Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: crimsontide on June 24, 2015, 09:36:21 AM
-
Well, I'm pretty much healed, though my muscles need to be worked more. I've purposely avoided exercise because of my left leg
ch
I'll be posting x rays of my leg before and after
I set up a date to see Dr. Monegal next week
My left leg has a few deformities.
1- valgus
2- procurvatum or recurvatum. forgot which
3- malaligned union
I'll be getting a tibia/fibula osteotomy, and a nail put in
Rozbruch's plan was to fix it with a nail also, but the price is too much for me
I'm hoping to recover within 5 weeks or so. I'll be able to partially weight bear immediately, and progress to full weight bearing within 6 weeks
I'm anxious, but excited and relieved as well
This left leg is the reason im not fully recovered yet.. I have no pain currently, no ballerina, etc
I'm fairly confident there won't be complications. Barcelona is in catalonia, which is the most developed region in Spain.. Spain is an advanced European nation, and I've spoken with a few patients of Monegal.
I'm hoping I'll only be in pain 2 or 3 days
Looking forward to getting this done and be back to my old self before Summer ends
-
Congrats for finally take the decision. How many time are you going to be in barcelona?
-
not sure. ill arrive monday or tues, see the dr wednesday, surgery on thursday.
might stay a week or 2
-
only thing im not syre about is recovery time
i see some people online say 12 months to recover???
but thats from uncontrolled fractures
i also see on here people who got lon on both legs, and seem to be walking in 4 months, and thats after 2 broken legs, and lengthening
how long should it before i can walk??? i dont need to be running a marathon anytime soon, just normal walking ability?
-
only thing im not syre about is recovery time
i see some people online say 12 months to recover???
but thats from uncontrolled fractures
i also see on here people who got lon on both legs, and seem to be walking in 4 months, and thats after 2 broken legs, and lengthening
I think that in two months at most you will be walking
how long should it before i can walk??? i dont need to be running a marathon anytime soon, just normal walking ability?
-
i hope, about 6 weeks
but without a limp?
-
It is surprising for me that you are going to put a nail in. As I understand from what Doctor Monegal write in your post is that they use Hexapod fixators such as TSF or Trulock in progressive correction of malalignment: http://www.limblengtheningforum.com/index.php?topic=437.522 (http://www.limblengtheningforum.com/index.php?topic=437.522).
Is the nail Fitbone ?
Good luck.
-
yes, in case of progressive correction
im getting acute correction
-
anyone have an idea how long it will take to walk without crutches???
-
Good luck man. Hope it goes great and you're back in good shape after.
-
ty
i havent walked much in a few months
so im very sore,muscle wise when i walk
i assume itll get better quickly after correcting left leg
no joint pain,etc at all
but def muscle soreness
-
wanna thank kirkp1 for sending me this study
this study was done in 2014 and and is the first(only?) to critically document clinical and radiographic results using the suprapatellar approach for im nailing of the tibia
Almost 40 patients were involved in the study and 0 patients have anterior knee pain .. This is pretty significant when compared to the standard im tibial method. It's definitely a big reason why I decided on Dr Monegal
Hopefully I'm not the first to get anterior knee pain
http://www.ncbi.nlm.nih.gov/pubmed/24694557
-
Hope everything goes well in your surgery bro. Keep us updated
-
Screwed that you got messed up in the first place. I'll never go to Russia after seeing some of the complications those doctors there cause.
-
I've just been told that his surgery was highly successful! Crinsom's leg will finally be ok! ;)
Im happy for you brother
-
Hope it went well. Just a few more months now and you can enjoy your new legs.
-
HAD surgery thursday
my lower leg, feet are still a bit numb, which I'm not happy with. supposedly they put a block on the nerve, but it been a day now
they say its normal, but feels weird. I'm definitely not going to be happy util my feet feel normal, and ill be complaining non stop about this
i can move toes, but feel like pins and needles
dr said the surgery went perfect but haven't seen x rays yet
not in a lot of pain, but the numbness is more than annoying. I'm not gonna focus on anything else until this is resolved
to me, my leg looks a bit bowed, but i could be 100% wrong about this.
the numbness though is very very very very very annoying, and i will be raising hell if its not gone by flight on tuesday.. i probably won't even leave then.. i don't believe in a wait a and see approach
-
as long as the numbness goes away, i think ill be highly satisfied
id have a much more positive reply here if it weren't for the pins and needles
I'm just concerned the numbness stays like this.... i don't care about it if goes away in the but day or 2, but thats about it
the city is nice, hospital is nice, etc
ill update as soon as numbness gets normal... ill be in a much better mood
-
The numbness could be just from bruising of the nerve (neuropraxia). It doesn't mean the nerve is truly damaged or that anything further needs to be done. These things can be difficult to tell post operatively. During these operations, everything is being shifted around and jostled and it's easy for a nerve to get traumatized in a variety of ways. Given that it's only sensory (no motor loss), and you don't have any neuropathic pain (burning, electricity, stabbing, etc.), most neurologists would likely suggest you "wait and see".
FYI, nerve injuries can take up to a few months to heal. As long as the nerve isn't entrapped or being continually impinged by something internally, it should recover though. I'm not sure if there's any easy way to tell the difference except waiting and seeing. You can get nerve conduction studies done but they're not always very useful. An MRI might show an impingement of a nerve if an impingement was present but I'm not sure for a sensory branch.
Either way, again given the mild nature of your symptoms (no pain, no motor loss), they might suggest you just try physio first to see if it resolves that way before cutting you back open which can just retraumatize things and risk further damage.
I'm not an expert in this stuff, so ask your team, but honestly I wouldn't freak out if it was me.
-
if the numbness stays past a few days, I'm going to be an extremely difficult patient
no reason for numbness in this procedure, unless a mistake was made.. waiting months means ill have it forever
i don't believe in waiting and seeing... nerve damage rarely gets better
i didn't have numbness in russia after, so i don't accept this is just a normal occurrence
i can move all toes, etc but still... its not comfortable to have a foot that feels partly asleep
no pain either, but still
I'm going to be extremely upset if this doesn't resolve in the next day or 2
i guess my fibula was broken too, so theres a screw down there as well.. i guess this is normal
i just want the numbness to go away,and see the x ray
truthfully, if everything else was a success, but my ankle and foot feel asleep forever, i'm going to judge this surgery a disaster
i can have my leg operated and not have to get numb
but we will see, it's very early still... i just don't listen to drs that tell me everything is ok, and accept this with no problems... every single dr I've ever been to says that, even when something is not normal.. It's nothing personal against anyone, I'm just used to drs telling me wait, it'll be ok
-
That's not true that nerve damage rarely get better. It deppends on the nature of the damage. As an example I have had jaw surgery. After jaw surgery it is completely normal to be completely numb around all lips and gums for up to 1 to 6 months postoperatively. This is just due to the bruising of the nerves caused by moving them around during surgery. After numbness you get pins and needles, and slowly this normalizes as well.
Worst case scenario is a sensory nerve was transacted when they were doing the osteotomy. But if it was fully transected you'd I'd expect be completely numb. For anything less than a full transection or ongoing impingement, I doubt anyone would do anything surgical. But that's between you and your team. Again. I wouldn't freak out if I was you. But that's your prerogative.
-
if a nerve was transacted
would i experience pain// loss of movement of toes?
really have no pain and all toes move normally
-
What's the exact distribution of your numbness? Where does it start and finish? Are these areas completely numb or can you feel deep pressure/pain/hot/cold at all?
Regardless of the cause just be glad it's not causing neuropathic pain. That's a hell you don't want to know.
-
What's the exact distribution of your numbness? Where does it start and finish? Are these areas completely numb or can you feel deep pressure/pain/hot/cold at all?
Regardless of the cause just be glad it's not causing neuropathic pain. That's a hell you don't want to know.
ITS around lower leg to feet... no pain
i can movies toes and feel sensation in feet, but feels like its half asleep
they did a sciatic block thursday night,and i think another block... they said can last 48 hours but 48 hours is a while
-
Hi Crinsom! Dont freak out! Everything is perfectly ok! Trust me. I've already told you: That sensation is normal for the first few dYs because of medical reasons that I'm not able to explain since i lack the Vocabulary and knowledge. I will be there soon to reassure you, but please keep relaxed.
People of the forum, I've passed some hours with Crinsom al hospital and i can tell you he's perfectly ok. He's just worried because of being alone in a foreign country and having so much time to think! ;
But Dont worry. Musicmaker will be there to give Crinsom conversation. :D
i hopeee
-
Yeah just relax man that doesn't sound like a problem at all.
Musicmaker do you work for Dr. Monegal's team and if so what's your position?
-
Ty guys
I saw dr monegal and did s few tests
Poked me with needle et. And I definitely felt it
Basically what maximize said. Not s big deal and is due to excess fluid etc
He's sure it will resolve soon and also due to sciatic nerve block
Music maker is not a member of the team. I know sometimes she sounds like me but she isn't. She's just a patient
Barcelona is beautiful btw and the hospital is modern
I'm already walking but on crutches of course
-
Day 3 now
Started a little cortisone and cryotherapy. And can say my foot feels almost normal now
Much much better. So very happy about this
Saw my ex Ray and it looks very good. My leg is completely straight and he even did a bit of bone grafting. The nail looks very good. The fibula was cut and looks good too. Fibula was causing valgus So I'm guessing will heal ok now
Very little to no pain and already can extend knee 90- 100 degrees
Comparing this to externals is really no comparison. I know I broke one leg now not two but from the first day wearing externals my sleep Was disturbed. I could not sleep well the entire time I had externals on
My sleeping right now is fine
I can't go back in time and am lucky everything turned out okay but my advice would be to do only internals and maybe Lon.
I could never recommend external. After going through what I went through and seeing other patients wear fixatives for up to a year
Even if the dr is a top dr I just think externals are old outdated technology not suitable for cosmetic ll
-
That are very good news my friend. Finally everything is going well :)
-
Hi crisom.
I am happy that your surgery go so well.
Cheers, paco.
-
Ty Paco
-
Still feel foot is not completely normal maybe 80% normal
I think with more time and cortisone and cryotherapy it will get better
I'm just very very paranoid about numbness
It hasn't even been 3 complete days yet though since surgery was finished
I'm sitting now in chair. No pain really. I can very easily walk with walker or crutch
Leg still a bit bloated but it's normal. Looks good
When I legs broken in Russia my legs were incredibly bruised in the back. I mean really bad. I don't have any of that now. I'm thinking the technique here is more refined compared to Russia
-
I guess you're able to weight bear so quickly because you're not doing a lengthening process? Did they insert a fitbone or a rigid full weight bearing nail?
Also where did Monegal harvest the graft from? Iliac crest?
And no anterior knee pain at the drilling site so far?
-
As some others I am dr. Monegal's fan. I am pretty sure I will go with him for my son's surgery. One question, is the anesthesia general or you can do epidural?
-
i hsad epidural but was very easy compared to others. i was also knocked out during surgery. woke up after
-
I am in literally zero pain right now
Just bad stomach ache
Still a bit of swelling but that takes time. I would say leg doesn't feel 100% yet but been less than 4 days. Leg is very straight. The sensation in my foot is there. It's a bit off but I can feel things well I can feel tickles easily and touch and scissors being rubbed against feet
I can also already walk on crutches
I have almost no knee pain. It's s little off as I just had tibia and fibula osteotomy but compared to time in Russia it is very easy
I was in good shape last yeR and the last 7 months have made me gain over 15 kilos
I've been a bit depressed because of this. I feel ill be able to get back in shape soon and walk fine and be good looking again
I really would recommend against external. I wound up spending more money and more time because of it. I'll finally be ok now but if j had to do it over I would only do internal , maybe Lon
Trust me on this. This nailing procedure is much easier
I'm not a fanatic of any dr but I will give my opinion on Drs and techniques used
Avoid external. From my experience dr monegal has done well with me so far
Time will tell the exact level of satisfaction but I'm pretty happy less than 4 days out
Avoid India !
-
Just bad stomach ache
Probably from the fries and fanta that musicmaker bought you. ;)
-
So, crimson... Is musicmaker hot?
-
well, first off. iwhen i really press my knee or below, it hurts a bit,but i think this is normal,even with supra patellar. i spoke to another patient about this and they had same thing first few weeks with bit of a restriction on movement but he's ok now
the study done on supra patellar approach is very encouraging . none of the patients had knee pain 6 months to a year after
the sensation in my foot is about normal again. was very worried about that. need to really lose weight and get back in shape now
stomach ache was the worst thong for me yet.. was sick all day.. and the internet here is atrocious, but thats not so important
overall, lying in bed,i feel pretty good. can already use crutch to walk though never used crutches before, so getting used to it. feel much safer with a walker
need to get handsome again... gaining 15 kilos is not a positive for looks. but i think ill lose it quickly now... ill be cheating a bit, but I'm getting impatient
musicmaker is attractive, but gossips way too much. typical woman
ill oneway post a photo of myself after losing 15 kilo
id post one now of me and my beautiful dx, but since she's an ex, I'll not do that
-
Funny how crimson suddenly wants to lose weight to be more attractive since he met musicmaker, perhaps it's only a coincidence... :P
-
i like to be good looking regardless
having a bad leg though made that difficult
i am flying to morocco today,then to new york.
sensation in my foot is normal again. The swelling is there, but that's normal too
Now I just need to walk over the next 5 weeks and get off crutches... i'll be losing weight and gaining muscle
then I will... Idk yet, but something good!!!
g man, are you french?
-
I am french Canadian yes, does it show in my writing? ;)
-
Congratulations on getting your issues fixed. Hopefully you have a swift recovery and are quick to getting your life back to normal. You've had a rough journey and deserve a break.
-
ty kilo,
i had my phone stolen today, so been a lil late on replies
hoping that it will be returned!!1 very very irritating to have my phone stolen now
-
Sorry to hear that Crimson; how did it happen?
-
guy helping me with my stuff out of taxi
decided to to not bring in phone i guess... then refuses to answer my calls... so annoyed.... im gonna file a report on the driver,etc... i want my phone back
-
dude that sucks.. hope you get it sorted out, stay strong!
-
i will
just time consuming
-
got my phone back!!!
-
Now you can call your boyfriend haha
-
lol no!!!
i feel ok today... i took a lot of ibruprofen.
well, i guess ill be ok soon
been a very hard 14 months but time to be done,get back in shape
ty kilo
-
Just realized something today
I ve been a bit concerned since when i really bend knee, it feels very tight
Today though, I feel okay, and noticed where the tightness is coming from
It's from above the knee, where I had incision...
It's not the knee. I also realize why it feels so tight. I was concerned it was the nail, but I'm fairly certain it's because I still have sutures in..
Feeling better today. Not much pain after getting some meds, and feeling relieved about the tightness likely coming from sutures
All in all, pretty good for first week
-
Hi Crimson,
Can you give us details of how you physically paid the hospital and doctors fees, please? I mean, did you pay by credit card, cash, bank transfer, or something else?
I am thinking of opening a local bank account immediately when I arrive in Barcelona, but I've been reading conflicting stories about how foreigners need some extra documentation. Also, I'm not sure what the clearing time is for international transfers coming into Spain. (My main bank is Citibank, if that helps)
Could really use your advice on how to best handle the money transfer issue, thank you!
Glenn
-
glennn, I know nothing about the banks in Spain. Pretty sure you can't open new bank account unless you're a citizen.. maybe EU citizens can
Leg isnt in so much pain
the leg definitely feel weird bending it though. like something is stopping it
hoping its just normal process of recovery
for the others that recived an am tibial nail, how did it feel the first few weeks???
Pain? Stiffness??
-
Thank you for replying Crimson... So does that mean that you paid in advance from your home country with wire transfer before flying to Barcelona?
-
So its been almost 2 weeks since surgery
Feeling much better
I do have some stiffness and discomfort when bending leg. It occurs where insertion was done, above the knee. It's much better though than it was. The actual knee feels , dare I say, 100%... I'm out of shape too, and I can kneel with my knees on the bed, and it doesn't hurt a bit
Still a little bruised, but not bad at all
I feel 10000000 x better already when I am standing unaided... I never really felt right with my leg deformity, even standing after a while caused some odd aches. I think it had to do with maligned ankle and fibula
I'll be going to Dr soon to remove sutures.
I'll start pt soon for a few weeks, and will get x rays done in maybe 4 weeks.
I hope to start walking unaided pretty soon, so I can get back in shape
Anyone that thinks these alignment issues are just aesthetic, and can be ignored, will be in for a big surprise. They should be corrected asap
My deformities were
1- valgus. Pretty significant valgus too
2-recurvatum, which was bad
3- fibula was a bit off, which in my case was causing foot issues... Dr Monegal could explain better
My foot feels so much better.... Like I said, the foot really felt odd, and it hurt my walking ability
I don't think I should have any long term complications... My legs are now aligned,and x rays looked good
I must end this post,as always, with the following words of caution
DO NOT GO TO INDIA...
-
Crimsontie- you still have bruises after 2 weeks? I have a lot as well but is fading way every day but far too slow I think. How is it now?
Also, do you feel any muscle pain around the bruise area when you walk especially in calve muscle?
-
I really did not bruise at all
but i bruised when i had first surgery. i think your bruising is normal
i feel discomfort,etc where the rod was inserted... but only after sleeping,not moving,etc... i think its normal, and time and some pt will fix it
iive been pretty conservative because im afraid of rod bending,etc but i think the odds of bending are almost zero. im just paranoid.
ill take x rays in 3 or 4 weeks, and hopefully start walking without crutches then. it feels like the screws are sticking out at the top, but a dr etc saw my leg yrsterday when stitches were taken out, and they think it looks quite good for 2 weeks, so i think thats fine too
my calves... my right calf is very tight last few days, but i didnt have surgery on tht leg, so might be weather here.. its not pain though
i have no anterior knee pain , and only been 2 weeks
your bruising should go away... some people just heal slower.. my first week was rough, but now, its much much better
you should be ok... its been 2 weeks since surgery?
-
No today is first week. Had surgery done on 14th.
The bruise and swollen is subsidizing. Swollen is nearly gone but the bruise is still there. In about a week this should go away...crossing my finger.
-
i didnt get much bruising at all
but i know people that bruised badly
it has to do with hemoglobin levels, I assume.. you probably have lower hemoglobin levels
-
I did not bruise this bad on femur. Not much worried just a concern. I am sure it will go away in a week. Only thing is I feel pain when I step my foot on ground but feel ok in bed. And the area of pain is where the bruises are. Makes me believe some correlation with bruises and pain. With the bruises gone pain might go away.
-
you had your leg broken in 2 places, and a large rod inserted in your leg... i think its normal
i was very worried first week too. im not 100% yet but only 2.5 weeks after surgery and 1000* better
i have some bruising, etc but its normal.. might take month or 2 to feel normal.. youre lengthening, so you probably will feel discomfort for a few months.. its normal though
-
I think that it is normal. You have had surgery recently
-
Thanks Krp1 and Crimsontide. Sometime I forget I am doing major surgery and going through first week of trauma. Some reason I tend to believe this should be walk in park because of one leg etc. Need to come back to planet earth ;D
The bruises is already fading away than before just a slow normal process. Apart from that all is going well.
-
i just noticed i still do a have a small bruise. not large though, but in a weird position, sort of below ankle. doesnt hurt though. i assume itll go away.
but bruising is normal.. i dont think bruises are ever permanent, even if they last a long time
-
I had severe bruises for quite long time. Someone gave me Hirudoid ointment. Didnt believe in it but surprisingly it really worked...
-
ill try that out, though mine arent so bad
probably my major discomfort is above the knee, in the thigh almost, where the rod was inserted... bit of stiffness,and discomfort... its gotten better though, so im guessing itll continue to get better.
other patients get the same thing?
-
Awesome on the progress and feeling better. Congrats!
-
ty
looking at my leg, it looks skinnier now, which i like tbh
when the bone wasnt aligned, it always looked a bit bloated
i have no anterior knee pain at all.. i have some discomfort on the medial side where screws are, but should go away, and it goes away when screws are removed anyway.
ive started to work out a bit already.. i use crutches now, though i feel i could walk without them... the plan is to get x rays in 3 weeks and start walking without any aid
i'm looking forward to this, finally ill be normal
its weird though, my right achilles, which was not operated on, feels so tight now.. My right leg was not the leg operated on, so can't be directly from the surgery.
I'm guessing that my gait has been changed, since i was walking with a bad leg for a while, and that my leg is just adjusting to this
-
feeling pretty good the last 2 days
plan to start walking without any aid in about 2 weeks, though I feel I could do it now. I'm just a bit nervous to try walking now without crutches
I'm feeling pretty decently, and starting to get back in shape
-
been 4 weeks
feel pretty good, but still bruised at insertion site... this normal?? its not awful, but wanna feel close to 100%
screws cause a bit of discomfort on the medial side when putting pressure, but think that will go away
-
gonna be 5 weeks on thursday
my leg has felt very good for the past few days
still a bit paranoid to walk without crutches, but in maybe 2 weeks, i'll be doing it.
i heal well, so im thinking ill be pretty much recovered very soon. i wot try running, or jumping for a while, but that'll come
im a big fan of nailing... the experience has been much better than my external fixation. i know i had 2 broken legs, and was lengthening, but external fixators are a nightmare
LISTEN TO ME PEOPLE
DO INTERNALS, BUT IF YOU CANT, DO LON
external is just too hard,and too long.. these knee pain issues you hear about are overrated.
-
took a walk... with crutches.... for half a mile other day
been 5 walks, but leg has very little soreness now
i will be conservative, and keep using crutches a while, but i can already tell the difference between now and before... almost like my old normal leg
i should have fixed my leg earlier, but cant go back in time now... i fixed it in time though, and thats all that matters
-
been 11 weeks
i dont really have any pain... might wanna get screw removed soon
left leg is aligned and better, though i still have a limp... seems normal to have one after 11 weeks... im guessing it will not go away for another month or 2
-
STILL NOT WALKING NORMALLY AND HAVE A LIMP
right leg seems okay, but the left one definitely is not
not sure if this is normal... i stretch out, try to put weight on it, etc... but left leg still is not functioning properly. its been 12 weeks, so i dont know how long recovery takes for this normally, but ive definitely lost all my patience
stretching, weight bearing, exercise... still limping... im hoping this is normal, but losing confidence.
-
sorry to hear about your situation....
what does Dr. Monegal say?
-
How much walking are you doing? It took me months of walking several hours a day before I started feeling normal.
-
sayss more pt
but my left leg has a limp, so its not easy
medium,... u walked for hours?? how slpow eree u in the beginning... its a real struggle for me... need to regain flexibility too
-
I say You need to go and see a PT which You haven t done.
After a Long period of external fixators plus surgery in the Achiles tendon plus nerve issue, It requires a Long Long time to recover normal walk.
When I met You (after all These experiences in India) your leg s muscle condition was extremely poor. Plus we did limb allignment in july and Now limb is alligned with no pain and full ROM.
So Now your situation is an alligned limb with full ROM at joints and no pain, with a massive muscular weakness. 0 PT as You do not trust PT be cause They are not doctors.
I have said That hundreds of times to all my patients. Surgery is a second in your recovery, but most important after a good surgical procedure is to do a good PT plan. Otherwise limp will last because of muscle weakness.
-
medium,... u walked for hours?? how slpow eree u in the beginning... its a real struggle for me... need to regain flexibility too
Really slow in the beginning - like two hours to go around the block with the walker slow. And by the time I was done, my legs and feet were swollen and throbbing so bad I'd have to lie flat and elevate the legs on the couch for half an hour. So going around the block twice a day took 5 hours out of my day every day.
Recovery from LL is not easy and it's not fast.
-
monegal.... i rote a long reply, but i won't post it yet.... you should stay off the boards though... some of your statements are not accurate.. i don't like t discuss private matters though, unlike some of your other patients, so lets leave it between us.
i don't have full rom btw, and your statement about pt is not correct... I'm not going to ask a therapist about x tays, analyzing tendons, etc... therapist only does what a dr says is needed
medium... i know, but itsl ike 16 months... i realize i jut had final surgery 12 weeks ago though
but the limp is whats holding me back, and I've done the same exercises, stretching with both legs and right leg is fine... it is not muscle thats causing these issue, and its annoying to hear that... when i put pressure on my left, i can feel the weakness of the bone... now if this is normal, okay... but progress has sort of stopped, which is what's concerning.....
-
Even if you had the best meal on the planet you'd complain about the fork or something... :P
-
yes g man, its very similar
in fact... my walking, legs are very bad, very weak
im pretty sure i dont wanna live like this.
if it aint gonna better, im surely gonna end this ....
i just ried to walk a short distance in parking lot... had to do down small step... its not comfortable at all.. i then walk a little, and its an awful experience and then try to stand on another small curb ... well, that experience is almost impossible to achieve... cant balance at all....
then trying to take 1 small step... my ankles etc are seless... and my leg actually almost buckled... i amost fell on the ground
thats how bad my walking is 16 months out...
i dont see this getting better... 90-95% function??? i think no wayyyyy
im at maybe 30 % now....
im pretty sure im screwed.... i can not live like this... and thats no hype
-
My legs were so weak I couldn't even use crutches when I first got out of the hospital, because I didn't have the strength to balance. I think you should start out with a walker and then work your way to crutches, then work your way to walking unaided. This is going to be slow and difficult, but don't lose hope.
-
At first it looks like a huge mountain and you think you're never gonna make it to the top. But you can, one step at a time.
-
Hi Crimsontide,
I hope you are doing ok. Please be patient as these things really take long time. I am sure you will be alright. Just try to walk.
Could you please clarify where did you have your previous LL operation as I am confused on one hand (1) finding two of your entries HAVE DECIDED TO UNDERGO LENGTHENING (http://"http://www.limblengtheningforum.com/index.php?topic=242") and TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV (http://"http://www.limblengtheningforum.com/index.php?topic=437"), but on the other hand both of you and Dr. Monegal mentioning India here:
DO NOT GO TO INDIA...
When I met You (after all These experiences in India) your leg s muscle condition was extremely poor.
So where your had your LL - in India or Russia?
Thanks and get well soon!
-
Hi Crimsontide,
I hope you are doing ok. Please be patient as these things really take long time. I am sure you will be alright. Just try to walk.
Could you please clarify where did you have your previous LL operation as I am confused on one hand (1) finding two of your entries HAVE DECIDED TO UNDERGO LENGTHENING (http://"http://www.limblengtheningforum.com/index.php?topic=242") and TIBIA LENGTHENING IN MOSCOW WITH DR BAGIROV (http://"http://www.limblengtheningforum.com/index.php?topic=437"), but on the other hand both of you and Dr. Monegal mentioning India here:
So where your had your LL - in India or Russia?
Thanks and get well soon!
I didn't read through your diary before posting questions in my previous post, because to say frankly I don't like dramas and no offense but you seem to be quite a dramatic person. However, instead of waiting for your reply I've decided to quickly glance over your posts and have just found this:
im definitely going to india on monday to get the release done. it is ballerina 100%... i definitely need the release surgery
and later on this:
had frames removed and equinus corrected by dr shah...
posts and now I see you had initial LL with Dr. Bagirov and then corrected equinus with Dr. Shah. So this was third intervention with Dr. Monegal.
Wow, quite a story! Anyway, do not get sad too much, stay cool and get well soon!
-
ty medium
i can walk unaided, but left leg so bad still
ill post post op x rays soon... how though?
i dont like what i see, but monegal says its fine
-
just tried to ulpuad... no go
ill again try to link to photobucket
http://i1142.photobucket.com/albums/n616/Parsifal1/monegal1.jpg
http://i1142.photobucket.com/albums/n616/Parsifal1/monegal2.jpg
-
i know what i think... but again... im no dr, so the dr says its ok,i guess... let me know your thoughts
-
I'm not a doctor either, but the second pic looks a bit weird. Isn't the nail curved? I'm assuming it is intentional, so it can fit your tibia, right? But that misalignment in the fibula... However I think that Monegal is a very good doctor, so have faith.
I see that the pics are from 3 months ago. Any more recent pic?
Good luck :)
-
nail curved??
ive seen this in many photos.. that doesnt really bother me, to be honest... common for tibial nails to be slighly bent at top..look nline
fibula does look malaligned... but doubt thats a big issue, or even small issue
-
common for tibial nails to be slighly bent at top..look nline
OK, no problem with that then. And for the fibula, I'm just curious to see more recent pics.
-
dr says fibula is aligned
so, i guess it is... it looks off to me too, but what do i know...
ive read fibula serves almost no purpose though, so its not an issue... doubt fibula would cause a limp or something... might be wrong though
but dr says fibula is aligned
-
Fibula looks just fine. Tibia is still little misaligned, but after seeing number of patients of another doctor compromising with much worse tibial misalignments I think your is ok. However, the main concern should be valgus, which we can't see on X-rays. How is your valgus? Has it been corrected?
-
i think tibia isnt fixed either... but dr says its just extra callous, not malalignment??
supposedly, no valgus or recurvatum
im kinda glad u said it looks ok... it loks bad to me... dr monegal says the tibia is aligned... and the fibula..
you can see valgus on x rays... its frontal view... doesnt seem to be any... you could definitely see my valgus on my pe op x ray
ankle ok?
-
supposedly, no valgus or recurvatum
why supposedly? can't you see your left leg is not bending outwards? can you tell which one your legs look like now:
(http://www.meadowheadphysiotherapy.co.uk/wp-content/uploads/2015/03/varus_valgus.jpg)
im kinda glad u said it looks ok... it loks bad to me...
not an expert, i'm just telling based on how many much worse cases i saw among another doctor's patients.
you can see valgus on x rays... its frontal view... doesnt seem to be any... you could definitely see my valgus on my pe op x ray
which one is frontal view? also can you give a link to your pre-op x-rays, couldn't find?
-
and i still have a limp because of left leg
im hoping its not because of bones, but it sure feels that way
anyone with experience??? do people sometimes take 5 or 6 months to fully recover and have no limp?? i dont think this limp is due to muscle weakness, but again, dr monegal says hes sure it is... s
-
nomad... i think the second... maybe first too... thats the frontal view..
doesnt seem to be valgus... valgus is knock knees, my knees do not knock even if i put my feet together
-
my x ray doesnt look exactly like any of those, becaue i have extra callous
but the one closest is of the normal view... it looks nothing like the varus or valgus ones....
you can see it in the x rays
-
doesnt seem to be valgus... valgus is knock knees, my knees do not knock even if i put my feet together
valgus is not necessarily knock knees. when standing or even lying do lower part of your legs toward ankles bend outward like on third position in the above picture or not?
my x ray doesnt look exactly like any of those, becaue i have extra callous
but the one closest is of the normal view... it looks nothing like the varus or valgus ones....
you can see it in the x rays
you could notice valgus/varus if the whole body was taken, but x-rays of a single tibial you really can't see. look at those three positions in the picture, the third one is valgus.
-
valgus is exactly that... knock knees, but refers to the distal part
you can see i the x ray that the dsital is not going outward
you can see my ankle as well... im not sure whats so difficult to be honest
the knee does not go inward, ,distal does not go outward, etc
and when i stand with feet very close, or even together, theres no touching of the knees, which is not possible if the bone is bending outwards at the distal
-
valgus is exactly that... knock knees, but refers to the distal part
you can see i the x ray that the dsital is not going outward
you can see my ankle as well... im not sure whats so difficult to be honest
would be nice to compare with your pre-op pictures.
the knee does not go inward, ,distal does not go outward, etc
and when i stand with feet very close, or even together, theres no touching of the knees, which is not possible if the bone is bending outwards at the distal
well then good! that means Dr.Monegal did a good job by fixing your valgus. was it different before the last op? i wonder just how bad your valgus was before.
-
oh, you could definiely see the valgus
my entire bone was very odd at the ankle
but i also had recurvatum
i had a double plane deformity
i had about 15-20 degree valgus, and recurvatum
but im still not sure about alignment
that extra callous just looks weird!!! looks like im growing extra bone, like an alien
-
oh, you could definiely see the valgus
my entire bone was very odd at the ankle
but i also had recurvatum
i had a double plane deformity
i had about 15-20 degree valgus, and recurvatum
but im still not sure about alignment
that extra callous just looks weird!!! looks like im growing extra bone, like an alien
compared to all the problems you listed and which are now corrected, your slight misalignment is nothing. it will straighten up by itself over time. so don't worry, just walk as much as you can and you'll be alright.
-
nomad
im glad u said that
you seem like you would be honest and tell me if you thought it would hurt my walking
the achilles, etc combined with this..ill be doing intensive pt soon, and supposedly ill get back to 95% but hard to believe sometimes
so u dont think my bone is causing limp??? i guess i just need to walk more
-
Right leg looks fine, yeah, just extra callus. The left leg looks a little bit crooked to me, but not that bad. I think that as long as it's within a certain acceptable range the bone will remodel itself over time. It'll be interesting to see how your bone remodels over time.
-
medium,
both x ras are of the same left leg
the callous just distorts the view depending on angle
still looks crooked to you???
not happy if its crooked... idk, im hoping its just callous... it doesnt look right to e either.. but monegal says its aligned
idk... ut both x rayrs are of same leg...the callous really creates an odd viewing
-
Wow, that's the same leg? Interesting how it looks straight with a little extra callus in monegal1.jpg but crooked in monegal2.jpg. I think you just have to trust that Dr. Monegal aligned it from the viewpoint that counts.
-
yes,same leg
i dont even have a rod in right leg
how bad does monegal2 look to you?
-
and i dont know if it means anthing
when i stand.. i constantly ask friends about my leg... some saw me before
they all say it looks straight... but idk... i didnt think so, and x ray kinda confirmed my feeling
but, all my friends say my leg looks straight.. whatever thats worth
i hope if theres an issue, not enough to make me limp
-
Monegal2 doesn't look that bad, honestly. I think the bone will remodel itself over time.
-
when i walk
the knee does still bend inward... whiuch is exactly the problem before
ugh, im about to give up...im thinking its a bone issue
-
sell.. maybe it wil remodel
ive never heard of that, but okay
-
also, i just had to get on the floor on both knees
let me tell you... my left leg... yikes, it felt very bizarre, like a bump, and was very uncomfortable
hopefully it goes away, maybe when rod comes out... ugh....
medium, uve had this feeling.. it went away? im not gonna whine too much about it... its the least of my worries to be honest
-
so...
turns out these x rays are useless
cant evaluate alignment without a long x ray
so the ones i posted are useless... sorry about that guys
-
ill be heading to barcelona soon for therapy
i have it on good authority that my x rays look ok... though these are a bit old..
they do look okay... so monegal and another top top surgeon have told me this....
the callous does look weird to me, but i guess it has no adverse impact
it will take me another few months to fully recover though
-
i just walked over 2 hours
is it normal for my leg to be slightly swollen now
-
That happened when I first started walking. It stopped swelling eventually and I think my constant stretching and pushing myself to walk made it heal quicker. It's likely normal.
-
ah ok... yeah, just happens to leg recently operated on
how long did it last for
-
My feet and ankles used to get really swollen after walking long distances. It's normal and is a good sign that you're pushing yourself hard in recovery. Just lie on the couch for a while with your legs elevated and it'll go away. This lasted for many months.
-
ah ok... ty medium
im also having issues squatting, calf and legs are just weak though i think. pt will fix it hopefully
-
My functionality is 30.%. Of what it used to be
Just went up and down stairs. Had to hold on to something and was a lot of effort
95% is not close
We will see what therapy does
I'm starting to think I'll need to get the lower left leg amputated and s prosthesis put on if i want my function back.
And that's not a joke. But we will see what pt can do
I just don't think any others Went through this so I'm doubtful but we will see
-
My functionality is 30.%. Of what it used to be
Just went up and down stairs. Had to hold on to something and was a lot of effort
95% is not close
We will see what therapy does
I'm starting to think I'll need to get the lower left leg amputated and s prosthesis put on if i want my function back.
And that's not a joke. But we will see what pt can do
I just don't think any others Went through this so I'm doubtful but we will see
Amputation?. I cant belive you say that . You are freaking out
-
I think going up and down stairs is one of the last things that starts to feel normal again. Even now I'm still not fully used to it, but it gets better. Just got to give it time.
-
Kilo, I'm not not talking not normal. I'm talking extreme effort. I can't do it without holding on to something
Kirk, I'm not freaking out and not about to do it. I need to have function back though. I'm hoping intensive therapy does it , but if it doesn't , I need to do something to get my function back. I'm not simply going to accept it. Function now to me is all that matters , not aesthetics
I'm going to do intensive physical therapy but I need s backup plan in case it doesn't work.
Music maker , you care only about looks . We are very different people. I need to be able to enjoy life as I used to , walk normally , etc
Dr Monegal says it's just pt and and strength. Wasted muscles. After pt, he says I should be fine
But I need a plan b. I don't accept less than 90 %. Hopefully on s few months I'll be 95% but not even close now
-
Crimsontide, you came off like someone who has mental issue (this is not a personal attack, this is an observation). I go over your posts again; you whined pretty much ever second post. It looked like you spent more time whining than working on your recovery. What are you whinning about? It seems like Dr. Monegal did the best he could (and the result is good) given the fact that you got yourself butchered by incompetent doctor(s). Now, the doctor and everyone here are asking you to complete the last mile of your LL journey with hard work (a recovery routine). Work your ass off. Take as much physio sessions as you can. Do whatever it takes, through sweat and blood to get better. There is no magic pill. As of now, you belong to the same group as that guy by the username Leechlet. His recovery was horrible - everyone knows why. The best doctor can only do so much; the rest is up to the patient.
What is your recovery plan like by the way?
-
Haha dude chill out, stop thinking about amputation and focus on your recovery....To much drama bro ;D
-
I'm starting to think I'll need to get the lower left leg amputated and s prosthesis put on if i want my function back.
I don't accept less than 90 %. Hopefully on s few months I'll be 95% but not even close now
I guess it's easy to get overemotional when you are facing the rough side of LL, but please read your own words. You don't accept less than 90% but however you are considering amputation. Do you really think that you will be at over 90% with a prosthesis? Not everyone is like Pistorius, man. You will be 50% at best, and aesthetically it would be a catastrophe.
Trust your doctor and if you don't, get a second opinion. Stay strong with the PT. Good luck!
-
No need to amputate bro. But I agree with you in everything else.
-
Hi,,Chrimsotide.
There is no turning back once u are in the process of LL and we understand ur frustration. But we want u to keep on fighting with all ur best because there will be a day when u could sit back and enjoy all those hard earned price. Just keep on and on fighting till u get what u deserve.
Best of luck
-
Crinsomtide is not crazy. He is having a rough time. He is a good guy who has had to deal with ugly outcomes and incompetent or unethical doctors. Its not his fault. This could have ahappened to any other LLERS.
Crimsontide, you came off like someone who has mental issue (this is not a personal attack, this is an observation). I go over your posts again; you whined pretty much ever second post. It looked like you spent more time whining than working on your recovery. What are you whinning about? It seems like Dr. Monegal did the best he could (and the result is good) given the fact that you got yourself butchered by incompetent doctor(s). Now, the doctor and everyone here are asking you to complete the last mile of your LL journey with hard work (a recovery routine). Work your ass off. Take as much physio sessions as you can. Do whatever it takes, through sweat and blood to get better. There is no magic pill. As of now, you belong to the same group as that guy by the username Leechlet. His recovery was horrible - everyone knows why. The best doctor can only do so much; the rest is up to the patient.
What is your recovery plan like by the way?
-
My functionality is 30.%. Of what it used to be
Just went up and down stairs. Had to hold on to something and was a lot of effort
95% is not close
We will see what therapy does
I'm starting to think I'll need to get the lower left leg amputated and s prosthesis put on if i want my function back.
And that's not a joke. But we will see what pt can do
I just don't think any others Went through this so I'm doubtful but we will see
That's insane to think about getting amputated just due to muscle wasting from multiple surgeries. If you're desperate, you'd be better off injecting steroids for a few months to boost back your muscle development. Once your muscles come back (and it will take months to do so naturally), if your alignment is good post op, you'll be back to normal function.
Muscle rehabilitation from severe wasting takes a very long time naturally. But it will happen.
-
maximize
its not just muscle
i have injected steroids... hasnt done a thing for my issues
my walking is beyond bad
my right is ok, could need some improvement, but will be 100% i think
my left... its not just muscle waste... im pretty sure
maybe bad achilles,etc. i dont know... bone too feels weak
ill have x rays again very soon
im hoping for normal function, but we will see
ozy... 50% with modern below leg prosthesis??? not a chance.... more like 95% or better
aesthetically s a different issue, but i could not care less. i only care about function
50% with 1 below the knee modern prosthesis is way off... forget pistorius... i can give plenty of examples from my own experience
and will see if intensive pt and massage helps
i hope ill be back to normal, but really not sure about left leg...
journey... you have no idea what youre talking about ... you actually believe all the diaries on here??
i can tell you 100% that many people that post here with good things to say are very different if you speak with them in private... im not saying everyone, but many. this is a fact
ty becometaller... im not sure of outcome yet... im very positive about right leg... it seems ok now to be honest, maybe some little recovery is needed... but my left leg is a mess... maybe intensive therapy will help,etc... but i have some sural nerve damage... supposedly the sural nerve doesnt impact function, but who really knows
and the leg now feels very very very weak... not just muscle, but we will see soon
achilles surgery too takes a long time to heal from... right leg was ok, but again, everything with the left leg has been worse... from recovery, to achilles, to scar, to corrections,etc
-
aesthetically s a different issue, but i could not care less. i only care about function
If you don't care about aesthetics, only about function... why did you did Limb Lengthening?
And the >95% function with a prosthesis still sounds like sci-fi for me. How about balance, sensitivity, complex movements, etc?
Don't take a decision that you might regret for all your life. And I think that any doctor will advise you against it unless your pain is unbearable and with no chances of recovery.
Hang in there, I'm sure things will get better if you stick with serious PT.
-
Ozy,
I didn't care about just function before. This process though has changed that.
When you can't do normal things anymore , your mindset changes.
When I talk about function being 95%, I'm not talking about feeling or sensitivity. I'm strictly referring to walking , jogging , etc. that's it.
I haven't decided on it though. I'm hoping pt works but becoming more unsure of left leg.
-
well...
i went up stairs other day without assistance, though i looked a bit odd
my right achilles/calf is just very sore all the time.... not sire why, but i think it can be fixed, and the legg will be ok... just some more pt... hopefully can get full push off strength back
my left leg, which was the bad one, is still not that good... still a limp, and just feels a bit dead... i
i walk a lot now, and its definitely helped, but not near where it needs to be
ill do intensive physical therapy a few months and see how I progress
I have confidence regarding right leg being near 100%, but the left one, no
im pretty sure that my left leg is still off... the bone issue combined with achilles, and slight sural damage makes me more skeptical about this leg
im determined to get back to normal, so i will get there, even if i do something extreme on the left leg
-
im determined to get back to normal, so i will get there, even if i do something extreme on the left leg
If so, good luck finding a surgeon who will amputate a healthy leg. Have a nice day! ;D
-
healthy leg???
huh??? you must be absolutely illiterae if you think my left leg is "healthy"
if you mean the achilles is destroyed, bone still isnt 100%, nerve damage... yes, it's healthy
-
i seem to be a bit better
but my left leg still has slight limp... and both calves/achilles are very sore
im also walking so slowly... not sure if its dude to achulles surgery
i need to get back to a normal pace... or at least close to it... just so weak compared to before
i can go upstairs now, oddly, but still unsure aboit going downstairs
-
It's good that you're improving, I've read recoveries are different for everyone.
You should exercise for months and consult a million doctors before deciding on amputation.
No way you'll get back to normal by amputating a leg.
-
Updates?
-
update is im better . but nowhere near where i need to be
my left leg still is weak,and has a limp. my right look looks ok when walking
the issue is strength... not sre of its due to my past achilles issues, but i can walk fast no matter how hard i try
i have to put a ton of energy into walking at a normal pace, so its hard to walk anything but a short distance
I can barely do heel raises now, which is better than before, but nothing compared to how i used to be...
my walking is very strained.... i keep hearing i just need more pt, strengthening, but ivdont know... my achilles/calf area is just so weak
now regarding the lower leg amputation, this is what everyone needs to understand
my legs, especially my left leg has little push off power... thats the reason for my issues... just so stiff, and weak...
id guess im 40 to 45% of what i was.... and this ALL due to my achilles issue... though my left leg has a few other issues
i mention lower left leg amputation, because they technology now that mimics the achilles/calf, and can be as efficient as a normal leg
no, its not the same thing, but id be generating A LOT more push off strength from this device than i can now
its not like im trying... my achilles is so weak, that when i walk, im expending a lot more energy than a normal person would
its just awful to be honest and very depressing... i need to lose 30-35 lbs now,etc because i literally have no life
i spoke with the dr that did my achilles, dr shah, and he just says to come do a reconstruction to get more strength.
i just dont believe i can gain much more strength.. tgis is not me being a defeatist, or lazy
I should have done more research, and not listened to the dr when he said no loss of strength from achilles surgeru
look up studies on achilles lengthening... there seems to be a permant loss of oush off power, and its a significant loss
now thats for only 1 leg... i had open achilles lengthening on 2 legs.... we are likely talking a severe permant loss of push power
dr paley told me as such... i asked him could i get back to 90% after achilles lengthening... he said very bluntly, NO.
He flat out said no... he said maybe with gastroc recession... he mentioned achilles shortening, but not 100% assured it will work
Dr monegal thought I culd make a full recovery, but I don't think he realized what the other dr had done
when monegal does a tenotomy, he dos it the day of the surgery, makes small incisions, and, i might be mistaken, but makes a tear, so the tendon can stretch
its my nderstanding that he does not actually cut the tendon completely, then stitch it up after a lengthening
he knows now that i had an open surgery months after my initial operation, and that my ballerina was very severe... he was shocked at why they hadnt fixed it before
i had -60 degrees flexion
now dr monegal didnt say im screwed, but i did sense a change in his texts to me
i think the only way i get back to a normal life is by getting a rtand new lower leg... my left leg has many issues
1- nerve damage... i cant feel part of my left foot... it is supposedly sural damage, which isnt supposed to hurt function, but thats not really true... it does create a defecit
2- open achilles lengthening, with large nasty scar... this has futher weakened my left leg severely
3- further surgery to correct a deformity, which has left me with a rod and scress in my left leg... now it doesnt matter which dr does this surgery
this is further trauma to the leg, and has further weakened my left leg..
when you put all this together, i hope members can see why i think about lower left leg amputation... it isnt because i think ill be 100% pre surgery... but i do believe it would improve my current situation...
look up the iwalk biom... people can walk fast, jump, and even jog on this thing
its possible to get to 90% of what you were
my left leg is maybe 30% of what i was, and the achilles lengthening likely caused permanent damage... certainly the nerve damage is permanent... it hasnt changed in well ocer a year
i hope everyone now understands my situation, and my thinking.. maybe some will still disagree, but they wont think im totally crazy now
i have advice for members considering this operation
do not do it...
I am very depressed today... cant go enjoy a walk, 30 lbs overweight...
its not worth being 7 cm taller if you barely go out
im determined to get bac to normal, but doubt its possible without further surgery
-
Have you done any reseach about GH (grow hormone) ? Ask to a specialist if this could help you. I remember to see something about tendon recovery with that
-
I'm familiar with hgh, but I don't think it'll do much
the weakening comes from the lengthening itself. My left leg has so many issues that have weakened my leg... i really be surprised if anything could my left leg back to an acceptable state... just too much permanent damage and trauma.. id like to believe im wrong, but in my brain, i know the odds are against
only hope i have of walking normally at a decent pace is an advanced lower limb prosthesis
the amount of energy i have to expend to walk at even a normal speed is truly unbelievable
and with my friend today, i told him to walk fast, but fast in the sense of being in a rush
he did it, and just flew right by m... i couldnt get near me.... i just do not have the power in my lower leg... i tried walking as hard as i could, and i coukdnt come close to him, and he was just doing a normal sped up walk
it was very disheartening... there's no power being generated... and this seems to be a soft tissue issue... doesnt seem like muscle herapy is gonna fix this power loss
-
hang in there. I am sure everything will turn out on the bright side :)
-
crimsontide,
Have you ever thought that maybe the problem lies within yourself and not with your legs, not with Dr. Shah, not with Dr. Bagirov, and, heck, not even with your ex-gf? I have been following you diaries and you seem to be very stubborn and impulsive. You complain about everything and do not think through your decisions very well.
Dude, you're always in denial. You ask for forum member's opinion but you never listen to them. It seems that you ask for opinions because you're only seeking for reassurance.
I'm gonna walk you through some of your decisions here:
First, you partly blame Dr. Bagirov for your problems because you think he's subpar. And whose fault was that? You went to him (a doctor lacking credentials) instead of Mitkovic (who has more credentials on this forum and old forum) because Mitkovic was not replying to your emails. Have your ever thought that maybe he's freaking busy? or you annoyed the heck outta him with your emails?
Btw, you said:
just as a heads up to anyone thinking of mitkovic.... don't even try.... he won't contact you...
I emailed him a month a ago, and I received a reply in less than 24 hours. Maybe you should improve the way you write too (punctuations, tone, etc.) then maybe your emails can be more enticing. But whatever, this isn't a big deal.
Second, you decided to undergo release surgery despite the opposition from this forum and even from your doctor, Dr. Bagirov, because you said:
nothing wrong with getting a release.... like i said,palsy does it all the time
Please enlighten me on this one. Where's the logic here bro?
wannabe, lets take this very logically... start with premises we can agree on
1- palsy does releases
2- paley does do it not just as a fix, but as a preventive measure
i think we can logically infer that the reason for doing the release beforehand is because in his mind, the complications of ballerina outweigh the risks of the release????
So if Paley told you to eat sh11t, you'll eat sh11t?
And then, you took your frames off a few months early because:
i guess healing is really down to your genetics, as far as bones go... ill have frames off before many others...I'm convinced though that the reason others don't heal so well are the long times in frames
A few months after..
but i have somewhat bad news
i had the surgery, then had casts put on because of the achilles... thought the cast would keep leg in place
well, my right leg which was healed, is straight, but my left leg is not
I am not trying to attack you or something. I just want to knock some sense into you and want you to be fk1ng strong. I really feel sorry for what you are experiencing right now. I truly am. However you brought these problems to yourself. Dude, I urge you to see a Psychiatrist/Psychologist right now. And don't fk1ng amputate your leg. Whatever, your brain tells you. Just fk1ng don't. Just for once, listen to us.
-
Not sure how multi quote
Bagoriv's frames are too tiny, and aftercare was nonexistent... I don't think anyone can disagee with that... Who knows how "its my life" is now,
I never really considered Mitkovic because of the momorails... He actually emailed me. Mitkovic has had more than a few bad cases
Bagirov technically a never told me anything... He speaks no English at all, and was very hard to reach him. A bigger problem is no one else speaks English at his office, so you have to wait forever to get a reply... That might have changed
You did not read my diary carefully if you think I took off the frames because I wanted to...
Dr shah took off the frames because he said it would be okay... My right leg turned out to be okay, but left one did not.. When I contacted him about it, his response was " i expected that this could happen, no problem, come see me for correction"
He said the exact opposite before the surgery
I'll say more about Mitkovic... he has had many issues... including legs simply caving in due to his nail and frames.. T
Tiny, you seem to to think that I'm a rare case.. you have not had this surgery, but I can tell you most patients are suffering problems... I'm just very open about it, and don't accept it
Look at rgkey... he posted a video of him squatting, but he doesn't actually do even 1 real squat.. now maybe that's acceptable to him and others, but not me
Kilokahn has issues going downstairs, etc... Ask yellow if he's healed yet
Who is the patient of Paley that has leg snap?? I can list a few more, but won't because they wouldn't like it...
Look at Sweden... he posts that he still sometimes has days he can barely walk...l ook at his videos... this is a person that was a great athlete. Swden is honest about his situation
If you go through the diaries, the success rate is quite low.. Some people that post positive things on this board can not even walk after over a year... This is fact btw, and not conjecture... When I say can't walk, I don't mean someone like myself, who just can't walk as they used to.. I mean they use a wheelchair....
You contacted Mitkovic recently, which means you're thinking of this surgery
I was very similar to you... I'd read the diaries, and think most seem positive... those guys complaining only have themselves to blame... I'll be fine
That is not the reality... I'm just very open about it
To give an example... I see Kilokahn's video of his walking... Now this may surprise the board, but I can walk similar to that... From my writing, that might be a big surprise, but I'll explain
You can't notice the amount of energy I use to walk normally... or how it feels... So it's simply not acceptable to me... and I can't walk at speed... I can walk at the speed shown in Kilokahn's video, but can't speed up. At the airport,where everyone is in a rush, 60 year old men leave me in their wake
This is not acceptable to me... I'm starting to think that it's not simply the achilles release that is the issue
I've heard of 2 patients recently that have soft tissue issues, or can't walk as fast as they used to because of tightness. Kirkp1 posted about it too. Maybe time and therapy will fix the issue, but it's not so straightforward
My left leg has multiple issues... push off strenth is the biggest one....If my tendon and nerves are shot, along with bone issues, then this leg is basically almost useless... not totally... it still technically works, but is so damaged that I barely do anything involving walking.
I'm not the only one either... Ask Sweden about his ankles.... and there are others...
My condition is just not acceptable to me.. to others, maybe they're okay with walking speed reduced, or arthritis, or any other of a host of problems.
For me, it's not acceptable... The energy required for me to simply walk normally prohibits me from walking anything longer than a few blocks. T Uncomfortable blocks too
Perhaps more exercise will improve me to 90%, but maybe not
Technology has improved so greatly that a lower prosthesis is certainly better than a limpy 40% leg
My uncle is 74..He just had his lower left leg amputated
There are patients at his facility that can jump rope, and jog with their prosthesis.
I can barely do a heel raise... I couldn't jump or jog now no matter how hard I tried. Soft tissue damage is very hard to fix.. It's killing my walking ability
I hope to recover... Monegal feels I will, but who knows...
You can choose to believe I'm an anomaly, but it's false... This is not my opinion either...
Tibike, thank you
-
Hope you get better Crinsomtide. You have reason... this surgery is not a fking joke and it is disgusting how some doctors contradict themselves.
You are a Monegal patient. You have met his patients. You know I'm telling the truth. Musicmaker can't walk since 2014. Big fking disaster. Others can't walk as they used to. Not their fault but they aren't as open as you. Some of these people are delusional.
All things you say about patients in the forum are true. They are not healed even though they post positive things. People lie for many reasons. This is serious surgery and doctors should tell the truth instead of 'selling' their services.
-
I have to agree with Crimson on this. This surgery is an extreme decision that shouldn't be taken lightly. Unless you need it psychologically speaking I wouldn't recommend it at all. Nothing is given when it comes to this surgery I'm sorry to say.. I'm an optimistic myself but if you don't have to do it: DON'T
-
crimsontide,
You did't get the point of my post. I never said that the surgery should be an easy process. You see, the problem with you is you always have someone else as a scapegoat. All I am asking you is to self-reflect and see what you did wrong on your part. I walked you through some of your decisions because I wanted you to see their consequences and not make the same mistake. Sure, we have advanced prosthesis but not unless we have some Full Metal Alchemist sh!!t, then nothing can be better at replacing your leg.
Yes. I am thinking of getting this surgery. But I am not very optimistic about it. I inquire my local doctors to help my decision making. I weight the pros and cons. I read diaries--good and bad. I never expect this process to be easy.
Just keep on fighting. Don't make impulsive decisions anymore. If Dr. Monegal believes that you'll get better, you gotta trust him. I hope you get better soon.
Tiny
-
What the fk dude, don't amputate your leg :o
I know exactly what you're talking about the walking issue - I had two periods after lengthening when I had to relearn how to walk. At first it's very tiring to walk, I think it is because the muscles that are responsible for stabilizing the gait are atrophied after LL because you don't get to use them fully. I had to put a lot of strenght at first to walk 'normally' and my muscles would fill with blood really fast I couldn't walk anymore but it gets better with time. When I did my 'walking excercises', at first I could barely do 1 km, after each 'walking session' I felt the atrophied muscles in pain (same feeling when you workout hard), and each time after they recovered I could walk more and more up to 10 kms and that's only in a few months. Imagine what you can get in an year or more. Just give it some time, it should get better eventually.
-
I received a message from someone on board... can't say who it is
but we have been talking lately... he agrees with me about bagirov... good surgeon, but aftercare,not so good
I also received some good news
I will see a therapist, do ultrasound,etc... but if i have to get a correction for my achilles, it can be done
Dr Shah lengthened my achilles by sliding the tendon... which means i still have all of my tendon... but one part is slid downward.... it means its much less thick now, but easily correctable.... in worst case scenario
if the z lengthening was used in my case, I would have had very few options... as that involves actually removing some of the tendon
My biggest issue is my push off strength... which is almost 100% due to my achlles being weaker because it is significantly thinner due to the sliding
-
bagirov just changed his tune again
One of his patients contacted me
look, here's the deal
do not get this surgery, unless you have a minimum of a hundred thousand $ saved up, and even then, better to not get it
do not get it in india, or russia
dr shah who is supposedly one o the top 3 drs in india for this, is simply a liar.
the guy just flat out lies... when i saw him, i asked him very directly.." will this weken my leg" his reply was no,.
After I had surgery done, he tells me my achilles will be weakened at least a grade... At that time, didn't think too much of t, as I didn't realize t how much weaker it could be
He took my frames off... put me in a cast... I asked him before the surgery..." can my left leg bend?" his reply was no chance
few months later, leg has 2 deformities... I email him, and his reply is " we expected this, come in, we will correct it"
Correct it not for free btw, but at a price greater than the original surgery
Dr Shah would not have a license in the United States.. there is no doubt about that
now my situation is this.... I can barely do a heel raise, and can't really walk anywhere... I have very little push off power, and that is 100% due to shah
He tells me only way to strengthen achilles is through augmentation... that is a not very specific.... can mean a million things
I wish I could walk 10 kms, but if I did, it would take an enormous amount of time because to walk at a even a normal pace, I have to expend a great eeal of energy... I'm basically expending twice the amount of energy as a man with 2 ty old school prosthesis
I have amost given up on the left leg, since that has nerve damage, and resigned myself to the fact I'll have to eventually get a lower leg prosthesis to walk normally
I'm hoping to make the right stronger, to 90 or 95%, but not sure... Almost certainly will have to shorten the tendon and see if that works
if you look at the tendon, and what happens when it's lengthened with the slide technique, you realize there's no ay the tendon can be nearly as strong... it's much thinner and longer... it's impossible... only way is to slide it back, and fix i that way
it's simple mechanics.... much thinner and longer tendon vs shorter and much thicker tendon
no amount of therapy or muscle building is going to change that fact
bagirov... this guy is another one... decent dr though, bt aftercare is nonexistent... I've had a few messages from people saying they regret going to him
at this point, i'm gonna stick with Monegal, and do what I need to do.....
Do not go to Russia, or India
trust me on this
-
dozer,im gonna try more
and will back in spain to do similar treatments
but I need to be realistic here... I fked up by going to to Shah... That was my huge error
I just do not see how muscle therapy alone is gonna fix my issue... my achilles tendon is much thinner and longer now.. can't be nearly as strong... Only way to get it back is to reverse the procedure
I'll post a pic later.....
-
Hey crimson.
Listen, I have seen in other posts that you are extremely against people doing LL because it is still not a "safe procedure". But how can you know that going to doctors such as Catagni or guichet will not give good results? I mean without critisizing you, you went to an Indian doctor (and you know what that means in terms of the level of expertize).
The only thing that I learned from you experience is to never set foot in india or in any other third world country in order to get such a procedure done.
-
i don't say it's impossible
I just say that the risk is still too high
every dr you mention has had bad cases.... we like to think we wont be one, but we dont know
-
i don't say it's impossible
I just say that the risk is still too high
every dr you mention has had bad cases.... we like to think we wont be one, but we dont know
I dont know about guichet or catagniand bad cases. That's why I also asked my family friend which is the head orthopedic surgeron of Hadassa hospital in Jerusalem. He knew Catagni before I even finished to say his name.
-
theres always bad cases
ive heard of a few from guichet
have heard very little about catagni... but tye chances of 0 bad cases are very low
no one comes out of this 100%
-
theres always bad cases
ive heard of a few from guichet
have heard very little about catagni... but tye chances of 0 bad cases are very low
no one comes out of this 100%
What did you hear from guichet? You can PM me if you prefer
-
not really interested in any case but my own tbh
all i care about is getting back to normal,and exposing shah
other than that... I'll give my opinions and what I hear, but not going to spend much time discussing it
I care about getting better, that's pretty much it
-
not really interested in any case but my own tbh
all i care about is getting back to normal,and exposing shah
other than that... I'll give my opinions and what I hear, but not going to spend much time discussing it
I care about getting better, that's pretty much it
I understand. And I wish you to have a complete recovery :)
-
Dr. G actually tells you about the small number (I think 2 or 3) complications he had. These patients apparently failed to follow his protocol, and had fractures as a result. But, they all ended up ok in the end. But, of course, he could be presenting it this way to look the best as he can despite the mishaps. This surgery is risky no matter which doctor you go with (bud I'd personally never go anywhere outside Europe or the USA).
Crimson, I'm rooting for ya man. I know you live near me. Let me know if you need some support and I'll swing by. Hang in there bud.
-
All doctors have complications in this surgery because it is dangerous.
The problem is when the doctor lies. Guichet tells the truth about his complications but Monegal lies to his patients all the time and doesn't care about them once he can't take more money from them. Ask them for information. He isn't to be trusted. All is practices are somehow shady.
-
I'm petty much fked
but can get better... its probably gonna take an amputstion though... thats how weak my legs are from the achilles surgery
some drs say i can recover with shortening, others arent sure
cant live my life with my achilles being 40% of what it was... i can't do anything I used to enjoy
I can't even go enjoy a walk
dr shah is the worst
-
Not sure about Dr Shah. Bad doctor? Perhaps... But IMO Bagirov and Monegal are also to be blamed. Ths doctosr have fked up some people's legs because of greed. You should visit other doctors to get fresh opinions about your case.
-
dr shah should not have lengthened achilles
bagirov is ok as a dr, but aftercare sux... i know many others that have issues with him
but shah is the worst
my leg issues came from him
-
dr shah should not have lengthened achilles
bagirov is ok as a dr, but aftercare sux... i know many others that have issues with him
but shah is the worst
my leg issues came from him
why doctor monegal??
-
dont understand question
-
I think Christopher wants to know why did you decide on Dr. Monegal to fix your issues. What convinced you about him? Did you consult with Catagni, Paley, Rozbruch, etc.?
-
my biggest issue is not fixed
my achilles
until that gets resolved, by therapy or shortening... im screwed
hard to go downstairs even
-
well... must say im not better
this isnt a matter of just walking either... it does not improve my situation at all
My left leg is as bad as ever... might be a length discrepancy now too... noticeable limp
I have no power... Hard to describe how much of a hindrance this... It takes me so much metabolic energy to walk... it's awful
I'm disabled now... My right leg, its ok, think it might be able to get near totally fixed, but not sure
but my left leg is disabled... can't generate any power.... it's awful
Ask them for specifics, and you get nothing in reply...
Getting my leg fixed in spain was a a waste .
My walking has not improved at all.... I don't think any bone operation is going to fix my issue... my tendons and ankle are shot..
physical therapy and more walking will fix my muscle issues,... such as quads, hamstrings... but it's not fixing my destroyed achilles, or my nerve damage, or the bone issues I still have with my left leg....
I know so many people... honestly, very few did much pt..... and they're better than me
Nothing is fixing my left leg issues... I'm sure...... Even Bagirov basically admitted as much...
I'm just looking forward to getting a prosthesis... yes, my leg is that bad.... I can probably generate maybe 35% of the power I used to
That is not an exaggeration either... it's that bad
walking is a chore now... used to be something I did for pleasure
just kinda depressed.... Not exactly happy about prosthesis, but I know it will generate much more torque than my current lower leg
Do not get this surgery
-
well... must say im not better
this isnt a matter of just walking either... it does not improve my situation at all
My left leg is as bad as ever... might be a length discrepancy now too... noticeable limp
I have no power... Hard to describe how much of a hindrance this... It takes me so much metabolic energy to walk... it's awful
I'm disabled now... My right leg, its ok, think it might be able to get near totally fixed, but not sure
but my left leg is disabled... can't generate any power.... it's awful
Ask them for specifics, and you get nothing in reply...
Getting my leg fixed in spain was a a waste .
My walking has not improved at all.... I don't think any bone operation is going to fix my issue... my tendons and ankle are shot..
physical therapy and more walking will fix my muscle issues,... such as quads, hamstrings... but it's not fixing my destroyed achilles, or my nerve damage, or the bone issues I still have with my left leg....
I know so many people... honestly, very few did much pt..... and they're better than me
Nothing is fixing my left leg issues... I'm sure...... Even Bagirov basically admitted as much...
I'm just looking forward to getting a prosthesis... yes, my leg is that bad.... I can probably generate maybe 35% of the power I used to
That is not an exaggeration either... it's that bad
walking is a chore now... used to be something I did for pleasure
just kinda depressed.... Not exactly happy about prosthesis, but I know it will generate much more torque than my current lower leg
Do not get this surgery
Contact Catagni ASAP!! He knows about lower legs more than you can imagine. E-mail now or call his office tommorow and explain to him your situation.
Keep strong crimson
-
I've contacted him numerous times
he just told me that he's done achilles lengthening many times, and no issues
He told me last time I'd have to go see him for him to give a better diagnosis
Just can't afford another expensive surgery right now... Maybe in a few months, but not now
I feel like I'm fked... achilles and ankle are gone... along with nerve damage, etc
nerve damage is very difficult to treat after a year
-
Dr Shah is the worst... Why I listened to him... I should have my iq checked
I am now very knowledgeable about achilles lengthening, but I wasn't before... I was just so miserable from my awful equinus... would have listened to anyone that said they'd fix it with no issues
When Shah lengthened my achilles... he used a sliding technique
It basically means he cut the tendon, and slid a part of it down... Think about that... the tendon is now much thinner, and much longer... it is not possible that the tendon isn't much weaker now...it's thinner and longer
He told me no loss of power... right after surgery said at least 1 grade...
I asked Paley about this, if I could recover to 90%
and he said no
He's right about this, from everything I've experienced.... I had this on both legs too
I wish I could upload photos, so I could show the board my achilles scar
-
I've contacted him numerous times
he just told me that he's done achilles lengthening many times, and no issues
He told me last time I'd have to go see him for him to give a better diagnosis
Just can't afford another expensive surgery right now... Maybe in a few months, but not now
I feel like I'm fked... achilles and ankle are gone... along with nerve damage, etc
nerve damage is very difficult to treat after a year
Maybe you can get insurence to help you with your problem since you are not doing a cosmetic procedure but a limb saving one?
-
not sure
I wish I could upload a photo to show everyone my left achilles scar
then you guys would see the reality of my situation
Even monegal said oh my god when he saw it... he tried to be nice about it, but he was shocked by how big it is
-
Well why can't you upload a picture?
Also, I'm really sorry for your problems mate. But at least try to have a consultation with an expert like Paley. I know you've talked but still...worth giving it a shot. I'm sorry you had to give a harsh reality of LL
-
can't just upload photos here
needs to be hosted by another site
-
I mean it's not that hard...just go to imgur and make a quick upload..
-
not signing up for yet another site
if someone else wants to host it,that's fine
-
not sure
I wish I could upload a photo to show everyone my left achilles scar
then you guys would see the reality of my situation
Even monegal said oh my god when he saw it... he tried to be nice about it, but he was shocked by how big it is
not signing up for yet another site
if someone else wants to host it,that's fine
So you're all dramatic about us wanting to see your scars and then couldn't be bothered to sign up to Imgur to show us... You're just being a drama queen attention seeker.
-
http://tinypic.com/
Boom, sorted.
-
...You're just being a drama queen attention seeker.
Lol. You should read his diary.
-
They guy basically became a cripple and lost his fiancee... Give him a break
-
dr shah who is supposedly one o the top 3 drs in india for this, is simply a liar.
the guy just flat out lies... when i saw him, i asked him very directly.." will this weken my leg" his reply was no,.
After I had surgery done, he tells me my achilles will be weakened at least a grade... At that time, didn't think too much of t, as I didn't realize t how much weaker it could be
He took my frames off... put me in a cast... I asked him before the surgery..." can my left leg bend?" his reply was no chance
few months later, leg has 2 deformities... I email him, and his reply is " we expected this, come in, we will correct it"
If this is true, can't you sue him for malpractice?
-
I'm relatively new here and just read all crimsontide diaries. What a journey of bad events, I'm speechless...
-
deads contributes nothing here
no offense
no, can't sue an Indian Dr for malpractice... or it would be veryyyyyyyy difficult.
TY Nightwish, i'll post later
not a cripple, just one bad leg
but you guys still dont get it... my situation is not abnormal
I know more than 1 person that is worse than me...... I can walk,etc
that's the point I'm trying to make.... My case is not abnormal.... in some ways it is, but not in totality
It takes years to recover for many patients... and if i told you youd only get to 70 or 80%, would you take it?
you just don't realize the difference it makes... I complain more than anyone, so I might seem worse off than I really am, or it sounds like I'm a solitary case
I can tell you 100% it is not true... look around, a lot of people stop posting.. maybe some stop because theyre ok, but the majority stop osting because they are having a hard time
look at sweden... maybe the only other one that tells it how it really is for most patients...
I was talking to someone for a while, and they stopped communication... this was after they started experiencing complications
I speak to maybe 3 people regularly, ... one can't walk after more than a year... and I don't mean like me... wwalking but not as well... I mean they can't walk at all... they will likely get better, but can't be sure how much they will recover, and it should give an idea how long this takes
as for the 2 others... one stopped communications, which isn't a good sign, and the other says theyre sort of okay
I was contacted recently by another patient, and they cant walk after 7 or 8 months, and can't even raise their legs in bed
i had the same guy tell me his friend is doing great.... when I asked how him for details, he tels me his friend can't squat.... now, I don't know about you, but that's not recovered or normal to me...
I'll eventually be ok, simply because I'm determined to do everything possible to fix this... but most people just quit
look at rgkey's squatting video .... people comment how great it is.... the guy does not do 1 actual squat in the video... does not even come close
if that looks okay to you, then maybe I'm okay.... but to me, it's not acceptable..
it's as sweden says... if you're okay with barely walking, and living a non active lifestyle, then who cares
I complain because my leg is bad... and more importantly, I can't accept the deficiencies others seem to accept...
look around at the diaries....
lastly... never go to India ... f you're set on this surgery, stay in the states, or europe
do not get this surgery
-
So crimsontide...are you going to upload the pic to this free photo hosting website --http://tinypic.com/
Or can you just email it to me so I can post it...
-
alu, message me... or ill email you... message me your mail
-
Crimson's legs.
http://imgur.com/9rPCWsU
http://imgur.com/eKo8Tsw
-
Bump^
-
That scar is way too long IMO. I wonder why dr shaw felt it was necessary to do so much
-
thats the bad leg
right one... looks like a different dr did it...
every dr says the same thing.... why is the scar so long?
-
The achiles lengthening scar is supposed to be small and near the feet. What the hell did he do to you....
-
the left one is a disaster
my camera isn't great, or you'd see it's even worse
this is why I'm talking about prosthesis'
my achilles is likely irreparably damaged... He caused nerve damage too
just looking to make sure right one is great
-
Crimson's legs.
http://imgur.com/9rPCWsU
http://imgur.com/eKo8Tsw
Btw, thanks Alu for posting the pics
the left one is a disaster
my camera isn't great, or you'd see it's even worse
this is why I'm talking about prosthesis'
my achilles is likely irreparably damaged... He caused nerve damage too
just looking to make sure right one is great
And thank you crimson for exposing this doctor and the dangers of going to third world countries.
You mention other patients with serious complications. Without reveling their identity, could you at least mention which doctors they had surgery with?
-
don't go to india.... that's my main advice
Take a look at that scar, and tell me I'm exaggerating
imagine how my achilles looks under that scar... combine that with nerve damage,etc
-
That scar - to my medically untrained eye - is bloody ridiculous. :-\
-
night... to drs too...
it's awful... made my whole leg look odd
-
take a look at my scar
that's all the evience you need to avoid india like you'd avoid ebola... stay away
-
i'll update my situation
Monegal confirmed I have early arthritis of left ankle... and these are from x rays taken lasy year
the likely cause is the bad valgus I had in left leg
It's just another reason why I'm focused on my right leg, and given up on the left. My lower left leg has many issues...
I might have a length discrepancy... left being shorter... pain, nerve damage.... tendons destroyed,etc
I just wanna get my right leg to 95%, and i'll be ok
I'll have to get a left below the knee prosthesis if I ever want to enjoy walking again
As long as my right leg is 95%, I'll be fine... technology is so advanced now
do not get this surgery
do not go to india
-
I suppose I'm walking a bit better now... but haven't been walking so much... the short distancs seem to be better
I can't jump at all though... which is a concern... I can squat... and I mean a full squat, amost to the ground, so that's good
I can also go upstairs, and I can touch my toes standing with stiff legs
I have hope for right leg....
I should post a video soon.... People would likely be surprised, as people might think I'm crippled
I'm not, but I'm not as I was before..... Need to get much closer
-
I suppose I'm walking a bit better now... but haven't been walking so much... the short distancs seem to be better
I can't jump at all though... which is a concern... I can squat... and I mean a full squat, amost to the ground, so that's good
I can also go upstairs, and I can touch my toes standing with stiff legs
I have hope for right leg....
I should post a video soon.... People would likely be surprised, as people might think I'm crippled
I'm not, but I'm not as I was before..... Need to get much closer
awsome man :D
With time it will improve. It's a slow process (very slow in your case).
Keep strong!
-
You seem like you're doing better. Just be patient. You lengthened a lot in your tibias and had some complications, recovery takes a lot more time than people realize. But we will get there.
Something I've noticed...when we choose to do this surgery and start our diaries, we're all bright eyed and bushy tailed...then, fast forward to the more recent posts, and we're all questioning if we should have done this/lengthened as much as we did, annoyed with our slow recoveries...
The only amazing recoveries I can think of are OBG (but he lengthened a conservative amount, I think like 5.5cm in femurs and ShyShy (who I think just got really lucky - no matter how hard you work, there is a great element of luck to this procedure, no matter which doctor you choose).
I consider my recovery pretty good, but this left screw issue is really holding me back. Imagine feeling pain almost every time you flex your left glute fully (depending on the angle). If it weren't for this, I'd imagine I'd be closing in on 85% maybe even 90% recovered. But even with the left screw issue, I've been doing weight training on my legs (and they're looking better and better and more filled out, and my ass is 90% back and looking big again), I've been skiing...I'm doing well, all things considered. I don't regret going with Dr. G at all.
-
ty guys..
I'm fairly confident about right leg
the left leg, not so much... because I've had many more problems... right leg really had 1 issue... ballerina
left leg has had many... and there's nerve damage... I'll post a video soon of this biom prosthesis
-
You seem like you're doing better. Just be patient. You lengthened a lot in your tibias and had some complications, recovery takes a lot more time than people realize. But we will get there...
Nah. I agree with him that amputation + prosthetics would be a better idea. After I've seen some of the modern prosthetics at a local clinic the other day, I strongly support his decision.
crimson,
When are you getting it? Make sure you get one of those with neurotransmitters. And post pics too.
-
tiny,
finally, someone that knows how great these things are
below the knee unilateral amputation is pretty much the easiest to recover from
not famililar with the neurotransmitter devices
I'm familiar with biom.... It has a microcomputer, and electronic propulsion that mimics the gastroc and achilles
Ive seen people jog and jump with this thing....
tiny, where did you go to see them?
-
These.
https://www.youtube.com/watch?v=JRbK6OGIdHk
https://www.youtube.com/watch?v=VHJsrAZf1mI
Do you guys get disability assistance from the government in the U.S.? If yes, that's a win-win. You can live a normal life plus free money and a badass looking leg.
Edit: Saw them at a clinic here in Canada.
-
I wouldn't call an amputation a win.
-
I wouldn't call an amputation a win.
Not when you have an uber bad leg that hinders you from living your life.
-
tiny gets it
this left leg is stopping me from living my live how I want.. and I'm only 36 years old
it might not be a win if you're living a great life, and sudenly you et in an accident and have an amputation
but my situation is different.... I avoid walking because it's not comfortable
just look at my pics
-
If you are able to walk with your natural leg then thats better than have a prosthesis.
Its to early to think about that. You had surgery some months ago and you are improving.
By other way. You didnt do a good rehabilitation. So there is no way to think about that.
-
kirkp,
we have never met... ever.... we have never et in our lives... the information you know about me is limited to my words
we dont even have mutual friends
your idea is that if i can hobble around at all on this leg, then that's better than an advanced prosthesis... which is just not the case
I wanna know the rehab that's going to fix my achilles, or my nerve damage, or my arthritis in my ankle??? is rehab gonna fix the length discrepancy??
you are still in early recovery, and people in recovery do not wanna hear stories like mine... which is understandable
I'm not going to get my lower leg amputated next week.... but I'm realistic
I'll do more rehab.... and even though theres guys here that did absolutely nothing, and don't have my issues... i'll give it more time
but i dont see how more recovery and rehab is fixing my destroyed achilles.... look at the scar... or the arthritis.... or the nerve damage
there's no rehab thats fixing any of those things.... and those arent my only left leg issues
My left leg is noticeably bigger than my right leg too... my theory is that shah hurt my circulation, or damaged the blood vessels there, and it's never recovered... because it looks bloated to this day...
my right leg is much better
THERES NO REHAB THAT'S FIXING ANY OF THE THINGS I HAVE
The right leg, more rehab might fix my leg to 90 or 95%... because its likely only weak muscles for the most part
my lower left leg is a mess... doing heel raises with my left leg is torture.... ive got a wrecked achilles and arthritis in my ankle.... not a good combination...
you can ask monegal if im exaggerating... he's the one that noticed the arthritis in the left ankle on the x ray... caused by my former deformity
-
I am sorry about your condition crimsontide and I hope you do better whatever your decision. In Mumbai Dr. Shah has some TV advertisement and he says he treated an actress in the country for height increase, but I did not like that the hospital is in a apartment building. I insist I will only do this in the US. Do you think Shah did this to you on purpose? Or was it neglect? Or him not knowing what he is doing? He is trained by Paley and Catagni so I was thinking that he should technically have the skill even though the clinic is very poor.
-
Hi deepak...
I'll be ok... the thought of amputation does not get me even a lil depressed... all I think of is it letting me walk again with full mobility... just gotta be positive
his "hospital" could not be called a hospital by the standards of America
it's in an alleyway.... and it's what we would call a clinic... except he has an operating room in there..
I can't say shah did it on purpose, but ill give you a glimpse into his mindset
the day of my surgery... i was given anaesthetic... and brought to the or... this was september of 2014...
when i was about to be operaed on... the power went out.... it turns out mumbai had a citywide power outage that day
he was going to do the surgery anyway... with this makeshift light.... until he finally decided it was just too dark to do the surgery in those conditions
so you can see 2 sides to this story
1- he could have just said, fk it, and did it, which he did not do
2-the fact he even was thinking about performing a surgery in dim light, and poor working conditions
Shah is just your typical indian dr.... he will tell you there are no worries, everything will be perfect
do not trust him
He told me before he took my frames off , "no way your left leg will bend"
well... months later, I told him how badly my leg was... his reply "" we expected this, no worries... come here, i will fix it"
he flat out lied... he also wanted to charge me more for the corrective surgery than i paid for first one
no other dr would have taken my frames off.... i think
also.... people mention rehab
I HAD A FULL LEG CAST ON EACH LEG
i had them on for like 8 weeks because of shah... and you cant rehab wth a cast on... it set me back months and months
muscles atrophy in leg casts
-
musicmaker, how u doing baby.... see you soon
-
The nerve damage is confirmed? Which nerve was damaged?
-
hey tbike, shalom my friend
the nerve damage is confirmed by me
Ever since i had the achilles surgery, part of my outside left foot is numb... and it's been this way over a year now
also, when i grab my calf, a a tingle goes down my leg... sign of nerve damage
for sure i have sural nerve damage... might have more nerves hurt
people will tell you that the sural nerve is purely sensory, and therefore wont hurt function
its not totally true... theres studies on how sural nerve damage drastically lowers reaction time
-
musicmaker,
I will come... please be strong mi amor
your american prince will be back
-
musicmaker,
I will come... please be strong mi amor
your american prince will be back
Just cause you got a slight limp, it don't make you a pimp ;D
-
:)))
never thought of it that way
maybe i should embrace my limp, and act as if It's just my pimp walk
-
my achilles photos are still up for 3 more days
you can see the horror
Don't get this surgery.... and don't go to india
-
my left leg is no better now than it was a over a year ago
it's not even a little better in terms of walking ability
I am going to get my lower left leg removed... it's my only option
my life quality now is greatly diminished...
I can't live this way... I'm not depressed , but I'm pragmatic
I made a huge error getting this surgery... take heed
I'm confident that an advanced prosthesis will fix my left leg... i'm hopeful that ill be walk to walk like a normal person after this... hopefully right leg recovers a bit more
when i walk though, its definitely my left leg that is really holding me back
it hurts now too... i'm limping, and the nerve damage seems to be worse than originally thought
my lower left leg can barely walk... it's that bad... this is not muscle atrophy... there's an enormous difference between how my right and left legs feel... this is nerve and tissue damage... hard to describe, but it really is awful
Don't get this surgery
I should not have gotten left leg corrected, but I didn't know at the time that my leg issues were 99% due to nerve damage
My walking is no better.... its been over a year, and no progress at all... so it's not me rushing into something
I do squats, I stretch, I try to walk... nothing helps my left leg even a little
i have arthritis in my left ankle too, to go along with the nerve damage, and destroyed achilles
now i'm getting nerve pain...
i need to be able to walk normally again, or my life quality will be too reduced to live happily
I'm very pragmatic about my situation... It's ultimately my fault
I wanna try to get a prosthesis asap.... my left leg isnt getting any better, and i'm past the point of being patient.. it's not improving at all
it's not as if i'm slowly improving... if anything the nerve damage is worse... and the bone feels odd too... though might be the nerve damage
-
Did you consult any doctor about your situation?
Achilles' tendon - is there no possibility of graft or something to strengthen it?
Bone - is there no possibly of rebreaking the bone and shorten if required to the original bone level and allow it to heal. I guess rebreaking is normal procedure during malunion
Nerve Damage - I am not sure if it's only one nerve that is involved in your whole lower leg movement. It might probably have an impact on part movement like moving a toe or so as an example. This alone wouldn't hinder your entire movement IMO. So I do not think it is the reason for lower leg immobility.
Please don't take hasty decisions. Consult with as many docs possible, just to gather opinion. I guess now a days you can speak to doc even on phone and take their opinion for a small amount.
-
Achilles' tendon - is there no possibility of graft or something to strengthen it?
I've read sometimes that when people tear their acl they can get it replaced with a dead person's. would it be possible or helpful in this situation?
anyway, sorry to hear about your recovery crimsontide...
-
achilles grafting exists, but theres no guarantee... id normally be ok with it, but theres no guarantee, long recovery and combined with my zillion other let leg issues.... it makes me not consider this option
the nerve damage... that likely will never be repaired... nerves are the least understood out of all the other complications, and now my foot is starting to hurt when i walk
it feels as if theres enormous pressure buildup, but no release.... i cant even think of walking barefoot
i also have arthritis already in my left ankle... and stretching of muscles, rods in my leg, left leg is shorter
we're talking a lot of things that are wrong with my leg
if there was just 1 problem, and there was a possibility it could be fixed, no problem with me
it's the sheer quantity of issues i have with my left leg... i could try to fix every problem one by one, and it would literally be years before id exhaust all possibilities to find out it was all for naught
i could wait 2 more years even... but im not going through a 8 year cycle just to discover i cant be fixed
my rigyt leg... totally different issue, its much better
itfeels like a normal leg for the most part
my left leg... best case scenario is i get my leg rebroken to resolve length discrepancy.... ankle surgery for arthritis, and another achilles surgery....
if all those things go perfectly, were talking a 4 or 5 year recovery, and i'd still have nerve damage, and might not walk properly
that's the best case scenario... my best case scenario involves an ankle transplant... ankle arthritis isnt gonna get better, and its rare
can you guys see where im coming from??? i can just get lower left leg removed, and get a very modern prosthesis which has electronic propulsion thats pretty much guaranteed to work, and be walking fine with it in 6 months
theres no uncertainty with this option... i cant feel part of my foot and leg now anyway
-
Arent they extremely expensive?
-
prosthesis are paid for by insurance
especially at my young age
my uncle was 74 and insurance paid for his
-
From what I have been reading in over the past 2 years when my time comes I will be 100% conservative and play safe (europe).
When it comes to which segment to lengthen would you recommend tibia or femur? It allways seems to me that tibias, besides the recovery time being much higher, also cause more problems.
I am 1.65m and was planning to lengthen my femurs by 5cm and then use 2cm insoles to balance the tibia to femur ratio. Does someone know if it would smooth walking? +5cm femur and +2cm insoles... Would insoles improve the tibia/femur ratio and be like tibia lenghten or if it wouldn't help at all (biomechanic point of view not aesthetic)?
Many years after and depending on recovery I could consider doing tibias for 3-4cm 8)
-
can you guys see where im coming from??? i can just get lower left leg removed, and get a very modern prosthesis which has electronic propulsion thats pretty much guaranteed to work, and be walking fine with it in 6 months
Grass is always greener on the other side. From my experience this hold very true. So there is no guarantee on the other side unless you are successful here, so just hold on I am sure with right care and fixing your problems you will be ok in 2 years.
Just post your consultations with any docs who are advising on amputation and had ruled out all other possibilities. Until then your first priority should be to get as many opinions from doctors as possible than taking your own hasty decisions.
-
2 years... thats a 4 year recovery
how am i gonna get better? my left leg is just as bad as it was last year... not even a little better
the arthritis isnt going away no matter the length of time... achilles isnt getting stronger, and nerve damage almost never gets better after a year
this isbt going to change in 2 years... neither is the length discrepancy... ive seen people use below the knee prosthesis such as the biom... their walking is 100000x better than me
i need to be able to walk without psyching myself up like im about to bench press 600 lbs
-
Just do amputation asap. Get it over with.
-
yea man nerve messed up achilis tendon just grt your foot amputated and grt one of those modern prosthesis foot
-
walking downstairs is such an ordeal
my quality of life now has plummetted. my function is greatly reduced
not sure how good right leg can become ,which is depressing me
walking downstairs is so difficult. life is not worth living if it stays like this
no one should get this surgery. its ruined the last 2 years of my life
this site contributes to the problem. id be much better off if i never heard of dr shah
if i cant get back to normal relatively soon,that's it.. it's just not worth it living like this. others might be ok being taller, but not being able to move quickly, or not running, or walking downstairs with great difficulty, but not I
-
I'm sorry to hear that this site have forced you to make an awful decision. Anyways, I'm looking forward to your amputation. Just get it over with, so you can have a better life already.
-
cant blame the site totally
but i still see members here that have this fantasy of being taller, and never think of what actually will happen
im getting 2 final opinions, but this left leg is is a disaster... the technology is so good today that itlll be ok, but im hoping my right leg will improve a bit
i walk like a clumsy stiff robot when walking downstairs
-
if i cant get back to normal relatively soon,that's it.. it's just not worth it living like this. others might be ok being taller, but not being able to move quickly, or not running, or walking downstairs with great difficulty, but not I
I am very sorry to hear your problems but why are you generalising this?Many people can move quickly,run better with time.
Yes this surgery is ver risky.Its a gamble.With 1 litle mistake in the surgery you can just screw your life.And a surgery for only cosmetic reasons.But still,many people doing it and will do.
Im just trying say-hopefully-it shouldnt be so bad and risky for a small amount of lengthening.
My mental pain is really bad right now,i doubt that physcial pain will be worse than mental after lengthening done.
-
you're wrong
look at the diaries and face reality
this surgery is not safe
-
you're wrong
look at the diaries and face reality
this surgery is not safe
Trust me i am a very realistic person about this surgery unlike many others.I dont believe %100 recovery is possible. its not absolute that i will get this.But maybe ill do someday.
I saw many diaries,most of them were over 5-6 cm.I wont pass 4 cm if i do this.
-
dont do it. go on with your life
-
dont do it. go on with your life
just because you've had the worst experience with the worst doctors doesn't mean you can constantly block other people's ambitions. I think everyone's aware of the risks, this is an extreme surgery but maybe someone's ultimate happiness depends on it.
-
morethan
worst drs???
doingitforme me cant run or squat yet and has said if he could go back, he would recommend against this surgery. he went to paley
the majority of people regret it
someone who has not had this surgery has no idea where their true happiness comes from
I have to spell out the details for you.
look at yellowspike.. hes maybe 80%... He went to guichet
I could go on and on.
-
Are you considering that DIFM did 8 cm and yellow did 7 cm?
You are misleading right now.DIFM also said that he could have had muc better time with lower amount.
And for yellow i believe he is in a good position atm for his amount.7 cm is pretty rough for body.
After 4-5 cm it starts to create more problems.
If you do 7-8 cm of course you wont be ok even with best doctors and best pt in the world.What do you expect?
-
If you regret this surgery is because you got bad results or you didnt need it.
I was sure that i need this surgery. Did it with dr Monegal. I cant run by the moment at 6 months post op but im doing relative normal life. And dont regret to have it done a single moment. Life was miserable with my old height.
-
hello
-
Is it me you're looking for? I can see it in your eyes, see it in your smiillle, you're all I ever wanted, and my arms are open wiiiiide.
-
how am i misleading??
doingitforme has said he would not do it if he knew now how it would be
that is not misleading
yellow has said himself he has issues. his own words
you are also saying that if you 7 cm you are screwed... good
but if you do 5 cm, you still might be screwed... that's the point
kirkp1, post videos of yourself walkind downstairs, squatting, etc
i dont care about words. the proof of the pudding is in the tasting
nightwish.... paco and musicmaker wrote long messages that for some reason they thought was private..... , so they realized they had posted in public, and deleted the messages
-
hey crimsontide, can you post a video of you walking? we are all curious to see.
-
i cant even edit my posts now, ugh... my computer auto corrects me so much. it's annoying as hell... changes were to was,etc
not sure about a video...ill think about it
-
I am very sorry to hear your problems but why are you generalising this?Many people can move quickly,run better with time.
Yes this surgery is ver risky.Its a gamble.With 1 litle mistake in the surgery you can just screw your life.And a surgery for only cosmetic reasons.But still,many people doing it and will do.
Im just trying say-hopefully-it shouldnt be so bad and risky for a small amount of lengthening.
My mental pain is really bad right now,i doubt that physcial pain will be worse than mental after lengthening done.
1 little mistake and your life is screwed. I agree. Look at Crinsomtide and MusicMaker for example, and many others I have read about (Doingitforme, Cooper, DOingitforMe...). Be careful when choosing your doctor, but choosing a good doctor doesn't guarantee anything. This surgery is a gamble. Peaceout has reason.
-
walking downstairs is such an ordeal
my quality of life now has plummetted. my function is greatly reduced
not sure how good right leg can become ,which is depressing me
walking downstairs is so difficult. life is not worth living if it stays like this
no one should get this surgery. its ruined the last 2 years of my life
this site contributes to the problem. id be much better off if i never heard of dr shah
if i cant get back to normal relatively soon,that's it.. it's just not worth it living like this. others might be ok being taller, but not being able to move quickly, or not running, or walking downstairs with great difficulty, but not I
Hi ppatient! I'm fine. I'm currently using crutches. I had problems in the past, but recovery is good so far. Dr Monegal's medical team was very supportive.
Poor man... Shah sucks. More than 2 years recovery is unacceptable. People don't want to accept this surgery is a gamble and you have many chances of ruining your life. Some patients delude themselves into thinking they are OK but it's evident for everybody that they aren't. Medical teams are sometimes supportive, sometimes they aren't... but your life is screwed anyway. A recovery of 2 years or more like in your cases is unacceptable.
-
hasnt been 2 years yet for me
truthfully.... 1 year is too long.... its just not worth it... ill never get this time back
for me to walk and run, im likely gonna need a prosthesis.. people should think about that
itll be kinda cool walking and running around with a below the leg prosthesis after dealing with this ty leg... but if i had known what wouldve happened, wouldnt have done it
i mean, i might as well have gotten a prosthesis in the first place and skipped this bull
I'm just looking forward to walking fast, and jogging...
-
nothing new to say. condition hasnt gotten better
ill be seeing paley soon just to get x rays, prognosis.
i did about 23 straight very low squats... but that fried my legs. left leg makes noises, hurts
then walking downstairs is a mess... the left leg hurts now.
i should have not gotten my leg "fixed" tbh... has not helped, and now i have some pain i didnt have before, maybe because of the nails
walking upstairs is not the same as it was before, but definitely better, and i can do it, unlike going downstairs which is a disaster
if i cant fix myself and walk normally, my l quality of life will be forever destroyed
-
nothing new to say. condition hasnt gotten better
ill be seeing paley soon just to get x rays, prognosis.
i did about 23 straight very low squats... but that fried my legs. left leg makes noises, hurts
then walking downstairs is a mess... the left leg hurts now.
i should have not gotten my leg "fixed" tbh... has not helped, and now i have some pain i didnt have before, maybe because of the nails
walking upstairs is not the same as it was before, but definitely better, and i can do it, unlike going downstairs which is a disaster
if i cant fix myself and walk normally, my l quality of life will be forever destroyed
DO NOT ASSUME your problem. Do tests. bones. Tendon. Muscles. Nerves may or may not heal but it might take years if you REALLY have nerve damage.
You are making noise when squatting which is an indication of your tendon misalignment, which tellls you that you need to work on your muscles as every physiotherapist will tell you the same.
After all Why didnt you go to any orthopedist in US instead of going to monegal even you have insurance?
-
nerve damage is not assumed... its there
and its been nore than a year, and has gotten worse if anything
drs will tell you that after a year, thats pretty much what youre stuck with when it comes to nerve damage. the % of people that get recover from nerve damage after a year is very low
ankle arthritis, etc
tendon damage isnt going to be fixed unless its through surgery... dr shah cut and lengthened the achilles
we'll see what happens... but im focused on totally fixing the right leg
left leg has too many issues... not wasting years trying to fix it when its likely it'll never get better
-
nerve damage is not assumed... its there
and its been nore than a year, and has gotten worse if anything
drs will tell you that after a year, thats pretty much what youre stuck with when it comes to nerve damage. the % of people that get recover from nerve damage after a year is very low
ankle arthritis, etc
tendon damage isnt going to be fixed unless its through surgery... dr shah cut and lengthened the achilles
we'll see what happens... but im focused on totally fixing the right leg
left leg has too many issues... not wasting years trying to fix it when its likely it'll never get better
Too many assertions made here and I don't know where you get those... Hope you be good. Can't help you here
-
nothing new to say. condition hasnt gotten better
...
i should have not gotten my leg "fixed" tbh... has not helped, and now i have some pain i didnt have before, maybe because of the nails
...
if i cant fix myself and walk normally, my l quality of life will be forever destroyed
Perhaps Monegal couldnt fix anything because of Dr Shah's mess but he should have recognized from the beginning that he couldn't help you. Perhaps he had other hidden interests (getting your money and / or using you as an ad for getting patients from this forum).
Going to Monegal was a waste of time and money for you, in my opinion.
By the way, I prefer other doctors, but I have nothing against Monegal. I dislike some of his patients, though. They act aggresively as a mob.
-
My psychologist couldn't cure my height neurosis. She should've recognized from the beginning that she couldn't help me. Maybe she did it to sleep with me/take advantage of me.
Jk, don't do LL unless you can afford Paley guys.
-
Hey LLuser or ppatient, Or whatever You want To be called.
I don t know The interests Of The forum. But as I told You before Your first ban, since people like You are preferred To post here, rather than real patients or doctors This place Is none Of My Interest.
I Feel free To post here because I speak with Crinsom almost everyday. You can ask him If I wanted To make money, because I paid For The nail To fix his S shaped leg. His Was a 4 hour surgery (Try To put a straight rod in a S) And I Did not make money out Of That. Ask American doctors about their Fees.
Promotion? Sounds funny. Having Your name in The Title Of a thread Of a person who had LL Is considering amputation Is probably not The best Promotion. But If You read carefully i only Did a osteotomy, nerves and tendons were already damaged. This Is an allignment method To prevent future arthritis.
I have Also offered him to come and perform EMG, US and all type Of tests he migth need To have a proper diagnosis about his muscle and nerve issues. I Will Take care Of That. So Please do not give opinion To attack me, about someone who You don t know, who Is having a very hard time and who deserves Respect.
-
Hi Crimson you mentioned a few times that tendon lengthening causes long term issues, can you please link any studies to this that you read.
All I've found are ones related to people with chronic tendon pain and kids with palsy so for them anything is better than their current situation.
-
Hey LLuser or ppatient, Or whatever You want To be called.
I don t know The interests Of The forum. But as I told You before Your first ban, since people like You are preferred To post here, rather than real patients or doctors This place Is none Of My Interest.
I Feel free To post here because I speak with Crinsom almost everyday. You can ask him If I wanted To make money, because I paid For The nail To fix his S shaped leg. His Was a 4 hour surgery (Try To put a straight rod in a S) And I Did not make money out Of That. Ask American doctors about their Fees.
Promotion? Sounds funny. Having Your name in The Title Of a thread Of a person who had LL Is considering amputation Is probably not The best Promotion. But If You read carefully i only Did a osteotomy, nerves and tendons were already damaged. This Is an allignment method To prevent future arthritis.
I have Also offered him to come and perform EMG, US and all type Of tests he migth need To have a proper diagnosis about his muscle and nerve issues. I Will Take care Of That. So Please do not give opinion To attack me, about someone who You don t know, who Is having a very hard time and who deserves Respect.
If anyone needs to be ban that is MONEGAL. I wonder how you sleep every night after destroying so many patients limbs, life and giving them false hope. I am sure many more will come to this forum and expose your illicit practice.
And I was your patient. What you have to say to me? Never see any doctor in my life fighting with patient actively in the forum. one word disgusting!
LLuser- I appreciate coming forth and laying the truth. I am willing to take serious action if necessary. I am thinking to take action against this doctor either here or in Spain. Do not shy away and stay strong!
-
Left leg still the same
It also makes very loud cracking noises, as if it's out of place
Getting an x ray soon, and seeing A dr here
I have a feeling the left leg still has bone issues. I doubt it's aligned correctly, and likely have a length discrepancy now
Also, no matter how much I try, I can't seem to even jog, or run upstairs. I'm not slow going upstairs, but nothing like before, where I could just fly upstairs. Monegal says it just takes time, but I don't know. I've done exercises, practiced going up and downstairs, and still nothing. I can't jog either, which after 2 years is more than a little annoying.
If I can't even jog, this surgery was a huge failure
I really think most of these Drs have absolutely no idea what they're talking about, or just don't care
-
Left leg still the same
It also makes very loud cracking noises, as if it's out of place
Getting an x ray soon, and seeing A dr here
I have a feeling the left leg still has bone issues. I doubt it's aligned correctly, and likely have a length discrepancy now
Also, no matter how much I try, I can't seem to even jog, or run upstairs. I'm not slow going upstairs, but nothing like before, where I could just fly upstairs. Monegal says it just takes time, but I don't know. I've done exercises, practiced going up and downstairs, and still nothing. I can't jog either, which after 2 years is more than a little annoying.
If I can't even jog, this surgery was a huge failure
I really think most of these Drs have absolutely no idea what they're talking about, or just don't care
You were talking about amputation before, are you still doing that? How much longer will you give yourself to improve?
-
well, the left leg is not well
i limp, and cant walk on it much, as he foot hurts
ankle arthritis doesnt really hurt yet, but limits movement.. theres definitely still a deformity in my left leg
when i walk downstairs especially, my left foot and leg go outward.
weak overall as well
I'm gonna see Paley then decide
i
-
.
-
bob, thank you for your thoughtful comment
-
i thought dr monegal is fixing it already?
-
Sounds a lot more and more like nerve injury from the original surgery and whatever went wrong with it are the primary underlying issue. How is your sensation to your skin on the leg? Is it the same as the other side? Have you gone for nerve conduction studies and/or EMG?
If Monegal operated to straighten your deformity, I would bet it is as straight as it is going to get. However, straightening the leg won't correct pre-existing nerve damage or muscle scarring. If your leg was severely atrophied and scarred, it could take years of physio to regain strength in it.
The next step for you is nerve conduction studies and EMG with a good neurologist/physiatrist to exactly determine how bad the nerve damage is or isn't.
In brief, do you have any idea how the nerve damage was done to the leg? I believe you had the frames off too soon and suffered a massive fracture/bend in the bone? Was that the moment you felt the nerves (sensation/strength) immediately failed?
-
:) crimsontide, I just removed my earlier comment to you because I found the
answer in some of your earlier posts.
-
The nerve damage is from the achilles surgery I thought
But it might be due to both the achilles surgery and deformity.
I thought it was sural damage, as part of my outer left foot is a bit numb, but might be more extensive
I had achilles surgery, then both legs had a cast on them for maybe 8 or 9 weeks. After I took the casts off, I noticed the left foot was a bit numb
and that my legs were atrophied . Can't do therapy in these casts , as the leg is locked in place. Took me a year to regain a lot of my strength back.
I don't think it's going to take years of therapy to get the strength back, and scarring can be fixed
I feel if the leg doesn't improve after a few months of therapy, that's it... Not going to improve ever
The right leg has no limp, and while not 100% yet, it is much better than the left leg. There's no limp, leg feels like a normal leg
I'm wondering if the casts have played a large role in my long recovery
I have a few major issues I'm concerned about
1- achilles/calf strength... Walking barefoot is not normal, and when I put on sneakers, walking feels 100x better
2- making sure my right leg is near 95 to 100% , as I'm not very confident in my left leg's ability to recover
3-Getting left leg fixed, which imo can only occur with a prosthesis. My left leg is just too weak
I assume physical therapy would still be beneficial, and get my right leg near 100%... Very doubtful about the left leg
I think there's a screw irritating my left leg now too
My left leg did not look normal on my last x ray,so will get another soon. I have a strong suspicion the left leg is shorter now
The length discrepancy is another reason I'm seriously consider below the knee amputation. The discrepancy would only be fixed by more invasive surgery, and that's only going to disturb the nerves even more
I might take a video later to show what my left leg does when I walk downstairs
-
You need an xray to check the post op alignment and a nerve conduction and emg test for the nerves. Start there.
-
@Crimsontide, you are most experienced in Limb lengthening. Would you say some people doing this surgery recovered 100%? Which are the worst results you've seen?
-
This will be my last, or next to last post
I wanna give advice to the members here
I can be rude sometimes, but it's only because I know how dangerous this surgery is
Ij get very aggravated when I see members being lied to about this surgery, or claimed great recoveries with zero evidence
I went through this surgery, as did others such as Sweden
My walking is still very bad, and already had a consultation with a prosthetist, and Dr. about below the knee amputation
My push off power has a severe deficit
I see some of these new patient threads, and they resemble infomercials
Do not get your medical advice from this site.
You may dislike me, but I'm telling you all the truth.
This surgery is not safe. You may get an ok outcome, you may get a very bad outcome. The odds are overwhelming that you will never be close to 100% again, and you will realize your life has not changed as much as you thought it would
Good luck to all,
Crimson
-
What did the doctor and prosthetist have to say?
-
This will be my last, or next to last post
I wanna give advice to the members here
I can be rude sometimes, but it's only because I know how dangerous this surgery is
Ij get very aggravated when I see members being lied to about this surgery, or claimed great recoveries with zero evidence
I went through this surgery, as did others such as Sweden
My walking is still very bad, and already had a consultation with a prosthetist, and Dr. about below the knee amputation
My push off power has a severe deficit
I see some of these new patient threads, and they resemble infomercials
Do not get your medical advice from this site.
You may dislike me, but I'm telling you all the truth.
This surgery is not safe. You may get an ok outcome, you may get a very bad outcome. The odds are overwhelming that you will never be close to 100% again, and you will realize your life has not changed as much as you thought it would
Good luck to all,
Crimson
I hope you can passing throught difficulties by the way have you consult with Paley or Rozbourch to find out the best solution with out amputation?
-
The Drs have said I have a severe strength deficit in my ankle.
Still need to do a few tests
I've been looking at achilles replacement. I've read different peer reviewed articles, and the outcome seems to be very very good; recovery % in the 90's
The issue is that you need to find a tissue specialist.. Most of these Dr's that do LL are bone specialists, and have never done a surgery such as the one I need
I'll tell you another thing. Certain Dr's become much less responsive after you announce you're leaving the forum
-
Are you pointing at Monegal? It doesn't surprise me. Some patients say some doctors only care about you if you serve their aims.
-
I have been reading his posts but his story is too long.
Can anybody summarize his experience for me?
-
he died.
Rip crimson
-
Can you fking read?
-
WTF? I'm serious. I want an answer.
-
he died.
Rip crimson
But what if crimson is not kill?
-
in all seriousness, the diary is not that long. Haven't updated in a while
-
Man your story is difficult to follow. You went to many doctors and had several complications.
-
many??? went to 2 or 3, max
i had 2 complications, that's it
If you decide to get this surgery, and not have any complications, I have bad news; most patients have some kind of complication that will need time and perhaps an additional surgery to fix
Also, I'm not saying Monegal is perfect, but my left leg was fixed by Monegal. I don't seem to have a limp now according to pretty much everyone I meet
Avoid India at all costs
-
Hey crimson,
Nice to see you on the forum again. I have followed your horrifying story from the start. I am glad you have finally seen positive results. Could you give us a bit more information on your recovery? Last I checked, you were considering amputation.
-
though I'll probably get achilles shortened to get most of the strength back
.
but the bones in my legs are pretty much 100% now. I'll get the rod removed soon
-
Here's the deal
If you saw me walk now, you wouldn't notice anything really out of the ordinary
but I'm a perfectionist, and I know how my body was prior to this surgery
A lot of members are ok with not being as functional as before, but I'm not. What I mean by functional is different from others. I can get around, can walk, and so on. I'm not as agile as before, and ankles are still tight
My results are very normal. You guys considering this surgery probably don't wanna hear that, but it's true. Many people have had far worse outcomes. I think Sweden might have had a worse outcome, since he's in pain quite a bit. I'm never in pain, but I wanna be able to walk as I did before, which means walking at a brisk pace for 5 or more km if I feel the urge. I really can't do that now
-
India in general? Would you say Parihar is bad? People say he's much better than Monegal and cheaper. Monegal has many bad cases and one of the worst cases in the forum (Musicmakr)
-
Crinsomtide would you recommend me an amount such as 4 cm on tibias?? Would you recommend LON? I know you recommend internal methods but money, money.
-
Monegal seemed to do a good job with my leg deformity.
I don't know anything about Parihar, though I do know he's more conservative than Shah, which is a good thing. Definitely avoid Shah
I'm very down on India for many reasons, but I'm sure there are good Drs in India. I just don't think it's worth it. My achilles should not have been lengthened, and going to need it shortened to get most of the tension back
My bones are fine though, and don't even have a visible limp now
4 cm should be ok. I actually think externals are very good. I'd go for externals over lon if doing tibia, or internal
I don't seem to have issues with knee pain after getting a rod, so if you guys are very nervous about knee pain due to rods, I can tell you that I'm not experiencing any pain
-
India in general? Would you say Parihar is bad? People say he's much better than Monegal and cheaper. Monegal has many bad cases and one of the worst cases in the forum (Musicmakr)
He went to doctor sha and swenden to Sarin. So far dr parihar has provén to be the Only good option in India. And dr parihar precise 2 Is at the same price Range as mongeal fitbone so why not go with precise.
-
Crinsomtide would you recommend me an amount such as 4 cm on tibias?? Would you recommend LON? I know you recommend internal methods but money, money.
I hear you on that and dr parihar is on the moré expensive side in India for externals. When you factor in living expensives you will need at least 25k. But Its better to pay moré and be moré safe.
-
Swedens pain and muscle tightness/lack of functionality isn't that doctors fault it's just an unfortunate risk you take when doing LL. Everyone's experience will differ but I don't think India is a bad place for surgery. Some are more fortunate then others but every dr has bad outcomes even Paley only thing is with Paley you're paying 5 times as much. My lengthening phase in india went successfully as I could have asked. 2 months 7.5cm no serious complications all for 15000usd couldn't have asked for better.
I do feel for those who've had bad experiences it's awful and I wish everyone a speedy recovery but the doctor isn't always to blame.
-
you cold ask this in his diary, no need to open a new thread.
-
Crimson's legs.
http://imgur.com/9rPCWsU
http://imgur.com/eKo8Tsw
I've been reading thru Crimson's diary. Just got to this post. Images won't load. Says they might have been taken down. Could you repost them if they were not taken down intentionally or at Crimson's request. Also, hope you are improving Crimson and by the time I get to end of diary things are more positive for you. I recommend you try swimming if you still feel overweight. Best wishes :)
-
Thanks for writing a diary and sharing your experiences crimson. Just finished the whole thing. Sounds like you no longer have a limp despite your frustration with not being able to walk a brisk 5k, that does seem more positive than 6-12 months ago :). How did your consultation with Paley go? I wish you well.
-
Ok guys, heres's an update
I can walk now, and not just walk, I walk faster than a good % of the people in the street. I have no limp. I mean zero
I do regret the achilles surgery, and in some ways it was the worst/ most idiotic decision I ever made but I'm doing so well that I'm not sitting at home regretting it. I shouldn't have gotten it but honestly, my life now is pretty much exactly how it would've been if I had not gotten the surgery. The exception is I still can't run and one of the scars isn't the greatest, but it's possible I might run in the future.
My body has always healed well. It's 100% genetic so I can't give advice to others on recovery. 99% of the population would be have a seriously reduced qol if they had the complications I had and made the mistakes I made
I lost all the weight I put on since the surgery. I'm now 75 kilos/ 168 lbs. I have long legs. I wear a size 32 length which is very very long. My uncle who is 6 feet tall has a size 29 pants length
I might post a video as You will able to judge my walking. You guys know how negative my posts can be so if I say I'm doing well I think it means something.
I can recommend Bagirov for this surgery. I can also say Monegal did a proper correction. Don't go to India!. I'll recommend Monegal/Bagirov all day over any options in India
I still have a rod and screws in my left leg. I am almost positive I will even be a bit better after everything is taken out
Monegal is keeping his promise and removing the device; either next week or early Sept
I never think about my height anymore so the surgery accomplished my goal
Stay healthy
-
That is awesome to hear Crimson. Glad you are getting better.
Thanks for taking the time to write the update.
-
thank you
-
I have a doubt, some Pili patients wrote that after Atl they can run or even jump, but you are totally against ATL, do you think you had bad Luck on It?
-
not bad luck.... you lose power, 100% guarantee due to simple physics
but i'm okay and don't want to focus on ATL. I can live my life 100% normally
-
Ok, so I Will try to avoid that crap, although with tibia lengthening is very difficult to do It, good job!
-
congratulations crimson
-
I am really happy about you Crimsontide.
Personally I really couldn't feel happy with my condition due to my loose tendons and I could run, not fast but still run.
But I am glad that you feel ok with your condition and your body, after all this is what matters with LL. To feel ok.
-
Good evening everyone 🙋,I'm a new member on thi Community,i've registered like 5 minutes ago😀.Before that I have spent a lot of time reading multiple diaries and patient's experience.It's such a great Community despite the Apotheosis's incredible betrayal 😱.Yeah, I have spent a lot of time reading also the story regarding the "old forum",it was very shady but also exciting.It was like reading a thriller book including a terrible villain.Like an adventure✊.You guys have been so brave managing to create a true forum without fake advertising💪💪
Despite this introduction and apologizing for my bad english writing skills(Yeah,I'm living in Italy☺) I'd like to know how crimsontide is doing.This diary seems to not be updated since 2016(correct me if I wrong).I would know if crimsontide managed to have a prothesis because of his problems with the left leg and how are his condition now.
Best Regars for all of You
-
Still waiting for Monegal to take the rod off
My walking Is fine but a bit exasperating trying to get this rod out.
I'm about to say forget it and go to another Dr to do it. That's all there really is to say now.
-
Still waiting for Monegal to take the rod off
My walking Is fine but a bit exasperating trying to get this rod out.
I'm about to say forget it and go to another Dr to do it. That's all there really is to say now.
He wants new patients to get money from them. You're not interesting anymore. Same with other patients.
-
I can walk fine right now
At this point I'd have to say that I would not recommend Monegal if you want lengthening. My situation was a bit different. I just needed a unilateral correction so I was not totally immobile and it was not really necessary to follow up. I want the rod removed for various reasons but I could be ok with it in
If you need a correction I'd give Monegal a conditional recommendation. If follow ups are a necessity for proper recovery I'm going to say go elsewhere. If it's a one time deal then you'll probably be fine
Lengthening, I'd have to say no. Ultimately you have to decide for yourself
-
Hey crimson, thanks for the detailed diary. Just want to clarify something, after you did the surge with dr Monegal, were you able to walk unaided after 4 weeks? And were you walking unaided prior to the surgery with him?
Thanks man, I'm kind of in a similar situation as you, multiple surgeries and still misalignments and I just can't lose any more time
-
Hey crimson, thanks for the detailed diary. Just want to clarify something, after you did the surge with dr Monegal, were you able to walk unaided after 4 weeks? And were you walking unaided prior to the surgery with him?
Thanks man, I'm kind of in a similar situation as you, multiple surgeries and still misalignments and I just can't lose any more time
definitely much longer than 4 weeks. . Gonna take a year or 2 to fully recover. Don't believe 4 weeks or 4 months. Fractured legs don't completely heal in this time period
-
So does the nail make no difference when it comes to support?
Can you tell me when you started walking without crutches, and were you walking unaided when you saw Monegal? I'm not asking for total recovery. In your diary you mentioned you went to Morocco was that in a wheelchair?
-
I can walk fine right now
At this point I'd have to say that I would not recommend Monegal if you want lengthening. My situation was a bit different. I just needed a unilateral correction so I was not totally immobile and it was not really necessary to follow up. I want the rod removed for various reasons but I could be ok with it in
If you need a correction I'd give Monegal a conditional recommendation. If follow ups are a necessity for proper recovery I'm going to say go elsewhere. If it's a one time deal then you'll probably be fine
Lengthening, I'd have to say no. Ultimately you have to decide for yourself
Monegal for lengthening IS a bad option. He never admits his mistakes. When correction he is better but also bad. Follow ups are always a mess with him. Once he gets your money you have to wait for years to get his answer. He fakes empathy but he hates patients. Helloworld and MM defended him in the forum but he sold their asses to German and badmouthd them. He's not a good person.
-
hi crimsontide.
did you have the hardware removed? how well have you recovered now?
-
Well, everything turned out fine. Achilles lengthening was definitely a mistake, but all is now fine.
I am in great physical condition and walk 11-13 km/ 5 miles a day. I have zero limp and walk very fast. It's impossible to notice that I ever lengthened. I'm not sure if I can run, as I've yet to really try, but I probably could.
Bagirov is a very good doctor. If you're mature, I'd recommend Him. Avoid India.
With regard to Monegal; My correction turned out fine. I still have the device in my leg, though I might eventually have it removed. Monegal said he'd do so at no cost. I just read that thread about Monegal and am not going to dispute their stories, but my experience was positive.
I never think about height anymore and since my insecurity was the reason for the surgery, it was most definitely a success. I'm around 5'9, so I'm not tall, but that's okay. I have zero interest in gaining more height.
Good luck to all.
-
Hi Crimson, I am replying here instead of PM as I'm only limited to 2 PM's in an hour.
I'm not sure how different your situation is, but I have seen Dr. Bagirov twice in the entire 2 months, and he's said a total of maybe 20 words to me. At the surgery, and 1 month afterwards for my xray. He doesn't give ANY advice at all when I ask him, or even try to address problems such as the ones I sent in PM. The ONLY answers I got were "it's going great!", this statement didn't include a recommended lengthening speed or anything. His underlings are who I have to speak to on Whatsapp, they also don't really address any problems. My schedule, which wasn't revised after the first x-ray is still 2 turns a day.
Anyway I don't understand why you think I can't read, I'm reading your advice just fine, but I wanted to know if we're near the same kind of progress or if you were dealing with the same kind of issues 2 months in. Unfortunately I cannot "just listen to my doctor" because he barely fking exists in the first place.