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Author Topic: Limb Lengthening Interviews - Doctors, Specialists etc.  (Read 3479 times)

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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #31 on: July 17, 2020, 03:29:42 PM »

Hi everyone,

I was finally able to link up that interview with limb lengthening great Dr. Donghoon Lee. He is very skilled an it was an interesting interview to get his perspective on a variety of topics as listed below in the Time-Stamps.

Interview with Dr. Donghoon Lee of DALRI


TIME-STAMPS:

1:45 – Dr. Lee’s passion for Limb Lengthening & Deformity Reconstruction

4:00 – Recommended safe length in order to regain pre-surgery function

6:00 – Proportions - lengthening one segment (femurs or tibiae) vs. both

7:50 – Timeframe between first & second LL surgery for maximum length

9:45 – Cosmetic arm lengthening for ideal proportions

10:50 – Lengthening devices offered for Femurs (Precice/Stryde) & Tibiae (Precice, LON, LATN)

13:10 – Pros & Cons of each lengthening device for simultaneous deformity correction and lengthening

16:20 – Patient Pain management: short-term during lengthening and long-term down the line

18:50 – Lengthening for older patients especially if they have arthritis in hip or knee joints

20:45 – Patients he doesn’t recommend limb lengthening surgery for

22:40 – His 0% major complication rate and advice on selecting an EXPERIENCED surgeon!

27:15 – Dr. Lee’s Frustration! - Treating complications from other surgeons lengthening clinics

29:15 – Indications future limb lengthening patients should be aware of after the procedure

31:05 – Dr. Lee uses BMAC to assist with healing in tibial lengthening

32:05 – His thoughts on HGH on bone healing after surgery

33:30 – Mentally preparing a patient for limb lengthening surgery & patients backing out last minute

35:30 – Athletic recovery post LL surgery on function and what a prospective patient should expect

38:10 – DALRI recommendations for International patients

39:15 – Best way to reach out and contact Dr. Lee for consultation

39:37 – Final words of advice to interested patients considering the limb lengthening surgery

Have a great weekend!
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kats20

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #32 on: July 17, 2020, 06:00:26 PM »

I think I speak for everyone here when I say !!!!!!!!!!!!!WELL DONE CYBORG!!!!!!!!!!!!!
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kats20

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #33 on: July 17, 2020, 06:28:40 PM »

did dr lee say that people recovered to about 70% in vigorous sports ?
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ghkid2019

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #34 on: July 17, 2020, 06:46:18 PM »

What a surprise. You actually got Dr. Lee on. Good job cyborg

He injects BMAC to all his tibia patients. That's really cool, never heard about this.

Also- what doctors did he mention at the very end? He said Paley, Rozbruch, then someone from Germany, and then Turkey.

Who did he say? From Germany and Turkey
« Last Edit: July 17, 2020, 07:28:23 PM by ghkid2019 »
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InFullStryde

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #35 on: July 17, 2020, 07:28:35 PM »

Wow, all the CLL legends getting interviewed by Cyborg. Great job, man. 

Dr. Lee is straight up and he even threw a couple of more CLL surgeon names into the hat!  He's right about recoverability, by the way.  Paraphrased, you should aim for 100% recovery but be ready to fall within the 70%-90% range.  Prepare for that.  Having gone through this surgery myself, returning to "just walking and jogging" comfortably within 6 to 9 months is easily attainable.  To approach and regain your old athletic self; well that can take 2 or more years. 

Good luck guys and I hope these great videos keep coming!

All the best,

IFS
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limewalk

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #36 on: July 17, 2020, 07:54:45 PM »

What a surprise. You actually got Dr. Lee on. Good job cyborg

He injects BMAC to all his tibia patients. That's really cool, never heard about this.

Also- what doctors did he mention at the very end? He said Paley, Rozbruch, then someone from Germany, and then Turkey.

Who did he say? From Germany and Turkey

Peter Thaller from Germany.

Hi Cybrog4life did you get a response from Dr. parihar or his assistant surgeon?
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a

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #37 on: July 17, 2020, 09:17:00 PM »

Cyborg,

I hope you do not misunderstand the question I am willing to ask.
First of all, I have to admit that I literally watched all your videos and I find you pretty charming, a lovely and energetic human being and I'm so glad that you are doing okay, keeping yourself fit etc.

But the question is, why do you always comment on videos about LL on youtube, and also spend time for the interviews etc.
Are you doing this because you want to help people or are there another resaons? Like maybe you love science and this topic interests you or something.

What I mean is, you've already done this surgery 8 years ago, like why do you even care now; watching new videos about LL and commenting etc. If I were you, I'd completely forget about the LL and never ever use the forums nor the youtube resources.

Best Regards
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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #38 on: July 18, 2020, 05:38:12 AM »

@ghkid2019 yeah it was Peter Thaller from Munich Germany but the other one I will have to ask to find out it was hard to make out.

@IFS I agree. Training like you want to regain 100% will get you much closer to it than not trying at all. One thing you may or may not be fully noticing by now is the new muscle tissue formed allows you to actually become stronger once it matures within 3-4 years. I noticed More muscle = more strength potential = more power and performance. Obviously takes time to adapt and get used to depending on leg length etc. which is something to look forward to also!

@limewalk unfortunately no. I've tried both Dr. Divvya and Dr. Parishard but no reply. I will occasionally followup though. I have gotten in contact with my Dr. Janet Conway who I plan to interview soon enough. She did great for me and even Dr. Paley gave her props after I went off air on my interview

@A fair question. So the main reason I started it was to answer questions in bulk that I'd get asked (and still do) on a daily basis.  Also, I just wanted to create a resource I wish I had when I was researching the procedure 8 years ago. I bootstrapped some info that was on the web but had to make a decision within 3 weeks before starting grad school the following year. I also try to focus presenting the information in a way the general population can understand it so maybe it would be a tad bit more understood idk.

Also, I always liked orthopedics (as I was considering becoming one) and when I consider I had been in and out of the hospital for 3 broken legs among other injuries, I guess this is my way to be involved a part of the field I like without fully committing to being a full-on surgeon. The people's spokesperson if you will.

It would've been easy to just not look back but that was before I got drawn in. Now it's a fun hobby where if I get asked a question enough I'll jot down some ideas and decide to shoot a video after work and upload it. I blame the answering of every comment on Gary Vaynerchuk and his talks on giving value to build brand and so here we are...#cyborgs




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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #39 on: July 18, 2020, 09:55:40 AM »

You are a lovely human being, wish the best for you.
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cyborg4life

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Interview with Dr. Janet Conway...My Limb Lengthening Surgeon
« Reply #40 on: August 18, 2020, 06:52:50 PM »

Hey everyone,

I just wrapped up posting my Interview from today with Dr. Janet Conway at the International Center for Limb Lengthening at Sinai Hospital in Baltimore, MD.

I enjoyed the interview and great to reminisce with her (even if I forgot to turn my darn microphone on - crappy PC audio for me - her's was fine)

Here are some Time-Stamps for the interview:

TIME-STAMPS:

1:50 – Dr. Conway’s interest in field of Limb Lengthening

5:00 – How to determine how much length to gain safely

9:05 – Cool thing about the internal lengthening nail (PRECICE & STRYDE)

10:50 – Determining distraction rate & the fine line of lengthening

13:30 – Picking your limb lengthening surgeon wisely (experience is KEY!)

16:00 – Signs & Symptoms to look for during lengthening

18:05 – Time it takes to go from “Surgery” to “Walking w/out Assistance”

20:15 – Regaining a normal walking gait

23:20 – Physical Therapy Recommendations for the traveling or international patient during lengthening

26:20 – Importance of Flexibility BEFORE Surgery

27:25 – Pain management & preparation

31:05 – Should elite athletes even get stature lengthening in the first place?

33:35 – Benefits of having a world-class team of LL surgeons at ICLL Sinai Hospital – Baltimore, MD

37:30 – Best way to reach out and contact Dr. Conway for a consultation
 
38:45 – Final words to all prospective LL patients

Hope you're having a great week!
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Had near 2" leg discrepancy fixed via PRECICE nail
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cyborg4life

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Dr. Paley's Director of Physical Therapy Interview
« Reply #41 on: August 30, 2020, 11:48:28 AM »

Hey everyone here's a really informative Interview with the Dr. Paley's Director of Rehab - Dr. Fran Guardo (DPT).

She went on for nearly 2 hours pounding topics that talk about a variety of important details that you should know regarding LL. 

If you would like to see a particular topic, see the timestamps below…

1:30 – Dr. Guardo’s transition from traditional Physical Therapy to LL Rehab

3:55 – Why Physical Therapy is so important for Limb Lengthening Patients

13:00 – When PT actually starts after LL surgery

15:45 – Lengthening device differences & how it impacts PT

22:50 – STRYDE vs PRECICE internal lengthening nails

25:00 – Walking after surgery via Stryde Nail

26:05 – Benefit of weight bearing w/ Stryde Nail

27:45 – Discomfort levels of PT when planning to max out at the 8cm of
the nail

30:00 – Importance of Progression during PT sessions

33:40 – Waring Dorsiflexion bracing and @ home exercises

35:15 – Stature Lengthening Patients and Athletics/Fitness

37:00 – Good news for athletes! Patience w/ Caution will be best to get back

38:20 – The CAN and CANNOT DO’s after LL surgery

41:20 – Doing upper body exercises at the gym during lengthening

42:40 – Discharging a patient from PT with new rules

49:30 – Benefits of having good flexibility before surgery

53:30 – Supplement & Nutritino advice for PT

57:00 – When a patient regains normal walking gait depending on condition (CFD vs. LLD vs. CLL)

1:01:00 – When stature lengthening patients typically regain a normal walking gait

1:03:20 – Some videos from the Paley Institute PT department

1:10:00– Dr. Guardo stumps Victor with some trivia!

1:26:50 – Why ASTYM is such a gamechanger for Lengthening patients

1:31:30 – The structure of the Paley Rehab Dept.

1:35:00 – Rigid PT training reason for Track record of success

1:36:30 – Annual Conference for Training PT’s on Limb Lengthening and Treatments

1:40:00 – PT team is in close communication with Medical Team

1:43:20 – How to contact Dr. Guardo’s Rehab Department

1:44:40 – Final words of advice to prospective patients

-Have a good one!  8)
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Had near 2" leg discrepancy fixed via PRECICE nail
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wannabeidol

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #42 on: August 30, 2020, 06:39:17 PM »

awesome!
keep up the good work big vic!
words cannot describe how grateful we are!
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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #43 on: September 30, 2020, 11:59:21 PM »

Wasup everyone, so I just posted a new interview with Dr. Michael Assayag of International Center for Limb Lengthening. He's pretty active here in the forum (at least more than me lately  ;D. I really enjoyed it, very informative and he uniquely and analytically addressed all the questions from multiple angles.

Check it out here: Interview with Cosmetic Limb Lengthening surgeon Dr. Michael Assayag
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Had near 2" leg discrepancy fixed via PRECICE nail
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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #44 on: October 01, 2020, 12:05:22 AM »

Oh yeah here are his timestamps if you want to know about the topics...we went deep!

Time-Stamps for Interview with Dr. Assayag

THEME: “Slow & Steady Wins the Race…Happy Lengthening!”
– Dr. Assayag

2:25 – Dr. Assayag’s interest in orthopedics

6:00 – Dr. Assayag’s transition into Limb Lengthening (LL)

8:00 – The role of psychological stability for a person desiring cosmetic limb lengthening (CLL)

9:30 – Height Dysphoria is real and exists on a spectrum

13:30 – LL for patients who are taller than the average height

17:00 – Internal Lengthening Nails vs. External Fixators (physical & mental differences)

20:20 – New advancements in LL device technology

21:20 – Balancing patient’s height goals with safety

23:30 – Questions to consider when aiming for height goals

25:45 – Splitting max length amongst the two legs

27:30 – Warning & advice about quadrilateral lengthening in a single surgery

31:10 – Impact of CLL on Proportions

34:30 – Thoughts on Arm Lengthening

37:10 – Advice on Scars from LL surgery

41:20 – Fixing a deformity while lengthening simultaneously

45:00 – Risk of Complications (non-unions)

48:00 – Risk of Complications (muscle contractures)

51:25 – Benefit of working closely with physical therapy team

53:50 – Timeframe from surgery to walking without being noticeable

56:40 – Importance of physical therapy dedication

1:01:00 – Fine balance between rehab and not overdoing it while keeping goal in mind

1:01:45 – Pain management regiment – “Pain is inevitable…suffering is optional”

1:07:10 – Current cost of Femoral Stryde Nail Stature Lengthening

1:10:45 – Cost of Tibial LON (lengthening over nail) via ERF (external ring fixator)

1:12:40 – Medical Assistance Loans

1:14:00 – Device Removal Phase Requirements (why remove)

1:17:45 – Long Term Problems due to internal nail lengthening (Osteoarthritis of knee)

1:19:40 – Long Term Problems potential (hip pain from internal nail femurs)

1:20:45 – Dr. Assayag’s experience at ICLL as part of elite A-Team of LL surgeons

1:24:25 – Why a patient should feel confident about getting LL done at ICLL – Sinai

1:27:45 – Benefit of a hands-on approach during LL at Sinai

1:32:00 – Dr. Assayag’s words of warning of “sleazy marketing” from LL clinics/surgeons.

1:32:45 – Dr. Assayag’s role as co-director of Baltimore Limb Deformity Course

1:35:50 – How to contact and consult with Dr. Assayag

1:40:40 – Final Words of Advice to prospective cosmetic LL patients


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small

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #45 on: October 01, 2020, 01:18:40 AM »

Sweet, thanks for sharing man! Love your videos
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brondo

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #46 on: October 01, 2020, 01:37:20 AM »

Thanks a lot for this interview and everything that you do for this community Victor!
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BelowTheMean

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #47 on: October 01, 2020, 05:40:31 AM »

Thanks for doing all the interviews! I need to catch up on the last two.
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cyborg4life

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Interview with Dr. Marie Gdalevitch - Montreal, Canada
« Reply #48 on: November 17, 2020, 04:04:02 PM »

Thanks small, brondo and BelowTheMean I like doing the interviews to get their perspectives.

Here's a new one with the only LL surgeon in Canada: Interview with Dr. Marie Gdalevitch - Montreal, Canada.

There was quite a bit of reference to quadrilateral lengthening for those interested.
(here's the link in case I fail at the hyperlink above lol - )


Podcast Audio Version here: https://anchor.fm/leglengthening%20/episodes/Leg-Lengthening-Podcast-Episode-16-Interview-with-Dr--Gdalevitch-emj589

Time-Stamps for Interview with Dr. Gdalevitch:

1:45 – Dr. Gdalevitch’s interest in Limb Lengthening

3:10 – Determining how much length a patient can get

5:45 – Quadrilateral leg lengthening timeline + proportion & arm lengthening

6:30 – Proportion of quadrilateral lengthening

7:10 – Pre-Surgery Prep

7:45 – Muscle Releases

7:55 – Time between surgeries for Quadrilateral Lengthening

8:20 – Device Removal for Quadrilateral Lengthening

8:50 – Canadian citizen patients’ nail removal is covered

9:40 – Average # of LL procedures she’s done since starting her practice

11:00 – Advantages of LL technology (Internal nails vs. External frames)

13:30 – Complication Prevention

14:30 – No Cosmetic LL Complications to date

14:45 – Psych evaluation for gathering more patient information

15:50 – Physiotherapy options

16:35 – Prophylactic measures taken to prevent embolisms and other
internal problems

17:30 – Stopping Lengthening and Botox can be used to prevent problems

18:00 – Staying local for Physiotherapy

18:50 – Preparing Financial Funds for Complications

20:10 – Weightbearing for bone-healing improvements

21:35 – Stem Cells for healing

22:50 – Pain Management (Age, Surgery timeline, Lengthening timeline)

24:45 – Pain Prescription Protocol

26:45 – Body Proportion Analysis Assessment & Arm Lengthening

27:40 – Arm lengthening

28:20 – Rehab and Recovery for semi-distant patients

30:30 – Resuming lifting and athletics post-LL…conservative is key

33:10 – How to reach out and contact Dr. Gdalevitch

34:10 – Final words to prospective LL patients
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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #49 on: December 20, 2020, 01:23:18 PM »

Just posted an interview with the highly requested [url = https://youtu.be/8VsBkCMhnIw]interview with Dr. Mangal Parihar - Mumbai, India.[/url] Big shoutout to the main man KiloKAHN for helping with the question drafting. Happy Holidays if you celebrate them

YouTube Video

Podcast Audio Version

Time-Stamps for Interview with Dr. Parihar:

2:10 – How Dr. Parihar became interested in limb lengthening & deformity reconstruction

4:00 – Importance of surgeon experience in deformity correction prior to cosmetic lengthening

6:00 – What type of lengthening patients does he take on

7:50 – Does Dr. Parihar do psychological evaluations pre-surgery

9:55 – Why he believes a strong doctor-patient relationship and rapport is important for best outcome

13:00 – Does he doe surgery on both legs himself

14:00 – How much length for tibias

14:45 – How much length for femurs

15:30 – STRYDE nail availability

17:20 – How far out should you consult with Dr. Parihar to plan for surgery

18:20 – What lengthening devices/methods does he offer

20:30 – External Fixator vs. Internal Nail

21:50 – Preventative measures - (IT band release, gastro-soleus recession)

23:10 – Weight bearing protocol post-op

25:40 – How long to wait for lengthening femurs vs. tibias

27:10 – How often to do physiotherapy

28:45 – Pain management protocol

31:00 – Surgery plan for patients with large leg length discrepancies

33:00 – No major complications with cosmetic patients to date

36:25 – Why patients should stay in Mumbai for distraction phase

38:35 – Long travel is risk for embolisms

39:10 – Thoughts on Proportion

41:10 – Cost of the procedure

43:00 – Physiotherapy Protocol

44:40 – How soon to be able walk normally

46:55 – Recommendations on patient helper

51:45 – Long term effects

53:00 – Getting back to high level athletics

54:00 – Best way to reach out & contact Dr. Parihar and his team

55:30 – Final words
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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #50 on: January 10, 2021, 01:36:38 PM »

Here's a interview with Dr. Javier Downey Carmona from the Downey Institute in Seville, Spain. He trained with Dr. Paley & Herzenberg at ICLL. He deals with pediatric deformities but also offers cosmetic stature lengthening after Dr. Paley standardized his adult lengthening program from ground up.

And yes he mentions price (around 20min mark) for those of you who will ask lol

YouTube version

Podcast audio version


Have a good one!

2:10 – Interest in orthopedics

3:20 – Explaining what clubfoot deformity is

5:00 – Treating clubfoot deformity with the Ponseti Method

7:30 – Limb lengthening for kids and their parents

9:15 – Precice plate anticipation

10:10 – Kids who need deformity correction + limb lengthening

11:20 – Stature lengthening for those with Dwarfism (ex: Achondroplasia)

13:00 – Arm lengthening for those with Dwarfism

13:20 – Stature lengthening for Adults

15:10 – ERC malfunction solutions for lengthening patients in Spain

16:15 – Physiotherapy regimen for post-LL

17:45 – Determining patient length while minding safety

19:25 – Preventative measures taken against embolism

20:00 – Cost of Stature Lengthening Procedure

21:30 – Price at the Instituto Downey

22:30 – Housing for lengthening patients

23:15 – Do patients have to stay at center during lengthening

25:00 – Final words
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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #51 on: January 11, 2021, 12:36:54 AM »

Amazing stuff, big fan of your channel and all that you do, Victor! You're such an asset to this community.
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smalltaller

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #52 on: January 11, 2021, 05:15:51 PM »

Can you try to do an Interview with Dr. Köhne from Munich? :)
I love your interviews! I feel like I‘m learning something new every time I watch your videos.
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cyborg4life

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Re: Limb Lengthening Interviews - Doctors, Specialists etc.
« Reply #53 on: January 14, 2021, 01:28:21 PM »

Thanks Frogger and smalltaller just aiming to get the word out there more and I've heard good things about Dr. Kohne. I'll look into it thanks.

___

I know this thread is mainly for LL surgeons etc. but I thought I'd add this recent interview I did with a cosmetic quadrilateral limb lengthening patient who went from 170cm to 182cm for those who might be interested.

You can check it out here: Interview with Quad-CLL Patient

Timestamps for easy reference:

1:20 – Just finished lengthening phase in Dec. 2020

1:50 – when he first heard of LL

2:50 – Why he did it this year during the COVID-19 pandemic

3:35 – Thoughts going into final decision

4:50 – Emotions leading up to it

6:00 – Which bone he got done first

8:00 – How tall was he prior to LL and how tall is he now

9:00 – Setting history as first Precice 2 internal nail quadrilateral patient

10:55 – Physical activities prior to LL

12:30 – Worries about Athleticism

13:45 – Pain after femur surgery

15:15 – Pain after tibia surgery

16:20 – Pain during lengthening

18:00 – Pain during Physical therapy

19:30 – Sleep during LL

21:10 – Pain now

22:45 – Getting around with the P2 nails

26:00 – Daily routine

27:00 – Thoughts on Proportions

28:50 – Arms to legs proportion

29:20 – PT continued

31:00 – Importance of PT

32:20 – Energy levels during LL vs. now

33:30 – Positive mindset

36:00 – Eating style

38:10 – Support network

41:30 -Final words

44:00 – Ways to reach out to Liam
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Had near 2" leg discrepancy fixed via PRECICE nail
Spreading awareness of Limb Lengthening
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