Limb Lengthening Forum

Please login or register.

Login with username, password and session length
Advanced search  
Pages: [1] 2 3 4   Go Down

Author Topic: Bilateral Tibia Lengthening and Varus correction with TSF  (Read 37789 times)

0 Members and 1 Guest are viewing this topic.

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Bilateral Tibia Lengthening and Varus correction with TSF
« on: May 06, 2016, 05:59:08 AM »

4/4/2016 – Day of the surgery

Initial Height: 160.5 cm
Target Height: 166 cm
Wingspan: 173 cm
Method: Externals using TSF
Doctor: Manesh Dhawan
Cost: 15k USD

Preface: Before I begin this diary, I would like to thank KiloKhan and Phoenix for all the valuable information/support they have provided on this forum, which has immensely helped me in choosing the right doctor.

On the day of the surgery: I was very nervous on the day of my surgery. I got admitted the night before the surgery on 4/3/2016, at around 10:00pm. I was told not to eat or drink after 12:00am, and to sleep tight and wake up at 6:00am.I couldn’t sleep at all due to the nervousness and anxiety. At 6:00 am, my surgery preparations have started - which includes conducting a series of tests like blood test, urine test etc. I had history of seizures. So my surgeon and the anesthesia team had to get consent from neurology department that I’m ready for the surgery and don’t show any signs of seizures. So I was taken to the neurology department. They performed MRI scan and ECR reports, and gave their blessings for the surgery. I was then on my way to the operation theatre at around 11:00am.

During the procedure: On my way to the Operation theatre, I got to have a quick chat with one of the anesthetist. She explained the finer details of the procedure – like how many folks would be present in the surgery room and what their responsibilities were. We have the anesthesia team (3 members), Surgeon’s team which includes Dr. Dhawan and his two assistants, three nurses (dedicated to clean blood), and couple of folks from TSF team (they need to keep track of and provide necessary TSF equipment – like rings, screws, pins and distractors, to Surgeon’s team). First the anesthesia team would induce local anesthesia, and once it’s active the Surgeon team and the remaining teams would start operating. They put a green robe front of my chest, while lying down on the surgery bed, so that I don’t see my lower half. I looked around the room for any reflective surfaces :P behind me, so that I can peep, but couldn’t find any. So I just stayed relaxed and waited for the procedure to be over.

I was given spinal anesthesia, instead of general anesthesia, because I have a history of seizures. Spinal anesthesia wouldn’t knock you off completely. It’s a form of regional anesthesia – In my case, I couldn’t feel the lower half of my body, but I was awake during the procedure. So I got to see how the team operates, how they coordinate and interact with each other, and trust me it was very funny and scary at the same time. Funny because the Dr. Dhawan was constantly yelling (like tough love) at his team members to ensure they do their work correctly, and scary because I could hear loud noises of my bones getting broken with the chisel. The procedure was done first on my right leg, which took about 3 hours. Then the teams took about 30 mins break and performed the same procedure on my right leg. After operating on my right leg, Dr. Dhawan’s team members were swapped by new folks. He however continued to remain throughout the procedure. From what I heard during the procedure, he handles critical aspects of the surgery, leaving the rest less critical jobs to his team mates under his supervision.

I would like to mention that Dr. Dhawan had reiterated multiple times to everyone in the operation theatre that this is a cosmetic surgery and not a typical leg lengthening surgery for trauma or leg-length discrepancy patients. So the room for error should be zero, and the teams have to make sure they don’t introduce any new complication, and I should be able to return back normal after the procedure. That felt very reassuring that I chose the right doctor.

Post-surgery, I was taken back to my room at around 11:00pm. I was given pain killers round the clock for the next 4 days, so I didn’t feel much pain. On day 2, the physiotherapist asked me to stand up with assistance of Zimmer frame. On day 4, he asked me to walk for few steps. I was able to manage both the sessions with little pain. I was discharged from the hospital on April 7th. Dr. Dhawan said that lengthening would begin from 10th day. I came home on April 7th, and relaxed for the next couple of days. I was given medication for the next two weeks. It includes anti-biotics, pain killers (I’ll include a separate post about pain killers), antacid tablets. I started physiotherapy sessions at home from April 9th for 1 hour. Antacid neutralized acidity in the stomach. I had to take this pill first thing in the morning on empty stomach, for as long as I’m taking anti-biotics.

Images:
X-Ray of my legs before surgery:


TSF Frames:



Key Info regarding my frames
TSF frames have about 2 or 3 big rods, per leg, that protrude outside the ring. These rods are usually placed in such a way that they protrude towards the other leg. This kind of set up would lead to constant collision while walking, sleeping and while cycling in gym, which is very inconvenient. To my pleasant surprise, these rods where placed towards outward side of the leg, so I’m able to perform above tasks without collision of rods. If you have plans for LL, you may request your doctor to install these rods like mine, which can be a huge deal. See below screenshot for clarity.


Why did I decide to go with TSF?
I have mild bowleg and I’m quite over weight (76kgs – BMI = 29.8 ). TSF allows for very precise correction of Varus (bowleg). Also, Dr. Dhawan insisted to go with TSF as the complications are less, and it provides full weight bearing (which is a must for fat ass like me) from next day of the surgery. It also provides better structural rigidity over other illizarov frames, and it has only two rings with ample space above my ankle (Standard illizarov frame has 3 rings, and the bottom ring would be very close to ankle, making it difficult to exercise ankle. This makes difficult to control foot drop). See below screenshot for clarity

Right Leg:


Left Leg:



April 15th – Unbearable nerve pain that made me cry; More about Painkillers for dummies
On the night of April 15th, I got severe nerve pain on my left leg near the pin site (left side) below my knee. It was unbearable and I cried couple of times due to the severity. I had to put my left leg in static position the whole night (9:00pm to 8:00am). I never in my life experienced such a pain. I called doctor at 8:00 in the morning and he prescribed Lyrica tablet. I ordered it in the nearby medical store and they delivered it at around 12:00pm. I took the tablet and slept tight for few hours. Since this incident, I developed stiffness in my left knee which lasted for the next 10 days. Now, I want to take a moment and explain of various types of pains I experienced post-surgery.
  • Skin pain near the pin sites. Prescription – Hifenac-D is prescribed for this pain. This is a heavy dosage pain-killer, therefore doctor asked me to take this only for the first two weeks post-surgery. Ultracet tablet is prescribed after two weeks, which is a milder version of Hifenac.
  • Muscle ache/tightness/stiffness/Sprain – I apply some pain killer spray (used for sprain) and massage on the target area. This pain is prevalent on my calf. Sometimes it gets so annoying that you cannot sleep. You can also heat coconut oil and massage daily on your thighs and calf, it feels very relaxing.
  • Nerve Pain – This is the worst pain that I encountered so far. Doctor has not given me any medication for this pain because I shouldn’t be getting this pain in ideal scenario. But you know that LL journey is nothing but ideal. I was taking Hifenac pills but they didn’t work at all. Lyrica tablet should be used for this. The way it works is that it numbs your neurons, making them less susceptible to pain. This is a very addictive tablet, so I only took these pills for 3 days (1 pill per day). I suggest you to keep this pill with you, even if your doctor doesn’t prescribe it, as it can help you in emergency situations like mine.


May 4th – 1.5 cm done

I finished lengthening 1.5 cm. So far, my journey has been smooth with little discomfort. I felt severe calf pains when I distracted 1mm per day. I then distracted .75 mm for 3 days, and the pain reduced. I’m now distracting .75 mm per day to avoid muscle pain. I’m also having a tough time sleeping. I sleep only for around 2-4 hours per day. Regarding physiotherapy, I perform 2-3 sets of physiotherapy exercises on my bed per day. One the morning, one in the evening and the last one late night. Along with that, I stand up/walk for about 30-45 mins per day during evening/late night. We have a gym downstairs, so I spend 30 mins cycling and about 30 mins on upper body exercises. I think I’m getting used to this life.
 
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

Cheez

  • Newbie
  • Offline Offline
  • Posts: 64
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #1 on: May 06, 2016, 08:19:21 AM »

Wish you all the best, Man...

Those looks like some Sci-Fi-Ilizarov-Fixators compared to what you can see in those russian diaries...
Logged

ub40

  • Full Member
  • **
  • Offline Offline
  • Posts: 280
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #2 on: May 06, 2016, 10:21:12 AM »

Thanks for posting this. Congrats  on the surgery and I'm sorry about the pain. It will be worth it in the long run, just stay strong
Logged
170-176 cm, May 2016 still consolidating

Alittletooshort

  • Sr. Member
  • ***
  • Offline Offline
  • Posts: 706
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #3 on: May 06, 2016, 10:26:39 AM »

Wish you all the best, Man...

Those looks like some Sci-Fi-Ilizarov-Fixators compared to what you can see in those russian diaries...
This has nothing to do with the country you´re getting operated in, the reason he has them on is because the TSF is better for treating deformities.
@OP
Wish you all the best!
Logged

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #4 on: May 06, 2016, 04:51:55 PM »

@Cheez - Thanks man. Yes, TSF looks bulky as it has 6 distractors. But I can assure you that it's comfortable enough and very stable, considering the fact that I do tend to move my legs a lot.

@ub40 - Thank you. The pain has now become manageable. Hopefully it'll stay that way.

@Alittletooshort - Thank you.

@All - Let me know if there is anything in particular that you want me to elaborate on. I'll try my best to answer your queries.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

varusilizarov

  • Newbie
  • Offline Offline
  • Gender: Male
  • Posts: 54
  • Genu Varum : more that a cosmetic problem...
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #5 on: May 07, 2016, 05:15:21 PM »

Hi Fujitora,

In your post: "It also provides better structural rigidity over other illizarov frames, and it has only two rings with ample space above my ankle (Standard illizarov frame has 3 rings, and the bottom ring would be very close to ankle, making it difficult to exercise ankle. This makes difficult to control foot drop). See below screenshot for clarity"

It´s not true!, I have Ilizarov Standard frame and I have not any problem with exercise ankle.



Thanks.
Logged
Genu varum correction at Ilizarov Center
Russia - Kurgan
@2016

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #6 on: May 08, 2016, 08:07:52 AM »

Hi varusilizarov

I'm not expert about standard illizarov frame because I never had it on my legs. However, I've closely watched couple of LL'ers over here, one with standard illizarov frame and another with TSF. My statement on this matter is nothing but the feedback I got from both of them. Even when I spoke to the doctor on this topic, he mentioned that Standard Illizarov frame would restrict ankle movements a bit, because there would be lot of soft tissue and nerves towards end of the bone, and having pins accumulated close to such an area would make ankle movements not so flexible (compared to TSF, where there are zero pins near ankle) and inconvenient. I'm however happy for you that you have no problem with exercising ankle.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

determination

  • Newbi
  • Visitor
  • Offline Offline
  • Posts: 20
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #7 on: May 08, 2016, 09:58:40 AM »

I did not understand how this frame works.
Can you tell us in short sentence please?
Logged

varusilizarov

  • Newbie
  • Offline Offline
  • Gender: Male
  • Posts: 54
  • Genu Varum : more that a cosmetic problem...
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #8 on: May 08, 2016, 12:27:14 PM »

Hi Fujitora,

I understand very well the explanation from your doctor, not problem.

Ilizarov method is less invasive all others, wire are only of 1.8mm. A doctor specialist must to be very experienced for used this method, sometimes this method is very complicated to learning for doctors. If a doctor is expert in Ilizarov´s method, you will not have any problems with ankle, contractions, pains, feel like a electrical shock, nerve damage, skin scare, etc.
Scars are very little if you compare with scars of a screws.
Note: Taylor system is more expensive, some times doctors need to make a lot of money!

Congratulations, you have a god daily.
Logged
Genu varum correction at Ilizarov Center
Russia - Kurgan
@2016

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #9 on: May 09, 2016, 10:50:44 AM »

@determination - TSF has two rings per leg. The one near the knee is a half ring, and the one below is a full ring. Each leg has 6 struts that have scale grading in millimeter. TSF comes with a software. When we enter the initial grading of each strut in that software, it automatically gives us a the correction chart. Depending on the severity of varus(bow leg), the number of days of correction chart varies. Similarly, if we want to use the software to provide chart for lengthening, we need to enter the desired length (like 5 cms or 6 cms), and it gives the distraction sheet of each strut per day. I've posted a picture of distraction sheet of my right leg below.

Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #10 on: May 10, 2016, 11:37:59 PM »

May 11th Update:
Completed 2 cms of lengthening.Things are going well for the most part. The only inconvenience I have is that I have a hard time getting into sleep mode.

Physical Activities:
I keep my day physically very active to avoid sore calf and muscle stiffness/pain. Below is the schedule I've been following for the last 3 days, and it's working pretty well.

Walking/Standing -                                   1.5 to 2 hours.
Physiotherapy session with physiotherapist - 1 hour
Physiotherapy/Exercises (myself) -              1 to 2 hours
Gym (work out on upper boy) -                   1 hour

Also, I wanted to show you guys how the distractors are turned on TSF frame. Hope this is informative.
https://www.youtube.com/watch?v=JV7rjR_WPlk&feature=youtu.be
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #11 on: May 24, 2016, 05:12:50 PM »

May 24th Update:
Hi everyone. Today, I reached 3 cm. The extra length is definitely noticeable. I got feedback from my friends over here that my tibia earlier was considerably short with respect to my overall body length. At 3 cm, it now looks good and proportionate.

Things are going well over all. I lost quite a bit of weight - became 70 Kg (was 76 Kg prior to the surgery). I guess major reason for the weight loss can be attributed to muscle atrophy. I still see chunks of fat and loose skin hanging around my thighs and hips. I'm trying my best to exercise and get in good shape.

I met the doctor today. He stated that my bone growth looks good and I should continue walking and exercising, and retain my current physical state for the next few cm. Now that I completed 3 cm of lengthening, my bow leg correction would start from today. I'm guessing it would last for next couple weeks, and then further lengthening would resume.

X-Ray:
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #12 on: May 25, 2016, 10:50:43 PM »

Please help! Need some information regarding bone grafting.
Hi Everyone. I'm trying to find information regarding bone grafting. As you know, I'm currently undergoing lengthening using external frames, which can take up to an year for recovery. So I'm trying to find out if bone grafting can help reduce the consolidation period. Specifically, I want to know if allograft can be used for my case, as it doesn't need another surgery to extract bone from my body. I want to know if it's feasible or advisable to perform on tibia bone, and what's the recovery rate - for say 6 cms.

I found couple of posts on this forum about grafting, but they only state that grafting is performed in the event of non-union. I couldn't find if grafting is performed in a situation where there isn't a non-union, but to accelerate bone formation and speedy consolidation.

Appreciate your support on this. Thank you.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

KiloKAHN

  • Moderator
  • Premier Member
  • ****
  • Offline Offline
  • Gender: Male
  • Posts: 2279
  • Digital Devil
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #13 on: June 15, 2016, 06:25:29 PM »

I haven't heard of bone grafting being used to just speed up recovery. I think they'd have to take the bone from your fibula for the graft. Has Dr Dhawan said anything to you about what he thinks of your idea? If it were me I'd just go through the process normally and avoid the grafting. With any surgery there are risks. Why take more?
Logged
Initial height: 164 cm / ~5'5" (Surgery on 6/25/2014)
Current height: 170 cm / 5'7" (Frames removed 6/29/2015)
External Tibia lengthening performed by Dr Mangal Parihar in Mumbai, India.
My Cosmetic Leg Lengthening Experience

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #14 on: June 17, 2016, 06:05:02 PM »

Thanks Kilo. I haven't asked the doctor about it yet, I was planning on asking him after lengthening is done. I wanted to get the input from Sr. Members of the forum prior to that so that I have sufficient information. On the same note, I found few diaries where they've used low intensity ultrasound device to accelerate bone healing (like Exogen and Sonic 628 WD). I called Exogen customer care to find out the price and I'm surprised that it costs a whopping 4000$ without insurance. So Exogen is out of reach. I don't know if there are other affordable ultrasonic devices, I'll keep researching. Please let me know if you know of any.

I'm thinking of "plating" post lengthening. I was told that plating can hamper bone growth.  I read an article few months ago that plating done with bone graft can significantly reduce the consolidation time. In that article, the average consolidation rate was 20 weeks, which is 5 months. I want to be able to get back to my life as early and safely as possible, which is why I'm researching options like grafting etc. You're right that there are risks with extra surgeries, so I'm also researching for non-surgical options like ultra-sound device etc.

Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #15 on: June 18, 2016, 09:55:54 PM »

Gym Workout Video
I'm sharing this video to provide my current state of movement, flexibility & proportions.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

Penguinn

  • Moderator
  • Sr. Member
  • ****
  • Offline Offline
  • Gender: Male
  • Posts: 1235
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #16 on: July 13, 2016, 07:46:27 PM »

Any updates?
Logged

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #17 on: July 14, 2016, 05:43:36 AM »

I'm going through few complications over the last few weeks. I'm waiting to get them fixed before posting on the forum, so that I post factual information  rather than something emotional and biased info (which I'll regret later).
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

OregonMade

  • Newbie
  • Offline Offline
  • Posts: 90
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #18 on: September 06, 2016, 11:50:35 PM »

In the states they take it from the hip. 

I haven't heard of bone grafting being used to just speed up recovery. I think they'd have to take the bone from your fibula for the graft. Has Dr Dhawan said anything to you about what he thinks of your idea? If it were me I'd just go through the process normally and avoid the grafting. With any surgery there are risks. Why take more?
Logged

OregonMade

  • Newbie
  • Offline Offline
  • Posts: 90
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #19 on: September 06, 2016, 11:58:04 PM »

Thanks Kilo. I haven't asked the doctor about it yet, I was planning on asking him after lengthening is done. I wanted to get the input from Sr. Members of the forum prior to that so that I have sufficient information. On the same note, I found few diaries where they've used low intensity ultrasound device to accelerate bone healing (like Exogen and Sonic 628 WD). I called Exogen customer care to find out the price and I'm surprised that it costs a whopping 4000$ without insurance. So Exogen is out of reach. I don't know if there are other affordable ultrasonic devices, I'll keep researching. Please let me know if you know of any.

I'm thinking of "plating" post lengthening. I was told that plating can hamper bone growth.  I read an article few months ago that plating done with bone graft can significantly reduce the consolidation time. In that article, the average consolidation rate was 20 weeks, which is 5 months. I want to be able to get back to my life as early and safely as possible, which is why I'm researching options like grafting etc. You're right that there are risks with extra surgeries, so I'm also researching for non-surgical options like ultra-sound device etc.

When I got back to the states the doctor gave me whats called a bone marrow stem cell shot, which is an innovative way to speed up the bone healing and just recovery in general.

  Here is a link:http://www.andrewssportsmedicine.com/getpage.php?name=regenerative-injection-bone-marrow

Since it is so new, it may be hard to find.  The best places you could start in India is SPORTS therapy hospitals.  OR sports therapy doctors, since the best candidates for this procedure are athletes, you will want to reach out to there doctors.   
Logged

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #20 on: September 07, 2016, 05:17:50 AM »

Thanks man. This looks like a valuable find, thanks for sharing it with the forum.

Luckily, this therapy is available in India/Delhi. Site: http://www.stemcellcure.in/

I reached out to them and explained my case. They've confirmed that they provide this procedure and asked me to provide latest X-ray to assess my case and suggest appropriate course of action.

I met Dr. Dhawan yesterday and asked him what his thoughts are about this procedure. He was totally against it and told me not to take short cuts.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #21 on: September 19, 2016, 10:13:30 AM »

Status Update: Completed Lengthening and started consolidation.

Hi All

I haven't updated my diary in a while because I was going through some complications over the last couple of months. I was worried that I might say something in that emotional state, which I might not necessarily find true later. So I refrained from posting anything because I don't want to provide biased information or rant about doctors, which is not beneficial to anyone. I wanted to wait until the dust settles, look at the events objectively and provide my honest thoughts. I took note of critical events in a local diary so that I don't miss anything when I retrospect. For now, I just want to give a brief update as to how I'm doing now and what my next steps are.

As of now, all the complications are fixed and I stopped lengthening couple of weeks ago. I achieved 5 cm gain which puts me at 165 cm. I feel little sad that I didn't hit the sweet spot (6 cm) but I'm very happy otherwise because my complications are fixed and I'm ready to start the consolidation. I know 165 is still perceived as short by a lot of people but I have to respect the science of LL and biology of my body, and don't want to push too hard and end up causing irreparable damage. Moreover, I have a short torso, so lengthening any further would have taken a toll on my proportions. I'll provide a detailed post in coming days about what these complications were and the way they're dealt.

Even with just 5 cm lengthening, I have 1 inch ballerina. I'll be honest, I became little lethargic over the last few weeks and didn't exercise as much I used to. So I have to focus more and get this fixed.

Regarding consolidation, I was looking for any therapies that can speed up the bone growth. I got to know about Stem cell therapy (thanks to Oregonmade) and I researched about it. I have a consultation today with Dr. Ranyal to discuss about this. I'll update you more later today.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

Penguinn

  • Moderator
  • Sr. Member
  • ****
  • Offline Offline
  • Gender: Male
  • Posts: 1235
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #22 on: September 19, 2016, 10:17:56 AM »

2 inches is still a good gain with which you will have a great recovery. Congratulations.
Logged

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #23 on: September 19, 2016, 10:38:18 AM »

Thanks man. Yeah, I read many diaries that recommend almost full recovery at 2 inches. So I'm optimistic.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

Bander72

  • Sr. Member
  • ***
  • Offline Offline
  • Gender: Male
  • Posts: 725
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #24 on: September 19, 2016, 10:41:13 AM »

Yup and TSF is very good, I am considering using that.
Logged
Bander72: Banned for Impersonating A Dr (fake Dr.Monegal)  account

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #25 on: September 19, 2016, 12:54:15 PM »

<WIP>
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #26 on: September 19, 2016, 01:36:32 PM »

Consultation with Dr. Jaspal Singh Ranyal about Stem Cell Therapy
Profile:
https://www.practo.com/delhi/doctor/dr-jaspal-singh-ranyal-orthopedist?subscription_id=0

Services Offered:
General Orthopedics
PRP & Stem Cell Therapy
Prolotherapy

Address:
The Bone and Joint Clinic, G-44, Pushkar Enclave, Paschim Vihar, New Delhi, Delhi 110063

My consultation:
I called Dr. Ranyal last week to enquire about Stem cell therapy. I explained my case that I had limb lengthening surgery 5 months ago, and I'm looking for options to reduce my consolidation period. He told me to schedule an appointment. He said he cannot provide cost details over the phone as it's subjective, and he wants to examine my case in detail before commenting on options. So I scheduled an appointment for today, and visited his clinic. The consultation fee was 700 INR (11 USD).

Here is a gist of our conversation.

Me: Hello Dr. Ranyal.
Doc: Hello, Please come in.

Me: Should I pay the consultation fee at the reception ?
Doc: We can see that later, after consultation is over. Please come in.

I got my wheelchair, so I wheeled in. I didn't know that the clinic provides wheelchair. The clinic staff were kind and supportive. I told him that we talked over phone last week and he remembered me. He asked why I got LL surgery done at the age of 27. I just smiled and said my height was very short and I wanted to gain few inches. He didn't judge or pass on any comments/feedback.

Doc: Where did you get your surgery done ?
Me: In Gangaram Hospital, under Dr. Dhawan.

Doc: So you want to know if Stem cells can speed up your bone formation ? What do you know about stem cells ?
Me: I read some articles about Mesenchymal stem cells, which are taken from Iliac crest bone, that can help in healing bone fractures.

Doc: Let me explain in detail. There are three different types of stem cells available in the market.
1) Embryonic Stem Cells - Found in the mothers womb when the first zygote is formed.
2) Adult Stem Cells - Mesenchymal stem cells found in bone marrow or body fat. These are autologous, as in taken from the patients own body.
3) Umbilical cord - You know where these come from.

Each of the above stem cells have different characteristics. Let me explain them.
1) Embryonic stem cells have a tendency to multiply rapidly, and sometimes it becomes uncontrollable. So I don't recommend these to anyone, lets skip it.
2) Adult Stem Cells cells are the safest, but it requires a surgery to extract them, and the surgery can cost upto 2.5 lakhs (4000 USD), and you'll have to be hospitalized for couple of days.
3) Umbilical cord Stem cells are available from labs at the cost of 2000 INR per ml. I would need about 10ml per each leg, so the total cost will be 40,000 INR. These don't have antigens or antibodies, so there is no risk of body rejecting them. The only drawback of these stem cells is contamination, and inherent challenges. E.g. The lab may not have stored them in proper conditions which can contaminate the stem cells. When such cells are injected, it can lead to bone infection.


Me: (Interrupted him and asked) Do you think stem cells really speed up fracture healing ?
Doc: Stem cells help in accelerating bone formation. I have done it on other patients, but not on someone who had cosmetic limb lengthening, where the bone gap is so huge. So I cannot promise that you'll heal faster through stem cells. Did you ask Dr. Dhawan about his thoughts on stem cells ?

Me: Yes, I asked him but he didn't know much and he was totally against it. He was worried that I'm looking for shortcuts.
Doc: Yeah, Even I haven't done it on cosmetic patients. I have however done it on regular fractures and the results are quite good. I dealt with a case of minor fracture case which didn't heal since 3 months. I did Stem Cell Therapy along with PRP and he was able to get back to normal in 3-4 weeks. I'll give you his no. and you can talk to him.

Me: Okay sure. I read about PRP (Platelet Rich Plasma) as well, but I didn't knew it was that effective for bone healing.
Doc: Yeah, PRP works well too but not as effective as stem cells. PRP is also cheaper. For stem cells (Umbilical cord), the total cost would add up to 65,000 INR (1000 USD) where as for PRP the cost would be 40,000 INR (600 USD). PRP however is lot safer as the platelets are collected from your own blood, and there is no risk of bone infection.

Me: I want to take the safest route. My natural bone formation is also very good, so I don't want to take risks and want to tread cautiously.
Doc: Okay, sounds fair. So I've provided you with all the options, think about it and let me know how you want to proceed. Based on your psychology, I would suggest to go with PRP first. This is because we don't know if stem cells would work on you. So if you spend 2.5 lakhs (Adult stem cells) or 70K (Umbilical cord stem cells), and then if it doesn't work then you'll be terribly disappointed. So let's go with PRP first, look at the consolidation after 1.5 months and then see if we need a second PRP therapy or to go with stem cells.


We then talked about my personal life, and other stuff. He said that he used to Limb Lengthening back when he was in Libya. That was however on polio cases, which was pretty prevalent at that time in Libya . He told that he operated on lot of girls there who had crooked legs and leg deformities due to polio. He smiled saying that they used to come before marriage to get their legs straightened.  He then said I need to be positive and optimistic, and not to lose faith this will all be over soon and I'll start walking again.

My thoughts on consultation: I think it went well. I'm glad that he didn't sell it. He was honest that he didn't perform this therapy on cosmetic patients, and he didn't make magical promises that stem cells will magically fix my bone in 1-2 months. He gave me contact No. of another patient who has underdone this surgery, to get his feedback. The costing details for PRP or Stem cell procedure was reasonable. He was very attentive and patiently listened to all my queries. I'll meet other doctors and I'll wouldn't hesitate to go to him for PRP procedure.

Let me know if you have any questions.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fritz

  • Visitor
  • Offline Offline
  • Posts: 22
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #27 on: September 23, 2016, 11:16:14 AM »

Hi fujitora,

i have been following this forum for about a month and untill now i tried to find the answers of my question from the posts. but i think i should ask you something about LL and bow legs correction.

Im 173cm and 73kg but my legs have been always thin and i have bow legs. so i have been considering about bow leg correction for a few years but i also read that its worth to get LL if i will have bowleg correction surgery anyway. so i thought it would be ofcourse great to gain a few extra inches...

My questions are,
1- Is it really worth LL+bowleg correction, or is only bowleg correction muuuuch easier?
2- Which methods can be used for LL+bowleg correction at the same time? is the only method classic ilizarov for it? or with LON method is it possible to do LL and bowleg correction at the same time?
3- I would like to gain 5-6 cm, and as i read your diary, it seems possible, but how long would it take to come back to normal life again. for example: walking without any support, riding a bicycle, swimming, dancing etc.
4- Would you get taller if you had just bowleg correction surgery? so as you wrote you gained 5 cm, but did you get it only from LL or did you gain any cm from bowleg correction as well?

i just want know your opinion and your answers about those questions..
thanks..
« Last Edit: September 23, 2016, 11:51:37 AM by fritz »
Logged

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #28 on: September 24, 2016, 04:31:51 PM »

Hi Fritz

Happy to help. Here are my responses.


My questions are,
1- Is it really worth LL+bowleg correction, or is only bowleg correction muuuuch easier?
To answer if LL+bowleg correction is worth it, you have to take multiple factors into account - like your initial height, extent of height neurosis, amount of time you have, affordability, type of social life you have. I was very short (at 160 cm) and I have height neurosis, had 1 year time for this procedure, and not so active social life apart from my family. So I see so much value in it.

I don't think bow leg is easier than LL. In either cases, your tibia is broken. You go through almost same level of trauma albeit for less duration in case of bowleg correction. Bow leg correction is usually on one leg at a time, and required 3 months per leg with 1 month gap (so total of 7 months). You can insist the doctor on doing both the legs at once, in which case it would be over in 3-4 months. Also, the external fixator that Parihar uses for bowleg is much smaller and very convenient as compared to standard Illizarov. So you can say bow leg correction is more convenient than LL. However, I only felt inconvenience only for 1st two months during LL. Then your body gets used to it and time runs faster. I can't believe that I'm already 6 months past my surgery. Time really flies :) Anyways, I'm giving you the facts and my experiences to help you make the right choice. So if you have time, then LL is not difficult as compared to bowleg correction, but inconvenient for sure.

Only last thing that to consider is full recovery. During LL, your legs are not as active as they normally are. So you don't perform all the leg movements that you used to perform when you're normal. Your muscles forget those movements when you don't perform them for long time (like 6-12 months). It takes effort, persistence and dedication to train them and get back to normal, but it's not very easy. So if you want full recovery, I suggest you do only bow leg correction because you'll be in that dormant state only for 3-4 months, so your chances of becoming normal again are higher and faster.


2- Which methods can be used for LL+bowleg correction at the same time? is the only method classic Illizarov for it? or with LON method is it possible to do LL and bowleg correction at the same time?
TSF, in my opinion, is the best for LL+Bowleg correction. It's full weight bearing, and very convenient with just 2 rings. Full weight bearing is very beneficial - it allows you to walk with full weight on your legs, even during lengthening phase. This is very helpful to fight ballerina and callus formation. TSF is a bit expensive, around 15k with Dr. Dhawan. So if money is a concern, you can go with standard Illizarov frames where bow leg correction is done post lengthening using Hexapod struts. Dhawan doesn't do Hexapod anymore (just FYI), he only prefers TSF and I totally see why he made that choice.

LON is not possible if you have bow leg, because it's not possible to put in a nail. To put it simply, you cannot put a "straight nail" in "bent legs". However, it also depends on the extent of bowlegs. If you have very mild bow leg, then I think LON is possible. If you're worried about wearing frames during consolidation, you can choose to get plating surgery post lengthening but most doctors are against it (even Dhawan) because it's not considered as stable and sturdy as nail fixation. I've recently been reading about stem cell therapy to speed up bone consolidation, but there is no concrete evidence so far. But if it works, then I would think that's a much better option to go as compared to Nailing or Plating.

3- I would like to gain 5-6 cm, and as i read your diary, it seems possible, but how long would it take to come back to normal life again. for example: walking without any support, riding a bicycle, swimming, dancing etc.
I cannot answer this question correctly because I'm not back to my normal life yet. But, I'm in touch with Phoenix and based on his recovery you can start walking without support with in 9 months. Note, he was able to walk with out support but he still had frames on. His frames got off after 1 year, and he was able to go back to his normal life. You'll be able to walk but you'd have very difficulty in jumping, running or dancing. You wont have your previous strength in your legs, it can take up to 1.5-2 years or even more to be honest, to run/jump/dance.

4- Would you get taller if you had just bowleg correction surgery? so as you wrote you gained 5 cm, but did you get it only from LL or did you gain any cm from bowleg correction as well?
I don't know. Please ask "varusilizarov" - he has done only bowleg correction. He might be able to provide accurate answer. But logically speaking, yeah I think you would gain some height with bow leg correction and the amount you gain would depend on the extent of bowleggedness (I just made up that word :P). The more bent they are, the more you'd gain.

I hope I answered your questions. Let me know if you need any more info.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0

fritz

  • Visitor
  • Offline Offline
  • Posts: 22
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #29 on: September 25, 2016, 05:10:00 PM »

Hi fujitora ,

first of all thanks a lot for your detailed answers!

As i understood, it takes about min 3-4 months even if i have only bowleg correction but healing time will be shorter shorter than LL.
I live and work in Germany but im from Turkey. So if i compare the prices, LL is much cheaper in Turkey. So i was thinking of having bowleg correction (even maybe with LL) in Turkey and then come back to Germany and normal life(working etc). In this forum i found Muharrem Inan; who does LL in Istanbul and he uses classic ilizarov and LON..LON seemed to me better(i might be wrong though), thats why i asked about LON method..

Actually there no huge difference between 4 months and 6 months for me. Also for me the most important part is, when i can begin to work again, walk without support and when i wont need any physiotherapy?... Because when i come back to germany i dont want to visit any physiotherapist. I just want to walk without any support and to be able to work... (doing sports, jumping, dancing etc are important too, but for them i can wait 1-2 years). For example, you said 3-4 months for bowlegs if they are done at the same time... so after 3-4 month wont i need any physiotherapy anymore? or 3-4 months + phsysiotherapy?

and another part which i couldnt understand very well, do you mean that i cannot jump, dance etc anymore like before the surgery if i get LL? or do you mean that, i can jump, do any sports after LL like before the surgery, but it may take 1,5-2 years? 

I know i should  ask the doctor these questions but i dont wanna go to doctor without any idea :)

Thanks again for your answers
and Good luck! :)
Logged

fujitora

  • Jr. Member
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 109
Re: Bilateral Tibia Lengthening and Varus correction with TSF
« Reply #30 on: September 25, 2016, 05:43:17 PM »

Hi Fritz

Happy to help. Please see my responses below -

For bow leg correction, you'd need physiotherapy for 3-4 months. Post that, you wouldn't need physiotherapist because you'll be aware of what exercises to perform and you'll be able to do those exercises on your own. For example, I only took physiotherapy during lengthening. During consolidation, I do all the exercises myself.

Regarding your second question, I meant that after you go back to your regular life, which is 1 year post surgery for pure externals method, you can walk normally but wouldn't be able to jump or dance like before. Note that to jump, you'd have to exert very strong force through your legs to get you off the ground. It's very hard and unlikely for you to possess such strength in your legs when you start your normal life. You'll also take a big hit on your flexibility and agility, so dancing would be challenging too. It would take a year or more to do these things.

Again, I'm sharing these things based on my personal experiences or LL friends that I personally met and still stay in touch with.

Hope my answers are clear now. I'm happy to help and the reason I started this diary to help my fellow LL friends :) . So feel free to ask anything.
Logged
Pre-Op Height: 160.5 cms
Surgery performed by Dr. Manish Dhawan at Sir Gangaram Hospital on 4th April 2016
Lengthening stopped on 14th Sept 2016
Current height: 165 cms (5 cm)
Frames removed on March 19th 2017 | Diary: http://www.limblengtheningforum.com/index.php?topic=3499.0
Pages: [1] 2 3 4   Go Up