Topic: People who died after LL (Read 22282 times)

IwannaBeTaller · « **Reply #31 on:** May 20, 2018, 04:57:38 PM »

Quote from: justice on May 19, 2018, 11:15:05 PM

I know a girl in Barcelona also died (Achondroplasia).

There is also one guy who committed suicide.

Who committed suicide?

iwontallow · « **Reply #32 on:** May 20, 2018, 07:07:54 PM »

Quote from: IwannaBeTaller on May 20, 2018, 04:57:38 PM

Who committed suicide?

Monegal patient. Many patients have posted about that.

.. · « **Reply #33 on:** May 24, 2018, 09:59:20 AM »

IwannaBeTaller · « **Reply #34 on:** May 24, 2018, 11:10:02 AM »

Quote from: iwontallow on May 20, 2018, 07:07:54 PM

Monegal patient. Many patients have posted about that.

Can you link some of those postings?

Hamiltonzac · « **Reply #35 on:** June 14, 2019, 12:01:59 AM »

The amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?

Apoplectic · « **Reply #36 on:** June 14, 2019, 12:24:09 AM »

Stupid question,I know,and probably can't be answered, but how many people have CLL a year? Hopefully there's some statistics available.

myloginacc · « **Reply #37 on:** June 14, 2019, 06:34:40 PM »

Quote from: Hamiltonzac on June 14, 2019, 12:01:59 AM

The amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?

https://onlinelibrary.wiley.com/doi/abs/10.1111/1556-4029.13769

https://www.ncbi.nlm.nih.gov/pubmed/6705403/?ncbi_mmode=std

https://www.allkpop.com/article/2018/06/musical-actor-trainee-suddenly-dies-after-limb-lengthening-surgery

https://www.vanguardngr.com/2016/01/they-let-my-daughter-die-as-i-watched-in-horror-mother-of-uniabuja-graduate/?amp

https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell'Ospedale_di_Lecco

But hey, have fun calling others names, and thinking that crippling your legs for a year and surviving solely due to antibiotic abuse (in the case of externals) is just part and parcel of a normal cosmetic surgery.

Apoplectic · « **Reply #38 on:** June 14, 2019, 06:54:54 PM »

So what's the safest method? I'm planning on getting LON but these articles scare me...

myloginacc · « **Reply #39 on:** June 14, 2019, 07:49:54 PM »

That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.

PANDA:BEAR.. · « **Reply #40 on:** June 14, 2019, 08:15:27 PM »

Quote from: myloginacc on June 14, 2019, 07:49:54 PM

That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.

You hit it on the nail.... great advice .. my friend

Hamiltonzac · « **Reply #41 on:** June 15, 2019, 12:36:52 PM »

Quote from: myloginacc on June 14, 2019, 06:34:40 PM

https://onlinelibrary.wiley.com/doi/abs/10.1111/1556-4029.13769

I'm doing tibia and femur both internal.

https://www.ncbi.nlm.nih.gov/pubmed/6705403/?ncbi_mmode=std

https://www.allkpop.com/article/2018/06/musical-actor-trainee-suddenly-dies-after-limb-lengthening-surgery

https://www.vanguardngr.com/2016/01/they-let-my-daughter-die-as-i-watched-in-horror-mother-of-uniabuja-graduate/?amp

https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell'Ospedale_di_Lecco

But hey, have fun calling others names, and thinking that crippling your legs for a year and surviving solely due to antibiotic abuse (in the case of externals) is just part and parcel of a normal cosmetic surgery.

Apoplectic · « **Reply #42 on:** June 16, 2019, 02:25:23 AM »

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

jaybam · « **Reply #43 on:** June 16, 2019, 03:33:43 AM »

Quote from: Apoplectic on June 16, 2019, 02:25:23 AM

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

I think the chances of death are slim to none with a top surgeon. Obviously each surgery has it's risks.

TruthBomber · « **Reply #44 on:** June 17, 2019, 05:09:21 PM »

Quote from: Activatedx on June 15, 2019, 11:46:53 PM

I respect you have your own opinions but that comment was plain stupid imho

Anyways people need to go to a credible doctor or stay short until you can. Better to be short than crippled.

You call my opinion "stupid", but wait to refute in what way it is "stupid"? Ad hom much?

TruthBomber · « **Reply #45 on:** June 17, 2019, 05:10:19 PM »

Quote from: Apoplectic on June 16, 2019, 02:25:23 AM

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

You're too short because of your fathers genetics partly, so it is his own fault.

angryfem · « **Reply #46 on:** June 18, 2019, 12:46:10 AM »

Quote from: IwannaBeTaller on May 24, 2018, 11:10:02 AM

Can you link some of those postings?

Notatroll said he was his friend

Montreal172 · « **Reply #47 on:** November 14, 2019, 01:02:58 AM »

are you saying LON has greater risks of fat embolism ?

.. · « **Reply #48 on:** November 14, 2019, 07:06:38 AM »

Quote from: TruthBomber on June 15, 2019, 10:45:52 PM

Death is honestly not that bad.

You cease existing. No more worries, no more depression. For some people death could be a life improvement if their normal life happiness index was negative. Let us say you have life happiness index of -100. When you are dead it is 0. So you have gained +100 happiness points.

Anyway, what is worse to be left crippled.

How many happiness points you'd gain when you burn in hell?

Quote from: Apoplectic on June 16, 2019, 02:25:23 AM

Death from this surgery honestly terrifies me. Not so much for my own well-being,but I know my father would hate me for it.

I was born 3 and a half months prematurely and I've always been short relative to my peers, despite growing at a normal rate, so he believes I'm used to it.

But honestly death is somewhat preferable to a lifetime of depression.

You wouldn't know if your father hated you because you're dead.

soitchi · « **Reply #49 on:** November 14, 2019, 08:08:19 AM »

Quote from: Bruce Wayne on November 14, 2019, 07:06:38 AM

How many happiness points you'd gain when you burn in hell?

You believe in hell?

ghkid2019 · « **Reply #50 on:** November 24, 2020, 06:36:59 AM »

LL danger sum people do die

Is masterHY alive? Sightings or not...

precice strider · « **Reply #51 on:** November 24, 2020, 08:53:56 PM »

Yush Gupta: https://jezebel.com/stories-about-my-brother-1835651181

Humanoid · « **Reply #52 on:** November 14, 2021, 10:14:16 AM »

http://www.limblengtheningforum.com/index.php?topic=68419.msg207244#msg207244

Masteryourlife · « **Reply #53 on:** November 15, 2021, 06:04:26 PM »

Quote from: DreamOf180cm on February 26, 2017, 03:52:12 AM

The posts on this forum keep on getting more ridiculous as each day passes.

Agree with this .

OnceADay · « **Reply #54 on:** November 17, 2021, 12:16:17 AM »

FYI I am having surgery with Betz tomorrow. If I don't reply to this thread in a month them I'm for sure dead.

LU213 · « **Reply #55 on:** November 17, 2021, 08:54:43 AM »

You will survive. I wish you the best recovery.

Masteryourlife · « **Reply #56 on:** November 17, 2021, 10:52:37 AM »

Please check the story of the guy who died under giotikas in Greece in the "limb lengthening patient experience" .
Not enough details but we all need to know !

OnceADay · « **Reply #57 on:** November 17, 2021, 11:13:45 PM »

Quote from: LU213 on November 17, 2021, 08:54:43 AM

You will survive. I wish you the best recovery.

I had the surgery and didn't die (yet lol). Thanks for the support!

chicitita · « **Reply #58 on:** November 17, 2021, 11:35:45 PM »

Can you provide the link??? Havent heard about any Giotikas patient who has died.

Do you kno anything about dr Betz?

zaozari · « **Reply #59 on:** November 24, 2021, 11:45:54 AM »

Saffest method is still externals classic or adapted Ilizarov, altough very difficult and painfully if done in femurs.
(Answer to apoplectic, 2019)

Jake24 · « **Reply #60 on:** November 26, 2021, 06:24:13 AM »

Precice?? Isnt precise the safest

zaozari · « **Reply #61 on:** November 26, 2021, 08:19:05 AM »

In tibias external rings are still the saffest for example because are more stable and very effective in preventing and correcting many complications, difficulties and obstacles.
In femurs is debatable because patient cooperation is more difficult but there is also less risk for example of thrombosis.
Externals allways have more risk of infection but allmost always treatable.
This seems to be the general scientific currrent conclusion, but different surgeons, with different experiences, have sometimes different preferences because internal nails are simpler to be implanted and prefered by patients.

Limb Lengthening Forum

Author Topic: People who died after LL (Read 22282 times)