Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: FalcosJeanny on February 12, 2014, 11:17:53 AM
-
Hello everybody...
I am a patient of Dr. Salameh. i am from germany... please feel free to ask me your questions... hopefully you can understand my bad english *g*
I did have my operation dated 23.11.2012... but i am still on crutches. and my fixateur is on my legs... i cannot walk or stand without crutches.
my bone growth is veeeery very bad and i will have to take the fixateur on my legs for about another year :O(((
i am so sad..... i have no power anymore....
nearly EVERYTHING went wrong with me and my surgery... i did have many infections and weak muscles etc.
greetings
jeanny
-
Jeanny,
I'm so sorry to hear about your problems. Could you please describe your journey to us and the complications you experienced in detail? Please tell us about yourself as well, age, before height, after height, etc.
-
Hi Jeanny sorry to hear about your complications. Dr Salameh is someone I am considering. How would you rate him as a doctor? Do you know some of his other patients and have they had complications too?
Thank you and I hope you get better soon. :)
-
I'm sorry jeanny hope you get well
Hello everybody...
I am a patient of Dr. Salameh. i am from germany... please feel free to ask me your questions... hopefully you can understand my bad english *g*
I did have my operation dated 23.11.2012... but i am still on crutches. and my fixateur is on my legs... i cannot walk or stand without crutches.
my bone growth is veeeery very bad and i will have to take the fixateur on my legs for about another year :O(((
i am so sad..... i have no power anymore....
nearly EVERYTHING went wrong with me and my surgery... i did have many infections and weak muscles etc.
greetings
jeanny
-
Hello again :O)
i dont want to spread bad mood in this forum.....
but i have to be honest.... and after all i cannot tell you that the ll journey went good for me...
i still cannot walk.. not even stand without crutches... and i have terrible ballerina foot.... 6cm.. even if i do exercises very hard every day and going to the gym.
my age is 31... i was 1,56 m and did 10 cm lengthening. but i did the lengthing in ONE year.... i started lengthing at 01.12.2012 and stopped in the end of september 2013. my bone growth is very bad... i have to take needles (with bone growth hormones = Forsteo) every day in the stomach. it seems to work...
but it take very long................. it seems to take one more year to get rid off the fixateur....
i only know goodfootballer who did surgery with dr. salameh.... but he described his ll journey like a walk in the park...
i dont know if he told the truth... but the fact is: goodfootballer can walk .... and i cant!
-
I'm sorry to hear that but that's the reality of doing 10cm.
It sounds normal to me.
That's the amount of time it takes.
Keep fighting.
-
ok... thats sounds clear to me....
do you know how long it will take to be recovered (means for me at least walking without crutches!) from now on?
-
I cant imagine how it would have been if you did LON for your callus.
Im not a specialist like Sweden yo, but i would say about 6 months.
Do you try to walk everyday ?
Maybe you should post some pics (or send them in private) of your ballerina feet /Xrays to veterans so they can answer you.
With time it will become close to normal so keep exercising everyday.
-
What was your experience with Dr. Salameh like? Surely he can't be happy with your outcome. Has he been assisting you along the way?
And please post any pictures of your legs/x-rays if you could.
-
Jeanny, 10cm is alot to recover from. Perhaps write a diary with more details? All the best.
-
that is my main issue.... dr. salameh is not available for me... he is only 2-3 times a year in germany and when he look at my legs and my xrays he tells me everything is fine.... and i should do shortening.... this is his only advise....
that botheres me a lot...
i dont want to write a diary because i dont wont to blame the doctor.. surely he does the surgery and he did his best....
but my first physio session started in may 2013! from december 2012 till then i did not have any gymnastic sessions by a professional....
nobody told me what to do or what to eat..... every time i asked for help or advises the same answer was "everything is ok"... but it was not!
i did have painfully infections because he told me not to clean my pinsites to often.... and this is really the worst pain i ever had....
i did have it for month till the antibiotics works....
i can post my last xrays from january....
-
Here are my latest xrays.
iam awaiting your opinions :o)
-
i do walking every day with crutches for several hours...
and i am working since january 2013 again.. in the office.
hopefully i can get rid off the crutches as soon as possible!
thats no life.... such a long time with crutches....
the fixateur is weight bearing... so my idea is: can i excersise my muscles in the legs a lot every day so that they will be strong enough to take my whole weight?
and can i THEN walk even with broken bones?
goodfootballer did this.... but after a few monthes.... i stopped lengthening in september 2013... so perhaps can it work for me too?
dr. salameh did not give me an answer of this question.... he only told me that a few patients did walking without crutches.... a few not.....
so what is that answer good for?? is it possible for me or not??
-
Jeanny, while you lengthened a large amount, it seems like there is a lot of doctor negligence going on too... I suggest you write a diary because it would really give people a lot of insight into what kind of doctor Dr. Salameh is (we only have goodfootballer's diary and his story seemed too good to be true).
Did Dr. Salameh tell you how much weight-bearing you could allow on his device? I don't understand how he couldn't give you a clear answer as to whether or not you can exercise with the fixators on. Also, physio after a whole 6 months is ridiculous! What were you doing during the lengthening process? How did you prevent ballerina, etc.?
-
hi Jenni,breaking my posting cherry here,just trying to put your mind at ease
from what i have read over the months and seen in pictures your bone cloud looks ok
for someone who has lenghtened 10 cm it generally takes i month per cm according to docs and veterans
as for your ballerina only physio walking and time will sort that out
hope this helps
-
Nine months to lengthen (December to September) is long time even for 10cm. Was this your own decision or the doctor's?
Doctors have stated that it takes 1 to 1.5 months for every cm gained for consolidation. The earliest date is July if the bone recover very well. End of the year is also possible.
-
Hi jeanny, from looking at your Xrays your callus doesnt look good. Maybe its possible to walk without crutches depending on your weight, are you in contact with goodfootballer ?
I dont like Salameh's answer, you cant weight a lot so you have probably less chance to break something than GFB, it doesnt mean something cant go wrong.
I cant give you any advice because i think its your choice.
But everything will be fine with time.
-
thank you so much for your answers!
Yes.... i am a little desperate right now..... because at first i only knew goodfootballer (in real life too!) and all what he told me and what i did see was so perfect and easy....
and from the start i asked dr. salameh how many cm i can make and he said as much as i want! he told me from his patients and showed me videos who lengthened 12-16 cm! and this was my goal too... 13cm... but... dr. salameh did surgery on me... and then... there was not a really plan to go... or what i have to do... what exercises i have to do... even not how i do crutch walking in the right way.... everything i learned by myself and asking other people who once had crutches in their lives.
goodfootballer wrote emails to me about his ll and his process... but his ll life was much better than mine?! and i couldnt imagine to do all things wrong!
i needed even a second surgery on monday after the first surgery dated on friday for removing 4 screws in both legs because of nerve pain... the screws has been set imminent to nerves in the knees.... the second surgery was not good for me.. after that the legs has been swollen sooo much and i puke a lot....
so... after 11 days in the hospital i went home... and started lengthening for the next monthes... first i started with 4 times lengthening a day. every 6 hours even in the night. this i made until march 2012.. the xrays showed nearly NO callus.... NOTHING... it was all black... i can post the xrays later.
dr. salameh told me to do 1 lengthening event a day... instead of 4 times.... so i lengthened not 0,08mm but 0,02mm a day...
but this helped not to increase the bone growth.... so he shortened me about 1 cm in april and july .... for stimulating the bone growth he said.... but it works not for me....
i use physiostim and exogen 4000 machines.... but the didnt seem to work for me at all... i take calcium, vitamin d and magnesium.. and a protein shakes. the bone stays very weak.
the explanation of dr. salameh is that i have a fail in the genes from birth..... and there is nothing to do than wait or shorten again....
BUT the process of shortening is VERY painful and a full weak after he set me back from 1cm in one piece my legs are so swollen and the knees are hurting so much, that i cannot even walk with crutches... AND i did not help at all....
in all this time i am soooo gladful to have dr. schmidt in frankfurt (at his place the surgery was performed) ... he gave me a prescription for injections (every day) with forsteo (hormonal treatment).. and this seems to work now... the bone does increase in callus producing in the last 2 monthes rapidly.
i am little bit depressed.... and if i knew now what i didnt knew then... i would never do it again........................
I post first xrays now
-
Here are xrays from the middle process of lenghtening.... at this time both doctors were not happy with the bone... but did nothing against it!
-
Hello Jeanny!
I am happy that you finally decided to write on the forum. Maybe you will get good advice here, but at minimum you will find mental relief by telling your story.
We are in a similarly difficult situation and I assume that both of us really have bad genetics for LL :(
Since when do you get the forsteo injections? Do you have to pay for it or are the costs covered by insurance?
-
how long it will take to be recovered (means for me at least walking without crutches!) from now on?
maybe 1 year
-
i only know goodfootballer who did surgery with dr. salameh.... but he described his ll journey like a walk in the park...
i dont know if he told the truth... but the fact is: goodfootballer can walk .... and i cant!
Well, there are those type of diarys that simply omit negative things, complications etc. I sincerely hate such diarys, because they are misleading and dangerous for future LLers. No LL is a walk in a park, but some diarys make it seem like that.
Usually, you can't even blame the writers of those diarys, because the reason why they do it is entirely psychological. People don't like to talk about negative things. People don't like to admit that they have made a bad choice (e.g. of a LL doctor or of deciding to do the surgery). People don't like others to believe that they have made a bad choice. And so on.
-
The XRays with no callus must have been so scary for you but now you are back on track so its just a matter of time before you get back to walking normaly.
You made a good choice by talking to others so you can have some advices. And did you ask Dr Schmidt about walking without cruches now ? I think Dr Schmidt's reaction by injecting you hormones was the best thing to do.
-
Dr.schmidt started to give me the injections in the middle of december. The injections are covered by insurance...
Perhaps you can get it to Emanuel? It Speeds up the Bone growth rapidly.
Thank you for supporting me Emanuel... Now i have the Mood to go in public With my experience in the Forum...
-
A good diet helps bone recovery, espcially protein and calcium. Check out this guide, it has list of supplements and exercise routine. It's for internal LL, so avoid swimming with frames on. Go with walking on crutches and stationary biking. http://www.limblengtheningforum.com/index.php?topic=10.0
-
Thanks a lot for your help!
-
Hi hope you doing fine ,how much did you pay? thanks
-
I don't know if you can afford it, but if I were in your position I'd consider LATN so you can at least get out of those fixators. You must be miserable having had them on all this time. Knee pain is a risk but not guaranteed. Dong Mei (a famous Beijing patient who lengthened a whole lot) had really bad bone growth too and had to leave the internal nail in for years.
-
Hey MDOW, did you ever meet Dong Mei?
-
Yes I did. She and her boyfriend came to visit the hospital when I was getting my nails removed, and she still had hers in. :-\
-
I saw some pics of her and I thought she looked ok for doing as much as she did. Do you think her legs looked ok when you saw her in person? Did she really do 12cms?
-
Yep, that's how much she lengthened and she looked fine.
-
Hey Falcos!
Thanks a lot for starting a diary here.
I'm sorry things are bad with you.
I was myself considering surgery with Dr. Salameh because it is cheap and no internal nail is involved.
What you to describe seems to be very careless of him.
Do you recommend him to someone else?
Are there other patients of Salameh there with you in Frankfurt?
And what do you think of Dr. Shmidt? He seems like the right hand man of Salameh. But is he any good?
Thanks again. I'm really looking forward to hear from you.
-
hmmm. it seems that bad bone grwoth is a common result by lengthening more than 7 cm.... may it be?
just my 2 cents...
i paid 25.000 Euro.. including the physiotherapists...surgery und xrays and medicines. but the physiotherapists started in may (nearly 6 months after surgery) only....
so this was a bad part of my journey....
i do not recommend dr. salameh or say that he is the not the first choice. everybody has to decide it on their own.... i would never tell anyone to do such a big surgery with this or this doctor....
i can only say that i will never do this again.... with salamehfix. the fixateur is good.... but for such an amount of cm you have to take it such a long time... you cant wear normal clothes... you cant swim.... you have open wounds.... it is not so good....
and a big negative thing is the availability of the dr.... he isnt there when you need him... he is only available by email.... and not in time... he cant give you prescribtion for medicine you need.
on the other side.... the treatment is affordable.... and the hospital in germany is great. and dr. schmidt is a great surgeon and he is there for you. i can reach him whenever i need him... i have his private number and i get an appointment in his office immedieately. there is nothing negative to say about him.
i think i would have given up without his support and his well knowledge.
my proportions are looking great... after lengthening the look is more "normal" than before... because my tibias before were very very short and thick.
so please feel free to ask questions.
and hopefully someone can give to me some useful cheats for walking as soon as possible without crutches!!!
-
Here are my proportions....
-
Thanks for the pic Jeanny, it's really unfortunate to see what you're going through :\
I think if you had been under guidance and instead lengthened 6 cm, your outcome would have been much better. I'm wishing you all the best! Keep us updated on any progress/complications you experience.
-
The most concern is about my fibula bone!
will it ever be consolidated or not?? what do you think?
Dr. Schmidt and Dr. Salemeh are both saying that it is not necessary that the fibula will be union.... but i can´t imagin that this is a good thing if it will be forever non union!!
Why does the body has a fibula bone when it is not necessary??
-
Hello FalcosJeanny,
Thank you very much to share your experience with us. I am planing my surgery with doctor salameh this year with another boy from
NYC, I had two appoinments with doctor Schmidt and salameh and now i am concerned about your situation.
cheers and stay strong with your family and friends.
-
The most concern is about my fibula bone!
will it ever be consolidated or not?? what do you think?
Dr. Schmidt and Dr. Salemeh are both saying that it is not necessary that the fibula will be union.... but i can´t imagin that this is a good thing if it will be forever non union!!
Why does the body has a fibula bone when it is not necessary??
It's just a vestige of evolution. Why does the body have an appendix if it's not necessary?
-
Hello Jeanny..
Dr. Salameh seems to be like other Indian dr by repeating "everything thing is fine"
But you're so strong for being able to wear the fixator for total 14months, it is not an easy thing for sure, but saying that you may need another one year to be able to remove it, is something beyond my imagination..
did you try stem cell? they claim it helps for nonunion bone but I don't know if it's better/faster than Forteo injection ..
I'm considering taking Forteo injection, I wont bother myself by asking my Dr about it, cuz it seems safe, and my dr will say no anyway..
But I read the Forteo injection is given for women who have passed the menopause.. and since your still in your 30 I don't think you passed the menopause, so did you experienced any side effect regarding that? did your dr tell you it may cause some problem in future?
I think I may have some more questions, but right now I cant think about anything but Forteo injection.. it sounds like a magical solution for me.
-
It's just a vestige of evolution. Why does the body have an appendix if it's not necessary?
MDOW is correct. The legs and arms were once very anatomically similar when the ancestors of modern humans were more monkey-like. The fibula is essentially what is left of the ulna-equivalent in the legs. It was a useful bone when our feet were used as hands to climb trees, but now that we walk bipedally, with shoes on, and since we haven't been able to rotate our feet for hundreds of thousands of years, the fibula is simply no longer necessary. This is why it has become so thin in relation to the tibia after thousands of generations.
I hope this reassures you. I can only imagine how nerve racking the last year has been for you.
-
Oh thaaaaaank you so much for this Explantation of the Fibula Bone!!
Its a Big Release for me.... And now i am nearly rescued....
The Last year was really very Hard for me... And now every Little step and every Little Hope that i can Walk again and that everything is normal is a Wonder for me...
I dont know if stem cell is available and legal in Germany....
The only Solution which was offered to me was phystiostim and exogen (which are Not available in Germany too!) and the forteo (in Germany called forsteo!) injections.
My doctors both never mentioned that women uses the forsteo injections after Meno Pause!?
I Never Heard of that! Hopefully there are no complications now for me getting children in the future! This is again a doctor Thing which is called "everything is Fine! You dont have to worry about!"
My next xrays will be made Dated 11.03.! I will Post them :o)
-
Oh my god where is she ?
-
11.03 she will post again
-
Fibula is structurally not important but it serves as attachment to muscles/ligaments.
Can serve as source of bone graft too.
-
Hello everybody 8) 8)
-
Last thursday i went to Dr. Schmidts office because Dr. Salameh was in Germandy and he wanted to see me. We made new xrays...
What do you think about the bone?
-
Hi FJ,
Your new X-Ray looks promising, finally there is some clouds of callus between the gaps. I am very much sure, you are going to be well and heal.
In your case, do you smoke? Smoking can be a cause for delayed/non union.
Reading your diary brings into prominence a possible risk of LL, non union, which in my opinion hasn't been vigorously discussed on LL forums.
To the LL community:
What are the causes of non union?
Are there any well documented studies or cases?
Can you prevent it?
Is there any tests that exist which can detect it?
-
Hello..
Your callus now is similar to mine from 3 months ago..
so what dr. Ghassan said? how many months left for you to remove the rails?
-
Dr. Salameh didnt give me any promission or date for removing the frame... i asked him 5 times on thursday... but he only smiled at me and said he cannot tell me... because patients who did operation AFTER me are now walking without crutches and have a better callus than me....
I do not smoke!
but... i take ibuprofen 600 (1-2 pieces) a day since operation date (23.11.2012)...
now i heard that ibuprofen do prevent callus formation... is that right??????????
-
if you do feel a lot of pain, and you think you cant reduce the dosage then never mind about that, cause all what you hear is just studies... beside, you could find other studies which claim the opposite like this
http://www.sciencedaily.com/releases/2012/07/120703134100.htm
and take your doctor's advice too,..
-
you said that you started taking Forteo injection in mid of Dec, right?
that's mean just from 3 months!!!.. and by looking to your callus that's mean Forteo injection working so well..! I'm saying that because I'm comparing your x-ray with mine ..
-
Although, there has been no conclusive study which links delayed unions to non-steroidal anti-inflammatory drugs, it is always wise to err in the side of caution. You will be better of not taking too much pain killers.
Have a good read at this link on speeding bone healing if you haven't already done so: http://www.betterbones.com/bonefracture/speedhealing.pdf
-
If you still need painkillers, I would also recommend to not use non-steroidal anti-inflammatory drugs (like ibuprofen) any longer.
It doesn't have a strong analgetic effect, so maybe you could bear the pain without any painkillers at all.
-
hello Jeanny,
How do you do?
-
Hey jenni you have an messaje
-
Hello everybody...
Next tuesday is the next "xray time"!.... hopefully the bone grwoth is better now.... Dr. Salameh will also be there...
iam soooo sad.... i have no power anymore..... iam completly disappointed.... i hate crutch walking.....
i have no muscles in the legs ... i cannot even stand straight without my crutches...
iam a cripple............
iam just hoping that i can ever walk again in my life.....
-
Hi Jeanny!
Thank you for the update its good to hear from you.
I'm sure you will walk normal eventually and this whole LL experience will be successful in the end.
Just keep eating well and exercising or stretching. And try to stay positive.
Best of luck! We are all pulling for you to have a complete recovery.
-
Hey Jeanny,
Keep eating well and exercising your legs everyday to help your bone growth. Walking on crutches will help your bone consolidation. don't skip it.
Stay positive.
-
do you regret doing LL? :(
-
do you regret doing LL? :(
Yes..... i do................ :O(
-
sorry for you.
Perhaps you would made less lengthening it would be better. I think salameh isn't a conservative doctor and in this case it is his negligence. I am planning my surgery with him. I was in franfurt twice i had appointment with him and doctor Schmidt but now
i am thinking in LON-LATN method.
i hope with time you will be better.
-
stay positive.
-
Thank you for your Support...
I regret doing lenghtening ... But iam Not regretting i did the lenghtening surgery with dr. Salameh and dr. Schmidt.
I try to be positive and make my exercises every day and do strechtching...
Hopefully One Day i can Walk again....
-
Praying for you, FJ! You will walk normally again. Patience.. I'll ask my PT if he would have any suggestions regarding your situation.
-
aww... i hope u get better Jenny!
-
Best of luck to you Jenny, I'm sure you'll be OK! Like Hanna said, you should stop taking ibuprofen immediately... I don't know the exact reason why, but that was one of medicines that I was not allowed to take. It was probably due to it weakening or slowing down your bone growth. Here's a good starter article for you to look into it: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3259713/
-
FJ,
Just keep exercising and be positive. You will surely walk again.
-
Stay positive FJ, here are some articles about bone healing.
"The healing time for broken bones is influenced by a number of variables that nutrition can impact including blood supply. For example, the ends of long bones are vascular so they heal faster than the center. Certain types of food and exercise foster increased blood supply and hence time it takes to heal. Mobilization, i.e. weight bearing exercises and isometric exercises stimulates healing. The key to better usage of your calcium intake is not just increasing the calcium but also increasing your ability to absorb the calcium"
http://foodandlife.com/healingbonesresearch.htm
http://www.healthaliciousness.com/articles/foods-high-in-calcium.php#CQqvPZ6txDhPQ6JW.99
http://purelynutritious.com/2013/10/26/speed-healing-of-bone-fracture/
http://www.huffingtonpost.com/2012/04/25/calcium-food-sources_n_1451010.html
-
Here are my newest xrays--- from yesterday...
please feel free to tell me your opinions.....
and... im still wishing that i will ever walk again in my life...
still using crutches......
-
@FJ
I can still see the callus cloud. I think it is progressing very slowly due to the amount you lengthen.
The bigger the distance between the bone gap, the slower it takes to fuse together.
You will definitely heal up.
The last X-ray looks almost consolidated. Is that your left or right leg?
-
You need to walk a lot. Look at the Rgkey's diary. he walked a lot and he takes off one ilizarov.
The process is slow but with time you will be better. i think it would be good idea to write one diary, to stay in contact with people and to liberate you. please write one diary.
cheers, paco
-
You need to walk a lot. Look at the Rgkey's diary. he walked a lot and he takes off one ilizarov
Sure walking is good advice but unfortunately its not that simple. Bone regeneration is highly individual (genetical). Some people play computer games, drink beer, smoke and have super callus. Some are very active and have great callus like OBG or Rgkey.
Some like Jeanny or me try everything (daily walking, bone growth stimulation machine, supplements, etc) and the bone just doesnt want to come or comes extremely slowly.
Thats one reason why good LL doctors wont give you a exact timeframe when you can walk normally again or after how much time you can do sports. Bone regeneration is just one of the unpredictable variables of LL.
-
so are there no tests a doctor can do before hand to check what an individual's bone regenration rate would be?
-
@shawty, that's a good question. My surgery is coming soon and that's one of the things I am concerned about.
-
I had asked Franz on this very forum somewhere, he had told me that it isn't possible to know before hand.
-
@short_and_depressed Ok. Thanks.
Does that mean if you shorten the gap all the way down and close, they can fuse together? It will be interesting to know this.
Sorry FJ, we are cluttering your diary. It may help you too.
-
this may be a dumb question, but I wonder if you can be given a slight fracture and then they measure the time it takes to heal?
-
@shawty, I was thinking along the same lines. That should help to kick start the bone regeneration, just in case the old fracture has been infected.
@FJ, do you still feel any pain in your legs?
Thanks once again for your diary. We are all pulling together and supporting you.
-
Iam walking a lot.... but... WITH CRUTCHES..... because my legs are so weak and cannot support my complete weight....
I do not have pain since one week.... before that i was in pain for about 1 and half year... and took ibuprofen all the time daily...
now i do not take any painkillers or muscle relaxants since two weeks.
i dont know what i can do to make my bone growing stronger and faster...
perhaps i am eating not a lot..... because i do not have any appetite... and sometimes after eating i have to vomit... because my stomach is very weak too... after such a long periode of eating pain killers and other medicines....
-
Have you tried an ultrasonic bone healing device, like exogen for example?
Maybe you could ask your doctor about it.
-
I take exogen (and after that item was broken) i take another one.
Dr. Schmidt prescribed me a Vitamin D supplement. I take it every day...
-
I heard a patient's case with a local doctor. His bone consolidation was so slow that after waiting for a long time to heal, he decided to go to Dr.Paley and get his condition checked. Paley asked for a list of all the medications he'd been using. They found out that the patient was using a medicine for years (totally unrelated to LL) which hindered his bone growth, so the patient stopped taking it and had normal callus formation. FJ, is there any medicine you've been taking for a long time, which might be unrelated to LL?
-
I only take L-Thyroxin 125 for my thyroid gland one pill a day.. i have a hypothyroïdie... since birth.
and of course... birth control pill once a day...
perhaps i should take some protein shakes?
-
I forgot to tell you that Dr. Schmidt was testing my Vitamin D level... he took blood and measured it.
it was absolutely normal... and nothing was wrong....
but i do take vitamin D supplement...
-
I only take L-Thyroxin 125 for my thyroid gland one pill a day.. i have a hypothyroïdie... since birth.
and of course... birth control pill once a day...
perhaps i should take some protein shakes?
Does Dr.Salameh know you're taking these? They might have no effect on bone growth whatsoever, but it would be good to check and make sure.
-
Bone consolidation is an inflammatory process, and ibuprofen is an anti-inflammatory drug. If I had to guess, I'd say that was your problem. They had ibuprofen in Beijing, but they very rarely gave it out unless you were in extreme pain, and then only for a few days. It's only been two weeks since you stopped, so give it time and see if you start growing some bone.
-
your left tibia looks good to me comparing to the right
-
i think the same. You have very good alignment.
-
Sending good thoughts your way, Falcos. Hope that in the end everything turns out fine.
-
Bone consolidation is an inflammatory process, and ibuprofen is an anti-inflammatory drug. If I had to guess, I'd say that was your problem. They had ibuprofen in Beijing, but they very rarely gave it out unless you were in extreme pain, and then only for a few days. It's only been two weeks since you stopped, so give it time and see if you start growing some bone.
Thanks for sharing this great knowledge!
-
Hollo how are you ? hope you doing fine
-
Hope you are fine too, is your callus better now ?
-
Hey jenny have you got skype?
-
Hello there...
iam fine.... but still on crutches with a very bad duck ass...... very bad.....
i think i can never straighten my back again....
still ballerina.... and still knee bending...
my next xrays are at 27.05.!
plaese cross fingers for me :o)
-
Hello there...
iam fine.... but still on crutches with a very bad duck ass...... very bad.....
i think i can never straighten my back again....
still ballerina.... and still knee bending...
my next xrays are at 27.05.!
plaese cross fingers for me :o)
Fingers are crossed Jeanny.
Just keep stretching and your back will be fine. :)
-
Hope you see some nice improvment on your next Xrays. Best of luck.
-
Thank you for your support :o)
Do you know a good exercise to stretch the back or the front of the femurs?
-
I'm crossing my fingers for you. All the best.
-
Thank you for your support :o)
Do you know a good exercise to stretch the back or the front of the femurs?
I was thinking yoga would be great before and during LL. But I don't know what you can do with your frames on.
How much longer do you think until they are removed? Have you gotten an X-ray lately?
-
Hello everybody,
iam back :o) This time with good news!
My Bone is getting stronger now.... perhaps going to the gym everyday has bring the results.
I will post my latest xrays today.
i can walk a few steps without crutches now.... so my hope is getting back... that i can live my life again and will not be crippled forever :o)
pain is nearly gone too... i think i need at least 1/2 year to get the frames off..... perhaps 1 year from now.... but when i can walk without crutches that will be ok for me.
i post my xrays now... please comment!
FJ
-
Here are my xrays!
-
Hi Jeanny,
Very good news, i hope all it is ok.
cheers paco.
-
That's great news Jeanny!
The X-rays look good. Thanks for updating us!
-
Beautiful callus you've got there! :-*
-
Looks much better. So glad to hear your progress Jeanny :D
-
that is great news. i firmly believe even the worst butcher job of LLs can have a happy ending. It is just matter of time. such is the power of human body and regeneration.
-
Important also to avoid future problems
-
You shouldn't have duck ass that bad that you think you can never stand up straight again.
Try to stand up as much as you can every day to reduce ballerina. Of course you'll get terrible ballerina from lengthening 10cm, it's a given.
But it will heal depending on how focused you are on PT.
Your posture will improve with time.
You need to start walking much more.
Sorry to say it but it will take years before you will function close to before. You need to work up your knee strength for balance and your strides are now forever changed to much smaller steps. I can't imagine how long time it will take for you to be able to run again, maybe a couple of years or so.
It's not a secret what to eat to heal up better. You need to get interested in this field and learn what to eat and how often.
You'll be surprised of how tasty everything really is :)
Best of luck. You have a long journey ahead of you, make the best of it.
-
Hi Jeanny, how are you doing?
-
It's just a vestige of evolution. Why does the body have an appendix if it's not necessary
the appendix is necessary. America and other western medical industry complexes lie about it. you have to research Russian journals and have them translated into English to find the truth.
if you loose the appendix then the gall bladder goes next (from memory). the speed of this is determined by genetics.
it can be argued that the appendix is not as "necessary" as other major organs. but it certainly is not inert.
-
well I wish I had read this diary sooner.
I wish to know an update.
also I would have advised you to reduce the length from 10 cm to 8 cm. especially considering the 6 cm ballerina.
I know a lot of harcore knowledge on things that are hidden from the general public.
1 such thing is that your thyroid condition might be curable. use nascent iodine ( http://store.infowars.com/Survival-Shield--Nascent-Iodine_p_1104.html ). you might have had an iodine deficiency since birth.
I don't know anything about you so I cant help you with more information.
if your thyroid is not working then it is quite possible that your parra thyroid is not functioning also because of the same reasons. if this is true then that would easily explain why you had almost no callous. or bone consolidation. ie slow rate.
the good news is that these things can be fixed with diet.
I know more than doctors. because doctors have had their curriculum decided by corporate interests since the 1920's.
please give us an update.
-
Hello everybody :o)
Sorry for not writing any news..... but i cannot post my xrays anymore...?! Why??
An error message appears when i will post my xrays!
Iam very fine at the moment... my duck ass is gone.. and....... I CAN WALK WITHOUT my crutches now!! perfect... my ballerina is nearly gone.... 2cm max!
iam very happy with the results .. i love my new height... and i dont regret anything!
at 21.10.2014 i will make new xrays... perhaps then i can post them... my callus is very good and the bone is solid now!
thank you for supporting me!
-
Glad to hear about your progress .. :)
when they'll remove your frame ???
-
congrats falcos jenny :) you stuck with the hard recovery and now your reaping the rewards :)
don't forget to tell us how life after LL is for you :) I enjoy hearing all that stuff :)
-
good to hear your recovery is improving, frame removal is next :)
-
Hi Jeanny
How are you doing? Very good amount of lengthening. I'm also a Dr, Salameh/Dr. Schmidt-Patient and have done 9-10 cm. Ballerina is now my main problem, with foot inversion/suppination (at the end of Lengthening 5-6 cm ballerina, now approx. 2 cm, right leg a little less with a lot of physio/stretching). When did you start walking with ballerina?
Greetings Morpheus
-
Dear Jeanny,
I hope that you are doing well. How is the quality of the new bone? Can you plz post new X-rays?
-
Hey how you feeling now?
-
What exactly is this ballerina problem?
-
Hi Jeanny,
to be honest reading your diary felt like watching an emotional movie with a good ending, it is too late to post but i do
best wishes for u from Sydney Australia
would u still reccommend SChmidt and Salameh or not really would u blame them for the complication, as iam considering them pls
thanks