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Author Topic: Everyone who wants to do LL, click on this thread.  (Read 9324 times)

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MirinHeight

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Everyone who wants to do LL, click on this thread.
« on: November 12, 2017, 12:10:20 PM »

I always try to help people out on here, and I think I have thought of a new safety precaution for you all to go through.

If you want to if your bone is healthy enough to go through such an operation and consolidate at a very good rate, you should get a bone blood/urine test done to check your bone turnover rate.


-The Bone Marker test is used to detect and measure the presence of certain biochemicals in blood and/or urine. This helps determine if there is either an excess of bone formation, or an excess of bone destruction (called resorption)
-This information helps predict the risk of bone fracture, diagnose conditions like osteoporosis, help make a treatment decision, and also serve as a baseline to measure the effectiveness of a future treatment
-The human bone is in a constant state of remodeling, even after the body growth stops. New bone is continuously being formed, while old bone continuously being absorbed in the body. This process is termed as ‘bone turnover’
-Formation of new bone is carried out by specialized bone cells called osteoblasts. The absorption of old bone occurs with the help of another special type of bone cells called osteoclasts. This ‘bone turnover’ is important for the normal bone health and helps in repair and response to stress (such as fractures)

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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

The Dreamer

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Re: Everyone who wants to do LL, click on this thread.
« Reply #1 on: November 12, 2017, 03:41:53 PM »

Finally a very interesting thread.In the recent past I have made a lot of threads regarding bone regeneration getting few answers.Figure out some crappy "veterans" that bother answering to stupid questions instead of the interesting ones.
They are the worst ever,even worse than new users starting 1000 topics for day always asking the same questions
So,have you already done this test ? How does it work ? Can you simply go in hospital asking for that ?
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●Do LL but do not let it obsess you

dean9191

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Re: Everyone who wants to do LL, click on this thread.
« Reply #2 on: November 12, 2017, 03:58:31 PM »

why dont LL docs do this test beforehand?
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TIBIKE200

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Re: Everyone who wants to do LL, click on this thread.
« Reply #3 on: November 12, 2017, 04:04:16 PM »

why dont LL docs do this test beforehand?

Because what he is talking about has nothing to do with knowing if you will have good regeneration.. He is talking about tests that indirectly can show if you have osteoporosis.
OP, if you want to help, atleast post something that has to do with the subject at hand and not something you quoted from webmed
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I learned some stuff during this time

MirinHeight

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Re: Everyone who wants to do LL, click on this thread.
« Reply #4 on: November 13, 2017, 11:45:40 AM »

http://www.scielo.br/pdf/aabc/v87n2/0001-3765-aabc-201520150008.pdf

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3143987/

https://www.ncbi.nlm.nih.gov/pubmed/20190300

http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0001-37652015000201049


@TIBIKE200,
After doing more research, you are correct in that these tests can not exactly tell you how your consolidation will be after surgery.
However it is important to do these tests to see if your bones are indeed healthy enough for this procedure. Some have osteoporosis and do not even know they have it. It does not cause pain in all cases. Furthermore, these tests also check your mineral/vitamin levels such as Vitamin D. This is important to see if your bones are getting all the vitamins and minerals it needs to consolidate after surgery.

Furthermore, I have posted some studies which show that this exact test has the possibility to tell you how your consolidation will go early in your healing period. It can tell you if you are more susceptible to a nonunion depending on the levels of some enzymes VERY EARLY in the process.
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

MirinHeight

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Re: Everyone who wants to do LL, click on this thread.
« Reply #5 on: January 23, 2018, 06:42:52 AM »

bump for anyone considering LL, these are tests you might want to consider!
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

MirinHeight

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Re: Everyone who wants to do LL, click on this thread.
« Reply #6 on: January 23, 2018, 06:45:21 AM »

these tests can show if your bones are healthy enough for the surgery and consolidation. + risk of fracture of the partially-consolidated bone post surgery depending on bone mineral density and strength

i have linked some studies for you to read if interested
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

esta241

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Re: Everyone who wants to do LL, click on this thread.
« Reply #7 on: February 14, 2018, 04:35:40 PM »

Good idea to do the test anyway, even if it doesn't totally predict the outcome because it can identify unknown risks early.  @MirinHeight, how do you go about ordering these tests? Do we know the CPT code(s)? Is it just this:

https://www.labcorp.com/help/patient-test-info/bone-markers#

Thanks.
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ibuse

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Re: Everyone who w6ants to do LL, click on this thread.
« Reply #8 on: March 04, 2018, 06:21:21 PM »

I'm probably a good example of a person that did a massive amount of pre-op tests for this surgery. I tried logging into my insurance portal, but the historical claim tab is currently down, so I can't locate the codes at this time. I have an unknown bone disease with full blown -4 Z score osteoporosis. I was re-diagnosed at 30 years old. Below is the blood-work I did to diagnose my bone disease. (If you all wanted an example of what the results look like.) Some of my results were abnormal, but nothing really out of the ordinary for someone with osteoporsis as bad as i have. I am 8 months post op of doing almost 9 cm and it didn't appear to impact my rate of regeneration. I had one of the the doctors say my bones appeared to be weak from my initial frame surgery, but so far, I have performed as well, if not better, than the healthy patients with no pre-existing conditions. I will add that most patients are deficient in vitamin D3 and it takes a long time to get D3 blood levels back up to par from deficiency. I suspect it's why some patients have terrible regeneration. So getting your supplements and nutrition straightened out are probably crucial for this surgery. Though with every random case I've seen, there still doesn't appear to be a clear pattern of what your regeneration will be like, even with healthy bones and good supplementation/working out.

My takeaway -- Getting your blood levels checked is a good thing, but having a pre-existing condition even as bad as osteoporosis is no guarantee that your regen will be bad. I've seen so many random cases of regeneration rates, and there does not appear to be a clear pattern. I've seen people with perfect health + nutrition + regiment workout schedules with terrible regeneration. And I've also seen those that ate next to nothing nutritious and hardly worked out with incredible regeneration. A popular theory most of us held is this surgery is 80-90% genetics. The blood-work may help determine if you have the genetics, but again, no guarantees.

Cons: If you can't insure the blood-work, the tests can easily run into over 1k+ or more. It was like 5 vials of blood they took from my arm, so it's not just a single test. The most important test is to get your D3 levels checked, but I'm not a doctor, so please verify this.

https://www.scribd.com/document/372943217/Bone-Disease-Bloodwork-Late-2016

Proof (7 months post-op) x-ray: https://imgur.com/a/uh1VC


Pre-op Tests I've done 6 months pre-op:

1. Spine MRI
2. Paley full 3d bone survey scan
3. Random X-rays
4. Bone DEXA density scan of spine + hip
5. Full blood panel
« Last Edit: March 04, 2018, 07:43:04 PM by ibuse »
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doomsday

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Re: Everyone who w6ants to do LL, click on this thread.
« Reply #9 on: March 11, 2018, 01:21:58 PM »

I'm probably a good example of a person that did a massive amount of pre-op tests for this surgery. I tried logging into my insurance portal, but the historical claim tab is currently down, so I can't locate the codes at this time. I have an unknown bone disease with full blown -4 Z score osteoporosis. I was re-diagnosed at 30 years old. Below is the blood-work I did to diagnose my bone disease. (If you all wanted an example of what the results look like.) Some of my results were abnormal, but nothing really out of the ordinary for someone with osteoporsis as bad as i have. I am 8 months post op of doing almost 9 cm and it didn't appear to impact my rate of regeneration. I had one of the the doctors say my bones appeared to be weak from my initial frame surgery, but so far, I have performed as well, if not better, than the healthy patients with no pre-existing conditions. I will add that most patients are deficient in vitamin D3 and it takes a long time to get D3 blood levels back up to par from deficiency. I suspect it's why some patients have terrible regeneration. So getting your supplements and nutrition straightened out are probably crucial for this surgery. Though with every random case I've seen, there still doesn't appear to be a clear pattern of what your regeneration will be like, even with healthy bones and good supplementation/working out.

My takeaway -- Getting your blood levels checked is a good thing, but having a pre-existing condition even as bad as osteoporosis is no guarantee that your regen will be bad. I've seen so many random cases of regeneration rates, and there does not appear to be a clear pattern. I've seen people with perfect health + nutrition + regiment workout schedules with terrible regeneration. And I've also seen those that ate next to nothing nutritious and hardly worked out with incredible regeneration. A popular theory most of us held is this surgery is 80-90% genetics. The blood-work may help determine if you have the genetics, but again, no guarantees.

Cons: If you can't insure the blood-work, the tests can easily run into over 1k+ or more. It was like 5 vials of blood they took from my arm, so it's not just a single test. The most important test is to get your D3 levels checked, but I'm not a doctor, so please verify this.

https://www.scribd.com/document/372943217/Bone-Disease-Bloodwork-Late-2016

Proof (7 months post-op) x-ray: https://imgur.com/a/uh1VC


Pre-op Tests I've done 6 months pre-op:

1. Spine MRI
2. Paley full 3d bone survey scan
3. Random X-rays
4. Bone DEXA density scan of spine + hip
5. Full blood panel

How is your walking after almost 9cm in terms of ballerina foot etc?
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ibuse

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Re: Everyone who wants to do LL, click on this thread.
« Reply #10 on: March 11, 2018, 08:33:01 PM »

I can walk without crutches, but I only do short distances without them. I still prefer to use at least one crutch. I have many more months of consolidation left, so I expect to do this for a while. I don't want to risk having the nail pop out. I only got pre ballerina in my right foot, not the heel lifting off of the floor kind. My heels could always touch the floor, but the foot still sort of twisted until recently. Now the left leg is completely fine, but the right still feels a little tight.

https://www.instagram.com/p/Bed1yTdg-12/?taken-by=mwserie_irl

This was me walking a short distance 7 months post op (initial external surgery).
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doomsday

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Re: Everyone who wants to do LL, click on this thread.
« Reply #11 on: March 11, 2018, 10:52:05 PM »

I ve been in similar stage , you should be walking normally within 2 months , keep stretching and walking. BTw which doctor did go with?
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ibuse

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Re: Everyone who wants to do LL, click on this thread.
« Reply #12 on: March 12, 2018, 04:36:13 AM »

Hopefully! It's just a waiting game with the right leg at this point.

I did it with Dr. Barinov and his team.
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7231

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Re: Everyone who wants to do LL, click on this thread.
« Reply #13 on: April 07, 2018, 04:55:22 AM »

Hopefully! It's just a waiting game with the right leg at this point.

I did it with Dr. Barinov and his team.

did you do lon or latn? btw  u are recovering well  , from the video.
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