Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: Adward on July 20, 2018, 10:55:08 AM
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Introduction: Am from Malaysian of Indian origin, trying to increase my height by 7 to 7.5 cms. I have already done 3 cms as of today. Please keep your advice flowing as it would be of great help.
The day before Surgery:
So I knew I had to get admitted to the hospital today for my surgery which is set for tomorrow so that all my procedural tests and pre-ops can be done. Visited temple for blessing and started my journey for the Hospital via Mr. Harry's clinic.
Had my mum and pa with me, still was a bit scared of everything now that I was on the other side of the knife. Being a doctor myself could understand the procedure and everything but still, you do need luck. As you all know like any other surgery CLL too can come with its own surgical complications.
You know every human being has a different pharmacokinetics and thus we all react to the treatment somewhat differently.
So what I had planned for myself was LON considering all the pros and cons of all other procedures.
Got admitted to the hospital around 7 pm. Had my tests done and after having my dinner slept off.
Day of Surgery:
I was taken for surgical pre-op around 9:30 am and to OT around 11:00 am. Surgery went normal and everything was fine by God's grace.
An important piece of knowledge: I chose general anesthesia against doctor's advice and didn't use epidural. So my first night after surgery was very painful even after use of most potent opioids.
I was really IIIIIn pain, but what kept me from crying out loud was a very caring staff in I. C. U and their constant consoling. It really helped me overcome my pain. The most important plank in all this were my parents.
Next day my pain had come down to almost half and was much more bearable. Thus I was shifted to my private room for my post-op care. One thing again that I should mention here is that the staff of the hospital was so good to me and my mum, that it made my stay seem more like holidays rather than for CLL.
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One thing that I found was that having your mother by your side during the initial phase of the surgery has really helped me. It has really increased my pain threshold to anything like 75% of my normal pain threshold.
Key point is that if you want to avoid using unnecessary painkillers than having someone who really cares for you really hurts a lot.
Whenever I had pain my mother would rub my feet for hours and hours and that really helped in relieving my pain. So here I want to find the opportunity to thank my super mom really for this and everything. She is my favorite superhero, so all my pain would be gone just like that. Love you mum. I know a child can never repay for all our parents do for us, but still would try my best. Thanks mom and dad. :) :-*
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All this while keeping in mind that pain is a subjective feeling and thus changes from person to person. It is also a textbook definition. For example, I might rate a painful stimulus differently than you all or anybody else. I didn't use any patch after the fourth day of my surgery though I was using iv pcm TDS and Dynapar BD.
I used Fentanyl pump only for my ICU time. After being discharged from hospital I used signoflam BD which is quite a general analgesic combination. Here I want to mention that some previous LLers post their surgeries have used fentanyl patches for a prolonged period of time, which I don't believe is a good strategy but because they don't belong to the Medical fraternity they make such bad choices. But doctors having a limited choice in their patient's pain management therapy especially in case of CLL and patients being too stubborn to let their doctor take lead here does make for such lousy decisions. Remember these drugs really take a heavy toll on your liver and kidney which are hugely involved in drug metabolism. So corporatization can be blamed for this which favors good reviews, even at the cost of patient well-being. Doctors are led into making such decisions because one bad review which might not be medically true or relevant can destroy your economic prospects. Thus patients should be more trusting and doctors should be more concerned.
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(http://i347.photobucket.com/albums/p445/HimV/1%203_zpsrash6cn9.jpg)
(http://i347.photobucket.com/albums/p445/HimV/1%202_zpsept7iulj.jpg)
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DAY 3: Today I again met Dr. Pradeep Sharma and thanked him for his good work. Also, thanked him for keeping my well-being before any fear of any bad review. Also met Harry who has helped us a lot during the last 3 days. He truly is a blessed soul. It's not mere a financial transaction that plays out here, rather more than that it is the true concern and sincere effort that matters for patients and on that, I would give Harry a 10 on 10.
Now comes evening and with evening comes bladder problem >:( :( :o :'(: I had my catheter removed this afternoon but my urine would not just come out. So they had to insert a thin feeding tube which allowed my urine to pass through. Had almost 1000 ml of fluid taken out which is huge.
(http://i347.photobucket.com/albums/p445/HimV/4%203_zpsu1osmogv.jpg)
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Another pic from the hospital.
(http://s347.photobucket.com/user/HimV/media/IMG-20180718-WA0003_zpsfxxmkmvi.jpg.html)
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(http://i347.photobucket.com/albums/p445/HimV/IMG-20180718-WA0003_zpsfxxmkmvi.jpg)
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keep this thread alive. & post with picture
How about pain now ??
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keep this thread alive. & post with picture
How about pain now ??
Yes I agree, the mans had a diary for the last 4 days and not even 1 comment. Even though most of us arnt thinking about going to this doctor we should still support a fellow LL'er, hell at least acknowledge him.
Anyways congrats on starting your journey Adward ;D ;D ;D!
I havnt done much research on Dr. Sharma, what made you choose him vs the other indian LL doctors?
Now comes evening and with evening comes bladder problem >:( :( :o :'(: I had my catheter removed this afternoon but my urine would not just come out. So they had to insert a thin feeding tube which allowed my urine to pass through. Had almost 1000 ml of fluid taken out which is huge.
For all of those people who keep asking if or why a foley catheter is necessary, this is why.
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DAY 3: Today I again met Dr. Pradeep Sharma and thanked him for his good work. Also, thanked him for keeping my well-being before any fear of any bad review. Also met Harry who has helped us a lot during the last 3 days. He truly is a blessed soul. It's not mere a financial transaction that plays out here, rather more than that it is the true concern and sincere effort that matters for patients and on that, I would give Harry a 10 on 10.
Now comes evening and with evening comes bladder problem >:( :( :o :'(: I had my catheter removed this afternoon but my urine would not just come out. So they had to insert a thin feeding tube which allowed my urine to pass through. Had almost 1000 ml of fluid taken out which is huge.
(http://i347.photobucket.com/albums/p445/HimV/4%203_zpsu1osmogv.jpg)
This looks like nice place, where is it? Also how much Dr. Pradip is charging you for the surgery?
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Day 4: It came with an even bigger bladder problem along with no stool passage. My bladder was full and full as in 1450ml ml full/ I was afraid it might burst. I had to go for feeding tube once again. In the evening I had to ask for an enema to be performed. Now since it was a Sunday and doctor Sharma had already told me a day before that he might not be available for Sunday morning and if needed I can contact him or duty doctor if any problem occurred. I now talked to the duty doctor and asked him to consult with doctor Sharma regarding my stool and bladder problem. Now my duty doctor after consulting about my problem with doctor Sharma came to the conclusion that a feeding tube should be used to empty my bladder for now and later a urinary catheter should be placed until next morning by when my case shall be discussed with specialists of the concerned departments and a final solution should be found out. Now on my request, my duty doctor permitted me for an experiment which came as an idea during our mutual medical discussion regarding my problem which was that it might just be a simple postural problem. And guess what it was? Yes, you are right I passed my first stool and much more importantly I urinated all by myself without any tube and believe me the feeling was of an extreme pleasure. :) :) One thing good that came well out of all this was that it kept me from thinking about my surgical pain. 8)
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Actually, I have some relatives in India who did research for me. He has been the lead surgeon on many of Dr. Singari's patients. Plus Harry was a very important factor. I talked to many doctors in India and outside but he understood the process of recovery well. Because after surgery recovery is what matters the most. Not many Physiotherapists understands the needs of an LL patient. Since I am from medical fraternity and understand the insiders deal well thus I came up with this decision.
I have already extended more than 3 cms now, so pain isn't much of an issue now. :D :D
I mentioned about this at the beginning of my diary. Thanks for all the support :)
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In total, I paid USD 14000 for surgery and three months stay inclusive of X-rays and food.
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In total, I paid USD 14000 for surgery and three months stay inclusive of X-rays and food.
What about average food & xray per plate cost ?
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What about average food & xray per plate cost ?
I have a package inclusive of everything, so don't have that information. If you mean food from outside than I believe it depends on your food habits. But as a rough estimation, you can take something between USD 18 to 60 for 1 person from an okay restaurant.
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Flashback Point: My surgery took more than what it was intended and had my mother crying and shouting in the hospital lobby over staff for my update. Technical glitches extended my surgery by sometime. But my mother was all furious and her tigress had just come out in open sensing her cub was in trouble. I am sure that not just me but the whole hospital must have had the most difficult time of their work life. :o ;)
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On the 5th day, I was shifted to the guest house where I made some changes as to my wish. Had a freshly bought linen put on the bed and new pillow covers as well. I never trust hotels or guest houses with the linen. Yes, you can say that being a doctor you do develop certain freakish habits like not being able to trust anyone but you when it comes to cleanliness etc. But don't even dare to use terms like OCD here...hahaha because that is like a whole different level.
Now I was having an urge to urinate and like always everyone was telling me that I would be able to pass urine in a urine jug or something even though I was pushing against it and guess what happened? Yeah, my "Pee-Pee" Cheesy Cheesy stood tall with its proud owner and everyone had to bend to my way which was to allow me to use the lavatory and allow nature to do its own job and boy what a pleasurable feeling we get while we all humans, as well as animals, get when we do it.
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Images taken while changing bandages.
(http://i347.photobucket.com/albums/p445/HimV/4%201_zps9l5qwhr7.jpg)
(http://i347.photobucket.com/albums/p445/HimV/IMG-20180718-WA0_zpswkg1tga9.jpg)
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I can tell you right away that you doc in unqualified. The are no half pins in the frame thus it will not be stable enough for fast consolidation.
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I can tell you right away that you doc in unqualified. The are no half pins in the frame thus it will not be stable enough for fast consolidation.
Thanks for the opinion :)
But I made an informed decision and I am happy with mine. 8)
Thanks for all the love and support that everyone has shown. :) :D
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6th day: Had my first physio session today with Harry. After surgery physio session today was like visiting a spa. Though much to my distaste for writing I have still decided on writing this diary for sake of you all. As my views and decisions as a doctor LLer are going to be so much different from previous LLers. It would really provide you all with some very important insights of the CLL journey. It would definitely help so many of future LLers in making much more informed decisions. Being a doctor has helped me a great deal in making better medical choices for myself. Also, I must thank here Harry and Dr. Sharma for their patient first policy. I really get angry when I get lied to. This is something which hasn't occur in our transaction so far and thus has helped us in building a healthy doctor-patient relationship.
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Day 7: Had a fun-filled day with two physio sessions until the night brought all its wrath upon me. Had a very bad shin pain in my right leg. Had to call Harry mid-night. Thankfully he picked up and came by to help me. He tied my foot to the frame at 90 degrees and that helped a lot but still had to use pcm. Wasn't able to sleep much at night but the pain was fine by morning. Such episodes of pain and happiness are common in LL journey.
One important piece of advice is that while you decide on your surgeon, please ask your surgeon to set a meeting between you two prior to the surgery. Talking to your physio is very much essential especially during the lengthening phase. If they haven't handled many CLL cases then, believe me, you are going to be at the losing end. Surgeon's 90% job is done by the first day and then it is your physio who is going to be your all-out angel for next 3 to 6 months. Insider info: Surgeons doesn't know much about Myology as it's not their job to know so, thus it is the job of a physio to know-all about Myology and thus they are the specialists of this field. So having an experienced physio by your side should be the second highest priority on your bucket list. The second thing is don't be conned by terms like trauma physio or professional physio. Simply put a big cross on such physios. The reason is that your pain doesn't know mornings or nights so it isn't gonna seek your advice before coming and thus if they are too professional of a heck then be prepared to howl and wait for whole nights or evenings before you can establish contact with them. You just need is a responsible and CLL experienced physio. I mean you don't go to a cardiothoracic surgeon for a neuro case or do you?....better you decide it for yourself. Sayonara 8) :D
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Perfect keep going & post regular :) :) . If you dont mind what is your real height ??
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Perfect keep going & post regular :) :) . If you dont mind what is your real height ??
165cm
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Day 8: My bandages were removed today. 8)
Day 9: Harry is an expert in his work. Today my pin sites were cleaned along with my surgical incision sites. I got a new pair of sandals specially custom made for my needs. Don't be jealous, you will get one too if you are brave enough to face this surgery. ::) Dr. Sharma visited and green-lighted me to start lengthening from tomorrow. 8)
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Yes I agree, the mans had a diary for the last 4 days and not even 1 comment. Even though most of us arnt thinking about going to this doctor we should still support a fellow LL'er, hell at least acknowledge him.
Anyways congrats on starting your journey Adward ;D ;D ;D!
I havnt done much research on Dr. Sharma, what made you choose him vs the other indian LL doctors?
For all of those people who keep asking if or why a foley catheter is necessary, this is why.
Thanks a lot for all the wishes and sorry for such a late reply. I actually had relatives in India who did all inquiry regarding Dr. Sharma and his experience for me. They are actually quite powerful people and thus after thorough investigation referred me to Dr. Sharma. Many previous patients who had done LL in India recognize him as Dr. Sharma.
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Day 10: I lengthened 1 mm for the first time today. Would be doing 1mm for first 3-5 cm. Every day I will be doing four rotation of 0.25mm each. Pain has not been a problem but just boredom and little discomfort are all I can complain about. Food in the place is tasty. Staff is very humble and more than willing to help. It also depends on one's own attitude though.
Day 11: All of us had a party today, was nice to pull so many people's legs and then playing the patient card each time someone dared to do it to me.....hahaha 8)
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(http://s347.photobucket.com/user/HimV/media/4%206_zpsy6uqjgk3.jpg.html)
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Day 10: I lengthened 1 mm for the first time today. Would be doing 1mm for first 3-5 cm. Every day I will be doing four rotation of 0.25mm each. Pain has not been a problem but just boredom and little discomfort are all I can complain about. Food in the place is tasty. Staff is very humble and more than willing to help. It also depends on one's own attitude though.
Day 11: All of us had a party today, was nice to pull so many people's legs and then playing the patient card each time someone dared to do it to me.....hahaha 8)
its perfect :) how about internet connection ? Can I use laptop during LL day ??
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(https://photobucket.com/u/HimV/p/4639565a-2b26-4d69-99c8-5e8c458ec4b1)
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its perfect :) how about internet connection ? Can I use laptop during LL day ??
Yes, and speed is also good.
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Pics of food from the guest house. They do all types of food - Thai, Indian, Continental, American, Arabian etc :o
(https://i.imgur.com/ItEUjzv.jpg)
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Pics of food from the guest house. They do all types of food - Thai, Indian, Continental, American, Arabian etc :o
(https://i.imgur.com/ItEUjzv.jpg)
Oh its looks yummy and tasty . how much average cost by day for this type of food ?
Thanks
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Oh its looks yummy and tasty . how much average cost by day for this type of food ?
Thanks
It's all covered in USD14000. If you order from outside then i.e is to be paid by yourself.
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If anyone has some private enquiry then they can contact Harry directly. You can email him at heryshgr@gmail.com or WhatsApp at 9560867721.
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It's all covered in USD14000. If you order from outside then i.e is to be paid by yourself.
Thanks adward. how much length you gain ??
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Thanks adward. how much length you gain ??
I have already gained 4 cm, still 3.5 cms to go.
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I have already gained 4 cm, still 3.5 cms to go.
total how many days it takes for 4cm ? & how many days takes for 3.5 cm ?
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My x-rays after completion of 1 cm lengthening.
(https://i.imgur.com/P2E0CnJ.jpg)
(https://i.imgur.com/6GnzSmk.jpg)
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It depends on your situation. But on an average rule here is of 1 mm per day until 4cm, 0.75mm per day for 5.5cm and 0.5mm for the rest 2cm. You can calculate the days as per this and also some extra days for rest.
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total how many days it takes for 4cm ? & how many days takes for 3.5 cm ?
It depends on your situation. But on an average rule here is of 1 mm per day until 4cm, 0.75mm per day for 5.5cm and 0.5mm for the rest 2cm. You can calculate the days as per this and also some extra days for rest.
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It depends on your situation. But on an average rule here is of 1 mm per day until 4cm, 0.75mm per day for 5.5cm and 0.5mm for the rest 2cm. You can calculate the days as per this and also some extra days for rest.
It is important to be patient while lengthening so as to have a fast recovery post frame removal surgery.
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It is important to be patient while lengthening so as to have a fast recovery post frame removal surgery.
Do you know any info for how much time takes to recovery ??
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Do you know any info for how much time takes to recovery ??
See 80-90% post 7.5 cm lengthening would require approximately 8-9 months and 100% would require another 6 months for consolidation. But you can return back to your daily routine after 9 months with some precautions like not jumping, running etc
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Do you know any info for how much time takes to recovery ??
See I would suggest that at the end when you make a choice of doing LL you must make an informed decision and not based on just this or any forum. Meet your doctor, your physiotherapist and have a detailed discussion. So many people lie so many times, so you must be sure about your doctor and physio. Let them also evaluate you and meanwhile you too keep real-time expectations about LL. So many patients do so many silly mistakes which costs them so much. Next thing is get it done, achieve your goal and stay happy. 8)
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Today I stood with my frames intact with the help of a walker. Most of my weight was on my shoulders with only 30-40% on my lower limbs. It was a great feeling. 8)
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Today I stood with my frames intact with the help of a walker. Most of my weight was on my shoulders with only 30-40% on my lower limbs. It was a great feeling. 8)
perfect keep posting
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Today I stood for five minutes...3 minutes more than yesterday. :D
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My latest x-ray which was taken just a few days ago.
(https://i.imgur.com/ZhY7y6L.jpg)
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Xrays look great and callus is starting to form 👍🏽 Keep it up Adward.
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Xrays look great and callus is starting to form 👍🏽 Keep it up Adward.
Thanks..positive reinforcement really helps a lot 8)
Best of luck to you too for your ongoing journey :)
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I think the x-rays look good, keep posting updates brother!
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I think the x-rays look good, keep posting updates brother!
Thanks buddy
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I am slowly and steadily increasing my standing time. Any advice from previous LLers?
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X-ray of my right leg in the lateral view taken some days back.
(https://i.imgur.com/ct6yteU.jpg)
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why slowly and steadily .even i am doing lon lengthening but with the help of stretcher I walk to wash room five times a day and lot of standing also.
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why slowly and steadily .even i am doing lon lengthening but with the help of stretcher I walk to wash room five times a day and lot of standing also.
Mr. Magician post your video for all of us to see this medical wonder. You know that I am a doctor myself and you are talking crap like this with me. You know how many k-wires would be used, how much muscle immobility that would cause, nevertheless to speak nerve entrapment, pin cutting, reduced blood flow because of all this inbuilt swelling and pressure and chances of infection would be through the roof in such circumstances. Liers like you should be shunned off this forum. Better answer me with a video otherwise don't bother to reply.
By the way, it should be a walker, not a stretcher. Google it, you will get your answer.
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I stood with walker against the door for complete 10 minutes today. :)
(https://i.imgur.com/2ax4mLe.jpg)
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These days while doing physio I do get a bit of shin pain which is normal because of all the pressure it bears from my physio. Standing for 10 mins or so has become an easy task for me now.
I haven't taken much of analgesics in the last 1.5 month. Hope it goes on like this only.
I do upper body exercise twice every day, along with it I do take up lots of protein to help build my muscles. Time seems to be passing so fast now. Hope to see my complete result soon. 8)
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That has to be the most unstable Ilizarovs I ever saw.
If I were you I wouldn't stand much after about 3cm because I think that these pins will bend and you'll risk malunion.
Keep strong!
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That has to be the most unstable Ilizarovs I ever saw.
If I were you I wouldn't stand much after about 3cm because I think that these pins will bend and you'll risk malunion.
Keep strong!
Thanks for the advice and please don't mind but I think you are naive as far as LL (especially LON) is concerned. I don't see a doctor's degree in hands of many people here who comment totally illogical things here. First of all, what purpose would it serve if I do standing before 3 cm and not after it? You know to stand here is to avoid having ballerina and increase blood flow to the peripheries of my lower extremities.
The second thing is that LL started with Ilizarov's frame and thus if it wasn't a stable technique with guaranteed results it would have been rooted out of medical practice long ago. How come is this frame unstable I don't understand? You know pin loss happens when pins are loose which cause K-wires passing through bones to loosen up and thus causing pin loss. My pins are tightened every 10th day for this reason, as I have already mentioned before.
I went through your medical case and found out that what you did was monorail on tibias which if you ask any doctor is a big no-no for cosmetic limb lengthening.
Thirdly you said there are chances of malunion, buddy again read carefully and apply logic, it's L-O-N i.e lengthening over a nail which implies there is a nail or in laymen terms a bar or a rod which is composed of hard metal and thus there can not be malunion because the rod won't bend this easily.
If you want I can put up your X-rays here demonstrating what a malunion is because your fibula demonstrates it very well in your X-rays. Please don't talk rubbish unless you have first-hand medical experience. Please don't mind it, but it's my ethical responsibility as a doctor to stop such medical littering which misleads future LLers.
See I don't want to upload your picture to everyone and show what mistakes have been done with your surgery but if you want I can do that. Those who want can visit your diary and see for themselves. I just want to state one fact very clearly here that many of LLers are just naive patients and not doctors thus they make statements which are fully wrong and disastrous. I don't know about your country but doing such a thing in Singapore or Malaysia can bring you a lawsuit.
Please don't take it otherwise buddy.
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I agree that monorails are not a good choice. But I was 22 back then and also only a few diaries existed before almost 10 years so my knowledge about LL was minimum.
If I'd do again tibias I'd never use monorails.
But telling to someone that did LL 8 years before you and has studied a lot about LL (except from his own experience) and also plans about a new one, is a sign of stupidity.
Yes, Ilizarov is a great technique but your fixaton has only a few rods, is not an hexapod and it is completely unstable compared to good frames like the ones Catagni uses or the far superior taylor spatial.
Doing external LL without an hexapod is a bad choice. Doing LL on India is a worse even choice.
And finally, the more you lengthen the more the risks if the fixator is unstable. Thats why I told you to not stand a lot after 3 cm.
But your ignorance won't let you understand what I am saying, so do whatever you want. After all, going to an unknown doctor in India to do LL is a great risk on its own so you'll need luck to reach till the end successfully.
But I really wish you'll have it, as I want any LL'er to have successful outcomes.
So, good luck to you.
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I wish Edward u got a fitting reply above .
I know you are trying to advertise for Harry and Pradeep dharma.
If you are real you would have shared ur contact in ur previous posts rather than ur physio r doctor contact.
People are not fools
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I agree that monorails are not a good choice. But I was 22 back then and also only a few diaries existed before almost 10 years so my knowledge about LL was minimum.
If I'd do again tibias I'd never use monorails.
But telling to someone that did LL 8 years before you and has studied a lot about LL (except from his own experience) and also plans about a new one, is a sign of stupidity.
Yes, Ilizarov is a great technique but your fixaton has only a few rods, is not an hexapod and it is completely unstable compared to good frames like the ones Catagni uses or the far superior taylor spatial.
Doing external LL without an hexapod is a bad choice. Doing LL on India is a worse even choice.
And finally, the more you lengthen the more the risks if the fixator is unstable. Thats why I told you to not stand a lot after 3 cm.
But your ignorance won't let you understand what I am saying, so do whatever you want. After all, going to an unknown doctor in India to do LL is a great risk on its own so you'll need luck to reach till the end successfully.
But I really wish you'll have it, as I want any LL'er to have successful outcomes.
So, good luck to you.
Firstly dude my frame is stable and it has fewer rods because I chose so. Since I don't see you holding a medical degree here, therefore, I can assure you that my frame which is a PITKAR product is very stable. I chose rods enough to bear my weight, so this was a personal choice which was respected considering I too am a doctor and understand the consequences clearly unlike a layman.
Secondly, your years of experience has wrongly made you believe that hexapod fixator or tailor spatial frame is better for your LL. Let me show you why it's not so.
(https://i.imgur.com/Vptm4kH.png)
(https://i.imgur.com/xUcKwW7.png)
You see those huge pins mean that it's not L-O-N which means less muscle mobility, more muscle wasting, higher chances of infection and time waster too since the frame would be on your Tibias for next 7-9 months.
Now again I can argue so much more on medical uses of hexapod i.e for deformity correction, then factors like cost versus benefit etc but all this is futile. If you want Hexapod you can have it, simply because it's your choice. Similarly, I chose LON because it's my choice and a sane one backed by my medical expertise.
General population should not start acting as doctors because it would destroy the whole medical system. Would you be willing to be a doctor for your family, if not then don't be here for kids who are trying to find medically correct information here and not an incorrect one. Because giving someone wrong information under the disguise of an expert is like a crime to someone who doesn't know much about CLL and would do something drastically wrong to his body just because some senior member on this forum talked about it. Years of your learning about LL still doesn't make you a doctor or an expert.
In my humble opinion, you may share your experience but must not comment on medical aspects here unless you are a medical practitioner.
Hope we still are friends...at least no hard feelings from my side. :)
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I wish Edward u got a fitting reply above .
I know you are trying to advertise for Harry and Pradeep dharma.
If you are real you would have shared ur contact in ur previous posts rather than ur physio r doctor contact.
People are not fools[
First of all, welcome to the forum. Buddy, really I pity you, since how much pathetic a person's life has to be to make someone come here and write a comment like yours. You really deserve pity. Still am thankful for your love. Hope your life changes for good. kardeşim sağ ol :)
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Hey, fellow LLers it seems like GOT is the second most loved entity on this forum i.e second only to me. Hahaha
Hope we can all share this love and warmth. Wish you all a happy day. :)
Time to sleep...nighty night to everyone. ;)
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From last two days, I have a bit of discomfort at one of my pin sites...but it's something part and parcel of the process.
Hope it resolves soon. Herkese iyi geceler :) ::)
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Firstly dude my frame is stable and it has fewer rods because I chose so. Since I don't see you holding a medical degree here, therefore, I can assure you that my frame which is a PITKAR product is very stable. I chose rods enough to bear my weight, so this was a personal choice which was respected considering I too am a doctor and understand the consequences clearly unlike a layman.
Secondly, your years of experience has wrongly made you believe that hexapod fixator or tailor spatial frame is better for your LL. Let me show you why it's not so.
(https://i.imgur.com/Vptm4kH.png)
(https://i.imgur.com/xUcKwW7.png)
You see those huge pins mean that it's not L-O-N which means less muscle mobility, more muscle wasting, higher chances of infection and time waster too since the frame would be on your Tibias for next 7-9 months.
Now again I can argue so much more on medical uses of hexapod i.e for deformity correction, then factors like cost versus benefit etc but all this is futile. If you want Hexapod you can have it, simply because it's your choice. Similarly, I chose LON because it's my choice and a sane one backed by my medical expertise.
General population should not start acting as doctors because it would destroy the whole medical system. Would you be willing to be a doctor for your family, if not then don't be here for kids who are trying to find medically correct information here and not an incorrect one. Because giving someone wrong information under the disguise of an expert is like a crime to someone who doesn't know much about CLL and would do something drastically wrong to his body just because some senior member on this forum talked about it. Years of your learning about LL still doesn't make you a doctor or an expert.
In my humble opinion, you may share your experience but must not comment on medical aspects here unless you are a medical practitioner.
Hope we still are friends...at least no hard feelings from my side. :)
TS frames are the best for external only LL as they are the only ones who fix malunions.
If you use LON then maybe you don't need them as chances of malunion are less but I am against a so invasive method while you can use only external tsf which is by far the most safe way to do LL.
Personally I believe that in LL the best is to use one way only which is externals for tibias and internals for femurs. That reduces the risks and makes the surgery as safe as it could get.
But yes, tibia lon has the advantage of less time (although the more risks and the extra surgery needed to remove the nails) so if that was the case for you then yes, tsf for lon are not so crucial.
No hard feelings from mee too.
Keep strong!
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TS frames are the best for external only LL as they are the only ones who fix malunions.
If you use LON then maybe you don't need them as chances of malunion are less but I am against a so invasive method while you can use only external tsf which is by far the most safe way to do LL.
Personally I believe that in LL the best is to use one way only which is externals for tibias and internals for femurs. That reduces the risks and makes the surgery as safe as it could get.
But yes, tibia lon has the advantage of less time (although the more risks and the extra surgery needed to remove the nails) so if that was the case for you then yes, tsf for lon are not so crucial.
No hard feelings from mee too.
Keep strong!
Yes, you almost repeated what I said, but again I wouldn't go into micro-mistakes you have made again in your comment. Let's stop this bickering and focus on some positive energy here. I already do require a lot of positive reinforcement while doing CLL. Would be nice to see you here buddy with all your positive energy.
Thanks :)
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hey adward, i will be going for external tibias with the ilazarov standard frames just like yours (although the build could differ).
But i wont be using the LON but only the external ilazarov fixators as i cant afford to travel out for surgery with higher costs. also im doing it locally here in pakistan from an orthopedic surgeon who has some experience with cll and this is what he offers.
wat would u advice me most in this circumstances, i know there are different pros and cons to different types of ll procedures and equipments used. i need to know wat i should be most careful about and also consider the most importance during this type of ll.
Thanks!
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Yesterday was a rest day for me. Have reached 5.5cm today, just 2cm more to go.
Hope the path ahead stays a smooth one only.
Hope all other LLers are also doing well. ;)
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My pain at the pin site is still the same. Though now that I have completed 5.5 cm and as planned the speed of traction has been reduced to 0.5mm per day, therefore, I am hopeful that the pain issue will also be resolved soon.
The republic day celebrations here in India were great just like our Malaysia and Singapore. This week there is a festival in India, so Harry has organized a party for all of us at his home. I am excited to be finally out for a formal gathering. I will also get to meet his beloved friend(his pet dog). Also, some of his friends are returning from Italy, so would be a really great occasion to meet so many new people. Just wish that I could have had this surgery done at least a month or two before so that I could have attended the party without my frames. Never the less with the frames or without them, I am planning to have a lot of fun.
Hope you people are also doing well. Winter is coming.....sooooon..haha ;)
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Keep going Adward!
Just wondering, did you go to Sarin for consult, did you even bother other doctors?
Also, I have always wondered, what kind of doctor are you :)!?
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My pain at the pin site is still the same. Though now that I have completed 5.5 cm and as planned the speed of traction has been reduced to 0.5mm per day, therefore, I am hopeful that the pain issue will also be resolved soon.
The republic day celebrations here in India were great just like our Malaysia and Singapore. This week there is a festival in India, so Harry has organized a party for all of us at his home. I am excited to be finally out for a formal gathering. I will also get to meet his beloved friend(his pet dog). Also, some of his friends are returning from Italy, so would be a really great occasion to meet so many new people. Just wish that I could have had this surgery done at least a month or two before so that I could have attended the party without my frames. Never the less with the frames or without them, I am planning to have a lot of fun.
Hope you people are also doing well. Winter is coming.....sooooon..haha ;)
I wonder if you can do me a favour.
There was a LL patient on old forum called Crazy+6. He lengthened ALOT and last thing he wrote, he was still in a wheelchair. "Harry" knows him, was his caretaker.
Whats the status on Crazy+6? is he permanantly cripple?
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Keep going Adward!
Just wondering, did you go to Sarin for consult, did you even bother other doctors?
Also, I have always wondered, what kind of doctor are you :)!?
As per US system of medical hierarchy: I am training to be a cardiothoracic surgeon but am right now a general surgeon. I wouldn't imagine myself consulting Sarin or any other doctor who wasn't listed in my relatives' list. Again I would repeat that my relatives are quite influential people and they had referred me to Dr. Sharma only after a thorough background check.
They also consulted doctors in the US where they were against the idea of CLL. They just said that it would hurt their reputation to do such a surgery on a healthy patient who isn't a dwarf and citing ethical reasons doctors in the US negated the idea of performing CLL. Then they contacted Dr. Paley's team as well but he just performed IM Nailing, something I was against of for Tibias.
I also did meet Dr. Pili's patients from Italy and I would say though patients from non-medical background wouldn't understand, his patients were some of the most unlucky ones. I would do it in US or India rather than going to Italy for LL. The medical system in Italy is really bad, even worse than Greece. Also, accountability of doctors seems to be a really low factor in Italy. You might find it hard to digest but Russia has a better system in place than Italy.
Hope this answers your question, :)
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I wonder if you can do me a favour.
There was a LL patient on old forum called Crazy+6. He lengthened ALOT and last thing he wrote, he was still in a wheelchair. "Harry" knows him, was his caretaker.
Whats the status on Crazy+6? is he permanantly cripple?
Sorry, no idea. You may forward your query to Harry himself. His contact info has been shared before. After being on this forum, I have been really amazed at the fact that how adamant and stupid some patients can be. Though from my experience a lot means years in rehabilitation. One might recover but never completely.
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hey, was wondering if you are expereincing stiffness around AT?
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hey adward, i will be going for external tibias with the ilazarov standard frames just like yours (although the build could differ).
But i wont be using the LON but only the external ilazarov fixators as i cant afford to travel out for surgery with higher costs. also im doing it locally here in pakistan from an orthopedic surgeon who has some experience with cll and this is what he offers.
wat would u advice me most in this circumstances, i know there are different pros and cons to different types of ll procedures and equipments used. i need to know wat i should be most careful about and also consider the most importance during this type of ll (external fixator only).
also wat would be the advantages for going this (oldschool) method if any.
p.s i hav no other options! :o :P
Thanks!
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hey, was wondering if you are expereincing stiffness around AT?
If you mean anterior tibialis muscle, then no.
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hey adward, i will be going for external tibias with the ilazarov standard frames just like yours (although the build could differ).
But i wont be using the LON but only the external ilazarov fixators as i cant afford to travel out for surgery with higher costs. also im doing it locally here in pakistan from an orthopedic surgeon who has some experience with cll and this is what he offers.
wat would u advice me most in this circumstances, i know there are different pros and cons to different types of ll procedures and equipments used. i need to know wat i should be most careful about and also consider the most importance during this type of ll (external fixator only).
also wat would be the advantages for going this (oldschool) method if any.
p.s i hav no other options! :o :P
Thanks!
See if I have to say just off the top of my head, then one of the advantages would be that no nailing will be done, which means out of all procedures performed for CLL, it is considered as the minimally invasive one.
I don't want to discourage you by saying all the disadvantages, some of them might be hard to digest, but if you want I can still list out. Let me know
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hey adward, i will be going for external tibias with the ilazarov standard frames just like yours (although the build could differ).
But i wont be using the LON but only the external ilazarov fixators as i cant afford to travel out for surgery with higher costs. also im doing it locally here in pakistan from an orthopedic surgeon who has some experience with cll and this is what he offers.
wat would u advice me most in this circumstances, i know there are different pros and cons to different types of ll procedures and equipments used. i need to know wat i should be most careful about and also consider the most importance during this type of ll (external fixator only).
also wat would be the advantages for going this (oldschool) method if any.
p.s i hav no other options! :o :P
Thanks!
See but if you are determined then no disadvantage should discourage you.
First thing first:
1) Let your doctor evaluate the laxity of your muscles, your weight etc.
2) 7cm is doable but still, you and your doctor should have the last word on it.
3) Have a very experienced physio by your side, as you would be facing many situations where you would need the help of a professionally trained physio.
Disadvantages:
1) Restrictive mobility
2) Many more pins to be used to stabilize the frame
3) Higher chances of infection
4) Fixators will stay for a prolonged time
5) Muscle wasting depends on your level of mobility, but muscles will be restricted by pins which would definitely cause muscle immobility by itself.
6) Higher incidence of pins breaking
Many more can be listed but what's important is that if you are determined and prepared then with a good medical team, it's all doable. :) :)
Good luck from my side. ;)
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thanks and most of the cons u mentioned were related to the musculature which i believe can be reversed in time once im out of the device. i hope there arnt serious bone related cons to this.
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thanks and most of the cons u mentioned were related to the musculature which i believe can be reversed in time once im out of the device. i hope there arnt serious bone related cons to this.
Don't worry, just prepare yourself and if you truly want it then go for it. Khallas 8)
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exactly man. I want it just too much and overthinking will not help to change my decision. u r very right, once im done with the osteotomies half the battle is already won.
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exactly man. I want it just too much and overthinking will not help to change my decision. u r very right, once im done with the osteotomies half the battle is already won.
Best of luck 8)
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I had been resting for last 2 days and have started with 0.5mm each day for my last 2cm.
Such a sense of achievement :D
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Having entered almost into the last month of lengthening makes me feel very delighted, not just because I am about to get what I wanted but also because I got time to figure out what I wanted to do next in my life.
Also, I must thank my pals here: Foremost let me begin with Harry. Harry thanks a lot for helping me achieve my dream, no person could be as noble as you. May you achieve a lot of success in your life.
My surgeon Dr. Pradeep Sharma, nothing short of an angel.
My caretaker: Thanks a lot for bearing with me.
The whole staff at hospital and guest house. I know you all would never read it, but all I want to say is thanks from the deepest part of mine heart.
My family, without them not just this but nothing is possible.
Lastly but most importantly God, who has always helped me achieve even deepest of my wishes.
Now, who can forget all fellow LLers here, such a huge thanks to all for sharing your experiences.
Thanks to all :)
Stay happy and wish me luck, as the journey is not yet over idiots. Sorry ;)
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happy for u. i still have 4 months to go bfre ll op and i cant w8.
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happy for u. i still have 4 months to go bfre ll op and i cant w8.
Thanks buddy. Don't worry at all, time would fly faster than a jet plane. :)
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how is ur pain now? i know its crazy bad in start but how u coping now?
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how is ur pain now? i know its crazy bad in start but how u coping now?
See pain is a subjective feeling. Luckily I don't have any pain as of now, surely we can say discomfort is there because of the frames but there's no pain.
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This is the place I call home these days. ;)
(https://i.imgur.com/RCMwpQX.jpg)
(https://i.imgur.com/jLIRK0X.jpg)
(https://i.imgur.com/TCHC66Z.jpg)
(https://i.imgur.com/wAvoR13.jpg)
A diary is almost incomplete without pictures. 8)
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wow this is so clean
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wow this is so clean
Lucky me..haha ;)
Thanks :)
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Would reach the magic mark of 6cm today. Just 1.5cm more to go. ;D
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I got my X-rays done today, would be posting them tomorrow.
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Lucky me..haha ;)
Thanks :)
Good luck on your journey Adward. You are doing great so far.Are you walking with frames? Do you mind posting a video of walking for us please? I know I'm asking too much but only if it's doable. After all we all are here, doing this/ planning LL because of this forum and everyone's contribution to this forum. Every little contribution keeps this forum alive and pictures and videos adds to genuineness.
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I got my X-rays done today, would be posting them tomorrow.
yes plz post.
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could u add pictures of ur legs while ur standing.
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Good luck on your journey Adward. You are doing great so far.Are you walking with frames? Do you mind posting a video of walking for us please? I know I'm asking too much but only if it's doable. After all we all are here, doing this/ planning LL because of this forum and everyone's contribution to this forum. Every little contribution keeps this forum alive and pictures and videos adds to genuineness.
Thanks, for all your well wishes. I would have to very humbly say no to your request as I cannot walk because the surgery is LON and not pure Ilizarov, as mentioned clearly before. People with LON can't walk till their frames are removed. What I have done is LON, thus no video of walking possible. So sorry :(
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could u add pictures of ur legs while ur standing.
I have already done that before buddy, check my diary's 2nd page, you would find it there. 8)
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yes plz post.
Yes sergeant Montahn, your order is my obligation. haha ;D ;D
Thanks for your appreciation and support.
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Why are you making peoples fools man.
Who told you that you cannot walk with lon .I am also doing lon pretty much walking comfortably and going to remove my frames in ten days
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Why are you making peoples fools man.
Who told you that you cannot walk with lon .I am also doing lon pretty much walking comfortably and going to remove my frames in ten days
You definitely are a pathological liar and really have a pathetic life to live, as no one in their right mind would write such crap full of lies like yours. You haven't posted even a single video of yours, let alone video we haven't seen even a photo from you. You, again and again, barge on my diary and sh*t here, don't you simply understand liars like you are not welcomed here. I mean really don't drop so low. Better next time post a video otherwise don't bother writing a reply. Liars like you aren't welcomed. Wisen up and have a life. :)
Don't insult yourself more buddy. I am posting a proof of all your lies here.
(https://i.imgur.com/K6U7QtF.png?1)
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Hello Adward . Good luck with ur journey.
Its clear with the configuration of ur frame and the fact that u have the nail that u can't weight load so no need to confirm that. Just stay strong the journey will be very tough after lengthening because ur muscles weren't active for long time but u r strong and will pass this . Just keep ur motivation
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X-rays...as promised
(https://i.imgur.com/rpqGxtr.jpg)
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Hello Adward . Good luck with ur journey.
Its clear with the configuration of ur frame and the fact that u have the nail that u can't weight load so no need to confirm that. Just stay strong the journey will be very tough after lengthening because ur muscles weren't active for long time but u r strong and will pass this . Just keep ur motivation
Thanks for the positive reinforcement, it really means a lot. :)
I really think so too. Then again other than pure Ilizarov's technique, all other types of CLL comes with prolonged immobilization or very restrictive mobilization and as with any type of CLL muscle loss is a certain but unwanted outcome which can surely be overcome with the right type of physio and exercise. Also, I stayed positive all through the procedure and it made it a lot easy. Plus a physio like Harry is no less of a blessing. Hoping for a quick recovery. Once again thanks. :)
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Hi Adward!
Nice xray, keep it up!
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the lack of clear callous formation is a bit concerning. Have you asked your doctor about this?
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why does ur tibial callous look weak. is it delayed union ask ur doctor.
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why does ur tibial callous look weak. is it delayed union ask ur doctor.
Hi, actually I have irritable bowel syndrome and thus because of severe anxiety on the family front, I was having a real hard time managing it. Thus because of continuous loss of minerals and slow replenishment it happened. After all, it's not just LL but your whole body that needs to be taken care of. Things are sometimes not manageable, but then what to do, it's life. So no trouble, I am already working at it. :)
But yesterday someone unknowingly praised me and gave me the strength to push through my other problems as well. Somebody just unknowingly acknowledged and said something that I knew but couldn't say to myself. So thanks to all the LLer bros and sisters who have kept my spirits up and for your timely concerns and wishes. :)
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the lack of clear callous formation is a bit concerning. Have you asked your doctor about this?
Hi, actually I have irritable bowel syndrome and thus because of severe anxiety on the family front, I was having a real hard time managing it. Thus because of continuous loss of minerals and slow replenishment it happened. After all, it's not just LL but your whole body that needs to be taken care of. Things are sometimes not manageable, but then what to do, it's life. So no trouble, I am already working at it. :)
But yesterday someone unknowingly praised me and gave me the strength to push through my other problems as well. Somebody just unknowingly acknowledged and said something that I knew but couldn't say to myself. So thanks to all the LLer bros and sisters who have kept my spirits up and for your timely concerns and wishes. :)
Along with this if you will see my previous X-rays you will have a clear picture.
Thanks once again buddy 8)
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Hi Adward!
Nice xray, keep it up!
Thanks buddy :)
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Hi, actually I have irritable bowel syndrome and thus because of severe anxiety on the family front, I was having a real hard time managing it. Thus because of continuous loss of minerals and slow replenishment it happened. After all, it's not just LL but your whole body that needs to be taken care of. Things are sometimes not manageable, but then what to do, it's life. So no trouble, I am already working at it. :)
But yesterday someone unknowingly praised me and gave me the strength to push through my other problems as well. Somebody just unknowingly acknowledged and said something that I knew but couldn't say to myself. So thanks to all the LLer bros and sisters who have kept my spirits up and for your timely concerns and wishes. :)
so how do u plan to fix this?
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so how do u plan to fix this?
Let me explain myself better, diet and supplements. Why? Because it's all that is required. People don't understand callous very well. Callous is like a gelatinous matrix which gets formed in the very initial phase of bone formation, followed by mineralisation and then happens final remodelling where RANKL and IL-1 etc act in various capacities and also activates osteoclasts which execute the action. So here why you can see it vaguely is because I lost minerals due to constant loss from my body because of my irritable bowel syndrome and couldn't replenish as quickly.
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yea the reason i asked u is tht i myself suffer from ibs and not sure if it will be a serious concern for me.
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Adward,
That's why in my opinion pure stable ilizarov is the best for tibia and for small amount of lengthening not more than 4-5 cms. + setup to correct the bones like Hexbods
Just be positive finish lengthening and focus on the next step. Based on my experience weight bearing ( standing , walking ) is the best to regain stability. Static stretching didn't help me at all.
When do u expect to weight bearing on ur nails after removing the ilizarov and locking the nail ?
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For ur callus it will be better to judge after 2 months of stop lengthening. I can see that ur fibula is ok and there is a visible lines on the tibia sides that connects the Two seperqted parts which is a good sign.
Good Luck
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X-rays...as promised
(https://i.imgur.com/rpqGxtr.jpg)
Can you tell me why the bone looks like translucent ? its grow or not or a big blank gap ??
Thanks
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Bone forms after callous. I am tired of explaining medicine to non-medicos. Please don't repeat questions. Sorry but it's important as it bothers me explaining the same thing again and again. X-ray here has been taken with a special shadow effect so as to see the gap clearly. I hope not everyone should start being a doctor or a radiologist. These require years of college and experience and none on this forum is competent enough to be commenting that way. So please stop and enjoy the diary. I don't have the time and energy to waste on each idiotic question people ask here. Go study a book.
Sorry, this is not specific for you Montah. Please don't mind. :)
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Adward,
That's why in my opinion pure stable ilizarov is the best for tibia and for small amount of lengthening not more than 4-5 cms. + setup to correct the bones like Hexbods
Just be positive finish lengthening and focus on the next step. Based on my experience weight bearing ( standing , walking ) is the best to regain stability. Static stretching didn't help me at all.
When do u expect to weight bearing on ur nails after removing the ilizarov and locking the nail ?
-------
For ur callus it will be better to judge after 2 months of stop lengthening. I can see that ur fibula is ok and there is a visible lines on the tibia sides that connects the Two seperqted parts which is a good sign.
Good Luck
Are you an idiot or something. Stop being someone you are not. Are you a LL surgeon or a radiologist?... no, so stop commenting idiotic stuff here which has no medical backing. You all speak here as if you are Ilizarov's reincarnation. How naive you write complete bullsh*t over here. Please spend years in college and then train yourself after that I would happily have an argument with you over this topic. Please stop tiring people here. Enjoy diary and stay happy.
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No need to attack people or describe them as idiots. I'm not going to argue with u because at the end this is a diary and u r a patient who needs to be positive. For the future LLers there are tons of diaries with bad and good results check them and make ur conclusion
Sorry i won't enjoy a diary of a person who describes people as idiots if they post what he doesn't like.
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No need to attack people or describe them as idiots. I'm not going to argue with u because at the end this is a diary and u r a patient who needs to be positive. For the future LLers there are tons of diaries with bad and good results check them and make ur conclusion
Sorry i won't enjoy a diary of a person who describes people as idiots if they post what he doesn't like.
You won't be missed :)
I am a doctor myself. So please stop commenting medically irrelevant stuff here. Thanks and no need to reply further. :)
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yea the reason i asked u is tht i myself suffer from ibs and not sure if it will be a serious concern for me.
It wouldn't be a problem but just avoid situations which cause you to feel anxiety or stress. :)
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These days its hard to believe that a dr would accept to do him self +7cms with a method that is not weight bearing so he would stay more than 70 days and more to come without any moving. U r the last one to talk about medical staff
This is my last comment here .
For future LLers
Please
1 - don't lengthen ur lower leg up to 7 cms
2 - don't choose non weight bearing method or at least don't do that much if u can't load or u will stay alot in recovery.
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These days its hard to believe that a dr would accept to do him self +7cms with a method that is not weight bearing so he would stay more than 70 days and more to come without any moving. U r the last one to talk about medical staff
This is my last comment here .
For future LLers
Please
1 - don't lengthen ur lower leg up to 7 cms
2 - don't choose non weight bearing method or at least don't do that much if u can't load or u will stay alot in recovery.
Says who...oh I remember an idiot who has no medical degree or experience but dreams of being a counseller to all fellow LLers. As I said before no need to barge into my diary and once again I repeat that you won't be missed here. So stop misleading and buzz off from my diary. :)
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What kind of paid medical degree you have taken I dontt know Mr adward.
Dnt behave like a research scholor and an expert in limb lengthening.
Please don't misguide people saying lon is non weight bearing .
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What kind of paid medical degree you have taken I dontt know Mr adward.
Dnt behave like a research scholor and an expert in limb lengthening.
Please don't misguide people saying lon is non weight bearing .
Are you insane, where did I say it....show me. A proof to your lies has been already posted before, now I am posting another one where I am standing which means certainly you are a pathological liar and maniac. Secondly, who has asked your opinion, you have no other job but to come on just my forum and comment bullsh*t. F**k off. You seriously have some serious mental disorder. Go create your own diary and flood it with your opinion. Have some dignity and don't show back. Plus please obsess with someone else but me. Thanks.
Next time I would not be so humble and might name probable people who have been messaging Harry because of their personal obsession. Don't make me do that, so save your dignity however much that is left. Don't bullsh*t here. I can take bullies like you head-on, so don't worry about me but be scared about your reputation as you have been messaging Harry all those dirty messages and thus should be scared.
(https://i.imgur.com/2ax4mLe.jpg)
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God, really some people here have such serious obsessive behaviour. It almost makes me feel like a star. All those patheticos having nothing better to do with their lives can swell-up all with their anger but that is not gonna affect my health. So stop unnecessary bullying. :)
Have speedy recovery bullies. Go seek professional psychiatric help because certainly, this forum cannot help you. Stop being miserable and barge someone else's diary. You are neither welcomed not needed in my diary. Please go bully someone else. :)
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I have reached 6.4 cm on paper today. The journey is getting shorter with every passing day. Hope the last 1 cm also passes smoothly. Experiencing some shin pain after standing for a while though, kind of normal because of all this inbuilt pressure and after so much lengthening, so nothing much to worry about. :D
Have been doing more of weight bearing these days so as to avoid development of any complications. Hope to reach my goal soon. Best wishes. 8)
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great choice man, you did the surgery and freed yourself
i'm so glad that nail stryde has come out,finally i can free myself too and forget about this place
Just another 2 years of saving and i can get rid of this height problem
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great choice man, you did the surgery and freed yourself
i'm so glad that nail stryde has come out,finally i can free myself too and forget about this place
Just another 2 years of saving and i can get rid of this height problem
I can't explain the joy I feel these days. It is somewhat miraculous because I always felt tall in my brain but in reality was somewhat average. It's hard to explain to others but I know brothers and sisters of this forum are the only ones who can understand it well. I never felt pain partly because I was so busy being happy to see that it was actually happening. For so many years it was all I wanted.
Really thankful for your wishes bro...hope it happens faster than expected for you too. Keep working for your goal, we are all here to support you. :)
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great choice man, you did the surgery and freed yourself
i'm so glad that nail stryde has come out,finally i can free myself too and forget about this place
Just another 2 years of saving and i can get rid of this height problem
Let me make you all laugh. So when I stand I feel so handsome that I seriously feel fifty shades of grey should be remade with obviously you all know who...haha.
I mean haven't seen the trilogy but who would suit better. ;) ::)
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I can't explain the joy I feel these days. It is somewhat miraculous because I always felt tall in my brain but in reality was somewhat average. It's hard to explain to others but I know brothers and sisters of this forum are the only ones who can understand it well. I never felt pain partly because I was so busy being happy to see that it was actually happening. For so many years it was all I wanted.
Really thankful for your wishes bro...hope it happens faster than expected for you too. Keep working for your goal, we are all here to support you. :)
and im sure now u cant w8 for the bone to form up. u would be wanting the consolidation phase to end asap so u enjoy tht new height. the w8 would be hardest part
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and im sure now u cant w8 for the bone to form up. u would be wanting the consolidation phase to end asap so u enjoy tht new height. the w8 would be hardest part
Exactly bro.... ;D but then as Harry says the magic is already happening. :)
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Hi Adward!
How many patients does Dr Sharma currently have or are you the only one?
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Hi Adward!
How many patients does Dr Sharma currently have or are you the only one?
Presently I am the only foreigner patient. One might join from UAE in November but not yet confirmed. There are two more local patients though but they would leave in 3 months and don't live here with me but separately in a self-rented apartment by themselves. They are kind of two rich brats and don't like to mingle. Hope this helps.
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have u thaught about wat u will say to ppl who will meet u after years and find u a bit taller than before?
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have u thaught about wat u will say to ppl who will meet u after years and find u a bit taller than before?
Not yet...doing LL correctly and trying to avoid complications is my only concern for now. As per X-ray, I have reached 7.1 cm in my LL and 6.9 cm in my RL. Now I am having issues with one of my pins these days because of the pin cutting. But on paper, I am 6.5 cm in my both legs. So don't know what to do.
If I do 7 cm (on paper) suppose then I will be getting something like 7.7 cm in my X-ray. Can previous LL patients plz help me with this. Did LON or LATN patients experience any height loss (surely not much but still do mention if you have) after frame removal? No ballerina as of yet(but signs might start to appear soon)...as have been sandbagging constantly since 4cm and standing since 4.5 cm. Could somebody help me make a decision...can my last 9mm be bringing me much trouble or should I continue if nothing much happens?
Please share your experiences. Help needed. Did anyone other than Kilokahn experience anterior compartment syndrome, which is a new addition to even my knowledge. Please come up and write your views and share your experiences. Please write truthfully as it could be of great help to many future LLers...so please keep it productive.
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So I have sort of entered in my last centimeter. Initially, I planned to do 7 cm or at max 7.5 cm but now that I had done 6.5 cm on paper but got 7.1 cm on my X-ray I feel I would stop at 7.3 cm or something (as on paper), which would be around 8 cm on my X-rays. Has anyone experienced this before? Please leave your opinion and experiences here for all of us to learn from.
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Harry has taken care of a lot patients before, maybe you should ask him or ask your doctor for advice.
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Harry has taken care of a lot of patients before, maybe you should ask him or ask your doctor for advice.
That way I am protected and blessed. We discussed and it's not much of an issue as of yet as my muscles still have laxity and there is only 0.9mm more to go. It is because of Harry only and by God's grace that I have been able to achieve this. But then again I want to hear stories from actual patients also. How was their recovery 6 months after or a year after their frame removal? Did they also gain more in X-rays than on paper? which is kind of good for me. I remember Sweden saying he paid a heavy price for the last 1 cm i.e from 6 cm to 7 cm, so why did he feel so? etc
I mean Kilokahn's ant. compartment syndrome is an eye-opener for all of us. What is his actual age? Does anyone know? Because in the picture, his foot gives the impression of a really aged man in his 50's or 60's something. It's a very important question, as we can get to understand the cause and circumstances which could have led him to develop ant. comp. syndrome and try and avoid developing such situations ourselves.
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Adward,
The lengthening in xrays is longer by 10-15% than the actual length so u can do the math now and calculate.
Also i don't know ur accuracy of turning but remember u r turing a 6mm thread nut that goes 1 mm for a complete revolution ( 360 degrees ) if u turned 10 degrees more every day for a long period u may end up with results more than expected.
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7 cms is too much for tibia if i were u i would stop. From ur picture ur ankle looks good so just stop and focus on ur recovery.
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Adward,
The lengthening in xrays is longer by 10-15% than the actual length so u can do the math now and calculate.
Also i don't know ur accuracy of turning but remember u r turing a 6mm thread nut that goes 1 mm for a complete revolution ( 360 degrees ) if u turned 10 degrees more every day for a long period u may end up with results more than expected.
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7 cms is too much for tibia if i were u i would stop. From ur picture ur ankle looks good so just stop and focus on ur recovery.
Thanks a lot AR. But then should I trust the X-ray or my calculations? Because the margin is of ~6mm in the left leg. Thanks once again for sharing your views, it does mean a lot. :)
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Adward,
In fact u can't trust both. Because there is always some error in turning because at the end these are mechanical parts that have tolerances and compliance. And also the xray measurement has some erorr . My doctor told me sbtracte 10% of the xray length and this is the amount of lengthening. In fact one can expect to lose couple of mms than he expected.
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Sweden developed bad ballerina foot at this amount of lengthening and bf can happen in one night and he spent a lot of time trying to fix it without surgery.
I lengthened only 4 cms which was 43mm in x-ray i didn't develop any bf after lengthening but after correction using hexpods I developed 2 cms bf and knee bending they are almost gone after month but they are very bad complications and can make u hate ur self and push u back if u dnt have motivation. Im just sharing that because even at small lengthening with bad decisions u can develop complications yes they will disappear in short time because its only 4 cms but imagine 6 or 7 or 8 . Believe me 1 cm can save months of recovery.
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have u entered consolidation phase? and last time we saw u didnt have the best callus formation i hope ur improving on it. any updates?
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Bump, are you dead Dr. Adward?
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Hi Edward anyupdate on your lengthening progress.
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i think somethings wrong, unless som1 has heard from him.
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can som1 call the place and confirm if he's alive.
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I get terrified when someone abruptly stops updating their diaries..Does that usually flag as something wrong?
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I get terrified when someone abruptly stops updating their diaries..Does that usually flag as something wrong?
i dont know..mb its all good but usually the person who's using the facebook/twitter account is the only one who logs in and no1 else. in the case of ll forums its even more so. so that raises questions.
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No, I am very much alive, so stop worrying. I am healthy and doing well. My frames were removed a long time back and am now in my recovery. I stopped writing because of all the hate that I was getting, as in no way was it good for me. Soon I would leave for my home country. My journey has almost come to an end and was lucky that I landed in safe hands here in India. Best of luck to all the future LLers. Stay healthy and happy. :)
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No, I am very much alive, so stop worrying. I am healthy and doing well. My frames were removed a long time back and am now in my recovery. I stopped writing because of all the hate that I was getting, as in no way was it good for me. Soon I would leave for my home country. My journey has almost come to an end and was lucky that I landed in safe hands here in India. Best of luck to all the future LLers. Stay healthy and happy. :)
Can you plz put your timelime? like date of surgery:...., date stopped lengthening:.........., date frames removed:.....
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Can you plz put your timelime? like date of surgery:...., date stopped lengthening:.........., date frames removed:.....
I had my surgery almost six months back and got my frames removed on 22nd of September. I lengthened 8 cm.
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good to hear from u. yea there will always be negative ppl but don mind them.
also now in the recovery phase how r u doing? more importantly can u walk/jog/run etc and is ur walking same as before or noticeably different.?
best of luck in the future!
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good to hear from u. yea there will always be negative ppl but don mind them.
also now in the recovery phase how r u doing? more importantly can u walk/jog/run etc and is ur walking same as before or noticeably different.?
best of luck in the future!
Thanks. Definitely cannot run but yes have started walking with aid. Running, jumping is forbidden for another year or so I believe.
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I feel one becomes really impatient once he/she is back on his/her legs. Once you stand your immediate desire is to walk and then once you start walking you immediately want to run. Human life is really full of greed and impatience. ;)
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Morning stiffness is getting better day by day. Walking is also becoming easier with each passing day. Time for surgical fruits to ripen up.
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All movements and ranges of my knee joint are back to normal. I remember till sometime back I used to have knee shivering upon standing along with a slightly bent knee, but it seems to be getting better day by day. I am happy with my knee movements and these days Harry and me, we are working on my ankles. Had a wonderful meal last night with my caretaker and some other staff members. Am soon planning to go for a movie. Some suggestions...?
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seems like its just a matter of months before ul be walking everywhere normally. thts gr8. wish u speedy recovery man
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You pretty much had the perfect surgery, lengthening, and recovery. Congratulations man! I'm doing full externals right now but really considering getting a nail after this.
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I wish u speed recovery man .
How are ur ankles ? Any ballerina? Do u plan to post any walking videos here ?
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You pretty much had the perfect surgery, lengthening, and recovery. Congratulations man! I'm doing full externals right now but really considering getting a nail after this.
Actually, no one's LL is sorrow-free or pain-free. Everyone has their own share of problems. It's just a journey which isn't perfect for anyone.
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seems like its just a matter of months before ul be walking everywhere normally. thts gr8. wish u speedy recovery man
Thanks
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I wish u speed recovery man .
How are ur ankles ? Any ballerina? Do u plan to post any walking videos here ?
Things are on track is all I can say. Video yes I might post but later when I am back home.
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Generally, when I wake up I have a ballerina of about 1 to 2 cm and stays for almost an hour or two. During the day while I stand or walk this problem doesn't occur. I usually stand about 4 times a day with each session comprising of about 10 mins or so. In terms of walking, I can complete my daily routine rather easily and am on track to increase it.
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It took me 2 month and half to get rid of ballerina but so far i didn't restore my full ankle ROM , it takes time . And unfortunately u need more than 90 degrees in ur feet to be normal , standing with a good posture, standing from the setting position, balance , going downstairs. I found that using crutches accelerates the cure for ballerina because i used to use walker but crutches are better .
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It took me 2 month and half to get rid of ballerina but so far i didn't restore my full ankle ROM , it takes time . And unfortunately u need more than 90 degrees in ur feet to be normal , standing with a good posture, standing from the setting position, balance , going downstairs. I found that using crutches accelerates the cure for ballerina because i used to use walker but crutches are better .
When did you have your surgery and how's your R.O.M now?
How long did it take you before you started running again?
When did you start gyming again properly?
Do your nails bother you while exercising?
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My operation was 26 of june 2018 , lengthened only 4 cms , I started correction in August , after that i had ballerina and knees bending , from august until 2 month and half I can put my heels confidently on the ground . Needless to say that my knees bending went very quick. I'm still have the frames. No nails just pure ilizarov, My ROM of the ankle is almost 93 degrees with straight legs ( knees extended ) so as i mentioned no peoblem in walking but other activities that require extra ROM i suck very bad .
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Will post today some x-ray pics, which were taken almost like 10 to 12 days post surgery, as requested.
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hey man hows ur consolidation showing in ur latest x-rays?
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(https://i.imgur.com/vryQp2w.jpg)
(https://i.imgur.com/97aqmXw.jpg)
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is that fibula attached or something. tht x-ray angle looked like the screw was going into the fibula. il still assume not coz 90% of the times fibula is left untouched in cll ofc other than the initial osteotomy and resection that is.
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is that fibula attached or something. tht x-ray angle looked like the screw was going into the fibula. il still assume not coz 90% of the times fibula is left untouched in cll ofc other than the initial osteotomy and resection that is.
LOL. See the X-ray correctly bro.
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As I am almost in the end phase of my journey and am feeling lucky about it, therefore now at times I do remember those days when I used to find others as lucky for having already completed their LL journey. I have also come to realize that it's not just a physically challenging pathway rather on the contrary it's more of a psychological one. Believe me, once you reach mid-way through your LL journey you start being happy like you have been never before, why because now your previous life goal is nearing its completion and suddenly you have time to think about your next 'big goal'. It provides you with a sense of relief and achievement at the same time.
So one take away for everyone from my journey till here would be that with LL you don't just transform yourself physically rather you also transform your little Edward soul which has finally finished its craving for height and has started to taste satisfaction for once after an awfully long period of time. Believe me, it's a life-changing experience both physically and mentally.
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Today had a visitor in Dr. Sharma. So am just dropping a quick update here, which is that am doing great and there is an improvement on each front. Just like in GOT, winter is finally here and is in full swing. So presently am enjoying my cold wintery days.
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Can anybody suggest me as to how to upload a video here?
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Can anybody suggest me as to how to upload a video here?
Upload it on youtube, paste the link
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how r u dealing with the ballerina foot
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https://vimeo.com/308297771 (https://vimeo.com/308297771)
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https://vimeo.com/308297771 (https://vimeo.com/308297771)
u have some belirina contracture but ive seen worse. urs is quite manageable. also did u get compartment syndrome
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u have some belirina contracture but ive seen worse. urs is quite manageable. also did u get compartment syndrome
No
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Day by day walking is becoming smoother and smoother. Daily routine has started to seem easier again. Time is a true luxury and can't tell you how fast it runs. A very happy new year to all.
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Today, again I will post an X-ray which was taken almost after a gap of 15 days from the last posted X-ray.
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Hello, my friend, by radiography, it looks like everything is fine, in relation to the proportion you think it's going to be good even if you reach 8cm? what are the measurements of your femurs and tibias?
I understand that some people even stretching the tibia too much are within normal because they have very long femurs naturally,
I already am the example of the opposite my femur and tibia has approximate values (approximately 42cm for tibia and femur) for me it would be great to lengthen the femur hahahaha
I hope you get over it quickly and be very happy it's a very big win to reach us at 7cm congratulations !!
and happy New Year !! You're going to start the year higher, it's very cool !!! :D :D
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In the x-rays the gap between the tibias is more than the fibula gap, meaning the fibula was pulled down or up, proximally or distally exactly as doctor paley suggests in this video. Thats y the alot of docs including the russians i was talking to do the fibular fixing at distal and proximal ends.
https://www.youtube.com/watch?v=BwXeZ0VWsNY
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(https://i.imgur.com/6FL8e9Y.jpg)
(https://i.imgur.com/fEJ0Ari.jpg)
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Hello, my friend, by radiography, it looks like everything is fine, in relation to the proportion you think it's going to be good even if you reach 8cm? what are the measurements of your femurs and tibias?
I understand that some people even stretching the tibia too much are within normal because they have very long femurs naturally,
I already am the example of the opposite my femur and tibia has approximate values (approximately 42cm for tibia and femur) for me it would be great to lengthen the femur hahahaha
I hope you get over it quickly and be very happy it's a very big win to reach us at 7cm congratulations !!
and happy New Year !! You're going to start the year higher, it's very cool !!! :D :D
Thanks buddy. Atleast I would want to believe that they do look normal...haha. Can't say about others.
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In the x-rays the gap between the tibias is more than the fibula gap, meaning the fibula was pulled down and up, proximally and distally exactly as doctor paley suggests in this video. Thats y the alot of docs including the russians i was talking to do the fibular fixing at distal and proximal ends.
https://www.youtube.com/watch?v=BwXeZ0VWsNY
Sanity is really into it...LOL
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Stiffness in my ankles is getting better day by day and the same can be said about my knee joint. Have to just keep working hard.
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Sanity is really into it...LOL
yup..this is the only thing i fear.
https://www.ncbi.nlm.nih.gov/pubmed/12370581
A migrated fibula can cause lifetime problems, but it might cause none.
Anyways I hope and wish u best of luck with ur recovery. ur an inspiration for me and many. gl man
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yup..this is the only thing i fear.
https://www.ncbi.nlm.nih.gov/pubmed/12370581
A migrated fibula can cause lifetime problems, but it might cause none.
Anyways I hope and wish u best of luck with ur recovery. ur an inspiration for me and many. gl man
Thanks buddy and best of luck for your surgery.
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A photo, which was taken just after wax application. It's a very useful form of heat therapy. Harry really gives you his fullest but then you also need to put in all your efforts to have a wonderful outcome. It was a mammoth task made easy by the support of Harry and Dr. Sharma. By God's grace, everything is as expected.
(https://i.imgur.com/mILaVeb.jpg)
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My heels can touch the ground now. Also, joints have become much more flexible than before. The everyday routine has also changed and has become easier. Hope the growth graph just goes upwards and onwards from here.
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Yesterday Dr. Sharma came for a check up on my progress. He was more than satisfied. My balance has become much better now. My joints are also becoming more mobile because of wax therapy. I think this should be added as a standard physiotherapy procedure done for all LLers worldwide. Never thought this would change me so much not just physically but mentally too.
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https://vimeo.com/311119983
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Nice progress. I'm jealous, I still have to wear the frames ...
try to touch the ground with your heel first when you make a step. I still have troubles to do that with my left foot.
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Nice progress. I'm jealous, I still have to wear the frames ...
try to touch the ground with your heel first when you make a step. I still have troubles to do that with my left foot.
Thanks dude. I am sure you are doing great too. ;)
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Some more videos.
https://i.imgur.com/cN78UyC.mp4
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https://i.imgur.com/vp4X2Gv.mp4
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Just came back from a trip. Had fun-filled three days with friends and family. My ankles are really flexible now. Walking has become really easy. It's not as challenging as it was before. Morning stiffness is still there but that too goes away like after 5 minutes or so.
How's the progress of other LLers?
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Just came back from a trip. Had fun-filled three days with friends and family. My ankles are really flexible now. Walking has become really easy. It's not as challenging as it was before. Morning stiffness is still there but that too goes away like after 5 minutes or so.
How's the progress of other LLers?
I'm about to start my journey soon
I gotta say I didn't have much faith in Indian surgeons but you look like a guy that did each and every single thing golden standard style
Thanks for this dairy, its been a help. Your positive attitude throughout the dairy is what I strive to maintain during my hardship
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I'm about to start my journey soon
I gotta say I didn't have much faith in Indian surgeons but you look like a guy that did each and every single thing golden standard style
Thanks for this dairy, it's been a help. Your positive attitude throughout the dairy is what I strive to maintain during my hardship
Thanks a lot for this very humble response of yours. About your LL surgery and post it, I am damn sure you would do great.
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Am adding a new video today. Also, someone soon is about to come here for LL. I just met the person yesterday. The person might begin the journey very soon. So congratulations in advance from my side.
https://vimeo.com/312875914
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Please tell me thats not 1 of the exercises your doing to get rid of ballerina.
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Please tell me that's not 1 of the exercises you're doing to get rid of the ballerina.
LOL. You are really naive buddy. :)
That is to show the movements of my ankle joint. That's why you can see me doing movements like dorsiflexion, plantar-flexion, circumduction of the foot.
Do share your experience with me as well. How's your condition now? What difficulties do you face now in your everyday life? Hope the best for you. Do let us all learn from your positive and negative experiences with your LL, your mistakes, your corrections, your positive approach to deal with them. Better if you can summarise them all here. And would request other LLers to do the same here as well.
We can all learn from each other's experiences.
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Happy New Year and best wishes for your surgery!
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Hi Adward, Thanks for sharing your experiences. Very nice diary,
Pls tell me why you chose Dr Pradip Sharma . I also want to do it my surgery with good and experienced doctor but here is only one diary related to Dr Sharma . Before i want to go with Dr Sarin but i did lot of research about him in forums lot of very bad experience about him people written in his diaries so i am confuse.
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And pls could you explain about your procedure.
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Happy New Year and best wishes for your surgery!
Thanks
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X-ray as promised.
(https://i.imgur.com/R9XRRY6.jpg)
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Hi Adward, Thanks for sharing your experiences. Very nice diary,
Pls tell me why you chose Dr Pradip Sharma . I also want to do it my surgery with good and experienced doctor but here is only one diary related to Dr Sharma . Before i want to go with Dr Sarin but i did lot of research about him in forums lot of very bad experience about him people written in his diaries so i am confuse.
I would suggest you read my diary as I have already stated my reason for choosing Dr. Sharma and Harry. He had a very good track record of CLL backing him. Plus he is a respected surgeon in the community. Thus I made up my mind and went with him and by God's grace achieved wonderful results.
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And pls could you explain about your procedure.
I chose LON because I found it most suitable for me. Fewer chances of nerve entrapment, less muscle wasting, faster recovery as compared to pure Ilizarov's and so-called hybrids. Also as compared to LATN, I found having one stressful surgery, a much better option than having two as in case of LATN.
You can read my diary for a more elaborate answer.
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Hope you'll do well
Until now, do you have any regret ?
Im a curious about it, I am 17 and would like to know the opnion of people who have done that surgery. I just got started researching it a few days ago.
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I chose LON because I found it most suitable for me. Fewer chances of nerve entrapment, less muscle wasting, faster recovery as compared to pure Ilizarov's and so-called hybrids. Also as compared to LATN, I found having one stressful surgery, a much better option than having two as in case of LATN.
You can read my diary for a more elaborate answer.
I have made a decision to not to go to Dr Sarin for my surgery. I am considering some other ll doctors in India. May be, will soon come and meet you in person .
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How much Dr Sharma charging now for everything ?
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Hello
Can you give a little more info on pain killer use in terms of your medical opinion
What I mainly want to know in addition is
1) Any particular benefits of general anaesthesia over spinal? quicker to start exercising so you can maintain your muscle and mobility ?
2) Can we bear pain and avoid painkillers - heavy liver metabolism almost always ages the body and the face - which are extremely bad
3) Would you have done externals only over LON - now.
Thanks Adwards,
Malaysia boleh
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Excellent work Adward.
using crutches will help you get your flexibility really fast. also try to walk bare shoes this will help and when you put ur shoes again life will be easier.
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Hope you'll do well
Until now, do you have any regret ?
Im a curious about it, I am 17 and would like to know the opnion of people who have done that surgery. I just got started researching it a few days ago.
No, not at all. But please keep in mind that I am a doctor myself and onto that, I had a wonderful surgeon and physio in Harry by my side. So the journey went pretty much smooth. If your attitude is correct then LL is very much doable.
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I have made a decision to not to go to Dr Sarin for my surgery. I am considering some other ll doctors in India. May be, will soon come and meet you in person .
You are most welcomed.
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How much Dr Sharma charging now for everything ?
The charges were updated at the beginning of this year to USD 15k. If you have some private inquiry then you can contact Harry himself. You can email him at heryshgr@gmail.com or WhatsApp at 9560867721.
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Excellent work Adward.
using crutches will help you get your flexibility really fast. also try to walk bare shoes this will help and when you put ur shoes again life will be easier.
Thanks buddy for your advice. Already onto it. Wish me luck..:)
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Hello
Can you give a little more info on pain killer use in terms of your medical opinion
What I mainly want to know in addition is
1) Any particular benefits of general anaesthesia over spinal? quicker to start exercising so you can maintain your muscle and mobility ?
2) Can we bear pain and avoid painkillers - heavy liver metabolism almost always ages the body and the face - which are extremely bad
3) Would you have done externals only over LON - now.
Thanks Adwards,
Malaysia boleh
General anesthesia - Actually few patients report backache post spinal which is not medically evident but still why risk it?
But with spinal theoretically you avoid much of the surgical stress to your body as compared to GA. Also spinal provides pain relief for a longer duration of time (for almost 48 hours post surgery or even more if needed) which is not the same as with GA.
A young and healthy liver is perfectly capable of tackling such stressful situations, so you need not worry about it. A good doctor would neither let his/her patients overdose on painkillers nor would he/she let his patients suffer because of pain. Every big hospital has a special clinic dedicated to just pain management. But believe me, you need to be ready for painful 48 hours post surgery if going for GA. But then again listening to stories of so many patients reporting such post-procedural pain in case of spinal, I became a bit skeptical and therefore went on with GA. Again I would reiterate here that no such medical evidence is present which points to the spinal procedure being the reason for such backaches. You can go even farther than this and call it a medical myth, a myth which I gave into and therefore chose GA over Spinal.
If you go for GA, you can choose fentanyl infusion for the first few hours and then use Buprenorphine patch along with Dynapar or PCM infusion. You can go through my diary for more.
Yes, I would still go with LON. When I made this choice I thought thoroughly and didn't choose it just randomly. So no I would not opt for pure Ilizarov's (i.e externals only) or those so-called hybrids even today.
I hope my answer would be helpful.
Malaysia Boleh :)
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My recovery is going well. Presenting another video from Harry's rehab...tan tana ;)
https://vimeo.com/315513226
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wow I'm impressed!
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My recovery is going well. Presenting another video from Harry's rehab...tan tana ;)
https://vimeo.com/315513226
Good job man
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Hi Adward
I am coming to meet you on monday.
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Hi Adward
I am coming to meet you on monday.
It was great to meet you Adios. I hope I have cleared all your doubts regarding the surgery to the best of my ability. Best of luck for your surgery and life.
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It was great to meet you Adios. I hope I have cleared all your doubts regarding the surgery to the best of my ability. Best of luck for your surgery and life.
Thank you Adward
I have decided my surgery with Dr. Sharma , Next week Tuesday.
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So Adios has had his surgery 2 days back. He is in recovery. Once ready he will be starting with his diary on this forum. A very warm welcome to Adios in advance from all of the LL community.
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I just got the good news. I might soon start walking unaided. Next step will be the balance, stairs, un-leveled roads etc.
As of now while walking using an elbow crutch, my heels do touch the ground. Will soon post my new X-rays.
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(https://i.imgur.com/WP9Susk.jpg)
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Wow! Adward - those are looking great from what I understand about how they should look during consolidation. Looking forward to you getting back on your feet again. It has been quite the journey for you.
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Wow! Adward - those are looking great from what I understand about how they should look during consolidation. Looking forward to you getting back on your feet again. It has been quite the journey for you.
Thanks buddy. Am too just eagerly waiting for that day.
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New video
https://vimeo.com/322449873
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My ballerina is almost gone and I am becoming more and more confident while walking with each passing day. I have added more exercises to my everyday routine so as to have even stronger muscles. Bygone are the days of a comfortable bed (all for good). Hope everyone else is also doing great. :)
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Your walk is looking good! Great progress. I can see the light at the end of this tunnel. Nice job, man.
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Your walk is looking good! Great progress. I can see the light at the end of this tunnel. Nice job, man.
Thanks bud, for your hope-filled message.
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How are you doing Sanity? How's your journey going on?
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How are you doing Sanity? How's your journey going on?
sanity went to Russia.
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Congratulations--it looks like you made much progress with consolidation since January.
It must feel good to be up and walking--I envy you and look forward to that day.
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Congratulations--it looks like you made much progress with consolidation since January.
It must feel good to be up and walking--I envy you and look forward to that day.
Actually, I had this very same feeling before starting my journey. And yes, at times it was a bit scary and painful yet I knew that it was all for my greater good. It was then that I realized how much important these diaries are for LL newbies, as it's not just a source (semi-source) of information but also a source of support and encouragement. Here we call all speak about our insecurities openly. This is the place where we all understand each other and are not worried about being judged for our choices.
It is a place where we all can find solace. This forum gives us hope and confidence. And ultimately, it makes us brave thinking that we are all into this together for better or for worse.
Moral of the story is- If I am doomed so are they...in this case you all.....hahahaha ;D ;D ::) :o :o ::) ::)
And yes buddy you too will have a chance to gloat, flaunt or whatever and you too will have some friends who will envy you (in a good sense obviously)...hahahaha...just like me. :) ;) ;)
Thanks a lot for your wishes and for such a cheerful message. And yes, we will all be with you in this life-transforming journey of yours :)
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I can walk for much longer distances now but am still cautious. Muscle rigidity is still there but much lesser than before. Muscle rigidity is more pronounced specially when trying to stand after a period of rest, though it goes away quite quickly.
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Hi Adward
Need your help here, want to ask how did you work with your pain threshold and level of discomfort. I am feeling very low. I can really use your help here.
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I can walk for much longer distances now but am still cautious. Muscle rigidity is still there but much lesser than before. Muscle rigidity is more pronounced specially when trying to stand after a period of rest, though it goes away quite quickly.
Hello, How much total you gain ??
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What is your size shoes US?, your foot looks very big
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Hi Akito. I am thinking of surgery in India. Are you staying at a hotel? I am the same Japanese as you. I am concerned about India's environment and hygiene. How is the environment in India? Can you discuss in Japanese if you like?
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Hi Akito. I am thinking of surgery in India. Are you staying at a hotel? I am the same Japanese as you. I am concerned about India's environment and hygiene. How is the environment in India? Can you discuss in Japanese if you like?
You may contact Harry directly. He can assist you in contacting Akito via him. Or alternatively you can message Akito or put a note in his diary. He is a genuine patient. Also need not worry about hygiene or anything....Harry takes care of everything for you.
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Hi Adward
Need your help here, want to ask how did you work with your pain threshold and level of discomfort. I am feeling very low. I can really use your help here.
Need not loose hope. Only secret here is to have a positive approach. Nothing is more powerful than this.
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What is your size shoes US?, your foot looks very big
Yes, probably got it from my father.
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Hello adward how much you total gain ?
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My condition has really improved. My muscles are a lot more lax than before. Still there is a long way way ahead. I am keeping up with my exercises and hope to be doing much better within next 3 - 4 months.
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My condition has really improved. My muscles are a lot more lax than before. Still there is a long way way ahead. I am keeping up with my exercises and hope to be doing much better within next 3 - 4 months.
All the best brother. Stay healthy and stay strong.
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Hi Adward
Thanks for sharing your experience, your diary is perfect. I am also want to do LL surgery in next few months. Could you give me some details.
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Hi Adward
Thanks for sharing your experience, your diary is perfect. I am also want to do LL surgery in next few months. Could you give me some details.
You mean advice or Harry's details?
If you mean advice then the two advices from my side would be:
1) Do thorough research on the procedure you choose and be reasonable with you expectations.
2) Stay sane and don't be irrational. Be mentally tough.
For contacting Harry you can either use email or whats-app. His email address is heryshgr@gmail.com and his whats-app number is 9560867721.
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You mean advice or Harry's details?
If you mean advice then the two advices from my side would be:
1) Do thorough research on the procedure you choose and be reasonable with you expectations.
2) Stay sane and don't be irrational. Be mentally tough.
For contacting Harry you can either use email or whats-app. His email address is heryshgr@gmail.com and his whats-app number is 9560867721.
Thank you for reply.
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My legs are becoming stronger day by day. I can sense the difference. I can stand for longer durations as well as walk faster than before. It is really something that requires a lot of patience on your behalf. It's no quick fix but ultimately you get what you have longed for so long.
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Contacted Harry asking for prices. How much does it cost for LON ? 15k usd include only 3 month of everything!
How much external only cost 15k usd include 3 months of everything .
Ok thank you
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hello adward how much you recover ? do you walk normally as before surgery ?
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Contacted Harry asking for prices. How much does it cost for LON ? 15k usd include only 3 month of everything!
How much external only cost 15k usd include 3 months of everything .
Ok thank you
See all essentials are included I believe. Anything add on would be from your pocket.
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hello adward how much you recover ? do you walk normally as before surgery ?
Not yet. Actually it take time to reach the exact same level as before. It takes time to be carefree again. Yes but it's a price you pay for your happiness.
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Looks like another fake diary or financially compromised patient. Harry is a known con artist, he was associated with Sarin & Sringari before. He is known to have association with App/Sysop. His involvement in this diary and so much praise from you is nothing but obvious red flag.
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Looks like another fake diary or financially compromised patient. Harry is a known con artist, he was associated with Sarin & Sringari before. He is known to have association with App/Sysop. His involvement in this diary and so much praise from you is nothing but obvious red flag.
Feels like you have some personal issues with Harry , I have read this diary and some of other doctors diaries too I believe he worked good enough to gain such attention. People are sharing their experiences if you feel they are fake don’t read and just ignore. Nobody can fake pictures. Another fake diary???? Means there are many according to you. Then what are you doing here. Are you known to be a truth seeker. Why are you being so judgemental, this fella is there about a year and being here from few days you can say that the entire nine pages are fake.
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Feels like you have some personal issues with Harry , I have read this diary and some of other doctors diaries too I believe he worked good enough to gain such attention. People are sharing their experiences if you feel they are fake don’t read and just ignore. Nobody can fake pictures. Another fake diary???? Means there are many according to you. Then what are you doing here. Are you known to be a truth seeker. Why are you being so judgemental, this fella is there about a year and being here from few days you can say that the entire nine pages are fake.
Why are you attacking me? Apo/Sysop and his dogs crazy, Harry, sunny, Sarin and Sringari are fktards of 3rd world. If you want to butcher yourself, you can.
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Why are you attacking me? Apo/Sysop and his dogs crazy, Harry, sunny, Sarin and Sringari are fktards of 3rd world. If you want to butcher yourself, you can.
Bro you have serious issues I am no friends any of those and those are such strong words you using I hope you are fine you should try meditating.
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Why are you attacking me? Apo/Sysop and his dogs crazy, Harry, sunny, Sarin and Sringari are fktards of 3rd world. If you want to butcher yourself, you can.
Adward has put photos and videos of his recovery. And they do look good. What are you expecting more ? He should visit your home Lol ;D
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Adward has put photos and videos of his recovery. And they do look good. What are you expecting more ? He should visit your home Lol ;D
well said dude :)
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Adward, great diary. How is your gait now? Do you walk quite normally now?
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Bro you have serious issues I am no friends any of those and those are such strong words you using I hope you are fine you should try meditating.
Are you serious? I never said you are friends of them?🧐
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Adward has put photos and videos of his recovery. And they do look good. What are you expecting more ? He should visit your home Lol ;D
We have seen photos & videos in other Sarin & Sringari diaries which were fake. If you want to butcher yourself, go butcher in India.
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We have seen photos & videos in other Sarin & Sringari diaries which were fake. If you want to butcher yourself, go butcher in India.
Thank you but don’t need your suggestions.
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Hi Adward long time no seen, How is your recovery going man did you start walking comfortably. If possible please update.
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Adward, great diary. How is your gait now? Do you walk quite normally now?
no still some time is needed.
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Hi Adward long time no seen, How is your recovery going man did you start walking comfortably. If possible please update.
Yes i am doing well. My bone is becoming more and more consolidated with each passing day. Give it another 1.5 to 2 months and I will be almost back to normal. Only will have to take precautionary measures for nest 6 months, that's all.
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Hi Adward
What is your status?
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Hi Adward , How is your condition now ?
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Hi Adward,
How are you brother?
Please update your status people are really wanna know how you are doing?
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Doing fine but still not back to normal. It is going to take some more time but rest everything is going good and am doing much better than before.
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As someone previously requested me to share my opinion on LL as a veteran, therefore here is a suggestion from my side to everyone. So whichever segment you choose i.e just tibiae or just femurs or a combination of both, either way don't go beyond the limit of 7 cm. You wouldn't loose much flexibility with it and would risk much less than say with 9 or 10 cm done on both tibiae and femurs put together. I think this would be sufficient to satisfy your LL greed as well as you wouldn't be risking much by going against the human body's biological laws.
If you still have questions then you can write them in my diary. I will try and reply as and when I find free time. Best of luck to all LL-newbies and future LLers :)
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Thanks for the advice, I was planning on 8cm for tibia but would you say that 1cm extra leads to a much longer recovery time?
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Thanks for the advice, I was planning on 8cm for tibia but would you say that 1cm extra leads to a much longer recovery time?
yes go for max 7.5cm. if you gain it in 75 days then the recovery time should be 3x days like 225 days or maybe more. if your body and doctor permit then go for 8cm.
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yes go for max 7.5cm. if you gain it in 75 days then the recovery time should be 3x days like 225 days or maybe more. if your body and doctor permit then go for 8cm.
Hi montahn
How much you lengthen ?
And what’s recovery decide?
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Doing fine but still not back to normal. It is going to take some more time but rest everything is going good and am doing much better than before.
Good luck man.
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Hi Adward ,
your diary is very inspiring me. Thanks for sharing your experience.
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Hi Adward ,
your diary is very inspiring me. Thanks for sharing your experience.
Thanks buddy.....:)
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So this is my last post in this diary. Finally we have reached at the end of 'my dear diary'. :D :D :D
I am recovering and am doing well. I will almost be back to normal soon.
I am keeping up with my exercise, healthy diet, ample water etc.
Harry has been of great help throughout the journey and is a great human being as a whole. Would wish him all the best from the deepest point of my heart.
Huge thanks to all LL veterans whose diaries were so inspiring and full of knowledge. It was their first-hand experience as well as their in-depth analysis of whole of the LL process which helped me a lot. There is nothing that we can equate this experience and community with.
As a whole I am happy and know will overcome few struggles which are left.
MY journey is almost finished and am happy with my results (all thanks to Harry). Wishing all the best to all new upcoming LLers. Have fun and stay strong. :)
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Congratulations and stay strong.
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Hi Adward
Your diary is very elaborate and with lots of images. It really inspired me. I also want to do surgery in India but I am confuse. Please share your number on PM.