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Author Topic: Diary: Stryde Femurs with Dr. Paley September 2019  (Read 22027 times)

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TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #124 on: March 10, 2020, 09:45:26 PM »

hey man,
did Dr. Paley prescribe xarelto or give you aspirin instead.

I think I read somewhere that Paley gives Asprin instead of xarelto as blood thinners when it comes to lengthening with Stryde. Since stryde allows early weight bearing and xarelto can cause major internal bleeding

Baby aspirin (81 mg dosage) taken 2x a day. With Stryde I was moving around on a walker/crutches first few weeks and cane thereafter.
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

MirinHeight

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #125 on: March 10, 2020, 10:47:53 PM »

Baby aspirin (81 mg dosage) taken 2x a day. With Stryde I was moving around on a walker/crutches first few weeks and cane thereafter.

thanks man.
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

FormerKidd

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #126 on: March 11, 2020, 03:08:06 AM »

I think I read somewhere that Paley gives Asprin instead of xarelto as blood thinners when it comes to lengthening with Stryde. Since stryde allows early weight bearing and xarelto can cause major internal bleeding

Yeah, I had two operations at Paley's -- I was prescribed Xarelto when I had the Precice rods, and Aspirin when I had Stryde.
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MirinHeight

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #127 on: March 11, 2020, 03:39:00 AM »

does Dr. Paley clarify how long in between taking the aspirin doses. Just curious because aspirin has half life of 3 hrs
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currently 179 cm with a 6'2 wingspan
Goal: 182-183
top 5 LL surgeons: Paley, Rozbruch, Mahboubian,  Donghoon Lee, Giotikas

- planning to have LON tibias with dr donghoon lee in summer 2021

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #128 on: March 11, 2020, 04:11:05 AM »

does Dr. Paley clarify how long in between taking the aspirin doses. Just curious because aspirin has half life of 3 hrs

Dr. Robbins just had me take one in the AM as soon as I woke up and one in the PM around dinner. I was fairly active during the day with Stryde so the risk was pretty low IMO.
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #129 on: March 17, 2020, 06:35:29 PM »

Update: Day 182 Post Op, Day 94 Post Distraction

It's been 6 months from my surgery date. Life is good.

I remember during my consultation with several LL doctors over a year ago, the general consensus was that 6 months post op was the magical milestone date where patients return to normal life (walking, running, sports, fitness, etc.)

Am I back to being 100% normal? Nope. Have I made significant progress? Yes, every day.

Unfortunately due to COVID 19 I won't be getting my x rays until next month at the earliest so my consolidation progress is TBD.

The Good

-My walk looks perfectly normal and my endurance has improved to the point where the fact that I had LL is undetectable up to 3 miles, at which point fatigue sets in with my glutes and hips and my walk declines to a hybrid walk/waddle.

-Strength has improved. I can go up and down stairs naturally. I can get up from a seated position independently without pushing off with my hand.

-I feel normal. No significant physical pain. Sometimes I go through the day forgetting I did LL.

-Before the surgery I was worried about friends, family and colleagues noticing my height. So far only one friend has noticed and it wasn't a big deal. I've learned that most people don't really care about you as much as you think they do, and for the people that do truly care about you, they will love and support you unconditionally through LL anyways. I own it.

-New sense of confidence. LL was really hard. Mentally and physically. After you do it you feel a sense of accomplishment. Now when life throws problems at me I think back to LL as a source of strength and confidence to carry me through.

-My height dysphoria is completely gone. No more shoe lifts. I wear shoes that I like, not shoes that make me taller. I never think about height anymore whereas I used to obsess about it daily for hours on end. This freedom has gifted me way more time to spend on other more meaningful areas of my life.

The Not So Good

-Nerve pain / shin numbness (left leg.) Still dealing with this. From the friends I made at Paleys, about half of them had nerve pain or numbness during distraction, and of those folks, about half of them are still experiencing it at about 3 to 6 months post op into consolidation. The pain isn't bad at all, just annoying. I'm stretching more in hopes that it improves.

-Athleticism. I can't run, jog, or play any active sports despite being told so at 6 months post op during my consultation. I think this varies by patient, but in general, most won't be returning to sports at 6 months. People like Movie have amazing athletic recovery outcomes and have definitely earned it, but I would call those out as impressive exceptions, not the norm.

-Lingering stiffness that occurs early in the morning after getting up from bed or getting up after having been seated for > 30 minutes. This goes away after warming up for a minute or so.

« Last Edit: March 17, 2020, 09:04:45 PM by TheAlchemist »
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

tiggy

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #130 on: March 17, 2020, 07:56:32 PM »

Hey brother,

Awesome update, very true and 100% authentic. You have described my general feelings almost precisely as well. LL is a fascinating and challenging process, yet rewarding and incredibly life changing at the same time. I hope that you stay active on this forum years down the line just to update the community as to how you have recovered long term. I plan to do so myself because I know that years ago when I searched for long term outcomes and effects of this surgery, this information was incredibly difficult to find because people forget and move on.

Anyway keep up the great progress and I'm looking forward to your next updates. Cheers my man!
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Movie

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #131 on: March 17, 2020, 07:57:10 PM »

Nice update bro, I'm glad everything is returning back to normal in due time. the shin numbness and pain are annoying they will subside though.

Thanks for the shout out bro! let's not forget I'm a month and a half ahead of you in recovery however, that's a huge difference lol, maybe a month and a half from now you'll be able to jog as well (: keep it up bro, best wishes.
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Starting height: 167cm Now 175cm With Strydes Femurs with Dr. Mahboubian
My Video Logged Diary: http://www.limblengtheningforum.com/index.php?topic=64224.0

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #132 on: March 18, 2020, 12:39:20 AM »

Hey brother,

Awesome update, very true and 100% authentic. You have described my general feelings almost precisely as well. LL is a fascinating and challenging process, yet rewarding and incredibly life changing at the same time. I hope that you stay active on this forum years down the line just to update the community as to how you have recovered long term. I plan to do so myself because I know that years ago when I searched for long term outcomes and effects of this surgery, this information was incredibly difficult to find because people forget and move on.

Anyway keep up the great progress and I'm looking forward to your next updates. Cheers my man!

Thanks tiggy! 100% I will stay active on the forum for a while.  I remember being on the other side, before my operation... the diaries that provided a rare glimpse into the long term outlook of LL, well beyond the nail removal stage (shout out to Programdude, YellowSpike, Purush, and many more) were so helpful in my journey. I want to give back to the community by sharing my experience all the way through passed the nail removal stage.

Nice update bro, I'm glad everything is returning back to normal in due time. the shin numbness and pain are annoying they will subside though.

Thanks for the shout out bro! let's not forget I'm a month and a half ahead of you in recovery however, that's a huge difference lol, maybe a month and a half from now you'll be able to jog as well (: keep it up bro, best wishes.

Thanks Movie! You set the gold standard in recovery and you earned it through hard work! All those stairs, training, stretching and the love of soccer really came through for you. You're right.... I hope that in a month and some change I can catch up to you bro! Cheers
« Last Edit: March 18, 2020, 02:45:20 AM by TheAlchemist »
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

infinity&beyond

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #133 on: March 18, 2020, 03:33:03 AM »

What are the scars like? Did you ever consider spreading the 8cm out over both femur and tibia for proportionality?
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TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #134 on: March 18, 2020, 04:26:50 AM »

What are the scars like? Did you ever consider spreading the 8cm out over both femur and tibia for proportionality?

Scars are still visible, I avoid wearing shorts due to the IT band related scars located slightly above the outside areas of my knee. I'm ignoring the scars for now as I plan on re-opening the wounds again anyways when getting the rods removed in early to mid 2021. Shortly after that I plan on getting laser treatment for scar removal.

I did consider doing femurs and tibias to maintain ideal proportions but the additional time, costs, health risks and pain did not seem worth it IMO. Looking at myself in the mirror today, my knees do look a little low but nothing out of the ordinary that the average onlooker would take note of. The human body, especially the femur/tibia ratio, varies pretty significantly across individuals and I've embraced that.
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

infinity&beyond

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #135 on: March 18, 2020, 06:10:08 AM »

Nice one mate. So glad to hear your well. Seriously impressive.

1) do you think your recovery has been luckier than most or just average? Can the average person expect to recover as well as you with not much by way of complications so far?

2) does everyone have that scar above the knee? I thought they insert and remove the rod from the hip at Paley’s clinic? From what I read you had to get an additional procedure because of tight IT bands... which is why that scars there. What about the scar from the actual ll procedure itself?

3) I’m planning on doing 3-4cm on femurs at most. Do you think I will need any alteration of my IT bands? Do you think my recovery will be quicker because of such small lengthening or same as the guys doing 5cm+?

4) if I want to lengthen 4cm and let’s say finances aren’t an issue, taking everything else into account how much more risky do you think it would be to do 2cm tibia and 2cm femur as opposed to all 4cm femur? I know u said it was riskier doing both but since mine are such small amounts on each do you think it would mitigate the risk?

5) out of curiosity did Paley mention the forum at all or ask you to post or is this completely your own volition? Appreciate your thoughts on this in general as it would help my research and judging what I should believe onn here. A lot of posters seem to be sponsored either by Nuvasive (company that makes stryde and precice) or doctors themselves

Thanks so much for your time. 1 on 1 time with people actually undergoing the procedure is a commodity not to be taken for granted so I appreciate your help
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TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #136 on: March 19, 2020, 01:26:55 AM »

Nice one mate. So glad to hear your well. Seriously impressive.

1) do you think your recovery has been luckier than most or just average? Can the average person expect to recover as well as you with not much by way of complications so far?

2) does everyone have that scar above the knee? I thought they insert and remove the rod from the hip at Paley’s clinic? From what I read you had to get an additional procedure because of tight IT bands... which is why that scars there. What about the scar from the actual ll procedure itself?

3) I’m planning on doing 3-4cm on femurs at most. Do you think I will need any alteration of my IT bands? Do you think my recovery will be quicker because of such small lengthening or same as the guys doing 5cm+?

4) if I want to lengthen 4cm and let’s say finances aren’t an issue, taking everything else into account how much more risky do you think it would be to do 2cm tibia and 2cm femur as opposed to all 4cm femur? I know u said it was riskier doing both but since mine are such small amounts on each do you think it would mitigate the risk?

5) out of curiosity did Paley mention the forum at all or ask you to post or is this completely your own volition? Appreciate your thoughts on this in general as it would help my research and judging what I should believe onn here. A lot of posters seem to be sponsored either by Nuvasive (company that makes stryde and precice) or doctors themselves

Thanks so much for your time. 1 on 1 time with people actually undergoing the procedure is a commodity not to be taken for granted so I appreciate your help

No problem man!

1) I think my recovery was slightly ahead of the curve based on a small sample size of about 15 patients that I kept in touch with from Paleys. My surgery was textbook, my flexibility, ROM and strength was above average thanks to dedication towards PT, and my bone consolidation was only average. I think there is a good chance an average person can expect to recover as well as me or even better (see Movie diary) with the right mindset and discipline towards PT.

2) Yes every femur patient has the IT band scar as Paley does an IT band release for all femur patients. The scar from the nail implant (and eventual removal) is in the hip area as you mentioned. I've decided to defer all scar removal procedures post rod removal.

3) Yes Paley does IT band release for all femur patients regardless of length. 3-4 cm is a worlds apart from someone doing 5 cm+, your recovery will be incomparably faster and easier at 3-4 cm. A general rule is recovery to decent walking is 2 to 2.5 days for every mm you lengthened. Soft tissues got really tight and things got exponentially more difficult once I crossed the 5 cm threshold, so I think regaining flexibility, ROM, and strength will be much faster for anyone doing less than 5 cm. I think you could be walking decently about 3.5 to 4 months post op. Furthermore, I believe anyone doing less than 5 cm has a decent chance of full athletic recovery.

4) I believe doing quadrilateral (both femurs and tibias) is more risky due to the surgery itself, not so much the amount you lengthen. There is a very small risk of surgery complications like a fat embolism happening, and with 4 bones broken instead of 2, the risk of such a complication is higher, but overall still low. Furthermore, the quadrilateral guys I met at Paleys reached an ambulatory state much slower than bilateral patients, they were in wheel chairs longer due to having way more trauma after having two surgeries three weeks apart....the slower you get to walking and weight bearing the slower your bones consolidate and muscles strengthen.

5) Completely doing this at my own volition to give back to the community as the older diaries were so valuable to me leading up to my operation. Paley never mentioned the forum. Totally understand the skepticism, I was the same way when I was doing my research but I think most American doctors (Paley, Rozburch, Mahboubian) have enough experience to let their skills speak for themselves, IMO I would be cautious of any diaries for international doctors, doctors with a history of complications, or new doctors looking to market their practice.
« Last Edit: March 19, 2020, 02:49:00 AM by TheAlchemist »
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #137 on: March 28, 2020, 04:10:48 AM »

Been getting a steady stream of PM's from people trying to decide if LL is right for them so I decided to create a Step by step framework on how to decide if you are a good candidate for LL.

LL was life changing for me but I'm a firm believer that if you are struggling with height neurosis LL should be the LAST RESORT in your journey towards resolution.

Step 1: Reflect on whether the core areas of your life outside of height (friends, family, career, wealth, romance, purpose etc.) are healthy. LL will NOT fix all of your problems. It can only fix height neurosis and enhance an already good life. If you're depressed or if you're not satisfied with your life beyond just your height, you will remain depressed and unsatisfied after LL and doing LL would be like pouring a glass of water into a forrest fire. Invest in YOURSELF first before you invest in lengthening your legs.

Step 2: Ask yourself why you are doing LL. Are you doing it for any one person or thing? Are you doing it because some random bimbo said you were short? Are you doing it because you think it'll get you a promotion at work? Other people's opinion of your height is none of your business. Those people don't matter. Forget them. Don't do this for anyone else other than you. Do it because you don't want to let height neurosis get in the way of you actualizing your fullest potential.

Step 3: Try to resolve your height neurosis through therapy before you consider LL. You might find that the source of your height neurosis is deeply rooted in other mental issues buried deep in your mind and seeing a therapist may provide you with a way of addressing it. Perhaps try meditation. These are healthier and far more economical ways to resolve height neurosis than LL.

Step 4: Ask yourself how important athleticism is to you. Results may vary but the large majority of LL patients who do > 5 cm in any segment will not recover 100% of their athleticism. You have to be at peace with sacrificing a considerable amount of athleticism. If competitive sports are a major part of your life you may want to reconsider LL.

Step 5: You wouldn't buy a car unless you test drove it first right? So don't do LL unless you do a tall trial run. Wear lifts for a couple months that puts you at your desired LL height. Try an inch, try two, then try three. See how it makes you feel. Happier, more content, in a state of nirvana? Or indifferent, or the same? Update your virtual identity with your desired LL height on your online dating profile and observe if it's made a meaningful difference in the dating world. You might be surprised.

Step 6: Don't worry about what other people will think or if they might notice you taller. I worried about this a lot before doing LL and it gave me a ton of anxiety and guess what.... after doing LL I realized it doesn't really matter, people don't really care about you as much as you think they do.

Step 7: Plan for the worst and hope for the best in the context of finances, your health, and timeline. If your operation is $100k, make sure you have at least $200k in savings. One thing is for certain with LL, it will not turn out how you planned. There will be unexpected costs, unexpected changes in recovery timeline, and at worst potential complications. At the very least this is a 6 month journey, a lot can happen in that time frame, you could lose a job, lose a romantic partner, lose friends, and you need to be ready for the world to change and move on as you lay in bed crippled with rods in your legs. Make sure you have money in the bank, liquid, you need to have at least a 12 month operating expense runway.

Step 8:  Make sure you are mentally strong. This journey will test you in ways you never imagined. Beyond just the physical pain. There is the isolation. The solitude. Deep loneliness. Lack of sleep. It can break you down. You need to have the ability to shift your perspective when things get tough. It's a super power. I remember every time I hit a low point and was about to break down due to the excruciating pain and loneliness... I had to dig deep and shift my perspective towards expressing gratitude about how lucky I was to have the rare opportunity to get taller. This is not for the weak minded.

Deciding to do LL is a deeply personal one. It's a drastic decision towards fixing height neurosis and it should be the last resort to fixing height neurosis. Although I am very happy with my decision to do this I still believe prospective LL'ers need to deeply reflect and meditate on their decision to do LL before they make that decision. Best of luck to all!
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

sickkkkk

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #138 on: April 02, 2020, 02:31:42 AM »

Does anyone have a link to movie's diary/recovery story?
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OverSixFeetTall

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #139 on: April 02, 2020, 05:27:46 PM »

You mentioned athletics,

What particular athletic ability will you like to go back to?
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My Current Height: 5'9
My Goal Height: 6'0
Lengthen: Femurs

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #140 on: April 04, 2020, 02:05:15 AM »

You mentioned athletics,

What particular athletic ability will you like to go back to?

Biking and basketball. With biking I think it's very much possible to get back to 100% recovery. With basketball I think my agility, quickness, and hops will never get back to what it was. Hopefully I can make up for that with my added height :)

I've always played sports casually and I'm in my mid 30's so the loss of athletic ability isn't going to have a big impact on the quality of my life.
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

sickkkkk

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #141 on: April 04, 2020, 07:41:39 PM »

Biking and basketball. With biking I think it's very much possible to get back to 100% recovery. With basketball I think my agility, quickness, and hops will never get back to what it was. Hopefully I can make up for that with my added height :)

I've always played sports casually and I'm in my mid 30's so the loss of athletic ability isn't going to have a big impact on the quality of my life.

I know LL isn't for sports, but how fast do you think it would take to get back to sports if you did extreme physical therapy with stryde?
« Last Edit: April 04, 2020, 09:45:15 PM by sickkkkk »
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TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #142 on: April 04, 2020, 09:53:27 PM »

I know LL isn't for sports, but how fast do you think it would take to get back to sports if you did extreme physical therapy with stryde?


I can't say for sure as I'm still recovering and at close to 7 months I'm still not ready to get back to sports. Based on my current rate of recovery I'd say I'd be able to play light sports (non competitive) no earlier than 12 months post op.  I'd guestimate that it would be at least 1.5 to 2 years post op where I could comfortably play basketball at a decent competitive level.

Note that most docs will claim that one can return to sports/jogging/running at 6 months post op. Results may vary. I'd say this is only true of bone consolidation as you should be fully consolidated at around 6 months post op, however your soft tissues, muscle atrophy, and biomechanics will still not b 100% and likely set you back a couple more months till you could truly play sports again.
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

ghkid2019

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #143 on: April 11, 2020, 02:51:25 AM »

I mean it's obvious you are a very eloquent writer and speak well. Congrats, you're 6 feet now! You have passed the 99% difficult part, now you are just more annoyed than suffering. I'll take that anyday to cure height neuroses. Great diary, I am cheering for you!
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"It is possible for us to live every moment of our daily lives in such a way that every moment becomes a moment of healing." - Thich Nhat Hanh

OverSixFeetTall

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #144 on: May 04, 2020, 09:49:43 AM »

Heya Alchemist,

It’s been 1 month since.

How are you feeling and any updates, improvements or annoyances?
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Lengthen: Femurs

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #145 on: May 06, 2020, 01:29:05 AM »

Heya Alchemist,

It’s been 1 month since.

How are you feeling and any updates, improvements or annoyances?

Hey OverSixFeetTall:

Day 231 Post Op (Just shy of 8 months post op), Day 143 Post Distraction.

Life is good!

The Good

-Walk feels and looks good up to about 3 miles at which point fatigue sets in due to recovering glutes and hip abductors.

-Stairs without hand rails no problem.

-Getting up from seated position without hand pushoff no problem.

-APT / duck ass about 90% resolved. Just a slight arch at the lower back, not noticeable unless I'm shirtless.

-Legs and ass are starting to grow from scrawny chicken legs to normal looking.

-I've met up with a few more family / friends (way less than anticipated by now due to COVID.) So far, only 2 people have explicitly registered any difference in height. One friend called out "dude you look taller" and a family member said I looked "skinnier." I think most people see me and register something different about me, but can't quite pinpoint what it is. I attribute this mainly to the 2 inch lifts I wore pre LL (that I've since removed) and the fact that LL is not mainstream.

-I am still very happy with the outcome and 100% do not regret this decision.  My height neurosis is completely gone, that alone has made this life changing.  In many ways, it was one of the best decisions of my life. Not just the pure physical height gain, but the confidence gained from conceptualizing something outrageously ambitious and actualizing it.

The Bad

-I still have numbness and nerve pain in my left shin. It gets slightly better each week but it still persists. Compared to my Paley peers, I'm one of the few patients who is still recovering from the nerve pain issues so I guess I'm behind the curve here. More annoying than it is painful so not the worst thing. The resolution seems to be stretching and waiting more than anything.

-I haven't ran or tried sports yet. Part of it is due to not having my x rays done due to COVID and I want to see a consolidated bone before I do anything drastic. I feel like I could jog or even jump, but I don't want to risk it. Hoping I can get X rays once COVID clears up so I can green light sport activities soon.




« Last Edit: May 06, 2020, 04:17:28 AM by TheAlchemist »
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

ghkid2019

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #146 on: May 06, 2020, 02:51:45 AM »

Hey OverSixFeetTall:

Day 231 Post Op (Just shy of 8 months post op), Day 143 Post Distraction.

Life is good!

The Good

-Walk feels and looks good up to about 3 miles at which point fatigue sets in due to recovering glutes and hip abductors.

-Stairs without hand rails no problem.

-Getting up from seated position without hand pushoff no problem.

-APT / duck ass about 90% resolved. Just a slight arch at the lower back, not noticeable unless I'm shirtless.

-Legs and ass are starting to grow from scrawny chicken legs to normal looking.

-I've met up with a few more family / friends (way less than anticipated by now due to COVID.) So far, only 2 people have registered any difference in height. One friend who explicitly called out "dude you look taller" and a family member said I looked "skinnier." I think most people see me and register something different about me, but can't quite pinpoint what it is. I attribute this mainly to the 2 inch lifts I wore pre LL (that I've since removed) and the fact that LL is not mainstream. My original expectation was that the height would be obvious to everyone but I've been pleasantly surprised so far. Again, interaction with old friends and family has been limited due to COVID so we'll see once things open up again.

-I am still very happy with the outcome and 100% do not regret this decision.  My height neurosis is completely gone, that alone has made this life changing.  In many ways, it was one of the best decisions of my life. Not just the pure physical height gain, but the confidence gained from conceptualizing something outrageous and actualizing it.

The Bad

-I still have numbness and nerve pain in my left shin. It gets slightly better each week but it still persists. Compared to my Paley peers, I'm one of the few patients who is still recovering from the nerve pain issues so I guess I'm behind the curve here. More annoying than it is painful so not the worst thing. The resolution seems to be stretching and waiting more than anything.

-I haven't ran or tried sports yet. Part of it is due to not having my x rays done due to COVID and I want to see a consolidated bone before I do anything drastic. I feel like I could jog or even jump, but I don't want to risk it. Hoping I can get X rays once COVID clears up so I can green light sport activities soon.

Thanks for the update. Did you slow down your lengthening during the lengthening period? People said that slowing down to 2 increases a day solved nearly all nerve pain during the lengthening. Obviously it doesn't matter anymore for you, but maybe there's a post lengthening side effect of nerve pain if the patient lengthened too quickly and didn't slow down during the lengthening period.

Glad to see youre happy though
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"It is possible for us to live every moment of our daily lives in such a way that every moment becomes a moment of healing." - Thich Nhat Hanh

TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #147 on: May 06, 2020, 04:23:36 AM »

Thanks for the update. Did you slow down your lengthening during the lengthening period? People said that slowing down to 2 increases a day solved nearly all nerve pain during the lengthening. Obviously it doesn't matter anymore for you, but maybe there's a post lengthening side effect of nerve pain if the patient lengthened too quickly and didn't slow down during the lengthening period.

Glad to see youre happy though

I did slow the rate of distraction down from 1 mm / day to just 0.5 mm / day towards the end at around 7cm and it made a world of difference in my nerve pain. Leading up to that my shins were completely numb and I'd experienced sharp shooting electrifying nerve pains (pain about a 6/10) every other hour. Once I slowed the rate of distraction the nerve pain dropped significantly.

Even with the rate limiting I still have lingering nerve numbness/slight pain 8 months post op.

I think over time, at the rate it's been improving, it should resolve itself, I'm just a bit behind the curve. All things considered, not the worst thing, and I'm still overwhelmingly satisfied with the outcome to not be at all upset about it.
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #148 on: May 06, 2020, 05:53:26 AM »

That's great Alchemist! pain nerve if you notice is improving there will come a time where it'll resolve itself, it'd be worrisome if you weren't improving.
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Starting height: 167cm Now 175cm With Strydes Femurs with Dr. Mahboubian
My Video Logged Diary: http://www.limblengtheningforum.com/index.php?topic=64224.0

184dream

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #149 on: May 11, 2020, 07:49:15 PM »

About the tendon release surgery what did the doctor told you about biceps femoris. It band. Did you meet an older patient
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k1erz

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #150 on: July 08, 2020, 02:36:57 AM »

Any updates?

This was by far the best diary I’ve followed.

Would love to read about your recovery by now?

Also I recently watched a Paley video. He says that with a dedication to PT a return to normal within 6 months should be expected.

Do you believe you’ve not experienced this for the above reason?

How good did you find the PT at the Paley Institute btw. 
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a

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #151 on: July 10, 2020, 10:42:54 AM »

Hello there,

Are you able to run now ?
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DoubleTime

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #152 on: August 07, 2020, 07:53:55 AM »

Hi Alchemist,

Like you, I plan to do LL with Paley by end of 2020 or beginning of 2021.

Your diary is truly inspiring. After reading, however, my biggest concern is regarding nerve pain. Are you still experiencing nerve pain or have you fully recovered?

I'm trying to decide if I want to go the full 8cm or just stick with 5cm. I'm starting at 5'9". Any advice you have is hugely appreciated.

And thank you again for sharing your LL journey. Hope you are loving life at your new height!

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TheAlchemist

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #153 on: August 08, 2020, 12:59:49 AM »

Hi Alchemist,

Like you, I plan to do LL with Paley by end of 2020 or beginning of 2021.

Your diary is truly inspiring. After reading, however, my biggest concern is regarding nerve pain. Are you still experiencing nerve pain or have you fully recovered?

I'm trying to decide if I want to go the full 8cm or just stick with 5cm. I'm starting at 5'9". Any advice you have is hugely appreciated.

And thank you again for sharing your LL journey. Hope you are loving life at your new height!

Thanks for the kind words! I'm loving life at the new height. I'm glad the diary has helped provide you with insight into the experience. Unfortunately, yes I'm still experiencing a slight numbness in my lower left leg and occassional mild nerve pain that I would describe as barely noticeable and more annoying than painful. It's dissapointing from the perspective that I'm dealing with an issue nearly 11 months post op when my original goal was to be 100% healthy with no lingering issues at 6 months post op, but on the bright side it is something I could definitely live with and does not compare at all to the joy of having freedom of height neurosis. Trying to share more data, of the 15 or so friends I kept in touch with from Paleys, 2 of them still have similar mild numbness / nerve pain.

At 5'9, I think both 5 cm or 8 cm would be an amazing, life changing gain. With 5 CM you'll end up at 5'11, a great height and "tall or slightly tall" with a good chance of recovering functionality at 100%. With 8 CM at 6 ft, you'll be at an even better height and "distinctly tall" (personally I think every inch leading up to 6'2 is meaningful whereby everything afterwards starts to diminish in value) however you will definitely sacrifice some functioanlity at the competetive athletic/sports level for those last 3 CM. Whether the trade off is worth it is a personal decision. For me, since my current lifestylf does not involve any kind of intense physical activity, I am 100% happy that I went the full 8 cm, absolutely no regrets. However if athletics were a big part of my life I could certainly see how the trade off wouldn't be worth it. 


Hello there,

Are you able to run now ?

Honestly I haven't attempted any running or jogging as I haven't gotten any x rays since Feb 2020 due to COVID 19. I defnitely feel like I can jog or run, just playing it safe until I see those bones fully consolidated. I've been biking/cycling just fine.

Any updates?

This was by far the best diary I’ve followed.

Would love to read about your recovery by now?

Also I recently watched a Paley video. He says that with a dedication to PT a return to normal within 6 months should be expected.

Do you believe you’ve not experienced this for the above reason?

How good did you find the PT at the Paley Institute btw. 

Thanks for the kind words and I'm glad this diary has been insightful for you. I think a return to normal at 6 months is achievable depending on your definition of "normal" and how much you lengthen. If you lengthen femurs < 5 cm and work incredibly hard at PT, I think there's a chance you can return to normal at 6 months, which includes atheltics / sports. However if you lengthen > 5 cm, with dedication to PT I believe that at 6 months one can function with every day activities such as walking, going to work, hiking, running errands, etc however any kind of athletic / sport activites at a level of high intensity won't be possible mainly due to soft tissues still being tight and biomechanics still adapting to new proportions.

I was a big fan of the Physical Therapy team at Paleys. I found Paley's system of attending PT daily 5x a week  just put me in a positive environment with an optimistic mindset that kept me disciplined and accountable as it almost felt like a boot camp where I was getting tested and assessed daily. Consistently showing up and sticking to the plan is the name of the game for LL, and Paley's system helps keep you on that path.

Sorry for the delay in updates, I've honestly just been enjoying life. I'm almost 11 months post op and still as happy as ever with this decision, truly life changing for me, and outside of the aforementioned numbness/mild nerve pain, I often go through hours and days forgetting I ever did LL. I've been busy with work and life but I'll try to find some time in the coming weeks for a more detailed update.

Take care everyone!
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Dr. Paley Patient: Femurs (Stryde) / 8 CM gained
Surgery: Sep 17 2019 / Distraction completed: Dec 14 2019
Starting height: 5'9 or 175cm / Ending Height: 6'0 ft or 183 cm
Diary: http://www.limblengtheningforum.com/index.php?topic=64373.0

Movie

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Re: Diary: Stryde Femurs with Dr. Paley September 2019
« Reply #154 on: August 08, 2020, 07:22:45 AM »

wow you too bro? E Z, and BoneStretching are all around the 1 year post op mark and having pains. I'm having pains too specifically in the right knee definitely no numbness but I do get a sharp pain in the top shin under the knee when driving lately, it's weird though because I was soaring without pain from monnth 6 until month 11 post OP and then pains came unexpectedly.
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Starting height: 167cm Now 175cm With Strydes Femurs with Dr. Mahboubian
My Video Logged Diary: http://www.limblengtheningforum.com/index.php?topic=64224.0
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