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Author Topic: How are CLL Alumni doing?  (Read 1437 times)

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InFullStryde

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How are CLL Alumni doing?
« on: July 23, 2019, 03:10:31 AM »

It would be wondering to know how former CLL patients are doing now that they are 9 months, 12 months+ post operation.
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"Make the BEST of what you have and Make what you have, the BEST"
InFullSTRYDE with Dr. Mahboubian - Jan 2019
Start Height/End Height: 5'1.25"/5'4.25"
Status: Gained 3" and Recovered Successfully! | Stryde Nails Removed: November 2020
Diary: http://www.limblengtheningforum.com/index.php?topic=9671

Activatedx

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Re: How are CLL Alumni doing?
« Reply #1 on: July 23, 2019, 08:00:37 AM »

It would be wondering to know how former CLL patients are doing now that they are 9 months, 12 months+ post operation.


This forum is kind of dead tbh
It seems like veterans Barely stick  around
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Heightseeker1998

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Re: How are CLL Alumni doing?
« Reply #2 on: July 23, 2019, 03:31:37 PM »


This forum is kind of dead tbh
It seems like veterans Barely stick  around
Or they just want to move on.
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jayes

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Re: How are CLL Alumni doing?
« Reply #3 on: July 24, 2019, 01:16:58 AM »

I tried asking the same question a couple of weeks ago with predictable results. The thread is not far below.  Maybe the mods can make this thread a sticky so that the veterans can see it whenever they check in?
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InFullStryde

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Re: How are CLL Alumni doing?
« Reply #4 on: July 24, 2019, 01:20:06 AM »

I tried asking the same question a couple of weeks ago with predictable results. The thread is not far below.  Maybe the mods can make this thread a sticky so that the veterans can see it whenever they check in?

Good idea.
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"Make the BEST of what you have and Make what you have, the BEST"
InFullSTRYDE with Dr. Mahboubian - Jan 2019
Start Height/End Height: 5'1.25"/5'4.25"
Status: Gained 3" and Recovered Successfully! | Stryde Nails Removed: November 2020
Diary: http://www.limblengtheningforum.com/index.php?topic=9671

TinyTL

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Re: How are CLL Alumni doing?
« Reply #5 on: August 14, 2019, 01:52:35 PM »

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Heightmare

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Re: How are CLL Alumni doing?
« Reply #6 on: August 14, 2019, 01:56:44 PM »

i for one cannot understand why veterans wont stick around for longer when you have such entertainment here. whats not love about
celebrating 10 months in external frame doing LL in azerbadjan
midget-on-stilts dancing in circles post-op
or
60 year old LL veterans leading the LL revolution by example...
I honestly don't see what's the issue with IFS he looks fine to me.
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wavemaker5

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Re: How are CLL Alumni doing?
« Reply #7 on: August 17, 2019, 01:24:50 AM »

I honestly don't see what's the issue with IFS he looks fine to me.

He looks absolutely comical tbh
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Heightmare

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Re: How are CLL Alumni doing?
« Reply #8 on: August 17, 2019, 01:44:41 AM »

He looks absolutely comical tbh
I'm not seeing it mate.
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fodawupa

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tinytl / bladerunner / ned_flanders / tlanister
« Reply #9 on: August 17, 2019, 05:45:17 AM »

tinytl / bladerunner / ned_flanders / tlannister

its one person

i hope people see his posting history. he seems quite depressed and is unable to control his emotions. his out look of the world changes everyday.

i am actually worried for him. hope he is actually satisfied with LL and can get back to normal life and not think about more surgeries or treatments (for ex hair and etc) ..
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Heightmare

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Re: How are CLL Alumni doing?
« Reply #10 on: September 24, 2019, 06:22:22 PM »

____
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Medium Drink Of Water

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Re: How are CLL Alumni doing?
« Reply #11 on: October 11, 2019, 06:36:05 AM »

Doing okay, just a few minor issues.

Background: I was naturally duck-footed before the surgery.  I told the doctors in Beijing not to fix it, but due to poor understanding or just forgetting to make note of the request, it ended up getting fixed anyway.  When I got back to America I had my gait analyzed by an orthopedic surgeon who said I was flat footed now.  I'm not sure if the flat footedness had anything to do with the duck foot correction or not.  I don't know anything about the relationship between LL and flat feet in the absence of duck footendess.

In the last couple of years, I noticed not having enough room for my pinky toes in my shoes. Even wide toed shoes a size too big didn't give me enough room for the pinky toes, but there was lots and lots of room for the big toes.  That told me something weird was going on rather than just my feet spreading out.  I hypothesized that this might be a flat foot issue, so I looked up treatments for it and saw something about flat feet causing the ankles to roll inward, and that wearing high top shoes tied tightly around the ankles might provide some relief.

Bingo!  Things got a lot better after wearing those for a while.  Eventually they even caused me to form a habit, so now I can walk the same way in low tops as long as I periodically remind myself not to go back to the old flat footed, inward rolling way.

I speculate that elongated tibias can cause bad walking habits to develop, and that a little added support/reinforcement around the ankles is beneficial.
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IwannaBeTaller

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Re: How are CLL Alumni doing?
« Reply #12 on: October 13, 2019, 11:18:09 PM »

Hey MDOW, glad to see you back and I hope you're doing fine.

May I ask how your stair walking is going these days, all that long time after LL? Walking up and down? Any difficulties, any people noticing that someting is just a little off? Could you rush down stairs if you had to, in an emergency (in way comparable to an average person your age)?

Thanks  :)
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It's a long way to find peace of mind, peace of mind
It's a long way to find peace of mind, peace of mind.

Medium Drink Of Water

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Re: How are CLL Alumni doing?
« Reply #13 on: October 14, 2019, 02:38:49 AM »

I used to really, really be able to rush down stairs with my short legs and low center of gravity, so that might make a difference to my self-perception of my speed going up and down stairs.  But yeah, it is still the most noticeable thing about doing LL after all these years.  I can definitely get down stairs in an emergency at an acceptable speed, so I don't think I'm in danger just by being upstairs.

I think mentality is an important component of it.  If I put 100% of my concentration and physical ability into just the stairs, I think the problem would be minimized.  It's actually more noticeable in daily life (when it doesn't really matter that much), especially when carrying something, either on my back or in my hands or arms.  Speed really suffers then.
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IwannaBeTaller

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Re: How are CLL Alumni doing?
« Reply #14 on: October 14, 2019, 10:20:23 AM »

Thanks for the answer! You were always a straight-up guy when it comes to giving honest disclosure about LL. I wonder if shorter people with shorter legs have an innate advantage when it comess to tasks that need agility, like quickly walking stairs, because of the low gravity you mentioned.
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It's a long way to find peace of mind, peace of mind
It's a long way to find peace of mind, peace of mind.

angryfem

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Re: How are CLL Alumni doing?
« Reply #15 on: October 15, 2019, 09:10:54 PM »

I am worried about notatroll and others. Long time no see
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