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Author Topic: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing  (Read 36255 times)

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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #62 on: May 18, 2021, 09:50:22 AM »

By the way I forgot to post my X-rays
Here they are https://imgur.com/gallery/0OAMjDW
These are from the day after surgery I believe. They took them while I was on the hospital bed and placed some square hard thing behind my legs, so that might be why they look really bright
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

PerfectBody

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #63 on: May 18, 2021, 02:15:42 PM »

Nice 🅱️🅰️lls
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LON Femur with Dr Buldu
5cm safely gained; thinking of doing another 5cm
Diary: http://www.limblengtheningforum.com/index.php?topic=66540.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #64 on: May 18, 2021, 07:31:24 PM »

Nice 🅱️🅰️lls

Crap forgot to cover that  ;D
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #65 on: May 18, 2021, 07:31:51 PM »

https://imgur.com/gallery/41bmA8v

Today was a crazy day. got a really nice very adjustable wide wheelchair for 200$ usd and went all around Istanbul to different shops and stuff with my wife wheeling me around. People did stare pretty hard at us, it was a little uncomfortable at first but after a little while I didn’t care anymore and enjoyed the day. Getting in and out of taxis and the bumps on the road, and while being wheeled I probably had 1-4/10 pain throughout that time but it was still and enjoyable day. Bought some cool things However at the end we got dropped off nearby the hotel at a market a few hundred  feet away. It started raining and my wife ran and wheeled me back to hotel, almost slid off the wheelchair at one point from a bump, was terrifying. But we made it back however my bandages got slight moisture on some small parts which is pretty bad, the bandage nurse told me make sure you get no water on it. I cleaned it. Hopefully it doesn’t lead to an infection, I cleaned around it. Looking SO forward to the day I remove them frames, they’re so inconvenient/impractical and heavy.

I still need really baggy uncut sweatpants when going out in public, to cover my frames, people would probably stare way less too. These ripped jeans make me look like a 3 dollar $ 3 X worker.

Still tired of 1-3/10 constant pain and aches, missing home a lot, and have a long and uncertain way to go, but very grateful that my days have some enjoyment. At day 5 I was able to go out in public and shop, with someone wheeling me around. If someone told me this day 2 or 3 of recovery I would have called Bs.


Really hoping in another week I’ll heal more and won’t have as much small discomfort and pain getting in and out taxis, etc. but it’s still not bad now.

Soon I will take my stomach needle medicine, and other medicines, and go sleep. Really miss being able to sleep in different positions so much. I can only sleep on my back, and after 30 minutes my heels sink into the bed and get painful/irritated. Even putting a pillow on them, or behind my knees. Sleeping on my stomach hurts my lower back a lot after a little with these frames.


Edit* my wife helps me get in and out cars, does physical therapy with me, is basically a caretaker
« Last Edit: May 18, 2021, 08:04:05 PM by Activatedxx »
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Bob

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #66 on: May 18, 2021, 09:03:24 PM »

https://imgur.com/gallery/41bmA8v

Today was a crazy day. got a really nice very adjustable wide wheelchair for 200$ usd and went all around Istanbul to different shops and stuff with my wife wheeling me around. People did stare pretty hard at us, it was a little uncomfortable at first but after a little while I didn’t care anymore and enjoyed the day. Getting in and out of taxis and the bumps on the road, and while being wheeled I probably had 1-4/10 pain throughout that time but it was still and enjoyable day. Bought some cool things However at the end we got dropped off nearby the hotel at a market a few hundred  feet away. It started raining and my wife ran and wheeled me back to hotel, almost slid off the wheelchair at one point from a bump, was terrifying. But we made it back however my bandages got slight moisture on some small parts which is pretty bad, the bandage nurse told me make sure you get no water on it. I cleaned it. Hopefully it doesn’t lead to an infection, I cleaned around it. Looking SO forward to the day I remove them frames, they’re so inconvenient/impractical and heavy.

I still need really baggy uncut sweatpants when going out in public, to cover my frames, people would probably stare way less too. These ripped jeans make me look like a 3 dollar $ 3 X worker.

Still tired of 1-3/10 constant pain and aches, missing home a lot, and have a long and uncertain way to go, but very grateful that my days have some enjoyment. At day 5 I was able to go out in public and shop, with someone wheeling me around. If someone told me this day 2 or 3 of recovery I would have called Bs.


Really hoping in another week I’ll heal more and won’t have as much small discomfort and pain getting in and out taxis, etc. but it’s still not bad now.

Soon I will take my stomach needle medicine, and other medicines, and go sleep. Really miss being able to sleep in different positions so much. I can only sleep on my back, and after 30 minutes my heels sink into the bed and get painful/irritated. Even putting a pillow on them, or behind my knees. Sleeping on my stomach hurts my lower back a lot after a little with these frames.


Edit* my wife helps me get in and out cars, does physical therapy with me, is basically a caretaker


i) Did you get all your medicine from the Dr at the hospital, and are the medicines included in your surgery cost?

ii) What does the stomach needle medicine do?

Good luck.
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #67 on: May 19, 2021, 08:56:29 AM »


i) Did you get all your medicine from the Dr at the hospital, and are the medicines included in your surgery cost?

ii) What does the stomach needle medicine do?

Good luck.


Over here someone else can get your prescription, which is pretty crazy coming from America. They just need your paper from the doctor. They picked them up from me after getting discharged, but I had to pay for them, was only like 50 bucks for all, which is great in America one prescription is that price out of pocket
I can’t post on imgur because it deletes them for post violation, but my stomach needle (doesn’t really hurt much to be honest, same pain as arm) is for blood thinning/ anticoagulant, it’s called oksepor I think.
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Bagga

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #68 on: May 19, 2021, 03:56:51 PM »

Really appreciate the support
Today was a long day, the nurse gave me a painful shot in my right thigh near the break, not sure for what. I’ve got about two shots before those in my tricep that weren’t that painful.
About an hour ago they took out my catheter, it was a very bad feeling but not necessarily painful, just a super uncomfortable sensation for 1-2 seconds. After they took it out the doctors assistants changed my bandages and cleaned the wounds with antibacterial which stung a decent amount.
The physical therapist then came and did some exercises, they weren’t bad and were moderately easy to do with just minor pain/discomfort. Then I walked again. This time it was a lot more stiff since I am off pain meds. I stood up for a good two minutes without assistance which felt good, it’s a start. The assistants washed my face and upper body with damp towel. Now I am back in bed again
Is it a must to have Catheter? It is so painful by looking how it was done.
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #69 on: May 19, 2021, 06:33:41 PM »

Is it a must to have Catheter? It is so painful by looking how it was done.


I believe so, I didn’t feel them put it because I was already under anesthesia. Taking it out isn’t painful but feels very bad for 2 seconds
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #70 on: May 19, 2021, 06:46:40 PM »

Update, today the physical therapist came. This session was a bit more intense, only slightly painful and uncomfortable 3.5/10 maybe not bad, but it was tiring. This time I did way more exercises. After that I went out the full day for about 5-6 hours. It made the day go by really fast.

https://imgur.com/gallery/WQnlG6q

I went to palladium avm with my wife, really nice mall. I learned to cover my lap with a jacket so people don’t stare at my legs or fixators, works well, taxi driver actually thought the fixator was a piece/part on my wheelchair, the human eye isn’t perceptive of things it’s not looking for
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #71 on: May 20, 2021, 08:02:24 PM »

Day 7 post op

Today I walked about 30 steps unaided. In the morning I don’t feel much pain and discomfort. Maybe 2.5/10 when walking. I have random slight pains in random areas at random times when doing tasks like going to pee or getting in my wheelchair to go out.

https://imgur.com/gallery/AqPunFz
Walking video

Today is also my first day lengthening. Completed 1MM today. I don’t know how I’m going to get through this for another 2 1/2 months. These frames make me want to pull my hair out sometimes. By sometimes I mean a majority of the time.


I will be updating weekly instead of daily now. I am still sore in different areas, and some areas are slightly painful. My physical therapist said this is due to swelling and stays for about 2 weeks after surgery and after the 2cnd week it is a lot of improvement with no swelling present.

Lengthening video
https://imgur.com/gallery/NVORbH6


Went to palladium avm and emaar avm. Extremely nice shopping mall, was out for 6-7 hours today getting wheeled around. At the end of the day my legs are usually more sore/painful by a moderate amount then the morning. Even if I wasn’t to lengthen or move at all. It just seems that first couple hours you wake up is the sweet spot
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Dark

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #72 on: May 21, 2021, 01:45:13 AM »

Keep up the great work brother, rooting for you!
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #73 on: May 21, 2021, 08:28:53 PM »

Keep up the great work brother, rooting for you!

Thanks my friend
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Bob

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #74 on: May 21, 2021, 09:12:31 PM »

Day 7 post op

Today I walked about 30 steps unaided. In the morning I don’t feel much pain and discomfort. Maybe 2.5/10 when walking. I have random slight pains in random areas at random times when doing tasks like going to pee or getting in my wheelchair to go out.

https://imgur.com/gallery/AqPunFz
Walking video

Today is also my first day lengthening. Completed 1MM today. I don’t know how I’m going to get through this for another 2 1/2 months. These frames make me want to pull my hair out sometimes. By sometimes I mean a majority of the time.


I will be updating weekly instead of daily now. I am still sore in different areas, and some areas are slightly painful. My physical therapist said this is due to swelling and stays for about 2 weeks after surgery and after the 2cnd week it is a lot of improvement with no swelling present.

Lengthening video
https://imgur.com/gallery/NVORbH6


Went to palladium avm and emaar avm. Extremely nice shopping mall, was out for 6-7 hours today getting wheeled around. At the end of the day my legs are usually more sore/painful by a moderate amount then the morning. Even if I wasn’t to lengthen or move at all. It just seems that first couple hours you wake up is the sweet spot

Could you please ask your Doctor next time if he does tibia lengthening 4 cm with circular externals fixator without internal nails?
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moretallpls

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #75 on: May 21, 2021, 09:29:49 PM »

hi man congrats. few questions. so how much es your surgery? how many days in hospita after surgery and how long is lenghthening? i would recomend you stop at 6.5 as other said after is ballerina and duck gets worse. After surgery when you started doing some walking and isnt risk of bending or bone movement as the monorail is strong enough ?? pin infection ?
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #76 on: May 21, 2021, 09:38:18 PM »

Could you please ask your Doctor next time if he does tibia lengthening 4 cm with circular externals fixator without internal nails?

He doesn’t, he only uses monorails and if no nails are used it’s risky due to misalignment
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #77 on: May 21, 2021, 09:40:55 PM »

hi man congrats. few questions. so how much es your surgery? how many days in hospita after surgery and how long is lenghthening? i would recomend you stop at 6.5 as other said after is ballerina and duck gets worse. After surgery when you started doing some walking and isnt risk of bending or bone movement as the monorail is strong enough ?? pin infection ?


Hi, I paid 15k euros. I stayed 4 days in the hospital. I would like to do 8cm if my body allows it but if there is trouble I would settle for less. Doctor said walking is okay, I’m light and they are full weight bearing
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Bagga

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #78 on: May 22, 2021, 12:58:24 AM »

Did you take the livelifetaller package of 20K Euro?
That includes Operation, 90 days hotel stay with Breakfast, PT and XRAYS
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #79 on: May 22, 2021, 02:33:13 AM »

Did you take the livelifetaller package of 20K Euro?
That includes Operation, 90 days hotel stay with Breakfast, PT and XRAYS

No, I didn’t
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

moretallpls

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #80 on: May 22, 2021, 02:05:24 PM »

with monorail how much time for 7cm ? and consolidation you have to keep the monorail or because is less invasive you dont need ?
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #81 on: May 22, 2021, 03:02:19 PM »

with monorail how much time for 7cm ? and consolidation you have to keep the monorail or because is less invasive you dont need ?

Average 60-75 days then you can take off fixator for consolidation.
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

moretallpls

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #82 on: May 22, 2021, 03:25:11 PM »

so you onlyhave the fixator for 60 days until you get the 7cm, then off? and you can move and walk with the fixator while lenghthening? i dont get it but it seems way better than other choices. even price is so fine
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #83 on: May 22, 2021, 04:21:29 PM »

so you onlyhave the fixator for 60 days until you get the 7cm, then off? and you can move and walk with the fixator while lenghthening? i dont get it but it seems way better than other choices. even price is so fine

60-70 days.
Fixator is very uncomfortable, very hard to sleep with, and causes extra pains/discomfort. Especially the first week is very painful and hard. Not easy to have fixator for 2 months, very hard to adjust to especially sleeping
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

moretallpls

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #84 on: May 23, 2021, 03:18:24 PM »

so you been 10 days is still now very painfull ? are you in the hospital ? are they giving you painkillers and fisio ?i dont understand why all say its so painful, is safer tha having only a nail for sustain and has less pins that lizarov
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #85 on: May 23, 2021, 03:47:18 PM »

so you been 10 days is still now very painfull ? are you in the hospital ? are they giving you painkillers and fisio ?i dont understand why all say its so painful, is safer tha having only a nail for sustain and has less pins that lizarov


First 4 very painful, day 4-7 not very painful but painful, but Very painful when sitting on toilet. Day 7-10 not painful except for nerve pain one day had for 12 hours straight shooting pain from top of leg to bottom of foot every 5-10 second


Even when not painful, still very inconvenient and uncomfortable. Hard to sleep, cannot shower only with wet wash towel, very tired of laying on my back all day or sitting up which slightly hurts after a while, cannot get in comfortable position and muscles/knees/feet ache sometimes.

When laying down and sitting fixator always digs into the bed or chair https://imgur.com/gallery/uAiKsBE like this
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #86 on: May 24, 2021, 01:34:31 PM »

Trying to explain how much these fixators hurt/uncomfortable is like trying to explain to a girl what getting punched in the nuts feel like, I’ll do my best but I doubt I’ll be able to get it on the dot.

Day 8: experienced a bad nerve pain prior night that lasted 8-9 hours in my right leg only. Shooting pain, would come and go every 5-10 seconds, sometimes 4/10 pain, sometimes higher 7.5/10 and would make me stutter while talking due to pain. Very relieved when went away, afraid of it coming back. May be due to my first days of lengthening, I was turning the key every 3 1/2 hours, doctor told me should be every 5-6 hours. My mistake.

Update: nerve pain came back for a few hours again. Went away on its own, staying off my feet for the day.
Doctor assistant did my bandages that were on the pins, but left the other stitches open like on my hip. I guess they don’t need it anymore, only the fixator pins going in my femur were rebandaged. My left leg is stiff and is bending a lot less compared to prior day, but feels much better than the right.
Ended up getting really baggy sweatpants to wear that completely cover my frames except the top part bulges in them, will start wearing instead of my cutout jeans. A lot more presentable and completely covers frames

Day 9: woke up with no nerve pain thankfully, but with an extremely annoying slightly painful throbbing/ache near the top part of thigh pin site on my right leg that has been going on all day. Very mentally tiring dealing with 2.5/10 pain all day no stop. Seems like my right leg is having all the pains these last couple days.
Left left still stiff when bending but feels fine.
Did physical therapy today, not hard but tiring and slightly painful. Left top pinsite very itchy, most likely healing

Day 10: right leg top near pinsite is pretty sore and painful when walking or moving around like to sit up. Knees ache. Forgot to take my medicines last night. Fell asleep early. There is a weekend curfew so I have been home since Thursday. Pretty boring, but making the best of it. Ordered Starbucks and sat in the balcony in the sun for an hour, felt nice to just be outside the hotel room. Outside across the street appears to be a fenced homeless camp. Made me feel bad for spending this money in vain to suffer all because I let society define me, but at the same time I’m paying for my happiness/clear conscience. Still couldn’t get it off my mind after staring at people here that are barely eating (5 people gathered around sharing one pot of food) drying there clothes on the fence, sleeping in the cold (it gets really cold at night) and here I am unsatisfied with my life.

Day 11: kind of irrelevant but since my near 3 weeks in turkey I have not seen any obese person and only one fat person. Knees are stiff and slightly painful when I massage them, this is a result of laying down mostly this whole weekend I think. When I am out in my wheelchair in sitting position I feel like this combats some of the discomforts I think my body developed from laying down. At the moment I’m not in pain, however I’m uncomfortable. I use a pillow when sitting down/in a wheelchair so the extra sitting height helps to not let my frames dig in to the seat and cause pain/discomfort

Key note: just because discomfort is not pain it is still a big issue. For example being freezing cold after my anesthesia wasn’t painful but i would have rather been in pain than that. At the moment I would trade my discomfort for some pain. It just seems throughout the day I can never be at rest without something bothering me and it is mentally taxing, especially since I have a long way to go that makes it even harder. Imagine getting bit by an ant, not painful at all really, but getting bit every 10 seconds nonstop and you will want to burn your house down.

Today everything reopened so I am at the mall again, I don’t really care where I go as long as I am out the hotel room. Also it helps my knees a lot, I experience other slight pains being in the wheelchair but at the end of the day it helps my knee aching and pain so much. Laying down all day causes more problems.

I increase my lengthening to 1.25mm from 1MM, Dr. Buldu says if you are younger you body is likely to handle it. Originally I was really against this idea before surgery but at this point if it will not affect my health I am willing to do it to get out of these frames earlier.  At the moment my right thigh top pinsite is hurting considerably when standing up and sitting. These are gonna be a very very very long two months.

I understand so much now why Android ( diary that cross lengthened femur in Russia who had a bad complication)  increased his rate of lengthening to 1.5mm even though it’s very unadvisable. At some points you don’t even care about the money pain etc you just want to say F it and take the frames off, mentally it’s so tempting to increase your lengthening rate to get them off quicker, I will have stick to 1.25 but I understand androids journey so much now
Will update next Monday
« Last Edit: May 24, 2021, 02:40:58 PM by Activatedxx »
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Stretch

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #87 on: May 24, 2021, 01:44:34 PM »

Thank you for posting.
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #88 on: May 24, 2021, 01:57:10 PM »

Thank you for posting.

Thanks for following!
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5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #89 on: May 28, 2021, 12:09:32 PM »

I said I was going to update only weekly, but if my notes are long it may be twice weekly


Day 12: feeling much better, when resting or moving I don’t have much complaints. The top right pinsite has healed from being sore and pretty painful which is great. Knees still slightly stiff/ache from laying down too much. Left leg bending almost like right knee bending, it was very hard to bend a couple days ago but got much better.

Did physical therapy yesterday, sessions getting harder because physical therapist increasing intensity slowly with each session, but still fairly easy.
I am basically independent at this point although slow, but if I didn’t have my wife I could use restroom and wash by myself, answer door for food delivery, get in / out my wheelchair by myself. Still hard to get a good nights rest and about every hour I’ll get 1-3 minutes of nerve pain but besides that I’m okay. Went to emaar avm mall again and it was dreadfully boring, it’s like my 5th time there, but my wife wanted something there she saw last time and forced me to go.

Day 13: small quiet clicking sound when I bend my right knee when walking unassisted, non painful. Thinking it’s the bone clicking everyone talks about, not painful but just sounds cringy, like chewing cartilage. Learning to ignore it. Legs no longer swollen. Biggest complaint is there is pain to the bone left of my private, that inner fold there, when walking unassisted. Only left side, Always been there but figured it would be gone by now. Only there when putting a lot of weight on that leg when walking without a walker.  3/10 maybe, not a big deal. Had bandages changed today, stung but no infections so far. Currently looking for small ways to cheat the discomfort, such as sleeping backwards with my feet pushing against the headpost so I can fall asleep with my knees bent. I’m even tempted to cut out a piece of the mattress to fit my fixator in sideways so I can sleep sideways since it doesn’t hurt rolling over/putting weight on it anymore, but probably won’t take it that far. Hey, resourcefulness is 1/4 of the battle.

Update* pain in right thigh top pinsite came at midnight. Feel a heartbeat in the area by pin and a 6/10 pain when putting pressure like sitting up/walking. Hoping it’ll be better tomorrow morning after I get some rest

Day 14: I’m a week into lengthening now, should be 1/3 of an inch taller now lol, can’t tell, except I was 1cm taller than my wife and now it seems like I have about an inch. most people don’t notice considerable difference till 2’ . Pain got somewhat better but still hurts near right leg top pinsite considerably when sitting and standing up/down, and pain starting near top left pinsite now. Pinsite pain seems to go into the surrounding area down to bottom thigh. It mainly hurts when trying to sit up and stand down, and when walking hurts but much less. At rest you don’t feel it.
A couple days Ago I felt pretty good actually, no complaints really except that I couldn’t sleep on my side with knees bent like I’ve been doing all my life.
I hope this isn’t a constant cycle of healing, being good for a couple days, then having problems/pain again. It probably is since there are open wounds in your thighs trying to constantly heal. There is a white goey substance around the pins, most likely white blood cells trying to heal. Pins look kind of gory, I avoid looking at them. I feel like one of the
bandages purpose is that as well.

Was told I could shower now but have to change bandages every time I do. Very happy I can shower, I hand wash daily face chest and armpits, but I only do a full body cleaning every 3 days. My privates smell like aged cheese after day 2. I don’t mind changing my bandages every day if I can shower every day. Tomorrow they will be giving me two months worth of bandage supplies. I had a burning itching sensation near my bandages, I think they are too tight, not sure but I took them off. I smelled the bandages for infection and they smell clear and clean. Hopefully doesn’t affect anything negatively by taking them off. I left the doctors supplied hotel as my 10 days are finished, was happy because the internet barely worked there so couldn’t binge watch movies when bored. Staying at Marriott Asia hotel and going to my Airbnb tomorrow.

Today was a really bad day, I went to a shopping center regardless of pinsite pain. Had a really bad taxi driver. There was a lot of speed bumps in the area and he didn’t slow down for them much which really hurt because I already had pain near pinsites. Not to mention he almost crashed literally 4 times. Someone would be coming fast and he would take a turn and cut them off no signal, one car slammed on their breaks and was about 2-3 feet from hitting us. What a stupid idiot, no consideration driving like that with a post surgery patient. My wife said something to him in English but he didn’t understand. All the other taxi drivers were good so far but today was the day. Then when leaving the mall, it was a steep hill and very windy and while standing I lost my footing for a second, stepped down the curb, I put all my weight on one leg and it hurt pretty bad. Pain went away eventually, feels ok now.

I probably shouldnt be going out so much in my condition, it is very risky
but I also hate being in a room all day, was never much of a homebody, and it also combats my knee pain/aches since I am in sitting position all day with them bent in wheelchair.
I’ve had NO problems at all going out every day since hospital release except during the weekend curfew but today I faced a lot of obstacles. To top it all off, I had a bowel movement since I drank coffee today, the Marriott hotel toilet seat is so low to the ground it’s lower than my knees when I am standing up. It looks almost like a kid toilet. I was trying to sit down and atcertain point of bending my legs give out and have no strength, and my wife was helping but could not hold my weight and I basically plopped on it from 12 inches which gave me 7/10 pain, enough to make me verbally yell. I was stuck after I finished, my knees were way higher than my hips, that’s how small the stupid toilet was. Terrible construction. It took a lot of pain and effort from me and my wife to get off the toilet and stand. For a second I thought I was going to have to call the hotel staff to help. Thank the lord I didn’t have to


On June 3rd I will have my first lengthening xray.


Picture of Marriott toilet

https://imgur.com/gallery/D2auRUd



Day 15: I had showered and left my bandages off after the night before.  The shower felt amazing, after 2 weeks of handwashing. Definitely improved blood flow to my legs. Although it was exhausting, I stood the whole time for 45 minutes with a walker and starting feeling very dizzy sometimes. Afterwards I went to sleep after drying everything, but the fixator is very hard to dry, it has so many inner crevices that hold water.
Woke up with all my pins oozing a lot of a yellow clearish substance.  Even after cleaning it off, it would ooze again. Scared me quite a bit, substance was slightly sticky, but did not have a smell or smell of infection. Assistant came with 2 months worth of bandages supplies, and dropped them off. Paid about 90$ usd. I started by showering again and getting all the dried substance with a q tip. Washed it with water pressure but no soap. After I dried it off I cleaned it very well with the antibacterial and bandaged it again. Felt way better, I did the bandages myself very good for my first try. Do not feel it oozing or anything.
Extremely cautious when showering with my walker, if I fall or slip it will be the end of me
The bandages prevent your pins from moving in and out and actually help with discomfort and pain. I will not be leaving them off at all.
A lot of my pinsite pain went away but now I have knee pain on left leg and pain in the inner fold of the left leg. I guess this is going to be a cycle of different pain. I wish I could get a good nights rest so bad, I don’t feel completely satisfied with my sleeping. Still have like 2 months to go, gonna be tough but I’ll have to push through it. Seems when something heals, another pops up. A few days ago I felt good as I could be at rest, now I have different pains coming and going, they are bearable but affect my quality of life, getting in and out of taxis is considerably painful with pinsite pain. I’m the most comfortable when sitting in my wheelchair with a pillow under me honestly. At the moment I’m happy I can now shower and that I think my pinsites are good and clean now, and hopefully will not have any liquid substance coming out anymore.
Logged
5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

moretallpls

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #90 on: May 28, 2021, 03:32:44 PM »

hi man, I'm really thinking go to Istanbul to Buldu because is the price i can afford. Can i PM you for some questions. Did you contact direct to dr Buldu and was he your surgeon? Is he checking on your progress day bay day, or you are by your own trying to understand if you have pin infection o not ?
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Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #91 on: May 28, 2021, 09:38:17 PM »

hi man, I'm really thinking go to Istanbul to Buldu because is the price i can afford. Can i PM you for some questions. Did you contact direct to dr Buldu and was he your surgeon? Is he checking on your progress day bay day, or you are by your own trying to understand if you have pin infection o not ?

I don’t have a pin infection, after I cleaned up and put bandages on they have been completely dry and normal. Don’t do femurs. Coming from someone that had them done.
Do tibias, it’ll be only 1/2 as hard

Doctor seems to always be on WhatsApp 24-7 which is cool, I don’t think the man sleeps
Logged
5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0

Activatedxx

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Re: LON Femur 7.5cm with halil buldu may 13th, 2021 God-Willing
« Reply #92 on: May 28, 2021, 09:44:50 PM »

I Had a 45 minute drive to Airbnb. Made it somehow. Wasn’t too bad but It got uncomfortable towards the middle and end. Route was very scenic and beautiful. Taxi driver texted and drived a lot of the way, if we crash it’ll ruin everything, the taxi drivers went from good at first to bad seemingly. Left knee pain is my biggest complaint at the moment. Made it to the Airbnb. I definitely recommend over the hotel, it has so much more space and you just feel like you’re not in a cage. That is what the hotel rooms felt like, even if they’re nice that extra space is great mentally. nice Airbnb but I screwed myself because it’s not wheelchair accessible. Doesn’t have an elevator ground floor. only one floor up to the apartment, but the stairs have no handrails just walls on both sides and the steps are not small, they are 12’ each which was difficult getting up with help of my wife.

https://imgur.com/gallery/zleWepg

Also shows sweatpants that cover fixators^

Update* Going down was bad because I injured myself. It was bound to happen. There is a 15 inch single step outside the elevator, I ended up trying to get down with my wife’s help and lost my balance on right leg and put all my weight on my left leg for a good 15 seconds while it was bending. Surprisingly it didn’t hurt too much initially, maybe because of the fear idk. After that i had my wife literally wheelbarrow me down the stairs. She helped me lay flat on the ground, picked up my feet, and I used my hands to get down the stairs, by the last step my arms were giving out. Kind of disappointed in myself, I used to be a state placing wrestler 6 years ago, now I just feel like a sack of potatoes.

https://imgur.com/gallery/oweCQ7U

 We went out But 2 hours later the pain sunk in and my leg felt like it was hit with a hammer. At first it was a bad throbbing pain, enough to make me call a taxi and go home, but then it kept getting worse. By the time I got out the taxi I was screaming inside. It was a constant 9/10 pain that lasted hours, I even started crying at one point. Outside the apartment entrance, two men saw my distress and came and picked me up from the shoulders and carried me to the room. God bless them, Turkish people are so kind. I haven’t cried in years since a funeral.

It’s no fault but mine
I really wanted to stay in but I felt bad for my wife, she never says it but I can tell she really wanted to go out and was extremely bored. After getting home I took pain meds but the pain didn’t subside right away. It’s been about 4 1/2 hours now and it’s still a constant 2.5/10. I took the pain medicine dolorex and novalgin but it helped only somewhat. The doctor prescribed me Xanax but I can only pick it up Monday. So my wife to a taxi to another patient and picked some up for me, what a lifesaver

I’m an idiot for refusing the prescription at first, Everyone got Xanax and Oxys except me. The doctor asked me the day of my discharge if I wanted anything to help with sleep, and in my head I thought he was going to prescribe me something stupid like NyQuil so I said it’s okay. Little did I know that was the stupidest decision only second to getting monorail femurs I’ve made this trip.

I would post them but imgur takes it down, they are brand name Xanax by Pfizer, just took one, bless your heart zhe


Edit* I asked doctor if nail could have bent or my bone could be affected, since it hurts a lot near the break site. He said it’s fine and it should be just pain, because the monorail system is strong enough to withhold all my weight even on one leg, I trust him but I really hope he’s 100% right
Weekend curfew will force me to stay indoors anyways. Bone clicking way more prominent in left leg only now. I will be resting and staying in for a little while. Some advice, if you do LL anywhere make sure your apartment/hotel whatever is wheelchair friendly

I didn’t even think twice about it because in America everything’s wheelchair friendly, definitely not over here, a lot of sideways don’t even have ramps and the ones that do, stupid d*k heads park in front of them since there are no parking lots here. Most of me is to blame for injuring myself but if there was a freaking handrail or anything in place I would be fine, I mean who the F builds stairs and steps without a handrail?
« Last Edit: May 28, 2021, 10:42:08 PM by Activatedxx »
Logged
5’5 -> 8cm distracted -> 5’8  LON Femur.
Brutal painful process, if considering external femurs please change your mind
Monorails installed may 13: Removed august 8, 2021
http://www.limblengtheningforum.com/index.php?topic=66610.0
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