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Author Topic: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!  (Read 3307 times)

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BelowTheMean

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #31 on: October 19, 2020, 12:50:16 AM »

Oct 16, day 31: I woke up with bad knee pain (left knee). It hurt when I bent it. PT taped my knee to help support it. The pain was gone in the afternoon, but I will still leave the tape on until the skin becomes itchy.

Oct 17, day 32: I can’t believe one month has passed... I finally stopped taking any pain meds today!

Wow no pain meds at all? Or just no prescribed pain meds/opioids?
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Stryde Femurs - Debiparshad - Nov 2020
169cm -> 177cm (goal)
http://www.limblengtheningforum.com/index.php?topic=65617

Current Status: Distraction Phase

SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #32 on: October 20, 2020, 04:16:40 PM »

Wow no pain meds at all? Or just no prescribed pain meds/opioids?

Ya no pain meds at all!
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Stryde2021

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #33 on: October 20, 2020, 04:27:04 PM »

SuchLL can you give us an update on your walking/mobility?
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Chinese Actor

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #34 on: October 20, 2020, 07:09:46 PM »

好的 祝福你
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small

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #35 on: October 20, 2020, 08:41:48 PM »

Hey SuchLL, glad to see your off the meds!

I'm a soon to be SW engineer as well and was wondering if the 3 months you took off work were important or can I continue to wfh while doing LL?
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #36 on: October 22, 2020, 04:49:36 PM »

SuchLL can you give us an update on your walking/mobility?

I walk with a cane. I can also walk without any support but it’s not recommended.
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #37 on: October 22, 2020, 05:27:47 PM »

Hey SuchLL, glad to see your off the meds!

I'm a soon to be SW engineer as well and was wondering if the 3 months you took off work were important or can I continue to wfh while doing LL?

I see several people wfh after 3 weeks so I’m sure you can do it, but I think it’s best to just take 3 months off if you can. Working will make the whole process harder.
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #38 on: November 09, 2020, 11:43:24 PM »

Oct 21, day 36: I started to feel a little numbness in some areas of my left lower leg. Numbness is one of the symptoms of nerve damage... I probably need to ask for meds for it.

Oct 23, day 38: I had my second x-ray today. Everything looked great. I mentioned the numbness to the doctor. Today I also started to feel pins and needles in my left lower leg when I kept left leg straight. The doctor sent me gabapentin and suggested slow down the lengthening. He said I could keep 1 mm a day, but he had one patient who still had numbness in his lower leg two years after lengthening. Since I’m only at 3.1 cm, I don’t want to slow down to make the whole process longer. I’ll keep 1 mm a day and consider slowing down if the nerve pain gets worse.

Nov 6, day 52: The nerve pain didn’t get worse or better in the last two weeks. I’m not sure if gabapentin works for me, but I didn’t slow down since the nerve pain didn’t get worse and it’s tolerable. Today I had my third x-ray and it looked great. During the appointment I mentioned that I can’t keep my back straight when my legs stay close. The doctor said it’s called duckass... I had duckass since the first day after the surgery. I didn’t know it’s called duckass. I’m not sure if my duckass is getting worse during lengthening but it’s not getting better. I asked the doctor what caused the duckass and he said it’s because my TFL is tight... The funny thing is... I mentioned the duckass problem to my PTs several times during the lengthening process and none of them gave me the correct answer. Some said my hamstrings were tight, some said my IT bands were tight, and some just couldn’t explain it after seeing me so flexible. I can still do 90+ degree hamstring stretch that some PTs can’t even do. My IT bands were not bad either since I couldn’t feel good stretch on my IT band. Today it’s my first time hearing TFL... I know it’s probably weird to see people who are flexible everywhere except TFL, but I’m still disappointed by the Paley PT team. I had appointments with at least 7-8 different PTs from his team, and none of them found that my TFL was tight even after I told them about my duckass... The doctor suggested slow down lengthening at the end of the appointment again. He thinks I won’t hit 8cm based on what he saw today (nerve pain and really tight TFL). I was angry but too tired to say anything. I paid for PT, I had duckass since the first day after the surgery, I let several PTs know about my duckass, and none of them found my tight TFL. My very flexible hamstrings, quads, hip flexors were kept getting stretched, and my really tight TFL was never stretched. Then I was told that I wouldn’t hit 8 cm.

Nov 9, day 55: I felt my duckass was already improved by 50% after stretching my TFL just for 3 days!! My butt and TFL feel tight when I fight duckass, but I’m able to keep my back much more straight! I feel my TFL was probably “dead” and it’s activated now. Besides TFL everything else is still super flexible. The nerve pain is almost gone too. I still have numbness but the area is getting smaller. I will finally hit 5 cm tomorrow wow
« Last Edit: November 10, 2020, 01:51:28 AM by SuchLL »
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init1alove

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #39 on: November 10, 2020, 03:03:36 AM »

Glad to hear that you are feeling better after stretching TFL. I just googled about TFL. I did not know TFL before reading your post. Thanks for sharing this with us.

If I understand correctly, TFL is the muscle connect to IT band and pelvis. Paley will do IT band release for all femur patients. But its is wired that none of PTs stretch muscles in this area for you.
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BelowTheMean

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #40 on: November 10, 2020, 04:59:10 AM »

I just Googled how to stretch the TFL muscle as well. After watching a Youtube video on it, I still don't know how. I guess I'll have to ask my PT once the time comes. Thanks for informing us of this issue, learned something new today!
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Stryde Femurs - Debiparshad - Nov 2020
169cm -> 177cm (goal)
http://www.limblengtheningforum.com/index.php?topic=65617

Current Status: Distraction Phase

SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #41 on: November 10, 2020, 05:37:06 AM »

I just Googled how to stretch the TFL muscle as well. After watching a Youtube video on it, I still don't know how. I guess I'll have to ask my PT once the time comes. Thanks for informing us of this issue, learned something new today!

Many of the videos are not doable when you have broken legs.
Here’s the easiest one I found (It’s easier than what I learned from my PTs):
https://m.
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missyoulikecrazy

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #42 on: November 18, 2020, 02:01:54 AM »

Hey how are you doing? :0
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DreamerLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #43 on: November 20, 2020, 05:56:44 AM »

Please update
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #44 on: November 20, 2020, 06:00:08 PM »

Nov 20, day 66: I hit 6 cm today! I just had fourth x-ray and it looked excellent. Last time I mentioned that my duckass improved a lot after stretching TFL for just 3 days. I’m still doing the stretches and my duckass is slowly improving. Now I walk better (legs closer) than 2 weeks ago. I’m taking hot bath with epsom salt before each round of stretches and lengthening to help relax my muscle (I started to do it a month ago but forgot to mentioned it... It’s recommended by one of my PT). I’m still flexible besides my TFL. Actually my right hamstring is becoming even more flexible.... but my quads are getting a little tighter. It’s probably because I only stretch quads 2 times a day, but hamstrings 4 times a day. Overall I’m feeling great. I sleep well at night. Playing switch games, watching TV shows with my mom everyday. I want to get PS5 but it’s out of stock everywhere...
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DreamerLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #45 on: November 21, 2020, 01:24:42 AM »

Do you have any pain or numbness? So you took baths 4 times a day?
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #46 on: November 21, 2020, 01:39:12 AM »

Do you have any pain or numbness? So you took baths 4 times a day?

I don’t have any pain but I still have numbness on my left lower leg.
I don’t take bath before PT session so 3 baths a day. My PT is usually in the morning and I feel too lazy to take bath lol
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angry

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #47 on: November 21, 2020, 08:09:37 AM »

hi SuchLL

6cm is a real achievement! that's actually my final goal :P I hope you are able to reach your full goal after spending all this time and money.

do you see many cosmetic patients at Paley Institute doing this completely alone without any family members? how many of them do you see on average?

overall do you think you could have done this all alone?

do you find paley and team to be helpful above and beyond the call of duty? I know absolutely no one in Florida. I would rely completely on their team for any health matter.

I am similar to you, a software engineer living in the bay area and not from US. We have full wfh now dude to covid.

I have also sent you a pm about something else, please check.
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #48 on: November 21, 2020, 12:24:55 PM »

hi SuchLL

6cm is a real achievement! that's actually my final goal :P I hope you are able to reach your full goal after spending all this time and money.

do you see many cosmetic patients at Paley Institute doing this completely alone without any family members? how many of them do you see on average?

overall do you think you could have done this all alone?

do you find paley and team to be helpful above and beyond the call of duty? I know absolutely no one in Florida. I would rely completely on their team for any health matter.

I am similar to you, a software engineer living in the bay area and not from US. We have full wfh now dude to covid.

I have also sent you a pm about something else, please check.


Almost all Chinese I’ve seen here did this alone. They just hired caregiver for a short period of time when they can’t move well after the surgery.

The Paley team responds fast to their patients’ concerns and issues, but I would stay at one of their recommended hotels during the entire lengthening process if I do it alone. They have free shuttles taking you to the Paley institute, which is super convenient when you’re by yourself. You can just come to the institute when you have any concerns
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angry

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #49 on: November 21, 2020, 02:49:56 PM »


Almost all Chinese I’ve seen here did this alone. They just hired caregiver for a short period of time when they can’t move well after the surgery.

The Paley team responds fast to their patients’ concerns and issues, but I would stay at one of their recommended hotels during the entire lengthening process if I do it alone. They have free shuttles taking you to the Paley institute, which is super convenient when you’re by yourself. You can just come to the institute when you have any concerns

so in general, they are not the "we got your money, now we don't care much about you" type right?

Angelique seems to be nice over email and phone. I believe she will be my go to person for any difficulties I face?

another thing, do you feel like Paley or Robbins give you enough time during consultations?
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #50 on: November 21, 2020, 03:58:02 PM »

so in general, they are not the "we got your money, now we don't care much about you" type right?

Angelique seems to be nice over email and phone. I believe she will be my go to person for any difficulties I face?

another thing, do you feel like Paley or Robbins give you enough time during consultations?


They are very careful and responsible and that’s why they require their LL patients to stay around Paley institute during the entire lengthening process.

Your PTs and front desk at Paley institute will help you with your issues and concerns. For example, if you have knee pain, you can let your PT know during the session. They will help you contact the doctors if they think it’s a problem. Front desk can help you contact the doctors too. My concerns were always addressed on the same day.

I think I have enough time to ask questions during the consultation. Most of my questions were were already answered by Angelique before the consultation
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BelowTheMean

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #51 on: November 21, 2020, 05:52:23 PM »

Congrats on 6cm, SuchLL! Looks like you're almost done with the distraction phase.
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Stryde Femurs - Debiparshad - Nov 2020
169cm -> 177cm (goal)
http://www.limblengtheningforum.com/index.php?topic=65617

Current Status: Distraction Phase

angry

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #52 on: November 21, 2020, 07:09:49 PM »


They are very careful and responsible and that’s why they require their LL patients to stay around Paley institute during the entire lengthening process.

Your PTs and front desk at Paley institute will help you with your issues and concerns. For example, if you have knee pain, you can let your PT know during the session. They will help you contact the doctors if they think it’s a problem. Front desk can help you contact the doctors too. My concerns were always addressed on the same day.

I think I have enough time to ask questions during the consultation. Most of my questions were were already answered by Angelique before the consultation

Nice.

About consultation, I meant during follow up visits, sorry :) like that thing about duck ass don't you think Paley / Robbins could've told you about it the previous week itself?

and is Paley institute equipped to handle other medical needs? Imagine someone like me who'd be alone and wants to suddenly get a covid test for example. No car. no one to drive me anywhere. or I get sick with something and need to fill my prescriptions. can we rely on paley institute for all of these things (I'd understand and expect them to charge for any of these though)
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SuchLL

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Re: Another 8cm femurs (hopefully) with Dr Paley Sep 2020!!
« Reply #53 on: November 21, 2020, 08:32:26 PM »

Nice.

About consultation, I meant during follow up visits, sorry :) like that thing about duck ass don't you think Paley / Robbins could've told you about it the previous week itself?

and is Paley institute equipped to handle other medical needs? Imagine someone like me who'd be alone and wants to suddenly get a covid test for example. No car. no one to drive me anywhere. or I get sick with something and need to fill my prescriptions. can we rely on paley institute for all of these things (I'd understand and expect them to charge for any of these though)


About duckass. I never mentioned it to the doctors during the prev 2 follow ups since I thought PTs were supposed to know what they need to do.

If you have any medical emergency, Paley institute is next to the hospital where you can also get covid test. I don’t think Paley institute can help you get your prescriptions but you can probably ask Angelique? They may be able to help you hire caregivers if you need any help.
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