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Author Topic: Femurs with Dr. Shahab Mahboubian - July 2020  (Read 15144 times)

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Giotikas2021

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #372 on: November 13, 2020, 09:56:47 AM »

According to my research, femur recovery is better and I should have a decent chance doing only 5 cm, as I'm also really fit. Of course I know I will lose some ahtleticism, but I agree with you: if I can run decently and walk with no issues, it's worth it for me¡ I'm sure you will make it man, thanks for your advices¡
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #373 on: November 15, 2020, 11:03:51 PM »

Day 109 Post-op (Sun., Nov. 8 ) - Consolidation Day 28
Day 110 Post-op (Mon., Nov. 9) - Consolidation Day 29
Day 111 Post-op (Tue., Nov. 10) - Consolidation Day 30
Day 112 Post-op (Wed., Nov. 11) - Consolidation Day 31
Day 113 Post-op (Thurs., Nov. 12) - Consolidation Day 32
Day 114 Post-op (Fri., Nov. 13) - Consolidation Day 33
Day 115 Post-op (Sat., Nov. 14) - Consolidation Day 34
Day 116 Post-op (Sun., Nov. 15) - Consolidation Day 35 *


* Weekly updates make more sense (than daily updates) during consolidation. I still list all the days; just in case someone would like to search for a certain day. E.g., searching for "112" would hopefully point at the post with the updates related to Day 112.


Updates:

Exercises:    I have continued to do the stretching exercises I had posted here. Typically 3 sessions per day with each session taking about 20 minutes.  I also do a couple short indoor cycling sessions per day. In addition to walking here and there at home to do my work and run errands, I make sure to walk 1.5 miles daily in a park nearby. I am sure I can walk for much longer distances, but I get bored walking in the park doing nothing :P


Gait and Flexibility:

Walks: I have experienced major improvement since distraction stopped and that has continued in the last week. My wait is getting close to normal. There is a high chance for most of my walks, others may not notice anything abnormal. I also walk a lot faster and my speed is back to normal (speed pre-surgery). I used to walk fast pre-surgery; much faster than typical; now I am back at it!

Running: I cannot yet run, but I can kinda do a marathon looking run.

Stairs: Going downstairs has been fairly manageable for weeks now, but climbing upstairs unassisted was not easy for my right leg. That is resolved. I can now climb upstairs with right leg having sufficient strength so I can make it look normal. I am still slow. I have to build up more strength and I know it's gonna happen soon.

Flexibility: I think I can now keep my legs very straight without any knee bending issues, while standing tall.

As for bending legs, I see major improvement: I can now bend my right knee all the way to 170 degrees or so. It's very close to my right foot touching my butt. My left is still lagging behind and I think I can bend my left to 160 degrees or so. My quads get a bit sore. At times they feel like rocks, and they are the major barrier for not getting the full 180 degrees bending yet. I hope this will happen in a week or two.

I suffered from flat butt post-op. However, my gluteus muscles (butt muscles) grew fairly quickly post distraction. My butt does not look normal like pre-op normal, but definitely not flat either!  By Day 180, I hope to have developed stronger gluteus muscles (than before the surgery) cause of the regular stretching and walking I do every day.
 
As I said before my goal is to be back to pre-surgery status by Day 180. Swimming is a major part of it. I hope to try swimming for the first time next week and see where I am!

Pain:  I have been painkiller free since Oct 20th (Day 90 Post-op, also Consolidation Day 9).  I still experience discomfort, but the times has shifted from late afternoon to late evening, i.e., starting around 7~8pm or so and continues till post-midnight. I don't describe it as pain, but a feeling of discomfort. If I were to number the discomfort based on comparison to pain out of a max level 10, I would say the discomfort at night times ranges between 1 and 3 on each leg, almost equally; almost, cause I feel numb in the left tibia (minor, not too bad).

Numbness: I have overall had 19 fast distraction days with 1.33mm daily distractions: 5 days at the beginning and 14 more later on following Dr. M.'s plan to avoid any premature consolidation, after he found out I had extreme callus growth!

As a result I may be one of the fastest (if not exactly the fastest) CLL'ers to achieve 8cm [My record of 8cm is 72 days!!].  That however must have come with some side effects, e.g., I experienced more pain during the fast distraction days. Also the numbness on my left tibia could be the result of fast distraction. Unfortunately the numbness is not yet resolved. Dr. M. told me that it would resolve over time. I hope it will!

Night Sleeps: My night sleeps have improved quickly post distraction phase. Overall I sleep more than 8 hours per day, but I still wake up one to three times during the 8 hours, not because of pain, but just randomly or to go to restroom!

Please let me know if I missed on any updates!

« Last Edit: November 16, 2020, 01:26:05 AM by StrydeNailChallenge »
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

readyprecisestryde

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #374 on: November 16, 2020, 04:38:04 AM »

Hello SNC,

I have numbness on my left shin and minor nerve pain. Dr. Robbins told me it can take weeks/months to improve. Hope the numbness goes away for both of us soon.
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #375 on: November 16, 2020, 03:05:32 PM »

Hello SNC,

I have numbness on my left shin and minor nerve pain. Dr. Robbins told me it can take weeks/months to improve. Hope the numbness goes away for both of us soon.

Thanks very much rpc !  It's about two months since the numbness started and almost 36 days into recovery/consolidation. I'll be patient :)  Meanwhile I am trying to figure out if we could do any stretching that may accelerate recovery from numbness. I have not yet figured out which area hamstrings, quads, etc. may need more improvement, and hence stretching may help with the numbness. Please let me know if you find out.
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

Jackieeechan

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #376 on: November 16, 2020, 06:58:38 PM »

Do you mind sharing your quad and calve size? pleaseeeeeeeeeeeeeeeeeeeee
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #377 on: November 16, 2020, 07:39:19 PM »

Do you mind sharing your quad and calve size? pleaseeeeeeeeeeeeeeeeeeeee
Certainly. I'll post it asap. Just letting you know I am very thin  for my height even before the surgery (very athletic body with almost no fat; not bulky at all, though). The small numbers would therefore most likely surprise you :D
« Last Edit: November 16, 2020, 09:52:43 PM by StrydeNailChallenge »
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #378 on: November 16, 2020, 10:17:11 PM »

Do you mind sharing your quad and calve size? pleaseeeeeeeeeeeeeeeeeeeee

Here are the numbers:
Left calf: 33.4cm   Right: 33.2cm
Left quad: 47.5cm  Right: 46.4cm

I hope I measured them correctly. If you have a specific way of measuring in mind, let me know and I'll double check! 
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

Jackieeechan

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #379 on: November 17, 2020, 02:00:23 AM »

Thanks for replying mate. I appreciate it. I have quad size smaller than yours. Do you think the lengthening would be less painful and easier for me?

Quads - 40cm
Calf - 33cm
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #380 on: November 17, 2020, 04:08:25 AM »

Thanks for replying mate. I appreciate it. I have quad size smaller than yours. Do you think the lengthening would be less painful and easier for me?

Quads - 40cm
Calf - 33cm

I have no idea Jackieeechan. I hope others jump in and help here, especially if they know of real cases or if they know of any research related to size and pain.

I should however remind you that even if size would impact pain, there are probably other more important factors that determine the pain level. I could mention, your tolerance to pain (I am a crazy guy for dangerous stuff, but surprisingly my pain tolerance is low), your nerve sensitivity (my nerves are super sensitive, e.g., if the dentists uses one short of anesthesia for a typical patient, they have to use three shorts for me), your flexibility (this saved me; I tend to believe I am one of the most flexible CLL'ers in the whole globe!!), your upper body strength (mine is very strong for my weight), stryde vs other procedures (I am not sure, but overall stryde may be less painful - please ask others but I highly recommend stryde), and whether you would be okay taking painkillers (I tried to quit on them several times, cause I don't wanna depend on them, but I realized I could not survive the post-op without them; until I was finally able to quit during the recovery phase). There is a good chance pain level depends on which doctor you'd go for.

Overall I should tell you you would most likely end up experiencing a lot of pain. You should therefore have a good motivation for doing the CLL.

SNC,
P.S. I am a big fan of Jackie Chan. I know a lot of Chinese who do not like him, but I love this guy for his innovations in martial arts and his acting skills.
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

readyprecisestryde

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #381 on: November 17, 2020, 08:40:58 AM »

I am stretching several times a days and also started stretching my calves. The stretching hasn't helped with reducing the my numbness around my shin. Walking does help to relieve some of the minor nerve pain that I have been experiencing.
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #382 on: November 17, 2020, 02:39:14 PM »

I am stretching several times a days and also started stretching my calves. The stretching hasn't helped with reducing the my numbness around my shin. Walking does help to relieve some of the minor nerve pain that I have been experiencing.

My numbness is on the front (Tibia Shin) not the calf. Is yours mostly on the back (calf) side?

While bending knees, left aches more than right when I put pressure towards 180 degrees.  My right has always been more flexible since distraction times. There is a slight chance if my left leg improves to be as good as right in bending, numbness may start to disappear. If that is a correct hypothesis, then I should work on my quads.


@readyprecsestryde (rpc)   Do you have a similar situation? i.e., when you bend your legs, does the leg with numbness aches more when you go extreme?
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

readyprecisestryde

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #383 on: November 17, 2020, 04:24:22 PM »

My numbness is on part of the shin only  and very small amount of the calf(not much on the calf). I don’t feel much pain from it, just annoyance. Bending my knees does not bother or help it.
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #384 on: November 17, 2020, 04:53:11 PM »

My numbness is on part of the shin only  and very small amount of the calf(not much on the calf). I don’t feel much pain from it, just annoyance. Bending my knees does not bother or help it.

I don't have pain either. For most of the day, I can't even feel it, unless I touch the shin area skin.  I mean while bending legs do you feel discomfort (not related to numbness) or can you bend your legs like 180 degrees?

I can't. My left goes to about 160 degrees and right to 170.  I am just hoping by the time I can bend my legs completely at 180 degrees, somehow the numbness disappears.

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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

readyprecisestryde

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #385 on: November 17, 2020, 10:05:56 PM »

Physical therapist measured my knees last week and my knees were bending 135 degrees. I am tight but not a lot of  discomfort.
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #386 on: November 17, 2020, 10:30:13 PM »

Physical therapist measured my knees last week and my knees were bending 135 degrees. I am tight but not a lot of  discomfort.

 I hope we both get to 180 soon.

I remember my numbness started during the fast distraction days. That may imply the nerve got lengthened too much and created numbness. Therefore it may not really have anything to do with the callus or muscles. Therefore stretching or walking may not directly help, but my indirectly stimulate nerve repair. Sorry once gain that I am loudly thinking! 
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

Jackieeechan

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #387 on: November 18, 2020, 05:55:13 PM »

I have no idea Jackieeechan. I hope others jump in and help here, especially if they know of real cases or if they know of any research related to size and pain.

I should however remind you that even if size would impact pain, there are probably other more important factors that determine the pain level. I could mention, your tolerance to pain (I am a crazy guy for dangerous stuff, but surprisingly my pain tolerance is low), your nerve sensitivity (my nerves are super sensitive, e.g., if the dentists uses one short of anesthesia for a typical patient, they have to use three shorts for me), your flexibility (this saved me; I tend to believe I am one of the most flexible CLL'ers in the whole globe!!), your upper body strength (mine is very strong for my weight), stryde vs other procedures (I am not sure, but overall stryde may be less painful - please ask others but I highly recommend stryde), and whether you would be okay taking painkillers (I tried to quit on them several times, cause I don't wanna depend on them, but I realized I could not survive the post-op without them; until I was finally able to quit during the recovery phase). There is a good chance pain level depends on which doctor you'd go for.

Overall I should tell you you would most likely end up experiencing a lot of pain. You should therefore have a good motivation for doing the CLL.

SNC,
P.S. I am a big fan of Jackie Chan. I know a lot of Chinese who do not like him, but I love this guy for his innovations in martial arts and his acting skills.

Asking this cause, I want to gain some mass overall. I am at 50 kg which is less at my height. I am planning to this surgery after 2 or 3 year, when i graduate from university.

I also love Jackie Chan, that's why I chose this name. And its also easy to pronounce.
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StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #388 on: November 22, 2020, 06:15:58 PM »

Day 109 Post-op (Sun., Nov. 8 ) - Consolidation Day 28
...
Day 116 Post-op (Sun., Nov. 15) - Consolidation Day 35 *


* Weekly updates make more sense (than daily updates) during consolidation. I still list all the days; just in case someone would like to search for a certain day. E.g., searching for "112" would hopefully point at the post with the updates related to Day 112.




Day 117 Post-op (Mon., Nov. 16) - Consolidation Day 36
Day 118 Post-op (Tue., Nov. 17) - Consolidation Day 37
Day 119 Post-op (Wed., Nov. 18) - Consolidation Day 38
Day 120 Post-op (Thurs., Nov. 19) - Consolidation Day 39
Day 121 Post-op (Fri., Nov. 20) - Consolidation Day 40
Day 122 Post-op (Sat., Nov. 21) - Consolidation Day 41
Day 123 Post-op (Sun., Nov. 22) - Consolidation Day 42



Updates:

Exercises:    I have continued to do the stretching exercises I posted in my dairy. The latest version is version 2.1 on page 12. I do a typical 3 session per day workout with each session taking about 20 minutes.  I also do a couple short indoor cycling sessions per day. I have stopped cycling in the last two days to see whether the slight pain in the screws' area on left leg (upper thigh/butt area) is due to cycling or the walks. In addition to walking here and there at home to do my work and run errands, I make sure to walk 1.5 miles (increased it 2, then 2.5 and now 3 miles per day) daily in a park nearby. I am sure I can walk for much longer distances, Doing 3 miles, I feel I should not push for longer distances. I therefore plan to keep the daily walks in the park limited to 3 miles per day.


I see improvement in my gait, and daily activities, such as stair climbing, in terms of strength and flexibility. For example I have been able to sit on a bed, sofa, chair etc. without using hands as support. I have recently been able to stand from a sitting position without using my hands if the height of the sitting area is fairly high. if the height is low, I need momentum by moving my body forward and sometimes using my hands on my knees to be able to stand.

The only exception is the numbness feeling on left tibia; which has not gotten better.
I am still hopeful I meet my own goal of getting back to normal (pre-surgery) on every terms by Day 180.


CLL'ers, please feel free to let me know what your definition of normal is and I try my best to see whether I can meet them by Day 180. 

By the way, the reason I chose Day 180 as my deadline is that Dr. M. had told me that one of his patients could be back to normal (as if no surgery were done on him) in 6 months. Of course longer legs may define a new normal on some aspects, but I think there is this feeling you would have that you would think, I feel totally normal. I don't have it yet. It's actually far from it. I wanna see if I can feel normal by Day 180 and I know my best way to get there would be with PTs, exercises and workouts. 
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

ghkid2019

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #389 on: November 23, 2020, 09:04:48 AM »

Good job strydenailchallonge

thank you for this diary

i wud define normal as being able to do everything a normal person can do without pain even sports just poor strength, and like you dont even feel like you did surgery to legs ever or even did LL. i wud say this probably takes 15 months+

if going by the LL doctor's definition of normal, it's probably just 90%+ gait but pain/numbness is still there and everything. 6 month is normal as in u can walk and go to work but not normal normal as if LL never happened if you know what i mean

now for my cliche answer/for fun: i think the true normal is 3 years later when you don't even think about height anymore and this surgery isn't even a thought in your head anymore, it's just a phase that passed, history... and you don't come back to this forum

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Excuse me for mass posting and spamming every thread. Just getting my LL Forum fix after a small hiatus.

StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #390 on: November 23, 2020, 02:41:19 PM »

Good job strydenailchallonge

thank you for this diary

i wud define normal as being able to do everything a normal person can do without pain even sports just poor strength, and like you dont even feel like you did surgery to legs ever or even did LL. i wud say this probably takes 15 months+

if going by the LL doctor's definition of normal, it's probably just 90%+ gait but pain/numbness is still there and everything. 6 month is normal as in u can walk and go to work but not normal normal as if LL never happened if you know what i mean

now for my cliche answer/for fun: i think the true normal is 3 years later when you don't even think about height anymore and this surgery isn't even a thought in your head anymore, it's just a phase that passed, history... and you don't come back to this forum

Hey ghkid2019,    Happy to see you here! It's been a while and I was wondering when you'd be back! A sad reality of this forum is that any of us would stop at some point posting and if others are used to them, they would wonder what happened, miss them ...

I believe your definition of normal is correct and there is a very high chance that the record holder patient of Dr. M. who was back to normal in 6 months, was not following that definition. The chance that I would feel normal by Day 180  is probably as bad a 75 year old psycho, showing some signs of logic and empathy on his birthday  :D     but I try to fix my walking, gait, running, stair climbing, swimming, etc. by Day 180.  I hope I can make it, but even that does not look that great :D I'll try to post a video by the end of the week so you guys judge for yourself how my gait looks these days. 

« Last Edit: November 23, 2020, 03:09:46 PM by StrydeNailChallenge »
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

StrydeNailChallenge

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #391 on: November 24, 2020, 04:02:36 PM »

Day 109 Post-op (Sun., Nov. 8 ) - Consolidation Day 28
...
Day 116 Post-op (Sun., Nov. 15) - Consolidation Day 35 *


Flexibility: I think I can now keep my legs very straight without any knee bending issues, while standing tall.

As for bending legs, I see major improvement: I can now bend my right knee all the way to 170 degrees or so. It's very close to my right foot touching my butt. My left is still lagging behind and I think I can bend my left to 160 degrees or so. My quads get a bit sore. At times they feel like rocks, and they are the major barrier for not getting the full 180 degrees bending yet. I hope this will happen in a week or two.



I don't have pain either. For most of the day, I can't even feel it, unless I touch the shin area skin.  I mean while bending legs do you feel discomfort (not related to numbness) or can you bend your legs like 180 degrees?

I can't. My left goes to about 160 degrees and right to 170.  I am just hoping by the time I can bend my legs completely at 180 degrees, somehow the numbness disappears.

Hello All,
I have an update based on a PT visit I had yesterday. Those who followed my journey know that I mostly did self-PT'ing.
Yesterday I went for my third PT center visit, since the surgery. The few visits have been very helpful in terms of evaluation, getting some new exercises and also getting some accurate measurements. I found out yesterday that I had listed some wrong numbers on knee bending; I'd like to apologize for the mistake and also post the right numbers.

I know that a straightened leg would be translated to 0 degree, as the extended line of femur would be aligned with the tibia.

However what I misunderstood was that while bending knees, the maximum level, i.e., foot heel touching butt would not mean 180 degrees. Assuming that wrongly as 180, I had guessed my numbers as 170 and 160 for my right and left legs, which are incorrect.

I would imagine doing 180 degrees knee bending would not look normal! cause for that to happen, tibia has to further get aligned with femur, beyond the heel touching butt.

The correct numbers for my right and left knee bending degrees are (measured by the PT as) 140 and 133, respectively. 

I asked the PT what would be the maximum level in degrees. He did not give me a number; perhaps because it's subjective and may depend on the size of the thighs, etc.

I will soon update my list of exercises to Version 3 (most updated so far is version 2.1 on page 12 of my diary) with some new exercises I learned from the yesterday visit.
« Last Edit: November 24, 2020, 06:01:06 PM by StrydeNailChallenge »
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Starting Height [morning time]: Both feet on the floor: 173 cm, One foot (left) : 174,  One foot (right) : 175
Ending Height: 180.5, 181.5, 182.5 cm

Femurs' Stryde Nail Diary: http://www.limblengtheningforum.com/index.php?topic=65337.0

InFullStryde

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Re: Femurs with Dr. Shahab Mahboubian - July 2020
« Reply #392 on: Today at 01:16:47 AM »

I finally read through your entire diary SNC ...  Inspiring, man! Your diary will be a great help to the future CLL'ers to come.  I look forward to following the rest of your journey.
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"Make the BEST of what you have and Make what you have, the BEST"
InFullSTRYDE with Dr. Mahboubian - Jan 2019
Start Height/End Height: 5'1.25"/5'4.25"
Status: Gained 3" and Recovered Successfully! | Stryde Nails Removed: November 2020
Diary: http://www.limblengtheningforum.com/index.php?topic=9671
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