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Author Topic: LON in Vietnam  (Read 14802 times)

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lucindaris

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Re: LON in Vietnam
« Reply #155 on: April 26, 2018, 10:13:28 AM »

Just  multiply by 2.
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Hamiltonzac

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Re: LON in Vietnam
« Reply #156 on: April 26, 2018, 11:21:00 PM »

Where is your info coming from? Dr. Solomin and Dr. Kulesh are very experienced and there have been multiple patients here who had a successfull LL with them. It is so cheap because the Rouble(russian currency) has fallen by a huge amount. Please don't compare it to India. I'm not just saying this because I'm getting it done there myself but based on sole facts coming from this forum and also other patients. After all it's the birthplace of the LL itself, that has to account for something.
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Surgery March, 2019 in Russia with Dr. Solomin/Dr. Kulesh.
Morning height: 168cm Afternoon: 166cm
Goal: Femurs and Tibia, 12-14cm LON
20 year old male.

Android

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Re: LON in Vietnam
« Reply #157 on: April 27, 2018, 12:02:35 AM »

Hamiltonzac, not sure I understand why you're talking defensively in the last message.

You asked "What are the lengthening costs in vietnam for 2 segments?" and the cost is whatever it is for one surgery multiplied by two. $18,000 * 2 = $36,000 for both tibias and femurs.
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5'4" and 1/4" (163.2 cm) | United States | early 30s | Pre-CLL

Hamiltonzac

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Re: LON in Vietnam
« Reply #158 on: April 27, 2018, 12:11:01 AM »

Myloginact mentioned that Russia is "risky". I don't exactly see why?
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Surgery March, 2019 in Russia with Dr. Solomin/Dr. Kulesh.
Morning height: 168cm Afternoon: 166cm
Goal: Femurs and Tibia, 12-14cm LON
20 year old male.

Android

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Re: LON in Vietnam
« Reply #159 on: April 27, 2018, 12:29:59 AM »

Myloginact mentioned that Russia is "risky". I don't exactly see why?

Ah, I see. Do consider quoting a message if you're replying to something several messages old, especially since he said that a month ago. I was confused since context had changed to pricing.
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5'4" and 1/4" (163.2 cm) | United States | early 30s | Pre-CLL

Hamiltonzac

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Re: LON in Vietnam
« Reply #160 on: April 27, 2018, 12:41:30 AM »

Sorry about that. I'm using my phone so it's sometimes difficult.
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Surgery March, 2019 in Russia with Dr. Solomin/Dr. Kulesh.
Morning height: 168cm Afternoon: 166cm
Goal: Femurs and Tibia, 12-14cm LON
20 year old male.

myloginacct

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Re: LON in Vietnam
« Reply #161 on: April 27, 2018, 12:52:48 AM »

Myloginact mentioned that Russia is "risky". I don't exactly see why?

I just play the "better safe than sorry" game in these forums. I don't want any of my posts to seem like I'm encouraging others to get it done somewhere they might face more problems than with someone like Paley. I haven't done LL yet myself, so I also can't really comment much. But LL is a very invasive and intensive process, and I feel you need to tread carefully when making posts.

To make it clearer: Russia is probably riskier than doing LL somewhere like at the Paley institute. Vietnam is most likely riskier than Russia.
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Hamiltonzac

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Re: LON in Vietnam
« Reply #162 on: April 27, 2018, 01:10:25 AM »

I guess the countrues reputation plays a big role in our minds so I somewhat agree to what your saying and why you feel it's riskier in Russia than it is in the States.
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Surgery March, 2019 in Russia with Dr. Solomin/Dr. Kulesh.
Morning height: 168cm Afternoon: 166cm
Goal: Femurs and Tibia, 12-14cm LON
20 year old male.

myloginacct

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Re: LON in Vietnam
« Reply #163 on: April 27, 2018, 01:25:56 AM »

I guess the countrues reputation plays a big role in our minds so I somewhat agree to what your saying and why you feel it's riskier in Russia than it is in the States.

Yep, Kulesh seems pretty good, but wasn't Overdozer who "boasted" about getting prescription drugs from stores without having any? And he was a native Russian.

You're just most likely more overall protected in case anything goes wrong if you're in the EU or the US.

EDIT: As we've seen with Unicorn, though, there are no guarantees if your doctor is negligent towards you...
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Hamiltonzac

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Re: LON in Vietnam
« Reply #164 on: April 27, 2018, 10:45:56 AM »

I completely agree. LL aside Russia is the same when it comes to every other general hospital. It's still a developing country but I am not doubting the doctors expertise.
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Surgery March, 2019 in Russia with Dr. Solomin/Dr. Kulesh.
Morning height: 168cm Afternoon: 166cm
Goal: Femurs and Tibia, 12-14cm LON
20 year old male.

Muller25

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Re: LON in Vietnam
« Reply #165 on: June 15, 2018, 12:25:47 AM »

So anyone still going to Vietnam?
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lucindaris

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Re: LON in Vietnam
« Reply #166 on: June 15, 2018, 11:55:10 AM »

I was considering this but they increased price from 12k to 1k8 and I decided to wait till they start using internal methods, also i heard about some bad outcomes which made me reconsider this option.
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Asiankll

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Re: LON in Vietnam
« Reply #167 on: June 15, 2018, 01:40:36 PM »

what's the bad outcomes you heard about?
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iwanttobeabillionaire

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Re: LON in Vietnam
« Reply #168 on: June 15, 2018, 02:04:04 PM »

I'm doing this surgery in Vietnam right now... there are 20+ patients. Chinese, Japanese, Korean, and three English-speaking.

Not sure what bad outcomes you are referring to. Worst thing so far is somebody with a pinsite infection that had to get blood removed from around it. I've kept in touch with Normy and he's could walk without aid 6 months after surgery albeit not normally.
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lucindaris

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Re: LON in Vietnam
« Reply #169 on: June 15, 2018, 04:21:13 PM »

Normy got some issues back then and i want to quote something
Quote
I wanted to share the information about the situation in vietnam, about the hospital I have posted before because I feel responsible if anyone dicided to do CLL there without knowing what's going on..

this month, a chinese girl doing LON was transfered to ICU after having a bad infection, I suspect a case of sepsis.
at the same hospital, one of my friend has also been suffering for a severe pin tract infection, but not only pin-site, doc had to cut open the stitched wound where they  cut bone during the initial operation.
half of his shin was swallen and when they opened the stitched wound, so much puss oozed out...horrific!
now he is taking 24 hr VAC therapy to suck up all bacteria.
there are also other japanese and chinese total of 15 patient at the institute where they stay during distraction and only 2 helpers are attending them.
the hospital dislocated some of x ray data and cannot find never and is susppected not taking x rays in a consistancy so that they cannot be sure how much bone is distracted, which could be lead to some bad complication as malunion or non union.

I think if they start stryde, these issues of infection and control of distraction should diminish, and maybe OK to go there for CLL but right now seems way too risky.

I just wanted to let  you know this situation since the real patients cannot write a real story because of the litigation issue.
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iwanttobeabillionaire

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Re: LON in Vietnam
« Reply #170 on: June 15, 2018, 05:18:09 PM »

The Chinese girl who went to the ICU had an allergic reaction to an antibiotic that worsened the case. The guy with the severe infection (which I mentioned before) exposed his pinsite to dirty tap water.

There is helper for every floor but only two english/chinese speaking helpers. Recently they hired a nurse full-time to change bandages and monitor patients.

Recently the X-rays had been found to be overestimated and therefore they're now moving to CAT scans for everyone to get the most accurate results. The unintended consequence is that patients lengthened .7-.8mm/day vs. the 1mm they thought they were.. could be a good and bad thing.

Maybe I am bias because I have a decent experience so far. But the results of a few should not be deterministic of a population. This surgery is tough and the results can be a roll of a die.
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myloginacc

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Re: LON in Vietnam
« Reply #171 on: June 15, 2018, 05:32:26 PM »

So they're moving from biweekly/monthly (I don't know the schedule over there) plain X-rays to full CT scans?
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Formerly myloginacct; had issues with my login account.
Yes I do want to add, before doing this surgery, ask yourself if you have optimized your life to the fullest extent possible (job/career, personality, etc).

lucindaris

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Re: LON in Vietnam
« Reply #172 on: June 15, 2018, 06:57:15 PM »

Absolutely. I understand You and ofc I am not generalizing, even Paley got bad cases. This is not an easy process that's why i want to reconsider every option.
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Muller25

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Re: LON in Vietnam
« Reply #173 on: June 16, 2018, 11:55:34 PM »

wtf its 18k now?
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