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Author Topic: My Journey with Dr Pili(HEF)  (Read 17675 times)

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hotty

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Re: My Journey with Dr Pili(HEF)
« Reply #155 on: October 05, 2018, 12:59:05 PM »

Will you tell your future wife / girl friend about this?
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fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #156 on: October 05, 2018, 01:22:33 PM »

Will you tell your future wife / girl friend about this?
not unless she find out about my past and questions ;)
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Surgery: April end under dr pili/catagni

qirenzhe123

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Re: My Journey with Dr Pili(HEF)
« Reply #157 on: October 06, 2018, 04:00:45 AM »

Yes, in Lecco, you can if you do find and are willing to share room and stay frugal :) You can check with the locals there. 300-500€ for rent and 300-400€ for food. ;)
Is this the price for finding local people to share it with? Or is it the same price for your own rent? The monthly price?
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fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #158 on: October 06, 2018, 01:26:14 PM »

Is this the price for finding local people to share it with? Or is it the same price for your own rent? The monthly price?
the price at lecco i meant
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Surgery: April end under dr pili/catagni

qirenzhe123

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Re: My Journey with Dr Pili(HEF)
« Reply #159 on: October 06, 2018, 07:34:50 PM »

the price at lecco i meant
What do you mean by that?
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wants2growtaller

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Re: My Journey with Dr Pili(HEF)
« Reply #160 on: October 20, 2018, 11:28:45 AM »

Hey im around your height. I was wondering if we could talk about which doctors we could go to.
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fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #161 on: October 21, 2018, 02:32:05 PM »

Hey im around your height. I was wondering if we could talk about which doctors we could go to.
Hey, If you would plan external tibias(pardon my bias), I would suggest Dr Pili/Catagni for sure :p . I choose him over Paley any day for tibias(if i could afford). Please dont ask me for the reasons as people may hate me as they like to believe Paley is God, Lol. 

For femurs, if albizzia is okay, then go for betz, I would do that, due to his high success rate. Otherwise stryde with Rosbruch. I cant vouch for stryde with pili yet coz I havent seen his results on femur. I really feel Paley is way overrated :P. His oesteotomies are just average, roughly cut. There are too few diaries of him than say betz to feel he is a god. :)

Hope it helps
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Surgery: April end under dr pili/catagni

wants2growtaller

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Re: My Journey with Dr Pili(HEF)
« Reply #162 on: October 21, 2018, 04:18:38 PM »

I was thinking of Dr. Giotikas.
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fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #163 on: October 21, 2018, 06:10:33 PM »

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Surgery: April end under dr pili/catagni

hotty

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Re: My Journey with Dr Pili(HEF)
« Reply #164 on: October 23, 2018, 01:16:06 PM »


For femurs, if albizzia is okay, then go for betz, I would do that, due to his high success rate. Otherwise stryde with Rosbruch. I cant vouch for stryde with pili yet coz I havent seen his results on femur. I really feel Paley is way overrated :P. His oesteotomies are just average, roughly cut. There are too few diaries of him than say betz to feel he is a god. :)


Yeah and Betz and Pili let you lengthen 10cm whereas Paley requires you to stop at 6cm for tibia and 8cm for femurs. Why spend so much money and endure so much pain to only stop at 6cm? It's better to max out which only these few doctors allow. Maybe Pili and Betz clean osteotomy techniques help patients reach greater heights with less trouble.
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fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #165 on: October 25, 2018, 04:28:34 PM »

Yeah and Betz and Pili let you lengthen 10cm whereas Paley requires you to stop at 6cm for tibia and 8cm for femurs. Why spend so much money and endure so much pain to only stop at 6cm? It's better to max out which only these few doctors allow. Maybe Pili and Betz clean osteotomy techniques help patients reach greater heights with less trouble.
these docs also have a vast majority patients without any complains! ;) they are confident with their technique so....
Dr Pili does corrections after looking at the xray by his eye...and the next xray turns out better no matter how minute the flaw was.

As an update:
I am waiting for consolidation. My left leg showed a bit less of callous and doctor said to continue the rehab as per previous plan. I feel its because i walked minimally this month coz of work at the office :/. I would now walk an hour for this month as an experiment to see the difference. I am 4-5 months from frame removal according to my doctor.
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Surgery: April end under dr pili/catagni

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #166 on: October 27, 2018, 01:47:16 PM »

Mod I posted this post by mistake. could you please remove it?
« Last Edit: October 27, 2018, 02:49:51 PM by fivetenneeded2016 »
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Surgery: April end under dr pili/catagni

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #167 on: November 12, 2018, 09:41:33 AM »

Update:
I have slowly started walking unaided, its a bit wierd coz i am yet to find the right gait. I can walk for like 10minutes may be then i feel I could fall :p
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Surgery: April end under dr pili/catagni

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #168 on: November 12, 2018, 10:33:38 AM »

Have you been doing the prescribed deca durabolin? I believe that is an anabolic injection, and I do believe it needs to be stacked with testosterone... Have you done this?
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #169 on: November 12, 2018, 10:38:32 AM »

And a big congratulations as well on all your progress man, thanks for all the information. I'm about 2cm's in doing an external ilizarov, and I'm going to stay the entire time here to avoid the ATL with exercises at home. Could you recommend some PT that would be most beneficial? So far:

- Leg extensions (seated)
- Toe touches (face upward lying down)
- Lying leg curl (face downward lying down)
- Side lying leg lifts

If you can add anything else I'm all ears.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #170 on: November 12, 2018, 12:07:05 PM »

Have you been doing the prescribed deca durabolin? I believe that is an anabolic injection, and I do believe it needs to be stacked with testosterone... Have you done this?
Yes Have been doing deca, week 6 now with it! I did not see much mineralization at week 3, due to it may be due to small dose(25mg/week). But however I find my pinsites much cleaner due to it and also feel lesss pain after walking/cycling. I am curious how the callous is now though :p.(would find out towards the month end visit)

I did not get your "stacked with testesterone" part though. I thought deca is testesterone!
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Surgery: April end under dr pili/catagni

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #171 on: November 12, 2018, 12:12:32 PM »

And a big congratulations as well on all your progress man, thanks for all the information. I'm about 2cm's in doing an external ilizarov, and I'm going to stay the entire time here to avoid the ATL with exercises at home. Could you recommend some PT that would be most beneficial? So far:

- Leg extensions (seated)
- Toe touches (face upward lying down)
- Lying leg curl (face downward lying down)
- Side lying leg lifts

If you can add anything else I'm all ears.
there were a few excercises that the doctor prescribed and a few more that my friend does. I would take his permission and upload  that to give you an idea.

I have been going to office pretty much all time, so I missed out on my physios therefore required ATL. Same with shadow too who is busy with his school.

Excercises would indeed help you avoid ATL. Stretch as much bro! I know of 3 other pili/catagni patients who did it with or around my timeline, as I see them during visits..so, those who stretched did NOT undergo ATL. This should tell you the significance of stretching though.

How much have you done btw, if you dont mind telling :p

I am waitibg currently for bone mineralization.
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Surgery: April end under dr pili/catagni

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #172 on: November 12, 2018, 02:55:32 PM »

there were a few excercises that the doctor prescribed and a few more that my friend does. I would take his permission and upload  that to give you an idea.

I have been going to office pretty much all time, so I missed out on my physios therefore required ATL. Same with shadow too who is busy with his school.

Excercises would indeed help you avoid ATL. Stretch as much bro! I know of 3 other pili/catagni patients who did it with or around my timeline, as I see them during visits..so, those who stretched did NOT undergo ATL. This should tell you the significance of stretching though.

How much have you done btw, if you dont mind telling :p

I am waitibg currently for bone mineralization.

So far I've done 2cm but I'm going to go as far as 6.5, but I am a bit of a softie with pain so I may stop earlier. Thanks again for checking on the PT! It would be a huge help man.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #173 on: November 12, 2018, 03:01:43 PM »

I'm finding it a bit sore near my a inside ankles of both feet after I lengthen. I'm trying to stretch as much as possible and then stand and weight bear on my feet. Sometimes if I do 3-4 turns in a day, the pin points and the bottoms of my feet get really sore. It will go away after I stand and push the pain out. Of course, this can be completely eliminated on painkillers but I'm doing my best to not use any.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #174 on: November 13, 2018, 07:42:00 AM »

So far I've done 2cm but I'm going to go as far as 6.5, but I am a bit of a softie with pain so I may stop earlier. Thanks again for checking on the PT! It would be a huge help man.
Do as much as you can, with yoru doctors co sent of course. 6.5 cm is not soo much for the pain we endure , perhaps 7.5-8cm? :) Good Luck brother, stay strong!. regarding videos, yet awaiting his aporoval.
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Surgery: April end under dr pili/catagni

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #175 on: November 13, 2018, 07:44:03 AM »

I'm finding it a bit sore near my a inside ankles of both feet after I lengthen. I'm trying to stretch as much as possible and then stand and weight bear on my feet. Sometimes if I do 3-4 turns in a day, the pin points and the bottoms of my feet get really sore. It will go away after I stand and push the pain out. Of course, this can be completely eliminated on painkillers but I'm doing my best to not use any.
Painkillers are not bad. just paracetamol if it is. what rate are you distractcing? perhaps talk to your doctor and go at like .5-.75mm a day? weight bearing is the key brother! walk/stand as much as you can!
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Surgery: April end under dr pili/catagni

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #176 on: November 13, 2018, 10:50:53 AM »

Painkillers are not bad. just paracetamol if it is. what rate are you distractcing? perhaps talk to your doctor and go at like .5-.75mm a day? weight bearing is the key brother! walk/stand as much as you can!

That's basically where I am now, some days I will do 2 turns @ 90 degrees (0.5mm) or 3 turns, really depends on how painful my ankle gets. Yes I'm full weight bearing now, even walking around the downtown area of my city with a walker! After a tough first month things are really getting much easier, I feel I'm about 1/3 of the way lengthened as I'm around 2cm's now, so I think it'll be okay. And then expecting to keep my frames on for a few more months (3 maybe?) while things heal up.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #177 on: November 13, 2018, 11:13:06 AM »

Yes Have been doing deca, week 6 now with it! I did not see much mineralization at week 3, due to it may be due to small dose(25mg/week). But however I find my pinsites much cleaner due to it and also feel lesss pain after walking/cycling. I am curious how the callous is now though :p.(would find out towards the month end visit)

I did not get your "stacked with testesterone" part though. I thought deca is testesterone!

I completely missed this, sorry man. No, Deca is deca and testosterone is testosterone. Both are anabolic steroids. Deca durabolin has very strong anabolic growth properties, however it's huge downside is that it will severely affect your testosterone levels, which they call "Deca-dck" and your libido basically doesn't work, but I am not sure what dosage this happens at. Anyways, this can be counteracted by using a testosterone dosage. Mostly my experience is in running steroids for muscle building, so yes 25mg/week is almost nothing compared to the dosages I'm familiar with. Mostly I am familiar with running Deca at 500mg/wk (!), I hope you're getting results out of it because I've never heard of it being used at 25mg/wk.

Here is some material to check.

https://onsteroidslab.com/deca-durabolin-cycle/

https://www.muscletalk.co.uk/test-e-deca-cycle-dosing-m1728631.aspx

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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #178 on: November 14, 2018, 07:12:15 PM »

I completely missed this, sorry man. No, Deca is deca and testosterone is testosterone. Both are anabolic steroids. Deca durabolin has very strong anabolic growth properties, however it's huge downside is that it will severely affect your testosterone levels, which they call "Deca-dck" and your libido basically doesn't work, but I am not sure what dosage this happens at. Anyways, this can be counteracted by using a testosterone dosage. Mostly my experience is in running steroids for muscle building, so yes 25mg/week is almost nothing compared to the dosages I'm familiar with. Mostly I am familiar with running Deca at 500mg/wk (!), I hope you're getting results out of it because I've never heard of it being used at 25mg/wk.

Here is some material to check.

https://onsteroidslab.com/deca-durabolin-cycle/

https://www.muscletalk.co.uk/test-e-deca-cycle-dosing-m1728631.aspx
thanks for the info mate! are you gonna use any suppliments for bone consolidation?
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Surgery: April end under dr pili/catagni

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #179 on: November 14, 2018, 07:16:56 PM »

That's basically where I am now, some days I will do 2 turns @ 90 degrees (0.5mm) or 3 turns, really depends on how painful my ankle gets. Yes I'm full weight bearing now, even walking around the downtown area of my city with a walker! After a tough first month things are really getting much easier, I feel I'm about 1/3 of the way lengthened as I'm around 2cm's now, so I think it'll be okay. And then expecting to keep my frames on for a few more months (3 maybe?) while things heal up.
Damn, I forgot you are getting the nail :)consolidation should be not much of  deal  if you decent callous. I would say go till 7.5-8 bro if you body and doc permits!. And yeah changing the rate as per pain is a good idea. i have read people even skip days of lengthening.
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Surgery: April end under dr pili/catagni

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #180 on: November 14, 2018, 08:59:31 PM »

thanks for the info mate! are you gonna use any suppliments for bone consolidation?

Right now I am running low dose testosterone ~100mg/week just to fight muscle atrophy while I'm inactive, the during consolidation I will possibly run 4IU HGH with maybe 300/300 Testosterone/Deca. I'm still a month or two away from that, so I'll still need to think about it. Also, I won't be getting a nail, I'll be consolidating fully in external frames, so it could be another 3 months on top.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #181 on: November 15, 2018, 07:58:49 AM »

Right now I am running low dose testosterone ~100mg/week just to fight muscle atrophy while I'm inactive, the during consolidation I will possibly run 4IU HGH with maybe 300/300 Testosterone/Deca. I'm still a month or two away from that, so I'll still need to think about it. Also, I won't be getting a nail, I'll be consolidating fully in external frames, so it could be another 3 months on top.
cool man! btw what us the brand for HGH? i might want to give it a try too :)
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Surgery: April end under dr pili/catagni

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #182 on: November 18, 2018, 05:20:41 AM »

I've yet to find HGH in this city, but I have used Phizer Gintropin before and it worked great, but it was expensive.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #183 on: November 19, 2018, 12:15:16 PM »

I've yet to find HGH in this city, but I have used Phizer Gintropin before and it worked great, but it was expensive.
Great Man! I would love to try it! are you sure there would be no sides?
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Surgery: April end under dr pili/catagni

fivetenneeded2016

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Re: My Journey with Dr Pili(HEF)
« Reply #184 on: November 29, 2018, 03:34:42 PM »

latest xrays(month 7 post op):
http://imgur.com/a/thqvjxd

callouses look much better. Pili says i would be off frames in 3 months, so 10 month circa for around 8.5+cm(wont tell how much exactly) ;). walking is good in terms of speed and comfort. No achilles loosening i can feel, i can stand on my toes too if i try. I have been dating a while, no one can tell my proportions are wierd nked too. I feel it looks much better now, proportion wise.

Also for some alignment issue, I would have to lengthen .75cm more on left leg at .5mm a day post which final correction/compession would be done on that leg. Dr Pili is a perfectionist when it comes to alignment, thats the main reason i chose him ;)

The other folks who lengthened with me too did similar amounts may be 1-2 cm less but 2 dint require atl as well.

This month i saw a significant callous imporvement. Apart from deca, I did these in addition to last month:
1. walked 1 hour in 4 sets of 15 mins
2. protien(60-70g) + bone broth while walking/cycling
3. calcium 500mg tablets spaced 3 hours apart, 4 times a day
4. vitamin d3, 20000IU 3 hours before first calcium dose.

things i plan to do:
1. low dose magnesium tablets
2. letrozole/hgh (planning to research soon)
3. LIPUS(yet to find under 200$ alternative for exogen)

If anyone has insights to 2,3. please let me know. I just read about letrozole, i dont know its efficacy for callous formation in cases of bone gap.
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Surgery: April end under dr pili/catagni

cheekycabs

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Re: My Journey with Dr Pili(HEF)
« Reply #185 on: November 29, 2018, 05:17:43 PM »

Excellent work man, looks like you're well on your way.

I'll try my best to help you with your questions.

2) I ams till trying to get a grasp and understanding about estrogen (letro) and it's effects on bone metabolism, osteoblasts, and osteoclasts. From what I am reading, you actually want to have estrogen in your endocrine system to promote osteoblasts, but PLEASE research and make sure it's correct. My sources are as follows:

https://en.wikipedia.org/wiki/Bone_resorption

"Bone resorption rates are much higher in post-menopausal older women due to estrogen deficiency related with menopause.[7] Common treatments include drugs that increase bone mineral density."

https://courses.washington.edu/bonephys/esteffects.html

"Osteoclast apoptosis is regulated by estrogens. With estrogen deficiency, the osteoclasts live longer and are therefore able to resorb more bone. In response to the increased bone resorption, there is increased bone formation and a high-turnover state develops which leads to bone loss and perforation of the trabecular plates."

From that I am concluding that as you inhibit estrogen (main thing letro does) you have more bone loss. But, people will take letro to stop their plates from closing, allowing for growth. I'm a bit confused as well :|


3) I found this 2 month rental for a device in the UK. Is that where you're stationed?

https://www.amazon.co.uk/Exogen-Ultrasound-Healing-System-Months/dp/B07G35FMPL/ref=sr_1_1_a_it?ie=UTF8&qid=1542673401&sr=8-1&keywords=exogen

Let me know what you think.
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External Tib Ilizarov, Azerbaijan: http://www.limblengtheningforum.com/index.php?topic=9418.0
Drugs, preparation, training: https://docs.google.com/document/d/1V2bNA_OsVwqR5Qp6fAWH7VFN6DaZPJ8YroUELsIy28k/edit

1 year post can run slowly, walking/gym everyday. Issues are zero, ankle tight waking up.
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