is lengthening femur is less painful than tibia,..
-
so femurs is better than tibias??)) cool))
scars?? dont worry about that, just need a small surgery and done, long, sexy and smooth like a baby butt)))
-
Im depressed and excited at the same time. Depressed because I don't know how it's gonna be once I'm home. Excited because im taller, also just to be home around my family and familiar things.
I think femur lengthening would have less complication and pain, only one bone.
-
Hey Disobedient,
Conradulations on removing your frames so soon. Almost done 8)
How much did you lengthen on your tibia? Did you have your ankle angle measured regularly by your pt? Did you have any problems with your ankle stretch, ballerina foot etc?
I am losing my stretch there very quickly, it's getting tighter every day, and I am only on 2cm now, I am going to do much more stretching on my ankles now, but I was wondering if there are some things that you did to prevent ballerina foot?
-
Hi sweatpants
how much you're lengthening per day? ask your doctor maybe you should lengthening less like 0.7mm instead of 1mm..
I lengthened 5.4 cm , and yes I do have ballerina foot, My pt was so stupid he didn't even notice that I have ballerina foot(despite the fact that I asked him several times) , I only knew that when one of LL member (machine ) visited me and he noticed immediately..
it seems unless you're standing there is nothing would help you so much
but here is things that I read or been advised to do
1- put your feet in hot water 3 times a day for 30min
read the original post by jungle
{{The best way to avoid the ballerina foot is dont let it happens. If you lengthening too fast, no way you can escape it, maybe with Beijing devices you can, but not Serbia's device, i'm afraid.
However, whatever reason, if ballerina foot happens to you, the method i will show you as the following is the effective way to fix it and recommended by Professor Mitkovic.
I did a experiment using method hot water mixing with a little salt. This method Professor Mitkovic told me and it work brilliant well if your ankles lost more than 120 degree (compare to 90 perfect square). But that method you need to do least 3 times a day and least 30 minutes in each times and keep doing that least for a week, your heels should able to touch ground, trust me
Below are some picture to show your guys how exactly it can be done... Professor Mitkovic told me.. when your bones, muscles, tendons in hot water more than 30 minutes.. everything become soften. That why, Professor Mitkovic told us, including CBICK.. after you done LL, you should not take hot tub or hot shower more than one hours at least in first 3 or 4 months.. because your new bones will be come really soft in hot water. Of course, if you do... let's say you just having a hot tub about more than an hour.. your bones become soft.. but then your bone will be harden again after one or two more hours.
So, with that concept.. when you have ballerina foot, and you cannot keep bend at 90 degree.. dip in hot water mixing with salt (of course you will not dip the whole legs into hot water if you are wearing devices. Using a bucket and the hot water level just pass your ankles but should not over the pins of device,i will show you on the photo later anway...). your muscles, tendons become soft, BUT REMEMBER YOU MUST DO EXERCISE IMMEDIATELY or while your foot in hot water.. like bending 90 degree.. pressing against a wall .. or standing to press the ankles down....
Set up- water and salt mixing in the bucket. Get a big bucket as possible because you would have more room to bend your ankles and put both legs in. Water is must hot but should not too hot to burn your skin, and water should keep warm as a long as possible. If water cold down than you must put take cold water out and put more hot water in.
(http://img391.imageshack.us/img391/4837/saltwaternw6.jpg)
Method 1- If you can?t standing
Sitting on wheelchair and put the hot bucket close to your wheelchair. As you see my knees bend forward more than 90 degree
(http://img391.imageshack.us/img391/8853/sitting1lz6.jpg)
Put some weight on the top your knee to press the ankles down. I used potato bad about 7 kg but you can you other weight (sand bags etc.. ) and not too heavy to hurt your legs
(http://img391.imageshack.us/img391/1614/sitting2kj3.jpg)
And put two legs at the same time
(http://img391.imageshack.us/img391/796/sitting3qo8.jpg)
Method 2 - If you can standing
(http://img391.imageshack.us/img391/5948/standingjy7.jpg)
When you have problem of ballerina foot, when you stand up, no way your heels can touch the ground so you standing by your toes.
In this way as soon as your ankle warm up by hot water, your heels would slowly going down and they would touch ground in 20 minutes. And lean forward if you can. This is really hardcore and very effective than method 1, but only for people who have strong legs while lengthening and able to standing. This picture was taken by myself, looking from the top angle, and there is no way I can take a picture in side view }}
2- My English is bad so I don't know how to say it , let someone to push your feet with his/her fist for 45min.
3- my dr told me to put my feet against the wall and try to push them so hard till my heel touch the wall and remain like that for 15min.
-
Thanks a lot!! I will try the hot water exercise, I do some similar stretches, only without water. So now your PT knows about ballerina foot, is he going to stretch you to fix it?
I only lengthen 0.75cm per day, and after I have my femurs done, it's going to be 0.5cm, till I am done with tibias, so it's already relatively low speed of lengthening. I just want to do anything to prevent ballerina foot. Were you wearing your splints a lot during distraction?
-
I hope ur ballerina and knee contraction is not that bad(( other wise you will regret this operation if you don't fix it ASAP!!!
unfortunately hot water and stretching your calf muscles while siting will not help much.
your problem right now is that you can not load all you weight on your legs((((
I can tell you this thou, either your ballerina is not bad at all, like almost nothing, or your physical therapist and especially your doctor are careless AND don't know anything about these problems
For ballerina you must stretch while your knee is completely straight, when you sit and stretch you muscles is much more easier but you are just lying to your muscles. you are not making much progress.
you should have always been wearing a foot holder to make sure your feet are at 90 degrees at all time. Ill take pictures and maybe make a video for you to tell you exactly what you can do since you can not stand or have the ilizarov apparatus to help holding something to your feet.
Im really worry about you, it is ashamed what is happening to you, because Ballerina and knee contractions are the most common and only real serious problems of lengthening.
remember now that you stopped lengthening your muscles will start getting stronger and also they will be harder to stretch back.
if u want, send me a PM and ill send you my Skype so can video chat and I can show you exactly what to do)))
if your feet can not go more than 75 degrees you have a real problem darling(((((( and I hope your knee is also straight.
-
Diso, where did you get those pics froms? Cool shiny thingymajig. They look comfortable on the legs. The Indian Monorail looks large and heavy.
Btw, you're going to remove the frames but will continue to be in india. Best of luck.
-
Hey Diso,
Here's an exercise that I do regularly, it might help with ballerina, I do it whenever I am in bed while watching TV. :P
(http://s29.postimg.org/53zohodiv/image.jpg)
-
Hey Diso,
Here's an exercise that I do regularly, it might help with ballerina, I do it whenever I am in bed while watching TV. :P
(http://s29.postimg.org/53zohodiv/image.jpg)
yes but you must sleep with your feet in this position, you must spend hours with your feet in this position not minutes((((( pretty much your feet must be in this position all day!!! what you can do is use bandages, and make a knot on your tights and another knot with the bandage holding your feet at 90degrees like this picture. and then tight them together. I spend about 12 hours a day with my feet in this position, if im not walking, i eat, rest and sleep with my feet like this, you must do the same.
-
It works better if you press your foot against the wall or floor.
-
It works better if you press your foot against the wall or floor.
all depends how bad is her ballerina, if is very bad, it wont work. Her muscles(heels) will push her back. but if it is not that bad then it might work.
-
i found something for you, get this, it might help.
http://www.amazon.com/Pc-Plantar-Fasciitis-Relief-System/dp/B00414OLBU/ref=pd_sim_hpc_53?ie=UTF8&refRID=0YX4YQ6EE3F3C3YC3FGY
(http://i.imgur.com/oYaYsvV.jpg)
-
There's a product for everything these days.
She only got 2 or 3 cm, how can it be so bad? At this rate she won't get far. Im over 5cm in before the problem surfaced. Im in pain but pushing on. I just need a few more mm b4 remove frames.
-
I ve tried all kinds of splints, but the only ones that really work and keep your feet in 90degrees are the ones that look like boots
Those are mine:
(http://s13.postimg.org/52rb8hxmf/image.jpg)
-
Im really worry about you, it is ashamed what is happening to you, because Ballerina and knee contractions are the most common and only real serious problems of lengthening.
while this is true, here is a post from a thread on old forum where I posted a bunch of peer reviewed journal articles for external lengthening (lon).
control
Herzenberg et al. [7] reported follow up ROM of 25 patients with extension contractures after femoral lengthening treated nonoperatively. The mean age of their patients was 20.2 years. Fifteen patients underwent femoral lengthening for atraumatic (congenital or developmental)
and 10 for posttraumatic shortening. The mean femoral lengthening was 6 cm (range, 3–15 cm). ROM decreased from 127 ± 16 to 37 ± 15 after femoral lengthening. All patients underwent daily aggressive physiotherapy. All but one patient achieved 90 knee flexion by 6 months after
frame removal and full recovery was seen during the course of 1 year after frame removal. Patients required very aggressive physical therapy during the course of 1 year to recover ROM of the knee. At final follow up, knee flexion was 122 ± 23.
so as you can see even with no quadroplasty they went from 127 degrees to----- 37 degrees to---------122 degrees
and that was 6 months after frame removal.
its obviously more risky than internal which has 0 complication for knee contracture but I think its not as dangerous as people say. this was the average result for 25 patients. pretty cool when you think about it :)
reduced knee contracture is expected for external lon but will return. however I have no idea about if you do both femur and tibia together.
-
Hi all
18th - March, 3 days left 8) ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D
Sweatpants
humm no he didn't seriously Indian PT know NO THING, so I stooped my sessions few months ago.. and right now I'm doing simple stretching exercises, not aggressive one since I really want to avoid any thing could cuz the pain in my pin site, and I do stretching exercise like the one you posted in pic ( sometime with the same pose in pic I tried to lift my leg and hold it for 1 min, I feel in this way it stretching much more muscles , try it and you'll feel different< Also, since you still in distraction phase if you felt much pain your tibia let someone to lift/rise your legs for you'll feel much better off course in this case you wont stretch any muscle but believe me you'll feel the pain goes down immediately > )
about the splints I got mine like after month from starting lengthening and I wear it like 2-3 h per day not more some time I don't wear it at all, yours looks much better than mine ..
this is mine
(http://cdn.shopclues.com/images/thumbnails/381/320/320/PlantarFasciitis1364467789.jpg)
Can your splint keep your feet goes beyond 90deg?
Bullsurfer
yes , it looks light comparing to Indian monorails, this is Mitkovic's monorail it was mentioned in the original post of Jungle..
RGKEY
thanks for your concern, right now I'm doing simple stretching exercise I know that won't help a lot, but I really wont to avoid any further pain.. but since I'll get my frame removed soon, I'll start (gradually) standing this will help my ballerina , my feet can reach 85-90 deg I guess, my dr said to not worry a lot about it I will gain my flexibility as soon as I start standing .. maybe he is taking it easy again (Indian mentality doctor, where everything is ok and you don't have to worry) but with 5cm lengthening I'm not suppose to have bad ballerina ..
-
as long you can reach 90 degrees you might ok. Ballerina is not the only problem thou, you might fix that even with surgery, but there are many soft tissues that need to adapt to the new length in order to communicate with each part of your muscles, or you will have strange types of pain hard to get rid off. Read diaries and you will see. I wish you best of luck! can you straighten your knee? please tell me yes))))
-
as long you can reach 90 degrees you might ok. Ballerina is not the only problem thou, you might fix that even with surgery, but there are many soft tissues that need to adapt to the new length in order to communicate with each part of your muscles, or you will have strange types of pain hard to get rid off. Read diaries and you will see. I wish you best of luck! can you straighten your knee? please tell me yes))))
ok, yes)))) ;D
-
Just arrived from hospital.. and I'm still stuck on those fking frame..
Dr.Rah said the callus is not good enough to remove them!
feel like my body betrayed me, ...
I should be now completing my master, or even working with all elec ships as an Engineer , not paralyzed here in India !
but nobody to blame, I did it to myself..
I'll get some rest and I post the x-ray.. get it finally in my flash..
-
Cheer up girl! I know how you feel, just a little longer is all. Hang in there.
I have so much pain in my leg, but I'll bite my tongue. I haven't been sleeping well at all. Lost a lot of weight.
We made the decision, we must stick by it until it's satisfied.
-
Diso,
As said before, just a little longer - hang in there! Are supplementing with enough calcium and Vit D?
-
Morning .. :)
so as in next post, you can see that callus formation in my femur is so bad..
I don't even expect that I can remove the frame in my femur even after 3 months.. !
I've shouldn't believe Rah when he said I have to wait 6 weeks, cuz that so typical of him.. I should have been realized that by now!
Funny thing that when I asked him this time how long should I wait ? a month? he replied he cant answer that cuz he didn't want me be in between .. really why it takes you so long to say that!!
anyway that's too much complain for morning ..
Bullsurfer
yeah.. we have no other choice but to be patient and waiting with these Indian Butchers
Leo
yup, he prescribed for me too yesterday calcitonin-salmon Nasal Spray ...
-
Here we go these are my x-ray
(http://s30.postimg.org/6jvssq7sh/image.gif)
(http://s30.postimg.org/osxz9ane9/image.gif)
(http://s22.postimg.org/ye2dxfl0x/image.gif)
(http://s28.postimg.org/m4uaafwfh/image.gif)
-
The calluses are coming. No worries, but I'd rather be at home with fast internet, tv and better food while waiting for them to form.
Nasal spray? Lol.
-
The calluses are coming. No worries, but I'd rather be at home with fast internet, tv and better food while waiting for them to form.
Nasal spray? Lol.
well I wish if I can go home but I can't.. and yes it's nasal spry and usually prescribed for ppl with low bone mass
-
hi Diso, how long you lengthen and how long have you been consolidating?
-
I had the operation 23-Dec
I started distraction in 12th- October stopped at mid of Dec
so it has been 6 months already since I did the operation
-
Just a thought.
Wouldn't it better if the frames are removed and have the legs plastered. You can move better since they're the shape of your leg. No standing allowed but at least you can sleep on your sides.
-
I don't think it's possible ???
since the gap is bit too much not like a simple fraction , so there is a chance of having an extreme misalignment " I guess"
is it possible ...? I would do it if yes...
-
Just ask your doctor.
I admire you, I must have said this many times. Since you're an engineer you tend to do things methodically. As for me, I could careless. My doctor would advise me to keep my leg straight, but it's so difficult at night. I can only sleep when I'm on my side. What good is it if I can't sleep, I'll just waste away and probably not able to finish my LL.
If I were you I'll have the legs plastered and head home.
-
Just ask your doctor.
I admire you, I must have said this many times. Since you're an engineer you tend to do things methodically. As for me, I could careless. My doctor would advise me to keep my leg straight, but it's so difficult at night. I can only sleep when I'm on my side. What good is it if I can't sleep, I'll just waste away and probably not able to finish my LL.
If I were you I'll have the legs plastered and head home.
hug your pillow tonight it gonna give you feeling like if you were sleeping in your side. . ;D
but you gonna remove the frame anyway after few days...
-
Yea!
Can't wait to be home. Escape from India and LIVE TO DIE ANOTHER DAY!
-
Just ask your doctor.
I admire you, I must have said this many times. Since you're an engineer you tend to do things methodically. As for me, I could careless. My doctor would advise me to keep my leg straight, but it's so difficult at night. I can only sleep when I'm on my side. What good is it if I can't sleep, I'll just waste away and probably not able to finish my LL.
If I were you I'll have the legs plastered and head home.
No!! Do not plast anything yet. It is a bad idea Diso!! First your callus is way to week for this. Plus you might lose height. You can get a bone fracture, and also misaligments.
-
I've been following your diary Diso and your doing as good as can be there.
I also agree the plaster could be disastrous and I wouldn' want to risk losing any of that hard earned height.
-
hey diso ,
i don't want to be rude but i think you still do not realize that you are in a very critical condition , i m serious .
Stop trusting your doctor and take charge of yourself , consult other doctors , take every action necessary to get back to normal again .
Be Strong ..!!
-
hey diso ,
i don't want to be rude but i think you still do not realize that you are in a very critical condition , i m serious .
Stop trusting your doctor and take charge of yourself , consult other doctors , take every action necessary to get back to normal again .
Be Strong ..!!
Hey Diso, unfortunately, I think he is kinda right((( you should consult with other doctors just in case.
-
Yea!
Can't wait to be home. Escape from India and LIVE TO DIE ANOTHER DAY!
Escape is an understatement. I hope you decide to disseminate your journey in the future, BullSurfer. People read of the horrors performed here, but desperation is the greatest poison of the mind. People will still deceive themselves, but the more stories available, the greater the chance of saving a hapless soul.
-
Morning ,,
I did consult other doctors..
here is one of the replays that I received
[[
1. conversion to internal fixator with or without bone graft ? (There are lots of devices used with minimal incision.)
2. You could also try soft tissue release for adjacent joint contracture
3. Try low-wave ultrasonographic stimulation
]]
-
for point 2, I think it's better to wait till I remove the fixator, since this could solve the problem, other wise, I'll do this surgery in home my insurance cover it..
for point 3, I read that these kind of treatment is useless , anyone has experience positive outcome with this treatment?
-
Disobedient,
Quadrilateral lengthening with monorails in India....
The last two hours of reading your 6~ month saga has been an emotional roller coaster for me - disbelief, fear, concern, anger. Had I been following your story live I would've became a religious man and prayed for you (likely to some pagan god of masochism).
I am grateful that your shaman finally advised against going beyond 10-11 cm. Your new height is something to be eternally proud of. Not only are you now the global average female stature (and have longer, (someday) sexier legs than others that height) but it's also a symbol of your triumph. Your spirit was tested and you passed. You braved Hell and beyond to achieve something others are born with and take for granted. I'm so proud of you (for what it's worth from a shadowy stranger).
Wishing you a great recovery. Take the path slow. Vaya con Dios.
-Andy
-
Dracula has arrived. Welcome to the Underworld.
I missed Anime.
-
Hi all
18th - March, 3 days left 8) ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D
Sweatpants
humm no he didn't seriously Indian PT know NO THING, so I stooped my sessions few months ago.. and right now I'm doing simple stretching exercises, not aggressive one since I really want to avoid any thing could cuz the pain in my pin site, and I do stretching exercise like the one you posted in pic ( sometime with the same pose in pic I tried to lift my leg and hold it for 1 min, I feel in this way it stretching much more muscles , try it and you'll feel different< Also, since you still in distraction phase if you felt much pain your tibia let someone to lift/rise your legs for you'll feel much better off course in this case you wont stretch any muscle but believe me you'll feel the pain goes down immediately > )
about the splints I got mine like after month from starting lengthening and I wear it like 2-3 h per day not more some time I don't wear it at all, yours looks much better than mine ..
this is mine
(http://cdn.shopclues.com/images/thumbnails/381/320/320/PlantarFasciitis1364467789.jpg)
Can your splint keep your feet goes beyond 90deg?
Hi Disk,
I tried also splints like those, they do nothing, they can not hold your feet properly. I recommend splints like mine, they can go more than 90 degrees, not a lot, but can. although splints are used to prevent ballerina foot, I think they won't work when you already have one, they don't stretch you they only keep your ankle up.
-
Andy
thanks for your very kind words, ..
Great to see some people appreciate my insanity :D
Sweatpans
I see, well you give me reason to not wearing them , so thanks ;D
-
oh I messed up my sleeping routine , I suppose to be sleeping by now, but I was watching this new series nurse Jakie, kindda like it :D
so no thing important happened today, except I tried to stand,, I put half maybe quarter of my weight into my legs ..
my heels was touching the floor so I'm not sure if I have severe ballerina foot, or maybe because my back wasn't straight..
I felt like the blood flow to my feet for the first time, and my feet gonna explode in any min just like a scene from happy trees.. so I stand for half mi the rest for 3min I repeated that for an hour, I didn't feel much pain as I was expected but it was kind of itchy .. and I was so tired ... funny how simple thing like standing for 30 sec make you so tired ...
I think I need to exercise more just to make sure I have good blood circulation in my legs ....
Goodnight all
it's 4Am here :)
-
so I've received replays from the doctors that I contacted regarding my medical situation..
so I'll share some of these replies
Hello,
You are still soon after the surgery and you need to wait longer before coming to see me. Motion comes far longer after removal of the frame, so do niot expect getting back to normal fast.
Documents yourself completely. I can see you when the frame will be off. Rushing would increase risks even more.
Yours sincerely,
Jean-Marc Guichet, MD, PhD, Doct. Sci.
My dear,
try to resolve everything with your dr. He will help to correct misalignment. It is no big problem but you need also so much physiotherapy.
Dear Bade,
Greetings from Vejthani Hospital!
Thank you for waiting. Your case was evaluated by our specialist, Dr. Porn A-nake Tardthong and these are the recommendation.
" First you have to know that the 11.2 cm increase needs one year for total treatment. About distraction period, the doctor did his job well. This period, the consolidation period, the patient must do her part. Physiotherapy to increase range of motion at all affected joints and strengthening exercises for the whole muscle of your legs.
Before the operation, the doctor must inform all of the problems which may occur to the patient and how to solve it.
The best for you now is doing the physiotherapy, both passive and active. The passive physiotherapy should be done with the aid of physiotherapist to increase the range of motion to your knees, ankle and feet. The active physiotherapy must be performed by the patient independently. The patient should try to bend her knees and ankles to overcome pain. Avoid putting your weight on both legs.
Observe the progression of your muscle strength and range of motion of your joints. They will improve but quite slow.
Going to study is not an excuse, your doctor knows the reason but it will still depend on how your bone adapt to change, or how your body respond to the current changes in your bone. By June, Xray finding may show that it is not the right time to walk, possibly you will be ready to walk by August 2014.
I wish you can pass your problems so soon. Be patient.
--Dr. Porn A-nake Tardthong--- "
So, in general it seems that I just have to wait and do a lot of pt...
there is hospital in Dubai called "American Hospital Dubai" they're preforming LL and so on, so I may go there if I'll back home..
I'm thinking of going back home after a month or so, I know that my medical insurance cover all expense of PT, or any further surgery I may demand in order be back normal, but returning home paralyzed make me feel like a loser .. I'll wait a month and see what will happen ..
-
I am impressed by -Dr A-nake reply, he gives much details and concern. Take it slow and listen to professional advice from the Doctors. Stay strong.
-
Don't be too hard on yourself Disobedient. You're not a loser for going home while still recovering. You lengthened four bones along with all the soft tissues so it's only natural recovery will take a long time.
Btw, I like how Dr. Tardthong always seems to give a detailed response to emails. He's been thorough in email convos with me and it looks like it's the same with you. Wish there was a cosmetic lengthening patient under his care currently. It would be great to hear that person's opinion of him. As of now he costs around the same as the Beijing clinic for LON. He does Fitbone also. Plus the hospital he practices at looks very high quality.
-
I like dr. Porn A nake Tart Thong. His name screams sex.
Sorry for the bad joke, how are you my dear? Strong woman like yourself shouldn't have done LL, you would've accomplished anything with your tenacity and patience.
Life is funny, one can only see a certain angle at a time.
-
Hey Diso,
Did you send x-rays to these doctors, and are their responses in reaction to the x-rays?
-
Jerry
yup it seems he is very reliable doctor, I mean the doctor who show lot of concern for the email, he must be so much caring about his patients
BTW, I remembered you stated once that you'll do LL in March, did you decide with whom you'll have it ?
Kilokahn
well at least 2 member in my family would say I'm loser to do such a thing and back in this pathetic situation, anyway I agree with u he seems very caring doctor, and in my opinion Thailand in general make a good choice for LL " I mean comparing to India", at least their PT so advanced, not like India..
BullSurfer
I'm not regretting doing LL, but If I could turn back time, I guess I would make different choices
Polycrates
yup, I sent my last x-ray,,,
-
hey Diso sorry i havent gotten to you sooner, but between me going out early and coming back when everyone is gone and the fact that my internet connection in the mornings is slow and when i wanted to show my doc your xray i could only upload the front ones but not the side view. Anyway Ill show them tomorrow to my doc. He saw the front and he needed to see the sides, In any case he says he really recommends to you to stay on your devices. I saw your xrays and they look good!! for all the LL that you did and the device that is not so great it is not bad at all!!)) i have seen worse with less lengthening than you!! i was glad to see you X-rays!!!
so ill get back to you since im with pain now and probably spend all day inside tomorrow.
-
hi there
sorry to hear about your pain, don't worry at all you can ask him even after a week I'm not in a rush.. :)
-
HI DISO::: so i asked,
the good news, he actually thinks your consolidation looks good, coming from him, this is really good)))) he also thinks your bones look straight enough for plates.
the encouraging news::: he thinks you should do it with your own doctor, and the risk with plates are that they can break. i asked him if he can do the plates, and he responded "i can but i really dont want to do it" with a kind of sad face expression. I think he doesnt really want to touch other doctors job. In any case he thinks you are far better just keeping your devices on. I asked him to estimate how long you would wear your current devices, he said "its hard to tell, but anywhere from 2 to 6 months"
well Disobedient girl)) thats all from my end)))
Rgkey
-
God , 2-6 months , such a long time, Dr rah would say the same number but he'll replace weeks instead months!.. stupid Indian doctors
I really appreciate your help, Regky,.. thanks to you and to your doctor too..
-
update
so I've contacted the med department in my Embassy.. told them about my situation , I don't know what kind of help they may offer ... but as far from I know, they could do some arrangements to let the pt and medicine covered by the government health insurance , since my insurance now only covered that but inside UAE, and only the Emergency situations overseas ...
so they asked me to sent some documents, and info, and told me to come in Mon, ..
if that doesn't work, I think I fly back home, I wont stay in my parent's house, I may take an apartment , I still don't want anyone to know about the LL, but GOD apartment in Dubai! that would be costly ..
-
Hello diso. I havent read your entire patient diary but may I ask how much you had to pay for food and accomodation or was this all included in the package. I understand your issues with your limb lengthening however would you still reccomend dr anil??
-
so if I said I do recommend dr anil, you'd consider having LL with him?
I spend around 1000-1200USD/monthly ,for (food, accommodation, medicine, caretaker.. )
-
hi
I hope you are getting somewhat of you knee ROM back now that you’ve stop lengthening.
If you could do it all over again what would you do differently?
-
interesting question,
Although my answer may changed after some months. but let's answer it now from perspective of person who has been stuck in those frame from half year..
humm, firstly.. I don't think monorail device is bad choice... you just have to choose the right doctor for it, so yes I wont chose Anil Rah ..
but I would still go for quad lengthening personally I still didn't see any critical disadvantage for that, maybe I'll have one month or two apart from the two surgeries..
and I'll choose internal for the femur.. it's hard to lose your knee ROM.. it makes you feel that you're completely paralyzed..
-
Only very few people would be lucky to do Quad Lengthening and monarail without major complications. Diso you are very lucky to have pulled that off. But most people would be in a lot of trouble. You are also a woman, usually women have loser muscles which allows better lengthening. Im serious when I say you are a very lucky girl Diso!!)) Probably as lucky as I am if not more)))
-
Disobedient,
I have read most of diaries and this is my first post on any limb lengthening forum.
You are just amazing soul and lovely person, and that compelled me to post for the first time. :)
Quad lengthening is something no one dares to enter and you did that and with your spirit pulled it off well so far :-)
You have gained a massive respect in my heart at least.
To be honest, consolidation period is always at least twice the distraction (for external fixator). That is for single section (tibia or femur alone). For both segment it will be thrice the distraction.
So Dr Raheja was didn't told you before. Regarding misalignment of femur, it happens almost in every surgery I read across, and can only be avoided by following procedure here.
https://www.inkling.com/read/operative-techniques-orthopaedic-surgery-vol-2-1st/chapter-peds-34/technique-limb-lengthening
http://www.wheelessonline.com/ortho/limb_lengthening_of_the_femur
http://www.synthes.com/MediaBin/US%20DATA/Product%20Support%20Materials/Technique%20Guides/SUTGDORINGFemurJ7498B.pdf
So in case it is more than 10%, you need to undergo a similar operation, but this time distraction will be sidewards. So Dr Raheja is lying if he says he can solve it by any other way than that.
Even I would be doing quad lengthening, with bone graft and inserting nail if necessary. Right now I am going though to select quicker procedure or one with fewest complications. I have already saved enough but I would also appreciate if you could share 15 docs/hospitals you considered over pm ::)
Btw, I am from Bangalore.
I hope you have a speedy recovery, but honestly, 54 days distraction implies at least 5 and half months consolidation.
-
For the last six months, I was thinking that I’m “okay” I’m fine, and I convinced myself that I don’t need help from anyone, no need to share the secret of having LL with anyone either..
And to be honest, it wasn’t hard a lot, I mean this forum give me strength to do that , and honestly, I don’t know what would I do if I didn’t receive the invitation to LL forum..
But today, it was a different day, and for the first time from 6 months I felt RELIFE that I’m no longer have to carry this pardon all by myself, Now there are someone who sharing that with me.. and to be more specific it’s not a certain person, they’re group of very kind of ppl, whom I really appreciate their help.. and they’re willing to do anything just to make sure, I’m “okay” and safe just as if I was in HOME..
As I mentioned before today I have had an appointment in UAE’s Embassy.. But unfortunately I wake up at 11AM, I have less than 30min to be prepare and go to the appointment.. I called the office and asked if I can come at 12 noon, and they said they’ll call me back, cuz the person whom I’ll meet is having a lot of meetings today, and I’m supposed to meet him in 11:30 not 12..
I know it’s my mistake again, I wonder how many ton of mistakes I could do in such a short time, I just messed up my chance again and all because I slept for an extra hour.. I started to blame myself in how I’m lazy and do all things in a very last minute, when a call interrupted all that, it was the secretary, she told me that her boss will meet me but I have to be there in 12sharp..
Ok I can make it, I dress up so quickly and got ready in 40min, of course my caretaker helped me but 40min is such a short time for someone who is paralyzed… so I got into the cab then immediately to the Embassy.. I reached there at 12:15… entered the building .. the ppl over there welcomed me and was so passionate asking me if I’m okay and what happened to me? And as soon as I started to speak Emeriti they draw a smile on their face and become more welcoming.. you know it’s a different when you’re in foreign country, and when you see someone from your nationality you feel somehow that you belong to him/her.. ~! I don’t know if I was over emotional.. but that’s what I felt at that time..
After 2min the colonel came, he greeted me and asked me how am I doing, I replayed as you see I CANT WALK.. Then I started to talk about my situation, how dr. lied to me about the duration of the treatment and how am I right now paralyzed and in the verge of being broke.. Although, the col. wasn’t so agreed to have LL from beginning but he didn’t talk much about that he focused in my health situation, how he could help, and what the best thing for me to do right now,.. He asked me why didn’t I came from beginning.. where am I staying right now, and who take care of me…
So long story short, they gave me some cash, told me from tmw they’ll start to send my report to another hospital, and they’re thinking of changing my hotel, to be sure I’m staying in clean and safe area.. and asked me to have an escort, I explained that I kept all the thing from my family.. and I want to keep it that way.. but they insist since I’m not in a very good health condition.. so when I went back to hotel I called my sister, told her that I’m disabled because I had a surgery, then she asked if it’s LL surgery (thanx oprah!!! ppl know about LL bcuz of ur show) anyway I answered by yes,, but Don’t Tell Anyone.. she was cool, didn’t nag too much “maybe bcuz it was over the phone” and she said she’ll come whenever I say so.. ..
So In next few days it will be clear for me what will happen next
I may sound so weak and dependent, but yeah I need help now, and it's better to ask for help when you need it.. :)
-
Awesome Diso!)) Im glad you got out and saw some familiar faces!)) Yeah and there is nothing wrong with asking for help!!))) Sometimes when you spend such a long time inside and without any action it can be depressive at times. Connecting and interacting with people is such a huge help!)
-
hey Diso it's normal that you feel homesick after being away so long! I am glad the embassy and family (thanks to oprah ha ha) are supporting you, the loneliness is often harder than the physical pain of LL. Rgkey is right. It's good to have people to talk to and not carry everything inside. Best wishes.
-
Disk,
I am very glad for you, these are wonderful news. You are very strong and independent, but even very strong person needs support and care of other people, especially in situations like this. Hope now things will get better for you.
-
So here what’s happen, as I mentioned b4 that I told my sis about the surgery and how it’s compulsory to have an escort for at least few days in order to get permeation so the gov will pay for all medical expanse + accommodation..
Well my sis came (she was here 10min ago), but not b4 telling everyone in home! She said I did what the best for you! She completely denied the fact that I told her million times that I don’t want anyone to know..!
Her intention was to make me back to home, set for few weeks then fly to Germany or US to get better treatment.. of course dad, bro all of them would help in that… sound good, right?!!!
No, not for me, god …how much I hate the censorship ! why do they think that I’m really in need for their help! And why in the hell they think I won’t survive without them! I told her no, I’m not going back home! Not now..! and not after you told my everyone… we spent around 3hours just arguing about this ..
And she told me something like I’m kind of selfish to not consider their feeling and do what I want ..!!
So now I won’t get the help from gov since I don’t have escort..! and I’ll defiantly not gonna agree to get back home to let my family take care of me and send me to US or Germany..
It’s not that I don’t want to get better treatment, but not in this way.. I could accept help from the gov cuz that consider as my right, but I’ll never accept it from my family.. !!
God, the next few days will have so much drama , I knw that .. ! I’m not even doubt that all my family could come here just to convenes me to go back.. !
-
Hey Diso, I think it's time you accepted your family help. Every one needs help sometimes, it's not a sign of weakness. I wish you the best.
-
oh believe me they don't wanna help....
they want to convenience me that I'm not good enough to handle or to make my own Decision!
and funny how UAE seems to be so close to India ! dad just arrived 2h ago
he came kissed my forehead, said that he is sorry to see me like that and guess what he wants me of course to go back NOW! no matter what
so do they care about me !! I would say fk no! he just don't want ppl to say that he's
careless to let his daughter had surgery in India !!!
so I told them that I'll go back but this would be the last thing I would obey him on, and I don't want to see him or anyone again.. and it would be better if I'd mange to change my family name ..
don't want to relate to him anymore... fk I'm not 12 yrs old !!
-
loaded with ultracet , have plane to catch in the morning .. so better to sleep now
-
Hey Diso,
I understand your feelings I think. I am independent and I'm not going to tell my family when I do this procedure. But it sounds like your family really wants to help you. Your dad got on plane to a foreign country to come and help you. Of course he cares. Right now you need to focus on what is best for you long term.
Best of luck to you Diso. I hope you can get the proper medical treatment soon.
-
Update :
since my visa expired , I couldn't go home ;D, Huh.. so dad and sis returned without me..
Hi Blackhawk, you're right I should focus on what the best for me.. that's why I would try to get a report from hospital (medical advice) stated that it's better for me to stay here rather than going to anyplace without prior medical plan from other hospital or clink.. ..
and that would help me... in which way? well just in case if I thought to sue dad in future..
-
You sure are disobedient. :)
-
Hello diso,
Im from kuwait im intersting in doing the surgery in india
Can you send me your email
-
hi hadi
I'm not sure if I'm in position to give you any advice since obviously I made a bad choice to choose rah.
-
no thing new to say..
I just fixed an appointment with Dr. Naveen this Monday at 11:30AM
and I visited some doctors one is in forti, the other is in Apolo hospital, all of them agreed that the best thing to do right now is to do more pt, and do bone graft .. and wait for 6-7months more..
if dr naveen will suggest the same, I will go to forti hospital and start pt, and bone graft.. I will stay there too since it's seems to be much better than hotel..
I think I can stay 6 months more here in india, if that would ended up with good outcome..
-
"Apolo Hospital", they have some funny names, they should have an LL hospital called "Pistorius Best Hospital" 8) and Dr Pornanakethong should work there.
Its nice that you've talked to someone.
How is your mood doing, are you feeling bored, do you need steaks ?
-
Don't you regret yourself so bad??
Is it a pain in the butt that everyone who warned you ended up being right and you being wrong?
You should be very happy if you are able to walk close to well next year.
Best of luck.
-
Hope you doin well
Best of luck
-
Don't you regret yourself so bad??
Is it a pain in the butt that everyone who warned you ended up being right and you being wrong?
You should be very happy if you are able to walk close to well next year.
Best of luck.
Sweden,
Do you regret yourself so bad?
-
I dont see the point of having regrets, now its done anyway, isn't it ? Best of luck Diso... dont Diso too much -)
-
Sweden,
Do you regret yourself so bad?
Certainly not.
I ran very well yesterday and I can do my Taekwondo.
I'm sorry to say Diso will never be able to run well again.
-
Sweden, all you come to post in this diary is repeatedly tell Diso that she will be crippled and never run. You did the same thing in another thread about Shorty. Wtf is the problem with you loser?
I don't need to point out how many times you been moaning and bitching about how your life is ruined and you are depressed. Now you come here taunting Diso about whether she regret LL. You have problems man.
-
Certainly not.
I ran very well yesterday and I can do my Taekwondo.
I'm sorry to say Diso will never be able to run well again.
I'm sure Diso will be able to run fine eventually. In fact I think can probably run better than Sweden right now. :)
-
You are both idiots.
-
You are both idiots.
Muhahaha man i missed those consctructive comments 8)
-
You are both idiots.
In case you are not aware, your remarks toward Diso are malicious and not coming from a good place. Stop posting in here and making people uncomfortable. Are you a LL Doctor? If not keep the unconstructive opinion for yourself.
-
I don't fancy sugar coating when someone is destroying themselves.
Some other fool might take it for a good idea.
-
I don't fancy sugar coating when someone is destroying themselves.
Some other fool might take it for a good idea.
You been saying this since page 1 and we are on page 27. Have you got anything new and constructive to say?
-
Problems can be fixed, especially if you know what's causing them and how to do it. It's obvious what's wrong with Disobedient's legs. When she gets the money to go to a competent doctor he'll be able to fix her misalignment. I don't think she had aspirations to be a world-class athlete after LL anyway.
-
Not everything can be fixed. A stretched out ligament can ache for the rest of the patients life. Upcoming surgeries to "fix things" can be devastating.
Sure, if you only settle with walking then fine, go ahead and destroy yourself.
Sometimes you just need to run. To the bus/train/airplane or for your life.
-
Diso didn't really lengthen that much. She could easily do more without stretching her ligaments to the point where they'd be painful for life. I think if she goes to a competent doctor in another country instead of continuing to go bargain shopping amongst the dregs of LL doctors in India she'll be fine.
Whether she runs again is up to her and how she handles herself going forward with treatment.
-
What's done is done. One can never make right decisions all the time. Just count our lucky stars and hope for the best.
Advice for future LLers. You must have strong family support, money and time. Do not go into LL halfassed thinking you'll be alright in 3 months. The best scenario is 7 months to a year for 3 inches or less gain.
-
Sweden the point people are trying to make is that your comments don't do any good after the fact.
Not everything can be fixed.
This is true. Your mental issues probably can't be fixed.
You are both idiots.
Have you read your comments? You're usually either being rude to people or acting like a baby.
Can we see a video of you running?
-
Sweden the point people are trying to make is that your comments don't do any good after the fact.
This is true. Your mental issues probably can't be fixed.
Have you read your comments? You're usually either being rude to people or acting like a baby.
Can we see a video of you running?
Then you clearly haven't read many of my comments.
I'll do a video this week.
It won't look good.
-
Diso, keep your head up and stay positive and I guarantee you will prove Sweden wrong 8) Keep us updated since most of us are here to support you during your hard times!
-
Then you clearly haven't read many of my comments.
I'll do a video this week.
It won't look good.
You are an a**hole dips**t sc*mbag.
Now read my rest of comments to see how much I have contributed.
Refrain from personal attacks and posts void of any content or information...
"You are stupid" kind of comment shows kind of anger you have, please channelize that anger to achieve something great (if you are already great, try being legend), rather than directing at people here,
IT IS NOT HELPFUL and nobody wants that! So keep that to yourself.
I have made my point.
-
You are an a**hole dips**t sc*mbag.
Now read my rest of comments to see how much I have contributed.
Refrain from personal attacks and posts void of any content or information...
"You are stupid" kind of comment shows kind of anger you have, please channelize that anger to achieve something great (if you are already great, try being legend), rather than directing at people here,
IT IS NOT HELPFUL and nobody wants that! So keep that to yourself.
I have made my point.
The name calling shows the level of your intellect my cro magnon friend.
It is a great shame if people would copy Diso to do 10cm fast.
-
The name calling shows the level of your intellect my cro magnon friend.
It is a great shame if people would copy Diso to do 10cm fast.
OMG this is insane. First you wrote -
You are both idiots.
And when people said you shouldn't do it, your reply was -
Then you clearly haven't read many of my comments.
I'll do a video this week.
So I just pointed out your bad logic by saying -
You are an a**hole dips**t sc*mbag.
Now read my rest of comments to see how much I have contributed.
.
.
I have made my point.
Clearly you didn't got the message. You were the one who called others idiots. Whatever name calling I used was just for sake of example. I don't mean any of it.
-
What happened here :D ...?
so I met Dr. naveen as I had an appointment with him today at 11:30 am
-what is the hospital (ROCKLAND) looks like?
crowded, don't like the building that much.. kindda small if I'll compare it to forti
- The cost?
I thought they'll charge me more since I'm international patient, but actually they didn't I pay 2800 for both consultation (1000INR) and x-ray , it's cheap
- staff and service?
well cant judge but I took long time to see dr naveen although my appointment was in 11:30am, the staff not friendly as in nova or forti.. and I'm not saying they're not friendly too..
-The meeting
so I met Dr. Naveen (and another dr) and he asked some questions ... and he was totally shocked to knw that I had LL from 7 months ago .. not just because of the formation of my bone which it seems to be weak but also because Rah didn't advised me to stand and walk til now.. he said ( Dr. Naveen) monorail is weight bearing you can walk..
so he asked me to have new x-ray.. so I did, and based on the new x-ray he said the tibia is fine so start "dynamisation" , and I asked if I'll lose sm mm , he said no you'll not...
he said I should start walk/stand from now on and for 3 weeks more.. then come to meet him again..
- internal nail for the femur
he was against it, as he explained it's too late, and I SHOULDN'T do it now, since it wont be useful at all..
- Knee bending
he said I have to remove the fixator first, then start pt for my knee, since the pin is what prevent me to bend my knee (as he said)
-x-leg and alignment
according to him I have to stand first then he'll see about the x-leg..
- removing the fixator
2-3months ;D
when I finished and on my way to the car I found him speaking with another doctor in Hindi ( but from what I understood he was kindda surprised that I had quad LL ).. then the other Dr came to check on my legs , they tried to help me to get in the car but I told them I can do that By myself ..
so he (dr.naveen ) told me to call him anytime .. (he forgot to give me his phone though.. )..
I'll post the x-ray when I'll receive it (I asked them to email it to me ) ..
-
Hey Diso,
Sorry about some of the posts in your diary.
Although I like Sweden, I just got tired of him posting the same bull here about how you "wrecked your life" and "you'll never walk again".
2 to 3 months isn't bad. You'll be walking fine soon :)
How are you feeling?
-
Good news about the 2-3 months for fixator removal. It looks like there is some light at the end of the tunnel.
Aside from the state of the hospital compared to Fortis group, what did you think of Dr Talwar in terms of kindness and level of knowledge? Also, did you catch the name of the other doctor? Was it Dr Gurdeep Singh Ratra?
-
Blackhawk
no worry, actually the more he posts such a comments , the more I become so focused to get better and recover soon just proof him that he is wrong ;D ..
2-3 months for indian doc means 4-6 .. in either way I think I still can stand the fixators
Kilokahn
yes indeed , his name is Dr Gurdeep Singh Ratra, this is his picture,
(http://www.rocklandhospitals.com/uploaded_files/doctors/pi_image1_83.jpg)
both of Dr Gurdeep and Naveen were so kind to me, and will answer all questions you have, as I said before dr naveen told me to call him whenever I have question or problem "although I'm not his patient and I just came for 2nd medical advice"..
about his knowledge .. hmmm.. he didn't talk about his previous/current patients,, and all what he said I heard it before from other ortho doc in forti and Apolo hospital..
and actually both of the doctors (naveen and Gurdeep) seems to have same level of knowledge, but I don't know about their surgical skills
-
None of these doctors you're going to seem concerned about the misalignment of your femurs. I wish you'd go somewhere like Beijing for a consultation because it looks quite bad in the x-ray.
-
None of these doctors you're going to seem concerned about the misalignment of your femurs. I wish you'd go somewhere like Beijing for a consultation because it looks quite bad in the x-ray.
I don't think I can do anything about it right now
Dr.Guichet as an example, told me to do nothing about it and wait til my bone consolidate and remove the fixator ..
-
I don't think I can do anything about it right now
Dr.Guichet as an example, told me to do nothing about it and wait til my bone consolidate and remove the fixator ..
Dr Parihar told Shorty the same thing when he sent his x-ray right? Basically that surgery at the moment carries risks and he has to wait for his bone to heal. Shorty seems to have the same misalignment issue.
-
Okay, I guess waiting is all you can do at this point. Hope you stay strong and positive while you wait. ;)
-
Diso,
I've been researching some articles online (http://timesofindia.indiatimes.com/city/bangalore/More-going-in-for-grow-taller-surgery/articleshow/6862429.cms?referral=PM) and reading some Indian diaries on the old forum and I'm planning on visiting Bangalore soon and checking out Sparsh and Hosmat hospitals. Have you heard of these by any chance? Any thoughts on Bangalore over New Delhi? Thank you.
-
Hi leo
Never heard of them.. the only one that I remember I contact them is http://www.bangalorepediatricortho.com/servicesmore.html
and I don't even think I got reply from them ..
But why don't you go to Dr. Mangal Parihar ..?
-
Sparsh has Dr Tejwani and Dr Patil. They do external only. The only LON patient they had resulted in a non-union and they stopped offering it afterward.
-
The patient was a vegan and this delayed his healing. But he recovered afterwards and posted on old forum videos of him walking and dancing, etc. I just want 5 or 6cm and external-only works fine for me.
-
Ok so this is my last x-ray
as you can see there is little improvement in the callus.. but it is still so weak in the femur..
(http://oi61.tinypic.com/2uy4zg8.jpg)
(http://oi62.tinypic.com/14ipo8z.jpg)
-
good luck disobedient
-
Are you considering to do nail or plating?
I hate to say this after looking at that xray, it looks like you need at least a few more months (3-6) for it to consolidate enough for removing the monorails. You'll get better estimation from the Doctors of course.
-
I agree that Disobidient was very stubborn and wanted to get her way, but let's respect everyone's choices even if they are not the smartest or don't seem to agree with everyone else. The milk is already spilled now there's no way to go back but to figure out how to clean the mess.
-
I agree, this diary should be an eye opener but instead of tormenting, disrespecting and calling her names, why not encourage her now! At the end of the day she is still human and prone to make mistakes like all of us here! She needs our support and we should at least respect her for continuing her diary even when faced with negativity from LL Forum members.
-
Stop talking . She is a person that needs our support. Not to be humillated . Some coments remains me people that like to humillate short persons for their height. These things that some ones are telling her hurt a lot and it shows that some ones are bad persons. This forum must be to help people not to insult them
-
I have removed Adriano post and he is warned about this first, given the benefit of the doubt. Repeating it again will led to a short term ban.
You can talk about this risk or advise about that complication, but it's very clear when the line is crossed. It's no longer advising out of goodwill saying things like "Play with fire and you will get burn".
Even if you don't agree with her decision, what's done is done even if it was a questionable decision.
As a fellow LLer, help her recovery with medical information and emotional support. If you were in the same situation in a foreign country, you would want this support.
We are going to enforce this for all diaries/journals. If the intention of posting is to put down or ridicule somebody sharing their experience about doing LL, forget about it.
http://www.limblengtheningforum.com/index.php?topic=37.0
-
Hi Diso, hope everything is good. Well the calus is not great in my opinion and the alignment needs to be fixed. But its just a matter or time. I admire your strength by the way.
-
Dear mother of god. :o
That thing will probably give you life long problems. I really hope not.
I will send you $100 if you ever can show us that you're running close to normal.
-
Hey Diso,
Cheer up. There are many people on your side helping you through this tough time.
-
Hey diso i hope you get better. And dont get care in stupid comments
-
You are fine Diso!)) Even my doctor said it wasn't bad at all. And I was talking to soneone about you and how lucky you are!!!! You are really lucky!!! Your doctor took a big risk to do what he did to you but you had a really good luck!!! Your xray looks fine. And u showed me the side xray and it was ok from what I remember.
Keep it up!)) For the amount of lengthening you have done you are doing great!))
Whenu start walking more and eating more you callus will be better.
And please!!!
Dont let every stupid clueless idiot discourage you with none sense comments))) I really don't give a s**t what people say, I live my own truth and I wish you do the same. You are a disobedient so of course))) lol
Im sure you will go back to normal in time!!)) There are many people who did half of what youve done and are in worse shape than you.
So f**k everybody Diso!) I mean not literally haha lol... well that's your business but use protection. Not for real you are doing good girl!) Chao!
-
Disobedient,
Are you able to walk with crutches?
I think walking will be better than other exercises because it will help your bones heal faster.
-
Hey diso, I hope all is well! Maybe you could take a video of yourself walking? I'm sure some veterans could offer you advice. Good luck, I'm rooting for you!
-
Morning :)
thanks all for your kind comments , I do really appreciate... :)
Well I know I did mistake by choosing Rah, and doing just external.. however I'm not regretting the 11cm at all .and as RGKEY said I think really I'm fine .. Yeah I do have misalignment..but right now I cant do anything about it and I mentioned that in several posts..
Regarding the walking .. humm I'm suppose to walk with crutches or walker. to speed up the consolidation... I did stand sometime (maybe just 3-4 times in last 7months!!- I know it's few times)
But since I'm moving to Forti hospital after 2-3 weeks, so I decided I'll let the PT help in that...
one of the Dr told me if I will not stand now, then it's better to remove the frame and put plaster ,so at least I could work on knee bending ..but he was advised it is best to stand now and walk ..
Sweden : ha ha, I think you do believe that I will run close to normal since you said just 100$ otherwise you'd say 1000$ or even 10,000$ ;D
-
Haha. Sweden you been writing so much . Make it $1000 or shut up. U got the balls punk? :D
-
I hope you will be able to run.
$100 is realistic and something I will pay.
-
Diso,
Do they use Ilizarov at Fortis Hospital? You know how much they're currently charging for bilateral tibias? Could you get me the Dr's e-mail? Thank you.
Leo
-
Diso,
Do they use Ilizarov at Fortis Hospital? You know how much they're currently charging for bilateral tibias? Could you get me the Dr's e-mail? Thank you.
Leo
yes they use Ilizarov , and it's something around 6000$, however you could get it with 3500-4000$ when you contact them say you heard it cost 3500 USD and if they claimed other than that then tell them you cant afford more than that...
the thing is they are really charge something around 3000 but for international patient they would change the price ...
I'll send you the email..gimme an hour..
But why forti? and what's your budget anyway?
-
Morning :)
thanks all for your kind comments , I do really appreciate... :)
Well I know I did mistake by choosing Rah, and doing just external.. however I'm not regretting the 11cm at all .and as RGKEY said I think really I'm fine .. Yeah I do have misalignment..but right now I cant do anything about it and I mentioned that in several posts..
Regarding the walking .. humm I'm suppose to walk with crutches or walker. to speed up the consolidation... I did stand sometime (maybe just 3-4 times in last 7months!!- I know it's few times)
But since I'm moving to Forti hospital after 2-3 weeks, so I decided I'll let the PT help in that...
one of the Dr told me if I will not stand now, then it's better to remove the frame and put plaster ,so at least I could work on knee bending ..but he was advised it is best to stand now and walk ..
Sweden : ha ha, I think you do believe that I will run close to normal since you said just 100$ otherwise you'd say 1000$ or even 10,000$ ;D
Haha!!! Sweden doesn't have any money! :)
Diso will run faster than Sweden one day.
-
I hope disobedient will run , but we will see. .. Should just worry about walking now, not running.... and have realistic goals to achieve
-
I find Sweden's comments very entertaining and hilarious even when he is quite serious. Sweden the pessimistic comedian!! You should honestly give up taekwondo and do stand up comedy.
-
I find Sweden's comments very entertaining and hilarious even when he is quite serious. Sweden the pessimistic comedian!! You should honestly give up taekwondo and do stand up comedy.
Lots of people say so. ;D
I can never do Taekwondo like before. It's ruined.
-
Diso,
I would like 6cm and I got around 10k but in my budget this should include surgery + accommodation for 7 months + caretaker + roundtrip plane tickets India to America. I read in the other diary that renting an apartment should be about 7500 rupees/month (~125USD) and a caretaker 5000 rupees/month (~85USD) -- do these sound like realistic prices to you? I mean, I don't want nothing fancy but neither the lowest of the lowest. Thank you.
Leo
-
TheRisingShorty
You really found his comment hilarious ? well I wrote haha but not bcs he's funny .. you know this kind of haha...
(https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcTyeqMNCRw6fXPd7EMkdvVQNDIqkm67kxakJsyzaGff6WHsEoe02A)
crimsontide
Thanks .. yeah my priority now is to stand and walk.. of course regain some of knee ROM
LEO
I dont know if you would manege to do that with 10000 USD ..!
yeah you could get apartment with 7000 INR but no AC, and usually the apartment would be in 2nd, 3rd floor and no elevator !!
care taker with 5000 yes this possible but per in mind you'll pay for the agency first something around 10,000-15000 INR..
the food in India is cheap..
but what about the x-ray? the cab?
for the x-ray you may need to pay 1500-2500 INR and for the cab something around 1000 and that would be for every 3 weeks
and you talk about external only where you may have to stay for 7months AT LEAST, you may need more time..
choosing the external only will not make you save money if you plan to stay in India til removing the frame ...
Find 2-3 and do LL together at least you may save some money with sharing same care taker and apartment..
and do LON with naveen he is charging some thing around 7000 USD at least you know this dr is recommended by dr paley.. with LON stay til you done from lengthening (distraction )
then go back home.. with 10grand this is the only safe option I can think of..
-
TheRisingShorty
You really found his comment hilarious ? well I wrote haha but not bcs he's funny .. you know this kind of haha...
(https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcTyeqMNCRw6fXPd7EMkdvVQNDIqkm67kxakJsyzaGff6WHsEoe02A)
I just find his general pessimism quite entertaining, funny and should be taken lightly not seriously. That's why I have named him Sweden the pessimistic comedian!
Stay strong and positive Diso and I bet you will prove Sweden wrong and get the $100 off him!!
-
Thanks Diso, I mean I've got saved more than 10K but I don't want to use it all, and I don't want any nails inserted in my bone marrow this is why I would prefer external only even if it takes several months. I gave my social life up long time ago and another year or so wouldn't make any difference to me since I have no rush to come back home + I play guitar and believe me this keeps me entertained all day long. I have thought of going in October when it's winter and may not need AC and choosing Sparsh Hospital in Bangalore due to its reputation and the trajectory of the doctor that operates there. One more question, I was thinking of getting a medical visa and just buying a one-way ticket since I wouldn't know for sure when I will come back; do you think that this will be a problem when arriving to India? I mean, I don't want to have any problems at the airport for not having bought a round trip ticket. If you could find out for me I would appreciate it. Thank you for your advice.
Leo
-
I suggested to go back home because I supposed that you'll not have to pay for anything over there...
I really want everything goes well with you leo, I'm not saying India is not good destination for having LL, but seriously from what I see they almost take everything easy..it's like if they don't heard of thing called complication.. so be careful when you gonna choose your Dr.. Did you consider Russia ...? I think it will cost you 6000 USD over there...
Regarding the visa, don't worry.. no need for round trip ticket when I came here (to India ) I had just one way ticket and I didn't face problem with that..
and my visa was tourist visa I paid 8000 INR to convert it to med visa ..
just take appointment here and let one of employee in international dp in the hospital that you'll choose to complete the rest.. you could do it by yourself too..
http://indianfrro.gov.in/frro/menufrro.jsp?t4g=8285N16V
you can extend it in the same way ... but be aware to extend it b4 it expired .. otherwise you would have to pay plenty.. I was late one month so I paid last time when I went to extend it 6000 INR.. (1200INR for extension -4800 plenty)
-
Diso, thank you for your info. One more if you don't mind. I'm trying to decide how many days I should book my hotel for; I mean how long it took you from the moment you agree with the Dr to have the surgery to be accepted into the hospital? And I'm guessing the apartments you rent are not furnished right? I suppose I have to buy my own bed, chairs, TV, etc, right? Thank you so much and keep us posted with your recovery.
Leo
-
Good luck Disobedient! Keep us posted!
-
Good Evening
Short_and_depressed
yes sure, thanks
Leo
I'm staying at hotel since I couldn't find a good apartment..
the apartment is not a good option since I stated it's hard to find one in grand floor.. and I can't choose apartment in 2nd or 3rd floor without elevator...
You can find a service apartment (1bedroom and bathroom) with t.v,cable, AC, water heater but that would be 20,000 INR/month..
with 6000-7000 INR/month, you'll not have ac, tv, or anything else .. just 1 or 2 empty room..
actually I remembered I talked once to a nurse (sister in india) about the apartment and its cost
and she told that she live with her friends in apartment that contains (2 bedroom, 1 kitchen, 1 bathroom, and big hall) and all rooms is provided with AC.. with something around 6000 INR/monthly.. so you may get good deal if you were an Indian.. It also depends in the place Bangalore and Mumbai is much expensive than Delhi.. so Good luck in finding good apartment.. just make sure when you choose one is to be in grand floor, and at least provided with 24h power-back..
I spend one week in hotel b4 the surgery.. 5 days (b4 deciding ), but if you gonna choose apartment then you may need 10days to arrange all things with care-taker..
-
When I will be Sr. member ???
-
When I will be Sr. member ???
That's the question :'(, maybe you should put a more "professional" pic, something like that :
(http://thumb10.shutterstock.com/display_pic_with_logo/303652/143495167/stock-photo-pretty-girl-works-at-the-computer-143495167.jpg)
-
so I google professional pic
and I found the majority of pics with ppl cross their arms .. I dunno WHY!
(http://lifestyle.iloveindia.com/lounge/images/hairstyles-for-business-professional.jpg)
(http://www.waveinternet.com/media/ecom/prodlg/Consulting.jpg)
(http://prsasacramento.org/wp-content/uploads/2012/01/professional.jpg)
So I decided to put a pic of little memole crossing her little arms but I could find one
maybe this one will work
(http://static2.dmcdn.net/static/video/057/753/50357750:jpeg_preview_large.jpg?20120930162919)
-
Yeah that's better reallyyyyy pro 8), maybe you should put "memole" on your resume too. I think its because they are thinking "WTF am i doing working for such a silly company, my life sucks". Ok now if you don't get promoted on this site to chief LL executive then i will just leave this forum.
-
I'll move to forti this Tuesday.. I'll start bone marrow injection...
Mom keep crying every time she call me .. she didn't seem believe that I'm fine no matter how many times I explained for her that everything is alright and all what I need is some time... but she didn't believe that too.. well that's why from the beging I kept all the things away from her..
but god.. it's really hits me every time she called and start crying .. she is very old , almost 60 yrs.. that's why I don't expect that she'll understand why I did LL
but at this moment all what I want is ,if she can forget about me, not for anything.. jut I don't want to cuz the pain for her anymore..
DON'T TELL YOUR MOM (specially if she was old) ABOUT LL, CUZ SHE WILL KEEP WORRY ABOUT YOU ..
JUST SAFE HER FROM THIS EXTRA PAIN
:-\
-
I'll move to forti this Tuesday.. I'll start bone marrow injection...
Mom keep crying every time she call me .. she didn't seem believe that I'm fine no matter how many times I explained for her that everything is alright and all what I need is some time... but she didn't believe that too.. well that's why from the beging I kept all the things away from her..
but god.. it's really hits me every time she called and start crying .. she is very old , almost 60 yrs.. that's why I don't expect that she'll understand why I did LL
but at this moment all what I want is ,if she can forget about me, not for anything.. jut I don't want to cuz the pain for her anymore..
DON'T TELL YOUR MOM (specially if she was old) ABOUT LL, CUZ SHE WILL KEEP WORRY ABOUT YOU ..
JUST SAFE HER FROM THIS EXTRA PAIN
:-\
i feel for you Diso, iv'e been there, but hidding LL from your parents specially if they are close to you is very hard, thereare so many questions left hanging, the best you could do is what I did, just adding to your regular talks with her send her pictures of you in nice places if possible or with other people, etc.. i understand maybe this is not possible for you, but you could try))
at the beginning my mom was suffering but after she saw all my picts, well PG pictures)) she understood that I was fine and she was ok after this. I know how terrible your situation is, trust me it broke my heart everytime I knew my mom was suferering because of me, i felt so selfish... all you can do is just try to brainwash your mom into thinking that you are fine.
-
It must be very hard, now thats it's done you have no choice anyway, just show her that you are safe and tell her that you come soon. But yeah in this case trying to hide it was the only solution. Get back to your old life and maybe try to do something she likes when you see her. Best of luck.
-
I'll move to forti this Tuesday.. I'll start bone marrow injection...
Mom keep crying every time she call me .. she didn't seem believe that I'm fine no matter how many times I explained for her that everything is alright and all what I need is some time... but she didn't believe that too.. well that's why from the beging I kept all the things away from her..
but god.. it's really hits me every time she called and start crying .. she is very old , almost 60 yrs.. that's why I don't expect that she'll understand why I did LL
but at this moment all what I want is ,if she can forget about me, not for anything.. jut I don't want to cuz the pain for her anymore..
DON'T TELL YOUR MOM (specially if she was old) ABOUT LL, CUZ SHE WILL KEEP WORRY ABOUT YOU ..
JUST SAFE HER FROM THIS EXTRA PAIN
:-\
Yeah I'm not going to worry my friends and family about this. It's not worth it unless you need their help maybe. There's probably only 1 or 2 friends I can tell about this.
-
RGkey
yes you're clever ;D ..taking pictures sound as a brilliant Idea.. definitely I'll try to do that when I'll move to forti.. maybe I'll picture the food, since mom believes that everything would alright if I eat hehe
thanks RGKEY .. Really thanks your tip for sure will work and will make things better.. ;)
TheRisingShorty
If you have no other choice but to tell her .. then you have to be mentally prepare.. cuz as RGKEY said you'll feel for sometime that you're selfish
But I wonder really if staying at home while lengthening will make things better.. I mean if u stay at home then she'll be observing the amount of pain that you have and you can't lie about it.. but also it may sound good idea since she may feel much comfy that at least you're in home and she can take care of you.. of course staying at home while lengthening wont be good option unless you did the surgery in your city..
Claude
Yup..I'll try to do that..
hey claude I'm still full member.. changing to prof pic didn't help :(
Blackhawk
The only one I told about LL is my big sis, and she told everyone..
be aware whom you'll tell..
-
Claude
Yup..I'll try to do that..
hey claude I'm till full member.. changing to prof pic didn't help :(
Ok im done with this site i can't stand the injustice : your pic is the essence of the word "professional" 8), I mean if i saw this pic on a resume i would think : "damn i need to let this person manage the nuclear power plant im working in". See you next year when you get promoted -) and ready to walk and get your 100$.
-
Your threat of leaving the forum worked.. I'm now sr. member ;D ;D
-
Your threat of leaving the forum worked.. I'm now sr. member ;D ;D
:)
-
I think I deserve a member status upgrade too.
-
I think I deserve a member status upgrade too.
Sorry bro you don't have a memol...memo, nemo ? whatever is the name of this "thing". Sr member is for VIP's only. Maybe you can try wearing a mask and posting some videos of you doing somekind of martial art ?
-
And why is it important to get a status member upgrade!?? Lol
-
It happens automatically when you get to 250 posts.
-
It happens automatically when you get to 250 posts.
Dude you're breaking all the magic :'(
-
LOL ::)
-
I should start posting more posts. But I'm not a talkative person.
-
I should start posting more posts. But I'm not a talkative person.
Lol, but what's the point really of this Sr member flag ? (Yessss one more message ::) im coming Sr member )
-
Medium and myself both got demoted from hero rank. We're not worthy :-[
-
Dameon was getting jealous I guess. ;D
-
Medium and myself both got demoted from hero rank. We're not worthy :-[
But you have 3 stars bro, im feeling like a need this now to be happy in my life :'( I need to be a super LL Forum hero.
-
But you have 3 stars bro, im feeling like a need this now to be happy in my life :'( I need to be a super LL Forum hero.
You need to lengthen 4 inches on each segment to be a LL Forum hero.
LOL.
-
You need to lengthen 4 inches on each segment to be a LL Forum hero.
LOL.
Ok ill do it, not because i need LL BUT because i need those 3 little stars, let's do it man 8)
-
Well it's not a lie.. I meant what I wrote, I started almost 3weeks ago , I removed some pins in the both femur.. Where i succeed to remove all the pins in my right femur (so I started to sleep on my side) ::) .. and I started to wear the brace which I bought online (about 165 USD)
However there were few of pins lift in both tibia and my left femur.. after that I noticed immediately that my knee bending improve A LOT..
I stand up a little bit and a Miracle happened to me.. the duckass disappeared.. I was so happy since it bothered me a lot and I was worry about it too.. and absolutely I have NO ballerina foot…
It feels awesome not as same as when you wear shoe lift pads.. it’s way more better.. I hope if I lengthened more than that.. ! I’m seriously thinking of having another surgery..
Last Wednesday, I had an x-ray which shows that my callus is good enough to remove the frame, it was hard to see the cut line..! anyway.. I went to local hospital where they advised for admission in the hospital to remove the other pins.. they said the pins that I removed by myself where kindda lose, however the rest are so tight and I need to be under the anesthesia when they’ll remove them. and that what happened .. ( I paid about 1000 USD)
when I woke up I felt slight pain in the pin site area.. the Doctor told me to use the walker for an extra 4 weeks til my bone will totally heal …
Now my knee bending is much better !! I can bend my right knee to 90 deg, and it’s getting better day by day..! I wasn’t imaging that the knee bending issue would be solved so quickly.. I still have to regain full knee ROM but I’m sure that will happen so soon .. but Now at least I can sit for long time .. and drive my car without feeling any pain.. and guess what.. I don’t use my wheel chair anymore.. !
OK this post I wrote it.. but I didn’t mean ,myself (me (diso)).. nah ,, this is shorty. .. but I’m happy for him anyway,, and I’m sure I’ll came here in some days and will post the same thing
-
Ohhh good for shorty (i was like WT...Diso is Hulk and she can't drive she's still a kid :P), it will come for sure -),
-
Hulk...? the green giant thing ~..? ???
-
Hulk...? the green giant thing ~..? ???
Yes but a cute Hulk ::) (http://fc03.deviantart.net/fs70/f/2011/230/6/5/comm__she_hulk_fight_by_interpunkt-d4724uu.jpg)
-
How much lengthening did shorty do? Diso I think you still have a good amount if time to consolidate so be careful.
-
I see, so I just realized that male kids between 20-40 have very wide imagination among all the creatures :-X
and it seems there is always girls try to fulfill their dreams ! !!!
(https://c2.staticflickr.com/8/7380/9456803767_0355757fb7_z.jpg)
that's the weirdest costume I ever saw !!
ok and shorty said too.. it seems it doesn't really matter if you walk or not your bone will consolidate almost at same time ...
-
How much lengthening did shorty do? Diso I think you still have a good amount if time to consolidate so be careful.
humm he did 5cm almost half of amount that I gain (11.3cm)
I wonder if that mean I have to wait double time ..
-
humm he did 5cm almost half of amount that I gain (11.3cm)
I wonder if that mean I have to wait double time ..
Well it's 11,3/2 so it's quite close to him no ? Maybe im wrong please correct me :D
This girl scares me :'( im not even sure thats a girl ???
-
Well it's 11,3/2 so it's quite close to him no ? Maybe im wrong please correct me :D
This girl scares me :'( im not even sure thats a girl ???
11,3/2 close to him ?? I didn't get it ? I said he gained almost half amount that i gained
-
humm he did 5cm almost half of amount that I gain (11.3cm)
I wonder if that mean I have to wait double time ..
When did he stop lengthening? You may have to consolidate for twice as long but everyone is different.
-
yes, everyone is different... he stopped 3 months ago.. 2 months after me ..
-
11,3/2 close to him ?? I didn't get it ? I said he gained almost half amount that i gained
Ohhh i thought he did 5 cm in ONE segment... but i suppose he did 2.5 in the tibia and 2.5 in the femur ? If so then you are right it should be close to 2 times longer, but i think the time it takes is not "linear", maybe its closer to being exponential, meaning the more you lenghten the more the time to recover increases fast.
-
in exponential function the time (y) will be close to infinity !..the liner is more realistic ..
anyway Dr.Naveen said I need 2 months.. that's mean in June or July.. where I'll be completed 9-10 months.. I think it's reasonable time for total 11 cm
-
in exponential function the time (y) will be close to infinity !..the liner is more realistic ..
anyway Dr.Naveen said I need 2 months.. that's mean in June or July.. where I'll be completed 9-10 months.. I think it's reasonable time for total 11 cm
humm but if I assumed the time is x ..it may sound right ...
I think I forgot the math I learned in the last 4 yrs . .. I wonder if I still remember anything about c++ or MCU!
-
humm but if I assumed the time is x ..it may sound right ...
I think I forgot the math I learned in the last 4 yrs . .. I wonder if I still remember anything about c++ or MCU!
Yeah well you know what i mean -) Maybe you should do a simulation in C++ (what is Lambda here ? mmm) just in case ha ha.
Just kidding (or am I ? ???), hope it's very close to being consolidated, June or Jully would be great.
-
after 7-10 days I'll have plate implant for the femurs
also, I tried today again cocoberry.. it's not tasty as pinkberry in Dubai..
-
Smh...why anyone would choose India for lengthening. :/
-
Smh...why anyone would choose India for lengthening. :/
Probably It's a lot cheaper than going to other country or people who really want it badly can only afford going there.
I don't think India is a really bad place to go to just because of "some" doctors. Anyhow It's somebody's decision to make.
-Happy to know you're already driving Diso! You're such a warrior(Legendary)!
can I ask how much is the overall cost of your operation, X-rays, accommodation, etc. (just a rough estimate)
Hoping for your speedy recovery!
-
shorty broke his right femur.., he was going (down or up) stair using crutches then .. flop.. he fall down :'(
so they took him to Military hospital (that's mean he didn't pay for a thing) where they inserted a titanium nail rod in his right leg, also they told him they corrected the small discrepancy that he had.. and now they suggested to insert another nail rod in his left leg, and to correct the alignment too..
I don't know if this was good or bad thing ..! but the fact that they will correct the alignment it's a good thing , also I'm worrying about the infection thing .. since most of the doctors weren't suggest inserting nail rod at this stage, as it may cause infection..
hope everything will going well with him..
inches,... if you came out from my previous post by a conclusion that I'm the one who is driving !!, then yes I am and thanks :D
surgery --11 grand
1000-1200 USD/ month for other expense ( x-ray, transportation, caretaker, hotel, food,etc..)
-
Sorry about what happened to Shorty, I hope there won't be any complication/Infection arises. And thanks for the info Diso!
I'm hoping that both of you will recover smoothly after everything that happened.
-
you're welc, in shorty's case as the drs said there were no other option .. seems he is doin' fine thinking that he is bending his knee 170 deg by now..
-
I said yes and still have chance to change my mind til tmw ..
two Emirate doctors met me today.. and told me that my request (so the gov pay for my treatment) is under the process ..
and they told me that I have this wonderful option .. is to return home for a week and then go to Germany or US instead of completing the treatment in India ..
I dunno but I think the way they said it sounded different than dad, so I said yes!!!
and now feeling little regret ?! I don't think I really want to go home .. but I have to choose what the best for me .. :'(
and still think to have (quick nose job) ;D ;D :D
god I know with these rush decision I'll make one or 2 mistakes.. suddenly out from no where I'm thinking now why don't I have tummy tuck I'm not fat 56kg .. but tummy tuck would be great ......... !
-
Hey Diso,
How are you doing?
-
Diso,
How's the progress going? Did you get to go home or you're still in India? Please, keep us updated. BTW, did you get any vaccinations or infection meds before coming to india? Do you know if it is mandatory before travelling/entering India? I bought my ticket for August and don't want to be surprised at the last minute.
Leo
-
Hey Diso we haven't heard from you in awhile.
Let us know how you are doing and if you are still alive. :)
-
Hope everything is cool Diso, best of luck, stay strong.
-
I respect breave ppl but I have no respect for stupid ppl sry .
-
I respect breave ppl but I have no respect for stupid ppl sry .
We all make mistakes bro. By the way diso, are you sure you want to do more surgery ? Maybe it's just in your head and won't make you happy. Be careful anyway.
-
I respect breave ppl but I have no respect for stupid ppl sry .
Yeah I have no respect for stupid people either. Btw what does breave mean? Try spell check moron.
-
I said yes and still have chance to change my mind til tmw ..
two Emirate doctors met me today.. and told me that my request (so the gov pay for my treatment) is under the process ..
and they told me that I have this wonderful option .. is to return home for a week and then go to Germany or US instead of completing the treatment in India ..
I dunno but I think the way they said it sounded different than dad, so I said yes!!!
and now feeling little regret ?! I don't think I really want to go home .. but I have to choose what the best for me .. :'(
and still think to have (quick nose job) ;D ;D :D
god I know with these rush decision I'll make one or 2 mistakes.. suddenly out from no where I'm thinking now why don't I have tummy tuck I'm not fat 56kg .. but tummy tuck would be great ......... !
And be careful too, things can get messy pretty easily...
-
Yeah I have no respect for stupid people either. Btw what does breave mean? Try spell check moron.
brave !!!!Awesome ,spelling didn't stop me from having my own Business !! Smart guy !
-
Sometimes you have to be harsh an loud , when it comes to stuff like that , so other humans don't do the same mistake that could end their future , not all the people come here and read everything and learn , some just read first page of every topic , then they think they know everything and they can do the same thing ! Be carful not all the people patient about learning and reading specially if someone young and excited and has some money some how he mite go and do the same things !
-
Sometimes you have to be harsh an loud , when it comes to stuff like that , so other humans don't do the same mistake that could end their future , not all the people come here and read everything and learn , some just read first page of every topic , then they think they know everything and they can do the same thing ! Be carful not all the people patient about learning and reading specially if someone young and excited and has some money some how he mite go and do the same things !
I agree with this. But I don't agree with you calling someone stupid. It's ok to point out that what Diso did is not recommended and it isn't the wisest decision.
I can understand why patients stop posting here. I would stop posting too if people insulted me or annoyed me.
If you don't like someone or don't agree with their decisions don't post or even read their diary.
-
I agree with this. But I don't agree with you calling someone stupid. It's ok to point out that what Diso did is not recommended and it isn't the wisest decision.
I can understand why patients stop posting here. I would stop posting too if people insulted me or annoyed me.
If you don't like someone or don't agree with their decisions don't post or even read their diary.
I do agree with u and I do apologies to her i was just shocked !
-
I do agree with u and I do apologies to her i was just shocked !
Yeah I was shocked too when she first posted here. It seems like she hasn't had the easiest LL experience, as expected, but I think she will be fine eventually.
I hope she updates us soon and lets us know what she has been up to and how she is recovering.
-
Hope everything is working out with you and you're making progress in healing. Give us another update when you feel up to it.
-
Hi Diso! stopping by to say hello and wish u all best! nose job uh?)) well, i remember in russia one of the girls and one lady got a nose job, while they were correcting legs. good luck if u decide to do it)) and post pictures if you can))) and about to tummy tuck, i wouldnt recommend it yet, first try to diet and exercises. I was very fat!!! if I could do it im sure you can i was 100 kgs now i weight 66kg))
whatever u decided im glad u r improving ur self, the guy who will win u over will be a lucky man!
-
Hi all ;D
It's been a while , sorry for not posting any update, but I really didn't feel motivate , but here am i , I'll try to sum up the most important things that happened to in last " 3 months?"
*I manged to stand up for about 45min continuously "three times a day" with monorail frame "sometime with help of walker sometime without"
* I had to remove the frame because of the risk of infections
* I was in the plaster and I did bone marrow injection and I waited sometime to see the results
* it wasn't that much helpful so I had to do plate fixation I did it for my right leg and next Monday I'll do it in the left
* I started to bend my right knee "10 days ago" using cbm machine and I reached about 75 deg
* next Monday I'll have plate fixation for my left leg oh I said that already ..
* I'll start walking after 10 days with the help of crutches
I'll come here sometime and I'll post some x-rays and pic or video ..
--
shotry doing fine he back to his normal life, walking normally . he reached 170 deg with his knee bending, he has no issue at all except he is regretting doing just 5 cm
oh I forget to say, I don't have ballerina foot, but I have slight duck ass
-
I'm so glad that things have worked out for you, Disobidient! Many blunted you and yet here you are, nearly at the finish line. How are the scars from external femur? How is your alignment? How much did you lengthen on each segment?
-
Good to have you back :)
Seems like you are recovering well and hope you do get better soon.
Are you still in India?
-
Gj disobedient!!!! All this old forum scam should have put you down, please inform us, cause we were all worried about you <3
-
IM GLAD YOU ARE DOING BETTER GIRL!!
-
It's great to hear from you Diso :) Keep us updated
-
Good to know that you and Shorty are doing well. Thanks for the update.
-
Im glad you are doing fine 8) I hope people learn from your experience, lot's of young people here.
-
thank all . about the scars is pretty bad, the alignment in my lift leg is fine, but I have xleg in my right..
I had plate fixation in my left leg last Saturday and by that I'm done with all plaster and I can see my leg
-
The scars can be fix dont worry too much about that. Make sure your bones are strong enough
-
I totally agree, make sure your bones are strong enough before being too active.
-
Good to hear from you Diso!
Good luck with your recovery :)
-
monorail leaves very ugly scars, it's way worse than Ilizarov's scars
yeah it can be fixed but it will still leave some marks , I'm thinking of laser treatment but I think I should wait sometime :)
I can walk now using the walker, knee bending is still bad .. and I have duckass >:(,
-
monorail leaves very ugly scars, it's way worse than Ilizarov's scars
When your up to it, will you be able to show us pictures of the scars, I don't believe I have ever seen monorail scars before. Hopefully they are not too bad and can be removed or at least minimized.
-
monorail leaves very ugly scars, it's way worse than Ilizarov's scars
yeah it can be fixed but it will still leave some marks , I'm thinking of laser treatment but I think I should wait sometime :)
I can walk now using the walker, knee bending is still bad .. and I have duckass >:(,
What's your knee ROM? Can you fully straigthen your knees? How far can you bend your knees in degrees? What's with consolidation? You had surgery one year ago, you should be consolidated fully by this time, why is that you can only use walkers? Duckass is cured by standing just straight with time. You say monorail leaves very ugly scars, but you also did plate fixation, which leaves one big and long scar, maybe you're mistaking the two?
-
I used new technique with the plate fixation called MIPO, and it doesn't leave huge scars
and yeah it's been a year , but my bone consolidation was kinda weak especially in the femur, that's why I had plate fixation done so I can walk
-
When your up to it, will you be able to show us pictures of the scars, I don't believe I have ever seen monorail scars before. Hopefully they are not too bad and can be removed or at least minimized.
I don't have good cam, but I took those from my laptop cam it looks worse in the reality ..
-
Oh :o
I just realize that I do have long legs now ;D
-
really sexy legs :) Have a good recovery you are a warrior...scar removal on the way :D
-
Your legs look long and slim.
I think you can seek multiple approach for scar removal such as laser, dermabrasion and strong peels. Maybe the surgeon can also perform excision to remove the scars.
-
How is your walking at this point?
Your legs look long and sexy now. I really mean that. Just get some scar removal and they'll be perfect.
-
Most of these must be the result of the plating that was done. I wouldn't worry very much over them right now, your still in the very early stage and with the healing process they will begin to decrease/diminish in their size.
-
Hey Diso,
Good to see you posted, you seem ok that's good. I am saddened to see such horrendous scars. Looks like you're gonna need need a few more magicians and shamans to make those scars disappear. Are you sure you're a girl? You have sacrificed so much just to gain height. Girls are supposed to be cute, small-packaged and flawless. Forgive my jokes and thank you for the pics.
-
Thanks all,
walking is bit hard since I started just few days ago using the walker of course,but it would get easier by the time .
Galaxy : no those are from monorail bins
Bullsurfer: Just to gain height?!! I bit height wasn't an issue for you that's why you joined this site ..
-
Diso, you probably misunderstood me. Yes, I'm a guy and guys are supposed to be tall therefore I am willing to suffer so that I can get girls who are short and cute. You are one tough cookie, Diso.
-
Hi all
what's wrong was with the site yesterday? anyway
so yesterday, I measured my height and weight ..
and I was so disappointed to know my height is just 159cm !!! how is that even possible , I know it's due duckass I could lose some cm , but 4.5cm !!!! isn't that too much!!!!!!!!!!!!!! I should be 163.5cm
to be honest I don't feel that I'm just 159cm I feel that I'm around 167cm when I compare myself with nurses and doctors here, but I think Indian ppl lying about their height by adding 2inch to their actual height..
-
Hi all
what's wrong was with the site yesterday? anyway
so yesterday, I measured my height and weight ..
and I was so disappointed to know my height is just 159cm !!! how is that even possible , I know it's due duckass I could lose some cm , but 4.5cm !!!! isn't that too much!!!!!!!!!!!!!! I should be 163.5cm
to be honest I don't feel that I'm just 159cm I feel that I'm around 167cm when I compare myself with nurses and doctors here, but I think Indian ppl lying about their height by adding 2inch to their actual height..
Hey Diso. What do you see i your X-rays? If the x-rays say that you have lengthen 10cm then thr problem will be duck ass. If you really are shorter than 163 it will be that the measurement on the xrays is wrong
-
yeah of course if it's not girl, it's a boy
and that's what's scare me that it could be mismeasurement in the x-ray, not because of duckass thing . :-\ :-\
-
yeah of course if it's not girl, it's a boy
and that's what's scare me that it could be mismeasurement in the x-ray, not because of duckass thing . :-\ :-\
lol if you have duckass you will loose some CMS just wait for it to heal * work for it
-
Hi Diso,
Great to have you back and hear from you! Thanks for stopping by ;)
How do you feel in general? What your doctor says about how soon you can walk unsupported? When you going home?
-
Hi Diso,
Great to have you back and hear from you! Thanks for stopping by ;)
How do you feel in general? What your doctor says about how soon you can walk unsupported? When you going home?
hi ,
in general, hmm I don't know,
I'm not doing my best, not even my second best, which I know it's completely wrong, I just don't want to be tired or have slight pain anymore, the last two days I spent them lying down in the bed, ..
none of my doctors promise me anything, they know this could take long time.
home is the last thing I'm thinking about right now, don't want to comeback with walker or crutches..
-
going through trials and tribulations makes us stronger as a person disobedient. just keep strong, your almost there.
keep focusing on the end picture, pain is temporary height is forever. :)
can you give us greater insight into your situation? thank you and good luck. :)
-
If you don't mind, could you please upload more photos?
-
Be patient, btw yesterday went on a date with a girl 4'11 it didn't bother me at all and i thought she was really cute. How tall are you now?
-
Be patient, btw yesterday went on a date with a girl 4'11 it didn't bother me at all and i thought she was really cute. How tall are you now?
she is 5'2 or 5'3 so she is more less average :)
-
Hi all,
there is nothing significant to update you with
I can bend my knee something around 60 deg for my left and 65 for the right one, "with the CPM I'm around 78)
I use CPM everyday along with some physio exercises , I would recommend CPM STRONGLY for those who has knee bending issue
this is CPM, they recommend you to do it about 5 hours per day and don't exceed increasing more than 5 deg per day
(http://www.accesshealth.com.au/sample/M_CPM_phoenix_2_299_x_250_2555.jpg)
(http://handyhealthcare.co.uk/media/catalog/product/cache/1/image/9df78eab33525d08d6e5fb8d27136e95/k/i/kinetec-spectra-knee-cpm-machine.jpg)
my ankle is hurting me so I stooped walking a lot, maybe something around just 10meter per day which is bad I know, I used to walk longer distance than that..
RGKEY: hi there , 4'11 if she was wearing 4or5 inch heel then yeah you wouldn't find any problem :D with that , she was wearing high heel right?
Greek-Semidget: 5'3 but I have duckass remember, according to the x-ray's measurement I'm 5'4.5
-
That's great diso you also have long legs now...and you are a programmer :3 dream woman xD !!
-
Diso, how in the hell you keep finding all these gadgets? Very resourceful.
LL is one of those experiences that would break you then rebuild you once again. Keep up the good work Diso.
-
Maybe yes i didn't look, but high heels are sexy lol
-
Hi all
I'll measure my height again tmw, I think my duckass getting better or maybe it just my imagination
greek: I'm not a programmer, I'm an Engineer 8)
Bullsurfer: ;D I didn't find it by myself, my physio doc took it from physio department and put it in my room
RGKEY: yeah indeed, if she really love herself being short, then lucky you RGKEY, this kind usually love to play games and use their fantasy a lot :D ..
-
hi ,
in general, hmm I don't know,
I'm not doing my best, not even my second best, which I know it's completely wrong, I just don't want to be tired or have slight pain anymore, the last two days I spent them lying down in the bed, ..
none of my doctors promise me anything, they know this could take long time.
home is the last thing I'm thinking about right now, don't want to comeback with walker or crutches..
Diso,
You are a very strong person and an inspiration for lots of people here. I hope you will feel better and stronger as soon as possible, and will start to use your gorgeous legs full power 8).
Wish you best, girl!
-
Hi all
I'll measure my height again tmw, I think my duckass getting better or maybe it just my imagination
greek: I'm not a programmer, I'm an Engineer 8)
Bullsurfer: ;D I didn't find it by myself, my physio doc took it from physio department and put it in my room
RGKEY: yeah indeed, if she really love herself being short, then lucky you RGKEY, this kind usually love to play games and use their fantasy a lot :D ..
I kind of want to have sex with a small girl, under 5 feet! haha hasn't happened yet haha throwing her around and all! must be fun!! lol
-
Hi all
:)
'm Feeling good today, I just came up from mindcafe, I was almost forget how it's feel to set in a cafe :D .
I'm much more independent now, I can walk "by walker", take shower, etc all by my self ;D
tmw, I'll go to spa it's in ground floor .. :D
knee bending still bad, there is a very tiny improvement everyday.,
walking is improving but it still funny, and my right leg is much stronger than my left . maybe from tmw I'll start walking with crutches .
things that I need to improve are :-
1- knee bending (I'm still around 60, and 90 with CPM)
2- ankle movement ( I can move my ankle up to 95 deg , I need to improve that )
3- standing posture ( I have to strength my hip muscle + knee muscle in order to improve my posture )
---
sweatpants: Thanks for the words of comfort and support. It means a lot :-*
RGKEY: change is always fun ;)
-
I don't understand your 95 degrees for ankle comment?
the normal range of motion is:
•Ankle plantar flexion (movement downward) 0-50 degrees
•Ankle dorsiflexion (movement upward) 0-20 degrees
0 degrees is a flat on the ground foot.
-
consider 0 as 90
95 mean 5deg upward
it depends how you look at it
(http://www.wellnesswithinclinic.com/docs/rom_lab_files/ankle.gif)
-
cool 5 degrees dorsiflexion is good :)
its to bad you don't have pre operation figures to compare to.
after reading this iv decided to get a physio to measure me before I do LL :)
what methods are you using to work on knee bending?
and what methods are you using to work on dorsiflexion(aka ballerina)?
ps. I like the photo. we should start a thread which just has diagrams on the normal range of motions for femur, tibia, humerus.
I was told but I still don't understand how to post photos in large form like you just did :(
-
with my limited English I'm not sure if I could explain all the exercises that I do ..
But I'll try to post some pic that demonstrate them ( and it's easy to do that . right click to the pic - copy image location - then then post the link inside this code [im*g][/img] "there is no star in the code" )
for ankle movement and with help with physio doctor I do " Resisted exercise" where I try to move my ankel forward the physio try to push it backward and vice versa. and I do that by myself too using elastic band, or belt ( like in the pic)
(http://chrissophysio.com/wp-content/uploads/2014/03/resisted-plantaflexion.jpg)
(http://chrissophysio.com/wp-content/uploads/2014/03/resisted-dorsiflexion.jpg)
Also , I try to stand against the wall and try to bend my knee til it touch the wall, this will help my knee bending + ankle
(http://sportspodiatryinfo.files.wordpress.com/2010/02/lunge-test4.png?w=264&h=300)
you can control the distance between your foot and the wall, depending in how bad is your knee bending (with the longer distance you'll have to bend your knee a lot)
and I try to stand straight against the wall but this time my back is touching the wall, and I try to bend my knee ( and unlike the next pic I try to not keep gap between my feet and the wall which is much harder)
(https://encrypted-tbn2.gstatic.com/images?q=tbn:ANd9GcQihAdy50P-jXesm7N-dqjVdBAdpBZCfBtieSEpyJIiTa81U8Hu)
I do the same exercise as shown in pic
(http://fixkneepain.martinkoban.netdna-cdn.com/blog/wp-content/uploads/2012/03/soleus-squat-stretch.jpg)
also I set at the edge of my bed and I put towel under my feet then I try to bend my knee, 50 times by myself, and 50 with the help of the physio doc
and I put small towel under my knee and I should press my knee down for like 10 sec, then I repeat that about 25 times, also , with keeping towel under my knee I try to lift up my leg " it's more like keeping my leg straight'
there are also these exercise where I lie down in my stomach and the physio doc try to bend my knee, and then I try to lift my leg which is extremely hard
-
Now I'm very happy that I can see solid improvement in my case
I went down to physio department walking, of course the pt dr was holding my hand :D
and the senior dr examined me , he said my hip muscles are so tight " that's why I can't bend my knee properly" so he decided a new set of exercises
also he used a device that suppose to relax the muscle that has been tightened and contracted due wearing the eternal femur for about a year..
in the way back to my room I walk by myself without holding hand , I walked about 7m by myself,, I did look like penguin but still I'm happy that i was able to walk by myself without any support ;D
-
It's great that you're on the way to recovery. The dedication you possess is inspiring :)
-
Thanks KiloKAHN :)
so today I started walking using crutches .. it is very easy.. I mean easier than using the walker.. anyway.. I tried hard to use the crutches just to keep my balance.. but I cheated sometimes ::) by putting some weight n them rather than my legs..
and this is the machine they use, for release/relaxing my muscles , it's called Electro Myopulse
here is an article about it http://www.healthrestorationnc.com/process.htm
-
Hi Diso,
congratulations on your progress. Your positive attitude is admirable. :)
-
Thaks mime
We all make mistakes bro. By the way diso, are you sure you want to do more surgery ? Maybe it's just in your head and won't make you happy. Be careful anyway.
I know it's an old comment, but I just passed by some pics of Korean cosmetic surgeries and I remembered your comment, so no it's not just in my head, but if take a look at those pic(s) too you would think , I'm much more beautiful than those ladies to begin with so I'll end up I dunno something I can't even imagine 8)
(http://36.media.tumblr.com/932b3acfbb77e5de3428f71bf7a811cd/tumblr_mwp07fMN591rddbxfo1_500.png)
(http://36.media.tumblr.com/595ca367bfa7ccc210eab8404650d578/tumblr_mwp2a60g821rddbxfo2_250.png) (http://41.media.tumblr.com/11df8400615f579039bf8146df82e56e/tumblr_mwp2a60g821rddbxfo5_250.png)
(http://41.media.tumblr.com/d7218e3941de15716587fe9f5fbd31cd/tumblr_mwwhc0iOt11rddbxfo1_500.png)
(http://41.media.tumblr.com/ce318c38e3ebd02fb47198735391bb7d/tumblr_mwjmid7q4J1rddbxfo1_500.png)
(http://40.media.tumblr.com/9364061e6a8cb2e47f9177906d479c2e/tumblr_mwjmid7q4J1rddbxfo3_500.png)
-
Diso, you're progressing nicely. Can you give us a pic of you standing straight. I just want know how long your wingspan is relative to your new height.
The people of before and after cosmetic surgery aren't all that pretty like I thought they would.
-
lool I found them pretty comparing to "before" pictures ,anyway I'll post pic when I feel I'm up to it :)
--
there are nothing new to update, it just I realize I start to put more weight in crutches which I'm not suppose to do, my walking was much better before when I was walking without them,, :-\
my right x-leg really bother me (not in walking) but it's really ugly !!!! I don't want to go through another surgery at the meantime ,, but also, I feel bad every time I look at it..
still have duckass, and I don't want to measure my height again til I totally get rid of duckass ..
-
I'm really angry and disappointed , I measured my height again and it's 159-158cm !!! :'( :'( :'( :'( :'(
I thought I'd be at least 161cm , since my duckass improved
YEAH I HAVE DUCKASS, AND YES MY I CANT STRAIGHT MY KNEE FULLY WHILE I"M STANDING
BUT 158-159cm REALLY !!!!!!!!!!!!!!!
HOW IS THAT EVEN POSSIBLE !! I WAS 5ft ~153cm
AND I GAINED 11CM SAY 10CM, THAT'S PUT ME AT 163CM (-2CM BECAUSE OF DUCKASS )= 161CM!
HOW IN THE EARTH I'M JUST 158!!!!!
DOES THAT MEAN I GAINED 5 OR 6CM !!!!
THE XRAY SHOWED I GAINED 11CM .. BUT IN THE REALITY I JUST GAINED 5CM ! :-\ :'( :-\ :'( :-\ :'( >:( >:(
-
Wait till your duck-ass goes away completely and you can fully straighten your knees. Then you will be able to get your final height.
Under normal circumstances, the X-ray should only give an error of few mm. Well for me it was around few mm.
If the X-ray shows 11cm, then you should gain approxiamtely that amount.
BTW Did your surgeon lengthen your femurs along the anatomical axis? Because if he did then you can expect up to 1cm loss in height due to the oblique alignment of the femurs.
Again, wait till you're fully recovered and then measure your final height.
-
measure your self correctly, maybe there is a mistake. but are you sure the xray showed differently??
-
who measured your height before surgery? you or the doctor?
a lot of people incorrectly measure their height and think they are taller than they really were.
-
So, How's everything going Diso?
-
Hi all . and merry Xmas..
well about the height loss. I think "now" that I lost some cm during the surgery .. they measured the gap from x-ray and they told me I didn't lose any cm .. but I doubt it ..
so I told them again to bring ct scan that I had before and compare it with new one. IN FRONT of me .. and I'm waiting ..
my height now is almost 159 , and I still have duckass, so I maybe ended up with 161cm at top, but let's see
I can walk for 60 min without support by now, and I can climb the stairs (it's painful though)..
hmm yeah and my knee bending is about 80-85 deg ..
what bothers me now are the knock knee, the scars , and I'm limping " a bit", and of course the knee bending as I'm still just 85 as I mentioned before ..
-
Hi disobedient, merry christmas to you too.
Sorry to listen about heigh lose.
we hope your recovery go well. 1,61 is a very good heigh for a woman.
Cheers paco.
-
Disobedient please please take my advice only lengthen 5 cms on tibia and 4 cms on femurs. If you do this your recovery will be speedy and safe.
At most you should do no more than 10 cms - 5cms tibia - 5cms on femurs.
Please believe me I have seen what happens with 2 patients from the guest house in india when lengthened too much.
Trust me I have done it i only lengthened about 5.5 to 6 cms and my recovery was actually the quickest in the guest house.
Even Amit or crazy 6 was jealous of me because I showed up and was walking in 3 months.
But if you do more than 5 or 6 cms per segment you will suffer regardless of weather you are a woman with less tight muscles.
At most 10 cms tibia and femurs combined trust my words on that.
-
Sorry disobedient I didn't realise you were already finished lol my bad. Disregard my previous reply.
-
Hi all . and merry Xmas..
well about the height loss. I think "now" that I lost some cm during the surgery .. they measured the gap from x-ray and they told me I didn't lose any cm .. but I doubt it ..
so I told them again to bring ct scan that I had before and compare it with new one. IN FRONT of me .. and I'm waiting ..
my height now is almost 159 , and I still have duckass, so I maybe ended up with 161cm at top, but let's see
I can walk for 60 min without support by now, and I can climb the stairs (it's painful though)..
hmm yeah and my knee bending is about 80-85 deg ..
what bothers me now are the knock knee, the scars , and I'm limping " a bit", and of course the knee bending as I'm still just 85 as I mentioned before ..
Hi Diso,
Merry Christmas and Happy New Year!
Sorry to hear about the height, i am sure it is a mistake and you should measure yourself again. How you do that? does anybody help you?
I was at the hospital once and two different nurses measured my height and it was two different results with 2cm difference..so, possibly it's your case two.
I wouldn't count on a duckass, i did that too, but at the end, when it went away the height remained the same... but again, everybody (or every body) is different.
Be well, you one tough woman 8)
-
Hi all . and merry Xmas..
well about the height loss. I think "now" that I lost some cm during the surgery .. they measured the gap from x-ray and they told me I didn't lose any cm .. but I doubt it ..
so I told them again to bring ct scan that I had before and compare it with new one. IN FRONT of me .. and I'm waiting ..
my height now is almost 159 , and I still have duckass, so I maybe ended up with 161cm at top, but let's see
I can walk for 60 min without support by now, and I can climb the stairs (it's painful though)..
hmm yeah and my knee bending is about 80-85 deg ..
what bothers me now are the knock knee, the scars , and I'm limping " a bit", and of course the knee bending as I'm still just 85 as I mentioned before ..
Wow! What a diary.
I am so glad you have come through the other side now somewhat unscathed. You have more courage than all of us combined. 8)
-
Merry Xmas Diso. Be strong, you're getting there.
-
It's good to hear from you Diso!
The worst is behind you. You are now a normal height for a girl. You just have to get some scars removed and get your strength back and you'll be back to normal. :)
-
I have to post this update, I'm literally shaking .. but I think it's better to write that cuz I know if something really bad happened I won't be able to post for months ..
last Saturday was just like any Saturday .. I had lot of pt I walked unaided and I claimed the stairs .. everything was just perfect .. my walking improved I won't say A LOT .. but you have to keep stare at me to notice that I had some difficulty with walking ( at least that's what I have been told) .. my speed just fine... but I tend to limp sometime .. so everything was just normal like any other day..
at 12 AM I had some pain in my left knee.. but I though it maybe muscle pain due climbing stairs .. at 9 clock I noticed that I had some sort of shortness breath.. but I didn't give it a lot of attention as it goes away by 12 pm ..
the pain on the other side was still there .. (it's important to indicate that I only felt pain when I was standing .. there is absolutely no pain when I'm bending my knee, that's why I thought it's just some muscle ache and it would go away)..
I took shower as usual and I felt again shortness of my breath .. and frankly I wasn't in shape to make a right call .. so I sat down on the chair trying to solve this dilemma should I just finish showering and ask for nurse , or can I stay for 5 min more and apply hair condition Huh..! well I choose the second option which is to apply hair condition ..
somehow I was able to do that and finished my path as quick as I could , then I called the nurse who immediately checked my BP and told me I have low BP ( I think this is the first time for me to have low BP) anyway she gave something to drink then she informed the doctor.. I was fine again except for the knee pain which I thought it's a muscle ache ..
so I took rest and drink plenty of fluid .. till 5 pm I had have fever so they gave me paracetamol , the fever gone by 7pm so everything was steady I guess .. I felt some tiredness but I thought it's due fever.. today I noticed some swollen in my left knee I'm not sure if that was there yesterday .. but I just notice it now. I called the nurse and she called my doctor.. who made a mark and told them to start IV antibiotic and have Ct scan blood test and so .. and he told me it's maybe an infection ..
I know what infection means in my case, and I read some horror stories about some ppl who had infection and they ended up losing their limbs :'( , I wish that won't happen to me..
-
be strong disobedient.
when you go through leg lengthening your mind always assumes the worst.
the antibiotics will fix you. it might not even be an infection. I would wait to see what the doctor sais. and at the moment try not to stress about it.
I doubt you are going to loose your limbs
hmm its really weird symptoms though. pain In knee and shortness of breath, and low blood pressure. well I doubt it is possible to be embolism but some of those symptoms cross relate.
-
A pulmonary embolus is one of the life-threatening causes of chest pain and should always be considered when a patient presents to a healthcare provider with complaints of chest pain and shortness of breath.
There are special types of pulmonary embolus that are not due to blood clots, but instead are due to other body materials. These are rare occurrences and include:
fat emboli from a broken femur,
an amniotic fluid embolus in pregnancy, and
in some cases, tumor tissue from cancer.
The signs and symptoms are the same as that of a blood clot, and is caused by blockage of part of the arterial tree of the lung, and prevents the blood's ability to reach all parts of the lung tissue.
http://www.medicinenet.com/pulmonary_embolism/article.htm
A low-grade fever may be present, particularly if there is associated pulmonary hemorrhage or infarction
http://en.wikipedia.org/wiki/Pulmonary_embolism
-
rip diso..
just kidding. probably since your bone is sawed in half and you being a female. Your body is just in save mode. Drink some soup and get some protein you be fine.
-
hi there, and Good evening
so as I told you yesterday i had several tests, the ultrasound graph showed that I have pus collection near the knee to be more precise it's located exactly in the pins site .. although after removing frames I waited long time before I had plate fixation just to avoid such a complication.
so the plan was to have surgery this afternoon and make small incision to drain all the pus, but in the morning they noticed that the swollen decrease " the pain still there though", so they decided to have another ultrasound to see if they can drain the pus using injection, and that's what happen, it didn't take time and it was pain free, I felt littel discomfort when they gave me local anesthesia injection, so they drained almost 12ml of clear yellow liquid ,, and they told me they will test it and they will keep an eye on it.
I'm no longer have shortness of breath nor low blood pressure or fever .. so I think it's minor thing after all .. thanks god it's not pulmonary embolus nor serious infection ..
I want my tears back >:( >:( !!!!!!!!!!!! if I knew it would be so minor I wouldn't worry that much!
-
hi there, and Good evening
so as I told you yesterday i had several tests, the ultrasound graph showed that I have pus collection near the knee to be more precise it's located exactly in the pins site .. although after removing frames I waited long time before I had plate fixation just to avoid such a complication.
so the plan was to have surgery this afternoon and make small incision to drain all the pus, but in the morning they noticed that the swollen decrease " the pain still there though", so they decided to have another ultrasound to see if they can drain the pus using injection, and that's what happen, it didn't take time and it was pain free, I felt littel discomfort when they gave me local anesthesia injection, so they drained almost 12ml of clear yellow liquid ,, and they told me they will test it and they will keep an eye on it.
I'm no longer have shortness of breath nor low blood pressure or fever .. so I think it's minor thing after all .. thanks god it's not pulmonary embolus nor serious infection ..
I want my tears back >:( >:( !!!!!!!!!!!! if I knew it would be so minor I wouldn't worry that much!
Hang in there - you're doing great.
Better to forgive than to regret.
-
I'll be shifting within few hours to OR, cuz I had slight fever yesterday, so they decided to go ahead with the surgery.. I feel that I'm bit fine though. well I still have some pain in my left knee..
wish me luck ..
-
I'll be shifting within few hours to OR, cuz I had slight fever yesterday, so they decided to go ahead with the surgery.. I feel that I'm bit fine though. well I still have some pain in my left knee..
wish me luck ..
hope all goes well diso! keep us informed!
-
Good luck Diso! Please keep us updated on how it went.
-
everything went well .. they drained all the pus out and cleaned the place, I feel burn sensation though but rather than that I think I'm fine .. I managed to go to washroom by myself .. walking in the room .. I don't feel I had surgery..like the only thing that's make it real is because I had general anesthesia and the ugly orange bandage around my knee
I have to ask for further details from the doctor tmw
but I was thinking of this now . anyone who consider LL , why don't you do it for just one leg, you wont lose your mobility so it won't be hard in you also for the second leg the insurance should cover it, since you'll have leg discrepancy more than 5 cm.. hmm think about it ;)?
God I don't believe I really had have surgery :P
-
Hi again ..
the result shows that the fluid has no infection and it's totally clear body's fluid which is a good sign ..
so today after I took shower the dressing got wet .. so I removed them ..after I finished and all I sat down on my bed and tried to bend my knee ..
then TA-DA .. there is a piece of rubber pop out from the new cut ... it wasn't painful .. but it looks GROSS .. I asked from the doctor to come to change the dressing , then he told me that this piece meant to be removed tmw.. and it's allow the fluid to drain out of my leg ... so he removed it , and tight the stitches ..clean the cut .. then he put bandage ..
but the scars are really nasty .. REALLY NASTY !
I managed to take few pic of this mysterious piece of rubber , before the doctor came..
Before , I had very Very ugly scar
(http://s18.postimg.org/y87puo3t5/WIN_20141221_153241.jpg)
(http://s22.postimg.org/6q95h8v5d/WIN_20141221_153206.jpg)
Now, I have VERY VERY VERY UGLY GROSS AND NASTY SCARS
(http://s12.postimg.org/4vyvfv95p/WIN_20150116_145032.jpg)
(http://s15.postimg.org/vzi6pcka3/WIN_20150116_143802.jpg)
I think I should've put a warning before posting the pictures :P .. but its LL forum
-
yeah its very ugly, with time it will get better ,you could buy some scar creams to use when it is more healed to help in the scar recovery. silicone creams are the best for that
-
yeah its very ugly, with time it will get better ,you could buy some scar creams to use when it is more healed to help in the scar recovery. silicone creams are the best for that
ikr!!! well in the bright side I think the insurance will cover for fixing these scars since the scars are SO UGLY.. so I'll go for surgery along with laser
but I have to wait some time
-
at least your leg is not going to be amputated :) a scar is nothing compared to what you were worried about :)
-
Looking sexy there, lady Diso,
-
I would not worry very much about the scars right now. Are you back home yet or are you still in India?
-
ForcedPuberty
yeah, I think I'm hard to please after all ..
BullSurfer
ah..! it must be because of the new scar lol :D
galaxy1
yeah I think I'll leave sometime around my BD next month
-
I missed out on your diary due to time constraints, but I hope your progress and health are in excellent shape. If you only had one decision between lengthening tibias/femurs, which would you choose and why?
-
I'm really angry and disappointed , I measured my height again and it's 159-158cm !!! :'( :'( :'( :'( :'(
I thought I'd be at least 161cm , since my duckass improved
YEAH I HAVE DUCKASS, AND YES MY I CANT STRAIGHT MY KNEE FULLY WHILE I"M STANDING
BUT 158-159cm REALLY !!!!!!!!!!!!!!!
HOW IS THAT EVEN POSSIBLE !! I WAS 5ft ~153cm
AND I GAINED 11CM SAY 10CM, THAT'S PUT ME AT 163CM (-2CM BECAUSE OF DUCKASS )= 161CM!
HOW IN THE EARTH I'M JUST 158!!!!!
DOES THAT MEAN I GAINED 5 OR 6CM !!!!
THE XRAY SHOWED I GAINED 11CM .. BUT IN THE REALITY I JUST GAINED 5CM ! :-\ :'( :-\ :'( :-\ :'( >:( >:(
This is normal. You don't get the height you lengthen.
I lost 2cm myself.
Just read your story up until now. Doesn't look good :( sorry to see.
Try to work hard and do lots of cycling if you can. Look in to your diet. You still look like you need to loose weight. It's easier for your body if you weigh less.
Best of luck.
-
This is normal. You don't get the height you lengthen.
I lost 2cm myself.
Just read your story up until now. Doesn't look good :( sorry to see.
Try to work hard and do lots of cycling if you can. Look in to your diet. You still look like you need to loose weight. It's easier for your body if you weigh less.
Best of luck.
why would someone lose 2 cm off their height vs x-ray? is it due to the angulation of the femur?
will there be such a problem with tibia cos I have not heard of such things
-
Women have much more angled femurs than men.
-
I think it is a combination of 3 factors.
1) a lot of people incorrectly measure themselves pre LL.
2) as taller said women have much more angled femurs than men.
3) post from yellow spike.
I can already answer this because Dr G already told me. He said in some (not all) patients, after lengthening, you lose 20mm in height that you gained due to compression. That's the number he told me. That's partially why I clicked to 6.65cm on his file (though I still think I gained a bit more). I don't really care because 20mm is very negligible my goal was 2.5 inches (6.35cm).
-----------------------------------------------
I noticed something odd during my lengthening also.
my friend who lengthened never walked. he lengthened 3 cm and gained 3 cm.
I lengthened 3cm (at that time) and only lengthened 2.5cm, I walked all the time. at each turn of the device it can probably move slightly allowing for compression as you lengthen if you walk. so at the end I expect my callous to be much better compression as I think it was getting small compressions during the lengthening period as the callous was formed.
but if you don't walk then when the devices come off and the bone finally has pressure it might get compression then instead of during lengthening.
ps I have monorails so my pins cant bend. if they did I would get anatomical misalignment, which I do not have.
don't take this as gospel, it is indeed speculation. it is a hypothesis. even I don't know if it is accurate. as for gitchets patients, they seem to lengthen very fast. so even if you walk you would get minimal callous collapse(and density formation)(during lengthening) because callous can only form at such a rate, and the device moves along the lengthening plane to fast to allow the same thing to happen.
again I repeat I don't know if this is indeed happening. it is a hypothesis.
callous could become more dense if you walk and spend more time in the lengthening period, as apposed to fast lengthening and/or no weight bearing followed by frame removal.
also bear in mind kilokahns post where he stated that lack of exercise caused callous density to change where it had pockets/gaps in the callous or something, which indicate lack of callous density. (correct me if I have made a mistake im going on memory here).
a theory is better than bewilderment. could be completely different reason but at least im attempting to understand what is happening.
-
LL is not an exact science, just happy that nature gives you a second and/or third chance to grow taller. Losing a few cm is acceptable.
-
LL is not an exact science, just happy that nature gives you a second and/or third chance to grow taller. Losing a few cm is acceptable.
I agree!
-
accidental double-post.
-
There is tape which goes around each of three rods that are lengthened. The distance from tape, to the ring, measures how long you have lengthened. Lets call this distance X. How accurate is this?
If the pins/rods/etc are bent, then is Distance X still accurate? Or would Radiographic distance (Distance Y) be more accurate?
in other words, when I have pin bending
1) Distance X is accurate.
2) Distance Y is accurate.
3) Distance Z (the amount lengthened based on my Excel spreadsheet, with each half turn representing 0.25) isn't accurate.
is this the case or:
1) Distance X is NOT accurate.
2) Distance Y is accurate.
3) Distance Z (the amount lengthened based on my Excel spreadsheet, with each half turn representing 0.25) isn't accurate.
I find that where I am now, Distance X and Y are the same. Distance Z is 5 mm more. So I have stopped recording Distance Z.
What about the situation for compression? How does it affect X Y and Z?
-
hmm about the height loss ..
well I'm sure I was 153cm before the surgery .. I measured myself many times . and the last time was a week before I left UAE and it was in hospital .
my wild guess as taller and TRS said it could be because angled femurs but that means I should lose 0.5cm at top. so even if I lengthened (5.5cm in femur that's mean I should deducted 0.5cm ) .
about the callus compression hmmm, I did stand couple of times but like for half n hour a day and for just about 2 weeks .. then I got those fixator removed and get plate fixtation.
so when you have plate fixtation/nail rod how the callus will compress I still don't seem to get this part, did any dr beside dr guchet claimed the same things??
I believe that I lengthened for sure 11cm, but maybe I lost some of cm when I've had cast for 8 weeks , as the callus for my femur wasn't that strong , though my doctor said when he inserted the plate , the callus was so solid and there is no way I lost any cm .
hmmm . also the knock knee could cus some cm loss, crimsontide mentioned that he lost 1 cm because of that and when he will correct his knock knee he would gain it back.
Also, Indian doctors lie a lot, so when I'll go home after two weeks I'll measure my leg again, and I'll let them measure the gap in my old x-ray...
Outgrown: with limited budget I think I would go just for tibia lengthening, and as I have sufficient budget now I'm planing to have second round for my femur when I reach 70-80% of recovery.
Sweden : Oh, you're alive ;D, well I'm still 56kg, but yeah I think I need to shed some kg ,.. I'll go for swimming when I'll go back home.
-
Today is my birthday .. ah I feel am so so old :-\ :-\ yet I'm so happy that I manged to live for quarter century :o :o and so far I'm doing ok :D
at afternoon (1pm), one if of my pt dr she woke me up for pt, but surprisingly she remembered my BD and gifted me chocolate, mug, and ash tray ,which let me think seriously that I have to start smoking 8) ;D That's really made my day.
anyway, I think I posted this before in some thread , about telling other about your LL.
5 days ago I told the guy that I/he plan to date, that I lied to him about the reason why I came to India, it was kinda moment of truth, well I really felt so bad keeping lying to him about that and me having accident here, so I told him that I may tell the reason one day . and he said he won't push for any info from me that I don't want to give .
so I have to admit that was a bit of relief, but like few days ago we argued about me wanting to have nose job ( I'm sure next year I'll have it but not in India sure), and he was going on how is this thing really fake and I should accept myself ..etc,at the end he told me to go ahead and do it if it's so important to me but he can't live with fake woman.
well from that I know , that there is noway this guy would be open about LL. :-\
so 2 days ago he started to ask me about the reason why i came to India and telling me this been wreaking in his head.. he pushed really hard to know why... although he said he wouldn't do that ..sigh!!!
so I sent a link of my diary, I really hated that feeling , I didn't feel good nor relief , all I felt that I'm really so exposed , ashamed ?
I don't know what's the right word to use . and I was asking myself why should I worry to be righteous and tell about LL, if that's will give me nothing but a very horrible feeling ..! I should've hide it ! and there is no way he would come to know about it , he wasn't even know that I'm in india til I told him!!!!!!
anyway, he handled the situation very well and he told me that he didn't even know it was possible to surgically get taller , and that he "changed" his mind, and he will even support me if I wanted to have nose job ! ..
I really don't buy that ! few days ago he was feeling so strong about the cosmetic surgery . how anyone could change within 10min!!!!!!!!!!! how!!!!
people don't change , and if they're ,they would take ages to change a bit !!!!!!!!!!
yesterday , we talked again about that and he said he read more in my diary, and he think I'm strong,brave ..etc
well then he said he feels that he is hypocrite for giving out the other day about cosmetic surgery, because he always hated when ppl judge him and now he is doing the same, so he told me he change a lot ..
well i still cant believe it, and I told him that, there is no way someone could change from himself that easily. and even if they think they're , deep inside they would keep their original thought, so he may look down on me. he kept saying he is not , and there is no reason for him to keep talking to me if he still
today I've just was roiling his conversation in my head , to be honest the guy handle the situation very well, and showed a very mature reaction , and I like him A LOT , so I think I just should get over myself and believe what he said .. anyway ,, what did I expect from him to say when I told him about LL ? to say there is no more me and you . honestly I was expecting such a thing, to maybe act like drama queen and ohhh the world so cruel blah blah seriously I should get over myself !
after all I think telling someone about LL maybe not be that bad idea as I thought :)
-
Happy Birthday!! Thanks for advice
-
happy birthday disobedient :)
as for telling the guy. hmmm interesting.
-
happy birthday..
mmm yeah I told quite a few people I got into an accident and they got pretty concerned... and wished me a speedy recovery.. those who came to visit me, I feel so bad, as they are so sympathetic
the truth might come to light (though I wont say)... when I am done and they realise.. hey, this guy is so much taller! haha.
my girlfriend knows about it though and is very supportive.
I think LL cannot be compared with cosmetic surgery. LL is much more difficult and requires so much bravery... I think your boyfriend/date is right to actually even love you more because you are such a brave girl who pushes for her dreams... :D
-
Happy BD Diso.
-
Merry Birthday Diso.
-
Maybe he changed his mind because he thinks if you're willing to go through limb lengthening then there's no way he'd be able to convince you to shy away from a surgery that's much easier to go through in comparison. Either way, it's good that he's supporting you now. It's funny that you say telling someone about leg lengthening isn't that bad. I was expecting a much worse reaction than I got from relatives my mom told and a friend that I told, but they were all surprisingly supportive. I still won't go around telling people though. It might be a worse reaction if a complete stranger finds out.
Where do you plan to go for femurs when you recover more? I remember you said something about Thailand before. Are you going to give Dr Tardthong a try? :D
Hope your birthday was splendid.
-
Happy Birthday Diso!!! :D
-
happy birthday
-
Thank you all .. :) :D
ItsMyLife: I doubt anyone would know about LL even if you noticed your height . most probably they will think you lost some weight .
Kilo: hmmm but dr Tardthong doesn't do internal , he performs LON and LATN I think , and i'm kinda want to do just internal this time .. anyway .. I have to think about that a lot .. I may even change my mind to have another LL.. I'll see to it .
-
I hope not noticeable.. for me its 7-8 cm you know!
you said you lost weight? (I actually gained..haha jesus)
-
Kilo: hmmm but dr Tardthong doesn't do internal , he performs LON and LATN I think , and i'm kinda want to do just internal this time .. anyway .. I have to think about that a lot .. I may even change my mind to have another LL.. I'll see to it .
From what I know he does internal with the Fitbone device, but it's supposed to be really expensive from what someone who called him said, equivalent to $90,000 USD.
What doctor are you thinking of going to for internal femurs if you decide to do a second round? I imagine you're tired of India and will want to go somewhere else. ;D
-
That's a ridiculously expensive!!!
I want to do it with Dr lee in Korea but he is so expensive too,,,
hmm, well I think I can afford Dr Jamal , but if I wait some months more, and saved a bit I'd be able to do it with Dr franz so Franz my first choice I guess ..
-
You're thinking about lengthening your femurs one more time?
You are one remarkable girl.
Do it with me and Tallmanwalking in Ukraine. What a team we would be :D
-
sweden , what do you think about the war in ukraine?
-
Well yeah I think I will, I lost some height .so i need my cms back . ,,
but I'm not gonna do it now most probably that would be at the end of 2015 or mid of 2016.. what time yours?
-
sweden , what do you think about the war in ukraine?
It sucks. Europe is at war but nobody cares. will get real in just a matter of time.
----------
Diso: we've planned it this summer but I'm hesitating just bc of the war.
I could wait a full year just to do it with you. :)
-
everything went well .. they drained all the pus out and cleaned the place, I feel burn sensation though but rather than that I think I'm fine .. I managed to go to washroom by myself .. walking in the room .. I don't feel I had surgery..like the only thing that's make it real is because I had general anesthesia and the ugly orange bandage around my knee
I have to ask for further details from the doctor tmw
but I was thinking of this now . anyone who consider LL , why don't you do it for just one leg, you wont lose your mobility so it won't be hard in you also for the second leg the insurance should cover it, since you'll have leg discrepancy more than 5 cm.. hmm think about it ;)?
God I don't believe I really had have surgery :P
OH MY GOD that's really smart. Haha I might do that for femur :P
-
This is normal. You don't get the height you lengthen.
I lost 2cm myself.
Just read your story up until now. Doesn't look good :( sorry to see.
Try to work hard and do lots of cycling if you can. Look in to your diet. You still look like you need to loose weight. It's easier for your body if you weigh less.
Best of luck.
why would anyone lose 2 cm on tibia?! I thought its a femur issue?
-
why would anyone lose 2 cm on tibia?! I thought its a femur issue?
That's the way it is.
I measured myself for real at my doctors office here in Sweden and when I got back and recovered a bit I measured myself again at the exact same stadiometer. 173cm in 2012 and just barely 178cm in 2014.
I lengthened a tad more than 7cm and my doctor measured the gap at just a little bit more than 7cm in both legs.
That's the real deal for you.
-
That's the way it is.
I measured myself for real at my doctors office here in Sweden and when I got back and recovered a bit I measured myself again at the exact same stadiometer. 173cm in 2012 and just barely 178cm in 2014.
I lengthened a tad more than 7cm and my doctor measured the gap at just a little bit more than 7cm in both legs.
That's the real deal for you.
[/quote
that really sucks. are your legs angled? ie, ur tibia, so 7 cm to 5 cm that's nonsense.
-
Happy birthday girl!!
-
RGKEY: thank you ;D
Sweden : alright, I'll see about that, and I'll let you know. :)
-
I'm afraid the cm lost is a fact. If you want 7 cm then you should aim for 8.5 cm during the lengthening, just to compensate for curvature and compression.
On the bright side, you might not look like a freak if you decide not to pursue the second LL. People will look at you as a person with slightly long shin bone, and even if you decide to add more cm onto the femur you wouldn't compromise your arm length too much.
-
about those posts where I was saying that telling someone about LL may not be as bad as you think .. !
well it seems it is .. ! cuz when situations turn bad the first thing ppl will gonna remember about you is that you HAD LL .. !
my guy he just said he wants nothing to do with me .. I know I gave him hard time "unintentionally".. but the first thing he mentioned to my friend that he has doubt about me since I had LL and lied about it for some period of time !
God I knew it ! !! I knew ppl don't change their mentality that easily ..!! even if they said so .. THEY DONT !!!
I needed LL .. I know that .. I made couple of bad choices but I needed it ..!
my entire life has been waited to the moment where I'll be independent and do something that I really want like LL ..!
and here I'm 20 months post LL .. all I know that I'm still short.. and when I walk in the mall I do feel ppl notice my funny walking due knock knee ..
I don't regretting LL.. I'm regretting some bad choices I made ..!
I'd be home this week and god this is killing me like nothing ! I know I would hear lot of negative comments .. !
I wish .. I wish I really be able to get back to my normal life .. I feel I'm hurt on all level .. and I'm no longer know what I want !!
-
mmm
just noticed these posts about losing cms.... i havent lost anything... i doubt anyone has tbh...
as far as your walking, you wont walk normally until the deformity is corrected... post a vid of u walking?
-
about those posts where I was saying that telling someone about LL may not be as bad as you think
Of course it is. LL is the alpha and omega of cosmetic surgeries. People are judgemental as is when it comes to cosmetic surgeries, let alone LL - it should blow their minds, in a way. Make up a story and just insist on it - that's it really, and always keep lying. They don't need to know about it, nor do they care to know, but they'd gladly judge you for it (if they get to know).
-
disobedient,
i think theres a chance you wont be recovered for a very long time
lengthening femurs and tibias at same time is never recommended
all you can do now is wait...
-
It turned out just like I said when you started to post.
But hang in there and hit hard in the gym and you'll keep improving.
-
mmm,
its really time for you to leave india if you havent already... you need to see a different doctor
i wonder how your walking really is, but i understand you dont wanna post a video...
leave india asap
-
Who cares what people say. People always say something no matter what you do, it's a fact of life. Be strong, go home and walk tall and deal with your problem little by little.
-
hey disobedient ;) ur a tall lady now my friend!! ,but what bugs me is that u risked complications n also along with several things like longer recovery,knowing if uve read the forums n stuff clearly that doing both tibia and femur at same time did'nt end up well even a single time,a doctor who isn't well knowN and nor from a nice europian highly medically facilated country ie from india(myself from india too lol), monorail which has literally *ucked up so many people which can be read on this or the other limblengthening forum though keeping in mind that u could have afforded the treatment in germany(atleast that's what u have stated) n all this for what 6cm? this tells us that never compromise health just for the mere cause of cheap expense, i donno maybe u should have read the forums well before u had taken the desicion or may be u have read i donno.instead if u would have gone to germany u could have gained more than what u have now in a single surgery with no/lesser complications in lesser time with more height than what uve gained.
Anyways dont get dissapointed with all this,everything happens for a reason n that should be remembered as a lesson for life and also thank god that uve not had any serious complication and also though u still feel short i feel 159 is pretty good for a lady and some girls who are considered as hottest women are around 159cm like kim kardashian,salma hayek,scarlett johansonn n many more and from the pics which u have posted u seem to be pretty good looking lady!! so u dont need another surgery!!! n i wish u all the best for whatever you are going to do.. :) keep smiling.....
READING ABOUT YOUR BOYFRIEND FROM THE WAY HE WAS FREQUENTLY CHANGING HIS WORDS I KNEW HE WAS AN A*HOLE GOOD THAT U FOUND OUT MORE SOONER THAN LATER
-
Disobedient
your diary was the first one i picked to go through on this forum as you had done your LL in India and my city, i wish i would have got to know about limblenghteningforum while your stay to give you company as i am a girl too and i have stayed in Dubai for many years so i am very familiar with Arabian culture and we could have made good companions :)
i am really impressed by your daring nature and i appreciate your struggle, at the same time i feel very sorry about what happened to you and all the cm loss which is a very odd thing it really sucks to suffer so much and end up in such a huge loss of around 1 inch :(
i wanted to ask you about your scars and whether you have started with laser treatment or not yet .. they are quite large and deep, i believe
to be honest i was discouraged to go for LL after seeing those scars on your legs but i didn't find anything that bad on Kilo's legs neither on patients i visited in Dr.Sarin's guesthouse so i suppose the method you chose was the main reason for those scars?
how are things with you now? your diary made me concerned about how your recovery progress is going on and if by now you have been able to walk or not? By the way, what was Dr.Raheja's last comment on cm loss which you suffered? was he concerned about that? what all he had got to say regarding the outcome?
i would like to know how are you doing now ... so i would appreciate any updates from your end :)
-
Diso, how have you been?
I really hope you're ok.
-
I just really don't understand why a girl over 4'10 would do this. You must be very brave to do this on a whim, without any necessity or social demands. But I wish you luck if you've made up your mind.
I always thought short girls had the same advantage tall guys had. Just like tall guys can date short and tall girls, short girls can date short and tall guys.
-
Hey girl 8) just hang in there, work hard towards your recovery, I know it will be fine and you will do all you want, you will be independent and make ur wishes come true, you are very strong person and I think that is f..king sexy as hell!!!
Listen if you stay single for more than a year ill be surprised, and ill come to your country and hit on you like there is not tomorrows hahaha! Stay positive and you already did a lot! Focus only in what will help your current situation, donnot allow negativity in ur life. There are guys like me who dream for girls like you. Good luck hun!!!
-
hello all
its been awhile , ive been busy with my life
also i don't have many things to update really in term of physical aspect ..
I surly can walk .. jog ..jump .. but didn't even bother to see if i can start running now , and I'm not so sure if i can tbh ..
now as im abroad doing my master, I dont think about LL at all ..all I'm thinking of is the xleg ( which is a completely pain in ass ) and my knee bending as its about 100 deg ..
but I've been busy or lazy to even doing pt to see if my knee movement will improve ..
Im thinking of fixing my xleg once im done with the master so probably this December .. perhaps I will do it here in ireland or maybe back at home ..
once I will do so , I'm going to update you guys
take care !
-
GOOD LUCK GIRL! fix the kneww bending as soon as you can.
-
Thanks for the update Diso!
It's good to see that you are doing better!
BH