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Author Topic: Dr Giotikas, LON 5cm Tibia  (Read 21358 times)

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TemakiSushi

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #217 on: December 02, 2019, 11:52:22 AM »

Dear,

the first days I was not allowed to walk to much, but because I have a full-weight bearing internal nail I can walk without worrying :-D

Kind regards

Jolien
Do you feel tibias get thicker after lengthening?
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tacoma94

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #218 on: December 03, 2019, 03:57:55 AM »

Hi Jolien,

I cannot thank you enough for this diary. You match my situation almost exactly. I am 168, and due to the risk of PE/DVT/FES as well as price, I am not considering pure internal tibias/femurs, only externals + LATN on tibia. I am going for 4-4.5cm maximum (for safety and personal reasons, I refuse to go beyond this limit), am currently 24 years old. Am also planning to keep this a secret.

I have 3 questions:
1. You mentioned that Giotikas was the best doctor you could find for your price range. I have a bit more funds, and I am strongly considering Donghoon Lee, due to his strength in Tibias+LATN as well as his perfect track record for major permanent complications. May I ask, did you consider him, and if price was not a concern, would he be one of your top choices?
2. Secondly, I read your google doc and you mentioned a 5% chance of internal nail infection. I want to understand this risk better. For the 5%, was it because they did not take good care, or due to the doctor's fault? Are internal nail infections more a fault of the patient or the doctor? And IF a internal nail infection occurred, how did the hospital say they will fix it?
3. Did you ever consider the risk of DVT/PE due to the internal rod? Did the doctor mention anything about the risk, relative to say internal femur or pure externals?

Your answers, if you have time, will be sooo helpful. I wish you the very best and a safe recovery!
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TemakiSushi

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #219 on: December 03, 2019, 12:20:00 PM »

Dear,

the first days I was not allowed to walk to much, but because I have a full-weight bearing internal nail I can walk without worrying :-D

Kind regards

Jolien
Last question I asked wrongly
Correction
Do you feel your calf muscle became thicker after the lengthening?
Or is it due to lots training, you have thicker calf?
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Welcome any NEGATIVE information of Donghoon
Any doctor with more than 5% complication rate is NOT acceptable

Jolien

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #220 on: December 03, 2019, 04:10:19 PM »

Hi Jolien,

I cannot thank you enough for this diary. You match my situation almost exactly. I am 168, and due to the risk of PE/DVT/FES as well as price, I am not considering pure internal tibias/femurs, only externals + LATN on tibia. I am going for 4-4.5cm maximum (for safety and personal reasons, I refuse to go beyond this limit), am currently 24 years old. Am also planning to keep this a secret.

I have 3 questions:
1. You mentioned that Giotikas was the best doctor you could find for your price range. I have a bit more funds, and I am strongly considering Donghoon Lee, due to his strength in Tibias+LATN as well as his perfect track record for major permanent complications. May I ask, did you consider him, and if price was not a concern, would he be one of your top choices?
2. Secondly, I read your google doc and you mentioned a 5% chance of internal nail infection. I want to understand this risk better. For the 5%, was it because they did not take good care, or due to the doctor's fault? Are internal nail infections more a fault of the patient or the doctor? And IF a internal nail infection occurred, how did the hospital say they will fix it?
3. Did you ever consider the risk of DVT/PE due to the internal rod? Did the doctor mention anything about the risk, relative to say internal femur or pure externals?

Your answers, if you have time, will be sooo helpful. I wish you the very best and a safe recovery!

Dear,

1. I've never heard of him, so no I did not considered him. I think I cancelled him out of my options very early because of the price :p

2. For what I think is this 5% a percentage described in the medicine literature, based on previous experience from doctors all over the world. The risk of internal nails infection is so high because the bacteria can travel via the external pins to your bone and when the are in the bone (calles osteomyelitis) they have free access to the internal nail. I was terrified this would happen when I had an infection of one of the external nails at the height of my knee, because there the external nail was suuuuper close to the internal nail. So it is very logic the infection risk is very high. This is why I recommend to keep the external nails dry and to use a des-infectans spray every day at every pinsite (I didnt thought about it till I had an infection at the very end of my lengthening journey). Try to never touch the pinsite is and alway keep it covered with a gauze of something. 

If you have an infected internal nail they will have to take the internal nail out and 'wash' the internal space of your bone out.

3. The risk for pulmonary embolism en DVT is in first instance post-operative because they brake your bone. Bone marrow contains fat that can travel in your blood and cause DVT and Pulm. embolism. So I think you only have a higher risk right after the operation. During the lengthening phase I think everybody has the same risk just because of all the movement (lengthening) inside your leg.

Kin regards

Jolien
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Jolien

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #221 on: December 03, 2019, 04:11:49 PM »

Last question I asked wrongly
Correction
Do you feel your calf muscle became thicker after the lengthening?
Or is it due to lots training, you have thicker calf?

That is correct!!!

This is still edema (fluid) because the bone is still not healed so there is still an inflammation process going on which causes fluid build-up in my legs. This is temporarily till my bone is completely healed :-)

Kind regards!

Jolien
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Jolien

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #222 on: December 03, 2019, 04:26:21 PM »

Dear,

just posted my x-rays I had done yesterday (2/12/2019) = 6 months after completion leg-lengthening

Next x-ray will be in May 2020 because the internal nail can be removed at least one year after completion leg-lengthening, so we are gonna see if the bone healing is completed by then.

Kind regards

Jolien
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TemakiSushi

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #223 on: December 04, 2019, 03:27:37 AM »

That is correct!!!

This is still edema (fluid) because the bone is still not healed so there is still an inflammation process going on which causes fluid build-up in my legs. This is temporarily till my bone is completely healed :-)

Kind regards!

Jolien
Thank you very much for your answer
I’m a bit scared of getting thicker calf since mine is already thick with natural muscles
I don’t train but thick to begin with :'(
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tacoma94

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #224 on: December 04, 2019, 09:04:28 AM »

Hey thank you for the quick reply!

It is likely I will do this procedure, I will definitely make an extremely detailed diary like you for others.

When you said that you sprayed your pin sites with disinfectant, was this something you did from the start or only after you had your first infection? Also, if I am extremely careful, never taking a shower and using disinfectant every few hours, can I eliminate the risk of external/internal infection?
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Great321

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #225 on: December 04, 2019, 12:27:10 PM »

Thank you very much for your answer
I’m a bit scared of getting thicker calf since mine is already thick with natural muscles
I don’t train but thick to begin with :'(

Didn't Dr. Lee recommend wearing compression stockings for 2 years after the surgery to avoid the calves get much thicker? I heard him saying that in one video.
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Great321

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #226 on: December 04, 2019, 12:35:56 PM »

Hey thank you for the quick reply!

It is likely I will do this procedure, I will definitely make an extremely detailed diary like you for others.

When you said that you sprayed your pin sites with disinfectant, was this something you did from the start or only after you had your first infection? Also, if I am extremely careful, never taking a shower and using disinfectant every few hours, can I eliminate the risk of external/internal infection?

The doctor will most likely explain to you how and with exactly which disinfectants you can clean your pin sites. In the beginning I was supposed to do it every day, later it was 3 times a week and even later only once a week. Apparantly too much cleaning can cause problems too. I wasn't allowed to shower for the first 2 months. But I didn't shower for even longer to avoid infections. If you do a thorough "cat lick" or how it's called, you'll be fine. I recommend guys to trim their hair to a few mm, it makes it easier to wash your hair.
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TemakiSushi

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #227 on: December 04, 2019, 03:04:59 PM »

Didn't Dr. Lee recommend wearing compression stockings for 2 years after the surgery to avoid the calves get much thicker? I heard him saying that in one video.
If the thickening is due to the muscle then stocking won’t work.  I was afraid it’s her muscles
if it’s edema then stocking may work I guess
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Jolien

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #228 on: December 04, 2019, 04:07:10 PM »

Hey thank you for the quick reply!

It is likely I will do this procedure, I will definitely make an extremely detailed diary like you for others.

When you said that you sprayed your pin sites with disinfectant, was this something you did from the start or only after you had your first infection? Also, if I am extremely careful, never taking a shower and using disinfectant every few hours, can I eliminate the risk of external/internal infection?

I started spraying after my first infection! I regret this! The important thing is to use a spray, so try to not touch it!! and let it dry on the air and afterwards use clean gauzes. The key thing is to touch it as little as possible and reduce the risk of accidently touching it with something (that's why I used gauzes to cover them up). The second key thing is to keep it dry. I really think this can decrease the risk for infection massively since I have seen a patient who didnt took care of then and didnt covered them and had 'inflammations' constantly and my kinetherapist told me about one of her previous patient who alway showered with it and also had infections.

I this the very most important thing in this entire journey is to use your own common sense and to be as consistent as possible.

Kind regards

Jolien
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Jolien

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #229 on: December 04, 2019, 04:08:15 PM »

Hey thank you for the quick reply!

It is likely I will do this procedure, I will definitely make an extremely detailed diary like you for others.

When you said that you sprayed your pin sites with disinfectant, was this something you did from the start or only after you had your first infection? Also, if I am extremely careful, never taking a shower and using disinfectant every few hours, can I eliminate the risk of external/internal infection?

One small addition; use a disinfectans without alcohol (ethanol) cause this causes tissue damage which can eventually increase the risk for infections.

Kind regards

Jolien
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cam007

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #230 on: February 16, 2020, 06:21:24 AM »

Ive lurked for a while and this is one of those most comfortable feeling diaries I’ve read.   I have more than half my money saved and am also doing LON Tobias max 5.5cm.

Im a guy though but am super surprised with your patience , especially with everyone asking the same questions half the time Becuase they didn’t read thru the diary smh.

I’ve written down all the vitamins and exercises and read your pdf in your drive . I’m going to try and copy every thing you did so I can move like that in 5mths too. I’ve only told one person I’m doing this. Everyone else I don’t care what they think and they can talk to me when I’m 2inch taller lol.

Congrats on having a good recovery !
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LL surgery expected 1st quarter 2021. About 65-70% saved. Almost all supplements/vitamins already bought. Doing 5cm minimum/5.5cm maximum Tibia LON.  Looking at giotika parihar or sharma as of now.
 Under 5’8/ 172cm

Alexa

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Re: Dr Giotikas, LON 5cm Tibia
« Reply #231 on: February 27, 2020, 09:48:55 PM »

Hey girl!

Thank you so much for sharing your experience :)

Just wondering how your scars are doing and if they look any different from when you first shared?

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