Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: shadow on February 08, 2018, 01:12:54 PM
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First I have to confess that English is not my native language. Thus I apologize in advance for any unintentional wording mistakes I will probably make in the following posts. You are welcome to correct them and help me learn.
For years, I have been watching this forum. Those people who dare to fight against what they were born with inspire me a lot. Fortunately, I seized the chance of transferring to one of Italy's top universities half a year ago. And my crazy adventure all begins right now. I am going to take the operation in March. Reply if you are interested in my journey. I would really like to have someone to talk to talk to when I am fighting my own battle. Besides, I hope my posts can more or less clear the paths for future patients.
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Hi Shadow,I live in Italy and I'm not far from Lecco so if you want,I could visit you during your LL process
Have you already booked your surgery ? Which is your starting height and how many centimers are you seeking ?
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Hi Dreamer, I am happy to have you visit me. Just let me settle down first. And yes, I have booked the surgery. My starting height is 163.5cm.
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Hi Dreamer, I am happy to have you visit me. Just let me settle down first. And yes, I have booked the surgery. My starting height is 163.5cm.
Awesome,PM me if you need something
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Thank you for sharing your story especially since ive been looking in to Dr. Pili myself when it comes to internal femurs. Wish you all the best and if there is anything you wonder, just ask.
Btw, i like your nickname.
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Welcome Shadow! Good luck on your journey, looking forward to your updates.
Are you attending university while lengthening? Sounds pretty intense.
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Good luck with everything.
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Welcome Shadow! Good luck on your journey, looking forward to your updates.
Are you attending university while lengthening? Sounds pretty intense.
How are you attending university while lengthening? I'd take a leave
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Hi Shadow, I'm italian and I did the LL consulting with dott.Pili, but i haven't done yet the surgery. It will be great to get in touch with you and support you on this experience.
DarkPrince.
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I'm going to see Pili on 22nd March in Milan with surgery ideally this year so I'll be following your journey with interest.
Wish you the best of luck in your journey!
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Hey guys, I too would be doing the surgery, but in april. Please let me know if I could pay a visit if you guys are around. I would get operated in Lecco but I plan to stay in Milan for a few days prior.
Btw, is there a psych test too? If so, any idea on what questions are asked and they answers they expect.
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Haha seems to be a small gang of us now ;D
Won't be around this April sadly but without a shadow of a doubt surgery within 12 months still trying to figure out what I'm going to do about my job. :-\
I'm not aware of any psychiatric evaluation but I know Guichet required it so it's not out of the realms of possibility.
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Haha seems to be a small gang of us now ;D
Won't be around this April sadly but without a shadow of a doubt surgery within 12 months still trying to figure out what I'm going to do about my job. :-\
I'm not aware of any psychiatric evaluation but I know Guichet required it so it's not out of the realms of possibility.
Guichet psychiatric evaluation looks like a joke. I think that he actually takes everybody if they are aware of risks
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Thanks for your concern. It's not a problem for me. I could just take the exam.
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I don't think there is a psyche test. Don't worry.
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I have already done the surgery and things went pretty well. The surgery requires general anesthesia. When I woke up, there was a hell of pain. However, the pain faded away so quickly that later in the same evening, I did not need painkillers any more. The next day morning, things got ugly. Though the pain was gone, I had sore muscles all around my foot to the extent that I could not gather enough strength to walk. I struggled all day and couldn't go off the bed. During the night, I decided to take a shot of painkillers. I needed to see if it was the pain that got in the way. I did some warming up before going down. The hardest part was to stand up. Though I possibly wouldn't feel anything under painkillers, I could tear my muscle all in a sudden. Then I tried several times until succeeded. I walked around the room happily and even took a bath after that. It all went alright after that.
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Hey brother, My surgery is next month, around the end. Could I drop in to see you sometime? Hope the journey is as smooth. All the best.
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How long did you practise the pre LL excersises sent by Dr. Pili?
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Congratulations Shadow! Hope everything is well. Btw have you met anyone that has done femur internal lengthening with Pili?
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How long did you practise the pre LL excersises sent by Dr. Pili?
I wasn't asked to do such exercise. But I think Dr. Pili has his own reason to ask you to do that.
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Congratulations Shadow! Hope everything is well. Btw have you met anyone that has done femur internal lengthening with Pili?
It seems that Dr. Pili recommends internal methods for femur lengthening.
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Hey shadow! , how is your mobility now? Are you abel to walk small distance(100-200m) around the house, using crutches, without much pain?
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Yep, even if it's difficult for you, please try to provide the most detail and maybe evidence that you can of your whole LL journey with Pili. He's one of the most respected and promoted doctors here, but his diaries are very lacking in information. You'd be doing us all a great favor.
Thank you, Shadow.
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Great a diary with the doctor and method I wanted to do !
Cheers man !
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Great a diary with the doctor and method I wanted to do !
Cheers man !
I hope you make a diary too!
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Hey shadow! , how is your mobility now? Are you abel to walk small distance(100-200m) around the house, using crutches, without much pain?
My room is small. Crutches can be a liability. They are only useful when I go outside. Crutches allow me to lean my body further without falling, which means bigger pace and faster walk. My knees are not as flexible as they used to be. So I walk like a zombie -- small pace and wiggling. But other than that, I am pretty ok.
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Yep, even if it's difficult for you, please try to provide the most detail and maybe evidence that you can of your whole LL journey with Pili. He's one of the most respected and promoted doctors here, but his diaries are very lacking in information. You'd be doing us all a great favor.
Thank you, Shadow.
I am studying and lengthening at the same time. Everything is in a bit rush. Should you have any doubts, just ask.
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I started lengthening today. I don't know whether any of you have once worn a tooth bracelet. The feeling is exactly the same. Each time the fixator is tuned, I feel a sense of discomfort, which will disappear once my body got used to it. The problem is that I have to tune the fixator once every eight hours, which means this discomfort is everlasting. There is a saying that pain is inevitable, but suffering is optional. I am glad that I have friends who would buy me cooking ingredients twice a week, an experienced doctor and a senior nurse who are just a phone away, a roommate who is willing to sacrifice parties and music just not to disturb me. A thought used to trouble me that I could have gone to a better university if it were not for this surgery. But now I started to fall in love with pizza, gelato and everything about Italy. I might even consider living in Italy after graduation.
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My room is small. Crutches can be a liability. They are only useful when I go outside. Crutches allow me to lean my body further without falling, which means bigger pace and faster walk. My knees are not as flexible as they used to be. So I walk like a zombie -- small pace and wiggling. But other than that, I am pretty ok.
How long are you able to walk for at a time?
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Also have you lost(atrophy) any muscle(quads/calves) till now?
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How do you goto your classses? crutch or wheelchair? And ntw, are you using a wheelchair as well?
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How long are you able to walk for at a time?
It depends on determination. If I am on painkillers and with crutches, 1 km is not a problem.
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Also have you lost(atrophy) any muscle(quads/calves) till now?
I cannot contract my muscle fully because there are 8 pins in each of my limb. It will cause pain or even wounds. Therefore I cannot tell that.
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How do you goto your classses? crutch or wheelchair? And ntw, are you using a wheelchair as well?
Crutches, yes. Wheelchair, I don't think so. How am I gonna get on a tram or a bus with a wheelchair? Crutches are already much of a liability.
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Thanks for your replies :)
1. 1km is pretty impressive. so you dont buy/rent a wheelchair at all?
2. are you told before hand about when to meet dr pili? And how often do you need to meet him? He said once a month till lengthening phase is done. could you confirm?
3. are you doing physios now? is it comfortable ?
4. you sure you can manage with crutches for your classes?
sorry for many questions, might ask many more :p
Mine is due next month :)
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Thanks for your replies :)
1. 1km is pretty impressive. so you dont buy/rent a wheelchair at all?
2. are you told before hand about when to meet dr pili? And how often do you need to meet him? He said once a month till lengthening phase is done. could you confirm?
3. are you doing physios now? is it comfortable ?
4. you sure you can manage with crutches for your classes?
sorry for many questions, might ask many more :p
Mine is due next month :)
1. I don't have a wheelchair. But if you want, you can buy/rent one.
2. Yes, I was told beforehand. The frequency is once a month.
3. I am not assigned any physios, but I have to walk a lot. I cannot count on my friends to do everything for me.
4. I go to class only when necessary. And yes, I can manage with crutches. As you said, I have to go to hospital to meet Dr. Pili once a month. Frankly speaking, the hospital is much more far away from where I live.
Good luck with your surgery.
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I hope you make a diary too!
Will do but I plan to do the operation only at the beginning of next year !
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hi shadow
can i see ur x-ray?
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1. I don't have a wheelchair. But if you want, you can buy/rent one.
2. Yes, I was told beforehand. The frequency is once a month.
3. I am not assigned any physios, but I have to walk a lot. I cannot count on my friends to do everything for me.
4. I go to class only when necessary. And yes, I can manage with crutches. As you said, I have to go to hospital to meet Dr. Pili once a month. Frankly speaking, the hospital is much more far away from where I live.
Good luck with your surgery.
Do you hide the frames from your classmates/professors ? if so how? if not why not (I mean most people know what those frames are meant for and it is kinda odd to have classmates who know you are doing LL)?
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Do you hide the frames from your classmates/professors ? if so how? if not why not (I mean most people know what those frames are meant for and it is kinda odd to have classmates who know you are doing LL)?
+1
And btw how much do you plan to lengthen?
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Shadow have you met anyone who is doing internal femur lengthening? If so, how is it going for them?
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shadow, Do you hide the frames from your classmates/professors ? if so how? if not why not (I mean most people know what those frames are meant for and it is kinda odd to have classmates who know you are doing LL)?
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I would really like to have someone to talk to talk to when I am fighting my own battle.
By the way, I read this in your OP again, and I just had to comment: I hope you've been doing well in that regard. So many LLers hire and depend on other people to take care of them, in their own countries. I hope you have been faring well and haven't been too lonely, shadow.
All the best to you and the rest of your journey.