Topic: Dr Pili external Tibia with HEF method (hopefuly 6cm) 2019 (Read 16445 times)

Rei · « **Reply #31 on:** June 18, 2019, 10:51:41 AM »

I will start the lengthening the 20th of this month and will meet Dr Pili again for the first time after the surgery the 22th, where he will remove my stitches and i think i will have my first X-ray post OP

Rei · « **Reply #32 on:** June 21, 2019, 06:34:57 PM »

Started the distraction phase yesterday, i have to turn 3 times each day for a total amount of 0,75mm everyday.

Yesterday after the 3rd turn the side of my right leg was really in pain until today morning and today it was the same, only after the 3rd turn and only on the right leg, i wonder what’s that, i guess nerves trying to get used to the lenghtening, thing is it dosn’t happen in the slightest with the left leg and i’m only on my second day

Nameless · « **Reply #33 on:** June 29, 2019, 01:28:02 PM »

Congratulations for starting the distraction phase!
From other diaries I've read, it looks like most people has a "weak leg" that hurts the most and needs more stretching.
Are you going to a physiotherapist or stretching on your own at home? if so, does it hurt more on the right leg?

Rei · « **Reply #34 on:** June 29, 2019, 03:40:00 PM »

Quote from: Nameless on June 29, 2019, 01:28:02 PM

Congratulations for starting the distraction phase!
From other diaries I've read, it looks like most people has a "weak leg" that hurts the most and needs more stretching.
Are you going to a physiotherapist or stretching on your own at home? if so, does it hurt more on the right leg?

Hi, every possible pain i had lasted for 3 days after the distraction phase started, right now i don’t have any kind of pain and my legs are even in terms on strenght.

Dr Pili gave me a coupld of exercises to do at home, i had some difficulty doing them but now i can do any possible type of movement i did before the the surgery.

Right now i’m at +7,5mm

Nameless · « **Reply #35 on:** June 29, 2019, 04:08:01 PM »

Good to hear man!
Keep going, I will definitely follow your progress.

Aedi · « **Reply #36 on:** June 29, 2019, 06:45:51 PM »

Good luck man ,you almost there .
What does AtL mean ?
Thanks

Activatedx · « **Reply #37 on:** June 29, 2019, 06:51:48 PM »

Quote from: Aedi on June 29, 2019, 06:45:51 PM

Good luck man ,you almost there .
What does AtL mean ?
Thanks

Achilles’ tendon lengthening
Best to avoid it because it results in decrease in physical ability

Aedi · « **Reply #38 on:** June 29, 2019, 07:00:09 PM »

Activatedx thank you .
Some doctors offer Achilles release if length way over .
Activatedx thank you for your information you really experienced . What do you think about LON ?
I’m thunking about it with dr Kelush . I can afford it in one year . Also I read about Akita he did it in India with dr sharma I think same cost . I’m more worried that nail going throw my knee . Does it leave any permanent damage to the knee ?

Activatedx · « **Reply #39 on:** June 29, 2019, 08:21:53 PM »

Quote from: Aedi on June 29, 2019, 07:00:09 PM

Activatedx thank you .
Some doctors offer Achilles release if length way over .
Activatedx thank you for your information you really experienced . What do you think about LON ?
I’m thunking about it with dr Kelush . I can afford it in one year . Also I read about Akita he did it in India with dr sharma I think same cost . I’m more worried that nail going throw my knee . Does it leave any permanent damage to the knee ?

I didn’t do atl just common knowledge it decreases some physical extertion in lower legs. Lon has small risk for bone infection and knee pain. Externals are safer but very hard to live with. Personally I’m doing stryde it is a lot more expensive

The way I look at it is with stryde I can return to work much earlier so the difference I save in recovery time translates to money

Nameless · « **Reply #40 on:** July 06, 2019, 11:08:54 AM »

Rei, any update?
Feeling the same?

Rei · « **Reply #41 on:** July 06, 2019, 03:56:12 PM »

Quote from: Nameless on July 06, 2019, 11:08:54 AM

Rei, any update?
Feeling the same?

Hi thx for asking.

I’m not updating because there isn’t a whole lot to update about. Right now i lengthen 1,2 cm and everything is going smooth, i don’t have any pain at all, last time i felt some pain was one i started the lengthen process for a couple of days but after that everything was really smooth.

I will meet Dr Pili again at the end of the month and the hospital booked me the ATL for the beginning of August even tho i told Dr Pili that i don’t want to do it, but he pretty much told me that we need to see how i will look like in our next appointment and that at worst they will just call the hospital the day before and cancel my surgery for ATL, he said that if i don’t book it now there was the chance that i was not able to book it again for another month and that if i need ATL i will have to do it earlier in the process.

Rei · « **Reply #42 on:** July 08, 2019, 04:10:42 AM »

17 days after i started the lengthening and almost reached 1,5 cm the whole area between my knees and where they cut the tibia is starting to feel already really tight, including all the pins in that area, everything below that area is like before. I wonder if i already feel so tight how much can i keep to length, i will meet Dr Pili anyway in 3 weeks and if everything goes right i should be like 2,7 cm by that time.

Rei · « **Reply #43 on:** July 09, 2019, 07:05:54 PM »

Reached 1,5 cm today and pins are starting to hurt, especially if i stay with my legs straight, also my left calf is really hurting since yesterday, nothing serious but sometimes is really painful

darkprince111 · « **Reply #44 on:** July 10, 2019, 02:13:21 PM »

Hey Rei, sent you a PM.

Rei · « **Reply #45 on:** July 11, 2019, 06:55:20 PM »

So it was two days i was having some bad pain when i was stretching my right leg or standing up on the side of my knee, today i noticed the head of the fibula was protruding more than normal especially in a sitting position, i already sent a mail to Dr Pili, anyone ever experienced that? Should i be worried?

Rei · « **Reply #46 on:** July 12, 2019, 09:54:04 PM »

Any chance guys anyone experienced in this can reply to me? Tomorrow i’m going to call Dr Pili and until i don’t spoke to him i don’t understand if this is something serious or not to the point i’m spending the whole day reading diaries and googling about this problem.

So i’m only 1,5 cm into the distraction phase and on my right leg the fibular head is protruding compared some mm more than normal and at the same time if i try to standing up or straight my leg i feel the most painful type of pain since i had the surgery.

Rei · « **Reply #47 on:** July 13, 2019, 09:43:21 AM »

Dr Pili called me today and told me that is nothing to worry about and if i really wanted to fix it now i can go to Catagni that was in Rome today cause Dr Pili i think was either in Lecco or Milan probably.

I really didn't understand what i told me cause he was in a hurry but he pretty much told me that is one of the pins and that he can fix me when we meet in 2 weeks and that there is nothing to worry about

Knik · « **Reply #48 on:** July 13, 2019, 01:21:54 PM »

how is daily life ? if I may ask

Rei · « **Reply #49 on:** July 13, 2019, 01:28:22 PM »

Quote from: Knik on July 13, 2019, 01:21:54 PM

how is daily life ? if I may ask

Apart those last few days where i got paranoid and the first 3 or 4 days immediately after the surgery, it was a painless experience and i was already walking really quickly (with a walker) like even before a week after the surgery.

I feel like most of the complications come from the patients own mind, when you want to be reassured you only want to be reassured from your doctor and until that you kind feel on your own cause you don’t really know what’s happening, everytime i was having something that i tought it was a problem, in few days fixed itself like Dr Pili always told me, but right now i’m not even at 2cm into the distraction phase so probably the worst is yet to come, i want to be kind of conservative anyway, is either going to be 5cm or at best 6cm cause the only diaries that satisfied me were from people that got 5cm at best in tibias.

Knik · « **Reply #50 on:** July 13, 2019, 02:00:14 PM »

Quote from: Rei on July 13, 2019, 01:28:22 PM

Apart those last few days where i got paranoid and the first 3 or 4 days immediately after the surgery, it was a painless experience and i was already walking really quickly (with a walker) like even before a week after the surgery.

I feel like most of the complications come from the patients own mind, when you want to be reassured you only want to be reassured from your doctor and until that you kind feel on your own cause you don’t really know what’s happening, everytime i was having something that i tought it was a problem, in few days fixed itself like Dr Pili always told me, but right now i’m not even at 2cm into the distraction phase so probably the worst is yet to come, i want to be kind of conservative anyway, is either going to be 5cm or at best 6cm cause the only diaries that satisfied me were from people that got 5cm at best in tibias.

great, I'm happy to have a new Pili diary to follow

Rei · « **Reply #51 on:** July 17, 2019, 07:03:05 PM »

Just reached a little but over 2cm, apart from my right fibula head that is protruding few mm and was hurting a lot for a couple of days, everything is fine, i had some knee bending at 1,8 cm for a couple of days on my left leg but for some reason now is gone.

For some reason both of my ankles are pretty swollen but they never hurt once, neither i had any discomfort.

Rei · « **Reply #52 on:** July 26, 2019, 03:07:05 PM »

I’ve met Dr Pili today and did some X-Rays, for now he said i don’t need ATL and we will see in September, other than that he said i’m doing good and i did just a little bit less than 3cm

Nameless · « **Reply #53 on:** July 28, 2019, 02:49:31 PM »

Good to hear man, stay strong!

Rei · « **Reply #54 on:** July 28, 2019, 05:47:10 PM »

Quote from: Nameless on July 28, 2019, 02:49:31 PM

Good to hear man, stay strong!

Thanks

Movie · « **Reply #55 on:** July 28, 2019, 10:16:00 PM »

Keep it up Rei, I'm glad it's looking better for you!
Hang in there it'll be over before you know it.

alieno · « **Reply #56 on:** July 28, 2019, 11:52:14 PM »

do you have a decent mobility using crutches or walker? if yes, how much do you walk daily, and what kind of exercises the doctor gave to you?

Rei · « **Reply #57 on:** July 29, 2019, 04:33:04 AM »

Quote from: alieno on July 28, 2019, 11:52:14 PM

do you have a decent mobility using crutches or walker? if yes, how much do you walk daily, and what kind of exercises the doctor gave to you?

Hi Alieno, i replied to your pm btw, don’t know if you saw it. Btw i have a really good mobility with both crutches and walker and until now i really didn’t make a lot of exercises or walking other than going to the bathroom and to the kitchen to eat; but since a couple of days i’m spending a total amount of about 2 hours between stretching, walking and exercises, the only thing is that my left knee is bending slighty and my left ankle is kind of locked at 90 degree with maybe some range of motion in the dorsiflexion, so i’m trying to fix the knee while keeping the ankle at this ROM at worst but is not easy while lenghting everyday.

I just really want to avoid another surgery and get the ATL done even if only fof 5cm, dr Pili seems positive i will have to get it no matter what tho in September

Rei · « **Reply #58 on:** July 29, 2019, 08:50:47 AM »

My latest X-Rays after 50 days from the surgery, about 2,7cm

https://imgur.com/a/IX61qJH

montahn · « **Reply #59 on:** July 29, 2019, 08:26:19 PM »

Quote from: Rei on July 29, 2019, 08:50:47 AM

My latest X-Rays after 50 days from the surgery, about 2,7cm

https://imgur.com/a/IX61qJH

Perfect rei. You are going pretty good

Movie · « **Reply #60 on:** July 29, 2019, 10:49:17 PM »

Nice

Nameless · « **Reply #61 on:** August 03, 2019, 08:26:01 PM »

Looks good Rei, I wonder how much you'll be able to gain before you need ATL.

Limb Lengthening Forum

Author Topic: Dr Pili external Tibia with HEF method (hopefuly 6cm) 2019 (Read 16445 times)