Limb Lengthening Forum
Limb Lengthening Surgery => Limb Lengthening Patients Experiences => Topic started by: Time4LL on September 25, 2014, 04:58:22 PM
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It is finally my time to get LL done.
Tomorrow I will be getting LON with Monorail on my Tibia with Dr. Inan in Istanbul Turkey. I checked in the hospital at 3 PM today and am awaiting my surgery that is scheduled for 8:00 AM tomorrow. I am kind of nervous but have thought about it a lot and have tried to prepare mentally the best I could.
I hope this diary can help other people with there decision. Dr. Inan I felt was the best choice for me as the facilities are top notch and I felt his personality was very similar to mine. I also feel that Turkey is a relatively stable country both economically and politically which makes me feel more secure. The only thing that made me apprehensive was the lack of patient experiences and diaries. However that is why I am calling myself Trailblazer because I will be the first diary of his using LON on Tibia:) (ChrisIsaak/Upinthesky was the first diary on here as he did Fitbone on his femur so he is the real pioneer.) ChrisIsaak/Upinthesky has helped me a lot with the whole process so I have him to thank for helping me get here.
I don't plan on posting pictures as I do not want anyone to know who I am, like most of the people on the forums, but maybe I can post a few of the hospital. I am going to be living in an apartment about 30 minutes away from the hospital. The apartment is probably nicer than my house which I never thought I would be able to have during LL. The only thing that sucks is there is no one to socialize with or take care of me. I think I will be able to manage though as 6 months is not that long and hopefully I will be done by then and on my way home. I, also like everyone else, am just ready to be taller and go on with life. I am only doing this surgery once and than hopefully I never visit the forum again and forget about it! :)
I am 22 years old and am currently a student at a University in the United States.
Height: Morning: 5'7" (170 cm)
Evening: 5'6.25" (168.3 cm)
Wingspan: 5'8.5" (173.99 cm)
Weight: 150 pounds
Goal: 5-8 cm (Would be ecstatic with 8 but would be very happy with 6 or 7 as well, would kind of be disappointed with 5cm. I might be one of those guys that really wants a certain number haha)
I don't really know what else to write about. Hopefully, I can answer anyones questions and for the people that are also going through this journey maybe we can help each other get through it. I am also an avid football fan (that is american football) so feel free to talk about that on here as much as possible! lol. I will be posting the same information on both forums as I really think that both forums have helped me immensely and I would love to be able to give back a little bit.
Hopefully all goes well, wish me luck!
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Cool! Hope you have a successful LL journey.
How much are you paying for rent on that apartment that's nicer than your house? :D
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All the best buddy!
Dr.Inan does seem like a very good choice and you are his first LON patient so your diary will be interesting.
Since you are in Turkey, a nation obsessed with soccer, you may switch interest from american football to actual football :P
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Haha I kind of an interest in soccer since the world cup but it would be hard to beat American Football. I probably need to educate myself more on it.
I am paying about $7,700 for six months for the rent and then I also have to pay for Wifi. It maybe isn't quite as nice as my house, actually it is my parents house lol, but it is definitely not too big of a step down.
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Wish you the best of luck. Do you know how long the operating procedure will take?
Frihet
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Wow. Really nice to have another DR.Inan diari . Good luck with the surgery
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good luck trail blazer :)
just remember pain is temporary, height is forever lol :)
apparently the first weeks will be the hardest :)
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Thanks for all the support. Yeah I am nervous about the first couple of weeks, I heard they suck. I never really was much of a tough guy so at least the pain will toughen me up haha. In all seriousness, I am focused and will do whatever it takes to get my goal.
@Frihet I am not sure how long the surgery will take. I will let you know tomorrow!
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Good luck man
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Why are you staying there for 6 months? I thought for 8cms you'd only need 4 months tops to lengthen for LON?
How much are externals only? And what are you doing regarding food, are you going to be buying groceries and cooking by yourself?
I dont think you mentioned the price, so how much are you paying for the operation?
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I am alive, very groggy still! That went so fast. I am staying 6 months to stay away from family and just recover. I hope to be frame free by Christmas and just consolidate after that. The prices are just on the doctor information that Is what I paid. I will cook meals by myself as I loaded up on food to cook mostly pasta and oatmeal, my two favotites.
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are you okay now? do you have some pains or something?
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I am doing okay, I really don't have pain but I am concerned because my knees have swelled up a lot. I just want my knee swelling to go down. Like I said the pain has been nothing so far and I can move my feet really easily. However, I am getting off of the pain killers so I am sure it will suck soon enough. They also tried to move me to a different room in the hospital. I don't mind going to a different room but I am in no condition to move right now as I feel very nauseas when I get up. I am kind of being paranoid right now about everything for some reason haha. This is definitely a challenging procedure, don't ever go into it thinking it will be easy. But I am up for the task.
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Hmm, how about giving my cell phone to the nurses? They can call me if they need to change anything / or if something needs an explanation, they can explain it to me and I can translate it to you on here (or on the phone).
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all the best , can I ask you this ? how can anyone know you by the photo of your legs ?
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Hmm, how about giving my cell phone to the nurses? They can call me if they need to change anything / or if something needs an explanation, they can explain it to me and I can translate it to you on here (or on the phone).
LOL, I thought I'd sent this through PM. It seems as if I'm trying to find a way to get the nurses' phone number, right? :D
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I wouldn't blame you. I think all the nurses are pretty good looking haha. There is one I think is especially good looking (the blonde haired one). I can be your wingman ChrisIsaak haha ;)
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Hi Trailblazer,
Did Dr Inan decide monorails would be better for you than the classic frames or did you decide that you'd rather have monorails? How do the pin sites feel?
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Dr. Inan actually I think only does monorails for cosmetic purposes. I am definitely okay with that as long as I get the desired result obviously. The monorails aren't nearly as bothersome as I think the classic frames would be. When you sleep on your back your calf is touching the bed which I think would be more comfortable as the pins would have no pressure on them unlike most illizarov frames. I really can't feel a whole lot still in my legs so I don't know about the pin sites. I will let everyone know how they feel once I get to walking. I am going to take a guess and say they aren't going to feel great but hopefully not to bad lol.
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I guess I was just thinking about LON versus external only while lying here in bed and wanted to start a discussion about it. I know a lot of people are adamantly opposed to LON but I was reading today about Paul George. I am a huge NBA fan so I follow this stuff pretty closely. Paul George did get the nail put inside his tibia bone with pins to hold it into place. If nails are so damaging to the knees wouldn't they do everything to ensure that an elite athlete who relies so much on his knees would not have this procedure done. Why didn't they plate his leg instead, or use a purely external fixator to keep it in line until it was healed? It is just interesting and I thought it would be a good thing to discuss because his knees are much more important than ours lol.
Just to be clear I am not saying people's opinions on here are wrong it is just a good thing to discuss and think about.
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What thinks Dr Inan about knee pain with LON? Did he the surgery of another way that doesnt cause knee pain?
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I asked him about that but I cannot remember what he said. He said that LON was much easier on the patient but was a much more difficult surgery. He said he would do external only but it would take a long time and would be tough on the patient. I really had a hard time deciding but ultimately thought it was better to take the knee pain risk and get back to life quicker. It seemed to do 7 cm you would need about 14 months in the fixator and that just was too long. I also thought the risk of the bone breaking kind of freaked me out if it wasn't consolidated enough. But that is just my thought process, I think it is just about what the person feels is best for them. Life is all about tradeoffs and LL is a perfect example of this.
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I tried walking today and it was very challenging. I got lightheaded quickly and had to sit down before I even got to the door. My left leg is much stronger than my right leg. It was good to get up but it was very painful. My legs are still very swollen and I am still receiving pain medication so I cannot feel them yet. I feel the monorail is pretty solid but I didn't put nearly my full weight on it so I don't know yet. I will be doing leg exercises and hopefully sitting up throughout the day.
I used to be a pretty good cross country and track runner and this feels like competition again, which I like. I remember having practices that were like hell and this may be quite similar. As a runner your competition was many times yourself. I wasn't just trying to beat the guy next to me I was trying to beat what I ran before. So tomorrow I will try to get to the door and back and improve from yesterday. That is how i look at it anyways, if that makes sense haha. My goal someday is to run a 5K at a new height and I do think it is possible with work. The start of the journey is definitely tough. I have to stay positive all the time.
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Do you know if the monorail with LON is full weight bearing? I know that monorail only isnt. But dont know with LON. Good job man. These days are the worst days. Stay strong
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I think you can weight bear with crutches or a walker. My doctor says I can do that.
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My first .25 mm!! The doctor came in and explained the lengthening process, which obviously was simple. I have to lengthen 4 times a day at 6 hour intervals and turn 1 mm a day for the first few cms. I was really happy to start lengthening today so that I can hopefully begin to see why I did this haha. I still experience swelling in my ankle and knee but it is manageable. The worse has been sleeping for me, I don't have pain but it is kind of hot in the hospital, I love to sleep in really cold temperatures. There has been no real pain because of the medication but I feel really bad tightness in my lower legs about halfway through the night and especially in the morning. I think it will be important for me to sleep with the braces that keep your feet at 90 degrees. The journey so far has been manageable and I will be ready to move into my apartment, I will be leaving the hospital tomorrow sometime.
I feel the monorail fixator is solid and have walked with a walker with it. Sometimes I get shooting pain but I have never felt that it was unstable, I will make sure to constantly monitor the stability of it. There are only two annoyances with it that I do not believe will affect the result. The monorail is on the inside of both legs, this doesn't go through nearly as much muscle is what the doctor said which is advantageous. However, he said that it is easy to clank them together when walking. I have done this already and it is kind of a weird feeling. The other thing is the monorail extends to just below my ankle. This is annoying because I don't know if I will be able to wear shoes with the fixator. I will try to post a picture of it later to show you guys. Those two things are inconvenient but I think they will be okay. I plan to wear the fixator for 100 days and whatever I get for length from it I will be happy with, as long as there are no complications of course.
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I hope the LON extending to below the ankle does not interfere with stretching.
is it designed that way to lock the ankle?
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Sorry if I wrote that wrong. It is not the LON that extends below the ankle it is the monorail fixator. I don't think it will interfere with stretching. I will let everyone know if it does. My ankles are so swollen I cannot tell right now.
I am not sure why it extends below. Maybe for more support? The fixator is about the same length as my knee height so it is kind of long.
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Hey Trailblazer, I know that you said you wouldn't take pictures of your body, but I was wondering if you could take pictures of your monorails zoomed in, in a way that no one would know who you were? Thanks man, and I'll be following your diary closely!
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Yeah I can do that. They are basically the exact same thing as what BodyBuilder had on the old forum. Same placement and everything. Bodybuilder said they were not weight bearable after 5 cm but Dr. Inan says they are maybe it is because of the internal rod. I will definitely be cautious.
It is not that big of deal, I will take some pictures and show people who are interested. I probably will just take them down after I am complete with the journey. Once I get wifi in my apartment I will upload some. My phone is dead right now so I don't have a camera or the motivation to do it right now haha. Glad you are interested in my diary, it gives me something to do to write it.
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Dr inan probably says that is full weight bearing because of your internal nail. Bodybuilder did only external. Nice to see that you have started your lengthening. Did dr Inan told you to how many cm you will length at a rate of 1mm/day?
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Have you got Knee pain ?
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Here is a small update. I finally got wifi in my apartment.
After tonight I will have turned 1 cm. I don't feel any taller yet haha so hopefully that comes later.
I am not going to lie this whole process is really hard. There are times when I wonder why I did this to myself but I am still glad I did it. Right now I am not around people where my height bothers me so it is easy to forget about it. Than I think about the United States and how miserable I was with my height and it gives me strength. There is no way I was ever going to be happy with my height so this was my option.
The only pain I feel is the stretching from turning. I have been turning 1.5 mm per day for the last three days because I am consolidating too quickly. Whenever I turn my left leg I always hear a pop and like the bone is breaking off. I have heard this probably six times so I am kind of concerned but I think if I keep turning 1.5 mm per day I will be okay. Turning that much has made me really sore before that I was doing really good. I hope to get down to .75-1 mm a day in a bout a week so my soft tissues can keep up. My goal is definitely 6-7 cm max no more.
I don't have knee pain at all yet. But I don't bend my knees as far as I normally would. What is the knee pain supposed to feel like with LON and when do most people get it? I am sure I will have it as the odds are not very good to not have it.
Overall I have been very fortunate and I really cannot complain.
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Wow 1.5mm per day. Thats a lot . But if you are consolidating so fast it will be ok. Have you told dr. Inan about that?. How is your walk now? Do you walk always with a walker or crutches or could you walk unaided some meters?
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Dr. Inan told me to lengthen that much for just a week until I see him next. I just got done lengthening and no popping noise out of my left leg and my right leg was almost too easy so I hope I didn't go too fast on that one.
My walking is okay. My legs are so tight it takes me a little while to get going. I walked from my apartment to the ATM close by which took about 45 minutes and it was probably a half a mile away. I don't walk unaided yet. I think I could once I get warmed up but it kind of scares me I guess. I tried walking like two steps once but I didn't feel comfortable, I don't have the power I once had or something. I might try again soon.
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Just thought I would give a small update today. Things have been going really good so far with everything. I have now turned 1.45 cm which is pretty good and my legs feel a little tight but not too bad. I am able to go back down to 1 mm per day because the risk of preconsolodation is gone which is good as 1.5 mm was way too much for me. Today I walked to the supermarket and back with my walker which took me about an hour. I was exhausted, it was a strange feeling as I used to be able to run 10 miles and now I get exhausted walking a half a mile but I have faith it will come back. I think it is so important to walk as much as you can during the process.
Living by myself has gone great so far, I FaceTime friends and family which helps pass the day and I watch movies and I have a walking and stretching routine. I stretch 30 minutes before each lengthening which is every 6 hours. So I stretch 2 hours a day. I also try to walk an hour a day along with the walking I do to go to the bathroom, make food for myself, clean, etc. I think having an apartment to manage is kind of good because it seems there is always something that can be done in the apartment and the days fly by. I think it also forces one to get up and move around as opposed to just lying in bed. Sleeping has been a challenge but I usually have been getting 6-8 hours a night. The thing that sucks is I lengthen at 12 am and 6 am which kind of gets in the way of sleeping. I think I will figure out a better routine for that so I don't get up twice.
The doctor's assistant said that I need to improve my achilles tendon flexibility so I have been working on that. I am worried about how I will be able to take care of myself as I lengthen more so I hope that goes well. I am never sure how my muscles will adapt with the length.
I have had a great experience so far and I hope it continues.
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Hopefully this image uploaded as it is my first time trying to do so. This is kind of a poor picture but it was taken today 17 days after surgery. It is kind of at a weird angle.
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Great image, thanks for that! It seems as though the scars from where Dr. Inan severed your tibia and fibula are relatively small. Would you ever get monorails on your femurs?
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I was very impressed with the incisions I thought he did a good job with that. I do not think I would do monorail on my femur for a two reasons:
1. There is so much flesh that the pins would be cutting through. Right now the pins are hardly noticeable for me as they are not cutting through much flesh.
2. I can get pretty comfortable and sleep on my sides with the monorail on the tibia. There is no way you could do that on the femur, I think it would drive me crazy.
I personally would not do it on my femur but if you want to go for it. For me as long as I get 6-7 cm though I will never do leg lengthening again. If for some reason I did want to do it again I would get internal femurs.
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Hopefully this image uploaded as it is my first time trying to do so. This is kind of a poor picture but it was taken today 17 days after surgery. It is kind of at a weird angle.
monorail is just fine for tibia, just don't forget to clean the pin site daily,
usually during distraction, also during standing or moving there could be some discharge come from pin site, so change the bandage immediately after that, IMMEDIATELY ..
Good luck in your journey
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What's your doctor's view on fibular fixation? Are you worried about fibular migration at the ankle joint? This is the primary reason I think Ilizarov is superior to monorails, because it stabilizes the ankle joint if the doctor fixates the fibula with a pin distally.
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Disobedient,
Thanks for the advice. Yeah my doctors have been monitoring that really well and soon I will be cleaning the pin sites I believe. They said this was very important.
Polycrates,
The doctor did not fixate the fibula, I really did not ask too much about that. I think one could have the fibula fixated with screws even with the monorail so the illizarov isn't advantageous over the monorail in that regard. Do all doctors fix the fibula with the illizarov method? I was under the impression they did not. I think the way the illizarov method is better is the ability to make corrections to malalignment. I don't see how the monorail could accomplish that. But maybe I am wrong on my assessment of both.
I am a little concerned about the fibula not being fixated and will keep people updated as to if it bothers me or becomes a problem. Hopefully it does not for me.
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Disobedient,
Also what did you clean the pin sites with. Dr. Inan said he would give me something but I was just curious what you found worked best?
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Do you have x-rays of your legs post surgery?
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Yeah I will post them sometime when I get around to it. I have like 4 sets of X-rays.
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Do you have any knee pain atm? Or anywhere within its vicinity?
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I luckily have had no knee pain yet. They get stiff if they are in one position for awhile but they easily loosen up. I have never felt pain in my knees. This may come later I don't know. I can bend my almost like i used to now. Maybe they would hurt if I was in a squatted position and lifted my body up but i won't be trying that for a long time. We will see though my knees so far have been the least of my concern which makes me really happy. I can barely even see the incision on my left knee now.
My biggest problem now is achilles tendon tightness. It is already bad at 1.6 mm. I walked to the supermarket again today which seems to do wonders for my legs. Without walking I don't know what I would do. Though I do worry about bending the fixator even though it feels very sturdy the monorail has gotten a bad reputation on these forums.
i
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Disobedient,
Also what did you clean the pin sites with. Dr. Inan said he would give me something but I was just curious what you found worked best?
I used to clean it with liquid betadine and then put some betadine ointment, and here is the odd thing that I noticed, putting bandage do harm more than good, cuz when there will some discharge from the pin sites it will stuck with bandage, so when every time you will try to change the bandage you'll cut some skin..
so I would not bother do dressing unless if I'll go outside, but keep the pin sites always clean
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I hit 2 cm in the amount I have turned today. I am pretty happy with everything so far as my muscles feel good but I really need to keep up with my physiotherapy and keep them strong and flexible. My achilles is already very tight so I have been working night and day trying to keep it loose but it proves to be a difficult task. Every other muscles seems to loosen up after a little while but the achilles does not. I try to sleep with boots on and my legs straight and it helps but is uncomfortable. I can definitely see why people say after 5 cm it would be very hard. Dr. Inan said I can go to 5 cm but than we will have a discussion on if he will let me go farther. I talked to the physiotherapist and he said my ROM was good so I am happy to hear that.
I have been kind of realizing that I may actually get my goal now which is really rewarding. I have been thinking a lot about being done with the process even though I have barely started. I keep dreaming of what life will be like back home with my new height. I can't help but wonder if it will really matter. Like most of us there is a girl I really care about back home but I was always in the dreaded "friend zone." I think you can get out of the friend zone easily but I wonder if she will notice the height or will look at me any differently. She always made comments like "I think we are the same height" even though she is a couple inches shorter than me. That always really annoyed me because she was definitely not very tall for a girl. If it did work out with her and I thought that it was because of my height I wouldn't blame her. Honestly, if she was 4'11" I wouldn't really want to date her either. That is the reality of life and we have to get used to that. We kind of left on bad terms so it will be interesting to see how that plays out. Whether it works out with her or not is no big deal either way. I just hope to get the process done safely and go back home and focus on other things. It is really an exciting time for me and I can honestly say I would have never had this chance without this forum. Hopefully it all turns out well and keeps going well.
Disobedient,
Thanks for the advice that makes sense and I will make sure to do that.
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Hey TrailBlazer, I wholeheartedly agree with you in regards to everyone on this forum having that "girl back home" haha It's funny, I haven't gotten this surgery yet, but there are already a few girls in my life who fit the description of the one you gave!
Anyways, what vitamins or protein shakes are you taking, if any?
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I take a protein shake. I get 48 grams of protein a day from this. The following is a link to it:
http://www.amazon.com/Optimum-Nutrition-Standard-Chocolate-Packaging/dp/B000GIQT2O/ref=sr_1_12?s=hpc&ie=UTF8&qid=1413962070&sr=1-12&keywords=protein
For vitamins I take B12, Iron, A men's multivitamin, Calcium, and Fishoil.
I also take Melatonin to help with sleep.
I think taking some of this stuff helps, especially the protein. You really need to take in a lot of protein.
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It has been awhile since I last updated my diary.
I am at 3.6 cm according to my turning journal which means I am halfway done. It has been relatively easy so far but I can tell that this next half is going to get much harder. I hope to be able to go up to 7cm but Dr. Inan said we would have to talk about if he will let me pass 5 cm. It is crazy for me to think that 5 cm is only about 2 weeks away now.
Like most tibia patients said, Ballerina foot is really tough to prevent. My left foot is okay but my right foot is horrible. Dr. Inan said that I must gain more flexibility in my achilles or else I may have to get a release on my tendon. I hate the thought of another surgery so I have been trying really hard to work on my flexibility.
Days go by really fast here and like most people have said you really don't get anything productive done. I always thought that I would read and learn things but I basically just watch movies and listen to music. I have been treated very good by Dr. Inan and his staff and everything they have said has worked out so far.
I think the thing that i am surprised about the most so far with the monorail is that I don't even feel the pins. They haven't hurt me at all so far. The pain from this procedure up to this point has been almost nonexistent. Honestly there isn't much else to say days just go by and I am looking forward to being taller. My next post I will post a picture of my next X-ray to see what people think and maybe a short video or something.
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hey Trail, nice to get your diary updated. try to strech the achiles tendom and stand up a lot. keep us updated to what dr.Inan tolds you. have you done any pictures with trousers? how does your scars look?
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I will take some pictures tomorrow and post them of my scars and ill take one in trousers. The scars in my opinion are not that bad, hopefully they fade.
I think i might try to walk about 2 hours a day now. And maybe just do some standing. Thanks for the advice!
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Some full body shots would be nice if u can
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Any knee pains/discomforts in or around that area?
Do you have an estimate of how much money you've spent thus far or is it too soon to figure out?
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I think LON at Dr. Inan cost about 44,000 Turkish Lira.
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I have no knee pain at this point. My knees are however getting slightly harder to straighten out.
I spent $20,000 for the surgery.
$200 for the initial consultation.
About $70 for each Xray that you take which is every one or two weeks.
I have probably spent about $32,000 at this point with my accommodation food, and transportation costs.
You could probably find cheaper accommodation though and maybe a place closer to the hospital.
I might be forgetting something but that is roughly how much I have spent.
I, so far, am happy with my decision because I did not want to go to an undeveloped country and have surgery. Here there is a nice hospital and I personally really felt comfortable with Dr. Inan. It is more expensive than some places but for me it was the best decision.
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70$ for each x-ray sounds ridiculous imo.
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Yeah it dose kind of suck. I think that is the price. I haven't paid that yet so I will ask about that and make sure that is the right price.
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70$ for each x-ray sounds ridiculous imo.
It's way less than what you'd pay for an X-ray in the United States. (Isn't it? Correct me if wrong.) I paid around $900 for the EOS scan during my initial consultation with Dr.Paley (which is a lot more costly than a regular x-ray, I admit, but I thought THAT price was ridiculous).
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It's way less than what you'd pay for an X-ray in the United States. (Isn't it? Correct me if wrong.) I paid around $900 for the EOS scan during my initial consultation with Dr.Paley (which is a lot more costly than a regular x-ray, I admit, but I thought THAT price was ridiculous).
that price is ridiculous indeed
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Scars
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Scars Left Leg
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Scars Left leg
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KirP1,
The first photo shows how they frame look in baggy pants. Honestly you are not going to fool anyone even if you cover them up with trousers in my opinion. However maybe you would feel differently. The scars are the same on both legs. I think these scars will fade quickly and I really am not concerned about them. I am very happy about the scar on the knee as I really think it looks good. The scars that I worry about are the pinsite scars.
Hallijah,
I can do a full body shot sometime. I have to ask what you are wanting to see though? Is it just for proportion reasons? For people who are worried about proportions I think you are wasting your time. If you want height proportions is the least of your concerns IMO. However I would be happy to show you my proportions sometime when I get around to it.
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Want to see 4 cm and 6 cm full body with u in trousers(no homo)
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i think that the fixators are noticeable in trousers in the site of the knee
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Hallijah,
Haha You mean without trousers because with trousers will really show you nothing? but I can do it with trousers too. I can do that I would be happy to help you out. I will take that picture on Sunday when I hit 4 cm of turning.
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just don't forget to censor
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lol okay. I am glad you said something or else I might have forgotten haha,
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Hey trail . How is all going? How do you feel?
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I am doing pretty well. I am at 5.3 cm and have really noticed it has gotten tougher right when you hit 5 cm. I am probably going to try to go to 6 or 6.5 cm and then stop. The process has gone by fast and I am ready for this part to be over with. It is tough because I really wanted to hit 7 cm but the doctor advises against going to that. He really seemed to want me to stop at 5 cm but I wasn't ready to stop then. I think that 6 cm is a good amount though. I said in the beginning I would be very happy with that amount.
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Yeah man . 6cm is a good amount. And you are average with that height
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Damn I'm jealous. My starting height is a bit higher than yours (1.73) and I would LOVE reaching 1.79. That's the perfect height in my country (well, maybe 1.80).
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Could you provide information about the visa and how you arranged to stay in Turkey? I'm deciding where to get my LL done and acquiring as much info as possible. Thanks :)
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Getting a three month visa is about the easiest thing you will ever do if you are from the United States. The Turkish government allows people from the US to get an electronic Visa that will allow one to stay in Turkey for 90 days in a 180 day period. Once you have stayed past the 90 days is when it gets more complicated. You will need a residence permit for the remaining time you will stay. I can't remember what you all need to get a residence permit but it is a hassle. I think one could probably lengthen in the 90 day span and than go home if they did it right though, that is if they don't go over 6 cm. I hope that helps!
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How you doing buddy? I am sure you are off crutches now. Please brief us how you doing.
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Frames are off and PTAL surgery
Hey sorry I haven't been on here for awhile. I am doing better now for some reason the second surgery really took a lot out of me.
I am not off crutches because unfortunately I had to get the PTAL surgery. That is of course the Percutaneous Tendon Achilles Lengthening. The healing time for this surgery is usually 6 weeks. I am in a cast right now but can walk with a walker. The PTAL surgery was very painful the first two days. I can honestly say it was the most pain I have ever been in, 10 out of 10 on the pain scale. It has since gotten better. I am doing a lot better now and am glad the fixator is off of me. At first I was upset that I needed the surgery but the doctor explained to me that physiotherapy wouldn't help and would take too long to recover. I trust his decision, unfortunately I had really tight achilles to start with.
My X-rays measure about 6.5 cm that I gained. I am extremely happy with that and felt that my legs would be getting too long if I went any more than that. If you want really big gains in one surgery do the femur in my opinion. When I first started my goal was 8 cm but that is too much and not worth it for me. I am not a big proportion guy but it would have looked silly had I gained that much. I am really happy with 6.5 cm and just am focusing on recovering now. I will never try and do a second lengthening, unless I win the lottery or something lol. I cannot say for sure I am glad I did this until I recover more, the height feels great. It just gets tiring not being able to be yourself I used to be very active, obviously I knew what I was getting myself into though.
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Did u have straight legs before ? If not how much did u gain from it?
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I dont understand your question. Please clarify.
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I had straight legs and didn't have to have any correction if that is what you are asking.
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Pics of gains please :D
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hey man! how are you? are you walking? how do you fell?
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Update Time!
Dr. Inan
I think Dr. Inan is a top notch surgeon and I am happy with how he has helped me achieve my goal. He is very good at addressing problems and easy to talk to. I was talking to him about a concern I had and he told me "we want you to be 100% happy with the procedure and being 70% happy is unacceptable." i thought that was cool of him to say.
PTAL Lengthening
I have been doing pretty well. I have been in a walking cast for the last 3 weeks because of the PTAL lengthening but Monday I will be switching to a plastic splint that I can take on and off. I will have 3 more weeks and than I can start doing dorsiflexion of my ankle. The PTAL lengthening so far has not been that bad, from the forum I really thought it would be a lot worse.
Walking
I am still on crutches because I am just taking it slow. My legs feel solid with the internal nail but I don't want to rush back and mess something up. I try to walk around about an hour a day. It is weird because I can tell my balance is horrible at this point in time.
Height
Honestly the height is kind of hard to tell right now, I am not around people that I was when I had my old height so it doesn't seem like I am taller. However, I obviously am taller because I measure myself against the wall. Sometimes I have dreams that I am back to my old height which is terrible!
Amount Gained
I have gone back and forth on whether or not I am glad that I stopped at 6.35 cm instead of going to 7 cm. Sometimes I wish I pushed it farther to get to a solid 5'9" but than I realize that you can't get stuck in the numbers game. 6.5 mm is not that much and really doesn't make that much of different on how people will see you. I think that going past 6 cm is when you start losing athletic ability for the long term. It baffles me how someone that is 5'6" to start with could gain 10 cm in the tibia. Just my advice to future LLers.
Avoiding the forum
BTW I have been trying to avoid the forum because I don't want to think as much about height anymore. I am trying to get over my "height neurosis" and I feel it is easier if I avoid reading things about it. I do feel that I owe this forum a lot and so I try to update some.
Thanks Everyone!
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nice to see that you are doing well bro! any knee pain?
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No knee pain at all. I might actually have beaten the odds :)
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Great diary man, I totally understand how you wanna wean yourself off the forum. "Out of sight out of mind," right? lol
Nonetheless, do update us every couple of months, especially with your recovery post 6+cm and PTAL! Thanks man and congrats.
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Hey Arche,
PTAL Surgery
I will give a quick update here for you. Last week I was able to start moving and stretching the Achilles. The PTAL surgery is not really that bad. It slows down recovery but is not as bad as some people on the forums have made it to be. I think that as long as the doctor doesn't cut the whole ligament that it can be recovered from quickly. I have been trying to rehab it by using elastic bands and working out my tendon. I have been rehabbing it for a week and it already feels much stronger.
How my legs feel
It is surprising to me but my legs feel very good. I have been very conservative with walking on them but every day I get more confidence to walk on them. My knees feel great and I have no pain in them and have no bending issues. I have no regrets doing LON.
There really isn't that much else to say, life just keeps going by. LL isn't easy but it isn't that bad either. LL is a long process which is the hardest part.
IF anyone has any questions feel free to ask!!
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Nice to see you are geting better bro!
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Everything seems to be coming along well for you and I don't recall you having very much pain with LON/Monorails either.
I will have to bite the bullet and go with this doctor. I will be only lengthening 6 cm so I don't see anything going terribly wrong, even with monorails.
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As far as pain goes it has been not bad at all. The PTAL surgery was by far the most painful that was the worst two days for me. The first two weeks of the initial surgery is not great but manageable. I had the epidural for the first four days which I am sure would have been horrible without it.
I really like the monorails and don't see why they have such a bad reputation. I would get the monorails again I thought they were really comfortable considering the circumstances. The pins in the monorail are big but they do not hurt at all. The pins also are really strong and do not bend like the Illizarov. The only thing with the monorail is I am not sure if it can adjust alignment, but maybe they can.
@galaxy1 I think the most important thing is to have reasonable expectations which it seems you do with 6 cm. I remember when I first heard about this procedure I wanted 10 cm lol. Since I got here I have learned that it is better to be safe.
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As far as pain goes it has been not bad at all. The PTAL surgery was by far the most painful that was the worst two days for me. The first two weeks of the initial surgery is not great but manageable. I had the epidural for the first four days which I am sure would have been horrible without it.
I really like the monorails and don't see why they have such a bad reputation. I would get the monorails again I thought they were really comfortable considering the circumstances. The pins in the monorail are big but they do not hurt at all. The pins also are really strong and do not bend like the Illizarov. The only thing with the monorail is I am not sure if it can adjust alignment, but maybe they can.
@galaxy1 I think the most important thing is to have reasonable expectations which it seems you do with 6 cm. I remember when I first heard about this procedure I wanted 10 cm lol. Since I got here I have learned that it is better to be safe.
There are people who have lengthened successfully with monorails and my feeling is that it is mostly the larger lads that have valgus and equinus complications. Well, let's hope I won't have to deal with any of that. :-\
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Height
Honestly the height is kind of hard to tell right now, I am not around people that I was when I had my old height so it doesn't seem like I am taller. However, I obviously am taller because I measure myself against the wall. Sometimes I have dreams that I am back to my old height which is terrible!
Amount Gained
I have gone back and forth on whether or not I am glad that I stopped at 6.35 cm instead of going to 7 cm. Sometimes I wish I pushed it farther to get to a solid 5'9" but than I realize that you can't get stuck in the numbers game. 6.5 mm is not that much and really doesn't make that much of different on how people will see you. I think that going past 6 cm is when you start losing athletic ability for the long term. It baffles me how someone that is 5'6" to start with could gain 10 cm in the tibia. Just my advice to future LLers.
Avoiding the forum
BTW I have been trying to avoid the forum because I don't want to think as much about height anymore. I am trying to get over my "height neurosis" and I feel it is easier if I avoid reading things about it. I do feel that I owe this forum a lot and so I try to update some.
Thanks Everyone!
Dude, I think the same exact way as you do. Once I'm fully recovered, I'm not gonna be visiting this forum much anymore, I want to put this height thing behind me. I have found myself obsessing over millimeters (freaking MILLIMETERS) that I maybe could have gone for, when I achieved a great gain already. Even caring about cm (thanks you Europeans - lol) is nuts when I think about it, it's all about the inches you gain. Splitting hairs has made me virtually nuts over this.
I also am like you in that I stopped a tiny bit sooner than I wanted (my goal was 6.5-7cm, I got 6.75+, so I'm mostly happy) because I was experiencing excruciating pain all around. My body was telling it was time to stop around 5cm, but there was no way in hell I was stopping before at least 6cm. And you're close to 5'9", so you're good. I feel very average at 5'8", and I still have duck ass taking some visual height away. When standing next to my dad and boss and a great friend of mine (all my former height), I virtually tower over them. I just feel so much taller than them.
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Hey Yellowspike,
Yeah I have felt that me and you are in a really similar situation as far as height and what we were trying to achieve. I have been following your diary some and feel like you have the same thought process as me. That is cool that you feel so much taller with your current height. I am anxious to see my family and friends and hopefully feel the same way as you.
It sometimes bothers me that I didn't get 7 cm still but it is just important to get over our feelings of inadequacy with height because there are some really badass people that are 5'8" - 5'9", Sean Penn and Tom Cruise to name a few. There are basically no one cooler than those two and we are there height now! It makes me happy to think like that. I got 2.5 inches and is 2.75 inches really that much difference??? I really hope, Yellowspike, that me and you both get over our height problems and achieve other goals that we can actually share with everyone we know. It sometimes is frustrating feeling like you accomplished so much but never get to tell anyone.
Small Update
My bone bridged a couple of weeks ago and I have been getting to walking unaided. I walk pretty good now and once you start walking unaided it takes no time to start walking normally. My achilles lengthening surgery is pretty well healed but my achilles is still weak and sometimes gets sore if I walk too much. It is not that bad though. I expect to run, jump, and be 100 percent of my former self. My knees feel just like they did before LL now. There isn't much else to say.
If anyone has any questions feel free to ask.
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How are the scars from your monorail frames?
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Hey Yellowspike,
Yeah I have felt that me and you are in a really similar situation as far as height and what we were trying to achieve. I have been following your diary some and feel like you have the same thought process as me. That is cool that you feel so much taller with your current height. I am anxious to see my family and friends and hopefully feel the same way as you.
It sometimes bothers me that I didn't get 7 cm still but it is just important to get over our feelings of inadequacy with height because there are some really badass people that are 5'8" - 5'9", Sean Penn and Tom Cruise to name a few. There are basically no one cooler than those two and we are there height now! It makes me happy to think like that. I got 2.5 inches and is 2.75 inches really that much difference??? I really hope, Yellowspike, that me and you both get over our height problems and achieve other goals that we can actually share with everyone we know. It sometimes is frustrating feeling like you accomplished so much but never get to tell anyone.
Small Update
My bone bridged a couple of weeks ago and I have been getting to walking unaided. I walk pretty good now and once you start walking unaided it takes no time to start walking normally. My achilles lengthening surgery is pretty well healed but my achilles is still weak and sometimes gets sore if I walk too much. It is not that bad though. I expect to run, jump, and be 100 percent of my former self. My knees feel just like they did before LL now. There isn't much else to say.
If anyone has any questions feel free to ask.
Yeah. I may need to leave this forum sooner rather than later. It's making me obsess about the difference between 6.75cm+ that I got vs pushing to 6.85cm or 7cm (10-25mm, less than 1/10th of an inch). That's how bad it's getting. I guess because 7cm was my ultimate goal and the top of my "acceptable" range of 6.5-7cm (and what Dr. Guichet said he believed I could go to)...but I did 5 more clicks today (to make sure the click file actually says 6.75cm (I'm virtually certain I'm over 6.75cm because it doesn't include practice clicks in the hospital plus a few extra I threw in early on) after 3 days of not clicking. Now I'm wondering if I really just stop or compromise and go to 6.85cm (in between where I am now and 7cm)? But then, at 6.85cm, will that be enough? I am working from home, and need to get back into the office within the next 2-3 weeks. I had wanted to go back without crutches, but now I've cut it very close. I'm just so ambivalent...
Height neurosis is the worst. I just want to know that I'm 5'8". If I'm a tad under, I don't have to know about it. I may be like an anorexic woman who has recovered from anorexia, but can't be weighed. Meaning, I may never allow myself to be measured (or, be told my height, at least) ever again in this lifetime. When I visit the doctor in the future, I will tell him beforehand not to tell me my height. I'll just consider myself 5'8" and be done with it.
Regardless, TrailBlazer, I wish you the best, and I hope both of our futures are very bright :)
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Yellowspike,
I definitely understand what you are going through. I suggest getting off the forum because it does make all of us crazy. Height does matter but not as much as we make it out to be. I went about a month where I would measure myself against the wall everyday. I have decided not to measure myself anymore and not to worry about it because height is always varying and is frustrating. I think measuring ourselves is the worst thing we can do, just let it be.
What I have done in recently is stepped on something that was a quarter of an inch taller and looked in the mirror and ask myself, "will being a quarter of an inch taller make me any better." I really don't think it does and no one will notice that small amount anyway. Focus on your health now and let it go. I am sure that you will have a better life if you let it go rather than being any taller.
I wish you the best as well Yellowspike. If you need to talk I am definitely here for you.
Taller,
The scars are not that bad they are fading albeit slowly, if I get around to it I will post pictures.
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Yellowspike,
I definitely understand what you are going through. I suggest getting off the forum because it does make all of us crazy. Height does matter but not as much as we make it out to be. I went about a month where I would measure myself against the wall everyday. I have decided not to measure myself anymore and not to worry about it because height is always varying and is frustrating. I think measuring ourselves is the worst thing we can do, just let it be.
What I have done in recently is stepped on something that was a quarter of an inch taller and looked in the mirror and ask myself, "will being a quarter of an inch taller make me any better." I really don't think it does and no one will notice that small amount anyway. Focus on your health now and let it go. I am sure that you will have a better life if you let it go rather than being any taller.
I wish you the best as well Yellowspike. If you need to talk I am definitely here for you.
Taller,
The scars are not that bad they are fading albeit slowly, if I get around to it I will post pictures.
I agree with the bolded parts. If you are fussing over 0.1 cm it might well be BDD, or at least a mild case of it. Its like obsessing over 1 kg (or, if we are talking about a fair comparison, obsession over 0.1 kg?? its kinda weird).
this forum people have a distorted view of height. (see my thread on this). You easily get influenced about the importance of height, the so-called ideal height, and yada yada yada. And even so many patients here have mental issues.
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Yellowspike,
I definitely understand what you are going through. I suggest getting off the forum because it does make all of us crazy. Height does matter but not as much as we make it out to be. I went about a month where I would measure myself against the wall everyday. I have decided not to measure myself anymore and not to worry about it because height is always varying and is frustrating. I think measuring ourselves is the worst thing we can do, just let it be.
What I have done in recently is stepped on something that was a quarter of an inch taller and looked in the mirror and ask myself, "will being a quarter of an inch taller make me any better." I really don't think it does and no one will notice that small amount anyway. Focus on your health now and let it go. I am sure that you will have a better life if you let it go rather than being any taller.
I wish you the best as well Yellowspike. If you need to talk I am definitely here for you.
Taller,
The scars are not that bad they are fading albeit slowly, if I get around to it I will post pictures.
Hey Trailblazer. Thanks a lot man. I really appreciate it. I have met some good people on this forum (ChrisIsaak is a great guy!). Perhaps I will PM you. I'm starting to feel like others are judging me, but I think you know how bad height neurosis can actually get. Especially when your starting height is 5'6" or below. I just know I'm NEVER, EVER doing another LL...so I just want zero regrets. Good luck, I'll talk to you soon!
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Yellowspike,
Feel free to PM me. I have met a lot of great people here too, ChrisIsaak and Cooper I have met in person and are awesome people. I think that it is good you are thinking through of what height you would be okay with before you quit and not just let the pain dictate it, just be careful. I think everyone has height neurosis here so no one is judging you, it is good to talk to other people that feel the same way.
ItsMyLife,
I agree with everything you said. I think that weight is a great comparison. Those small amounts are not worth it in the long run and aren't noticeable so we need to get over that.
People cannot tell exact heights anyway. Basically they can tell if they are taller than you and if they are shorter than you. That really is all people can really tell. I think with this surgery it is about trending upwards and being in that next range of heights for people not necessarily hitting an exact height. For me, it was important to be in the range of family members height and taller than 90% of girls which I think I accomplished.
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If I was at my old height 174 cm and a 173.9 guy stands next to me. I would most likely think hes around my height. I would not know if he is taller or shorter. That's insanity. Perhaps if a guy 173.5 stands next to me, I might think he is slightly shorter, and even have doubts about it (ie, are we the same height? or is he taller? (some guys look taller due to higher shoulder and smaller head and higher eye level).
1 mm, 5 mm, its not a significant difference. If you want 5 mm that bad, try Glucosamine. Just take 1500 mg daily. Its clinically proven in a study to give you around that much of excess night height.
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That is interesting, I may try glucosamine just for the benefits of the joints. So are you saying with that supplement you may not lose as much height throughout the day?
Another interesting thing is people who did LL may look taller because there shoulders may be higher than the average person of that height. I am not sure if there would be any truth to it but it may be something to think about. At least our waists for sure would be higher.
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did you pay anything for PTAL surgery?
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Nope I did not pay any extra for PTAL surgery.
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Nope I did not pay any extra for PTAL surgery.
Any updates? How is your recovery? Still no knee pain?
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Any updates? How is your recovery? Still no knee pain?
He's dead.
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i had tendon lengthening too... but pen... similar to ptal, but the open gives the dr more control... my left leg scar thought isnt great
the achilles issues are the worst part of tibia lengthening.. getting me down now... takes so long to fully heal from this
ttrailblazer, we had surgery at around the same time... can you do calf raises unassisted??? any video??
ive noticed the upper part of my foot bone gets sore when walking still... calves too... supposedly takes a year to recover
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He's dead.
Trailblazer is back home and doing really great :')
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update.
I have been back at home for over a month now and am doing better everyday. I have been trying to work on walking normal. I try to walk about 2 miles a day to help with this.
PTAL surgery
My achilles is getting stronger as well but if I use it a lot it gets sore easily. I can lift my heals off of the ground completely which was impossible for me to do just one month ago. Walking upstairs is not much of a problem but going downstairs is difficult. I am not sure why it is so much harder to walk downstairs but it will improve as well. I think you have to have a lot more strength and balance to walk downstairs.
People noticing
It is crazy because no one really notices but I can tell I am so much taller compared to them than I was. It makes me feel good but it is also strange no one notices. I hadn't seen anyone for at least six months so that may have contributed to it.
Last night my friend finally commented on my height and just said that I had grown and was the same height as him now. He seemed to have recognized it but never said anything to me about it.
I go out a lot and go to parties which is a lot of fun. It is great to be back to life and I really have tried to make the best out of it. I used to just think about height so much that I sometimes wouldn't do as much as I should have. I have been trying to find opportunities to meet people. Especially girls :) I am not naturally a partier so soon I will try to go back to school and have a career that I can focus on. I am excited for that.
Would I do it again?
Yes! It has been great to be taller and I just feel like I am in a good range of heights for me. With that being said do not go into this thinking that the height will completely change everything. In my opinion, it won't. We are basically, as people, who we are. I think that the height has helped me especially psychologically but I think we would probably gain more by enhancing are strengths rather than focusing on our weaknesses, but I could be wrong.
Sorry for never updating but I never get on here anymore because it can mess with you and it is better just not to think about it. I sometimes catch myself thinking it would be nice to have more height and so it is best not to think about it. I hope this helps someone out. Hopefully everyone I have met on this forum is doing well and figuring out what is best for them.
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it nice to see that everything is going well buddy, im happy for you.
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update.
I have been back at home for over a month now and am doing better everyday. I have been trying to work on walking normal. I try to walk about 2 miles a day to help with this.
PTAL surgery
My achilles is getting stronger as well but if I use it a lot it gets sore easily. I can lift my heals off of the ground completely which was impossible for me to do just one month ago. Walking upstairs is not much of a problem but going downstairs is difficult. I am not sure why it is so much harder to walk downstairs but it will improve as well. I think you have to have a lot more strength and balance to walk downstairs.
People noticing
It is crazy because no one really notices but I can tell I am so much taller compared to them than I was. It makes me feel good but it is also strange no one notices. I hadn't seen anyone for at least six months so that may have contributed to it.
Last night my friend finally commented on my height and just said that I had grown and was the same height as him now. He seemed to have recognized it but never said anything to me about it.
I go out a lot and go to parties which is a lot of fun. It is great to be back to life and I really have tried to make the best out of it. I used to just think about height so much that I sometimes wouldn't do as much as I should have. I have been trying to find opportunities to meet people. Especially girls :) I am not naturally a partier so soon I will try to go back to school and have a career that I can focus on. I am excited for that.
Would I do it again?
Yes! It has been great to be taller and I just feel like I am in a good range of heights for me. With that being said do not go into this thinking that the height will completely change everything. In my opinion, it won't. We are basically, as people, who we are. I think that the height has helped me especially psychologically but I think we would probably gain more by enhancing are strengths rather than focusing on our weaknesses, but I could be wrong.
Sorry for never updating but I never get on here anymore because it can mess with you and it is better just not to think about it. I sometimes catch myself thinking it would be nice to have more height and so it is best not to think about it. I hope this helps someone out. Hopefully everyone I have met on this forum is doing well and figuring out what is best for them.
Happy to hear that you are happy.
But please keep pdate at least once a month or once a year's quarter .we still want to know how it is going?
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Wow! Good for you! Now that your 176CM, you are exactly average height in the United States! That's pretty sweet 8) I'm so glad to hear that it's all been worthwhile!
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Good to know you're happy with your results and are getting back to normal life. Seems like CLL really benefited you.
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update.
I have been back at home for over a month now and am doing better everyday. I have been trying to work on walking normal. I try to walk about 2 miles a day to help with this.
PTAL surgery
My achilles is getting stronger as well but if I use it a lot it gets sore easily. I can lift my heals off of the ground completely which was impossible for me to do just one month ago. Walking upstairs is not much of a problem but going downstairs is difficult. I am not sure why it is so much harder to walk downstairs but it will improve as well. I think you have to have a lot more strength and balance to walk downstairs.
People noticing
It is crazy because no one really notices but I can tell I am so much taller compared to them than I was. It makes me feel good but it is also strange no one notices. I hadn't seen anyone for at least six months so that may have contributed to it.
Last night my friend finally commented on my height and just said that I had grown and was the same height as him now. He seemed to have recognized it but never said anything to me about it.
I go out a lot and go to parties which is a lot of fun. It is great to be back to life and I really have tried to make the best out of it. I used to just think about height so much that I sometimes wouldn't do as much as I should have. I have been trying to find opportunities to meet people. Especially girls :) I am not naturally a partier so soon I will try to go back to school and have a career that I can focus on. I am excited for that.
Would I do it again?
Yes! It has been great to be taller and I just feel like I am in a good range of heights for me. With that being said do not go into this thinking that the height will completely change everything. In my opinion, it won't. We are basically, as people, who we are. I think that the height has helped me especially psychologically but I think we would probably gain more by enhancing are strengths rather than focusing on our weaknesses, but I could be wrong.
Sorry for never updating but I never get on here anymore because it can mess with you and it is better just not to think about it. I sometimes catch myself thinking it would be nice to have more height and so it is best not to think about it. I hope this helps someone out. Hopefully everyone I have met on this forum is doing well and figuring out what is best for them.
hello, ive Been reading your diary and its Good to know youre doing Well right now.
i am planning to do my LL This year and im trying to Get a hold on Dr. Inan as Well as he is on my top list Bec of the price and he seems to be really skilled as Well. is there any way i could contact him besides the email contact thats provided on his profile on This forum? thank you
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Hey everybody.
I just thought I would tell everyone I am doing fine and have taken huge strides the last couple of months in my recovery. I feel about like I did before the surgery when I walk. I really don't even think about the surgery or anything anymore. It has been 13 months since I had the surgery I haven't attempted to run or do anything like that yet. I have some numbness on the outside of my right leg which is strange but I think that it will be okay.
I realize now why people don't get on here after the surgery because its just something that I don't think about as much anymore. I know for sure that it is possible to get the surgery and recover fully now. Before the surgery I wondered if this was all too good to be true. No one ever has questioned my proportions or anything like that. I am sorry this update is brief but I really don't like coming on here. I just thought it would be good to tell everyone that I am doing well and hopefully everyone on here fulfills there wishes. I have also been thinking about doing femurs next in a few years. We will see.
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Hey Trailblazer,
How are you doing? Can you update your diary?