Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: Lalbadshah on July 27, 2019, 12:36:04 AM
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I will be methodical in writing so as to help you - i) understand my journey and ii) learn from my knowledge and experience to plan yours. Notes - 1. I will put some pics as and when I feel like, should be sufficient as proof but I may or may not post what you want me to 2. I may not be regular in updating the diary, sometimes I will update frequently, sometimes not for a long time, and I cannot and will not explain why so, what I can say is at the very end the diary will be a complete diary, but it may take long time.
About me - Indian Citizen Male who studied in US and is working in silicon valley (as senior program manager, not as engineer), aged 37. Not unhealthy, not very healthy, medium fit but high upper body strength and very high mental strength. "VEGETERIAN all my life". 5'3" to 5'3.5" current height.
why I want height ? otherwise I am quite good looking and with height would be really good looking, I have nice inner personality I want nice outer personality as well.
how i learned of LL? through old forum and this forum.
which doctors i was considering ? I wanted weight bearing nail, given my budget I was considering Betz, Gichet , Giotikas and Mahboubian. After more research and based on email exchanges I finalized Giotikas for stryde (primarily because his solid resume and impeccable cost). I did phone consult and set up surgery date but the visa thing became a big hurdle, so after a lot of thought I decided I will do it in US. based on my budget I first looked into mahboubian and went for in person consultation, meanwhile I learned about Dr D. and went for in person consultation as well. I liked both doctors and was struggling to decide which to chose, (cost was similar Dr. M was cheaper by 3k), one big differentiating factor here became Dr. D's assistant Ronnie. During consultation Ronnie talked to me separately and I felt safe and secured with him and realized that he is a nice guy who wold help me through thick and thin (and he has been even more awesome ever since, more so on him in next posts) and on the other hand Dr. M's assistants were pathetic in answering questions. Anyway, I finalized Dr. D. for surgery on 7/19 7 AM PST. Note: pre-op clearane was done on the day I had went to Henderson for consultation.
1. Day before surgery (7/18) - checked into hotel and set up foods, clothes etc. I had it booked for 2 weeks. went to Dr.'s office and made full payment. Was told not to eat or drink after midnight. Filled my prescription from a pharmacy.
2. Surgery day (7/19) till hospital discharge day (7/21) - checked in (in a nearby Las Vegas hospital), was put on table (after putting the needles etc. gown etc., tests etc, the usual BS), was talking then don't remember anything...woke up with some voices talking around me giving my status. It was in a hospital bed, in a big hall with many patients, was kept on pain medicine and don't remember much, was transferred to private room at night. Nurses kept checking on me. Most nurses and assistants were awesome, 2 assistants were idiots (don't want to go to details, have no proof and nothing happened but I recommend you do not dangle your premium credit cards wallet i the open while asleep). Food was ty, so did not eat much, peed a lot through catheter. Realized that I have to ask for pain medicine when I need it, was asking Dilaudid, because that was one working like magic , taking away all pain in seconds and was making me sleep well, other medicines were joke. on 20th morning I had to forcefully remind them of giving me Xarelto and they did (doctor said he had prescribed and they would probably have given me anyway and maybe I asked them just before they might have given me. maybe - but I am not sure - I don't trust the nurses - they might have forgot as well who knows). They refused to give dilaudid 8 hours before my discharge. I called uber, I also called Ronnie, the hospital's staff, Ronnie helped me get into the uber and Ronnie and an aid I had pre-hired at the hotel helped moved me and my stuff to my hotel room.
Next on next post.....
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continued..
between 7/19 to 7/21 (hospotal stay) - I had 2 PT sessions done by hospital PTs, they were awesome, one named Mandy is just like an gel the other (forgot name) is also an angel. but there was one real bad experience as well (not anybody's fault) - I was on pain 0 (min) to 5 (max) all 3 days, but I made a mistake - after catheter was taken out (which is an experience one must have once in lifetime just to experience it, it is nothing you can imagine, it is something like real weird , though I will not say very painful, it is actually like pain level 2/3 but the feeling is something different) - I asked PT to help me (assisted) walk to the restroom so that I can pee (bladder was full) and after -5 minutes struggle I peed and man it was awesome - I peed like I was about to flood las vegas, maybe like 1 litre, anyway - one interesting thing happened while I was peeing, 2 nurses (who were on that shift, and they were angels the best) came running into my room and I could hear them asking the PT (who was waiting outside restroom) where am I, she said I am peeing inside, anyway I came out after flooding las vegas (with happy face) and askd the nurses what happened? they said while I was peeing the heart beat rate shot upto like 140 (they can see remotely) !! I laughed sayign maybe because I was peeing away like crazy, they also laughed. Now, the bad part - next day (7/21) I told my PT that just like I peed in restroom yesterday I want to take dump today (remember I was like 3 days without bowel movement and wanted a clean stomach because in normal life I poo every day, at times twice) and she should assist me seat on the commode (note- all this while I was walking using a walker with minimal assistance from PT) she said that is great idea. we went to restroom, I sat on commode, here note - my tibia is short and feet cannot fully reach ground, only like fingers, anyway I told PT that just like my peeing session I will try for 5 minutes and she can wait outside, she got a call from somebody and said she will be back in 10 minutes while I can try pooping. 5 minutes passed, I could not pee and pain started shotting up (due to the uneven commode and due to my feet not being able to fully touch ground), the pain kept increasing and gradually went to 10, I tried to man up and hold thinking PT will be back and get me up and out but she did not come even after 12 minutes, I ran the alarm bell , the nurse's assistant ( a not so bright lady) came and she could see I am almost crying, she said she could help you get up, but she is thin and I knew even if she were strong she would not be able tosupport me stand ()and falling would mean doom) because - i) my rigth feet was numb, ii) my right feet did not want to move no matter if you kill me I could not have, it was like 11/10 pain, only a PT could have done some rbubing etc. to sooth it and help me get up, she called PT lady and PT said she will come in 2 minutes, but even after 5 minutes nobody came, I keep crying and yelling like crazy in pain (have never felt that pain in my 37 years if life), I thought i will simply just stand up using my full mental tenacity/strength but I knew I will fall down even before I am up 1 inch, at last ordeal ended and the PT came, she was trying to help me get up with force support from her but I knew unless my right feet is numb I will fall, she (and I) did some rubbing etc to make the feet awake again and ten using my maximum willpower I was up. That moment onwards I decided I will never go and set on toilet seat for long unless I am well recovered. Other than this one, I have no unpleasant moment at the hospital (first 3 days) and it was actually very less painful (like mostly 0 to 3) most of the time, in fact Dr. D asked me what do I think about the prevalent thoughts (I had told him that I found about him on this forum and I use this forum for info. gatheing over years fir my LL plan) on pain level during LL and actual pain level am experiencing - I said see, normally when you just on bed resting or walking slowly with walker pain is like minimal (0 to 1/2) but there are moments when you try to do things that require a little more strain - like trying to sleep on side, trying to bend the knees a bit more, it hurts like crazy and that pain reaches 7 to 10 easily, and another thing to note is even things that are not painful sometimes, you will surprisingly see that another time that same activity may actually suddenly give you a 7-8 pain (this phenomena is like a puzzle to me, though I have a theory to explain this).
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Continued.. I am getting some queries in PM on how is the doctor and support staff etc. so here is my response -
Regarding doctor - I met him 5 times, once during consultation, once during pre-surgery day, then on the day of surgery and then for a few minutes on the other 2 days I was in hospital. All my interactions were brief and he answered all the questions I had satisfactorily in a simple, to-the-point and concise manner, as a person - to me he seems like a humble and simple down to earth guy who understands the procedure very well and takes pride in his work. next I will meet him during my 2 weeks post surgery visit.
Regarding doctor's secretary/admin Teresa - she was super accessible when I was trying to set up consultation and get answers to questions (before surgery) and that was one thing that I really liked and she even told me ''don't worry we will always be available at your disposal should you need any help' , but I am sorry to say that the 2 times I had called her after (I had made the payment and finalized my surgery) she never took my call, and in fact disconnected my call. I don't know what is going on (I hope all is well with her), maybe she is busy or whatever but at least a text would have been nice and this sudden 180 degree change in being supper accessible (before I signed up for surgery) to disconnecting phone and not responding (after I set up surgery) is something that has not gone down well with me (what if it is like an emergency kind of need? she knows I am doing the LL alone and I don't have doctor's direct number. Fortunately for me those were not emergency situations but the fact that calls were ignored is not very professional thing, especially during the crucial period of 2-3 days post surgery). So, I have decided not to call her again, anyway I have access to doctor's assistant Ronnie who is super accessible and helpful.
Regarding doctor's assistant Ronnie - He is a gem, he is like my sunshine during this LL journey, my brother. I cannot list down the helps and things he has done for me (the list will become too big) and it is because of him that I would 1000% recommend Dr. D to anybody for this surgery. This guy is the most helpful, humble and kind and good hearted guy I have ever met, period. Ronnie was one of the biggest reasons I had chosen Dr. D (when I was in dilemma between choosing Dr. D and Dr. M) and If given the option to do the surgery again (I may do tibia after 2-3 years), I will do it with Dr. D just because of Ronnie (of course Dr. D is also very good doctor, but my primary factor to chose him would be Ronnie). I wish him huge success in life, he deserves it with his work ethic.
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Hey Lalbasshah,
Thank you for starting a diary. Did Dr. D required you to do the ILIOTIBIAL BAND RELEASE?
Thanks
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Hey Lalbasshah,
Thank you for starting a diary. Did Dr. D required you to do the ILIOTIBIAL BAND RELEASE?
Thanks
Yes
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Now, I would like to add my input on whether you can do this thing alone or not. Here is what I think -
1. Doing this completely alone is almost impossible (I know people have done it, still I think it is almost impossible) unless by 'alone' you mean there is somebody coming to give you food at your bed and somehow you have figured out an option of pooing while on bed (can't think how that is possible) or you can withstand the feeling that you will have while not pooing for for around 6-7 days. This would also require very very high upper body strength. IMPOSSIBLE for a girl or thin men. Close to impossible or very difficult for a man with strong arms.
2. With hiring aide for a few hours, very much possible - that is what I am doing. Still, if you will not have the aid with you at night then you need very high upper body strength - very very difficult for girls or thin men.
So, my recommendation for women and thin men would be - don't even think of doing it alone - you can't. even with hiring aide for a few hours you will struggle, for girls and thin men I really beg you - bring family member or partner with you.
For males with good muscle strength - doing it alone will be close to impossible but doing with aides hired for a few hours - yes very much possible without much difficulty.
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Hey Lalbadshah - first off congrats on starting down this amazing but difficult journey! And thanks so much for being so detailed in your write ups, I'm sure many of us planning for CLL now will benefit greatly from the information you're sharing.
A couple questions:
1) When you talk about hiring an aide for a few hours - during what part of the day do you find yourself needing help the most?
2) How did you go about finding an aide? Any particular websites or did you just find one through friends or the hospital?
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Hey Lalbadshah, glad there is now a second diary for Dr. Debiparshad. I look forward to reading your diary. I also sent you a private message. Happy to weigh in and offer advice as needed.
I agree with you entirely about Ronnie - he really is a gem. Teresa is very good about returning calls/texts during work hours. If you contact her during the weekend then you probably won't hear back until Monday. Remember you can always text Ronnie or Dan from NuVasive and both of them are able to contact Dr. D. at all hours if there is an emergency. The other name you mentioned - Mandy the PT at the hospital - is also fantastic.
Now, I would like to add my input on whether you can do this thing alone or not. Here is what I think -
1. Doing this completely alone is almost impossible (I know people have done it, still I think it is almost impossible) unless by 'alone' you mean there is somebody coming to give you food at your bed and somehow you have figured out an option of pooing while on bed (can't think how that is possible) or you can withstand the feeling that you will have while not pooing for for around 6-7 days. This would also require very very high upper body strength. IMPOSSIBLE for a girl or thin men. Close to impossible or very difficult for a man with strong arms.
2. With hiring aide for a few hours, very much possible - that is what I am doing. Still, if you will not have the aid with you at night then you need very high upper body strength - very very difficult for girls or thin men.
So, my recommendation for women and thin men would be - don't even think of doing it alone - you can't. even with hiring aide for a few hours you will struggle, for girls and thin men I really beg you - bring family member or partner with you.
For males with good muscle strength - doing it alone will be close to impossible but doing with aides hired for a few hours - yes very much possible without much difficulty.
So my view is slightly different from yours about doing it without a caretaker. I did not use a caretaker for a single hour. I have decent muscle strength, and I feel it was very possible to do it entirely alone but you need to be aware that it is going to be very difficult. Still, with a portable urinal (and more importantly - your meds) by your side and if you can get the hotel staff to open the door to let Uber Eats in and you use Walmart grocery delivery or another grocery delivery service, it's very doable. I don't know what else one would use a caretaker for besides helping them get to the bathroom - especially overnight. In my case, they would've been doing little more than watching me sleep :) Since you used a caretaker, it would be great for others who may use Dr. D. to have their contact info. I was actually trying to hire a caretaker but never received a call. The other options wanted a commitment to a minimum # of hours that I wasn't prepared to make.
I know you were able to poop much earlier than I was able to, and maybe if I needed to sit down on the toilet on day 2 or so my view would be different. It took me a good 5 days post surgery before I could go, and that was only because I took stool softener the day before. Of course, sitting down on the toilet for the first time was very difficult but I was able to maneuver myself using the accessible room wall bars.
You must be feeling so much better. I remember especially in the first two weeks that each day felt so much better than the previous day. You've made it past the hardest part! Good luck to you!
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Hey Lalbadshah, glad there is now a second diary for Dr. Debiparshad. I look forward to reading your diary. I also sent you a private message. Happy to weigh in and offer advice as needed.
I agree with you entirely about Ronnie - he really is a gem. Teresa is very good about returning calls/texts during work hours. If you contact her during the weekend then you probably won't hear back until Monday. Remember you can always text Ronnie or Dan from NuVasive and both of them are able to contact Dr. D. at all hours if there is an emergency. The other name you mentioned - Mandy the PT at the hospital - is also fantastic.
So my view is slightly different from yours about doing it without a caretaker. I did not use a caretaker for a single hour. I have decent muscle strength, and I feel it was very possible to do it entirely alone but you need to be aware that it is going to be very difficult. Still, with a portable urinal (and more importantly - your meds) by your side and if you can get the hotel staff to open the door to let Uber Eats in and you use Walmart grocery delivery or another grocery delivery service, it's very doable. I don't know what else one would use a caretaker for besides helping them get to the bathroom - especially overnight. In my case, they would've been doing little more than watching me sleep :) Since you used a caretaker, it would be great for others who may use Dr. D. to have their contact info. I was actually trying to hire a caretaker but never received a call. The other options wanted a commitment to a minimum # of hours that I wasn't prepared to make.
I know you were able to poop much earlier than I was able to, and maybe if I needed to sit down on the toilet on day 2 or so my view would be different. It took me a good 5 days post surgery before I could go, and that was only because I took stool softener the day before. Of course, sitting down on the toilet for the first time was very difficult but I was able to maneuver myself using the accessible room wall bars.
You must be feeling so much better. I remember especially in the first two weeks that each day felt so much better than the previous day. You've made it past the hardest part! Good luck to you!
Hei bro, yes I will give you a call, actually I had tried calling you twice before my surgery - always went to voicemail (maybe you were busy), anyway will try again. Agree on Ronnie - he is a real gem. Good idea about Dan, I will try to find his card and keep it handy in case I need his advice any time.
I know you did without caretaker, it is just that if you think of some variables - if some things might have turned a little different/negative you may have had issues without a caretaker (think about Fallen774's case - on his fifth day diary) - that is why my personal recommendation/believe is not to to without any caretaker at all, at night of course you don't need. Yes man, the problem is the minimum hours commitment thing, I agree.
Actually it seems we were able to poop on same day (post surgery), and I must thank you for that because - I was able to poop only after taking what you recommended (dulcolax) - it came out like a big anaconda coming out from my ass :(. LOL. Though my peeing seemed to have been easier than yours - I was peeling well with catheter on and even after catheter off I peed well.
You are right, each passing day is better than previous one. man, when you are planning to be back to Henderson (whenever) let me know (here or PM) and we will see if there is any date when both of us plan to be here and can meet. All the best bro.
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Hey Lalbadshah - first off congrats on starting down this amazing but difficult journey! And thanks so much for being so detailed in your write ups, I'm sure many of us planning for CLL now will benefit greatly from the information you're sharing.
A couple questions:
1) When you talk about hiring an aide for a few hours - during what part of the day do you find yourself needing help the most?
2) How did you go about finding an aide? Any particular websites or did you just find one through friends or the hospital?
1) this is more of a personal choice based on your plan and you can always change the hours, for example I just changed my hours to suit my PT session hours so that my aide can take me to the PT (i.e. helping me switch between wheelchair and walker and gelp me get into uber and then put the walker and wheelchair in uber and do same thing while I am coming back to hotel from PT). I would recommend you plan in such a way that - i) your urinal dumping/cleaning, water/filter filling up/food prep/warm up, your move to the commode and back, your walkign session wit walker and physical therapy - these 6 things can be covered, now - depednign upon your need/situation you may actually need the caretaker to help wit only 4 of these 6 or 5 o these 6 or all 6 of these , that depends on you, but this list of 6 things is (I believe an exhaustive list of things that caretaker help can be used for).
2) Doctor's admin (Teresa) called up one service provider and they called me and I used them for 3 days but they were very unprofessional, so I stopped using them and found one on my own on internet which is a little costlier than the one recommended by doctor's office but is awesome, they are so methodical, organized etc. that I ,who work with multiple fortune 500 companies, can say the professional way they operate can put big multinationals to shame. There are many others, an online search will give you whole list. If you want name of the one I am using let me know and I can PM you.
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Is the pooping problem only for two weeks? After that will you be able to walk to the toilet?
@verticalpush A 4 star hotel I had stayed in had not agreed to accept food deliveries, forget delivering to my room. I had to go wait outside in the cold for the delivery. It's great that your hotel is nice and accommodating. Would you mind telling which hotel for everyone to know?
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Thanks @lalbadshah for the response!
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Hei bro, yes I will give you a call, actually I had tried calling you twice before my surgery - always went to voicemail (maybe you were busy), anyway will try again. Agree on Ronnie - he is a real gem. Good idea about Dan, I will try to find his card and keep it handy in case I need his advice any time.
I know you did without caretaker, it is just that if you think of some variables - if some things might have turned a little different/negative you may have had issues without a caretaker (think about Fallen774's case - on his fifth day diary) - that is why my personal recommendation/believe is not to to without any caretaker at all, at night of course you don't need. Yes man, the problem is the minimum hours commitment thing, I agree.
Actually it seems we were able to poop on same day (post surgery), and I must thank you for that because - I was able to poop only after taking what you recommended (dulcolax) - it came out like a big anaconda coming out from my ass :(. LOL. Though my peeing seemed to have been easier than yours - I was peeling well with catheter on and even after catheter off I peed well.
You are right, each passing day is better than previous one. man, when you are planning to be back to Henderson (whenever) let me know (here or PM) and we will see if there is any date when both of us plan to be here and can meet. All the best bro.
Awesome man! It might be that I need to have the google voice app open. I have it open now so if there's any problems calling me again let me know.
Glad the dulcolax trick worked! I was so uncomfortable by day 4 that it was such an amazing relief when I was finally able to go. Also glad you could pee so fast after the catheter was removed. You described having the catheter removed perfectly. It's such a weird feeling. I think the pressure they put on me to pee within 5 hours or so (I forgot what the time limit was) was what did me in, and if it wasn't for Dr. D. telling them to wait longer for me to pee then I would have been in for a lot more pain!
You make a very good point about possibly falling without a caretaker. I had my phone set up so I could yell "Hey Siri" across the room and hopefully be able to call the front desk and have someone come help me but you're right it's not a good situation to be in. I was pretty stressed out the first couple of days worrying something bad would happen. Yeah, it only takes one fall for everything to fall apart.
Haven't figured out my next trip out to Henderson but I'll definitely let you know what I'm thinking. Would love it if everything aligns and we can meet up!
Take care bro.
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Awesome man! It might be that I need to have the google voice app open. I have it open now so if there's any problems calling me again let me know.
Glad the dulcolax trick worked! I was so uncomfortable by day 4 that it was such an amazing relief when I was finally able to go. Also glad you could pee so fast after the catheter was removed. You described having the catheter removed perfectly. It's such a weird feeling. I think the pressure they put on me to pee within 5 hours or so (I forgot what the time limit was) was what did me in, and if it wasn't for Dr. D. telling them to wait longer for me to pee then I would have been in for a lot more pain!
You make a very good point about possibly falling without a caretaker. I had my phone set up so I could yell "Hey Siri" across the room and hopefully be able to call the front desk and have someone come help me but you're right it's not a good situation to be in. I was pretty stressed out the first couple of days worrying something bad would happen. Yeah, it only takes one fall for everything to fall apart.
Haven't figured out my next trip out to Henderson but I'll definitely let you know what I'm thinking. Would love it if everything aligns and we can meet up!
Take care bro.
Yes your setting up siri thing was good idea. Yes plz do let mr know, and hopefully we can meet and maybe we ca invite Ronnie as well and have a small party in my hotel room, I hve already told Ronnie that I owe him a party.
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Wishing the best results for you.
¿ How much are you expecting to add in cm? ¿ what is your starting inseam ( crotch to floor)?
I am pretty much your same height and planning to to LL next year.
Regards
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I just realized you got your surgery before me man!! congrats hahaha call me when you get a chance brother you have my number
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Wishing the best results for you.
¿ How much are you expecting to add in cm? ¿ what is your starting inseam ( crotch to floor)?
I am pretty much your same height and planning to to LL next year.
Regards
I am targeting minimum 6.5, maximum 7.5 cm. Regarding 'starting inseam (crotch to floor)' - I don't know, never measured. All the best for your journey.
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I just realized you got your surgery before me man!! congrats hahaha call me when you get a chance brother you have my number
Yes brother, it was nice talking to you on phone again today, ATB for your journey.
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Dear all - plz note - my journey is going fine but due to some personal reasons I will be extremely busy from now till 8/1, so - my next post here (or reply to any question) will be on 8/2 only. Thanks.
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one question - what is the easiest and quickest way to upload pictures here?
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one question - what is the easiest and quickest way to upload pictures here?
a lot of ppl use Imagur
just upload and share the link here when it's done https://imgur.com/
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thanks Movie
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team, here are 3 random pictures from my hotel room (as I had said at the beginning I may or may not post pictures but jut posting some because I know some folks here call out diaries without any pics as fakes).
https://imgur.com/a/hPnIWy3
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Continued...from the day if my arrival at hotel (night of 7/21) -
wit help from mr. wonderful Ronnie and an aide that had pre-hired (was waiting for me at hotel) I and my bags etc (including ERC) was transferred to the hotel room. The aide warmed up some food for me (Ronnie was not hungry) and meanwhile Ronnie gave me some general guidance etc. thing to note here - my surgery was on 7/19 an I traferred to hotel on 7/21 but I had already booked hotel on 7/18 and had put ample of frozen food, protein bar, fruits etc. in the freezer and had put clothes etc. around as well as some first aid kit near bedside table.
At night aide and Ronnie were gone I went to sleep , sleep was ok (maybe 4-5 hours) but not as good as it used to be in hospital with diluaid (oh I miss dilaudid every second, and I want to give double nobel awards to the inventor of dilaudid). Pain was low to moderate (0 to 4-5 when I tried to move things), taking recommended dose of oxycodon was enough. Morphine is a useless piece of dogcrap drug I can tell you that, does nothing.
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Continued... we are on 7/22 now -
No PT, PT guy came on Tuesday (7/23) from what I remember. My aide cooked me some food and I did some walking with walker wit help from my aide. That is it. Pain very low to moderate, Oxycodone was enough (morphine was useless)
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Continued... we are on 7/23 now -
PT guy came , made me walk a bit in the room, made me do some bending , stretching etc. small exercises and told me that my motions, 4 days after surgery, are better than anyone else's he has seen. It was good to hear that. He said real PT will take place (start) at PT clinic on 7/25 and somebody will contact me on 7/24 to give details. Aide cooked food, I ate.
I repeated a previous mistake here again - before that let me tell you that I bought a bedside commode from Amazon along with disposable bags etc. (if you see my diary earlier you will read my horrible experience seating on normal commode), anyway I asked aide to help me seat on the bedside commode s that I can take dump (it was 5th day without clearing stomach) , I set there for 30 minutes - nothing came out but then when I tried to get up I could not and my pain reached 10/10 (I even tried calling PT to come help me get up, he did mo pick up, though he had called later, I was so much in pain I thought of calling 911), only after a lot of struggle I was able to get up and went to bed. That night I slept and read diaries on how to get the poop out. Next day (7/24), as per Vertical's diary I took like 5-6 dalculax and man, within 5 minutes I was (with help from aide) on bedside commode and dumping out anacondas after anacondas, full clean stomach :). Later the next morning (aroudn 1 AM) I pooed even more (was able to get up on my own using walker) and was feeling so clean and good.
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Continued... we are on 7/23 now -
PT guy came , made me walk a bit in the room, made me do some bending , stretching etc. small exercises and told me that my motions, 4 days after surgery, are better than anyone else's he has seen. It was good to hear that. He said real PT will take place (start) at PT clinic on 7/25 and somebody will contact me on 7/24 to give details. Aide cooked food, I ate.
I repeated a previous mistake here again - before that let me tell you that I bought a bedside commode from Amazon along with disposable bags etc. (if you see my diary earlier you will read my horrible experience seating on normal commode), anyway I asked aide to help me seat on the bedside commode s that I can take dump (it was 5th day without clearing stomach) , I set there for 30 minutes - nothing came out but then when I tried to get up I could not and my pain reached 10/10 (I even tried calling PT to come help me get up, he did mo pick up, though he had called later, I was so much in pain I thought of calling 911), only after a lot of struggle I was able to get up and went to bed. That night I slept and read diaries on how to get the poop out. Next day (7/24), as per Vertical's diary I took like 5-6 dalculax and man, within 5 minutes I was (with help from aide) on bedside commode and dumping out anacondas after anacondas, full clean stomach :). Later the next morning (aroudn 1 AM) I pooed even more (was able to get up on my own) and was feeling so clean and good.
Dang brother sorry to hear you experienced 10/10 pain l: I guess we all have to go through it one time during the process, but I'm glad you're able to have some bowel movement now and cleared everything out haha I still haven't cleared anything out yet, day two here doing great! all the best to ya hope to hear from ya soon man! be good god bless
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Dang brother sorry to hear you experienced 10/10 pain l: I guess we all have to go through it one time during the process, but I'm glad you're able to have some bowel movement now and cleared everything out haha I still haven't cleared anything out yet, day two here doing great! all the best to ya hope to hear from ya soon man! be good god bless
Hei bro, usually the pain is actually very low, like 0 to 1 , the problem is when you expose yourself to some extreme situations , like I sat on the uneven commode for such long time thus asking for trouble. Actually I was thinking about my normal self where I used to watch videos while waiting for dump to come out but what I forgot is after LL your bowel movement is screwed because of pain medicine and you cannot just seat on commode expecting to come out, Dulcolax is the king. Keep Dulcolax with you.
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Hei bro, usually the pain is actually very low, like 0 to 1 , the problem is when you expose yourself to some extreme situations , like I sat on the uneven commode for such long time thus asking for trouble. Actually I was thinking about my normal self where I used to watch videos while waiting for dump to come out but what I forgot is after LL your bowel movement is screwed because of pain medicine and you cannot just seat on commode expecting to come out, Dulcolax is the king. Keep Dulcolax with you.
haha right on will keep that in mind
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Continued .... day 7/24 -
This is the day I was told to start my distraction, but I had this mental thing in my mind that until I clear my stomach I will not start distraction, after taking the dulcolax I was able to clear my stomach around 5 PM and my mind was ready to start distraction, but what I did not want to do was to do 3 distractions withing a span of like 2 hours each (since it was already 5 PM), I wanted at least 5 hours gap between two distractions , so I decided that on the first day I will lengthen only .66mm. I called up my friend and advisor Ronnie and he concurred with my decision. Nothing more to that day. Went to sleep after 2nd distraction around 11 PM. Note: i) PT guys did not call, I texted them but no response. ii) did some walking with walker in hotel, with aide on my side
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Continued .... day 7/25 -
PT person called and asked me to come for PT, we agreed on 5 PM slot. I did some walking at hotel during the day, with walker, with caretaker/aide by my side. Caretaker prepared food for me. Then we went to PT (called UBER, caretaker took me down to hotel lobby in wheelchair and then I transferred to walker and from walker to Uber), wheelchair and walker fitted in the uber trunk.
PT was very good, the girl is very cute looking and young and smart and knows what she is doing, so happy to have her as my PT, doing PT with her makes me happy, other members of the PT staff arr also very awesome and nice people. came back using uber, caretaker prepared food, watched youtube, went to sleep. Sleep was difficult due to soreness due to PT, total sleep maybe 5 hrs.
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Continued .... day 7/26 -
No PT because they had some kind of leave, was unhappy because I really wanted to have as much PT as possible, and n PT on Friday would mean no PT for 3 days (due to weekend). I did some PT on my bed with help from aide and also did lot of walking with walker.
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Continued .... day 7/27 -
Almost same as day 7/26, only difference being I ordered some groceries etc. to replenish my food supplies.
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Continued .... day 7/28 -
Almost same as day 7/26. One thing to note here - since I was not taking shower, I was using the wash clothes brought from Walmart to clean myself every 2-3 days. Also note that since I was using urinal bottles (that my caretaker emptied and cleaned in morning) I also have to keep good amount of paper towels and wipes to clean piss drops (on clothes , skin and bed). Also, made it a point to get the bed done every 3 days (every day would be too cumbersome, but more than 3 days may create hazard with too many piss drops on bed sheet, though I did take care of cleaning drops immediately).
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one thing/insight from my point of view -
at this point my biggest struggle has not been the pain, yes it is problem but biggest problem has been loneliness especially because I am an outdoorsy person who walks around and out a lot all day and am not habituated being in a closed room bedridden, also I am a program manager whose main job is talking - I attend like 10 meetings a day and make hundreds of calls - so with that kind of life suddenly you become like a vegetable you get into depression, now with PT becoming regular from this week (did PT everyday this week, 7/29 to 8/2) I get to go out everyday and I am feeling good.
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Continued .... days 7/29 till 8/2 -
Days wee almost same, in morning my caretaker comes and cleans up my urinals, fills my water filter, then prepare some food for me, then we go for a walk in the hotel hallway and then she goes back , then I watch youtube/browse net and also do some work, the caretaker returns again at afternoon and prepares some food for me and then takes me to PT. my PTs are going well and all of the trainers are telling me that I am recovering amazingly faster compared to to other (LL patients) and they are pleasantly surprised with my so fast recovery, which feels good to hear :). Meanwhile my charismatic and kind friend Ronnie came over once again on my request to check on me and confirmed that the incisions are well healed, he also changed the dressings. good news is that I have a go ahead to take a bath (carefully, without sprinkling water directly on incisions/wounds)and then dry up the incisions and wrap those with sterile bandage/tapes etc. that Ronnie has given me. I intend to take my first real shower/bath (after the surgery) tomorrow.
I only had 2 problematic situations during this time and a change of plan situation as well -
Problematic situations -
i) my caretaker forgot my cell phone in uber and the uber guy wanted to usurp my iphone7 so deliberately did not answer 100s of calls and texts (he wanted the phone to run out of battery and ten usurp it). I escalated to UBER management but they did not help. 40 hrs passed and i knew that my phone will soon run out of battery and then won't be traceable. Guess what? my main man Ronnie came to rescue again , he used the track my iphone feature to trace the uber driver on a highway and got it back for me (there is more spice to it but I will skip that here). Ronnie is a superman, period, if I get rich an become a movie director (which i s a dream of mine) I will cast Ronnie in the movie in a charismatic role.
ii) 2 days back, while lengthening the right femur I got extreme pain (almost 8/10) which is surprising because I have not experienced any pain while lengthening. I have not discussed this with Ronnie yet (and I do not have doctor D's direct number, but even if I had I might not have called for this one off incident). Anyway, my plan is - if it happens again in future I will discuss with Ronnie and ask him to talk to doctor D.
Change of plan situation - today (2 wks post surgery) was supposed to be my first post operative visit to the doctor (for sanity checking on whether things are going fine) but yesterday Ronnie informed me that Dr. D has to travel due to some family emergency or something like that recommended that we reschedule our first post-op visit on 8/6. I said ok and I extended my stay at the hotel till 8/7 , but before booking my return flight (to my home San Jose) and booking my hotel in san jose I asked Ronnie whether the 8/6 check up date is guaranteed and (because I could not afford to lose time and money if things changed again) and he said in worst case, if the doctor cannot make it on 8/6 they will take my x-rays etc. and the doctor can evaluate those later, I said NO, if I am doing a serious surgery like LL and paying a good amount for it, staying here in henderson for 2.5 wks - the minimum I expect is a proper first post-op in personal follow up with the doctor to feel safe, Ronnie concurred with my reasoning and made calls with the Dr.s office and now I have a guaranteed in person post op check up visit on 8/8. That is relaxing to know (I was getting anxious with the situation) and keeping my fingers crossed. Everything seems to be going well with my recovery etc. and I am hopeful the doctor will find the results to be be OK on 8/8. Pray for me my friends. Thanks.
BTW, my caretaker asked me to try to take a few baby steps without any support, and i could (take) :). More later when I have more time, will be busy for next 3-4 days now and won't be posting.
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one last thing before I sign off today - I would like to address the question of 'is it (the surgery) worth it?' especially so because my diary (or some other diaries where patients doing this seem, on paper at least, to have it easy) may sound LL to seems like something easy, not so challenging a process and is like drinking water. IT IS NOT AS ROSY AS IT MAY SEEM LIKE. you will face situations that you would never even have imagined, of course you will come out a stronger person and will know yourself very well at the end.
My advice (I don't want to go on a argument loophole, this is my personal opinion as a part of my diary, and your life and decisions are yours and I have no right to question your decisions) -
If you are a person who is 5'7" or plus, I recommend you ABSOLUTELY DO NOT DO IT. at 5'7" if you are going through this to gain few inches, your understanding of things in the world is seriously flawed.
I you are around 5"5"-5'6", you may consider doing it if you want to or can avoid it as well i you don't feel like you need a few inches, no strong recommendation, here (50-50).
If you are below 5'5" I think you should do it if you can afford a good surgeon, I think it will be worth it.
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Continuation -
My view on Stryde: I am convinced that Stryde is the best LL method out there. It is weight bearing thus allowing you to walk (with walker) almost 1-2 days after surgery and without aid in almost 4 weeks post surgery (this is my assessment, I expect to walk without aid in another 2-3 weeks though I will still use cane to be on safe side). Guichet and Betz may be weight bearing but I think Stryde is sperior due to the magnetic ERC process and also because of ability to reverse . Moreoever it is from big company nuvasive, a big company always can afford to soend more on R&D, hiring Phds etc. so tend to design better products,
Note: I am not trying to play down any nail or doctor as inferior, in fact I was considering Betz and Guichet as well at one point (last year) for my surgery (as you will see at the beginning of my diary), it is just that I am giving a fair and jut assessment based on my analysis. All nails are useful and I know people have done LL with all kind of nails, but at present Stryde stands head and shoulders above others in terms of its positive factors.
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Thanks for your continued updates and it's great to hear that you are recovering nicely! I would've paid you a visit if I was in LV myself haha. When you get the chance, perhaps a month or so from now, could you maybe post a video?
If you are a person who is 5'7" or plus, I recommend you ABSOLUTELY DO NOT DO IT. at 5'7" if you are going through this to gain few inches, your understanding of things in the world is seriously flawed.
I you are around 5"5"-5'6", you may consider doing it if you want to or can avoid it as well i you don't feel like you need a few inches, no strong recommendation, here (50-50).
If you are below 5'5" I think you should do it if you can afford a good surgeon, I think it will be worth it.
I think it is more useful to think in terms of deviations from the mean as opposed to absolute measurements such as 5'X". Someone that's 5'7" in a short country like Peru for example would feel great, but would not necessarily feel so amazing in Serbia where lots of people are around 6'. So it depends on how far from the norm you are.
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thanks bro, yes hopefully we can meet, you are welcome to meet me anytime , I am here in Henderson till 8/8 and then fly back to San Jose.
I will try to put a video, when I don't know - but will do that I can tell you.
The point you bring about the deviation from (local) mean is something I have thought about (and I knew somebody would bring that point in response) - but I still stick to my point - because 5'7" is good enough in India or Netherlands or anywhere else. 5'7" does not become 5"4" in Netherlands. My personal belief is at 5'7" - your height is no longer a significant disadvantage in anyway - irrespective of where do you leave. I also have a feeling ( I can't prove it because of lack of hard data) that there are many people on this forum who are not that good looking or have some failures in life (women, career, self image issues etc.) but are of normal height and they think with few more inches their life will turn out be good in some way and will compensate for some other things that they lack - the truth is it will not - I can bet my fortune on - it will not. In other words I think beyond 5'7" height starts becoming very minor factor and at/above 5'9" height stops begin a factor at all. I strictly believe cosmetic LL is useful (and I encourage it to be used) for people below 5'7" , but cosmetic LL for people above 5'7" shows some mental issue with the person and if I were a LL surgeon I would never accept anybody above 5'7" for LL and would refer them for psychiatric help. Guys/gals don't hate me plz, it is my opinion and you can disagree with it and move on if you don't like my opinion.
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Thanks Lalbadshah, totally understand where you're coming from. I feel mostly the same way, except that I would put the "threshold" so to speak at around 5'8" or so, beyond which additional height will not bring you more success with whatever you think it will help you with.
I'm planning to do my LL sometime soon, hopefully in a month or so with either Mahboubian or Debiprasad. Looking forward to your videos and more updates soon!!
PS I'm about 5'5.5" myself, and I'm hoping that with this surgery I can get to roughly 5'8" which to me would be more than enough
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continuation -
I see many discussions on what is more important - PT, walking, supplements etc. and also on weather too much walking is good or bad and whether pe-op stretching is useful and how much.
I think Physical Therapy (post surgery) is absolutely the most important thing - by far. You should put 100% focus on this this is what will get you back to being on your feet and walking.
Next, walking - it is important for sure, but walking like many miles a day kind of extreme walking is of no use, keep it in reasonable limit. ask your PT.
Food/supplements are important - in addition to what doctor recommends ensure proper vitamin, protein and calcium intake and you should be fine, also use healthy food like fruits and can also use unhealthy foods like Pizza, fries etc. Just don't drink alcohol and do not smoke.
Pre-op stretching is good but overdoing it will not give you much extra edge, that is my opinion.
One thing - I believe (pre-op) increasing your ability to tolerate pain and doing weight training, muscle building will be very useful.
I will be busy fr next 1-2 weeks so will post more later.
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Thanks Lalbadshah, totally understand where you're coming from. I feel mostly the same way, except that I would put the "threshold" so to speak at around 5'8" or so, beyond which additional height will not bring you more success with whatever you think it will help you with.
I'm planning to do my LL sometime soon, hopefully in a month or so with either Mahboubian or Debiprasad. Looking forward to your videos and more updates soon!!
PS I'm about 5'5.5" myself, and I'm hoping that with this surgery I can get to roughly 5'8" which to me would be more than enough
+1 and thumbs up, your plan sounds perfect to me
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Update: bought a cane from walgreens last night and today I have walked a lot using the cane (including while at physiotherapy), the physiotherapist has told me to use more of the cane and less of the walker, will do so now, my goal is to move to cane 100% by this Sunday (8/11), will keep the walker reserved for grocery shopping. There are 2 drawbacks - i) not as strong and safe feeling as walker and ii) you will get exhausted sooner compared to walker. But with more practice I think I will get over these problems.
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Update: bought a cane from walgreens last night and today I have walked a lot using the cane (including while at physiotherapy), the physiotherapist has told me to use more of the cane and less of the walker, will do so now, my goal is to move to cane 100% by this Sunday (8/11), will keep the walker reserved for grocery shopping. There are 2 drawbacks - i) not as strong and safe feeling as walker and ii) you will get exhausted sooner compared to walker. But with more practice I think I will get over these problems.
Niiiiice bro! You're doing great lol ! hope to be catching up soon to your level, you're moving fast, I'm glad !
god bless bro talk to you soon
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Niiiiice bro! You're doing great lol ! hope to be catching up soon to your level, you're moving fast, I'm glad !
god bless bro talk to you soon
Thanks bro, yes giving it my best and have been blessed enough to have it go problem free till now, you will rock I know, all the best buddy, keenly following your diary, cheers
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Update: bought a cane from walgreens last night and today I have walked a lot using the cane (including while at physiotherapy), the physiotherapist has told me to use more of the cane and less of the walker, will do so now, my goal is to move to cane 100% by this Sunday (8/11), will keep the walker reserved for grocery shopping. There are 2 drawbacks - i) not as strong and safe feeling as walker and ii) you will get exhausted sooner compared to walker. But with more practice I think I will get over these problems.
Great job buddy!
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Thank you Simon.
Friends, tomorrow (8/8) is my first post surgery check up visit (where the doctor will examine my X-rays, walk, gait, incisions etc.) and if cleared by doctor I will be all set to fly back to San Jose on 8/11 evening. My recovery, pain, PT, scar all looking good but since I don't know hoe callus formation is going on, I am a bit anxious (though I am sure since everything is going fine callus must also be doing fine I guess , lets see). Wis me luck and your est wishes plz. Thanks.
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Thank you Simon.
Friends, tomorrow (8/8) is my first post surgery check up visit (where the doctor will examine my X-rays, walk, gait, incisions etc.) and if cleared by doctor I will be all set to fly back to San Jose on 8/11 evening. My recovery, pain, PT, scar all looking good but since I don't know hoe callus formation is going on, I am a bit anxious (though I am sure since everything is going fine callus must also be doing fine I guess , lets see). Wis me luck and your est wishes plz. Thanks.
Best of luck bro! your progress is going great, hope to be where you are right now in a couple weeks
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Thank you Simon.
Friends, tomorrow (8/8) is my first post surgery check up visit (where the doctor will examine my X-rays, walk, gait, incisions etc.) and if cleared by doctor I will be all set to fly back to San Jose on 8/11 evening. My recovery, pain, PT, scar all looking good but since I don't know hoe callus formation is going on, I am a bit anxious (though I am sure since everything is going fine callus must also be doing fine I guess , lets see). Wis me luck and your est wishes plz. Thanks.
Yes - good luck buddy - hopefully all fine!
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What is the cost for your surgery Lalbadshah
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What is the cost for your surgery Lalbadshah
check out the website http://www.limbplastx.com/index.html, they have all details including the costs there, but if you decide not to do the whole PT (which was the case for me, since I had to be back to work after 3 weeks) then they will give you rebate on that based on pro rated basis I believe ( I did get discount because I did not do all PTs that are part of the package).
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had my consultation today, Dr. D and Ronnie both confirmed that the X-rays look ok/normal and no red flag at this point and Dr. D gave me green signal to go back to San Jose this Sunday as planned and lengthen and do PT from there. All the office staff seemed impressed and happy that I am using cane now for all my walking (3 weeks post surgery) Next in person consultation ha been set after 3 weeks. My plan is to keep using cane to go to office (parking to my desk is walk-able distance so I don't anticipate issues, also I know a colleague who does use cane). I will use my walker (all wheel, with a bag/storage kind of thing bought from Amazon) when I go to target or Walmart to buy my groceries. Next update will be from California, bye till then. Now, challenge i is find a PT quickly near my place in San Jose/Milpitas.
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That's amazing Lalbadshah! Have you considered how you're goin to explain to your colleagues what happened, when they see you with a cane? And surely they're goin to notice you getting taller and taller over the coming months too!
Anyway, wishing you a speedy recovery and looking forward to any videos as well that you might care to share. Cheers!
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That's amazing Lalbadshah! Have you considered how you're goin to explain to your colleagues what happened, when they see you with a cane? And surely they're goin to notice you getting taller and taller over the coming months too!
Anyway, wishing you a speedy recovery and looking forward to any videos as well that you might care to share. Cheers!
good question - yes - all has been thought of -
1. I had already started a rumor (before taking leave for LL, which I of course did not say is for LL, I took normal vacation that I was entitled to) that I may have some bone problem/issue (nothing more nothing less, just a word out there so that when I come back with can I can say that I got the bone issue fixed while also taking a vacation and the cane is for support due to the minor bone surgery).
2. I always wear lifts (2.5") - so - initially when I go - they will notice I am shorter - but because my gait will be bad they will be confused anyway - even if with the bad gait with cane if they notice I am shorter I will blame it on my gait/posture. then gradually the height will increase and become nearer to my with lift height and there will be no need for explanation (because my aim is 3 inch and the lifts I used to wear is 2.5 inch, very similar).
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Found a PT near my home/work location (San Jose), wit help from my friend/brother (doctor D's awesome assistant) Ronnie. I start my PT there Monday, same day I join back work/office. Glad things are moving as planned and well, now waiting for around 60-70 more days to pass (Until I attain my final height and stop distracting), then I will feel like the shawshank redemption poster moment (where the guy crosses the half mile long tunnel to reach freedom). Though one thing I must say - the more strength, mobility you gain from PT, walking etc. , the more the odds get re-staked up against you with each lengthening session, so it is always you have to push harder and harder as you lengthen more and more. For some who wants to lngthen like 1 inch, the journey would not be very difficult and I would argue they can gain recovery easily an fast, but for someone wanting 3 inches it will be be like many many times more difficult.
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life going on as it has been, am now back to work so will not be posting frequently, very busy, will post more frequently later.
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Hi, Lalbadshah.
You returned to work less than a month after the operation. I think it is amazing.
Previously I posted here that I wanted to go back to work one month after surgery, but most people denied me.
In fact, what is the most difficult thing about postoperative work? Do you feel terrible pain while sitting down?
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Hi, Lalbadshah.
You returned to work less than a month after the operation. I think it is amazing.
Previously I posted here that I wanted to go back to work one month after surgery, but most people denied me.
In fact, what is the most difficult thing about postoperative work? Do you feel terrible pain while sitting down?
I live very near to office, like within half mile, I sometimes go to office for few hours and then work from home for the rest, 1-2 days I work from home only. In my role, as long as you are getting the work done you are good, if work gets affected and people complain or escalate then you are in trouble and after a few warnings you will be fired. I am smart (Ivy league kind smart) and am using my brain to just do as much work such that I do not get in trouble and can keep my job but let me make it VERY VERY clear to you - your post surgery work efficiency will be like 20% of what it used to be and if you are not a rockstar get mentally ready to face trouble and possible firing, also the reason i am working from home a lot is because it is very painful to sit on office chairs for long, you should stand up and walk every 20 minutes. in short, coming back to work 3 weeks post surgery (with stryde) is possible but it is very difficult and your productivity will be down and be prepared to face heat and be fired if you cannot play the game well.
Update: I am doing it (CLL while working) because of some compelling reasons and I would recommend - if you can - ideally you should do CLL after quitting job and then recover and get back to job market - like Purushottam did.
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Update: looking at mirror , even 1 inch makes a difference, those who ask is CLL worth it? answer is "YES".
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I live very near to office, like within half mile, I sometimes go to office for few hours and then work from home for the rest, 1-2 days I work from home only. In my role, as long as you are getting the work done you are good, if work gets affected and people complain or escalate then you are in trouble and after a few warnings you will be fired. I am smart (Ivy league kind smart) and am using my brain to just do as much work such that I do not get in trouble and can keep my job but let me make it VERY VERY clear to you - your post surgery work efficiency will be like 20% of what it used to be and if you are not a rockstar get mentally ready to face trouble and possible firing, also the reason i am working from home a lot is because it is very painful to sit on office chairs for long, you should stand up and walk every 20 minutes. in short, coming back to work 3 weeks post surgery (with stryde) is possible but it is very difficult and your productivity will be down and be prepared to face heat and be fired if you cannot play the game well.
Update: I am doing it (CLL while working) because of some compelling reasons and I would recommend - if you can - ideally you should do CLL after quitting job and then recover and get back to job market - like Purushottam did.
Thank you for your detailed reply.
It is difficult for me to quit my job, but I want to reduce my work days as much as possible after the operation.
For now, I'm thinking of going back to work about 5 weeks after surgery.
You said you live near work, do you commute by car? Is it possible to commute on foot?
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Thank you for your detailed reply.
It is difficult for me to quit my job, but I want to reduce my work days as much as possible after the operation.
For now, I'm thinking of going back to work about 5 weeks after surgery.
You said you live near work, do you commute by car? Is it possible to commute on foot?
Dude, I am sorry to say you are living in lala land. commute by foot for half mile? even if you are crazy if you try to commute half a mile by foot, next you will be lying on street screaming in pain, even 911 guys with 200 injections on you will not be able to make you revive and you will meet god. my friend you do not understand how serious/complex/painful this surgery is and am sorry to say you do not seem mature enough for me to answer your juvenile/childish questions. I will not answer any more of your questions because I am convinced ( I already had doubt based on some of your earlier questions) that you lack maturity to understand this surgery and the risks, said effects, pains etc. associated. I eel bad that My diary may have encouraged your idiotic thoughts like you can jog to work a few weeks after surgery. I go to work for like 2-3 hours, that also only 2 or 3 days a week (other days I work from home that also I can barely work for 2-3 hours max) that also I take uber, that also I feel so uncomfortable sitting on chair that every few minutes I walk. And I am ale to survive doing that because - i) my manager is in another building and we rarely meet face to face and ii) my past 6 years in this role are hallmark of a legend, I used to work 18-20 hours a day for 5-6 years, people look up to me as a workaholic person so nobody dares bitch/complain about me to my manager or to anybody else because VPs and SVPs know/come to me more than him (my manager) because I had burnt midnight oil for them for years. But now my productivity ( and I am a world topper kind of genius in GRE/GMAT and math olympiad etc.) is so low that I have to tell again and again to my manager that sorry I could not complete the work she ave me 3 day back, I have to tell colleagues sorry i could not do this or that because of leg pain etc. (I could not tell them of LL of course) and these used to be people who were (when I was fit) not 1/10th as good as I was (hell I am the only one with high profile degrees in team, everybody else does not even know how to create a graph in excel), I used to get job offers from senior directors who used to call me saying they want to fire their senior manager and hire me instead wit 30% higher pay, and the same me now am certain that I will either be fired for low performance or else will have to leave because enough damage (because LL related efficiency loss and leave) has been done to my career and it is irreparable to make me prosper here (remember it takes only a few months of really crappy work to strip your rock star status) in the log run. Have you read Fallen774's diary? he had to go to 911 twice and one time he was nearly dead while trying to do LL with work, he tried to take medicine to boost productivity thus screwing up his system. I have accepted that I will perform low for 2 more months and am ready to get fired it it comes to that.
I tried to reasonably explain to you (saying that your efficiency will be 20%, you should expect to be laid off on first opportunity, in fact I already have planned to leave by November, I just want to somehow drag till first week of October, if I get fired earlier fine, I have plab B and C ready) just because I thought you somehow wanted to carry on the job as long as possible while knowing very well that the job will become a side thing and LL WILL become your main life, but now I know you think people are stupid to tell you that it is IMPOSSIBLE to work (in proper sense) and your mind is just selectively reading and interpreting diaries here to suit your plan, first you think you can do LL and go back to work then when people say it is impossible yo say how about 3 wks, then you say how about 5... dude whom are you negotiating with? do whatever you want, it is your life and you have right to plan and play as you wish (like I did)- but don't try to get justification of your plan from other LLers. bye, no more response to you.
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I'm sorry for asking a stupid question.
I saw a video of a person walking with crutches about two weeks after the operation, so I thought that there was a little chance that you could walk to work with crutches.
I expect to reduce my work days to twice a week.
Anyway, thank you for telling me that you are using UBER.
I didn't know about Fallen774, so look for his diary.
I wish you a good recovery.
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I'm sorry for asking a stupid question.
I saw a video of a person walking with crutches about two weeks after the operation, so I thought that there was a little chance that you could walk to work with crutches.
I expect to reduce my work days to twice a week.
Anyway, thank you for telling me that you are using UBER.
I didn't know about Fallen774, so look for his diary.
I wish you a good recovery.
Brother, I really don't know how old are you but I wish I can help/guide you because you seem a bit confused/mistaken. if you want I can pm you my number and you can call me and I can guide you. Watching a video of a guy walking has got nothing to do with what you are expecting. I walk for many many minutes in my room (like 20-30 minutes every day), but I am still in lot of pain, reduced sleep, stiffness , pain medicine, very challenging PT routine, irregular bowel movement etc. LL is very tough on your body, soul, mind and it is so tough that being able ti be productive at work is IMPOSSIBLE, trust me, it is IMPOSSIBLE. you can work but your hours will be so irregular, your output so low, your behavior so unpredictable that your career may end at that job (worst case, fired) or at best case you will be a marked low performer who will be the fall guy in next layoff or promotion cycle. Being fired is most likely. In other words, when you do LL, LL becomes your full time JOB, and you cannot concentrate on any other full time job, part time? maybe. Let me give you another example: when you are inside a ost home o watching a movie where winter snow is falling in a nice forest in finland, snow all round, things seem so beautiful from in there, then if you are made nked and put out there you feels what it feels like. It is still beautiful, but now you also feel the pain part of it the other side of the coin.
Note: I will be busy this week, can talk next week if you want to.
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I understand that you want to warn me strongly about this surgery.
I have some things I can't write here for personal reasons and sent you a PM.
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Lmao Lalbadshah your last couple replies to Maison have made me laugh more than it should have ;D some guys are just not realistic with the process, he probably saw my video of walking in crutches in my 2 week post op vlog update... but I only walked a bit on crutches I wouldn't feel confident walking a lot on them right now let alone go to work if I had a job.. smh
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My honest opinion, having gone through CLL, is that the earliest you can imagine going back to work is 1 month....and even that is VERY early and not a guarantee. You experience so many different types of issues when going through the CLL process and it requires your full attention and resolution effort.
I advise planning 3 months off work, minimum for the most successful and bearable CLL procedure.
The exception to taking off work is to do what I did which is work remotely from home if that is an option. The remote option allowed me to work 4 days after surgery...from my wheelchair at home.
CLL is the most difficult and challenging process that most of us will ever experience in our lifetime by miles and miles. There is nothing like it. Teeeeeeeeeeeeeeeerust me.
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@lalbadshah and @IFS - if someone is working 100% remotely, would you say it's feasible to take the first 3 weeks completely off work, and then resume working remotely? Also my hours are quite flexible, I usually have to put in about 3-4 hours a day tops most days.
I'm hoping this work schedule makes it easier to deal with CLL!
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@lalbadshah and @IFS - if someone is working 100% remotely, would you say it's feasible to take the first 3 weeks completely off work, and then resume working remotely? Also my hours are quite flexible, I usually have to put in about 3-4 hours a day tops most days.
I'm hoping this work schedule makes it easier to deal with CLL!
Hi JsElysianEagle,
That would be an even more ideal schedule. The hardest weeks for CLL are week 1 - 3. If you are able to focus on CLL for the first 3 weeks and then work remotely after that; then you are providing for yourself, the opportunity to have a much more comfortable CLL experience.
In my case, I started to work at my computer desk with my wheelchair on the first Monday after my Surgery. I would take frequent breaks of course and my team knew I was during some kind of surgery/procedure ( I did not disclose the CLL specifics). Working remotely, helped me pass time even only a few days post-surgery.
With that said; IF you are able to take the first 3 weeks off work and then focus on remote work after; you're really doing your mind and body a favor. I could not imagine working at my office for 1-month post CLL... I felt very much like a patient of CLL, up until the end of my lengthening. The first Monday, post lengthening, I returned to work with Crutches for the first 2 weeks, then cane during the 3rd week. Around the 2nd-month post lengthening, I shed the cane but still brought it along for long walks. I would argue that my recovery in terms of assisted devices took a bit longer than some on here, but I always opted for safety and comfort through the CLL situation vs getting back to walking right away.
Let me know if you have any further questions!
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Thanks IFS, as always you're a BIG help! I hope you stick around here as I'm goin to be undergoing this very soon myself with Dr M
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@lalbadshah and @IFS - if someone is working 100% remotely, would you say it's feasible to take the first 3 weeks completely off work, and then resume working remotely? Also my hours are quite flexible, I usually have to put in about 3-4 hours a day tops most days.
I'm hoping this work schedule makes it easier to deal with CLL!
working remotely, flexible hours and putting in 3-4 hours a day - YES definitely possible.
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I agree 100% wit tho who say that the worst actually (in a way, not in every sense) comes after you have gained 3 cms or so. It is true that you are able to walk (though funny) and walk long with cane and walker but your thighs are probably the tightest now and the muscles probably at the worst shape, you start to get new kind of pains etc. for me things were smooth until 4 days back when I started having this weird pain in certain muscles that only comes when I am trying to get down from bed, chair or car and in some other similar situations, it was initially confined in like two areas of 1 inch size muscles on left femur's side skin but today I got same thing in (addition) on the muscle on my right side of my right leg's kneecap as well, I not being a native speaker of English do not know how best to describe a very peculiar kind of pain (Ronnie and my PT asked me to describe ad gave hints for me to describe it but I still struggled to describe, then my PT suggested why not I search the forum and ask around/see if it is something already known, the PT doctor also feels that it is just the result of normal muscle weakness because of stretching) but it is like two-three 1 inch small alien muscle type creatures entered your thigh and whenever you move like get down frm car, bed etc or turn they give you burn and electric current shock for a second and twitch for a second as if they are different then rest of your body/muscles, they act only when I am getting down from car, bed, chair etc./b] , while the level is not 10, it is definitely 7, but bearable because it lasts less than a second (which is the good thing). My next consultation with Dr. D is on 8/29 and I will definitely spend most of the time discussing this with him, I am also wondering whether I should try to pull in the visit. I will also pay visit to my las vegas PT Alex (she was awesome) to say hello to her, to get some stretching from her (man her stretching service is awesome, when she stretches your legs you feel so good, you feel like you are in heaven and an angel is stretching you and she is as sweet looking and kind mannered as an angel) and to get her opinion as well on the muscle burn/electric kind of sensation pain thing (of course I will offer her and her agency adequate consultation fee). Also, in view of this I am thinking of stopping PT for 2-3 days because - i) I have been doing PT from 3 wks non stop, 2 wks in vegas 1 wk here ii) I have a doubt that this pain may be a result of some exercise fatigue (?) iii) will get more time to sleep and heal ( had been doing lot of PT and walking lately) which may help the situation. Any input/thought/advice would be appreciated?
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Friends, at last - after spending hours on research and discussion at last apparently (it seems) I have been able to figure out about what is going on about the burning/shock kind pains in specific muscles. It seems what my PT doctor (not PT instructor but the doctor who runs PT facility) had predicted is true and it is just cramps , resulting from weakened (stretched and overused) muscles, since I have been lengthening 1mm a day, doing almost 1.5 hr PT a day and walking some amount each day the total strain might have been too much for some muscles. Anyway from my research it seems this is something all LL'ers go through and I hope/it seems it passes with time in most cases (and does not become serious issue it seems), as of now in my case it is shifting rapidly from one area to another, it started 3 days back on left thigh, now it is almost gone from there (earlier it was happening 15 times a day there, now only 1-2 times today) and is now on the left side muscles of right leg's knee cap (started with 1-2 times a day to now happening 15-16 times a day, almost whenever I try to make moves like getting down, up from car, bed, chair etc). I look forward to 8/29 to get confirmation on this from dr. D during my next consultation and really hope that my finding is true and it is just a normal/no big issue. Keeping fingers crossed. Feel free to chime in/comment, any insight is appreciated.
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lalbadshah - thanks for the continued updates! i am sure even if people don't immediately respond many are reading and digesting the valuable information you're sharing as you make your way to your goal.
hang in there - i'm sure you will pull through the pain and be past this very soon!
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Thanks elysian eagle, (I) hope so.
The muscle cramp issue on right leg knee cap is becoming the biggest challenge that I have faced so far in my 7 week's journey. I just woke up with immense pain and soreness on the right kneecap. It was so severe pain, that when I woke up I was pretty sure there will be blood all around and I may call 911 or check into emergency, but guess what? there was nothing, not even a swollen knee cap. no discoloration, redness or anything odd at all!! Visibly it is as good as it has always looked but inside there is pain (though normally only like 3.5/4 level if you are not doing any activity, at times even lower like 1.5/2) but when you do any activity that make the muscles move the pain reaches 9/10 (for anything that requires movement of muscles around kneecap, like getting down from bed, putting on shoes, getting down from car, moving leg in some ways that require those muscles to move), the feeling is like those muscles are tearing/breaking apart and dripping blood (I literally feel like blood drops falling inside !!) but from outside you see nothing at all, looks perfectly normal!!!, god knows what is going on inside actually and why in this specific 2 inch radius muscles/area (on left side of right knee cap). I still think it is a cramp that all LLers experience but surprisingly it seems not more tan 2 people (besides me) have written about it, maybe for them other issues had become bigger concerns and for me this is biggest one (now at least). I have bought a pain relieving gel patch pack today in case the pain just becomes too unbearable, though my intention is to fight it out for now and wait for my appointment with Dr. D on 8/29, though I will text Ronnie asking him to text the doctor for a quick check/opinion beforehand (by text) if possible. Note: everything else is going fine, PT, eating, walking and btw the kneecap pain does not appear when I am walking maybe because at that time the problematic muscles are not involved(per my PT doctor 's opinion -that is the case).
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one note; I just realized tat in an earlier post by mistake I wrote the problem muscles/veins as right side of right knee cap but let me correct it - the problematic muscles are actually the left side of right knee cap. right side muscles of that kneecap are acting fine without any problem.
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update: Ronnie being as quick and helpful as he is , as soon as I texted him my concern on the high pain cramp on right knee cap, he relayed my message to doctor D and dr D recommended that I reduce lengthening to 1 session (.33 mm) a day until I see him on 8/29. I know some other patients (with diaries here) have benefited from reduced lengthening when they faced huge adversities, so I hope in my case also it will be helpful, keeping fingers crossed.
I have decided not to reduce PT or walking , initially I thought maybe I should but I decided not to, lets see how reduced lengthening affects, if still problem persists I may reduce PT and walking for a couple of days to see the effect. I had increased my sleep to almost 10 hours yesterday (from usual 6) but it did not really help the situation much.
I am at almost 33mm and this is the first time in my journey that I am really being tested by very high pain (which interestingly/unfortunately is nerve pain and that also on kneecap and only occurring in a 2 inch area for only a few seconds a day during only a few/certain type of leg movements, but the sheer brutality/severity of it is what is intolerable, making me cry). Thing were so much smoother until now, feeling so bad and sad....if this thing goes away I may actually stop at 51 mm (2 inch) though my original plan was to do 60 or if possible 65. because I want my journey to be smooth and easy without too many nerve wrecking or brutal experiences/memories (and anyway I will do tibia as well after 1.5 years, ideally 50mm or at least 45mm if things go rough), god please give me at least 18 more good days to gain 18 mm more, plz....
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Hi Lalbadshah
I am quite certain that reducing lengthening will help you reduce the pain. Pretty much all kind of the pains LLers may experience come from the lengthening of muscles and nerves. Reducing or even stopping lengthening until you feel better is the best way to save you from the pain. I also experienced some pains or unbearable tightness during lengthening so I reduced lengthening until I felt better and then resumed the lengthening until my goal was achieved.
I also think you may not have enough stretches in your knees. Although you are lengthening femurs, all muscles and nerves are connected to the lower part of legs through knees. Walking or hamstring stretches can't efficiently stretch muscles nearby knees. Sit the edge of bed and kick and bend your knees as much as you can. Lie on your stomach on the bed and bend your knees as much as you can. If someone can push your knees to bend, that would be more effective.
You will be fine. So don't worry too much now. Just reduce the lengthening until you feel better (don't feel too bad about reducing the lengthening rate. As long as you get what you want, that is all that matters.). Stretch more on your knees.
ps: I also think it is better to stretch more often at the relatively tolerable intensity rather than a few times with a high intensity.
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Hi Lalbadshah
I am quite certain that reducing lengthening will help you reduce the pain. Pretty much all kind of the pains LLers may experience come from the lengthening of muscles and nerves. Reducing or even stopping lengthening until you feel better is the best way to save you from the pain. I also experienced some pains or unbearable tightness during lengthening so I reduced lengthening until I felt better and then resumed the lengthening until my goal was achieved.
I also think you may not have enough stretches in your knees. Although you are lengthening femurs, all muscles and nerves are connected to the lower part of legs through knees. Walking or hamstring stretches can't efficiently stretch muscles nearby knees. Sit the edge of bed and kick and bend your knees as much as you can. Lie on your stomach on the bed and bend your knees as much as you can. If someone can push your knees to bend, that would be more effective.
You will be fine. So don't worry too much now. Just reduce the lengthening until you feel better (don't feel too bad about reducing the lengthening rate. As long as you get what you want, that is all that matters.). Stretch more on your knees.
ps: I also think it is better to stretch more often at the relatively tolerable intensity rather than a few times with a high intensity.
Thanks ghostfish for your kind help you are a good person, what you wrote made me think and ( being a person with high IQ) I could connect the dots , what u say makes sense - after coming back from las vegas, I have stopped stretching knees, my current PT (I am his first ever ll case) has been more focused on making my tibia/lower part stronger so that no matter how weak (due to stretching) femur becomes I can walk, but he neglected the lower part stretching , I tried to do it at home one day (because my Las Vegas PT had told me to do so) but failed because with the band (i bought from Amazon) I could not properly get hold of my feet wit it ( and am alone so could not find anybody to help). now, today i have already started doing what you recommended and I will also straightway tell my PT to help me do the knee stretching , in the past I had mildly asked why he is not doing it and he said the PT doctor (head of the PT center) wants to focus on building knee strength first, but today I have decided this time it will not be a request from me, today it will be an order (to stretch knees). Also, though my post-op visit is on 8/29 with dr. D, I have extended my visit to las vegas to 6 days just to get 6 days of PT from my awesome PT who was giving me PT there. Thanks for thinking about a fellow LLer's problems and offering help.
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Sounds great! I can see you become more positive already! That is very important. During LL journey, most of ppl will go through some depression, regret,
unbearable pain, or other difficulties. Staying positive is very important. You will feel much better after reducing lengthening and stretching more including knees. It will take only several days.
Stay strong!
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Thanks Ghostfish, I sent you a pm can you check?
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Update: my PT doctor does not agree that the exercises suggested by ghostfish (btw these same exercises were also part of my previous last vegas PT's recommended exercises) here will help, he says that will make it worse, his opinion is I just have to survive this until it goes away on its own and he thinks stretching is actually counterproductive in initial stages of LL, in his opinion it (stretching) comes into play after you stop lengthening (and he gave some real solid logical explanation). So, now I am in BIG dilemma.
I have worked with 2 PTs and I cannot say any PT is bad because to speak the truth I have been and am doing fine under both PTs. one PT was was heavy on stretching (though also involved some strength building exercises) and my current PT is heavy on strength building on both upper body and knees (though also involves some stretching like touching the nose to table by bending etc.). The only point where both agree is - walking is good which I am doing a lot. what I want to see if which approach makes my LL journey easier. My immediate priority is to find some way to recover from this hellish pain, it is only momentary , comes for a few seconds every time I make certain moves that involve right knee cap movement, it is so severe and brutal that I, who sometimes stays without pain medication for 20 hours (yes I did it and still could take the pain), never cried during last 35 days, have been crying when this pain hits me. I have already slowed down to 1 lengthening, no improvement yet, lets see if anything hppens in next 2-3 days. My current PT says it will go on its own with reduced lengthening no stretching needed and Ghostfish says stretching has something to do with it. so, good thing is starting from 8/28 to 2/9 I will be in vegas and will work with my earlier PT. Her PT was heavy on stretching - so I will be able to see how the vegas PT approach on my case. Last but not least - I would like to see what input dr D gives (besides reducing clicking). I am ok to survive the hell for 5-6 more days (has been 3-4 days already), but I do not buy the theory that it will eventually go away (eventually = 1 month, 1 year, 1000 years? when), so after 5-6 days from now if the pain does not go away or at least give sign of reducing - I will go to hospital emergency room and admit myself and cry and yell asking them to fix me ;), because I believe there is cure for everything.
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Hello.
I was wondering if you practice bodybuilding before undergoingg this operation. I heard that practice bodybuilding and including leg strength regularly before the operation was a good way to get through the pain during ll.
And did you consider the possibility using this kind of electrostimulation device to deeply relax your muscles.
Or avoid it because you have an electromagnetic device in your legs.
Thanks and stay strong. All the best for your journey.
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https://www.google.com/search?q=compex&client=ms-android-wiko-rev2&prmd=sivn&source=lnms&tbm=isch&sa=X&ved=2ahUKEwi95IT946LkAhUDQxUIHYn5C0kQ_AUoAnoECA8QAg&biw=360&bih=592#imgrc=cy0gv4p5lE5MpM
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Update: my PT doctor does not agree that the exercises suggested by ghostfish (btw these same exercises were also part of my previous last vegas PT's recommended exercises) here will help, he says that will make it worse, his opinion is I just have to survive this until it goes away on its own and he thinks stretching is actually counterproductive in initial stages of LL, in his opinion it (stretching) comes into play after you stop lengthening (and he gave some real solid logical explanation). So, now I am in BIG dilemma.
I have worked with 2 PTs and I cannot say any PT is bad because to speak the truth I have been and am doing fine under both PTs. one PT was was heavy on stretching (though also involved some strength building exercises) and my current PT is heavy on strength building on both upper body and knees (though also involves some stretching like touching the nose to table by bending etc.). The only point where both agree is - walking is good which I am doing a lot. what I want to see if which approach makes my LL journey easier. My immediate priority is to find some way to recover from this hellish pain, it is only momentary , comes for a few seconds every time I make certain moves that involve right knee cap movement, it is so severe and brutal that I, who sometimes stays without pain medication for 20 hours (yes I did it and still could take the pain), never cried during last 35 days, have been crying when this pain hits me. I have already slowed down to 1 lengthening, no improvement yet, lets see if anything hppens in next 2-3 days. My current PT says it will go on its own with reduced lengthening no stretching needed and Ghostfish says stretching has something to do with it. so, good thing is starting from 8/28 to 2/9 I will be in vegas and will work with my earlier PT. Her PT was heavy on stretching - so I will be able to see how the vegas PT approach on my case. Last but not least - I would like to see what input dr D gives (besides reducing clicking). I am ok to survive the hell for 5-6 more days (has been 3-4 days already), but I do not buy the theory that it will eventually go away (eventually = 1 month, 1 year, 1000 years? when), so after 5-6 days from now if the pain does not go away or at least give sign of reducing - I will go to hospital emergency room and admit myself and cry and yell asking them to fix me ;), because I believe there is cure for everything.
Hi Lalbadshah
I read your pm. I think your current PT is wrong at least to some extent, since he has had experienced LL patients before you. Focusing on building muscles or strength on the upper body is completely irrelevant to CLL, unless you really want to build your upper body muscle, which you can do it later anyway. Building strength on your knees or legs could be helpful down the road. I am quite certain your pain comes from the tightness of nerve or muscle. Reducing the lengthening is the best to relax this tightness and the stretch is the second best way to loosen tightness. But do not overdo stretching especially when you have pain. Anyway, it is a dilemma for you due to different opinions between the two PTs. But you need to know the PT in Las Vegas knows what is CLL and has worked for many LL patients.
No matter what, stay strong and positive. You will be fine. Your pain will be better as time goes by, as long as your problem arises from the tightness.
Good luck!
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update: i followed my instinct and did the stretching (the knee stretching recommended by ghostfish and that my old PT used to make me do) and also reduced lengthening to once a day and my situation is getting better, 10/10 pain came only 2 times (unlike 14-15 times on other days) today , but other times I am feeling like a 3.5/10 constant pain on knee cap (which was earlier not there), still this situation is better than earlier, so I will keep stretching and doing only one lengthening - for nxt 4-5 days, and I hope by then it is sorted/resolved.
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Update: in Las Vegas now, interestingly my las vegas PT also agrees with my San Jose PT and she also believes (unlike Ghostfish's opinion) that stretching has got noting to do with this knee cap pain issue (and at this point nobody has any explanation on reason of this pain). Though just like ghostfish's opinion she also feels I need to focus more on stretching for my tightness etc issues and we started new exercises for stretching to reduce thigh tightness and my penguin/duck kind of walk. I am and will wok on stretching but that is not what is stopping me from progressing further, it is the knee cap pain issue, anyway good news is it seems I am not the only one who experienced this issue, there are/were 3 current/past patients she has seen who had/are having experienced it and it seems in most (or maybe all) the right leg is the one giving the trouble (similar to my case), from what I understand they are also under reduced lengthening now and experiencing improvements. Anyway, the reduced clicking seems to be the only opinion all have and it seems to be working as of now, today I had no 10/10 pain at all, though there were many 5/10 burning sensation pains on right knee cap and muscles around especially during the the 1 hour plane journey , but things are improving for sure - my only worry is I hope it does not take too long to get resolved because I would like to go back to normal business (1mm a day) in next 4-5 days at least. Tomorrow I see Dr. D , lets see if he recommends anything else besides waiting out (with reduced lengthening) until this is completely gone. that aside, I started some new kind of PTs with the las vegas PT today, very interesting ones :). Btw, I think in next 2 weeks I will be able to walk up stairs, the way my strength is building up (walking down I already can). Note: firs time in my LL journey i used heat therapy (recommended by PT) today and it worked very well, so advice for all - heat therapy/pad may work in pain situations, try it.
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This is a pretty brave experience. Doing LL by yourself and going to work in 3 weeks. It will be amazing to pull this off.
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Update: had my post op consult today with dr. D and staff. We all agreed that for the knee cap nerve pain I will keep doing one lengthening a day for 3-4 more days and hope issue get resolved completely. If issue gets resolved completely then I will g back to 1 mm a day else if some issue still remains then I will do 2 sessions (.66 mm) a day. One session a day is not a long term solution because - i) consolidation will happen before reaching target height and ii) I dont want to drag LL things too long in my life , want to move on asap.
Good thing is that by ERC machine I am already 33 mm taller, by Ronnie's assessment based on X-ray around 40mm, so I will say my guess is I should be 35mm taller at least already, so - my plan is - i) if I go back to 1 MM then I will keep pushing for my target 65mm or at least 60mm but ii) if I reduce to 2 sessions (.66mm) I may actually shoot for only 15 mm more (total 2 inches), because before I started my jorney I new I wanted ideally 6.5 cm but will be content with 5.1 cm (2 inch) if things go tough. And anyway my aim was never to go huge on one segment but to do like 2.5 inches on femur and 2 inch on tibia. So. as long as I reach near to that I am ok, I want a few inches but nit make LL a BIG part/journey of my life. like 2 small phases (in life) of a few months each giving me like 2 inches, that is what I want.
yes Cena, it is difficult to do it alone, not impossible , but yes i agree it would be a new feat somebody doing it without any friend/family member/girlfriend support involved at all.
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Great diary Lalbadshah.
I have some questions can you answer what you are comfortable with?
1 How do you sit and get up from the toilet? Do you use a walker for support?
2 How have colleagues and managers reacted to your disability?
3 How do you get around in airport for walking long distances? Do you opt for wheelchair?
4 How do you carry backpack along with crutches or walker while walking to office from uber? you had asked this question but you did not tell how you resolved it.
5 what is the hardest thing you find to do on daily basis because of LL?
thank you
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Great diary Lalbadshah.
I have some questions can you answer what you are comfortable with?
1 How do you sit and get up from the toilet? Do you use a walker for support?
2 How have colleagues and managers reacted to your disability?
3 How do you get around in airport for walking long distances? Do you opt for wheelchair?
4 How do you carry backpack along with crutches or walker while walking to office from uber? you had asked this question but you did not tell how you resolved it.
5 what is the hardest thing you find to do on daily basis because of LL?
thank you
1. initially walker was must to get down up but now i am strong enough to do so without walker so I have been doing it without walker or cane, BUT - it was a mistake, I have started using cane while sitting down up toilet again because once or twice I got too confident that I did it (sitting down/up on commode) so fast/rapidly that the jerk ended up giving pain to my hip so I use cane and do it nice and easy.
2. I have told only 2 ppl (they have sworn to keep it a secret) abt it in office(it was a mistake because one guy reacted very negatively like why did you do so to ur leg etc. etc. oter guy was ok, he is cool abt it), others think i have hurt my leg somehow (and I never corrected their guess, neither affirmed I just give vague answer like yeah it is complicated, and nobody asks anything more).
3. for long distance like huge airports, yes i use wheelchair.
4. i keep backpack light. i use cane now, not crutches but even with walker or crutches u can carry backpack, as long as it is not very heavy and as long as ur back is strong enough - mine is.
5. everything is hard but hardest things are - i) the brutal pain i am getting on my right knee cap nerve, that comes at few/some times not always but when it comes it makes me cry/yell, and there is nothing we can do about it, there is no medicine for this nerve pain so u just keep suffering ii) sitting - for me this is the most difficult part of daily life, as soon as yo seat your ass/hip is in pain - the harder the surface the more the pain, the longer u sit the more it gets, in fact on a commode if you seat for like 30 minutes you will literally start crying in pain, even sitting on comfy chair for 30 minutes straight is difficult iii) decreased productivity - ur productivity at work will suffer so u become like weak member of team (in these cases your past achievements can save you, it is like if messi plays bad for 20 games he will still not be fired), so do LL only after u have established reputation for urself, if you re new member and start LL ur low productivity will make u prime target for layoff. for me actually, it seems my manger thought i am slacking bcoz i am looking (for other jobs :)) so he ended up giving me higher bonus, lol but again this is bcoz of what I have done in last 5.5 years iv)carrying on the journey - when u think back hoe easy life was and what u have made of it, it is very easy to want to end it sooner, you may get thoughts to stop early, for example i wanted 2.5 inches but i am pretty sure i will stop at 2 now because I want to get back to normal life sooner even if that means stopping earlier than what u aimed for. These have been my biggest challenges.
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Hang in there, Lalbadshah! I also had to reduce lengthening during my journey due to pain. Moving down to 2 sessions a day was something I initially resisted - for the same reasons as yourself. I didn't want to drag the process on longer than it had to be. But, it solved all of my pain issues. It took maybe a week for me to start noticing the reduced pain, and it seems from your diary you're starting to notice improvement.
You'll make it. In the grand scheme of things, an extra few weeks of lengthening makes no difference. Suffering the pain you described every day just isn't worth it to save a little bit of time.
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Hang in there, Lalbadshah! I also had to reduce lengthening during my journey due to pain. Moving down to 2 sessions a day was something I initially resisted - for the same reasons as yourself. I didn't want to drag the process on longer than it had to be. But, it solved all of my pain issues. It took maybe a week for me to start noticing the reduced pain, and it seems from your diary you're starting to notice improvement.
You'll make it. In the grand scheme of things, an extra few weeks of lengthening makes no difference. Suffering the pain you described every day just isn't worth it to save a little bit of time.
You are right, I had reduced to 1 click a day for 4 days and now after noticing some improvement I am trying 2 clicks a day (otherwise it will be too mate for me to accomplish my goal), I plan to continue 2 click for another weeks or 10 days and then try to go to 1mm a day, if needed I am even ok doing rest if my journey with 2 sessions a day. The truth is some kind of pain or issue is part and parcel of the journey and nobody is going to have a perfectly smooth ride from beginning to end. I will call you sometime man, it has been sometime we talked on phone, lets talk again sometime.
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My thought on walking -
I wanted to share my thought on walking. The reason being - before doing LL I had read conflicting things in this forum on whether walking during LL is good or bad. My personal opinion and observation is - walking is good and in fact necessary (else you may become like vegetable and may have bad side effects) but at the same time I think it is important not to get overenthusiastic and walk too much everyday. With the power of stryde it is easy to abuse it by walking too much. I think walking too much may actually affect healing process adversely and put unnecessary strain on your body. This is my theory. Now if you ask how much is too much? I have no definite answer. I will say too much = what normally you would not do. just because you think walking will help you recover faster (this is prevalent opinion and I am not saying it is right or wrong, that is not what I am discussing here) do not go for like 4-5 sessions of long walks during the day, which normally (when you were not doing LL) yo would not do. Just keep it normal, walk just as much as you would walk normally (pre-LL). Again, this is my personal opinion, not a medical advice, I am not a doctor :)
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My thought on walking -
I wanted to share my thought on walking. The reason being - before doing LL I had read conflicting things in this forum on whether walking during LL is good or bad. My personal opinion and observation is - walking is good and in fact necessary (else you may become like vegetable and may have bad side effects) but at the same time I think it is important not to get overenthusiastic and walk too much everyday. With the power of stryde it is easy to abuse it by walking too much. I think walking too much may actually affect healing process adversely and put unnecessary strain on your body. This is my theory. Now if you ask how much is too much? I have no definite answer. I will say too much = what normally you would not do. just because you think walking will help you recover faster (this is prevalent opinion and I am not saying it is right or wrong, that is not what I am discussing here) do not go for like 4-5 sessions of long walks during the day, which normally (when you were not doing LL) yo would not do. Just keep it normal, walk just as much as you would walk normally (pre-LL). Again, this is my personal opinion, not a medical advice, I am not a doctor :)
I absolutely agree with you on walking. In general, walking is good for CLL, because walking can stretch your muscle, keep muscle strength, help bone grow, and keep you from being depressed during CLL. However, overdoing it may cause adverse effects such as pain, exhaustion, or inflammation. Listen to your body, since everybody is different.
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I absolutely agree with you on walking. In general, walking is good for CLL, because walking can stretch your muscle, keep muscle strength, help bone grow, and keep you from being depressed during CLL. However, overdoing it may cause adverse effects such as pain, exhaustion, or inflammation. Listen to your body, since everybody is different.
Agree 100%
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Updates:
1. The pain situation has improved a lot, now the pain is like very low so I am back to 1mm from today, did .66mm yesterday and today back to 1 mm
2. I found a trick, handle your feet/leg etc gently/softly like in womanly manner and the pain level will be much much lower, the rougher/tougher you wanna play (with any kind of pain on body) the great hit-back you get
3. I will be very busy next 6 days so dont expect any update on diary
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@lalbadshah - glad to hear you pulled through and have been able to resume the normal pace of lengthening! keep at it, it will be over soon :-)
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@lalbadshah - glad to hear you pulled through and have been able to resume the normal pace of lengthening! keep at it, it will be over soon :-)
yes man, I hope so
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Are you able to pitch into http://www.limblengtheningforum.com/index.php?topic=64338.msg165617#msg165617
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Are you able to pitch into http://www.limblengtheningforum.com/index.php?topic=64338.msg165617#msg165617
I worked for long and saved more than enough, simple. I did not felt so urgncy to do it immediately with loan.
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reached 40mm on machine, so I guess 41 mm in actual (1mm is the gap by which bines are separated when surgery is done I guess?), so 10 more days to go for reaching 51mm. I may stop lengthening at 51mm (2 inches), because after that I want to devote myself 100% to a career move I am making in my life. Only one hindrance at this point - earlier there was some pain on left knee joint/cap, now today I am getting stronger similar pain in left joint/cap, this is the first time I am having any kind of pain in my left leg. I took hotpack and feeling better, hopefully it is one off incident and will go away. 10 more days and I am done :) then focus will be to recover very fast to normal.
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or I may go to max 55 mm, lets see, my target is to stop by around 20th of this month and then focus completely on very fast recovery
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Try to postpone your new job if possible and necessary. This is a once in a lifetime opportunity. I think new job should not be a reason to stop. Preserving health should be the only valid reason.
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Try to postpone your new job if possible and necessary. This is a once in a lifetime opportunity. I think new job should not be a reason to stop. Preserving health should be the only valid reason.
You mean to say I should aim for 65mm or more (my original aim) and the .5 inch is worth more than the reason of focusing more on a new career that I would be starting soon? I have heard from many LLers that those who stopped at 5 later regretted their decisions and thought they should have aimed for 6.5 to 7 , are you trying to say the same thing?
Note: postponing is not an option at this point, but taking it easy initially (while doing LL for 10 more days) and then focusing harder (when LL gal of 65 is over) is an option and I may think about that option because in a way you (and the other LLers) have a point - why do so much and stop early just for 10 days.
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@lalbadshah - agree that if possible you should definitely try to go all the way at least until 6.5-7 cm. Unless you are 100% certain that you will also be doing surgery for tibias, you should make the most of this opportunity you currently have. Think of all the money you've spent and the effort you've gone through, might as well get the most out of it!
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I would agree that you should go from 6.5 to 7.5cm You are not at risk physically to go this distance and the difference between 2 and 3 inches is a lot. I will forever be grateful to Dr. M for convincing me to keep going to 7.5 cm; when I felt like stopping at around 2 inches.
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thanks all for your valuable input, I will think an decide.
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Yeah that is what I meant.
Hope your new job treats you well!
Can I ask you these questions?
1. Did you (or do you) live alone through LL?
2. If you had some kind of medical problem (like flu or some other bodily infection) what would you do in your state? Do you think you would be able to go by yourself to urgent care or something?
3. Have painkillers caused you any kind of bad effects like drowsiness at work or while walking?
4. Important question - How covered are you with your insurance (from your employer) while doing LL? If you were to freak out and call 911 over some strange nerve pain and they run a bunch of tests would you have to pay out of pocket? If you (God forbid) fracture your nail while walking or climbing down stairs and they needed to replace your nail (not Dr D but some other surgeon near you) would it be covered by insurance? What about normal things like flu? I am asking because insurance providers don't tend to cover problems that arose due to LL. I am sure you would have done ample research as you are a very thorough individual. Please enlighten us.
5. Has LL been more diffcult or easy as per your original expectations?
Thank you!
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Yeah that is what I meant.
Hope your new job treats you well!
Can I ask you these questions?
1. Did you (or do you) live alone through LL?
- yes
2. If you had some kind of medical problem (like flu or some other bodily infection) what would you do in your state? Do you think you would be able to go by yourself to urgent care or something?
- Even I don't know what would I do, I will e screwed for sure with infection while doing LL. I will try to call uber and somehow reach to urgent care or call a friend. if it is emergency like fall down etc. I will dial 911 I think.
3. Have painkillers caused you any kind of bad effects like drowsiness at work or while walking?
- Yes, it is obvious, you should know this already reading diaries,
4. Important question - How covered are you with your insurance (from your employer) while doing LL? If you were to freak out and call 911 over some strange nerve pain and they run a bunch of tests would you have to pay out of pocket? If you (God forbid) fracture your nail while walking or climbing down stairs and they needed to replace your nail (not Dr D but some other surgeon near you) would it be covered by insurance? What about normal things like flu? I am asking because insurance providers don't tend to cover problems that arose due to LL. I am sure you would have done ample research as you are a very thorough individual. Please enlighten us.
- nobody can answer this question clearly, the only way to know is I think to find out when something happens, that is when you will know what insurance will do for you what it will not, it may also depend on many other actors i think ( e.g. kind of insurance, kind of issue faced, state you are n etc). I don' think ANYBODY can answer this question like that in black and white.
5. Has LL been more diffcult or easy as per your original expectations?
- Bcoz I wanted to work while doing this, fallen774 was my baseline. If I compare my experience verus his - mine has been much less physically painful than expected, but more mentally challenging and than expected. He had so many pain challenges 911 call etc things - nothing for me, but work wise I have been unable to do even 10% of my original pre-LL level work and can get fired, I rarely go to office and only do some work from home (I am sure there are rumours/bitching going on) , only think that may save me are - i) my manager is new and my ex manager had given me best performer rating to me before leaving so she may have a chat with me before firing, ii) I had deliberately started doing work from home months before LL so that it becomes normal in people's eyes that even if I am not in office they think I am working from home. But I am ready to get fired if it comes to that, in fact I already have other career plans. I don't know how fallen774 was able to go to work in wheelchair (with precise) and work just like that, maybe it is nature of work, mine is very stressful supply chain management work involves attending/hosting 100s of meetings. callls, 100s of devilries a day, answering 100s of emails a day, his was I believe more of a sole desk job writing code - I don't know - but for me I don't think you can do normal office work while doing LL.
My advice to anybody would be to follow Purushrottam's exmaple. Bring family members with you, it helps. and quit your job, LL is something that you want to devote your 100% to.
Thank you!
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Yet another disappearance? I hope you are alright lalbadshah. I was worried you were doing too much during LL.
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I disappeared because I was busy, would have been back anyway. I had stopped at 2 inches (I wanted to focus on my career more) and am almost consolidated based on my last visit 2 days back to dr. D. I am back here suddenly now because I need urgent input from experienced folks. I had stopped lengthening on 9/22 and from then till now I have had no pain, walking well walking up down stairs etc. now suddenly the day I came back from visit with Dr. D 2 days back, next morning I woke up with unbearable (9/10) pain on joint of right side hip, as the day went by and with pain medicine it was gone and I was walking etc fine but again at night unbearable pain and now I am on bed with high pain. I am wondering what happened on that day (10/9) and these are the list of things that took place - i) for the first time in 80 days I forgot to take my xarelto (blood thinner) in a hurry to catch fight in morning, so had t take it in the evening and have been taking in evening from last 2 days , ii) the security (I chose manual pat down) at airport might have done something because they did too much patting on my thigh, iii) something ele, like x-ray etc. exacerbated something? any idea what might have happened? I will wait till tomorrow and if the pain does not go I will go to local hospital. I just hope it is not blood clot or fat embolism or compartment syndrome or anything of that serious sort.
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and at the VERY beginning of my diary, at the very start I had written that based on my workload and other things, sometimes I will not post anything for weeks and sometimes will post multiple responses in a day, so if you chose to ignore what I declare at the beginning and start making guesses then it is not my fault.
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If I was in your situation I would call and email my doctor first and if he is not available or if he advises it, I would either go to the emergency appointmemt of an orthopedist or to the emergency of a hospital directly.
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Yeah man you should be talking to Debiparshad or Ronnie.
and at the VERY beginning of my diary, at the very start I had written that based on my workload and other things, sometimes I will not post anything for weeks and sometimes will post multiple responses in a day, so if you chose to ignore what I declare at the beginning and start making guesses then it is not my fault.
Okay man chill out. You are right and a man of your word. Happy to see you posting.
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Are you on H1B LalBadshah?
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and at the VERY beginning of my diary, at the very start I had written that based on my workload and other things, sometimes I will not post anything for weeks and sometimes will post multiple responses in a day, so if you chose to ignore what I declare at the beginning and start making guesses then it is not my fault.
Thank you for making this diary, Lalbadshah! How much money in total (including living costs, everything) would you budget to do femur leg lengthening with your doctor?
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My thought on walking -
I wanted to share my thought on walking. The reason being - before doing LL I had read conflicting things in this forum on whether walking during LL is good or bad. My personal opinion and observation is - walking is good and in fact necessary (else you may become like vegetable and may have bad side effects) but at the same time I think it is important not to get overenthusiastic and walk too much everyday. With the power of stryde it is easy to abuse it by walking too much. I think walking too much may actually affect healing process adversely and put unnecessary strain on your body. This is my theory. Now if you ask how much is too much? I have no definite answer. I will say too much = what normally you would not do. just because you think walking will help you recover faster (this is prevalent opinion and I am not saying it is right or wrong, that is not what I am discussing here) do not go for like 4-5 sessions of long walks during the day, which normally (when you were not doing LL) yo would not do. Just keep it normal, walk just as much as you would walk normally (pre-LL). Again, this is my personal opinion, not a medical advice, I am not a doctor :)
For people who do not live near Las Vegas anyway, what do you feel are the biggest advantages of Dr. Debiparshad over Dr. Mahoubian? Thanks!!!
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LL is very tough on your body, soul, mind and it is so tough that being able ti be productive at work is IMPOSSIBLE, trust me, it is IMPOSSIBLE. you can work but your hours will be so irregular, your output so low, your behavior so unpredictable that your career may end at that job (worst case, fired) or at best case you will be a marked low performer who will be the fall guy in next layoff or promotion cycle. Being fired is most likely.
Hey man,
I just wanna add up that not everyone has a high-performance, high-pressure silicon valley job. I totally get your performance suffers as you've described, but so does the performance of employees who got into accidents, have lived throught traumas or lost close relatives or loved ones. Obviously that's different than volunteering to choose LL, but if you can successfully make people believe it was a necessary bone surgery, it might be different. You're in the US, where there's a "hire and fire" policy and employees can be fired for no reason whatsoever. Other countries have stronger worker's protection laws and an employer actually needs a justified reason to let someone go.
It depends on the professional climate one works in and the country one lives in, but there's also companies who value an employee for their work and loyalty and will not fire him if he just had surgery or got sick. Just wanted to chime in on that.
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you are right wannabetaller, my perspective is correct fro my stand point and yours is also right from your point.
Update for all - I had left my job (due to various reasons, not performance related in fact they gave me 200% bonus to keep me :)) and joined a 1 yr masters program in data science in a top school, so that I can - i) shift to data science ii) focus more on PT and have been VERY busy.
current situation - doing fine, walk withiout walker normally, walk up doen stairs normally, but have mild pain (rang g from .5 to 2) 80% of time in specific areas of both legs which I think will go away with time (I am only like 100 days post surgery), today something bad happened - I tripped on a pair of hard shoes and fell down on floor. Was able to get up fine and had a PT appointment in 15 minutes (after the fall) and went (walked it is .4 miles from me) there and told them what happened , also texted Ronny asking if I should do X-ray. the PT people gave me lots of tough exercises and did lots of physical tests (example - a strong guy asked me to resist while he tried with full force to bed my knees but could not, and similar tests), I was able to resists all forces without any pain on one leg and with .5 pain on other, based on this they said you are more than fine don't worry - if something would have happened due to fall you would not be able to walk to the clinic likenormal and resist the bending (that the guy was trying to do) without a lot pf pain. They gave me lots of many exercises and I passed like 90% with flying colors, struggled in some (because of course I am not 100% back to normal, it is impossible in 3 months), one more thing I can sit on floor with folded legs fine without any issue. Ronny and I agreed that I will see 1-2 days and if I feel anything odd/bad then I will get an X-ray done. My only challenge now is to ditch oxycodon, which I still need (though I have reduced to 2-3 a day) because of pain, I am trying to replace Oxycodon with Tylenol, I hope I succeed, because I still feel some dependency and uneasiness and increased pain at times (though not unbearable, more like 3 max) if I dont take Odycodon for very long hours. Next update after 3 weeks , have 2 amazon interviews for Senior Manager roles. bye till then, wish me luck.
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You have been taking more than 2-3 oxy every day since the day of surgery till now (100 days)?
And what was that other crazy pain you were describing earlier?
now suddenly the day I came back from visit with Dr. D 2 days back, next morning I woke up with unbearable (9/10) pain on joint of right side hip, as the day went by and with pain medicine it was gone and I was walking etc fine but again at night unbearable pain and now I am on bed with high pain.
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You have been taking more than 2-3 oxy every day since the day of surgery till now (100 days)?
And what was that other crazy pain you were describing earlier?
dude, in your PMs and your questions you try to make things sound dramatic and the way you ask questions is offending I have not told you till now because I knew it will make you feel bad or you may become defensive or offensive and I have no time to waste arguing with people (once wanted to tell you in PM but then had let it go, but am telling you today), maybe because it is your lack of research, being immature or lack of understanding american way of giving respect/being polite anyway - one advice if you want help/advice from people ask politely and be nice to them don't try to grill them and disrespect - they don't owe you anything if you ask questions in such a way in future i will not respond. FYI - the frequency (and even medicines) vary for patients , for exmaple some take morphin, some morphin plus Oxycodon , some Oxycodon only, and the frequency also varies as per the doctor;s undertsanding or your pain bearing capability, some people are prescribed every 4 hours, some very 5 and so on. I was taking every 5 hours for soem time, then I changed to every 6 and now 2-3 a day , this varies on individual circumstances, just like recovery varies for exmple - I know some people who could not get out for of bed for 7 days after surgery and I was walkign with walker next day, I could move my legs a lot in 24 hours which I was told by Ronney he has not seen anybody being able to do, even in this forum you will see from diaries diffrent people at different level of recovery stage in same time frame, so everything - including your medicine, your pain level, your recovery, union (e.g. some have non union, and some liek me have relatively fast union), your flexibility, your weight bearign ability, your stamina (how long, with how much inclination can you walk) varies and are not like a predefined and fixed math formula. Also, fyi - the thing with opioids (that is why those are controlled substances) is that they have a hooking effect on your brain, so even if you have mild pain the brain at times tries to amplifyy it to try to force you to take it (think cigerettes, alcohol) and anyboduy who has ever taken opioids for long term has the challange to get off those, and how people deal with the challange and how quickly is also subjective (just like all the other things like recovery, pain, flexibility , stmian etc.), if someoen takes more time it does not make them junkie, just like if somebody takes 7 days to walk it does not make him/her a sissie, if sombody has fast union does not make them wolverrine or super human, humans are different adn their minds and bodies are different. Regarding the unbearable pain - it was gone after 3-4 days, I never understood why it came and why it went (though I have some therories in my mind - like maybe there was some blood clot because on that particular day I did not walk, I was sitting in plane for 10-12 hours and then sitting or lying for rest of the time, which was different then my normal routine where I walk decent amount. But that is just a theory, I will never know) but since it has been many weeks and I am doing fine I don't think about that any more and anyway in LL there will be things that will remain unexplained (as you will see of you read all diaries) because LL and its outcome and recovery phases are not a fully predictable. Please do more research, research is your best friend if you wanna do LL. And DO NOT disrespect LLers, each may have their difficulty and positive points durign the journey but each of them at least had the guts to go through the journey and deal with the challanges, rather than being a keyboard warrior spitting out offending/juding comments. And again - I will prefer/request you get off my diary and do not PM or me or write in my diary any more, I don't like non-polite judgemental people, thank you in advance for respecting my request/preference.
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Sorry dude didn't mean to sound rude or anything. It is sometmes hard to get across the verbal tone correctly through messages on the internet which may come off as rude. anyway it is my mistake I should have been more careful in how I typed. I take this feedback well.
I was honestly a bit surprised about the oxy because as you explained I also had the same idea about it (addicting and can cause dependence). As you say I keep finding out new perspectives of LL as I read more. Now that I think about it, I might have startled a couple of other LLers (tiggy for ex) also by sounding dramatic.
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And again - I will prefer/request you get off my diary and do not PM or me or write in my diary any more, I don't like non-polite judgemental people, thank you in advance for respecting my request/preference.
sorry I read this edit after I wrote my comment. Ok I wlll not post on your diary hence forth. Best of luck with your journey!
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update:
the good: I have been able to get over my dependence on Oxycodon and replace it with tylenol as the pain killer but still taking both so as to avoid getting hooked to any one.
the bad and ugly: i was doing awesome and felt like 90% back to normal one week back when suddenly something happened, at PT they gave me too many exercises , like TOOOOOO MAAAANNNYY and too tough, and I was like huffing puffing at the end, anyway Tuesday morning i go to college and by evening when i come back I started getting pain (4 level) on left femur muscles and at late night it goes upto 7 forcing me to take another painkiller (before that i was taking only 2 painkillers a day) next morning (wednesday) I wake up with 6-7 pain and take pain killer and shower and take rest which brings down pain to 3, remain on bed tilll 1 PM, then I walk to PT and tell her what happeneded, she does investigation and concludes that the too much exercise on monday had made my IT band MAD and that is what is causing the pain, she gives me massage which brings down pain to 1.5 but then she gives me exercises which bring up pain to 3 again. and at night it goes up to 6, but with painkiller and hot shower i bring it down to 2-3 and go to college but by end of the day even aftter painkillers, the pain reaches 8 and I drag myself back to my house and with rest, after 24 hrs now the pain is 2.5-3. lets see if it goes away in 1-2 days.
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Hey lalbadshah! How are things going? Hope the pain subsided!
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hi, yes, just when you sent the message - the same day (11/21 mornng) i woke up with zero pain and it has been so from last 48 hours, even though I am taking caution and not walking too much or not taking too many stairs or not doing muuch physical PT only like .7 miles walk a day, 20 stairs up down and quad and hamstring stretch, that's it.
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Great to hear the pain is finally gone! Must be a hell of a relief!
I think it's wise to ease up on the PT and heavy walking for a few more days - good call
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yes, agree because i am getting the feeling that if i go hard on physical activity the issue will come back.
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Hey Lalbadshah! Reading a bunch of diaries as a new member. Checking in, how are things progressing?? ß
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Hey Lalbadshah , How are you doing? Hope everything is fine.
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Hey Lalbadshah , How are you doing? Hope everything is fine.
he bro you new on the forum??
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he bro you new on the forum??
yes, I am very new.What's up bro?
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he bro you new on the forum??
I didn't sleep last night. and trying to read as much as possible in this forum. feel a little dizzy now. :))
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Now, I would like to add my input on whether you can do this thing alone or not. Here is what I think -
1. Doing this completely alone is almost impossible (I know people have done it, still I think it is almost impossible) unless by 'alone' you mean there is somebody coming to give you food at your bed and somehow you have figured out an option of pooing while on bed (can't think how that is possible) or you can withstand the feeling that you will have while not pooing for for around 6-7 days. This would also require very very high upper body strength. IMPOSSIBLE for a girl or thin men. Close to impossible or very difficult for a man with strong arms.
2. With hiring aide for a few hours, very much possible - that is what I am doing. Still, if you will not have the aid with you at night then you need very high upper body strength - very very difficult for girls or thin men.
So, my recommendation for women and thin men would be - don't even think of doing it alone - you can't. even with hiring aide for a few hours you will struggle, for girls and thin men I really beg you - bring family member or partner with you.
For males with good muscle strength - doing it alone will be close to impossible but doing with aides hired for a few hours - yes very much possible without much difficulty.
Hi, Lalbadshah. Congrats on getting your LL done and hopefully itll be a great benefit for you and youll have a speedy recovery reaching your goals. Quick question so what if a skinny male would be getting this done with decent upper body strength and a female companion who is skinny helping out along the way, would that still not be enough help?
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Hi,
Did you use any special Uber like UberAssit or UberWAV which are designed for people with wheel chair. I am asking for first week of limb lengthening when you had just started your pt.
Is it possible to get in and get out of normal car. If yes, can you take a step-up or the care taker has to lift you up or something.
I am sorry if it sounds lame.