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Author Topic: Stripe's Journal - Dr. Barinov LATN Externals  (Read 18178 times)

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Whereintheworld?

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #62 on: January 04, 2017, 10:17:12 PM »

You mentioned that your doctor advised you against further lengthening at around 7 months since your bones had already consolidated too much. With that said, at the 10 month mark I imagine they were nearly consolidated to the point where you may have only needed another month or two before frame removal. What was the point of having the nail inserted then? Were you just eager to get back home? Doctor's advice?
One of the major reasons I chose externals was the prospect of not having an additional surgery down the road (nail/rod removal).

-I'm glad things are going well for you.
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Bigpoppapump

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #63 on: January 04, 2017, 10:32:53 PM »

Congratulations

What was your length gained and your final height?
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Peaceout

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #64 on: January 05, 2017, 07:30:27 AM »

Congratz man.How tall are you now?
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ibuse

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #65 on: February 12, 2017, 02:23:22 PM »

Hi Stripes, I'm compiling a list of things to buy now. Do you still think the Kneehab device was useful after having gone through all of this? Also, I think you've mentioned this to me before, but are the soft splints more for during lengthening? I'm assuming no since they would never reach past the pins. I haven't really noticed anything with them, even with additional padding. But I think you and some others said that would be the case if the flexibility is already good (though I am double-jointed, so that could be why). I did buy a pro-stretch though and love it. I have the adjustable one and use it everyday. I do feel a stretching sensation when I use it, but only for the first two 30 second reps. I'm hoping I can bring it with me if I go to Russia.
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Basil Halkias

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #66 on: March 30, 2017, 09:33:20 AM »

Hi. how are you now? write please. i want to know
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Stripes

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Stripes UPDATE
« Reply #67 on: April 11, 2017, 02:10:17 AM »

You mentioned that your doctor advised you against further lengthening at around 7 months since your bones had already consolidated too much. With that said, at the 10 month mark I imagine they were nearly consolidated to the point where you may have only needed another month or two before frame removal. What was the point of having the nail inserted then? Were you just eager to get back home? Doctor's advice?
One of the major reasons I chose externals was the prospect of not having an additional surgery down the road (nail/rod removal).

-I'm glad things are going well for you.

Good question... the thing with regeneration is that it's completely different for everyone. I didn't want to wait any longer.. being there for nearly 11 months had nearly driven me crazy by that point. Another 2 months was not guaranteed, it easily could have been another 3 or 4 months if my regeneration slowed down. Also, the nail offers much more stability and for me it just made more sense to get the nail, that way I could go home quicker and also start walking on my own without worrying.

There is a guy that is still at the clinic who has been there for 1 year and 6 months and is still trying to regenerate. He's around 48 now, so that has a lot to do with it. He walks every day for hours and has a strict stretching regime and takes lots of supplements and vitamins.. but he is also a pescetarian which I suspect is part of the reason. I hope he'll be regenerate fully soon because he deserves to get back to his life. This is a pattern with older patients doing illizarov, it takes a very long time to regenerate in comparison to younger guys. Younger guys up until 30 are able to regenerate much quicker..

My advice is to go with the nail if you can. Many people want to avoid it because they think it's risky and want to avoid a second surgery, but in my experience, it was well worth the decision. I think the risk of complications is much larger when you don't get the nail because of how easily the bone can get bowed without the support. You will lose a lot of weight during this process and when you go back home, you will gain a lot of it back.. in addition to all the walking you'll be doing and how anxious you'll be to get back to normal life, it's all too easy to put additional stress and weight on your legs.. just look at RGKEY. I believe it might be happening to another patient that I'm speaking to, that wasn't willing to wait another 2-3 months after he had already been there for 13 months. He didn't get the nail and thinks he might be developing X legs.. it's been 4 months since he removed the frames and he's gained some weight and has been walking like any other normal person.. thinks he's lost some height because of it as well..

Anyways, having done the nail surgery.. my life has gone back to pretty much normal. I still have some aches and pains here and there, and sometimes I don't walk as well.. but I'm no longer using crutches... Still have some trouble getting up and down stairs without using the railing, but otherwise, everything is good. Am I back to 100%? Not even close. 100% means I'm running and jumping around.. that's not the case. My friends still walk much faster than me while walking a regular pace... it's still obvious some morning that "I was injured" and walking without shoes is still a little uncomfortable. I think with time i'll get much better, but I also have had no time to exercise or stretch which really is a big mistake on my part.

Congratz man.How tall are you now?

174-175 without shoes. With shoes around 177-178

Congratulations

What was your length gained and your final height?

Gained about 8 CM

Hi Stripes, I'm compiling a list of things to buy now. Do you still think the Kneehab device was useful after having gone through all of this? Also, I think you've mentioned this to me before, but are the soft splints more for during lengthening? I'm assuming no since they would never reach past the pins. I haven't really noticed anything with them, even with additional padding. But I think you and some others said that would be the case if the flexibility is already good (though I am double-jointed, so that could be why). I did buy a pro-stretch though and love it. I have the adjustable one and use it everyday. I do feel a stretching sensation when I use it, but only for the first two 30 second reps. I'm hoping I can bring it with me if I go to Russia.

The kneehab device is something that is a luxury device, if you can afford it and know you will commit to using it, then yes it's very useful and will get you up and walking much faster.. It's not a necessity though. Walking is the main key.

The soft spints are to be used before the surgery... if you can't feel them, you need to tighten them more.. I would try putting them on, and then trying to touch your toes.. believe me you'll feel them. If you can't feel a stretch, you need to stretch harder. I would HIGHLY recommend doing yoga during the months leading up to surgery, if you can get a membership at a studio then do it!!!!!! The Pro-Stretch is a great tool, keep using it as much as you can.. but try to do as many stretches as you can find on the internet..

--

Now that it's been 1 year 4 months since my first surgery.. and 4-5 months since I returned back home.. I can honestly say that this was 100% worth it for me. I very rarely think about height anymore and have been able to return to a normal life. Futher, I feel like I've been able to work on a lot of personal issues that I never realized stemmed from my height insecurity even from an early age.. although I'm not a completely different person now, I am much more motivated and confident. My life is in a much better place than it was before.. and it's only been a few months now. I think a lot of it also had to do with my time away from home and the experiences I had in Russia.. it was a tough year for me, but it made me much stronger and I learned a lot about myself. I had a lot of time to think about life and that to me was just as valuable in a sense. As for others, some people notice and others don't. For sure I get more attention from girls now.. but I'm also more confident and am taking better care of myself.. the way I think about height is different now too.. when I see shorter guys, I don't really feel bad for them or see them as less the way I did when I was short as well.. I really think a lot of that is in our own heads because it's our biggest insecurity and we think other people care about it as much as we do. I think people see height the same way they see any other feature, the acknowledge it - and they move on to who you are as a person.

I get a lot of messages asking if this was worth it.. and my opinion is that it depends on who you are and what you're willing to give up. If you want to remain an athlete or love hiking and see those activities as a priority over height, then no. This is not the surgery for you, at least not the illizarov method. If you're willing to understand that you're taking some risks here and that it will take a long time to recover.. then it is absolutely worth it, if height means that much to you. You'll see a lot of stuff on here about completing the surgery within 9 months.. it is possible but i've only seen two people do it. Those two people both got the nail. Those two people also were very athletic and very committed to walking and stretching and eating right. They were also fairly young. 

Good luck.
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egocentrical

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #68 on: April 11, 2017, 10:27:22 AM »

Do you think you could of been done sooner or do you feel that you did everything you could to optimize getting better?
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Stripes

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #69 on: April 11, 2017, 10:50:47 AM »

Do you think you could of been done sooner or do you feel that you did everything you could to optimize getting better?

Yes, many things.

1. I got lazy very early on.
2. I got caught up in girls and the social life at the clinic.
3. I got distracted by personal problems at home.

4. I did not stretch everyday.
5. I did not walk everyday.
6. I got lazy with my supplements.

Had I had a planned and strict stretching routine everyday, that I timed and tracked.. I would have avoided the complications I faced and left much earlier. Also if I had walked at least two hours a day, I would have left earlier and been walking faster and better earlier.

What I HIGHLY recommend you bring with you is:

1. A stop watch. Anything you can click quickly to start and stop. Also anything that you can to countdown from a certain time.. obviously your phone will have these features but I recommend buying a separate tool that is dedicated only to timing. Believe me.
 
2. A paper journal - so that you can track how much time you've spent stretching and walking and see how much progress you've made. This is also very useful for writing down how much you've turned in a day and other notes you will want to keep track of about your lengthening and routine. I would recommend buying more than one to have better organization, but everyone will have their own method. Write these things down, do not use your phone!

I didn't use these above tools but I really wish I did. Others at the clinic used these types of systems and their recovery was miles ahead of mine. It kept them motivated and it kept them on top of their routines.

And my biggest recommendation of all especially if you go to barinovs clinic: USE THE FOOT HOLDERS THEY GIVE YOU EVERY MINUTE OF THE DAY THAT YOU POSSIBLY CAN. WHENEVER YOU ARE IN BED OR ARE IN THE GYM, USE THE FOOTHOLDERS!

No matter how flimsy and annoying they are, USE THEM. They will come off a million times and it will take a million tries to put them back on, and you'll prick your fingers during the process but believe me those stupid white footholders will save you so much time, money and stress. By that I mean they'll prevent ballerina which means you can achieve more height, avoid complications, leave quicker and heal better. Do not fool yourself into thinking you are the exception and that your legs are pretty flexible or that because you are athletic that you will not get ballerina. Everyone gets ballerina. You want to do EVERYTHING you can to prevent it from happening early and from getting worse once you see signs of it. Ballerina is the fastest way to cut your lengthening journey short. 

REMEMBER THIS: BEFORE YOU DO THE SURGERY: ASK THE OTHER LIMB LENGTHENING PATIENTS TO HELP YOU BUY THE VELCRO STRAPS FOR THE FOOTHOLDERS.

This will replace the strings that are attached with the foot holders which are VERY poorly made and made putting the foot holder on very difficult. They also can not be tightened too much and once you lengthen past a certain amount, they are useless because the strings get too short. BUY THE VELCRO STRAPS BEFORE YOU GO TO THE HOSPITAL!!!! write this down somewhere so that you do not forget.
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Stripes

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Why you should read this journal if you plan on doing EXTERNALS
« Reply #70 on: April 11, 2017, 11:32:08 AM »

I also want to note for those who are reading my last couple of updates but are unfamiliar with this thread and don't want to read my entire journal...

it is a long journal, but I have made the effort to document my journey in detail from before, during and after so that anyone planning on doing externals.. knows exactly what to expect and learns from my many mistakes. I also made the effort to make the moderators delete comments and questions from other members  for most of my journal so that it's an easy reading experience for you guys.

I really wish I had read a journal like this before I went on my journey so that I didn't make so many of the mistakes I made and so that I was better prepared for the harsh reality of this procedure. In addition to journal entries about my experiences as they were happening, I also posted a few REFLECTION posts during my time, where I reflected on height, insecurities, ideas about proportions and other things that were going through my mind throughout my journey.

I hope that this journal, as up and down as it was - serves to be a valuable resource to anyone that hopes to lengthen. I encourage you to read it again while you are going through the process or are in the hospital as there will be many things that you will have forgotten or overlooked. I went back to many of the journals I had read before my journey and realized how much I could have learned from them if I had read them over again while I was actually lengthening rather than just before.

Cheers and keep the questions coming while I'm still here if you have any.

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Sibirsky

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #71 on: April 11, 2017, 02:30:48 PM »

Hey Stripes! I'd just like to say that your diary was one of the most entertaining diary I read during and before my journey. Your journal was one of the main reasons I decided to contribute back to the community so that we can continue the chain of good deeds on the forum.

I couldn't help but to draw parallels between your journey and mine; we both lengthened with externals and had LATN later, we both added 8 cm. Except my entire lengthening process was about 2-3 process total. Because of my high rate of lengthening I developed some tingling and slight numbness in my feet. So I just wanted to ask whether you have and/or still have such symptoms? From what I've read from journals, parasthesia is a temporary minor complication of lengthening, but I just wanted to hear your thoughts on this

Cheers to you, Stripes! ;D
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176 cm before
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Stripes

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #72 on: April 11, 2017, 07:13:36 PM »

Hey Stripes! I'd just like to say that your diary was one of the most entertaining diary I read during and before my journey. Your journal was one of the main reasons I decided to contribute back to the community so that we can continue the chain of good deeds on the forum.

I couldn't help but to draw parallels between your journey and mine; we both lengthened with externals and had LATN later, we both added 8 cm. Except my entire lengthening process was about 2-3 process total. Because of my high rate of lengthening I developed some tingling and slight numbness in my feet. So I just wanted to ask whether you have and/or still have such symptoms? From what I've read from journals, parasthesia is a temporary minor complication of lengthening, but I just wanted to hear your thoughts on this

Cheers to you, Stripes! ;D

Hello Sibirsky!

Thanks for the kind words :)

Do you mean to say you lengthened 8 cm in 2-3 weeks?! That's crazy but awesome if you don't have any complications!

I know the sensation you're talking about, it's very normal. It's because of the nerves lengthening, you deal with it more as you lengthen in the higher numbers.. it'll go away eventually, although it's very uncomfortable. It's nothing to worry about though, I had it for a couple of months and you will too before it goes away.

I'm really impressed that you achieved what you achieved in the time frame that you did.. I'm going to go read your journal, I'm super curious about how things went for you!
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crusader1980

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #73 on: April 12, 2017, 05:30:07 AM »

Hi Stripes, thanks for the journal man definitley read a thing or two in here that I plan to use during my recovery.  I had a couple questions, first being what exactly is a footholder, and how would it compare to the soft splint?  Also how early post op can you begin using it? 

Cheers
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Stripes

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #74 on: April 12, 2017, 05:50:14 AM »

Hi Stripes, thanks for the journal man definitley read a thing or two in here that I plan to use during my recovery.  I had a couple questions, first being what exactly is a footholder, and how would it compare to the soft splint?  Also how early post op can you begin using it? 

Cheers

Hello Crusader,

A foot holder is very similar to the soft splint expect it uses the frames as support to pull on the foot. At Barinov's clinic it's a rectangular piece of wood that's a little bigger than your foot, covered in a plastic material and has two ropes that loop around on both ends. The ropes or "strings" are used to hook on the top of the frames, and when tightened raise the foot and in turn stretch the calf muscles.

I've attached a photo here that shows the velcro straps that I was referring to earlier (these replace the weaker ropes). You can see that they wrap around the foot (under the foot is the wooden foot holder, its not visible here) and come up and wrap around the top front of the frame. When you tighten the velcro strap, it pulls on the foot holder - very similar to how the soft splint works - but much stronger.

You can and should use the foot holder immediately after you wake up from surgery and are able to. It should be used from day 1 until the day you remove the frames. At Barinov's clinic they will provide this to you before you go in for surgery and will show you how to use it.. if they forget to do this, remind them. DO NOT FORGET TO BUY THE VELCRO STRAPS BEFORE YOU GO TO THE HOSPITAL. This is not provided by the clinic, the patients at the clinic buy these straps from a tailor who custom makes them. They are cheap, just ask one of the limb lengthening patients to call the tailor for you.

If you are not at Barinov's clinic and are doing externals, ask your doctor if they have any devices like the foot holder that you can use.. if they don't have one, I would strongly suggest making one.


A photo showing the velcro straps attached to the frames and foot holder.
« Last Edit: April 12, 2017, 07:49:00 AM by Stripes »
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bander72

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #75 on: April 12, 2017, 08:02:39 AM »

I'm going to barinov if I do external. How long do you think it would take me for 4 cm if I am dedicated and do latn.
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Stripes

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #76 on: April 12, 2017, 10:38:00 AM »

I'm going to barinov if I do external. How long do you think it would take me for 4 cm if I am dedicated and do latn.

For 4 CM, you'll only need to lengthen for 1 month & 1 week. I would say for you to get the initial surgery, lengthen and then get the nail you would spend about 3 months.

You will have to wait 10 days after the first surgery to start turning. If you turn 1MM a day, it will take you 40 days to lengthen. That's about 1 month and 20 days from initial surgery. That's if you don't have to stop turning for any reason - but you might take a few days off because of pain or just to let your legs rest. I would assume that Barinov would make you wait at least one month after you're done lengthening to do the nail surgery. Then you will need to stay in the hospital for 10 days. In the best case scenario that's 90 days. He might let you do the surgery in two weeks instead of a month, but it all depends. I would go for 5CM if your goal is to get to 180. That's 10 extra days of lengthening. 5 is in the safe area, it'll still be easy for you to do as long as you keep up with your stretches and walking. After that is where you run into limitations. For the amount you want to do, I would definitely go with external LATN.
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bander72

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #77 on: April 12, 2017, 11:33:38 PM »

Ah man 3 months seem to long for 4 cm. I wonder if he would let me do the nail surgery in two weeks.
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Gotta do whatever makes you happy.
Height 175 cm morning
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Stripes

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #78 on: April 15, 2017, 06:58:33 AM »

Ah man 3 months seem to long for 4 cm. I wonder if he would let me do the nail surgery in two weeks.

Well, you want to be healthy and back to normal don't you? LL is one of if not the most dangerous cosmetic surgeries being practiced. You want to grow two inches.. the fact that you can even do that in three months is incredible. I have to remind you, this isn't like trying to lose weight before prom or get a six pack before summer. You're breaking your bones in four places, drilling pins through them and then pulling the bones away from one another while pulling on the muscles, tendons and nerves.

Then you're cutting below your knees, cutting to reveal the bone and then drilling through the top of your tibia and having a long titanium rod literally hammered through until it reaches the bottom. That is A LOT of trauma to your body, believe me 3 months is not too long if you want to be safe. Either way, two weeks is very possible but I'll remind you that an extra two weeks means absolutely nothing when you consider everything else.
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cole slaws

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Re: Stripe's Journal - Dr. Barinov LATN Externals
« Reply #79 on: April 15, 2017, 10:47:11 AM »

Hi stripes, how much did you lengthen daily and do you have any other side effects of lengthening? Also, are there ways to avoid needle painkillers/epidural?
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