Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: Erkan on December 17, 2020, 06:08:29 AM
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Hey,
my surgery is in about a month, I will make updates of my progress here.
Current height: 172cm
Wingspan: 173
Inseam: 80
Tibia/Femur ratio: 0,79
Goal: 176-178cm
Here are some mockups with shoes (+3cm) and with femur +6cm. So its 175cm on the right before and 181cm if Ill do the full 6cm.
https://imgur.com/a/1xMmaij
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Cool, looking forward to your diary. I will Be getting surgery with koene around the same time for tibias first.
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looking forward to your diary as well! good luck:)
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Good luck! I had also my femur surgery with him one year ago. He is a very good surgeon
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Thank you, getting more excited but also nervous every day.
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I have told my family and close relatives about the surgery today. As expected, they were shocked, but after a longer conversation, they even offert me their help for the time after the surgery:)
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I have told my family and close relatives about the surgery today. As expected, they were shocked, but after a longer conversation, they even offert me their help for the time after the surgery:)
Could you discuss the cost and living arrangements?
Also, I'm assuming you are getting stryde not precise?
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Costs are about the same as betz for stryde (with nail removal)
I will only stay for about 1 week at the hospital after the surgery before returning home. I took of work for 3 months.
But I think I will have to return once a week to Dr Köhne for xrays in the beginning.
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Hey,
my surgery is in about a month, I will make updates of my progress here.
Current height: 172cm
Wingspan: 173
Inseam: 80
Tibia/Femur ratio: 0,79
Goal: 176-178cm
Here are some mockups with shoes (+3cm) and with femur +6cm. So its 175cm on the right before and 181cm if Ill do the full 6cm.
https://imgur.com/a/1xMmaij
Hi bro ,
I hope you are doing well , why didn't have as a goal the full 8 cm on femur?
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Here are some drugs I ve had to buy before surgery (just for the case):
On the left: thrombosis injections
In the middle: all sorts of painkiller
On the right: muscle relaxant and sleep aid (which Ive got prescribed by another doctor)
https://imgur.com/a/VEO3v2N
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Hi bro ,
I hope you are doing well , why didn't have as a goal the full 8 cm on femur?
I dont feel the need for doing more and will reduce longterm risks. 178 is spot on average where I live and Dr. Koehne usually doesnt lengthen over 6cm on femur.
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I think the mockup looks absolutely fantastic. If you feel that 6cm is enough for you, more power to you- you seem to be very rational about your needs and this journey. Good luck with the surgery this month.
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Hi Erkan,
I wish you the best on your future surgery.
I am an advocate of getting the max out of the CLL. It's too costly and painful to be just modest about. Why not getting the full 8 cm or 7.5 (almost 3 inches) out of your femur surgery; I mean assuming the surgery goes well and your doctor also approves the max lengthening?
I understand every additional cm may exponentially add to the recovery time and also pain, but with consistent stretching exercises and a good diet, you should be able to mitigate both.
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Good luck.
I think 6cm is a good target. Recovery and proportions are more favourable at 6cm.
Dr Kohne seems very good and I am sure he will guide you on what is best
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Mockup look good. Doing 6cm looks like it keeps your wingspan in normal range and have read people who have recovered near 100% at that length as compared to 8cm where long term recovery is worse. Best of luck.
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Congrats on starting your journey with Stryde!
What do you think you will bring with you for entertainment and for comfort/to help you do various tasks?
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Hi Erkan,
I wish you the best on your future surgery.
I am an advocate of getting the max out of the CLL. It's too costly and painful to be just modest about. Why not getting the full 8 cm or 7.5 (almost 3 inches) out of your femur surgery; I mean assuming the surgery goes well and your doctor also approves the max lengthening?
I understand every additional cm may exponentially add to the recovery time and also pain, but with consistent stretching exercises and a good diet, you should be able to mitigate both.
Thanks for the input!
Its just a feeling, that the additional 2cm wouldnt give me more satisfaction or happines and are not worth the higher risks. I do actually think, that if I were grown to 175 I probably wouldnt feel the need of doing LL. But this is very individual, and depends on where you live, how tall your family and friends are, etc.
Congrats on starting your journey with Stryde!
What do you think you will bring with you for entertainment and for comfort/to help you do various tasks?
Just an I Pad, mobile and airpods. Any suggestion?
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I'm buying the Occulus Quest 2 VR headset, it will reach my place at the end of this month. I heard that burn victims use VR to distract themselves from the pain
https://www.youtube.com/watch?v=jNIqyyypojg&t=52s
Still looking into getting prescription lenses to attach to the VR device so I don't have to wear glasses/risk scratching the lenses
But if I get LL oneday, I don't know if the PT people will let me use it during PT :) Maybe you'll find out?
I also heard there are devices to help people put on their socks or arm grabbers, maybe worth looking into
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Hi Erkan, I hope everything goes well first. I am also European and I am thinking of having surgery within the EU, would you have any suggestions from doctors you know from other countries? In Spain, France, Italy ... By the way, I also think that although the average height of some countries was higher, if it measured more than 172 cm or 170 cm, I would not have ever investigated this operation ...
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Hi
Erkan is it possible for you to share your thoughts on picking Dr. Koehne for this surgery? There isn't alot of information about him. And what do you know about his track record, surgery technique etc. Kind regards and i wish you the best!
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I got a call from the clinic today...they unfortunately have to postpone my surgery appointment to the end of January due to new Covid regulations. :/
I'm buying the Occulus Quest 2 VR headset, it will reach my place at the end of this month. I heard that burn victims use VR to distract themselves from the pain
https://www.youtube.com/watch?v=jNIqyyypojg&t=52s
Still looking into getting prescription lenses to attach to the VR device so I don't have to wear glasses/risk scratching the lenses
But if I get LL oneday, I don't know if the PT people will let me use it during PT :) Maybe you'll find out?
I also heard there are devices to help people put on their socks or arm grabbers, maybe worth looking into
thx, looks interesting, I will check it out.
Hi Erkan, I hope everything goes well first. I am also European and I am thinking of having surgery within the EU, would you have any suggestions from doctors you know from other countries? In Spain, France, Italy ... By the way, I also think that although the average height of some countries was higher, if it measured more than 172 cm or 170 cm, I would not have ever investigated this operation ...
Hi
Erkan is it possible for you to share your thoughts on picking Dr. Koehne for this surgery? There isn't alot of information about him. And what do you know about his track record, surgery technique etc. Kind regards and i wish you the best!
Hey
I dont have any suggestion for other Doctors, but Dr Koehne seemed to be like the best choice for me, because of the following reasons:
- Stryde was a must for me
- he has 20 years of experience as an orthopedist/surgeon
- Its not that far away from my home, that helps after the surgery
- We speak the same language
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I had exact the Same thoughts!
It is a privilege if you Life in the near of a cll surgeon
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Hey,
just got an information, that NuVasive doesnt ship any new Stryde Nails, because they do new internal quality control checks.
This is very bad news for anyone, who wants to do the surgery this year because nobody knows how long it will take.
My surgery is on friday and I dont know if I will get the 11,5 diameter nail because of this.
My surgeon has only 10mm in stock and doesnt know if he will get the 11,5mm.
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If you can, wait for the 11,5. That is what i would.
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If you can, wait for the 11,5. That is what i would.
It can take even one year. Nobody knows how long it will take. I will take the 10mm but it annoys me very much! It will make the months post op even harder :(
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Hey im about 1h post surgery. :-[ Still feeling a little dizzy. Just slight pain on my hips but nothing bad. Overall I feel much better than I thought I will. My legs feel like after a intense workout. I try to relax the muscles which isnt easy but it helps ;)
I will keep you posted!
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Hey,
Im a few hours post surgery. Im feeling good! Pain is very low. Dr Koehne told me, that he could use the 11,5mm stryde nail and everything went very well. It was a big relief. Until now Koehne was really great and was always very honest to me.
And a picture of my right leg:
https://imgur.com/a/Y3nsGx5
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Congrats man¡ I'm happy you got the 11.5 nail
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Hey,
Im a few hours post surgery. Im feeling good! Pain is very low. Dr Koehne told me, that he could use the 11,5mm stryde nail and everything went very well. It was a big relief. Until now Koehne was really great and was always very honest to me.
And a picture of my right leg:
https://imgur.com/a/Y3nsGx5
Lucky about the nail!
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Very awesome you managed to still get the 11.5 nail. Good luck erkan
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All the best, man!
I'm a Dr. Köhne Patient myself and had my surgery last summer. I'm doing well and I'm perfectly happy with my results so far.
Feel free to send me a DM anytime.
Best
Mango
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Thank you!
The first night was pretty good. I woke up several times but was able to get enough sleep overall. thanks to the painkillers my painlevel is low. The pain that I have is especially on the hip where the nails were inserted. I hope that I can get up and walk a bit today when the physiotherapist comes.
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the physiotherapist did some exercises with me. I could also get up and take a few steps with the walker. It was a great feeling. the pain in the thigh was comparable to sore muscles.
Picture of my left leg: https://imgur.com/a/BgbW4cB
And both legs: https://imgur.com/a/z82DpY2
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the physiotherapist did some exercises with me. I could also get up and take a few steps with the walker. It was a great feeling. the pain in the thigh was comparable to sore muscles.
Picture of my left leg: https://imgur.com/a/BgbW4cB
And both legs: https://imgur.com/a/z82DpY2
Wow man, I really envy you. Everything seems to be going really well, congrats¡¡
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Congrats Erkan! Keep on posting!
Did Dr. Koehne mention how long the surgery took?
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No but I will ask him. He did only say that the surgery went very well and that my bones are very „good“. ButI dont know exactly what that means:p
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Well done! Are you also in penzberg Hospital?
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Well done! Are you also in penzberg Hospital?
Hey! Yes Penzberg Klinikum:)
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Today will be the hardest day for you. Can remember so well on my first day after surgery. But things will get more easy soon even it is not so easy to imagine now
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No but I will ask him. He did only say that the surgery went very well and that my bones are very „good“. ButI dont know exactly what that means:p
Maybe you are in the best age range for lenghtening. How old are you'?
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Im 31 years old
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First day post surgery:)
https://imgur.com/a/rRLG4AS
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That's amazing dude
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Great progress.
Have you got any supplements or physio plans to optimise tissue growth and recovery?
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Amazing mate, congrats!!
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big ass walker lol
congrats erkan
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Hey guys!
My oura ring tracked about 7 hours of sleep tonight and I feel well rested.
i woke up about 3 times at night and I had a burning sensation on my left heel.
It came from the pressure of lying down for a long time, so I stretched my heel out of bed and the burn went away.
Here is, what supplements I do take before I go to sleep.
Hospital gives me: pain med, Magensium
My own suplements before I go to sleep: ashwagandha, theanin and curcuma capsules, cbd+melatonin oil and Mirtazapin(sleeping aid prescribed by another doctor)
Today at about 6:00 am the pain level started to rise slowly (it was 10 hours after the last pain med).
About the hospital:
The hospital is quite small, there are no shops, baker etc but I spend my time 24h/day in my room anyway. the food is ok. I had the possibility to pay more for the room, which would give me more menues to choice from, but I went with the regular food.
the nurses take good care of me. I rarely call them, just when I have to go to the bathroom. I pee in a bottle so I don't have to go to the bathroom often.
Physio:
the first physiotherapy was easy. we pulled my feet towards my body while lying down, tensed my muscles a bit and raised and bent my legs and we made of course my first steps.
Dr Koehne also showed up. He also recommended an exercise and said it would be best if I already lay my legs close together and not spread them while laying, even if spreading them is more comfortable.
I follow the instructions exactly and do not try to do any more, as this could also be counterproductive.
Update
Dr Koehne was just here, and showed me some new stretching exercises. The surgery took about 3,5 hours. He explained that its not about to be the fastest, but to make it as minimal invasive as possible, so the patients have less pain, swelling, etc...afterwards.
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this is an exercise that was shown to me today:
Crossing the legs and forming an U-shape with the body.
https://imgur.com/a/xE9pHKK
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this is an exercise that was shown to me today:
Crossing the legs and forming an U-shape with the body.
https://imgur.com/a/Q24vCZ4
Damn bro, threw my phone across the room when I opened that. 18+ NSFW. 😄. I'm shook
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Damn bro, threw my phone across the room when I opened that. 18+ NSFW. 😄. I'm shook
Ahahahaha, You shoocked me! just had to check if I have uploaded the censored picture ;D
Update: ive made the black area bigger!
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my first bowel movement today was definitely the hardest thing since the operation. I hope I dont have to repeat it anytime soon!
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Hey!
Third day post surgery:
https://imgur.com/a/K98ul73
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Das sieht super aus. Wie fühlst du dich?
Looks great. How do you feel?
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Today I feel much better. dr köhne checked the legs today. Everything is fine and I can leave the hospital on Wednesday :)
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4. day post surgery
today we practiced walking stairs up and down. Went well and I was able to take about 15 Stairs in both directions on my own (with the crutches in one hand, and the handrail in the other)
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Hey im about 1h post surgery. :-[ Still feeling a little dizzy. Just slight pain on my hips but nothing bad. Overall I feel much better than I thought I will. My legs feel like after a intense workout. I try to relax the muscles which isnt easy but it helps ;)
I will keep you posted!
Ahaha I cant even remember that I wrote this passages. Have must been pretty good drugs I ve got ;D
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Hi Erkan. how is your life? Can you walk without crutches or do you still need them? Are you still on pain meds or blood thinners ?
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Hi Erkan. how is your life? Can you walk without crutches or do you still need them? Are you still on pain meds or blood thinners ?
Hey,
Yesterday I ve got back home. Today Ive made some upper body training. I still have to use crutches and I have to use pain meds and bloodthinner (thrombosis injections).
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Looking good, congrats!
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Thank you for all the kind words and support!
Right now Im at 2,5mm.
i m not writing long posts because english is not my main language and it is therefore very time consuming for me. however, my sensations are very similar to how „Movie“ describes it. I really try to stretch a lot when my legs feel stiff and that helps very quickly!
if you have any questions I will try to answer them quickly! I will of course post if something unexpected happens!
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Great progress so far ;)
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Reached +5mm today. The tightness is becoming more uncomfortable. Its getting also harder to keep my gait „normal“ I tried to reduce pain meds for a while but there is no way I could reduce them now as it would make streching exercises to painful. There is still a very long way to go (5,5cm) and as for now it seems that the harder part is starting very soon:/
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Hello! Hope u r doing well so far, I’m so happy for your progress. Lengthening phase is def hard :(
I live in Germany too, and I’m planning to do LL surgery by the end of this year. So I have some questions for u.
1. Where did u get your PT during lengthening phase? Beim Köhne? He provided PT training for free or with extra cost?
2. After the lengthening phase, do u plan on getting PT with private clinic, or your are just gonna train by yourself? If it’s the first one, did u contact with the insurance? Did they cover the cost of PT training?
Thank you in advance!
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Hello! Hope u r doing well so far, I’m so happy for your progress. Lengthening phase is def hard :(
I live in Germany too, and I’m planning to do LL surgery by the end of this year. So I have some questions for u.
1. Where did u get your PT during lengthening phase? Beim Köhne? He provided PT training for free or with extra cost?
2. After the lengthening phase, do u plan on getting PT with private clinic, or your are just gonna train by yourself? If it’s the first one, did u contact with the insurance? Did they cover the cost of PT training?
Thank you in advance!
Hey hey,
Its getting better every day. Im now 12 days post Surgery and +7mm. the pain from the operation is slowly disappearing and now only the pain from stretching remains. However, it is not that bad if you stretch enough. You get PT at the hospital for the length of your stay. After getting home, you have to find a PT where you live and pay it yourself.
2. I will follow the instructions of Dr Köhne and PT. But as I see it now, I do think it will be necessary:p Im now in contact with the insurance and hope to get some money back!
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Hey hey,
Its getting better every day. Im now 12 days post Surgery and +7mm. the pain from the operation is slowly disappearing and now only the pain from stretching remains. However, it is not that bad if you stretch enough. You get PT at the hospital for the length of your stay. After getting home, you have to find a PT where you live and pay it yourself.
2. I will follow the instructions of Dr Köhne and PT. But as I see it now, I do think it will be necessary:p Im now in contact with the insurance and hope to get some money back!
Cool! Thank you for ur relply. Please do tell us about how it goes with the insurance, it would be a big help.
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14 days post surgery
yesterday the seams were pulled and today i can take a shower again! this is how the legs look 14 days post surgery.
https://imgur.com/a/NvLhk70
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Great progress, dude! I envy you! How is your gait? Can youu walk without crutches?
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Great progress, dude! I envy you! How is your gait? Can youu walk without crutches?
Thank you!
My gait with crutches got better. I still use them about 90% of the time.
I can walk unassisted but only if I have to get something a few steps away from me. My gait without crutches is weird and slow. Very penguin style. It gets also little painful sometimes.
Thats the reason I avoid it till I feel my legs are strong enough!
Best regards
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X Ray 19 days post surgery (16mm distraction)
Everything is fine. Bone grow is good but Ive decided to slow down the distraction from 1,00mm to 0,75mm / day for the next two weeks because the pain got to annoying.
https://imgur.com/a/uN04rdt
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X Ray 19 days post surgery (16mm distraction)
Everything is fine. Bone grow is good but Ive decided to slow down the distraction from 1,00mm to 0,75mm / day for the next two weeks because the pain got to annoying.
https://imgur.com/a/uN04rdt
Looks good. Pain for me went away around day 25 so maybe you could continue with 1mm but if you are in no rush then its grand to keep it at 0.75
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How often are you advised to get an x ray taken?
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Looks good. Pain for me went away around day 25 so maybe you could continue with 1mm but if you are in no rush then its grand to keep it at 0.75
Thats good to hear!
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How often are you advised to get an x ray taken?
In the beginning once a week, now its once every two weeks.
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In the beginning once a week, now its once every two weeks.
Small intervals. I assume you will need them less and less as time goes by
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Small intervals. I assume you will need them less and less as time goes by
Yes
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Great progress.
Have you got any supplements or physio plans to optimise tissue growth and recovery?
Sry for the late answer. I take the following supplements:
- Orthomol tendo https://www.orthomol.com/en/products/locomotor-system/orthomol-tendo
- Glucosamin Chondroitin + MSM https://www.purecaps.net/produkte/glucosamin-chondroitin-msm
- vitamin d + k
- Calcium
- Magnesium
- OPC
- curcuma
I go once a week to PT and doing the exercises every day at home.
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Cool! Thank you for ur relply. Please do tell us about how it goes with the insurance, it would be a big help.
Hey, my insurance pays 80% of the cost of physiotherapy. 10 units have currently been approved. I will certainly need more so I will have to do it again.
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Hi Erkan!
We are almost in the same phase of the process. My surgery was on January 23rd, and I started to lengthen my legs 10 days later at a rate of 0.81 mm per day. According to my calculations I have elongated 2.1 cm, next Friday I have an X-ray. Yesterday at 15:30 was my last lengthening session before stopping ... I had to rest for a day because I had been in a lot of pain for 2 days. The doctor and the physiotherapist recommended that I stop and right now I feel much better. How about you rest at night? Can you sleep a whole night without waking up due to pain?
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Hi Erkan!
We are almost in the same phase of the process. My surgery was on January 23rd, and I started to lengthen my legs 10 days later at a rate of 0.81 mm per day. According to my calculations I have elongated 2.1 cm, next Friday I have an X-ray. Yesterday at 15:30 was my last lengthening session before stopping ... I had to rest for a day because I had been in a lot of pain for 2 days. The doctor and the physiotherapist recommended that I stop and right now I feel much better. How about you rest at night? Can you sleep a whole night without waking up due to pain?
Hey Fschez, Im also at 2,05cm so we are pretty much the same. I was doing 1 mm/day till 15mm or so. But the pain was to much at night so after only sleeping 3 h or so we decided to slow down to 0,75mm/day. This is much better. I do still need my normal painkiller but I can sleep better. I still wake up every night at about 3 o clock am. Then I have to take a Tilidin (opioid) which let me sleep till 7:00 or 8:00 o clock in the morning. Before I ve slowed down from 1,00mm to 0,75mm I ve had to take 2-3 Tilidin to get through the night. I think its a good idea to take one or two days break if pain gets to high!
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Hey Fschez, Im also at 2,05cm so we are pretty much the same. I was doing 1 mm/day till 15mm or so. But the pain was to much at night so after only sleeping 3 h or so we decided to slow down to 0,75mm/day. This is much better. I do still need my normal painkiller but I can sleep better. I still wake up every night at about 3 o clock am. Then I have to take a Tilidin (opioid) which let me sleep till 7:00 or 8:00 o clock in the morning. Before I ve slowed down from 1,00mm to 0,75mm I ve had to take 2-3 Tilidin to get through the night. I think its a good idea to take one or two days break if pain gets to high!
I think we are going through one of the worst phases and we both have almost the same pain that prevents us from resting at night ...
I take 2 pills of pain reliever just before going to bed, at 23:30 or so, and at 3:30 or 4:00 I wake up in pain and have to take tramadol with paracetamol, and I don't usually sleep fast again .. Since I stopped lengthening I feel much better. I spent about 30 hours without lengthening sesions, On Tuesday I just spent my day stretching hard 3 times sesions for a long time and the night from Tuesday to Wednesday. Tuesday afternoon I lengthened my legs again for one session at 8:30 p.m. and I was able to sleep without pain from 1:00 to 8:00.
It has been the best night so far, but today I slept again like the previous days. At the moment the pain during the day is bearable, I hope we could continue like this for a few more days without having to stop soon again.
Good luck friend and take care!! ;)
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Hello everybody!
Its 30 day post surgery and +2,2cm. Today Ive got bad knee pain after my distraction in the evening. I could barely sleep a few hours. Do you have any suggestion what can help? Painkiller dont seem to work well for this kind of pain. Its gettin better when I stand up and move some time but as soon as I try to sleep it keeps coming back. Ill be glad for any suggestions!
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I guess the best thing to do would be to ask Dr. Koehne because he has all the insights about ur current situation and medical record. Good luck abi, kralsin.
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Hey Erkan,
Did Dr. Köhne cut your IT-Band?
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Hey Erkan,
Did Dr. Köhne cut your IT-Band?
I will see him in a few days, so I can ask him. Whats the opinion here should it be done?
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I will see him in a few days, so I can ask him. Whats the opinion here should it be done?
If your goal is only max. 6cm then you wont need it. It band release is not really necessary, but many doctors do IT-Band release to have a faster recovery and avoiding side effects like Duckass,Widelegs.
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If your goal is only max. 6cm then you wont need it. It band release is not really necessary, but many doctors do IT-Band release to have a faster recovery and avoiding side effects like Duckass,Widelegs.
Hello everyone!
today I had an appointment with dr köhne, Im 33days post surgery and at 26mm:). He explained, that he doesn't do an it-band release by default. Very few of his patients actually need a release. He explained to me why he does not do an it band release by default for every patient during the operation like some other doctors. his explanation was very detailed, but basically, in the long term, it is his opinion, that the patient gets along better only with physiotherapy if possible. if it is not enough, he will do an it band release, but in his experience this is only necessary in the rarest of cases.
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Hello everyone!
today I had an appointment with dr köhne, Im 33days post surgery and at 26mm:). He explained, that he doesn't do an it-band release by default. Very few of his patients actually need a release. He explained to me why he does not do an it band release by default for every patient during the operation like some other doctors. his explanation was very detailed, but basically, in the long term, it is his opinion, that the patient gets along better only with physiotherapy if possible. if it is not enough, he will do an it band release, but in his experience this is only necessary in the rarest of cases.
Yes, I think Prof Betz doesn’t cut IT-Band either.
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39 days post surgery (+30mm)
today i have reached halfway (30mm) my legs are getting stronger every day. I only need the crutches when I have to climb steps. They also get tighter so I have to counter work to not get wide legs.
I lie every day for several minutes with my legs tied together. This helps with wide legs. I will post a picture later.
I ve noticed recently, that my left nail vibrates sometimes during the distraction. Did anyone had this ?
https://imgur.com/a/ZojXhc3
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Nice man congrats on hitting 3cm!
Also thank you for the tip about about how to reduce wide legs. I will try it myself if I get hit with wide legs.
Are you feeling tightness in the IT band at all as you didn't have it released? Dr. Betz doesn't release it either so I'm wondering if not having it released has had an impact on you so far?
Wishing you best of luck in hitting your goal.
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Here my gait as today. you can see how i dodge with my left leg because of the screwpain in the hip. I hope
This will get better!
https://imgur.com/a/SPPgkRz
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Nice man congrats on hitting 3cm!
Also thank you for the tip about about how to reduce wide legs. I will try it myself if I get hit with wide legs.
Are you feeling tightness in the IT band at all as you didn't have it released? Dr. Betz doesn't release it either so I'm wondering if not having it released has had an impact on you so far?
Wishing you best of luck in hitting your goal.
Thank you!
I definitely feel tightness in the IT Bands but until now its manageable with stretching exercises!
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Hey just wanted to share this pillow with you. Its great for sleeping on your side during LL. Ive got it a few days ago and dont wanna miss it!
https://www.mediashop.tv/DE/dreamolino-leg-pillow/
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Here my gait as today. you can see how i dodge with my left leg because of the screwpain in the hip. I hope
This will get better!
https://imgur.com/a/SPPgkRz
Walking with swag like a gangster... 8)
39 days post surgery (+30mm)
today i have reached halfway (30mm) my legs are getting stronger every day. I only need the crutches when I have to climb steps. They also get tighter so I have to counter work to not get wide legs.
I lie every day for several minutes with my legs tied together. This helps with wide legs. I will post a picture later.
I ve noticed recently, that my left nail vibrates sometimes during the distraction. Did anyone had this ?
https://imgur.com/a/ZojXhc3
Is it like clicking? Sometimes the nail clicks when it has heavy muscle resistance against lengthening. Make sure to check x-ray to see how much lengthening is done and if both sides match in case
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Walking with swag like a gangster... 8)
Is it like clicking? Sometimes the nail clicks when it has heavy muscle resistance against lengthening. Make sure to check x-ray to see how much lengthening is done and if both sides match in case
Hey its not a clicking. I dont hear it I just feel a vibration in the knee. It happens randomly but only on one side. Lets see what the next x-ray shows.
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Hey Erkan, how are you? Everything all right? Any improvements? Is the bone already growing?
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Hey Erkan, how are you? Everything all right? Any improvements? Is the bone already growing?
Hey,
Im now at 4,3cm. Everything is improving. I have less pain better gait and more strength. I dont need the crutches anymore. Ive got some burning on my left lower leg after 4cm. I ve slowed down the distraction and the burning is now nearly gone.
I‘ll visit the Doctor in a few days for xrays. But until now bone growth was very good!
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Hello everyone,
Its 62 days post surgery,
I was getting xrays today. Everything looks good! Im at 4,6cm right now. I dont have wide legs or duckass thats great. My left leg seemed to be 1-2mm less distracted. I think this is due to the vibration I feel during distraction on this leg. We will check this at the end and eventually distract this leg 1-2 days longer to catch up. I should be done with distraction phase in 3 weeks yeahhh!!:)))
I dont need painkillers anymore but i usually take one for better sleep but it is definitely manageable without. After 3cm it got gradually better so life is good now:)
Here is my latest xray: https://imgur.com/a/DBHNkzE
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I would like to tell you something about my story. maybe one or the other will recognize themselves in it and it will help them with their decision. By my 18th birthday, I knew I would no longer grow. Even before that time, I often felt uncomfortable and had a kind of social phobia when going out with friends. I have to say that all of my friends were very tall. it started with around 16 years when I kept getting panic attacks when I went out. At that time I didn't know what that was. In the course of time I felt my height more and more often. Then there were often unexpected statements like "you are small" or simply "the little one". When I was 18, due to an event, which also had to do with my height, I had a collapse. Panic attacks lasting months, severe depression and everything that goes with it. I got ssri which at some point helped me to feel better and at some point I even did well so that I could graduate from school. After stopping the medication, the symptoms came back after a while. and so it went on over the years. A year ago I decided to start therapy because at some point over the years I no longer understood the origin of my problems correctly. In the course of the therapy I realized again that my height was the reason I ve, developed this thought patterns in my head and that I felt locked in. I specifically avoided certain situations, wanted to sit rather than stand, no photos, etc. In my head it was like a prison that didn't allow me to fully develop. In the course of time, I also developed obsessive thoughts which are not directly related to heighg but were a kind of compensation for it. I don't want to be too euphoric and write that everything is good now. Its like everyone says. It wont make you happy but I dont have this bad feeling anymore so I can focus better on other things which eventually will make me happy! I do already feel like a ballast has fallen from me. I can already tell when I walk on the street that I just feel good. no longer that tense feeling from before. I still take ssri but plan to stop after my regeneration. I hope this peace in my head stays with me.
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I would like to tell you something about my story. maybe one or the other will recognize themselves in it and it will help them with their decision. By my 18th birthday, I knew I would no longer grow. Even before that time, I often felt uncomfortable and had a kind of social phobia when going out with friends. I have to say that all of my friends were very tall. it started with around 16 years when I kept getting panic attacks when I went out. At that time I didn't know what that was. In the course of time I felt my height more and more often. Then there were often unexpected statements like "you are small" or simply "the little one". When I was 18, due to an event, which also had to do with my height, I had a collapse. Panic attacks lasting months, severe depression and everything that goes with it. I got ssri which at some point helped me to feel better and at some point I even did well so that I could graduate from school. After stopping the medication, the symptoms came back after a while. and so it went on over the years. A year ago I decided to start therapy because at some point over the years I no longer understood the origin of my problems correctly. In the course of the therapy I realized again that my height was the reason I ve, developed this thought patterns in my head and that I felt locked in. I specifically avoided certain situations, wanted to sit rather than stand, no photos, etc. In my head it was like a prison that didn't allow me to fully develop. In the course of time, I also developed obsessive thoughts which are not directly related to heighg but were a kind of compensation for it. I don't want to be too euphoric and write that everything is good now. Its like everyone says. It wont make you happy but I dont have this bad feeling anymore so I can focus better on other things which eventually will make me happy! I do already feel like a ballast has fallen from me. I can already tell when I walk on the street that I just feel good. no longer that tense feeling from before. I still take ssri but plan to stop after my regeneration. I hope this peace in my head stays with me.
:) thank you for sharing. honestly makes me smile that you are now comfortable in your body and already starting to feel more confident and remove the neurosis. so happy for you man. after all- this is the point of the surgery eh? remove the neurotic thoughts and insecurity of height. makes me teary eyed erkan :)
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I would like to tell you something about my story. maybe one or the other will recognize themselves in it and it will help them with their decision. By my 18th birthday, I knew I would no longer grow. Even before that time, I often felt uncomfortable and had a kind of social phobia when going out with friends. I have to say that all of my friends were very tall. it started with around 16 years when I kept getting panic attacks when I went out. At that time I didn't know what that was. In the course of time I felt my height more and more often. Then there were often unexpected statements like "you are small" or simply "the little one". When I was 18, due to an event, which also had to do with my height, I had a collapse. Panic attacks lasting months, severe depression and everything that goes with it. I got ssri which at some point helped me to feel better and at some point I even did well so that I could graduate from school. After stopping the medication, the symptoms came back after a while. and so it went on over the years. A year ago I decided to start therapy because at some point over the years I no longer understood the origin of my problems correctly. In the course of the therapy I realized again that my height was the reason I ve, developed this thought patterns in my head and that I felt locked in. I specifically avoided certain situations, wanted to sit rather than stand, no photos, etc. In my head it was like a prison that didn't allow me to fully develop. In the course of time, I also developed obsessive thoughts which are not directly related to heighg but were a kind of compensation for it. I don't want to be too euphoric and write that everything is good now. Its like everyone says. It wont make you happy but I dont have this bad feeling anymore so I can focus better on other things which eventually will make me happy! I do already feel like a ballast has fallen from me. I can already tell when I walk on the street that I just feel good. no longer that tense feeling from before. I still take ssri but plan to stop after my regeneration. I hope this peace in my head stays with me.
Hi Erkan!
I am very happy to know that you are progressing well and that you are already so close to your goal.
When I have read this publication I have felt that many of us have spent very hard days locked in our minds because of our height ...
Luckily we are having an opportunity to change our physical and mental state to make us feel good and happy with our appearance.
I think that when we finish this difficult process we will not only be a little taller, I am sure that our social life will have changed for the better. :)
I hope everything goes very well for you
Good luck friend!!
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Sorry to hear that you had a difficult time in the past. That was a different person, focus on the new you and enjoy the euphoria.
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Nice to read the replys! Thank you:)
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I made two new gait videos for you.
Its day 63 post surgery, 4,7cm. You can see my butt is gone. I will start in a few weeks with some upper body training :p I kept my shirt of so you can see the proportions better. I wear my pants pretty low, but that was also my style before the surgery.
https://imgur.com/a/9xwtiaW
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you actually look pretty good. Gait looks good especially walking on grass
I made two new gait videos for you.
Its day 63 post surgery, 4,7cm. You can see my butt is gone. I will start in a few weeks with some upper body training :p I kept my shirt of so you can see the proportions better. I wear my pants pretty low, but that was also my style before the surgery.
https://imgur.com/a/9xwtiaW
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I made two new gait videos for you.
Its day 63 post surgery, 4,7cm. You can see my butt is gone. I will start in a few weeks with some upper body training :p I kept my shirt of so you can see the proportions better. I wear my pants pretty low, but that was also my style before the surgery.
https://imgur.com/a/9xwtiaW
Hi again Erkan!
Because of the way you walk in the 2 videos, it does not seem that you have had an operation ... Also, your proportions look good. I'm glad of your progress !!
I hope to improve my gait by following your advice, although it hurts a lot to endure lying with my feet together for just 5 minutes ...
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Hey thank you to both of you!
Yeah I know it hurts :p you can try only 2 minutes or so. Wish you the best!
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Proportions look great. Given your 173cm wingspan I was thinking your arms would look short but they don't
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I made two new gait videos for you.
Its day 63 post surgery, 4,7cm. You can see my butt is gone. I will start in a few weeks with some upper body training :p I kept my shirt of so you can see the proportions better. I wear my pants pretty low, but that was also my style before the surgery.
https://imgur.com/a/9xwtiaW
Congrats on the progress! Your gait looks very good 👍
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I have something important to tell you. About 2 weeks ago I felt a strong pain in my right leg while stretching. Probably a muscle strain. since then my right leg was a bit swollen and hurt more than my left. but nothing bad. My mother, (she is nurse), recently saw the slightly swollen leg and has asked me every day since, that I should clarify whether it is not a thrombosis. Since I take prophilaxic thrombosis injections every day and I also exercise regularly, I ignored it but made an examination today to calm her down. and the result was unfortunately really thrombosis. I was shocked. They immediately called the ambulance. It was a scary feeling. They have now switched to xarelto as bloodthinner. of course i'm a little concerned now. I hope I can still finish distraction as planned. what I mean by that: if you are unsure, it is better to get checked. I would have never thought that its thrombosis in my case since the only indication was light swelling which I was blaming on the muscle strain. As you know this could have a deadly ending. maybe my mother saved my life by doing this!
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I have something important to tell you. About 2 weeks ago I felt a strong pain in my right leg while stretching. Probably a muscle strain. since then my right leg was a bit swollen and hurt more than my left. but nothing bad. My mother, (she is nurse), recently saw the slightly swollen leg and has asked me every day since, that I should clarify whether it is not a thrombosis. Since I take prophilaxic thrombosis injections every day and I also exercise regularly, I ignored it but made an examination today to calm her down. and the result was unfortunately really thrombosis. I was shocked. They immediately called the ambulance. It was a scary feeling. They have now switched to xarelto as bloodthinner. of course i'm a little concerned now. I hope I can still finish distraction as planned. what I mean by that: if you are unsure, it is better to get checked. I would have never thought that its thrombosis in my case since the only indication was light swelling which I was blaming on the muscle strain. As you know this could have a deadly ending. maybe my mother saved my life by doing this!
dear Erkan,
God bless to your mother for saving your life. oh dear God this is a scary operation. It is surprising to me that you get this complication after almost 2 months after the operation. My doctor in spain told me it usually happens in the first month. and you are doing the stryde nail and walking everyday. This is a complete surprise to me.
the treatment for this complication is the blood thinners so you should be ok with going forward. Best of luck to you Erkan!
Did you find out which leg the complication came in? Is the injections you were taking more powerful than xarelto?
regards,
sergio
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Were you only given aspirin Erkan as the "blood thinner" before Mr. Erkan? So sorry you went through that but glad you caught it in time.
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I have something important to tell you. About 2 weeks ago I felt a strong pain in my right leg while stretching. Probably a muscle strain. since then my right leg was a bit swollen and hurt more than my left. but nothing bad. My mother, (she is nurse), recently saw the slightly swollen leg and has asked me every day since, that I should clarify whether it is not a thrombosis. Since I take prophilaxic thrombosis injections every day and I also exercise regularly, I ignored it but made an examination today to calm her down. and the result was unfortunately really thrombosis. I was shocked. They immediately called the ambulance. It was a scary feeling. They have now switched to xarelto as bloodthinner. of course i'm a little concerned now. I hope I can still finish distraction as planned. what I mean by that: if you are unsure, it is better to get checked. I would have never thought that its thrombosis in my case since the only indication was light swelling which I was blaming on the muscle strain. As you know this could have a deadly ending. maybe my mother saved my life by doing this!
Sorry to hear that mate but lucky it was identified in time. Is there a reason Dr Koehne didn't have you on xarelto from the beginning? I am currently taking xarelto at 3 and a half weeks post op and have been on it since the time of the surgery.
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dear Erkan,
God bless to your mother for saving your life. oh dear God this is a scary operation. It is surprising to me that you get this complication after almost 2 months after the operation. My doctor in spain told me it usually happens in the first month. and you are doing the stryde nail and walking everyday. This is a complete surprise to me.
the treatment for this complication is the blood thinners so you should be ok with going forward. Best of luck to you Erkan!
Did you find out which leg the complication came in? Is the injections you were taking more powerful than xarelto?
regards,
sergio
Yes its very suprising! I dont know how long i do have the deep vein thrombosis. I could have it longer without any signs? I dont know. But for about 2 weeks something was different. I was blaming it on the muscle strain. During the lengthening phase you go through all kind of feelings and pain so this wasnt anything I was thinking about.
I asked the doctor here at my hometown how this is possible since I get injection since day 1 which should prevent thrombosis. His answer was that its only 80-90%. As everything. Nothing is 100% safe. The injection were less powerful but regular therapy for preventing thrombosis. The Xarelto I was given now is much stronger and is for the case if you already have thrombosis. Xarelto is normally overkill for preventing thrombosis and can have other dangerous side effects.
Were you only given aspirin Erkan as the "blood thinner" before Mr. Erkan? So sorry you went through that but glad you caught it in time.
No I was given the regular injection since day one. They are called Mono embolex 3000 in germany and are standard after operation. Cant blame the Dr. Its really bad luck
Sorry to hear that mate but lucky it was identified in time. Is there a reason Dr Koehne didn't have you on xarelto from the beginning? I am currently taking xarelto at 3 and a half weeks post op and have been on it since the time of the surgery.
Where was your surgery? Here they usually use the injection as prevention which should normally be enough and xarelto can have other rare dangerous side effect. I think this is the reason. But maybe this will change in the future?
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Yes its very suprising! I dont know how long i do have the deep vein thrombosis. I could have it longer without any signs? I dont know. But for about 2 weeks something was different. I was blaming it on the muscle strain. During the lengthening phase you go through all kind of feelings and pain so this wasnt anything I was thinking about.
I asked the doctor here at my hometown how this is possible since I get injection since day 1 which should prevent thrombosis. His answer was that its only 80-90%. As everything. Nothing is 100% safe. The injection were less powerful but regular therapy for preventing thrombosis. The Xarelto I was given now is much stronger and is for the case if you already have thrombosis. Xarelto is normally overkill for preventing thrombosis and can have other dangerous side effects.
dear Erkan,
did you perform the repeat test to check if your blood clots has improved? and can you tell me the name of the injection you were given including the company name? I want to do some research on this topic.
sergio
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dear Erkan,
did you perform the repeat test to check if your blood clots has improved? and can you tell me the name of the injection you were given including the company name? I want to do some research on this topic.
sergio
The blood clots were detect today for the first time. Im sure they will check it again after some time! The injection were called: mono embolex 3000
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unfortunately I have to stop the distraction :// Dr Koehne adviced to stop and that only after the vein opens further distraction is allowed. I wrote in the beginning that my goal is 4,5-6,00 cm. Im at 4,7cm right now. I would love to make the 6cm but safety first! There is still a chance that the vein opens before the bone consolidates but that has to be carefully monitored.
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unfortunately I have to stop the distraction :// Dr Koehne adviced to stop and that only after the vein opens further distraction is allowed. I wrote in the beginning that my goal is 4,5-6,00 cm. Im at 4,7cm right now. I would love to make the 6cm but safety first! There is still a chance that the vein opens before the bone consolidates but that has to be carefully monitored.
dear Erkan,
I am feeling sad to hear this but health always comes first. I didn't know that the lengthening causes the blood clots. I had thought that it's the first operation which causes it (like any fracture operation). I don't understand the concepts here. Why should the lengthening cause the clots or worse them? Lengthening will creates the new blood vessel tissues and not make the existing blood vessels smaller.
Erkan, it would also help me to see the photo of your leg with the dvt.
cheers,
sergio
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dear Erkan,
I am feeling sad to hear this but health always comes first. I didn't know that the lengthening causes the blood clots. I had thought that it's the first operation which causes it (like any fracture operation). I don't understand the concepts here. Why should the lengthening cause the clots or worse them? Lengthening will creates the new blood vessel tissues and not make the existing blood vessels smaller.
Erkan, it would also help me to see the photo of your leg with the dvt.
cheers,
sergio
We really dont know the real cause of this since its very unusual at this stage and under this circumstances ( stryde, full mobility and injection). I have made a picture of both legs but even I dont see a real difference. The swelling is minimal. But my right leg feels heavier. I just blamed it on the distraction an muscle strain. Maybe the muscle strain two weeks ago caused the thrombosis? Just a theory. My Dr recommended to check if I maybe had covid. This could also be a potential risk for thrombosis.
https://imgur.com/a/GbQl962
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Where was your surgery? Here they usually use the injection as prevention which should normally be enough and xarelto can have other rare dangerous side effect. I think this is the reason. But maybe this will change in the future?
I had my surgery in Germany with Dr. Betz. I had the injections in the hospital but then switched to xarelto after discharge.
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What dosage? I do get now 15 mg twice a day. You got probably less since it should only prevent it.
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Really hope you’ll be able to reach the 6cm man! As you said, safety first, this surgery is no joke, god bless your mother identified the problem in time!
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Hello everyone I’m a quiet and silent cll patient. I had my surgery JAN 31 with dr. Paley in Poland at his institute as I could not travel to the US due to Covid. My journey started with complication of minor fat embolism as dr. Paley called it but it scared them and he told me I’m one of the 3 patients he has seen this happen before. I was in icu for 3 days.
I am 43 years old and started surgery with 176.5 cm aiming to get to 184 cm.
I have been in poland since then doing my regular physios sometimes 2 hours and recently when I reached 4 cm I had an irregular heartbeat and I rushed to ER. Poland for that matter isn’t most first world and even though I’m at best private hospital here it’s still not my first preference.
I was asked to shift to aspirin when injections finished and when irregular heartbeat happened I did blood tests. I refused to accept from local polish docs that it’s all in my mind. I had care taker who rushed me to ER. They did ct scan ecg and finally I asked for ultrasound of legs and they said only blood shows dimmer levels elevated along with liver enzymes being elevated too. Apparently also part of post surgery. So I am now on 2injections per day of 40mg of heparin which isn’t something I look forward to daily. I am shocked and surprised that docs only do x rays and not blood tests every 2 weeks or a monthly blood check.
In any case next week I should be at 5.5. Cm distraction and 182 cm height. I am being adamant on blood tests next week as after 8 weeks post surgery dimmer levels should start to show normal levels along with liver enzymes.
Dr. Paley says that distraction is not affected by veins or clots.
But I am no doctor and I feel every time I do distraction now my breathing is bit heavier. What truly helps me are deep breaths throughout day.
I started walking and have been active with right leg struggling at time’s due to my 2 acl surgeries I had as I was an active sportsman.
I have had many surgeries in life for various reasons but this surgery is another league.
I suggest all cll patients to be in solid shape and by that I mean from lungs to liver to heart to all and have all pre tests done. In hindsight now if I knew I had fatty liver maybe I shouldn’t have done surgery.
Doctors do their job and you are left alone with physio or an assistant doc but it is pretty much upto every individual to monitor how they feel.
I have gone ahead and also bought an oxy meter to check oxygen levels and beats per minute just in case. Prevention is better than cure.
The energy levels post this operation are low low for me. It’s like 4 hours of regular work and I feel like I’m 90 years old. Hoping energy levels improve which all say only come back in 6 th month.
Dr. Paley would be visiting in may in poland again as he has an excellent practise here for many deformities and heavy cases with children which are another league of complexities.
So overall yes I am thankful and blessed to be alive but in hindsight if one is doing this surgery I would recommend regular blood tests and be on dot yourself. We know our bodies better than anyone. Any deviation I would say go to ER. Don’t google or check the forum alone.
Just my 2 cents and need the prayers and love for all to complete this journey.
Does anyone have literature on fact that distraction may cause embolism?
Thanks
ahd
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its really scary to read all these. as a current precise patient, could you tell me what signs i must look into to detect this early?
erkan said he had swelling, what did you(ahd) notice to suspect this? abnormal heartbeat?
i also read literature on covid or its vaccinr increasing the risk...@ahd, did you have covid or its vaccine ?
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Hello
I was eating garbage after having read on forum eat your way to glory and one of days I was eating a full pizza and coffee and coke. I think my eating became unhealthy as I assumed whatever I eat would consume it. But remember previously I had fatty liver in blood tests which I guess comes with drinking or age or bad life style. I didn’t specifically prepare for surgery as I thought I’m just in my 20s still and I’ll recover.
So what happened was that my heart beat became very fast and erratic. I rushed to ER as I mentioned and dimmer levels came elevated. Only then they did ct scan ultrasound and ecg. I was fortunate clot didn’t form to reach but blood level showed signs
So yes heart beat and heavy breathing was for me.
I would suggest following
1. Eat well but healthy. You aren’t moving much so don’t stuff junk
2. Have blood tests every 2 weeks. Drink lots of water and that also pushed u to go to toilet more often
3. Breathing excercises daily. Getting out of bed every 2 hours and I was lazy watching tv at times.
4. Get an oxypulse meter for home to check oxygen levels.
5. Continue heparin till distraction no matter what.
6. Do not panic breathe heavily and have emergency on speed dial. Pain worsens it.
7. Besides this inside ankle of right leg and lateral femoral nerve of left leg has gone numb with tingling sensations. But that dr. Paley says is from surgery and is normal and over time when we get active these nerves come back.
I have been told to continue with distraction I am trying for 7.5 and currently close to 5.5.
Listen to your body it will give you signs. Don’t over exert either.
Over all it’s tough journey mentally physically and all levels.
Take each day as it comes as some days are excellent and some just very tiring.
I am still learning about energy levels being so low and adapting to this new pace.
And pls pls have someone with you. I had no one past 2 months and it really sucks emotionally. That’s why I have a care taker so we have something to share or talk and he can always be around if I need to rush somewhere.
Hope this helps.
I will brief all on my blood tests next week and let’s see if dimmer levels have come down which they should as they only stay elevated 6 weeks post surgery.
But I am really pushing local docs here in absence of dr. Paley and they might not like my approach but I have paid 100 usd for this and if I’m just left alone to figure it all out myself. No thank you. I will push the limits do research and continue with blood tests so these docs know I’m not just a number
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Hopefully you will able to reach your goal, if not then you still achieved a good gain and recovery should be very easy.
Are you doing much exercise? Does Dr Kohne allowing cycling in a gym? Do you have any exercises for plantar flexion, they might help promote blood flow.
Do you you have any family history of clotting disorders, they are very common?
D dimer is a non specific test an ultrasound is much better
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dear Ahd1978,
its normal protocol to do only the xrays every two weeks. All the doctors I have consulted told to me this.
This is my humble opinion from my side friend: I think some of this things are in your head. the mind can play games on you. I want to tell you a short story. When the pandemic was at its peak I fell ill and thought I Had got the covid. I knew all the symptoms from Google and news channels. One day after coming back from the super market I felt more tired than the usual. So I convinved myself that I had the covid. I slept on my bed except to eat and go to bathroom and kept thinking about my breathing and heartrate. My heartrate was in consistently in the 120 and above. my oxygen levels were in the normal as per the oxymeter. Then after 2 days of living in the fear like this I called the ambulance and got the covid test done and it came negative. Then automatically my symptoms vanished away.
anyway the health is precious and if you want to do more tests and be safe then it's not a problem. But I just wanted to tell you the tale of my story of anxiousness which made me think I have severe the heart problems and breathing problems but it was nothing.
And Ahd1978, THANK YOU for asking Dr Paley about whether dvt means you should stop the lengthening. I am finally very happy to hear this answer from the expert.
cheers,
sergio
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Ahd1978 wrote some very very good points. you shouldn't expect doctors to notice everything by themselves! Everyone feels their own body best. regular blood tests and be on dot yourself!
Wish you the best!
Hopefully you will able to reach your goal, if not then you still achieved a good gain and recovery should be very easy.
Are you doing much exercise? Does Dr Kohne allowing cycling in a gym? Do you have any exercises for plantar flexion, they might help promote blood flow.
Do you you have any family history of clotting disorders, they are very common?
D dimer is a non specific test an ultrasound is much better
Thank you! I was not thinking about cycling, but I will ask him. I wear compression stockings during the day and take regular walks. I avoid sitting and standing.
There is no clotting disorder I know about in our family. My father had thrombosis because he got a bandage wrong in the hospital over the weekend.....
Yeah I ve got an ultrasound.
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I agree totally
The local docs also gave me anti anxiety meds which I tried for few days but made my mouth dry and next day groggy.
I am taking each day as it comes. I avoid any googling as I understand totally. But I only went to ER when heartbeat was erratic.
And possibility of clot came up only when ER doc checked blood dimmer levels and found them elevated.
With heparin injections one has to monitor blood tests regularly. So my plan is to use injections till distraction phase which I am away from by 4 weeks. Then move to xarelto for next 2 months till I am fully active.
Btw dr. Paley also gets very upset when I ask him questions from reading online or forum. He does very very complex surgeries and for all his patients he replies online within the same day. Sometimes same hour and I respect that a lot.
He is direct and to the point.
So when I ask him doc do I continue distraction he will reply yes or no and I have to follow through
If you wish to know any further things happy to receive personal messages.
Are you doing surgery Sergio ?
Why are all so much against reaching full potential of 8 cm for femur. I can tell you one thing in mirror every cm counts.
I don’t see any change in dynamics yet for myself at 5.5.
Maybe last inch would change that but I wouldn’t know as with tightness only once it’s gone during consolidation that I would know how well now I can handle new height.
Any suggestions
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Also I want to highlight the case of the Canadian Indian guy who died from a pe with dr. Guichet
His sister has written a heartfelt column on the same.
This is by no means to scare anyone including myself.
But he was fit and a young runner too.
He had signs in previous week and his family told him to get it checked which he ignored.
When clot happened he tried to rush but was too late.
So moral of story is like I have said before we know our bodies. If you feel tired unusual pain or anything out of ordinary don’t be doctor for your self.
Prevention is better than cure. Get to ER and no harm in doing a blood test.
That’s just my opinion.
And I am one of few cases who had fat embolism Andy surgery was stopped for hours before paley could continue again. Reasons unknown. Bone was too hard so reaming became difficult for his tools. Other issues could be fat movement in blood.
Of all surgeries in my life. This one has given me a good run for my value for life.
So just sharing with all.
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dear Anhd1978,
now your situation is clear to me. But I think that you should have done the d-dimer test before the operation also to be sure its not the condition that you have from before the operation. d-dimer test is not the specific test for the dvt but an indicative test (you know this as you did the ultrasound test later).
are you comfortable with Dr Paley's response to continue the lengthening after this d-dimer test result? I think you should be because there is no clots so far. But you can ask to him if it's safe to continue even if there is the dvt later on (God forbid).
I have did the consultation with Dr Paley and I could not ask him many cross questions because he takes his time to talk and does not like questioning about the things he have already explained. He told to me many times "I have already explained this to you ..." when I asked to him some follow up questions.
Maybe we should just believe him?
After reading all this I am thinking it's the best to do the lengthening while living in a hospital with nurses. Dr Donghoon's facility provides this privilege.
And no Ahd I am not doing the lengthening. My biggest fear has been the deep bone infection but after reading all these stories and knowing that I am a very anxious person I think I will imagine such problems for sure even if they do not happen to me. I am planning to do the one leg first and then the other.
Your lengthening goal is personal to you Ahd1978 but your plan pre operation was to get to the 8cm and if Dr Paley assures you that this test report is O.K. for continuing the lengthening then you should continue..
cheers,
sergio
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Brother I think deep bone infection is very very rare
I had done 2 consultations one with dr. Paley and other dr. Giotikas
Dr. G handles trauma and serious cases. In many cases he explained to me the injured have bone damaged to point where even saving life becomes critical let alone the leg and they still manage to save many accident cases. And no cases of bone infection.
Dr. Paley I have seen myself here in poland the critical cases he handles and various deformities in kids with some kids missing bones from birth and he has done miracles to save their lives and legs from amputation. Again no cases of deep bone infection.
I agree with you I should have had proper blood work done before surgery to have pre and post levels.
But now yes I am taking dr. Paley word for it. He is experienced and most renowned
He has reduced my distraction from 1mm to .75 which actually has helped with pain and overall uncomfortable feeling.
I guess towards end I would go to .50 to push out maximum I can.
Thanks so don’t fear about the bone infection. With right surgeon you are in good hands.
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I have something important to tell you. About 2 weeks ago I felt a strong pain in my right leg while stretching. Probably a muscle strain. since then my right leg was a bit swollen and hurt more than my left. but nothing bad. My mother, (she is nurse), recently saw the slightly swollen leg and has asked me every day since, that I should clarify whether it is not a thrombosis. Since I take prophilaxic thrombosis injections every day and I also exercise regularly, I ignored it but made an examination today to calm her down. and the result was unfortunately really thrombosis. I was shocked. They immediately called the ambulance. It was a scary feeling. They have now switched to xarelto as bloodthinner. of course i'm a little concerned now. I hope I can still finish distraction as planned. what I mean by that: if you are unsure, it is better to get checked. I would have never thought that its thrombosis in my case since the only indication was light swelling which I was blaming on the muscle strain. As you know this could have a deadly ending. maybe my mother saved my life by doing this!
Hi Erkan!
Your news has left me frozen ... Although we have not spoken much yet, I have felt pain like when a family member or close friend has a serious problem ... As our situation with the surgery is very similar and we are almost in the same phase of the process the news has shocked me a lot. I really appreciate your advice to improve my walking, which is really starting to work ;) , although now that is not something important ...
It scares me to think that leg thrombosis has few detectable symptoms in our current state, but luckily your mother has helped you detect it early.
What have the doctors and the doctor recommended for you to improve and prevent it from happening again, in addition to the blood thinner?
Although you still had in mind to continue lengthening your legs a little more, the most important thing right now is your health, so I send you all my strength and wishes so that you get better and this great scare will pass soon ...
I hope you give us good news soon, good luck friend!
Keep strong!!
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Brother I think deep bone infection is very very rare
I had done 2 consultations one with dr. Paley and other dr. Giotikas
Dr. G handles trauma and serious cases. In many cases he explained to me the injured have bone damaged to point where even saving life becomes critical let alone the leg and they still manage to save many accident cases. And no cases of bone infection.
Dr. Paley I have seen myself here in poland the critical cases he handles and various deformities in kids with some kids missing bones from birth and he has done miracles to save their lives and legs from amputation. Again no cases of deep bone infection.
I agree with you I should have had proper blood work done before surgery to have pre and post levels.
But now yes I am taking dr. Paley word for it. He is experienced and most renowned
He has reduced my distraction from 1mm to .75 which actually has helped with pain and overall uncomfortable feeling.
I guess towards end I would go to .50 to push out maximum I can.
Thanks so don’t fear about the bone infection. With right surgeon you are in good hands.
Thanks Ahd1978. I wish to you and Erkan good luck and hope that the dvt resolves fastly for Erkan and never becomes a problem for you. If you have some spare time please consider writing the diary to share your unique experience and the perspectives on this operation.
regards,
sergio
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Hi Erkan!
Your news has left me frozen ... Although we have not spoken much yet, I have felt pain like when a family member or close friend has a serious problem ... As our situation with the surgery is very similar and we are almost in the same phase of the process the news has shocked me a lot. I really appreciate your advice to improve my walking, which is really starting to work ;) , although now that is not something important ...
It scares me to think that leg thrombosis has few detectable symptoms in our current state, but luckily your mother has helped you detect it early.
What have the doctors and the doctor recommended for you to improve and prevent it from happening again, in addition to the blood thinner?
Although you still had in mind to continue lengthening your legs a little more, the most important thing right now is your health, so I send you all my strength and wishes so that you get better and this great scare will pass soon ...
I hope you give us good news soon, good luck friend!
Keep strong!!
Hey Fschez!
thank you for the encouraging words.
I read something interesting. In a study it was found that the risk of thrombosis is significantly increased as a result of torn muscle fiber. I told you that about 2 weeks ago I felt a strong pain in the muscle during my stretching exercises. Maybe I tore my muscle fiber. I think that's one of the reasons that led to my thrombosis.
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thanks to everyone here for the support!
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Hey Fschez!
thank you for the encouraging words.
I read something interesting. In a study it was found that the risk of thrombosis is significantly increased as a result of torn muscle fiber. I told you that about 2 weeks ago I felt a strong pain in the muscle during my stretching exercises. Maybe I tore my muscle fiber. I think that's one of the reasons that led to my thrombosis.
Hello again friend!
The relationship between fiber breakage and increased risk of thrombosis is interesting and at the same time disturbing ...
I suppose that it is very difficult to know for sure the origin of the thrombosis, but to minimize the risks, among other healthy habits, we will have to take into account not to force our muscles excessively ...
The important thing now that you are under control is that you take good care of yourself and improve.
Good luck!!
Hope you have good news soon.
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Erkan - hope you’re doing better! Thank goodness your mom was there to steer you to get the issue spotted and addressed. A great reminder for all to not just push push for the height but to always be as safe as possible.
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I have good news. The thrombosis has partially resolved. Had a duplex sonography yesterday and it is much better than 10 days ago. I've tried on some new clothes to see how I look in them now. i am really happy with my height and proportions now. maybe I still make 3mm to have full 5cm if possible.
Ive made some pictures in a self Photo Shoot :p
https://imgur.com/a/9eqyq0E
as a reminder, this is how I looked before. Unfortunately not in the same clothes. maybe I'll make a comparison with the same clothes in the future
https://imgur.com/a/bSa63KE
thanks for your support!
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Hey brother erkan
I had you in my prayers and was actually going to message you to ask how it has been going for you.
Pics look awesome and so so happy to hear results r clear.
I too had my blood test and dimmer levels now down from below. Still not normal but have another test end of month and by then would be in normal range.
I agree with you new height just looks so awesome. It’s like shock when u wake up and you have these tall legs.
I am close to 182 cm but I started with 176,5 so it’s relative to each of us.
I am contemplating pushing full 8cm coz in effect I would only get 7.3 to 7.4 cm.
Are you going to do same. My flexion rom and all is good. And I am only doing .5 mm distraction. So all under control.
Are you going to start to distract further ?
Let me know brother
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Hey ahd!
Its great to hear you are doing better! Yeah I do have to get used to the new height either.
I will stop at 5cm. So only 2mm distraction. I will not go further. My End height is your starting height :D.
I could push another cm but I feel like this is the perfect height for me. It fits my body and feels right.
I wish you the best, and a fast recovery my friend!
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Your proportions looks amazing Erkan. Cheers man!
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Thx man!
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I have good news. The thrombosis has partially resolved. Had a duplex sonography yesterday and it is much better than 10 days ago. I've tried on some new clothes to see how I look in them now. i am really happy with my height and proportions now. maybe I still make 3mm to have full 5cm if possible.
Ive made some pictures in a self Photo Shoot :p
https://imgur.com/a/9eqyq0E
as a reminder, this is how I looked before. Unfortunately not in the same clothes. maybe I'll make a comparison with the same clothes in the future
https://imgur.com/a/bSa63KE
thanks for your support!
Hi again Erkan !!
After seeing the 2 photos you look better and much taller now ... If you are going to try to increase 2 mm more I suppose it is because you are already much better. I'm really glad you got over the shock and are happy with your new height.
I began to feel the difference in height when I was reaching 4 cm, and every time you feel better ... :D
Hope it all goes well for you,
Keep strong my friend !!
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dear Erkan,
You are looking great. I hope that this operation will cure your mental difficulties and finally stop your dependency on the medications and you will become the kind person to the world. Even though I cannot see your face in the photo I can see your smile.
regards,
sergio
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Good news. The proportions look better now
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Erkan did you lenghening the femur ?
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Hey!
Yes I did Femur +5cm. Ive made a clip with blue skinny jeans. It shows the femur, but I think it doesnt catch the eye. Im wearing the compression stockings under the jeans. It makes the jeans look even tighter.
https://imgur.com/a/yYr5oxX
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Hey!
Yes I did Femur +5cm. Ive made a clip with blue skinny jeans. It shows the femur, but I think it doesnt catch the eye. Im wearing the compression stockings under the jeans. It makes the jeans look even tighter.
https://imgur.com/a/yYr5oxX
Congratulations my friend !!
You look tall and with good proportions. You also walk quite well after lengthening 5 cms ...
Keep it up, sure that you will soon regain your athletic ability before the surgery ... ;)
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You Look really. I could Not notice anything .
First i thought you lengthening the tibias.
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hi, hope you are doing well. Can you please share Doctor Koehne's webpage?
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hi, hope you are doing well. Can you please share Doctor Koehne's webpage?
Hey of course,
https://beinverlaengerungszentrum.de/beinverlaengerung-muenchen/?cli_action=1619016183.568
I had xrays today. We did just check if both sides are equally distracted. Im at 5,2 L and 5,3 R. So I will do my last distraction on the left leg today and start officially my consolidation phase :).
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Hi Erkan, i've just sent you a PM, can you please check your inbox? Thx
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thank you!
wow, sounds good, very happy for you.
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I had xrays today. We did just check if both sides are equally distracted. Im at 5,2 L and 5,3 R. So I will do my last distraction on the left leg today and start officially my consolidation phase :).
Congrats on finishing the distraction phase, Erkan! Longer legs look better on you for sure.
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Congrats Erkan!
Do you know if there were other Koehne patients with a deep vein thrombosis?
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Hey,
my surgery is in about a month, I will make updates of my progress here.
Current height: 172cm
Wingspan: 173
Inseam: 80
Tibia/Femur ratio: 0,79
Goal: 176-178cm
Here are some mockups with shoes (+3cm) and with femur +6cm. So its 175cm on the right before and 181cm if Ill do the full 6cm.
https://imgur.com/a/1xMmaij
Thanks for the mock ups. It’s crazy how much of a difference 6cm makes. Hope you are on track to achieve your goal :)
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Hey of course,
https://beinverlaengerungszentrum.de/beinverlaengerung-muenchen/?cli_action=1619016183.568
I had xrays today. We did just check if both sides are equally distracted. Im at 5,2 L and 5,3 R. So I will do my last distraction on the left leg today and start officially my consolidation phase :).
Congratulations Erkan!
I hope you are having a few better days in your consolidation phase and that you are enjoying your new height.
Surely you will soon return to an active life and with much more security and self-esteem.
Take care my friend !!
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Congrats Erkan!
Do you know if there were other Koehne patients with a deep vein thrombosis?
thank you :)
I dont know since he is doing it for very long but I think Im the first one since precise/Stryde.
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I have good news. The thrombosis has partially resolved. Had a duplex sonography yesterday and it is much better than 10 days ago. I've tried on some new clothes to see how I look in them now. i am really happy with my height and proportions now. maybe I still make 3mm to have full 5cm if possible.
Ive made some pictures in a self Photo Shoot :p
https://imgur.com/a/9eqyq0E
as a reminder, this is how I looked before. Unfortunately not in the same clothes. maybe I'll make a comparison with the same clothes in the future
https://imgur.com/a/bSa63KE
thanks for your support!
Looking like a model
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Looking like a model
Thx for the kind words :)
Just a quick update, Im doing fine. My life is already back to normal. Im of course not into sports, but doing the normal everyday things. I do not have pain. I still feel little bit stiff when I wake up.
My gait is improving. Sometimes I do even forget that I had the surgery. Im still very happy that I did it an can highly recommend it to people who suffer from height neurosis. It did realy change my life for the better! I will have x-rays in 3 weeks to check my bone growth. I will keep you updated!
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Thx for the kind words :)
Just a quick update, Im doing fine. My life is already back to normal. Im of course not into sports, but doing the normal everyday things. I do not have pain. I still feel little bit stiff when I wake up.
My gait is improving. Sometimes I do even forget that I had the surgery. Im still very happy that I did it an can highly recommend it to people who suffer from height neurosis. It did realy change my life for the better! I will have x-rays in 3 weeks to check my bone growth. I will keep you updated!
Erkan, could you please ask Dr Köhne, which lenghtening nail he is planning to use in the future? As you know the Stryde Nail has been banned worldwide.
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Erkan, could you please ask Dr Köhne, which lenghtening nail he is planning to use in the future? As you know the Stryde Nail has been banned worldwide.
I will be there next week so I can ask him.
Good news: my dvt is completely gone :)
Here is a short clip of my gait exactly 4 months post surgery:
https://imgur.com/a/lB89qxs
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I will be there next week so I can ask him.
Good news: my dvt is completely gone :)
Here is a short clip of my gait exactly 4 months post surgery:
https://imgur.com/a/lB89qxs
Congratulations Erkan !!
I am glad to see that you are well and you are walking normal again. I'm sure you will be very happy right now ...
Enjoy your new height !!
Take care my friend!
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I will be there next week so I can ask him.
Good news: my dvt is completely gone :)
Here is a short clip of my gait exactly 4 months post surgery:
https://imgur.com/a/lB89qxs
Very nice gait! Congrats, Erkan! Enjoy your new life! Were you at "Therme Erding"?
More questions to Köhne:
- Which lenghtening nail he uses at the moment?
- When does he expect Stryde Nail to be back on market?
Thank you!
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Congratulations Erkan !!
I am glad to see that you are well and you are walking normal again. I'm sure you will be very happy right now ...
Enjoy your new height !!
Take care my friend!
Thanks, wish you the best too!
Very nice gait! Congrats, Erkan! Enjoy your new life! Were you at "Therme Erding"?
More questions to Köhne:
- Which lenghtening nail he uses at the moment?
- When does he expect Stryde Nail to be back on market?
Thank you!
Thx! Hehe it was another Therme but I was in Erding too;)
I will see him in two days so I can ask him. I think he uses Precise 2 at the moment.
Best regards
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Very nice gait! Congrats, Erkan! Enjoy your new life! Were you at "Therme Erding"?
More questions to Köhne:
- Which lenghtening nail he uses at the moment?
- When does he expect Stryde Nail to be back on market?
Thank you!
Dr Koehne is using the Precice nail until stryde gets approved again. He expects stryde to come back early 2022. Thats what Nuvasive told him. But nobody can know for sure.
My xrays look good. I will be probably allowed to do sports in 6 weeks :)
Best regards!
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Dr Koehne is using the Precice nail until stryde gets approved again. He expects stryde to come back early 2022. Thats what Nuvasive told him. But nobody can know for sure.
My xrays look good. I will be probably allowed to do sports in 6 weeks :)
Best regards!
Thank you! Great to hear that ur x-rays look good! Keep us posted! Wish you the best!
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Dr Koehne is using the Precice nail until stryde gets approved again. He expects stryde to come back early 2022. Thats what Nuvasive told him. But nobody can know for sure.
My xrays look good. I will be probably allowed to do sports in 6 weeks :)
Best regards!
But Precice is not available right now in Europe... Did he say anything about that?
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But Precice is not available right now in Europe... Did he say anything about that?
Yes he has the nails in stock.
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But Precice is not available right now in Europe... Did he say anything about that?
Forget Precice! Do you really want to use a walker/wheelchair/crutches for six months?
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Forget Precice! Do you really want to use a walker/wheelchair/crutches for six months?
I'm doing just 5 cm, so not THAT long. Anyway, I don't want to do tibia, and I have no money for betzbone so... Precice it's my only option if it comes back before August lol. I do am worried it takes longer
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Here is a short clip of the scars 4 months post surgery.
I did point with the finger where the scars are. The other skin irritation are not from LL.
https://imgur.com/a/UXUbkLu
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Here is a short clip of the scars 4 months post surgery.
I did point with the finger where the scars are. The other skin irritation are not from LL.
https://imgur.com/a/UXUbkLu
congrats. so many of the scars are so minimal. and as i figured. really staying under the 5.5cm mark seems to show awesome proportions and great aesthetics. coongratulations on the recovery. really great choice. sucks stryde is gone haha. lucky you man!
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Hello folks,
a quick update. Unfortunately, I'll need an additional surgery. Since my bone is not growing good enough on the outerside, my doctor will swap the Stryde nail for a standard nail in January. I think that has also something to do, with the fact why the nail has been recalled. I will have to leave this new nail for about 1 year before it will be removed. My doctor is pretty sure, that the bone will grow together properly after the nail change. There are no additional costs for me, as insurance will pay for it, but it is still an additional operation which I would be happy to skip :p.
Otherwise everything is fine with me. Im still very happy that I ve made this surgery. I haven't done any intense sport for 11 months, now because the bones are not yet 100% stable and I don't want to take any risks. Like many of my predecessors, I emphasize that it can often take longer than expected before you can do all kinds of sports again.
Here is another picture from my last x-ray. https://imgur.com/a/ON3vIMd
Best regards!
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Hi Erkan, thanks for your update!
Did this malunion only occur in your left femur? Will the new nail be a full weight bearing nail?
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I'm on my way home from the doctor. actually it had to be the operation clarification meeting today. however, the bone formation has improved significantly over the last x-ray in september which Ive included in my last post. The doctor has now decided to make another appointment in March. If the bone grow continues like that, I probably won't need an additional surgery after all. I was positively surprised. In addition, I got the approval to be able to do normal sport. :)
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Hi Erkan, thanks for your update!
Did this malunion only occur in your left femur? Will the new nail be a full weight bearing nail?
Yes in both sides
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I'm on my way home from the doctor. actually it had to be the operation clarification meeting today. however, the bone formation has improved significantly over the last x-ray in september which Ive included in my last post. The doctor has now decided to make another appointment in March. If the bone grow continues like that, I probably won't need an additional surgery after all. I was positively surprised. In addition, I got the approval to be able to do normal sport. :)
wish you well and it looks like lot of callus formed so hope its a speedy recovery
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Keep us updated man because I am looking forward to have a consultation in germany with Peter Thaller soon and knowing that there is another good surgeon there kinda makes me feel better lol
Glad you maybe can avoid the 2nd surgery .
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Hi Erkan, how are you doing? Any updates?
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Hey! Yes Penzberg Klinikum:)
Does Dr Kohne do the surgery within Munich as well?
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no, he conducts his surgerys in penzberg, which is about a 1h train ride from munich.
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no, he conducts his surgerys in penzberg, which is about a 1h train ride from munich.
:( I wish he also did surgeries in Munich.
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Hi Erkan,
is everything ok? Any updates?
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Hello everyone,
Here is a quick update,
I've had severe pain in my right leg for a few weeks. Especially in the evening so I have to take painkillers. X-ray and ultrasound are unremarkable. It feels to me as if the pain comes from the screws above the knee and radiates from there to the whole leg. It also looks a bit swollen in the area. Luckily my nails will be removed in September. I'm assuming the pain will go away after Nail removal.
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Hi Erkan i send you a pm, check it put if you can pls
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Just want to say you are a big inspiration for me Erkan. I'm the same height as your original height, my legs look the same as yours did, and I've never liked the way pants fit on them. Really considering this surgery and doing approx 5cm as well, and seeing your posts is what made me create an account here.
Hope you are feeling good despite your recent pains
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Thank you for the kind words redcentral!
Just wanted to tell everybody, that my nails were removed a few hours ago.
Everything went well. My legs already seem to feel lighter. this operation is much easier compared to the first. I'll be able to leave the hospital tonight. I have to take it easy for 6 weeks now (no sports or jumping allowed). Ill be on crutches for two day and then this phase of my life will be over.
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Thank you for the kind words redcentral!
Just wanted to tell everybody, that my nails were removed a few hours ago.
Everything went well. My legs already seem to feel lighter. this operation is much easier compared to the first. I'll be able to leave the hospital tonight. I have to take it easy for 6 weeks now (no sports or jumping allowed). Ill be on crutches for two day and then this phase of my life will be over.
if you do'nt mind can you pls check your DM?
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Congrats Erkan! You were always my role model! I wish you all the best for your future.
What's your conclusion about this surgery? Are u planning another LL surgery for the tibia?
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Congrats Erkan! You were always my role model! I wish you all the best for your future.
What's your conclusion about this surgery? Are u planning another LL surgery for the tibia?
Thank you!
this will be my last post here. To all people suffering from height dysphoria. It is worth it! I am very happy that I decided to have the surgery! I will not do a second tibia operation. More lengthening is not better. You quickly get used to the new height and the initial euphoria flattens out. if you lengthen too far beyond your limit and are left with chronic pain, I imagine that's horrible. In the last few months I did have occasionally pain coming from the stryde nail. I knew it was from the nail and that was the reason I did never regret the lengthening. But if this were something I would have to live with, I would deeply regret it. Hence my advice. Find a good doctor and set a realistic limit like 6cm femur and 4cm tibia.
All the best!
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My femur broke a few ours ago . I slipped on ice. Im shocked cant write more
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Sorry to hear, hope you are ok.
It is very hard to break the femur of a healthy adult. Have you had the nail removed? Is this poor consolidation, weakness from nail in situ or some stryde hangover?
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My femur broke a few ours ago . I slipped on ice. Im shocked cant write more
Fudge! Hope you recover soon. What impacts has this had on you now?
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Thank you!
this will be my last post here. To all people suffering from height dysphoria. It is worth it! I am very happy that I decided to have the surgery! I will not do a second tibia operation. More lengthening is not better. You quickly get used to the new height and the initial euphoria flattens out. if you lengthen too far beyond your limit and are left with chronic pain, I imagine that's horrible. In the last few months I did have occasionally pain coming from the stryde nail. I knew it was from the nail and that was the reason I did never regret the lengthening. But if this were something I would have to live with, I would deeply regret it. Hence my advice. Find a good doctor and set a realistic limit like 6cm femur and 4cm tibia.
All the best!
Nice post thanks !
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Oh god, I hope you recover soon!
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My femur broke a few ours ago . I slipped on ice. Im shocked cant write more
WTF. Wishing you the best. Please give us details when you can.
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Heres what he said in one post:
"Hello folks,
a quick update. Unfortunately, I'll need an additional surgery. Since my bone is not growing good enough on the outerside, my doctor will swap the Stryde nail for a standard nail in January. I think that has also something to do, with the fact why the nail has been recalled. I will have to leave this new nail for about 1 year before it will be removed. My doctor is pretty sure, that the bone will grow together properly after the nail change. There are no additional costs for me, as insurance will pay for it, but it is still an additional operation which I would be happy to skip :p.
Otherwise everything is fine with me. Im still very happy that I ve made this surgery. I haven't done any intense sport for 11 months, now because the bones are not yet 100% stable and I don't want to take any risks. Like many of my predecessors, I emphasize that it can often take longer than expected before you can do all kinds of sports again.
Here is another picture from my last x-ray. https://imgur.com/a/ON3vIMd
Best regards!"
I assume this has to do with why his bone broke.
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Hello everyone. Thank you for the kind words.
I try to write down what happened and how I feel.
My lengthening surgery was 2 years ago. my Nail removal was 5 months ago. The xrays before the removal showed good consolidation. Two months after the nail removal I was cleared to do sports etc. So i was already running and doing sports and everything was fine.
I cant even describe how ty I feel right now. Yesterday I was going on the street an slipped on an iceplate. I immediately felt and heard how the bone was broken. the break did not happen on impact but beforehand due to the force applied to cushion the fall. I was laying there on the ice plate for 30 min screaming and waiting for the ambulance.
I cant the describe the pain it was the worst pain I ve ever had.
an x-ray was taken in the hospital. the bone broke through completely.
the operation was a bit complicated but everything went well i was told by the doctor. the cuts on the leg are now huge and not comparable to the cuts from the original surgery but that is the least of my worries. The doctor said that the inside of the bone wasn't firm, but he can't say whether it was because of the fracture. but apparently the bone hadn't healed yet enough.
Im still shocked and worried and cant believe what happened.
I always tried to stay safe. Not lengthening huge amounts, keeping the nail longer in and I was also very carefully after the nail removal for much longer than 6 weeks.
:(
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"inside of the bone wasn't firm"
Any idea is that because removal of nail or has it been like that all the time this 2 years?
How hard did you fall? Did you bend you leg badly etc. ?
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I have no idea why this was the case. Probably just not healed enough. Im waiting for the call of Dr. Koehne. The bone broke during the fall but yes it did bend quite hard.
Im very stressed if this could also happen to the second leg. It will take very long for me to get over this.
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The pain of broke bone is terrible. I hope you recover soon.
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My femur broke a few ours ago . I slipped on ice. Im shocked cant write more
Hi Erkan,
I'm sorry to hear that! I wish you all the best and a speedy recovery! Which of your bone broke? The one with the standard nail that you got in January 22?
...the bone wasn't firm...
Could it be that the fracture was due to focal osteolysis? It was a common problem with the Stryde nail and one of the reasons why it was withdrawn from the market. Maybe you can ask Dr. Koehne about it.
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Thank you!
My right femur broke. I did not make the nail change back then, because the bone consolidated fine in the end. So I had the stryde nail in from beginning to to end without a change. The nail was in for 18 month and was removed 5 months ago.
I will have to make xrays of how the bones look now.
Dr Koehne didnt said anything about osteolysis.
The whole situation did scare me a lot. I will be very cautious in the future. The sound and the feeling of the bone breaking did make a serious trauma in my mind.
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Sorry to hear this. Read through your diary and it seems like you did everything right. Stryde might have had something to do this. Maybe for a few months before removal, patients should lift heavy weights so that the bone thickens? Just speculating, but I hope doctors and NuVasive start taking this account.
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After nail removal I have understood any sport should be avoided next 6 months. Only walking and normal moving allowed.
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My information was to wait 6 weeks. Ive waited 12 weeks anyway because I wanted to be on the safe side. My leg also did not brake during doing sports. I slipped pretty hard on the ice plate, but I dont think my femure would break in this situation without the lengthening. I would get hurt pretty bad anyway. We wont know for sure. I will definitely get Xrays of my left leg too.
I think its better to wait 6months with sports after nail removal for future patients. And even then just starting slowly.
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This really sucks. Felt hard to read. Hope you recover smoothly and I also hope you don’t have leg discrepancy now.
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Hope it has gotten better.
Any updates?
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Hi Erkan!
How are you?
Hopefully everything is ok with him! He hasn't been active for two months.
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If you have recent imaging data please put it at this thread. Redact any information that could be used to dox you.