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Author Topic: Lecco Italy- Dr. Pili  (Read 4329 times)

Whereintheworld?, wnr and 9 Guests are viewing this topic.

Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #31 on: October 08, 2016, 12:01:29 AM »

Hey Zeo,

I've been staying by myself so far (almost 4 months), but I've had help. Dr. Pili's assistant gave me a variety of different apartment options and offered to set up a grocery delivery service for me. I ultimately didn't go that route, but if you want I can send you a pm detailing the specifics so you can have an idea of what you might be looking at cost wise (groceries,help,etc.).
As far as staying here all the way through, I'm not sure. I was actually going to leave in a few days but have decided to stay longer since I might need achilles lengthening. If it gets to that point, I might just stick it out here.
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BiggestProblem

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Re: Lecco Italy- Dr. Pili
« Reply #32 on: October 15, 2016, 07:15:17 AM »

Hey Zeo,

I've been staying by myself so far (almost 4 months), but I've had help. Dr. Pili's assistant gave me a variety of different apartment options and offered to set up a grocery delivery service for me. I ultimately didn't go that route, but if you want I can send you a pm detailing the specifics so you can have an idea of what you might be looking at cost wise (groceries,help,etc.).
As far as staying here all the way through, I'm not sure. I was actually going to leave in a few days but have decided to stay longer since I might need achilles lengthening. If it gets to that point, I might just stick it out here.
I'm interested in that information.
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Height: 166cm
Wingspan: 168cm

I am no longer sure of what my plan is. Surgery will happen summer 2017 tho.

Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #33 on: October 19, 2016, 12:29:53 PM »

Update

I met with Dr. Pili today and the good news is that I do not need to have achilles lengthening surgery. As an added bonus, he took out some of the wires.
Although the x-rays looked fine to me, he spent about 20 minutes measuring and adjusting to make sure the alignment was absolutely perfect. We'll meet again in two weeks time so he can tweak it a little more yet and then we'll check the alignment once more a week or two past then just to be certain. As a patient, I really appreciate how thorough he is.

I'll also add that many of the ilizarov diaries I've read mention how their gains are much less than what they turned. For example, if they turned 7cm on their device, they actually only gain around 5.5. 
The HEF device is far more accurate, I turned 6.4cm and gained 6.

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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #34 on: October 19, 2016, 12:30:57 PM »

I'm interested in that information.
@BiggestProblem

I sent you a pm
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sashawiak

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Re: Lecco Italy- Dr. Pili
« Reply #35 on: October 23, 2016, 02:23:48 PM »

Eager for an update. What does your daily routine normally consist of now that you're post-op?
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #36 on: October 23, 2016, 04:19:54 PM »

Since about a week post lengthening, I've felt my strength slowly returning.
Dr. Pili told me I could start working towards walking unaided, so I've been trying to minimize the amount of weight I put on my crutches, using them more for balance. I've been getting out of my apartment a little more often as well, checking out for the first time parts of the neighborhood I've been living in for several months.
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #37 on: November 07, 2016, 04:12:11 PM »

Quick Update-
I had the last wires removed today and can really feel a difference in my legs.
I guess this is the home stretch.
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KrP1

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Re: Lecco Italy- Dr. Pili
« Reply #38 on: November 07, 2016, 07:32:06 PM »

Does Dr.Pili do LON? Or only external?
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #39 on: November 08, 2016, 11:15:38 PM »

Does Dr.Pili do LON? Or only external?

I think he's mentioned that he does internals as well, but I've never really discussed it with him.

The info page on this site lists him for - intramedullary (internal) nail  Precice I/II or ISKD and External Hybrid

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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #40 on: November 18, 2016, 03:56:49 PM »

Update

I stopped turning about 6 weeks ago (at the moment I am a few days short of 5 months post op) and have started walking without crutches.
About a week ago I started taking long walks (3-4 km WITH CRUTCHES) around town and back to my apartment. A couple days ago, I started walking around my apartment with the crutches dangling at my side. Today, I was able to walk around the grocery store unassisted.
I'll post another update when I have something worth mentioning.
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onemorefoot

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Re: Lecco Italy- Dr. Pili
« Reply #41 on: November 22, 2016, 02:04:41 AM »

Sent you  a PM
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onemorefoot

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Re: Lecco Italy- Dr. Pili
« Reply #42 on: November 22, 2016, 10:29:29 PM »

wouldnt you wanted double osteotomy to make it faster or is very risky?


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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #43 on: November 23, 2016, 08:02:00 PM »

The doctor mentioned the double osteotomy but said the single was better (I forget the exact reasons he gave me).
While doing the double may have saved me a month, I'm satisfied with the recovery rate I'm currently at as I'm about 5 months post op and have been walking unassisted for a few days now(although I keep a crutch with me just in case).
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randomguy

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Re: Lecco Italy- Dr. Pili
« Reply #44 on: December 11, 2016, 08:29:22 PM »

@Whereintheworld?

Sorry if I missed something but do Pili and Catagni operate together? I contacted Catagni by email a week ago but no response. Now thinking of sending the same email to Pili.
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #45 on: December 12, 2016, 02:45:09 PM »

@Whereintheworld?

Sorry if I missed something but do Pili and Catagni operate together? I contacted Catagni by email a week ago but no response. Now thinking of sending the same email to Pili.

Yes, they usually do operate together. In fact, during most of my postop check ups , both doctors were there as well.
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Whimsical

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Re: Lecco Italy- Dr. Pili
« Reply #46 on: December 12, 2016, 04:17:34 PM »

I know Dr Pili does externals and internals but does he do LON?
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onemorefoot

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Re: Lecco Italy- Dr. Pili
« Reply #47 on: December 12, 2016, 09:04:22 PM »

Yes he does LON with monorials and the price is 37000 eur
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #48 on: December 27, 2016, 07:02:15 PM »

Update

So, I've been walking unassisted now for almost 5 weeks and I've seen major improvement during the last 2 (walking much more smoothly). When I first stand up after sitting down for a while things are a little stiff, but quickly loosen up once I take a few steps.
The most painful part of this whole experience was during the first couple of weeks after I started walking unassisted, as my feet were extremely sore afterwards and would remain so for a couple of hours. I think this pain was more than likely the result of my muscles not being used for so long. While I did make it a point to stretch and walk during lengthening, it was not until about the 3.5 cm mark that I was serious about it. I'm having x-rays done next week and will update again once the doctor tells me what he thinks.
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #49 on: January 07, 2017, 04:13:50 PM »

Just got back from meeting with Dr. Pili. My left leg has consolidated to the point where I can have the frame removed, while the right leg needs a few more weeks to be on the safe side. The plan is for removal next month, which will be a little under 8 months (6cm) post op and about 4 months into consolidation. Of course, I'll take another x-ray before surgery so it's possible removal may be postponed.
My walking is normal in appearance(once I get going), but I would rate it at about 75% because I'm still a little stiff when walking on uneven surfaces and walking down stairs (up is no problem) is still difficult.
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randomguy

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Re: Lecco Italy- Dr. Pili
« Reply #50 on: January 08, 2017, 06:58:09 PM »

Hey Whereintheworld?. Good to hear you're doing well!

I have a few more questions to you:

Have you stayed in Lecco all this time?
How did you cope with loneliness? Have you met any other LLers? Did you live by yourself?



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Zenithian

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Re: Lecco Italy- Dr. Pili
« Reply #51 on: January 29, 2017, 08:58:38 AM »

Good work so far sir,
I have some questions too.
As I am an American also, I'd like to know some more about your experience getting a visa.
What kind of visa is it? Tourist, Business, student, schengen?
I've emailed the team of Pili but they have not responded on this point, only giving me a link to find out on my own. I'm just curious about your experience.
Thanks
-zen
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M

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Re: Lecco Italy- Dr. Pili
« Reply #52 on: January 30, 2017, 05:24:57 PM »

Whereintheworld?,

Thanks for this great diary. I am interested in using the HEF also. Can I ask ... did you experience any pin tract or wire infections during your several months in the frames?

Best to you,

M
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onemorefoot

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Re: Lecco Italy- Dr. Pili
« Reply #53 on: February 05, 2017, 07:44:33 PM »

How often do you take a shower? Is it tough?
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #54 on: Today at 05:45:34 PM »

Hey Whereintheworld?. Good to hear you're doing well!

I have a few more questions to you:

Have you stayed in Lecco all this time?
How did you cope with loneliness? Have you met any other LLers? Did you live by yourself?

Thank you.

Yes, I lived in Lecco the entire time. When I took all things into consideration, it just seemed easier to stay until the process was finished. Loneliness was not too much of an issue as every day I would have someone bring me food or drop off a few groceries, so it was not total isolation. Plus, the internet really helps a lot in this regard.
I did not meet any other patients, although I saw a few outside of the doctors office a few times when I went for an appointment.
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #55 on: Today at 05:53:27 PM »

Good work so far sir,
I have some questions too.
As I am an American also, I'd like to know some more about your experience getting a visa.
What kind of visa is it? Tourist, Business, student, schengen?
I've emailed the team of Pili but they have not responded on this point, only giving me a link to find out on my own. I'm just curious about your experience.
Thanks
-zen
I appreciate it.
As an American, you're allowed a 3 month visa free visit. During this time you can file for an extension with the local police department. As easy as it would have been to do this, I never did (I simply forgot). I'm leaving tomorrow and am hoping for an indifferent customs officer  at the airport, although with all of the immigration problems they have here at the moment, I don' think they'll care about me anyway(I'll post how it turns out).
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #56 on: Today at 06:10:35 PM »

Whereintheworld?,

Thanks for this great diary. I am interested in using the HEF also. Can I ask ... did you experience any pin tract or wire infections during your several months in the frames?

Best to you,

M

Thank you. 
During lengthening, I would clean the sites every 4 days (3 days in between).
I paid another, separate doctor who actually ended up being my friend, so I don't regret it at all, but you can actually do it yourself if you want to. It may vary with other devices, but with the HEF I would-

-Rub some peroxide around each site
-Rub the disinfectant
-Apply new gauze

The doctor told me at the beginning that I would more than likely get at least one infection- I never did. However, the screw on each leg that went into the 'meatier' part of the leg both flared up once or twice. When this happened, I was instructed to clean those particular sites every other day for a week. After doing this they went back to normal, although they were still a little 'uglier' than the other sites. The pin sites (I may be wrong on my wording, but when I say pin sites I mean the skinny rods that go through to fix the fibula in place, while I say 'screws' to refer to the actual screws/bolts) would occasionally become a little irritated as well, but would return to normal after a few days. This irritation was usually related to the skin around them being tugged too roughly one way or the other.
***If you decide to clean them yourself, I would recommend someone doing it for you the first couple of times to put you at ease. It's not complicated, but can seem a little intimidating when you first start.
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Whereintheworld?

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Re: Lecco Italy- Dr. Pili
« Reply #57 on: Today at 06:16:22 PM »

How often do you take a shower? Is it tough?
At the beginning, I would remove the gauze from the pin/screw sites and sit on a plastic chair (make sure it is VERY STURDY!!!). Afterwards, you do not need to do a 'full cleaning' but just squirt peroxide on each site once they have dried.
Occasionally I would get lazy and just wash from the waist up so I didn't get my legs wet.

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onemorefoot

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Re: Lecco Italy- Dr. Pili
« Reply #58 on: Today at 06:24:25 PM »

Thanks
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