Thanks for this great diary. I am interested in using the HEF also. Can I ask ... did you experience any pin tract or wire infections during your several months in the frames?
Best to you,
During lengthening, I would clean the sites every 4 days (3 days in between).
I paid another, separate doctor who actually ended up being my friend, so I don't regret it at all, but you can actually do it yourself if you want to. It may vary with other devices, but with the HEF I would-
-Rub some peroxide around each site
-Rub the disinfectant
-Apply new gauze
The doctor told me at the beginning that I would more than likely get at least one infection- I never did. However, the screw on each leg that went into the 'meatier' part of the leg both flared up once or twice. When this happened, I was instructed to clean those particular sites every other day for a week. After doing this they went back to normal, although they were still a little 'uglier' than the other sites. The pin sites (I may be wrong on my wording, but when I say pin sites I mean the skinny rods that go through to fix the fibula in place, while I say 'screws' to refer to the actual screws/bolts) would occasionally become a little irritated as well, but would return to normal after a few days. This irritation was usually related to the skin around them being tugged too roughly one way or the other.
***If you decide to clean them yourself, I would recommend someone doing it for you the first couple of times to put you at ease. It's not complicated, but can seem a little intimidating when you first start.